00;00;00;00 - 00;00;01;13 I'm Dr. 00;00;01;13 - 00;00;04;14 Rob Winn and you're listening to Real Cancer Talk 00;00;04;14 - 00;00;07;14 from VCU Massey Comprehensive Cancer Center. 00;00;07;14 - 00;00;11;03 Welcome to Community Conversations locally in Virginia. 00;00;11;03 - 00;00;12;05 Nationally. 00;00;12;05 - 00;00;14;08 And I mean globally too. 00;00;14;08 - 00;00;17;25 Live from Uganda with the Black Health Wins podcast. 00;00;17;26 - 00;00;21;01 My guest is Doctor Robert Winn, director 00;00;21;01 - 00;00;24;05 of the VCU Massey Comprehensive Cancer Center. 00;00;24;11 - 00;00;26;20 Doctor Winn, how are you? 00;00;26;20 - 00;00;27;01 You know what? 00;00;27;01 - 00;00;29;08 I’m feeling good. 00;00;29;08 - 00;00;31;23 And I mean that all the way around. 00;00;31;23 - 00;00;35;14 I mean, it is good to be in Uganda and 00;00;35;15 - 00;00;39;21 but is it good to be always reminded of home with you, Sis. 00;00;39;22 - 00;00;42;19 Thank you for... Yes. Thank you for doing that. 00;00;42;19 - 00;00;44;23 Thank you for always representing the community. 00;00;44;23 - 00;00;46;24 That's right. In the motherland. 00;00;46;24 - 00;00;48;02 Joining us today. 00;00;48;02 - 00;00;50;07 One team, one fight. Massey. 00;00;50;07 - 00;00;52;13 And we also have a special guest on this show. 00;00;52;13 - 00;00;56;02 She is Mary Simmons, a Massey Cancer Champion. 00;00;56;25 - 00;00;58;28 And I watched her story. 00;00;58;28 - 00;01;00;06 It is amazing. 00;01;00;06 - 00;01;04;16 She was diagnosed with cancer in April of 2022. 00;01;04;20 - 00;01;07;03 She's going to share that story with us. 00;01;07;03 - 00;01;10;07 Now locally, nationally and globally 00;01;10;15 - 00;01;14;23 right here on this Black Health Wins podcast with Doctor Robert Winn. 00;01;14;26 - 00;01;18;14 We're going to dispel the myths about clinical trials 00;01;18;14 - 00;01;22;02 because we got the information upfront, close and personal. 00;01;22;02 - 00;01;23;29 Right, Doctor Winn? 00;01;23;29 - 00;01;28;05 Absolutely, and part of my being in Uganda 00;01;28;05 - 00;01;31;23 is the awareness and, for example, in Africa. 00;01;32;05 - 00;01;35;04 They have some of the worst outcomes from cancers. 00;01;35;04 - 00;01;38;11 And it turns out it's not because they don't have doctors. 00;01;38;11 - 00;01;40;06 But what happens, it turns out, 00;01;40;06 - 00;01;44;11 is that there are not enough doctors who are skilled or trained. 00;01;44;11 - 00;01;47;18 I would say not skilled, trained in clinical trials. 00;01;48;07 - 00;01;52;21 So when you look at the United States since 1991, 00;01;53;09 - 00;01;58;04 34% fewer people are dying from cancer. 00;01;58;22 - 00;02;01;23 In 2024 than in 1991. 00;02;02;05 - 00;02;05;22 It result, because, you know, more people are going to the gym 00;02;05;22 - 00;02;08;08 drinking carrot juice and eating kale. 00;02;08;08 - 00;02;11;06 It's because we have screening, we have prevention, 00;02;11;06 - 00;02;14;25 but in large part it's because we have clinical trials. 00;02;15;10 - 00;02;18;03 I keep saying the people that clinical trials these days, 00;02;18;03 - 00;02;21;19 unlike in the 1970s, we seen something about hope. 00;02;21;27 - 00;02;25;15 It's hope that it's going to work for you when you get the trials. 00;02;25;17 - 00;02;27;14 But it's hope that even if it doesn't work for you, 00;02;27;14 - 00;02;29;24 it's going to work for somebody else in the future. 00;02;29;24 - 00;02;33;05 But the days of just being completely experimental are gone. 00;02;33;12 - 00;02;38;22 When I think of clinical trials today in 2025, yeah, it's the standard of care. 00;02;38;27 - 00;02;43;04 So when you reach the end of the standard and all the chemo and stuff not working 00;02;43;13 - 00;02;48;28 the standard is to offer trials and we're doing that in Virginia, VCU Massey 00;02;49;19 - 00;02;52;02 and we're doing that globally at this point because, you know, 00;02;52;02 - 00;02;53;15 all lives actually matter. 00;02;53;15 - 00;02;56;15 And so it's been pretty cool to sort of see that in rural areas 00;02;56;25 - 00;03;00;11 and even in Africa, that they are paying attention, understanding 00;03;00;11 - 00;03;04;26 that clinical trials aren’t so much an experiment, as an extension of care. 00;03;05;03 - 00;03;09;29 More than an experiment, an extension of care that was a powerful statement. 00;03;09;29 - 00;03;14;00 Doctor Robert Winn, and I'm so glad you're traveling internationally 00;03;14;00 - 00;03;18;05 to carry this word of one team, one fight from VCU Massey. 