00;00;00;00 - 00;00;04;14 I’m Dr. Rob Winn and you're listening to Real Cancer Talk 00;00;04;14 - 00;00;07;14 from VCU Massey Comprehensive Cancer Center. 00;00;07;17 - 00;00;11;27 I am Community Clo welcoming you to Community Conversations. 00;00;12;00 - 00;00;14;04 You want to turn us all the way up. 00;00;14;04 - 00;00;16;24 I say this every month, right? 00;00;16;24 - 00;00;18;17 Well, I am Community Clo. 00;00;18;17 - 00;00;22;01 Your hostess always keeping you updated. 00;00;22;06 - 00;00;28;00 And I brought a few friends along on this day of no copay and no white coats. 00;00;28;07 - 00;00;32;04 Now we're going to be talking about the American Association for Cancer 00;00;32;04 - 00;00;35;28 Research Disparities Progress Report 2024. 00;00;35;29 - 00;00;39;19 So to talk about it are my special guest, Doctor Rodney Haring 00;00;39;25 - 00;00;43;16 chair of the Department of Indigenous Cancer Health, Roswell 00;00;43;16 - 00;00;47;13 Park Comprehensive Cancer Center out of Buffalo, New York. 00;00;47;18 - 00;00;50;17 How are you, Doctor Haring? I am doing well. 00;00;50;17 - 00;00;51;13 How are you today? 00;00;51;13 - 00;00;54;05 I'm doing good. I see you ready to get into it. 00;00;54;05 - 00;00;58;12 And we always in a win win situation when we have this doc on board. 00;00;58;18 - 00;01;01;27 Doctor Robert Winn of the Massey 00;01;01;27 - 00;01;05;11 Cancer Comprehensive., that is, Cancer Center. 00;01;05;15 - 00;01;06;12 How are you doing? 00;01;06;12 - 00;01;07;04 You know what? 00;01;07;04 - 00;01;10;11 Every time I'm with you, all I do is win, win, win win. 00;01;10;12 - 00;01;11;07 You know how that go? 00;01;11;07 - 00;01;12;17 I know that's right. 00;01;12;17 - 00;01;14;19 And another one. And another one. 00;01;14;19 - 00;01;19;22 Now we're going to talk about the, key cancer disparities statistics. 00;01;19;26 - 00;01;23;05 Doctor Haring you want to share some of those with our audience? 00;01;23;24 - 00;01;24;03 Yeah. 00;01;24;03 - 00;01;26;11 I can start off, first, I just want to say 00;01;26;11 - 00;01;29;20 I appreciate the opportunity to share and kind of highlight 00;01;29;20 - 00;01;33;19 and just some experiences about from our, our indigenous communities, 00;01;33;19 - 00;01;34;21 our native nations and 00;01;35;27 - 00;01;37;02 tribal nations. 00;01;37;02 - 00;01;41;05 And, we've had, a number of cancer health disparities, 00;01;41;05 - 00;01;44;05 related to a number of issues over time from, you know, 00;01;44;09 - 00;01;47;20 our people have been here since the beginning of time and things have changed 00;01;47;28 - 00;01;48;22 since that time. 00;01;48;22 - 00;01;53;04 So some of our, cancer disparities are related to, 00;01;53;14 - 00;01;56;06 and you'll see that in some of the reports coming out, 00;01;56;06 - 00;02;00;29 the liver cancer, you know, other areas related to, 00;02;01;06 - 00;02;05;17 kidney cancer and other areas related to just, you know, things 00;02;05;17 - 00;02;09;04 that have affected our community as over time, co-occurring conditions included. 00;02;10;12 - 00;02;12;09 And it's so interesting when you think about 00;02;12;09 - 00;02;16;17 what does this derived from, we always looking at the disparity numbers 00;02;16;17 - 00;02;21;21 when it comes to black people or brown people or indigenous individuals. 00;02;21;26 - 00;02;23;01 Where is this happening from? 00;02;23;01 - 00;02;27;14 Could it be, nature or what, Doctor Haring? 00;02;28;06 - 00;02;30;25 Well, you know, our people have always had 00;02;30;25 - 00;02;33;25 a connection to nature, like you're saying, an environment. 00;02;34;04 - 00;02;35;27 And you'll see that the. 00;02;35;27 - 00;02;38;24 Well, you know, what we would call social drivers of health 00;02;38;24 - 00;02;41;23 or some referred to as social determinants of health. 00;02;41;27 - 00;02;44;14 In fact, our people in a number of different ways, 00;02;44;14 - 00;02;49;17 access to care, transportation, but in a cultural sense, to talk about, 00;02;49;17 - 00;02;53;21 our connection, our indigenous knowledge is, you know, how is our indigenous 00;02;53;21 - 00;02;58;07 knowledge has changed, our access to, living the way 00;02;58;07 - 00;03;02;09 we used to eating the things that we used to drinking the way we used to. 00;03;02;09 - 00;03;03;25 And all of that changed over time. 00;03;03;25 - 00;03;05;17 And, you know, believe that 00;03;05;17 - 00;03;08;24 because of those, westernized influences to our people, 00;03;09;14 - 00;03;13;08 that those may have and probably do have relationship to things like obesity. 00;03;13;08 - 00;03;18;21 And, and if you look at obesity in the way our, we live in that kind of context 00;03;19;06 - 00;03;22;07 that has an influence on, different types of cancer. 