WEBVTT

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Thanks everyone. for joining us on another episode

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of our podcast, The Canadian Breakpoint. So today

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we're doing this new thing. I've never done this

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before. We're doing an AMR series and it's going

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to be fantastic. We're talking actually from

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the symposium here in Toronto and we have a lot

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of good speakers, a lot of different perspectives

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about antimicrobial resistance. And so today

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we have Ms. Huda. Rezek, who is here with us

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to talk about antimicrobial resistance and really

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have a focus on stewardship and more from a personal

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and patient perspective. So welcome, Huda, and

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thank you so much for joining us today. Thank

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you so much for having me. I'm so excited. Yeah,

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awesome. And so why don't you let our audience

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know a little bit about yourself and what brought

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you to the symposium today? For sure. So I do

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have cystic fibrosis. It's an infection, a genetic

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condition that causes a lot of infection and

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causes a lot of thick mucus. So I'm not a stranger

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to bacteria. Bacteria is always growing. There's

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always something going on. And I'm always taking

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antibiotics of some sort. So really not for the

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basis of most people where they go get antibiotics

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to get cured and it's over and the story ends.

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For me, the antibiotics is really just when I

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can't fight on my own anymore, when the base

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treatment doesn't work anymore. I do. antibiotics

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in the hospital to give me that little boost

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so that I can go back to doing what I do. So

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I do have this genetic disease. I'm also a dietitian.

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I graduated from McGill in Montreal, Quebec.

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And so I do dietitian as my job in Montreal.

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I'm based from there. And I also do a little

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bit of reception work that I like as well in

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the same clinic. And then when I'm not doing

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any of that, I do also drug testing. So I get

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to do like rapid tests for people, employees

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who are about to start for like drug testing

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or alcohol testing, hearing testing, all of that.

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So those are really like, I'm busy. Yeah. You're

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busy. Yeah. Especially with having kind of a

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condition like cystic fibrosis is more chronic.

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Sometimes you're away from probably work for

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a while. Yeah. it's tied into why I care about

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this so much is that can we reduce that amount

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of time that I'm there? Yeah. And that's a really

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good point that you bring up because whenever

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we think about antimicrobial stewardship and

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resistance developing, we kind of always think

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about appropriate use of antibiotics, but there's

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also. Another kind of angle to it is how long

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we're using these antibiotics, right? So starting

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the antibiotic, which one it is, if it's the

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right one. And obviously for you, I'm sure when

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you look at your kind of susceptibilities come

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back for the organisms that you normally grow,

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you probably also worry like, am I developing

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resistance and what's happening? So absolutely.

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So we're a little bit beyond worry. I don't want

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to make this too depressing, but. You know, I

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do have only a couple of options left. I do carry

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multi -drug resistant bacteria already. We're

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kind of already there. Yeah. And it does have

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a lot to do with why I'm here and why I'm so

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passionate with this topic of antibiotic resistance

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is that I don't think it's something people think

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of as being so imminent. unless you're living

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through it which i am yeah or you know someone

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who is exactly yeah and so how do you feel like

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the impact of kind of the resistance like over

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the years has been for you from a quality or

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you know patient perspective sample question

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because um it used to be that i can go do like

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go to the hospital get oral antibiotics get discharged

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within like minutes from that Take it and it

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works. And it's like, you move on, you go back

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to school, you go back to your studies. Everything's

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fine. It doesn't do anything. Right now, oral

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antibiotics don't work for me anymore. They're

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not strong enough because we've used them. My

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bacteria is resistant to them. So that's one

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thing. I can't go with an oral antibiotic anymore.

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The other reality is that I can't even go with

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one IV antibiotic anymore. It has to be two at

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a time. And I'm kind of left with... two options.

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So it becomes a lot harder that you start questioning

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if I'm even going to go to the hospital. That's

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where I'm at right now is asking, is it worth

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to go to the hospital? Like, am I sick enough

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that I need to go today, tomorrow, or the next

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day? Exactly. And that it might just mean that

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taking antibiotics now could potentially reduce.

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my ability to use them next time. Right. Because

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of resistance. Okay. And so what's the message

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that you want to send to our listeners today?

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If we can work on, you know, using the faster

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diagnostic tools that companies have created

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and it is available, if we can use to diagnose

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quicker to avoid unnecessary antibiotic use when

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it's, for example, viral or it's... fungal or

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something else yeah from a patient perspective

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also to not want that i think we tend to go to

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the hospital hoping for a prescription yeah at

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the end of the day right and we do have to realize

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that what we're asking might end up hurting us

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with resistance the more bacteria antibiotics

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we use the more bacteria gets used to it and

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gets resistant right that's just the reality

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behind it so a little bit of quicker diagnostic

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would be my my dream yeah being having that discussion

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with the doctor about the risks and the use of

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it right to really sit down and and talk about

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that yeah to make that decision together yeah

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that's a fantastic point I think it's really

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important to kind of really bring out the idea

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that sometimes if you do have a cold you know

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that type of thing you not need antibiotics because

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it's not material could be viral and and really

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looking at it not how it's going to make me feel

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better today but in the long run long -term outcomes

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and the consequences if I continue kind of taking

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those antibiotics and building that resistance.

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Yes. Yeah, exactly. It's a really good, important

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point. And I think even with the antimicrobial

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resistance symposium that we're here today and

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over the next two days, there's a lot of talks

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around resistance and not only that, having some

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diagnostic stewardship. what you mentioned in

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terms of, you know, relying on some rapid tests.

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And communicating, I think, is really important

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in reducing that barrier within even hospitals

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that, you know, we don't know what's available.