00;03;18;05 - 00;03;22;14 And that's why it's so important to have a show like this, the Black Health 00;03;22;14 - 00;03;27;13 Wins podcast internationally so we can deliver the word, we can show the word. 00;03;27;19 - 00;03;33;15 And now your clinical trials, we have it up close, live and personal. 00;03;34;04 - 00;03;36;17 Mary Simmons I introduced her earlier. 00;03;36;17 - 00;03;39;17 She is a Massey Cancer Champion. 00;03;39;26 - 00;03;44;25 She was diagnosed in April of 2022 with acute lymphoma leukemia. 00;03;45;03 - 00;03;48;26 Now, Mary, take us on that journey because you only had about 00;03;49;07 - 00;03;52;17 two weeks to live when you went to the emergency room. 00;03;52;20 - 00;03;54;21 Talk to us. Yes. 00;03;54;21 - 00;03;56;15 That was heart wrenching. 00;03;56;15 - 00;03;58;01 I went in for pneumonia, 00;03;59;09 - 00;04;01;09 and, I was diagnosed. 00;04;01;09 - 00;04;02;12 They did some X-rays. 00;04;02;12 - 00;04;05;12 I was diagnosed with ALL, 00;04;05;21 - 00;04;08;15 and once I got settled, 00;04;08;15 - 00;04;11;28 I had myself transferred, as me as a patient, 00;04;11;28 - 00;04;16;12 I advocated, I transferred myself to VCU Medical Center, and I refused, 00;04;16;12 - 00;04;20;13 not for them to not send me there, so I advocated. 00;04;20;13 - 00;04;21;23 They got me stabilized. 00;04;21;23 - 00;04;24;16 I got to VCU like... Oh, what's. 00;04;24;16 - 00;04;24;26 Hold up, Sis? Hold up? 00;04;24;26 - 00;04;26;02 She refused. 00;04;26;02 - 00;04;29;02 You just said, oh, I’m taking control. 00;04;29;12 - 00;04;30;01 That's right. 00;04;30;01 - 00;04;32;11 Yes, I did, I did. 00;04;32;11 - 00;04;33;25 I advocated for myself. 00;04;33;25 - 00;04;35;21 I wanted a second opinion. 00;04;35;21 - 00;04;40;03 And the best there is is VCU Massey and many innovative studies. 00;04;40;06 - 00;04;46;06 Now, Mary, I don't mean to cut across you because this is so powerful. 00;04;46;16 - 00;04;50;10 Number one, you were an advocate for yourself as Doctor Winn did mention, 00;04;50;16 - 00;04;55;04 but you had you were diagnosed with lymphoma, leukemia, 00;04;55;12 - 00;04;59;27 and they told you, go home, get your house in order with your family 00;05;00;04 - 00;05;03;10 because after two weeks your life is up. 00;05;03;13 - 00;05;04;19 Literally, right? 00;05;04;19 - 00;05;06;08 Yes, yes, yes. 00;05;06;08 - 00;05;07;27 And you wouldn't accept death. You 00;05;08;26 - 00;05;10;17 know, I did not accept it. 00;05;10;17 - 00;05;13;15 I wanted a second opinion, I refused to, 00;05;13;15 - 00;05;17;23 so when I got to VCU Medical Center, I got my X-rays, my scans. 00;05;18;05 - 00;05;21;05 They said, okay, it looks peaky. 00;05;21;08 - 00;05;24;23 But we can fight if you willing, to put in your head to fight. 00;05;25;03 - 00;05;27;16 I say yes, because I refuse to say no. 00;05;27;16 - 00;05;30;26 So I was introduced to clinical trials at that time. 00;05;32;04 - 00;05;32;23 Went over it. 00;05;32;23 - 00;05;35;17 My doctor, Doctor Keri Maher, went over it with me. 00;05;35;17 - 00;05;38;29 She got in detail with me and she asked if I had any questions. 00;05;39;08 - 00;05;40;22 I said, I've read it. 00;05;40;22 - 00;05;41;23 I'm good to go. 00;05;41;23 - 00;05;43;24 You explain my concerns. 00;05;43;24 - 00;05;45;16 Let's get it started. 00;05;45;16 - 00;05;48;16 Clinical trial is groundbreaking. 00;05;48;16 - 00;05;52;29 So in other words, you're saying you take me to VCU Massey 00;05;52;29 - 00;05;56;12 Comprehensive Cancer Center, and I'm going to head on over 00;05;56;12 - 00;05;59;29 to the clinical trials office, and we're going to make this thing work. 00;06;00;05 - 00;06;03;23 She informed me that it would get ugly before it gets better. 00;06;04;06 - 00;06;06;04 And are you willing to fight? 00;06;06;04 - 00;06;07;18 I said, Sis, I got my boxing gloves on. 00;06;07;18 - 00;06;11;16 I must do it is because here at mass is one team, one fight. 00;06;11;16 - 00;06;12;20 Let's do it. 00;06;12;20 - 00;06;13;08 And I did. 00;06;13;08 - 00;06;16;12 Sister Mary, Sister Mary. Yes. Yeah. 00;06;16;22 - 00;06;21;00 You can’t see the smile I got on my face, but I'm, get a little MC Hammer on you. 00;06;21;06 - 00;06;23;14 I’m gonna get a little MC Hammer on you. 00;06;23;14 - 00;06;24;16 That’s too legit to quit, girl. 00;06;24;16 - 00;06;26;07 Oh my goodness. 00;06;26;07 - 00;06;29;07 You participated in that clinical trial. 00;06;29;11 - 00;06;32;16 Now for black and brown people and people as a whole. 00;06;32;28 - 00;06;35;10 We can't fix certain things. 00;06;35;10 - 00;06;37;18 If you don't be a part of a clinical trial. 