00;03;22;11 - 00;03;26;19 So to say that relationships and co-occurring conditions like diabetes 00;03;26;19 - 00;03;28;05 also affects our people 00;03;28;05 - 00;03;30;04 and our relationship to some of these other 00;03;30;04 - 00;03;32;23 co-occurring conditions and to our cancer health disparities. 00;03;32;23 - 00;03;35;14 So that's one piece of the puzzle. 00;03;35;14 - 00;03;38;17 And looking at, you know, how how do we prevent that? 00;03;38;27 - 00;03;41;11 How do we look at that? And whether that's related to, 00;03;42;10 - 00;03;44;04 those kind of factors? 00;03;44;04 - 00;03;49;03 We're a lot of like, you know, even though we're from different nationalities. 00;03;49;06 - 00;03;51;06 And, Doctor Winn I want you to jump in on this. 00;03;51;06 - 00;03;53;02 And, you know, you believe in cures. 00;03;53;02 - 00;03;56;19 And this is where I think this is where I think having Doctor 00;03;56;19 - 00;03;58;10 Haring on and understanding 00;03;58;10 - 00;04;02;22 that in the Commonwealth of Virginia, we have several indigenous sort of tribes. 00;04;02;29 - 00;04;06;17 But the Chickahominy, you know, the Rappahannock, etc. 00;04;07;03 - 00;04;09;15 But the reality is, if you look at our numbers, 00;04;09;15 - 00;04;13;25 whether you go east or you go west or you go south, when we look at, 00;04;13;25 - 00;04;17;17 endogenous, indigenous sort of, communities, 00;04;17;26 - 00;04;19;26 they're suffering just like many of the communities 00;04;19;26 - 00;04;23;03 in the African-American and rural white areas and rural areas. 00;04;23;13 - 00;04;24;26 And I think that what we 00;04;24;26 - 00;04;27;28 what we used to say, well, there is nothing that we can do about it. 00;04;28;06 - 00;04;31;18 And when I'm convinced that this report does say is it identifies 00;04;31;18 - 00;04;34;23 the problems and as doctor having just sort of said identified the problems. 00;04;35;02 - 00;04;38;02 But within those identifications, the problems, they're also solutions. 00;04;38;06 - 00;04;40;08 You know, most of this isn't what we can't do. 00;04;40;08 - 00;04;41;27 It's what we are willing to do. 00;04;41;27 - 00;04;46;11 And so that's why I'm really excited about not only the report, not only, you know, 00;04;46;13 - 00;04;50;17 what were they doing with Chief Ann and, and, and Chief Atkins, as you know, up 00;04;50;17 - 00;04;55;06 in Charles City with Chickahominy and others and the Iroquois nation. 00;04;55;06 - 00;04;59;09 But what we can actually now know, before you solve a problem, you have to know 00;04;59;14 - 00;04;59;27 is there. 00;04;59;27 - 00;05;01;11 The difference is, 00;05;01;11 - 00;05;06;01 I think Doctor Haring and others now have moved beyond admiring the problem. 00;05;06;05 - 00;05;08;10 And now we like what you going to do about it. 00;05;08;10 - 00;05;11;28 And so that's where I'm really excited about the things that we can actually 00;05;11;28 - 00;05;15;10 think about as a group, about how to now address some of these issues. 00;05;15;10 - 00;05;18;08 And some of these issues are going to cost a whole lot of money. 00;05;18;08 - 00;05;20;26 Yeah. You know, but some of them we have to be realistic. 00;05;20;26 - 00;05;23;14 Just to say prevent, Sister Cloe... 00;05;23;14 - 00;05;24;28 You know what people say. Well just eat well. 00;05;24;28 - 00;05;25;19 Well how are you going to eat 00;05;25;19 - 00;05;28;21 well if you ain't got fresh fruits and vegetables in your neighborhood? 00;05;28;21 - 00;05;30;08 Yeah, in a 40 miles away. 00;05;30;08 - 00;05;33;22 So we have to do a lot less about telling people what they need 00;05;33;22 - 00;05;36;23 to do and making sure that they have what they need in the communities. 00;05;36;23 - 00;05;40;24 And that's, I think, a really big focus of this, of of why I was happy 00;05;41;06 - 00;05;46;01 to chair the third, the third version of this, you know, sort 00;05;46;01 - 00;05;51;03 of our AACR report, health equity report because I was I was OG, back in the day. 00;05;51;05 - 00;05;52;27 I was with the first 1 in 2020 00;05;52;27 - 00;05;55;27 when we recognize that there was no such report ever. 00;05;56;03 - 00;05;58;11 In the United States, that was consistent. 00;05;58;11 - 00;05;59;21 And every year of the year 00;05;59;21 - 00;06;03;13 we've been committed to, you know, Doctor Foti, that organization 00;06;03;19 - 00;06;06;22 and others have been committed now to bringing the information that we can. 00;06;07;13 - 00;06;09;24 And when I'm just looking at this, thank you so much 00;06;09;24 - 00;06;12;28 for your wealth of information and all you do, Doctor Winn and Doctor Haring 00;06;13;03 - 00;06;16;06 And I'm just looking down the scope of the key cancer disparities 00;06;16;06 - 00;06;19;10 statistics when we're looking at African-American, 00;06;19;14 - 00;06;25;03 Alaska Native Asians, Pacific Islanders and Hispanic individuals more than twice 00;06;25;06 - 00;06;29;20 as likely will die from stomach cancer compared to white people. 