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And so talking to the microbiologists about that

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is really important as well. And knowing what

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your hospital can provide. And if they can't,

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for instance, and not just in hospitals, I think

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in community -centered settings too, like acute

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care settings, we also do need that as well,

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where we... know which tests that we have and

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what's available to kind of help us distinguish

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between bacterial viral fungal exactly yeah and

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it's you know we've never done it from a patient

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perspective so I think it's always important

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to kind of see the other side right and and you're

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seeing it from kind of, you know, the next antibiotic,

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whether it's going to build more resistance.

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And then, you know, you're worried not only are

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you worried when you're going to the hospital,

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am I going to have to stay here long enough?

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Have I built more resistance? Right. And do I,

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do I have options to treat? Right. Because the

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question right now is I don't know. Yeah. And

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it's very frightening, you know, look at it from,

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I mean, from a physician standpoint, it's also

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like frightening because you want to support

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the patient and you want to help them, but living

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with it and then knowing kind of which options

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you have and don't have, it would be. I can't

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even imagine. What's worse of it is that the

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last two antibiotics I was on that were sensitive

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to my bacteria, so we're all happy, yay, you

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know? I ended up having a really scary experience

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while on them where I had a massive lung bleed.

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So my lungs were just bleeding nonstop. The nurses

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couldn't stop it. It took a lot of effort. So

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you come and you're thinking, these are the last

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two, but... look at the risk. Look at how you

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feel on them is that you're getting close to

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that lung bleed. Now it's not directly because

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of the antibiotics, but it's just being on those

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two and feeling that really makes you wonder,

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is there better options or maybe less risk? Yeah.

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And you bring up a really good point. I mean,

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this one probably wasn't mainly directly related

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or a side effect, but there's also side effects

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to antibiotics and being on antibiotics and those

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types of things that I think in the moment when

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people are thinking about an acute, you just

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want to feel better. Exactly. But sometimes,

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yeah, which is fair. And, but sometimes in the

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long run, that is not going to benefit you. Right.

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Unfortunately. Right. And so. So that's why I'm

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here. That's why the AMR speaks so loudly for

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me is because I am there. I am at the point.

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I understand how imminent this is. And if there's

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anything I can do to create that awareness for

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anyone to realize that maybe we do need to talk

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more about the use of antibiotics and faster

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testing and all of that. That's really the goal.

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It's not about finding options for me. It's realizing

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that resistance is going to affect everyone.

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If I cross with someone else who has CF, I can

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give them my resistance. And all of a sudden,

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they're down of options without even going on

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it. So it is a little bit of a silent threat

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that we don't realize. and it's it's it's very

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it's actually quite alarming how this has progressed

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um and like resistance has progressed over the

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years. And I think we always talk about this

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and, and how it's, you know, caused deaths and

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diseases to become more challenging to treat.

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And so thank you so much for bringing your perspective.

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And I think most of us here at the AMR symposium

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have a very share kind of the same passion as

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you. Obviously, we're not going through the day

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to day challenges that you are. So you're very

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brave. So thank you so much for bringing out

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your story and telling us a lot about kind of

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how this affects you directly and we hope that

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with this awareness today with you coming on

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the podcast with us being here live today at

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the AMR symposium and talking to experts and

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researchers and clinicians that all of us can

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kind of work together to really combat this issue.

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Yes, well said. And I think not only work together,

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but have that discussion together. You as a patient,

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when you go to the hospital to be empowered to

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know that this could be an issue and what are

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my options and open that discussion. And you

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can, you can as a, like, you don't have to be

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a science -y person. You don't have to be a doctor.

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You can just bring it up to your doctor about

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what about resistance and is this the right?

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thankfully right and thank you so much for bringing

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that up because I think it's really important

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as kind of being a patient and I recently had

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you know some exposure of being kind of on the

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patient side with my dad and and him going through

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an illness and I can't even you know it's such

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an eye -opener sometimes when you're on the patient

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perspective side and how many things that you

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have to think about and and sometimes you don't

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know the questions you have to ask I think Thank

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you for telling the audience that it's okay to

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question things. It's okay to ask about your

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care, to ask if you have fears about an antibiotic

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that you're going to be put on. And I always

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tell parents about the resistance that can develop

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and all that. But I feel like it's really important

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that families advocate or patients advocate for

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themselves too and bring this up. And so I think

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you're a key example of someone who for sure

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does that. And it's fantastic. see from my perspective

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as well to see that you're an inspiration to

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others that have chronic conditions but also

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just going in for a common cold and yes and you

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know they should think do I really need this?

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Exactly. Yeah. So just to bring about the conversation,

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that's what I ask of everybody. Yeah, that's

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great. Talking about. Yeah. And I think start

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talking is probably a good approach to create

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the education and awareness as well, because

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then in that moment, the physician themselves

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who is about to prescribe. probably also has

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to think, you know, is this the right choice?

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Right. Should I make this choice today to give

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this patient a viral prescription or a antibiotic?

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Yes. And I think there's a lot of different methods

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that we've kind of brought up with stewardship

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and a lot of different techniques that we've

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figured out. And I think there's a lot of discussion

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around this. So, yeah, I think we'll all continue

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to get better. Yeah, I am hopeful these events

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do bring about the hope. A hundred percent. Yeah.

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And they bring about action. So that's what we're

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here today for. Exactly. Awesome. Well, thank

00:13:53.690 --> 00:13:56.029
you so much for coming on to the podcast and

00:13:56.029 --> 00:13:58.230
supporting the podcast. And thank you so much

00:13:58.230 --> 00:14:00.909
for having me. Of course. And we wish you all

00:14:00.909 --> 00:14:02.350
the best. Thank you. Thanks.