00;06;37;18 - 00;06;39;12 You had less than two weeks to live. 00;06;39;12 - 00;06;42;15 You go when you thought you had pneumonia and they are telling 00;06;42;15 - 00;06;45;24 you get your fears in order because you're going to be out. 00;06;45;29 - 00;06;47;23 What are you talking about? 00;06;47;23 - 00;06;50;23 It's like I said, I've been going to the bathroom 00;06;50;28 - 00;06;55;03 and I was trying to figure out, are you not in a coma? 00;06;55;04 - 00;06;56;09 What's going on? 00;06;56;09 - 00;06;56;29 You're awake. 00;06;56;29 - 00;06;59;13 You know what the day is? I said, sure, I do. 00;06;59;13 - 00;07;02;09 And it was like, because my hemoglobin was so low, 00;07;02;09 - 00;07;06;13 my body had kind of like, empty out and at that time. 00;07;06;17 - 00;07;10;00 When I started the clinical trial, I actually was bleeding. 00;07;10;13 - 00;07;13;12 And so the clinical trial reduced the bleeding. 00;07;13;19 - 00;07;17;07 But after two weeks it started to turn in my favor. 00;07;17;19 - 00;07;20;18 And that's God's blessing. Yeah. 00;07;20;18 - 00;07;24;10 Mary, thank you so much for joining us because I'm 00;07;24;10 - 00;07;27;19 pretty sure someone is going through something may be similar 00;07;27;24 - 00;07;30;09 or you just know something is going on in your body. 00;07;30;09 - 00;07;33;07 And the first step is you went to the emergency room 00;07;33;07 - 00;07;34;28 and you were like, look, I'm not done. 00;07;34;28 - 00;07;37;24 I am not leaving this earth yet. 00;07;37;24 - 00;07;41;09 I'm going over to Massey, VCU Massey clinical trials. 00;07;41;11 - 00;07;43;03 We're going to take a break and come on back. 00;07;43;03 - 00;07;45;05 There is more. We got to talk. 00;07;45;05 - 00;07;46;14 Stay where you are. 00;07;46;14 - 00;07;51;05 This is Community Conversations, the Black Health Wins podcast. 00;07;51;12 - 00;07;53;08 You've been staying right there, right? 00;07;53;08 - 00;07;57;07 Welcome back to Community Conversations the Black Health Wins podcast. 00;07;57;07 - 00;07;58;10 Oh, I love this show. 00;07;58;10 - 00;08;00;25 Doctor Robert Winn is joining me on the show. 00;08;00;25 - 00;08;04;19 He is director of the VCU Massey Comprehensive Cancer Center. 00;08;04;20 - 00;08;06;23 Now, you know we do this for the world. 00;08;06;23 - 00;08;10;12 He's presently in Uganda doing this show live. 00;08;10;17 - 00;08;15;23 One team, one fight globally with VCU Massey Comprehensive Cancer Center. 00;08;15;28 - 00;08;18;13 Doctor Robert Winn, welcome back. 00;08;18;13 - 00;08;20;11 Yeah, it's good to be here. 00;08;20;11 - 00;08;21;07 Good to be with you. 00;08;21;07 - 00;08;26;14 And I'm at the University of Makerere, which is one of the oldest universities 00;08;26;24 - 00;08;30;10 within Africa and in Uganda, and considered to be one of the best 00;08;30;10 - 00;08;32;09 universities in all of Africa. 00;08;32;09 - 00;08;35;01 I'm here, in Uganda. 00;08;35;01 - 00;08;37;15 And what we are talking about the show today is interesting 00;08;37;15 - 00;08;40;19 because we're talking about how we are going to need 00;08;41;00 - 00;08;44;19 and how essentially not with our Africa in Uganda, 00;08;44;20 - 00;08;47;04 to actually see the value in clinical trials 00;08;47;04 - 00;08;51;01 in improving the lives of Africans and Ugandans, 00;08;51;01 - 00;08;55;07 because they see, clinical trials as not so much of an experiment 00;08;55;07 - 00;08;56;23 these days as an extension of care. 00;08;56;23 - 00;08;59;21 I was actually going to ask Sister Mary, you know, 00;08;59;21 - 00;09;01;17 you know, when you were thinking about this, 00;09;01;17 - 00;09;03;27 because you know, this how we grew up thinking about trials, 00;09;03;27 - 00;09;06;11 they’re experimenting on us and all of us, this stuff. 00;09;06;11 - 00;09;07;02 How did you know? 00;09;07;02 - 00;09;11;05 What was your first experience in the context of understanding that, 00;09;11;13 - 00;09;13;06 you know, trials weren't so much 00;09;13;06 - 00;09;17;02 an experiment that they were a potential offering of hope and information? 00;09;17;07 - 00;09;21;13 Well, when I first heard about clinical trials and just listening 00;09;21;13 - 00;09;24;21 about, you know, research, how was that prepares. 00;09;24;28 - 00;09;27;24 My first thing is I said, am I'm a guinea pig? 00;09;27;24 - 00;09;29;18 Are they experimenting on me? What's going to happen? 00;09;29;18 - 00;09;32;21 I might have a third ear or three eyes or what's going on. 00;09;33;06 - 00;09;37;28 And but as my doctor made me aware of clinical trials 00;09;38;03 - 00;09;43;05 and they, is very innovative and extension. 00;09;43;13 - 00;09;47;04 So I had to educate myself on clinical trials. 