00;06;29;26 - 00;06;33;19 And I know we live in a fast paced society, but as you did, 00;06;33;20 - 00;06;38;29 mentioned Doctor Haring from our culture of eating everything from the ground up, 00;06;39;02 - 00;06;43;25 we moved into a fast paced society now where everything is made in the microwave. 00;06;44;17 - 00;06;48;07 Could that be a contributor also, Doctor Haring and/or Doctor Winn? 00;06;49;00 - 00;06;51;03 I'm just asking. Yeah. You know. 00;06;51;03 - 00;06;52;24 Yeah. That's true. That's absolutely true. 00;06;52;24 - 00;06;56;19 If you think about what Doctor Winn was saying about where we get our food, right. 00;06;56;19 - 00;07;01;09 So you go to, a grocery store and yeah, they may have, like, bananas, 00;07;01;14 - 00;07;04;20 you know, they may have like, lettuce, but for a traditional food to come 00;07;04;20 - 00;07;09;01 from the earth, right, or wild onions or, you know, different teas and 00;07;10;04 - 00;07;11;25 the things that we hunt for 00;07;11;25 - 00;07;14;25 and we don't always even have access in our own minds to that 00;07;14;29 - 00;07;17;10 and the relationship to our land and what we get. 00;07;17;10 - 00;07;18;28 And then going to our grocery stores 00;07;18;28 - 00;07;23;05 and most reservations or territories or reserves are in rural areas. 00;07;23;05 - 00;07;27;22 And I, you know, faced some of the same challenges to get fresh food. 00;07;27;22 - 00;07;30;01 And and it's just really complicated. 00;07;30;01 - 00;07;33;01 And how we cook and what we use are all important. 00;07;33;04 - 00;07;36;26 Now, I would also say that, you know, across the country, you know, 00;07;37;10 - 00;07;39;27 even though our people have been here since the beginning of time, 00;07;39;27 - 00;07;43;19 we haven't been in the conversation most of the time as of late. 00;07;43;19 - 00;07;46;20 One more, NCI designated cancer centers 00;07;46;20 - 00;07;50;16 and organizations have started to build more relationships. 00;07;50;16 - 00;07;54;08 And, you know, that isn't just like, oh, it's a good idea. 00;07;54;13 - 00;07;57;09 A it's a federal responsibility through treaty rights 00;07;57;09 - 00;08;01;01 that we have these conversations, that there are funding and support 00;08;01;01 - 00;08;04;14 mechanisms at the conversations that are there, that we're at the table. 00;08;04;28 - 00;08;07;28 And so we really appreciate having, you know, having us on. 00;08;08;07 - 00;08;10;07 Oh, absolutely. Conversations. 00;08;10;07 - 00;08;12;27 We really appreciate, at the NCI designated 00;08;12;27 - 00;08;15;27 cancer centers, having us at the table. 00;08;16;01 - 00;08;20;06 And as Doctor Winn was saying, you know, head in a Shawnee people, 00;08;20;06 - 00;08;23;23 Iroquois was a word that came from, 00;08;24;07 - 00;08;27;12 the French and is now used in America. 00;08;27;12 - 00;08;31;06 But we ourselves call ourselves the hood in Shawnee, or the people around us. 00;08;31;06 - 00;08;34;23 And our people spend most of the East Coast and into Ontario. 00;08;35;07 - 00;08;37;11 And what is now Quebec. 00;08;37;11 - 00;08;41;02 So before, Canada and the US were here are people have always traversed 00;08;41;02 - 00;08;44;02 these areas and lived along the Great Lakes regions. 00;08;44;05 - 00;08;46;25 And, you know, it's it's been a big change. 00;08;46;25 - 00;08;50;06 And a lot of these factors of historical change and the way 00;08;50;06 - 00;08;53;24 we approach things, yeah, our people are understanding them moving forward. 00;08;54;02 - 00;08;57;04 But at the same time, you know, there are disparities there. 00;08;57;04 - 00;08;58;29 We don't have the land base we once had. 00;08;58;29 - 00;09;03;19 We don't have, you know, the language that we once had and that's coming back. 00;09;03;19 - 00;09;06;19 And, you know, in our resilient way of life, we're still here. 00;09;06;27 - 00;09;07;19 Yeah, we're still here. 00;09;07;19 - 00;09;09;28 We're still, you know, the same land we always walked on. 00;09;09;28 - 00;09;12;25 But, you know, it's the microwave and not the fire anymore. 00;09;12;25 - 00;09;15;01 But I think is going the other way 00;09;15;01 - 00;09;18;10 where we're starting to, you know, bring our traditional ways back. 00;09;18;18 - 00;09;20;08 And part of that indigenous knowledge 00;09;20;08 - 00;09;23;07 and traditional ways really supports our healthy lifestyles. 00;09;23;08 - 00;09;28;17 So we're at the apex of our transition now, and rekindling 00;09;28;17 - 00;09;32;24 and resurgence of how we used to live for the health and wellness of our people. 00;09;32;24 - 00;09;35;21 We need all of our tribes and all of our villages back. 00;09;35;21 - 00;09;38;01 Definitely. We're going to take a break and come on back. 00;09;38;01 - 00;09;39;17 We have more good news. 00;09;39;17 - 00;09;42;20 This is Community Conversations. 00;09;42;21 - 00;09;44;03 Stay close. 00;09;44;03 - 00;09;45;21 I am Community Clo. 00;09;45;21 - 00;09;47;27 Welcome back to Community Conversations. 00;09;47;27 - 00;09;51;02 This is a show of no copays and no white coats. 00;09;51;02 - 00;09;52;11 We're getting down to it. 00;09;52;11 - 00;09;55;09 We're talking about key cancer disparities statistics. 00;09;55;09 - 00;09;58;14 And you know me I go to the source and I want to make sure 00;09;58;14 - 00;10;02;04 we're looking for solutions and pursuing health equity. 00;10;02;11 - 00;10;03;27 Joining me on the show is Doctor 00;10;03;27 - 00;10;07;20 Rodney Haring chair of the department of the Indigenous Cancer Health 00;10;07;27 - 00;10;11;28 Roswell Park Comprehensive Cancer Center in Buffalo, New York. 00;10;12;05 - 00;10;15;27 And we also have Doctor Robert Winn of the VCU Massey 00;10;15;27 - 00;10;20;21 Comprehensive Cancer Center in Virginia, let's say, Richmond, Virginia. 00;10;20;26 - 00;10;23;25 Joining us on the show now, we're going to get back into it. 00;10;23;28 - 00;10;28;02 Doctor Haring let's talk about some of these causes of cancer disparities 00;10;28;06 - 00;10;32;26 when it comes to our indigenous family and black folk. 00;10;33;13 - 00;10;37;22 You know, across the nation has been relationships within indigenous 00;10;37;22 - 00;10;42;03 peoples and, and black people for many, for many generations. 00;10;42;03 - 00;10;45;18 I would say, here in this area, 00;10;45;18 - 00;10;49;10 around Buffalo, we have the Underground Railroad history, 00;10;49;23 - 00;10;54;15 and many people from many, communities would come through this area. 00;10;54;25 - 00;10;57;11 And as sovereign nations, we always had that relationship 00;10;57;11 - 00;11;00;06 and understanding and partnership with people. 00;11;00;06 - 00;11;02;01 And so we've always had relationship 00;11;02;01 - 00;11;05;06 with, black communities, for, for generations. 00;11;05;23 - 00;11;08;29 And, you know, across the country as well. 00;11;08;29 - 00;11;12;19 It hasn't just been here in the our region, but across the country 00;11;12;19 - 00;11;15;19 and into North America and into Canada as well. 00;11;16;03 - 00;11;18;05 So there is that relationship that we've had. 00;11;18;05 - 00;11;19;27 We honor that relationship. 00;11;19;27 - 00;11;23;27 We often face some of the same health disparities and same cancer 00;11;23;27 - 00;11;25;03 health disparities. 00;11;25;03 - 00;11;27;09 So the relationship has been there. 00;11;27;09 - 00;11;32;06 We continue to honor that relationship, nation to community, to people, to people. 00;11;32;18 - 00;11;35;07 And, you know, that's how we that's how we work together. 00;11;35;07 - 00;11;39;02 It's been taught to us that way, as indigenous people, that we 00;11;39;02 - 00;11;44;14 we honor those relationships and, you know, working together, to find, 00;11;44;26 - 00;11;47;18 resolution and solution and equity, 00;11;47;18 - 00;11;50;18 amongst our peoples, it's very important. 00;11;50;21 - 00;11;52;13 So we carry that on the work that we do. 00;11;53;12 - 00;11;54;29 Well, thank you for that, Doctor Haring. 00;11;54;29 - 00;11;57;28 Doctor Winn, I need you to step on up 00;11;57;28 - 00;12;03;15 when it comes to Indigenous and Indigenous family, we're talking about tribes. 00;12;03;17 - 00;12;05;28 Well what about this African American village? 00;12;05;28 - 00;12;09;02 How do we extend that olive branch to get them 00;12;09;02 - 00;12;12;02 involved with clinical trials and more? 00;12;12;04 - 00;12;14;05 How do how do we do that? Yeah. 00;12;14;05 - 00;12;15;21 So you know it, you know. 00;12;15;21 - 00;12;18;14 And Brother Rodney, I really appreciate it. 00;12;18;14 - 00;12;19;10 Yes we do. 00;12;19;10 - 00;12;24;11 One of the, one of the leaders that you have, also Ronny Bell of that 00;12;24;11 - 00;12;28;13 University of North Carolina, part of that Linerberger Cancer Center. 00;12;28;23 - 00;12;29;16 Here's the deal. 00;12;29;16 - 00;12;32;14 Grandparents, great 00;12;32;14 - 00;12;35;18 grandparents and great great grandparents actually told us how to work together. 00;12;36;03 - 00;12;39;05 So and actually, not only told us, but showed us how to work together. 