00;09;47;10 - 00;09;51;15 She was able to explain it so that I can understand it. 00;09;51;27 - 00;09;52;28 And actually, 00;09;52;28 - 00;09;58;00 clinical trial is a study of ways to prevent and find and treat the disease. 00;09;58;00 - 00;10;03;07 You have to have the mindset to not to give up in the fight 00;10;04;09 - 00;10;07;21 and communicate with your physician about how you’re 00;10;07;21 - 00;10;11;03 feeling and what works for you if there's too much. 00;10;11;03 - 00;10;13;13 When you gave me this dose, is this too much? 00;10;13;13 - 00;10;16;13 Is this working for me? How am I feeling? 00;10;16;19 - 00;10;18;08 So each step of the way 00;10;18;08 - 00;10;22;23 I was educated and knowledgeable about each phase of my treatment plan. 00;10;22;27 - 00;10;25;24 It has changed from what other people used to talk. 00;10;25;24 - 00;10;27;02 So that's hearsay. 00;10;27;02 - 00;10;28;02 That's mythical. 00;10;28;02 - 00;10;30;17 This is a now and it's groundbreaking. 00;10;30;17 - 00;10;31;16 Groundbreaking. 00;10;31;16 - 00;10;32;27 And I hear you talking. 00;10;32;27 - 00;10;35;20 Yeah, It is groundbreaking. Your courage. 00;10;35;20 - 00;10;38;19 And I know this courage, and I'm familiar with this courage. 00;10;38;19 - 00;10;41;11 And it only comes from God. 00;10;41;11 - 00;10;46;04 Now, a lot of times when people are saying God at the forefront, 00;10;46;28 - 00;10;49;23 and then some people would say, well, how would 00;10;49;23 - 00;10;52;23 why would this happen to me if God loved me? 00;10;53;03 - 00;10;56;03 And people ever said something like that to you before? 00;10;56;03 - 00;10;59;26 Yes, because I said that God said I was a special soldier. 00;11;01;03 - 00;11;03;27 He wanted to make groundbreaking news with me. 00;11;03;27 - 00;11;08;02 I had a story, and my story is to get it out there 00;11;08;08 - 00;11;11;21 so that people can understand and to save lives. 00;11;12;07 - 00;11;17;07 And especially with VCU Massey on my side, they never failed me. 00;11;17;11 - 00;11;19;17 The staff there. 00;11;19;17 - 00;11;22;15 They were a family away from my home 00;11;22;15 - 00;11;26;06 down to the nursing, housekeeping, anything that I needed. 00;11;26;11 - 00;11;27;27 They made me comfortable. 00;11;27;27 - 00;11;30;20 They didn't talk at me. Oh girl, you can do it. 00;11;30;20 - 00;11;34;07 Each person made it felt like home. Yes. 00;11;34;09 - 00;11;37;19 That is I wasn't on vacation while away. 00;11;37;20 - 00;11;42;12 That team was just a family away from home and they were very knowledgeable 00;11;42;12 - 00;11;43;07 about my care. 00;11;43;07 - 00;11;45;19 Well, we are about to do this phase, miss Simmons. 00;11;45;19 - 00;11;46;24 How you feeling? 00;11;46;24 - 00;11;49;02 You know, what can I do to make it comfortable? 00;11;49;02 - 00;11;50;21 Each step was just, 00;11;51;20 - 00;11;53;17 It's just extraordinary. 00;11;53;17 - 00;11;56;12 I never had that type of experience besides having my kids, 00;11;56;12 - 00;11;58;01 and I didn't get treatment like that. 00;11;58;01 - 00;11;58;28 Wow. 00;11;58;28 - 00;12;01;27 From it. Yes, I thank you. Yeah. 00;12;01;27 - 00;12;05;26 When I think about VCU Massey Comprehensive Cancer Center 00;12;05;26 - 00;12;10;05 or just all of the offices and departments of dealing with cancer to 00;12;10;06 - 00;12;13;06 to cure it, okay. Prevention and treatment. 00;12;13;14 - 00;12;16;19 When I was afraid and Doctor Winn, I always go back and I share this. 00;12;17;10 - 00;12;22;06 We started the show a few years ago and there was a doctor who was misreading 00;12;22;06 - 00;12;26;14 mammograms, and Doctor Winn said, Clo, just going over to Massey. 00;12;27;07 - 00;12;30;13 I said, I'm scared, he said girl, get on over to Massey. 00;12;30;20 - 00;12;32;29 I go over to Massey. And I was like, oh, I know. 00;12;32;29 - 00;12;34;26 They were like, I understand. 00;12;34;26 - 00;12;37;05 They were so attentive to your care. 00;12;37;05 - 00;12;41;00 They didn't look at you as, and Doctor Winn, a lot of times 00;12;41;00 - 00;12;44;29 when it comes to women or women who have bore children, people 00;12;44;29 - 00;12;49;04 automatically think that we can take pain. 00;12;50;12 - 00;12;52;00 Oh, well, you know, that's 00;12;52;00 - 00;12;55;27 been a problem with us for literally 2016. 00;12;55;28 - 00;12;58;01 Remember that study that came out in that UVA? 00;12;58;01 - 00;13;00;14 I get asked a bunch of medical students, 00;13;00;14 - 00;13;03;14 do black and white people feel pain differently? 