00;12;39;12 - 00;12;41;28 And I think that, Doctor Herring, that's something that I thought 00;12;41;28 - 00;12;44;28 was really important about getting back to really who we are. 00;12;45;00 - 00;12;46;07 So we know how to do this. 00;12;46;07 - 00;12;49;06 I mean, whether we're talking about some of our tribes here, 00;12;49;10 - 00;12;53;29 in the Commonwealth of Virginia, or as of what we've done, in Florida 00;12;53;29 - 00;12;57;16 or in Oklahoma and places like that, we kind of have an idea 00;12;57;23 - 00;12;59;10 when it comes to clinical trials. 00;12;59;10 - 00;13;01;14 I actually think that it's really important. 00;13;01;14 - 00;13;07;10 In fact, as the AACR report came out, we covered someone who was, literally 00;13;07;10 - 00;13;11;08 from the Seneca nation who actually sort of said that he 00;13;11;17 - 00;13;15;04 if it were not for clinical trials, if it were not for access to care, he 00;13;15;04 - 00;13;15;19 wouldn't be here. 00;13;16;19 - 00;13;17;19 And so 00;13;17;19 - 00;13;21;28 this concept, though, of bringing the molecules that become 00;13;21;28 - 00;13;23;14 the miracle medicines 00;13;23;14 - 00;13;27;14 and understanding that when you've reached the end of the standard of care, 00;13;27;20 - 00;13;30;19 that the standard of care really is the offering to our people 00;13;30;19 - 00;13;33;16 in all of our communities, access to clinical trials 00;13;33;16 - 00;13;35;28 is something that is a work that we're all going to have to do. 00;13;35;28 - 00;13;39;22 Latino communities, African-American communities, indigenous communities. 00;13;39;28 - 00;13;43;12 Because the truth of the matter is, we don't always know if the medicine 00;13;43;12 - 00;13;46;12 we give it to patient X is going to work on patient Y. 00;13;46;13 - 00;13;47;11 Yeah, we need to know that. 00;13;47;11 - 00;13;52;07 And the only way to know that is that we have to show up and be part of it. 00;13;52;15 - 00;13;55;09 So that when we think about the miracle drugs, 00;13;55;09 - 00;13;57;23 we know that that miracle drug is going to work for everybody. 00;13;57;23 - 00;14;00;04 So that I think that that would be my pitch. 00;14;00;04 - 00;14;02;24 And that's going to I'm going to go to that's my that's my story. 00;14;02;24 - 00;14;05;15 And I'll get to it. Okay. And I think that folks 00;14;06;14 - 00;14;09;06 that folks like Doctor Haring and Doctor Bell and others, 00;14;09;06 - 00;14;12;15 I think we're also taking that message out to the African-American community 00;14;13;02 - 00;14;16;02 and to, you know, and to our indigenous brothers. 00;14;16;02 - 00;14;17;19 And, you know, you know, in the black community, 00;14;17;19 - 00;14;20;06 you know, we talk about when they talk about good hair. Yeah. 00;14;20;06 - 00;14;21;18 You know, I got some you know what I'm saying? 00;14;21;18 - 00;14;23;02 You know, this is that is something, you. 00;14;23;02 - 00;14;25;09 No, you didn’t. For different folks, for African Americans. 00;14;25;09 - 00;14;26;05 Yes, I did. 00;14;26;05 - 00;14;27;09 You know, I did. 00;14;27;09 - 00;14;31;14 It all mixed up it, you know, you know, we're just we're just God's children. 00;14;31;14 - 00;14;34;13 Doctor Haring is shaking his head. You know. Yeah. 00;14;34;13 - 00;14;35;10 I gave it back. 00;14;35;10 - 00;14;37;26 I don't even know how I hang around, Doctor Winn but I do. 00;14;37;26 - 00;14;40;24 That's right. And we're all God's children. 00;14;40;24 - 00;14;42;12 That that's who we are right now. 00;14;42;12 - 00;14;44;20 We're all mixed up with something. 00;14;44;20 - 00;14;48;07 We're going to say, Doctor Winn has some nice looking hair, too, and so do I. 00;14;48;07 - 00;14;51;07 So I think that that kind of brings us together. 00;14;51;17 - 00;14;53;06 I'm Clo with the good hair too. 00;14;53;06 - 00;14;54;18 I'm Clo with the good hair too. 00;14;55;22 - 00;14;58;02 Take back the hair... 00;14;58;02 - 00;15;00;22 But but you know the what the other point though, 00;15;00;22 - 00;15;03;19 and I think that doctor, Doctor Haring can definitely speak to this, 00;15;03;19 - 00;15;07;16 is that we always think about, indigenous people 00;15;07;16 - 00;15;11;01 as only living on reservations are only living in rural areas. 00;15;11;01 - 00;15;15;08 The reality is, many of our indigenous folk also live 00;15;15;08 - 00;15;17;02 with in large cities like Chicago. 00;15;17;02 - 00;15;20;19 And so I don't know if Doctor Haring wants to, you know, take that a little bit 00;15;20;19 - 00;15;24;00 and just kind of give us an, you know, some insight into when we talk 00;15;24;00 - 00;15;27;00 about indigenous health, it's not just always, 00;15;27;00 - 00;15;30;05 you know, in Tuscarora Valley or, you know, rural areas. 00;15;30;05 - 00;15;32;10 Sometimes it's really in large cities. 