00;13;03;14 - 00;13;07;11 And the answer has always been since the old times, since the 1600s. 00;13;07;11 - 00;13;09;23 Right, that we can tolerate pain. 00;13;09;23 - 00;13;10;21 You know, the reality 00;13;10;21 - 00;13;14;05 is that when it comes to the anatomy, that's probably not true. 00;13;14;14 - 00;13;16;03 But the perception 00;13;16;03 - 00;13;20;03 that as African-Americans and African-American women in particular, 00;13;20;08 - 00;13;23;08 that you can go without anesthesia because y’all don't feel pain 00;13;23;09 - 00;13;25;22 the same way, has never been true. 00;13;25;22 - 00;13;27;21 And so I say that one of the things we've done 00;13;27;21 - 00;13;31;25 as African-Americans, we've become super adaptive to pain, is that 00;13;31;25 - 00;13;36;17 we have convinced ourselves that, yeah, we should be in pain, but that's not true. 00;13;36;22 - 00;13;38;24 We we feel pain just like everybody else. 00;13;38;24 - 00;13;41;28 And I'm actually going to say to you, Sister Clo, 00;13;41;28 - 00;13;46;04 I am so grateful for this show because you're given an opportunity. 00;13;46;04 - 00;13;48;20 What you just talked about when you two were just talking about. 00;13;48;20 - 00;13;52;04 Yeah, they tell you that even if someone's on a clinical trial 00;13;52;04 - 00;13;57;03 and you don't get the experimental drugs, you outcomes are still better. Why? 00;13;57;09 - 00;14;00;08 Because you're getting an even better standard of care. 00;14;00;08 - 00;14;03;04 So when people enter clinical trials, they say to themselves, well, 00;14;03;04 - 00;14;04;24 if I don't get the experimental drug, 00;14;04;24 - 00;14;07;24 then it ain't gonna go any nothing good for me, in this whole deal. 00;14;08;00 - 00;14;09;16 That’s not true. 00;14;09;16 - 00;14;13;08 The literature will say that even if you’re in a trial because you getting 00;14;13;08 - 00;14;16;12 more attention, more eyes on you for all the rest of that stuff. 00;14;16;18 - 00;14;18;14 Even if you don't get the drug, 00;14;19;25 - 00;14;22;24 the reality is your outcomes tend to be better. 00;14;22;24 - 00;14;25;24 And by the way, when they figure out that the drug is working, 00;14;26;01 - 00;14;27;22 you get right on that truck. 00;14;27;22 - 00;14;30;20 So there's no new downside, actually. 00;14;30;20 - 00;14;33;15 But being part of a clinical trial rather than what's in our mind, 00;14;33;15 - 00;14;36;07 just like when people think we don't feel pain like other people, 00;14;36;07 - 00;14;39;19 which is actually been factually proven not to be true. 00;14;40;29 - 00;14;45;08 And I think sometimes in our lives, Doctor Winn, when we walk around with pain, 00;14;45;16 - 00;14;49;26 it's almost in some instances I can't say that today it was like a badge of honor. 00;14;49;27 - 00;14;51;06 Oh yeah, it hurt. 00;14;51;06 - 00;14;54;10 But I'm good, I'm good I don't, I don't take meds. 00;14;54;15 - 00;14;56;07 I don't do those things. 00;14;56;07 - 00;14;57;06 But guess what? 00;14;57;06 - 00;14;58;22 It gets into your psyche. 00;14;58;22 - 00;15;00;07 It messes with your mental health. 00;15;00;07 - 00;15;01;25 People don't believe that. 00;15;01;25 - 00;15;02;14 Come on. 00;15;02;14 - 00;15;04;17 And not only a mess of your mental health. 00;15;04;17 - 00;15;07;12 Because you’re having pain, you haven’t accomplished the other things. 00;15;07;12 - 00;15;08;29 So that whole thing about 00;15;08;29 - 00;15;11;29 testing it out and being pain and all of us that we don't feel. 00;15;12;13 - 00;15;15;12 That's actually the more psychological than it is 00;15;15;12 - 00;15;18;05 actually physiological because it's not true. 00;15;18;05 - 00;15;18;20 Okay. 00;15;18;20 - 00;15;20;24 Well thank you so much for clearing that. 00;15;20;24 - 00;15;24;01 So you we don't have to you know, we don't have to stop being super 00;15;24;01 - 00;15;25;05 adaptive to pain, entirely. 00;15;25;05 - 00;15;28;04 We don't have to get over that at some point. Yeah. 00;15;28;04 - 00;15;29;20 Doctor Winn. This is so good. 00;15;29;20 - 00;15;31;07 Thank you for all of you. 00;15;31;07 - 00;15;34;21 Do you take us right into the lab when you're back here 00;15;35;02 - 00;15;39;04 in the United States of America, and now we're talking about clinical trials. 00;15;39;04 - 00;15;42;10 Clinical trials were something that you hear like 00;15;42;10 - 00;15;45;16 in an information session and clinical trials. 00;15;45;16 - 00;15;47;20 And it was a breeze over, oh, clinical trials. 00;15;47;20 - 00;15;48;29 That's not me. 00;15;48;29 - 00;15;50;29 But now we're talking about clinical trials. 00;15;50;29 - 00;15;54;02 We have someone whose life was saved 00;15;54;02 - 00;15;57;02 by clinical trials who says, look, 00;15;57;12 - 00;16;01;09 if something is not right, I don't care what they tell you. 00;16;01;13 - 00;16;03;24 I don't care if they told you 24 hours. 00;16;03;24 - 00;16;04;26 Right? Mary? 00;16;04;26 - 00;16;07;17 Yes. Go with clinical trials. 00;16;07;17 - 00;16;09;09 Go with clinical trials. 00;16;09;09 - 00;16;10;12 And now we hear it from you. 00;16;10;12 - 00;16;14;09 And you didn't feel like it was a guinea pig, or you were an experiment 00;16;14;14 - 00;16;17;14 because they were communicating with you the entire time. 00;16;17;19 - 00;16;21;24 Now, if Mary, when you were having or you were feeling uncomfortable 00;16;22;19 - 00;16;27;13 at some point during the actual treatment, you talked to the doctor 00;16;27;13 - 00;16;30;24 and you tell that doctor like, this is giving me a slight headache. 00;16;31;03 - 00;16;34;11 So what they're going to do is go in and start adjusting, right? 00;16;35;00 - 00;16;39;03 Yes, they will go in and adjust and I say communication is very effective 00;16;39;03 - 00;16;43;03 in your treatment plan because I generalized the whole time. 00;16;43;03 - 00;16;46;03 My whole time, three years of treatment. 00;16;46;19 - 00;16;48;13 Generalized what worked for me. 00;16;48;13 - 00;16;50;24 And my doctor was able to make the adjustment. 00;16;50;24 - 00;16;54;23 It made me comfortable and I was able to be successful in my journey. 00;16;55;12 - 00;16;57;12 So I'm actually cancer free. 00;16;57;12 - 00;16;59;24 Well, say it again. Say it again. 00;16;59;24 - 00;17;01;28 I am cancer free. 00;17;01;28 - 00;17;05;03 And she is a Massey Cancer Champion. 00;17;05;08 - 00;17;08;06 And she's advocating she's a patient advocate for you. 00;17;08;06 - 00;17;13;01 So for folks who are just joining us and you have the diagnosis of cancer, 00;17;13;05 - 00;17;16;18 what to do next, whether it's a date, 00;17;16;27 - 00;17;20;20 24 hours, six months to a year, what is it that you can do? 00;17;20;21 - 00;17;24;14 Please, please go to VCUMassey.org. 00;17;24;21 - 00;17;26;23 That's Massey.org. 00;17;26;23 - 00;17;29;19 Massey.org. 00;17;29;19 - 00;17;31;15 We're going to take another break and come on back. 00;17;31;15 - 00;17;33;02 We have more good news. 00;17;33;02 - 00;17;38;01 This is Community Conversations the Black Health Wins podcast. 00;17;38;08 - 00;17;41;08 Welcome back to Community Conversations the Black Health 00;17;41;08 - 00;17;44;27 Wins podcast locally, nationally and globally. 00;17;45;02 - 00;17;48;14 Doctor Robert Winn is currently in Uganda. 00;17;48;14 - 00;17;49;00 Right now. 00;17;49;00 - 00;17;50;11 He's over there at the university 00;17;50;11 - 00;17;53;19 and he's talking about clinical trials and not experiments. 00;17;53;24 - 00;17;55;26 It's a lifestyle now. 00;17;55;26 - 00;17;58;08 And joining me on the show is Mary Simmons. 00;17;58;08 - 00;18;03;26 She is a Massey Cancer Champion and she's also a patient advocate. 00;18;03;26 - 00;18;08;05 She shared her story with us how clinical trials saved her life. 00;18;08;11 - 00;18;13;05 Doctor Robert Winn, we're in a win win situation, whenever you on the show. 00;18;13;09 - 00;18;15;11 Well you know what though, I’m triple-winning today. 00;18;15;11 - 00;18;20;05 Because, Sister Mary and you, y'all bringing it, come on now.. But, 00;18;21;11 - 00;18;22;15 but but you know what? 00;18;22;15 - 00;18;23;29 I was intrigued by what? 00;18;23;29 - 00;18;27;12 You know, Mary, Miss Mary you said about the trial. 00;18;27;12 - 00;18;31;01 Because when I think about trials, when you have when you've gone 00;18;31;01 - 00;18;34;25 to every doctor and every doctor tells you there is no nothing, there's nothing 00;18;34;25 - 00;18;35;22 we can do. 00;18;35;22 - 00;18;39;24 And I'm giving you all the standard...The reality is, for me, 00;18;39;27 - 00;18;43;21 what your story tells me, though, is that by being on a trial 00;18;43;21 - 00;18;46;21 in some ways between God and the trial, you're here. 00;18;46;27 - 00;18;50;09 And so can you tell me, you know, you know, how did that 00;18;50;09 - 00;18;53;22 I mean, how did that discussion go down because there's a number of people 00;18;53;22 - 00;18;57;06 who probably, you know, in the country because people still get I mean, remember, 00;18;57;06 - 00;19;01;29 cancer may not be you think about us, but, you know, we may not be think about the, 00;19;01;29 - 00;19;05;15 you know, 74% of people in United States believe they'll never get cancer, 00;19;05;15 - 00;19;06;08 which is crazy. 00;19;06;08 - 00;19;09;25 And when you think of 1 or 2 men and 1 in 3 women getting cancer, United States, 00;19;09;29 - 00;19;10;29 you know, something's wrong. 