00;15;32;10 - 00;15;34;11 And the health there also matters. 00;15;34;11 - 00;15;36;21 So, Doctor Haring I know you're the leading expert on this, 00;15;36;21 - 00;15;39;21 but if you want it, you know that, you know, talk about that and shed 00;15;39;21 - 00;15;41;07 light on that. That'd be great. 00;15;41;07 - 00;15;41;16 Yeah. 00;15;41;16 - 00;15;44;20 You know, same thing for black communities, too, I think that, 00;15;44;20 - 00;15;47;26 you know, or sometimes the job opportunities are in the city. 00;15;47;26 - 00;15;48;04 Right? 00;15;48;04 - 00;15;52;29 So, we sometimes our families, may live on a reservation 00;15;52;29 - 00;15;55;04 and travel to the city and eventually move to the city. 00;15;55;04 - 00;15;58;24 So some of the largest cities in the country, like New York City, 00;15;58;24 - 00;16;02;03 LA, Chicago, there are large, 00;16;02;04 - 00;16;06;05 native and indigenous populations and of course, black populations. 00;16;06;05 - 00;16;08;12 And there's, you know, I think it's back and forth. 00;16;08;12 - 00;16;11;20 So we recognize what that means to our communities and how, 00;16;12;04 - 00;16;16;07 you know, some family members may live on the reservations 00;16;16;07 - 00;16;18;23 in the summer or, tribal territories in the summer 00;16;18;23 - 00;16;21;26 and then work in the winter time in the, in the cities, so 00;16;21;26 - 00;16;26;28 that care has to also, move back and forth where, you know, we had to move 00;16;27;29 - 00;16;29;13 our families, move about. 00;16;29;13 - 00;16;33;13 So and then sometimes we just end up living in the city for whatever reason. 00;16;33;13 - 00;16;37;15 So there are, large populations, in fact, in New York City 00;16;37;15 - 00;16;40;22 and LA, some of the largest, Native American Indigenous 00;16;40;22 - 00;16;43;22 populations in the country, do live in the city. 00;16;43;27 - 00;16;45;10 And it's multi tribal, right? 00;16;45;10 - 00;16;46;20 It isn't just one tribe. 00;16;46;20 - 00;16;48;12 The New York City is very diverse. 00;16;48;12 - 00;16;53;02 And there's over, there's 574 federally recognized tribes in the United States. 00;16;53;02 - 00;16;58;07 So that means there's multiple, tribal nations and some other nations face 00;16;58;07 - 00;17;01;23 different cancer health disparities, too, as you know, in Alaska, for example, 00;17;02;06 - 00;17;05;25 there's, different types of cancer are more prevalent 00;17;05;25 - 00;17;08;28 than, say, in New York or in California. 00;17;09;06 - 00;17;12;25 So even have to understand the differences between tribal nations and, 00;17;12;25 - 00;17;16;02 you know, whether it's, genetic or whether it's environmental. 00;17;16;20 - 00;17;19;01 It really plays a factor in how that goes. 00;17;19;01 - 00;17;23;23 But I would say, you know, to one thing, it's really important to or some of these, 00;17;24;25 - 00;17;26;08 kind of they've been there. 00;17;26;08 - 00;17;29;29 But I think more visible now in the AACR reports are the conversation 00;17;29;29 - 00;17;32;09 around patient navigation and what that means. 00;17;32;09 - 00;17;35;28 And, you know, when when there's a, a coach, so to say 00;17;35;28 - 00;17;39;00 that helps you through the cancer care journey like a patient navigator. 00;17;39;26 - 00;17;42;28 You know, I think it increases it does increase screening. 00;17;43;12 - 00;17;44;27 A twofold sometimes. 00;17;44;27 - 00;17;48;01 So having that, patient navigator, support, 00;17;48;16 - 00;17;48;27 whether it 00;17;48;27 - 00;17;52;06 be, you know, getting to a screening early and you see in the stats sometimes, 00;17;52;19 - 00;17;56;22 you know, you'll see like, more people are entering into care, 00;17;56;22 - 00;18;01;07 but maybe more blacks and indigenous people, have a greater mortality. 00;18;01;18 - 00;18;02;24 And sometimes that's related to, 00;18;02;24 - 00;18;04;20 just because they don't get screened early enough. 00;18;04;20 - 00;18;07;12 So having a patient navigator or a health coach, 00;18;07;12 - 00;18;10;12 you know, really being the forefront of that conversation, 00;18;10;20 - 00;18;14;04 to help people get screened and understand the journey, whether it be 00;18;14;04 - 00;18;16;17 on the reservation or in an urban context, 00;18;16;17 - 00;18;19;17 is really important unless I just want to add to, you know, 00;18;20;04 - 00;18;23;04 when I, when I started in the field of cancer care, 00;18;23;10 - 00;18;26;07 there weren’t too many native people in kind of leadership roles 00;18;26;07 - 00;18;29;23 or in a scientist role or, you know, but it's changing. 00;18;29;27 - 00;18;32;29 I think our, our areas of opportunity 00;18;33;10 - 00;18;37;02 for education, our program, 00;18;37;02 - 00;18;41;29 initiated a high school internship program and a college internship program. 