00;19;10;29 - 00;19;12;28 But we got to educate people based on that. 00;19;12;28 - 00;19;15;01 But thinking about it from their perspective, 00;19;15;01 - 00;19;17;22 what was the conversation that you and your family had? 00;19;17;22 - 00;19;18;02 Yeah. 00;19;18;02 - 00;19;23;01 So you your doctor had that got you from y'all just experiment on me 00;19;23;01 - 00;19;27;02 a nothing that could be done to let's at least give this a shot. 00;19;27;02 - 00;19;28;20 How does that work? 00;19;28;20 - 00;19;31;12 And what's left and what's changed for you? 00;19;31;12 - 00;19;36;02 What changed for me and what worked for me is when my doctor gave me a prognosis 00;19;36;13 - 00;19;40;12 and I said, well, is there any alternative because I'm a praying woman? 00;19;40;23 - 00;19;44;17 And so she explained to me, well, there's some clinical trials that's available. 00;19;44;17 - 00;19;47;02 We found one that meets your criteria. 00;19;47;02 - 00;19;50;12 And she explained it to me and I was like, I'm in to fight. 00;19;50;21 - 00;19;52;18 I'm willing to take that on. 00;19;52;18 - 00;19;55;24 And she said, well, it could get ugly before it gets better. 00;19;55;24 - 00;19;58;17 And I said, well, let me and God handle that. 00;19;58;17 - 00;19;59;03 You, her, 00;19;59;03 - 00;20;03;09 you were about the clinical stuff, the scientific stuff and lets get at it. 00;20;03;19 - 00;20;06;16 And so I took and forged ahead. 00;20;06;16 - 00;20;11;17 I then I explained to my husband and my family that it was a 5050 chance, 00;20;11;22 - 00;20;13;10 but I'm not thinking that way. 00;20;13;10 - 00;20;15;08 So I moved that out of my mind. 00;20;15;08 - 00;20;18;11 It was the mentality thing to fight and to move forward, 00;20;18;18 - 00;20;23;17 because research is so groundbreaking and very innovative at this time. 00;20;23;23 - 00;20;27;09 So my thing was I gambled on the clinical trial. 00;20;27;22 - 00;20;29;26 I knew once it was explained to me. 00;20;29;26 - 00;20;33;14 I educated myself on it, understood the side effects 00;20;33;14 - 00;20;35;26 and what I had to do mentally. 00;20;35;26 - 00;20;39;14 And my thing was to keep my my focus on a treatment because there was light 00;20;39;14 - 00;20;42;20 at the end of the day, because my God was not finished with me. 00;20;43;00 - 00;20;46;20 And so me coming back this way, I want to promote 00;20;47;00 - 00;20;51;24 women of my color of color, to be educated about clinical trial, 00;20;51;28 - 00;20;56;03 to be educated about cancer, and to get your annual screening. 00;20;56;08 - 00;21;00;13 And I'm lobbying hard for that to get educated on it. 00;21;01;02 - 00;21;04;02 So if you decided not 00;21;04;06 - 00;21;07;11 to take the route of the clinical trials, what would have happened? 00;21;07;21 - 00;21;12;07 I would have I would have passed away because I was already at ground zero. 00;21;12;11 - 00;21;15;18 So she did explain to me if I didn't do the clinical trial, 00;21;15;25 - 00;21;19;10 I would need to go ahead and proceed to get my affairs in order. 00;21;19;23 - 00;21;23;06 And I was not going to do that because I'm a fighter. 00;21;24;25 - 00;21;27;15 And you could have said, well, just keep me comfortable. 00;21;27;15 - 00;21;28;17 I'll be gone in two weeks. 00;21;28;17 - 00;21;31;17 But she said, no, no. 00;21;31;19 - 00;21;33;05 Because I'm a soldier. 00;21;33;05 - 00;21;36;11 Soldiers don't give up and Massey doesn't give up. 00;21;36;22 - 00;21;39;11 So my team, they they cheered me on. 00;21;39;11 - 00;21;40;15 We don't give up. 00;21;40;15 - 00;21;43;07 That’s why we’re One fight. One win. 00;21;43;07 - 00;21;46;12 Yeah, we don't give up at Massey. Don't give up at Massey. 00;21;46;12 - 00;21;52;11 And having Doctor Robert Winn at the helm of this as director is so important. 00;21;52;15 - 00;21;55;11 And we need to be raising up more researchers and scientists. 00;21;55;11 - 00;21;59;10 So if there's anybody listening locally, nationally and globally 00;21;59;10 - 00;22;03;29 and where we can have to support our kids if they want to go to school 00;22;04;09 - 00;22;07;02 to pursue the medical arena 00;22;07;02 - 00;22;10;02 and research and science, because we need it. 00;22;10;15 - 00;22;12;19 Research and scientists saving lives, right. 00;22;12;19 - 00;22;13;21 Doctor Robert Winn? 00;22;14;29 - 00;22;15;20 You know, 00;22;15;20 - 00;22;19;18 I keep telling people sometimes wonder, well, where my tax dollars go? 00;22;19;18 - 00;22;21;07 You know, y'all, y'all try this. 00;22;21;07 - 00;22;24;26 Someone said to me once, I know y’all got the secret for cancer? 