00;18;42;09 - 00;18;45;13 We've had over 40 indigenous students over the past few years. 00;18;45;13 - 00;18;47;26 They're really the next mission of, 00;18;47;26 - 00;18;50;03 indigenous cancer science is leading the way. 00;18;50;03 - 00;18;52;10 So those type of programs are really important. 00;18;52;10 - 00;18;55;18 I know Doctor Winn has worked with the students over his career too, 00;18;55;18 - 00;18;59;02 and it's really about putting something forward for next generations. 00;18;59;07 - 00;19;03;04 Understanding causes of cancer disparities and pursuing health equity. 00;19;03;09 - 00;19;04;19 That is what it's all about. 00;19;04;19 - 00;19;06;13 And we're going to start pursuing those. 00;19;06;13 - 00;19;08;26 Let's take another break and come on back. Stay close. 00;19;08;26 - 00;19;11;28 This is Community Conversations. 00;19;12;17 - 00;19;16;07 I am Community Clo welcome back to Community Conversations. 00;19;16;07 - 00;19;20;14 It’s a day of no co-pay and white coats with Doctor Rodney 00;19;20;15 - 00;19;24;13 Haring of Roswell Park Comprehensive Cancer Center in Buffalo, 00;19;24;13 - 00;19;28;08 New York, and Doctor Robert Winn of the VCU 00;19;28;08 - 00;19;32;00 Massey Comprehensive Cancer Center in Richmond, Virginia. 00;19;32;00 - 00;19;33;03 Welcome back to the show. 00;19;33;03 - 00;19;36;04 We've been talking about understanding the causes of cancer 00;19;36;04 - 00;19;39;18 disparities, but we want to talk about this progress report. 00;19;39;25 - 00;19;42;09 And there have been some strides made. 00;19;42;09 - 00;19;44;09 Right, Doctor Winn? 00;19;44;09 - 00;19;46;15 Yo, look, you've had to turn this all the way up. 00;19;46;15 - 00;19;50;18 So we, we, we so, you know, we always talk 00;19;50;18 - 00;19;52;29 and we talk about the problems and the problems and the problems. 00;19;52;29 - 00;19;56;09 Sometimes you can convince yourself that we ain't made no progress. 00;19;56;09 - 00;19;57;12 And that's not true. 00;19;57;12 - 00;20;01;02 The report actually says that we have made some substantial progress. 00;20;01;02 - 00;20;04;02 For example, the difference between black and white deaths 00;20;04;05 - 00;20;08;01 in 1990 was about 33%. 00;20;08;09 - 00;20;11;26 So that meant that if you're an African-American, that you were 33% 00;20;11;26 - 00;20;14;27 more likely to actually, if you got cancer to die from it. 00;20;15;17 - 00;20;21;16 In 2020 and then in now in the 2020s, that's down to 11%. 00;20;21;16 - 00;20;25;24 So it'll tell me we've made no progress to the matter is that when it comes to lung 00;20;25;24 - 00;20;30;00 cancer differences, we've actually almost narrowed the gap for some communities 00;20;30;03 - 00;20;33;08 where it used to be 4 or 5 times higher for certain groups. 00;20;33;14 - 00;20;36;17 Most groups now have actually, you know, reduced. 00;20;36;17 - 00;20;38;11 Now, that doesn't mean that we ain't got problems. 00;20;38;11 - 00;20;40;13 It turns out that African-Americans 00;20;40;13 - 00;20;44;04 still have higher rates of dying from breast cancer and prostate cancer. 00;20;44;04 - 00;20;47;05 It also means that our indigenous communities 00;20;47;05 - 00;20;51;09 are still dying from, you know, stomach cancers and other things. 00;20;51;13 - 00;20;54;09 So it does mean that we still have work to do, but 00;20;54;09 - 00;20;57;09 we got to quit playing like we ain't making no progress. 00;20;57;18 - 00;21;00;11 And that the fact of the matter is, is that they “hide 00;21;00;11 - 00;21;03;12 the medicines from us to just make money.” That's crazy talk. 00;21;03;12 - 00;21;04;18 That's a TikTok talk. 00;21;04;18 - 00;21;08;20 It turns out that if you can actually get your head around it and get access 00;21;09;01 - 00;21;12;13 to these miracle drugs, it is making a difference. Wow. 00;21;12;25 - 00;21;13;05 Yeah. 00;21;13;05 - 00;21;16;26 Differences and ancestry related biological factors. 00;21;17;04 - 00;21;20;16 That was something unheard of before because it was like when one 00;21;20;18 - 00;21;23;18 drug fits all before, Doctor Winn, right? 00;21;23;21 - 00;21;26;03 You know, that's why we call it not listed. 00;21;26;03 - 00;21;30;09 We can go all the way back to 2015, when I think Obama actually did 00;21;30;09 - 00;21;34;04 something that he didn't even recognize at the time was a game changer. 00;21;34;14 - 00;21;36;09 He said that we shouldn’t just be, 00;21;36;09 - 00;21;40;12 the miracle is to actually have precision based medicine. 00;21;40;23 - 00;21;43;15 I'm going to rephrase that person based medicine. 