00;22;25;18 - 00;22;26;21 But y'all holding it back. 00;22;26;21 - 00;22;29;26 And I said, well, that's the is the worst kept secret ever. 00;22;29;26 - 00;22;31;11 I know because it's right in front of you. 00;22;31;11 - 00;22;35;20 The problem isn’t so much that you that the medicines aren’t here. 00;22;35;20 - 00;22;38;28 One of the problems that we are going to be fighting with, 00;22;38;28 - 00;22;42;08 and that one of the reasons why I came to Massey, and I love Massey. 00;22;42;14 - 00;22;46;15 And I love our community, is because it's about giving people more access 00;22;46;25 - 00;22;50;06 to care and giving people more access to hope. 00;22;50;18 - 00;22;53;09 And I think that what we've done at Massey, we've 00;22;53;09 - 00;22;57;19 sort of said that the science is going to continue to move and the science is real. 00;22;57;20 - 00;23;02;23 You can't get 34% fewer people dying from cancer just because the air got better. 00;23;02;26 - 00;23;04;07 Come on, quit playing. 00;23;04;07 - 00;23;05;01 Things happen. 00;23;05;01 - 00;23;06;22 You know, we got better with screening. 00;23;06;22 - 00;23;08;01 We got better with prevention. 00;23;08;01 - 00;23;11;03 Although we going to come back you know, Sister Clo, you and I 00;23;11;06 - 00;23;14;03 will do another show about diet and exercise. 00;23;14;03 - 00;23;17;22 I know that's a bad word but you know diet and exercise, removing 00;23;17;23 - 00;23;20;23 stress have a mental health and spiritual health lately. 00;23;20;26 - 00;23;23;09 I know it was all bad words, but at some point 00;23;23;09 - 00;23;26;09 we are going to have to talk about prevention strategies. 00;23;26;12 - 00;23;28;22 We're all going to have to talk about screening. 00;23;28;22 - 00;23;33;15 But when you get cancer, this is going to be that you got to know 00;23;33;22 - 00;23;37;03 that the science that is science is going to also equal 00;23;37;03 - 00;23;40;14 more people being healthy because the science has gotten better. 00;23;40;24 - 00;23;41;12 Think about it. 00;23;41;12 - 00;23;45;21 In 30 years, that means from the 1990s to the 2000’s, 00;23;45;21 - 00;23;48;24 10%, fewer over 30 years from 1990 00;23;48;24 - 00;23;51;24 to now, 34% fewer people die. 00;23;51;25 - 00;23;54;18 But, you know, that means that if we keep our foot on the pedal, 00;23;54;18 - 00;23;58;28 what about a world in the United States would be 50% fewer 00;23;58;28 - 00;24;03;02 people are dying and 60% fewer people are dying from cancer. 00;24;03;06 - 00;24;04;23 That's the world I want to live in. 00;24;04;23 - 00;24;08;00 And that doesn't happen because the air gets better. 00;24;08;04 - 00;24;10;11 It happens because you have scientists. 00;24;10;11 - 00;24;14;09 You have communities working together for screening, for preventive, 00;24;14;09 - 00;24;17;09 and for coming up with the next miracle molecule. 00;24;17;09 - 00;24;19;02 That will be the miracle medicine. 00;24;19;02 - 00;24;20;12 That will be the trial. 00;24;20;12 - 00;24;21;29 But, Miss Mary, you know what I'm saying? 00;24;21;29 - 00;24;26;25 So there's all this conspiracy stuff that we be getting on Dr. 00;24;26;25 - 00;24;29;07 Tiktok, and Dr. Google. 00;24;29;07 - 00;24;30;12 Everybody's telling ya. 00;24;30;12 - 00;24;33;28 I mean, there's so much mind-trickeration because there's so much white noise out 00;24;33;28 - 00;24;36;26 there that sometimes all folks in our community 00;24;36;26 - 00;24;39;00 don't understand that this is real. 00;24;39;00 - 00;24;43;19 There are real Docs of real medicines that can do good and we're just. 00;24;43;19 - 00;24;45;13 Hoping to bring that message to everybody. 00;24;45;13 - 00;24;50;11 And and I Sister Mary’s is one example of what happens when science does 00;24;50;11 - 00;24;54;11 what it's supposed to do, which is to allow people to have hope 00;24;54;24 - 00;24;57;24 and allow all people to have access to that hope. 00;24;58;06 - 00;25;01;15 Well, that's how we're going to health it all the way up. 00;25;01;15 - 00;25;05;05 We had a miracle, Miss Mary Simmons, 00;25;05;13 - 00;25;09;12 our Massey Cancer Champion, and of course, the king of it. 00;25;09;20 - 00;25;10;01 Yeah. 00;25;10;01 - 00;25;15;05 Doctor Robert Winn, director of the VCU Massey Comprehensive Cancer Center. 00;25;15;05 - 00;25;19;21 He's traveling the world to bring this message about clinical trials and more. 00;25;19;22 - 00;25;21;27 God bless you. Be safe. 00;25;21;27 - 00;25;23;15 Be safe. Internationally. 00;25;23;15 - 00;25;24;27 Doctor Robert Winn, 00;25;24;27 - 00;25;29;14 this has been Community Conversations the Black Health Wins podcast.