00;21;43;15 - 00;21;47;27 So that means we design the drug specifically to you to work. 00;21;48;05 - 00;21;49;18 We have that ability. 00;21;49;18 - 00;21;53;09 And as a result of that, not only has it been better screening, 00;21;53;16 - 00;21;56;11 not only has it been that we've got better medicines, 00;21;56;11 - 00;21;59;11 but what happens is we've been actually able to treat people 00;21;59;16 - 00;22;00;21 with these better medicines. 00;22;00;21 - 00;22;01;15 The problem 00;22;01;15 - 00;22;04;22 is that it still remains a struggle on indigenous indigenous communities 00;22;04;23 - 00;22;08;12 and black American communities, because we got issues around trust and 00;22;08;26 - 00;22;10;24 lots of other things to kind of get over. 00;22;10;24 - 00;22;11;23 But let's now plate 00;22;11;23 - 00;22;15;04 we all making progress, including indigenous folk and black folk. 00;22;15;04 - 00;22;17;15 We all make making some progress. All right. 00;22;17;15 - 00;22;21;27 Thank you so much for sharing that, Doctor Robert Winn we are making some strides, 00;22;22;02 - 00;22;27;04 Doctor Rodney Haring, so what can we do to continue to make even more strides? 00;22;27;15 - 00;22;29;07 You know, I like what Dr. 00;22;29;07 - 00;22;33;14 Winn is saying, you know, I think black, people of color, indigenous 00;22;33;14 - 00;22;36;28 people are some of the strongest, most resilient and intelligent people. 00;22;37;10 - 00;22;41;25 And that we as we continue to grow our workforce, 00;22;42;11 - 00;22;47;20 our, our students come up, are getting into different sectors of science. 00;22;48;05 - 00;22;52;03 And we have this, philosophy is called the “seventh generation philosophy” 00;22;52;16 - 00;22;53;18 and it really talks 00;22;53;18 - 00;22;57;03 about the things that we're doing now as scientists and where we're at, 00;22;57;20 - 00;23;02;10 those responsibilities were given to us by our, past generations. 00;23;02;18 - 00;23;06;15 And we carry that and we carry that responsibility to give those opportunities 00;23;06;29 - 00;23;08;04 to our future generations. 00;23;08;04 - 00;23;11;22 So the science that we're doing now, it isn't really for the here and now. 00;23;12;01 - 00;23;13;21 It's for future generation forward. 00;23;13;21 - 00;23;17;08 And we look forward seven generations, seven generations forward. 00;23;17;21 - 00;23;21;17 So the things that we're doing now clinically, the clinical trials 00;23;21;17 - 00;23;26;02 that we're and starting to engage in and learn more about 00;23;26;13 - 00;23;31;07 and be part of it isn't for the here now, it's for seven generations forward. 00;23;31;07 - 00;23;33;09 Fast forward seven generations. 00;23;33;09 - 00;23;36;15 So to educate our people about clinical trials, 00;23;36;16 - 00;23;39;18 to educate our tribal leaders about clinical trials 00;23;39;28 - 00;23;43;18 so they that are, black indigenous people of color 00;23;43;18 - 00;23;47;06 communities can make informed decisions about being part of clinical trials. 00;23;47;16 - 00;23;49;08 And, you know, that's really important. 00;23;49;08 - 00;23;51;11 It isn’t, just something that. 00;23;51;11 - 00;23;53;07 Oh, well, you know, here's the clinical trial. 00;23;53;07 - 00;23;53;29 You might be interested. 00;23;53;29 - 00;23;56;12 Let's be engaged in that conversation. 00;23;56;12 - 00;23;56;27 Let's make 00;23;56;27 - 00;24;00;17 informed decisions about our health and how we move forward in good ways. 00;24;00;29 - 00;24;02;11 That is great. 00;24;02;11 - 00;24;05;25 Doctor Rodney Haring thank you so much for this wealth of information. 00;24;05;25 - 00;24;07;22 And I can't stop saying it. Wealth 00;24;07;22 - 00;24;11;28 of information, wealth of information, which is the opposite of disparity. 00;24;12;02 - 00;24;15;17 So we're looking at cancer is not a death sentence anymore. 00;24;15;25 - 00;24;19;12 But in order to not do that, we need more clinical trials 00;24;19;12 - 00;24;22;00 so we can walk into our cures. Thank you so much. 00;24;22;00 - 00;24;27;12 Now, Doctor Winn, you going to send us on home and help us all the way up. 00;24;28;01 - 00;24;31;09 But it will say, you know, I'm I'm going to take a little page 00;24;31;09 - 00;24;35;15 out of Philadelphia, with you know, McFadden & Whitehead, is sorta 00;24;35;15 - 00;24;38;15 that old song ‘Ain't No Stopping Us Now.’ I’m just letting you know, 00;24;38;25 - 00;24;41;05 you know what I’m saying? Gamble and Huff. 00;24;41;05 - 00;24;44;01 I’m just going to go with it. Ain't no stopping us now. So appreciate you all. 00;24;44;01 - 00;24;45;06 Appreciate you so much. 00;24;45;06 - 00;24;48;07 Doctor Rodney Haring and Doctor Robert Winn. 00;24;48;12 - 00;24;54;01 This has been Community Conversations and I am Community Clo.