WEBVTT 00:00:08.919 --> 00:00:13.320 Hello and welcome to Good News York. It is Monday. 00:00:13.820 --> 00:00:15.779 Good News York, sponsored by Ads on the Go. Get 00:00:15.779 --> 00:00:20.059 ads on the go .com. You can find us on all socials 00:00:20.059 --> 00:00:22.620 at Good News York, GoodNewsYork .com. Good News 00:00:22.620 --> 00:00:25.160 York on Monday through Thursday, 5 p .m. Eastern. 00:00:25.359 --> 00:00:29.920 I am joined by a very special guest today, the 00:00:29.920 --> 00:00:33.869 co -founder of Live Like Liam. They're having 00:00:33.869 --> 00:00:38.090 a very special run walk fundraiser at Jamesville 00:00:38.090 --> 00:00:41.789 DeWitt High School on November 29th at 9 a .m. 00:00:41.909 --> 00:00:45.130 I am honored to be joined by the co -founder, 00:00:45.549 --> 00:00:48.049 Jalal Zaghby. Jalal, how are you? I'm excellent. 00:00:48.090 --> 00:00:49.770 Thank you for having me. I'm really happy you're 00:00:49.770 --> 00:00:52.950 here. You guys reached out asking if we could 00:00:52.950 --> 00:00:55.850 help promote this and it was a no brainer. And 00:00:55.850 --> 00:00:58.469 it's a no brainer for the obvious reasons, which 00:00:58.469 --> 00:01:02.240 is it's an amazing cause, an amazing story. But 00:01:02.240 --> 00:01:05.299 one thing I found when I was kind of researching 00:01:05.299 --> 00:01:11.239 beforehand was that your son Liam, one of his 00:01:11.239 --> 00:01:15.840 phrases was find the good. And this show is literally 00:01:15.840 --> 00:01:18.019 that's what we that's what this show is about. 00:01:18.159 --> 00:01:21.799 Good News York is you turn on the news and it's 00:01:21.799 --> 00:01:24.359 bad. And we were like, we need to showcase things 00:01:24.359 --> 00:01:26.819 in New York that are good. That's awesome. So 00:01:26.819 --> 00:01:30.359 I feel like this is a match made in heaven. So. 00:01:30.519 --> 00:01:33.959 Jalal, tell us a little bit about yourself and 00:01:33.959 --> 00:01:38.340 why you're here today. My name is Jalal Zaghby. 00:01:39.840 --> 00:01:43.280 My wife and I, we have four kids. We still say 00:01:43.280 --> 00:01:46.939 four kids. Of course. But unfortunately, we lost 00:01:46.939 --> 00:01:50.620 Liam January 12th of 2024, so it's coming up 00:01:50.620 --> 00:01:56.200 on two years. Liam was born with medical issues. 00:01:56.200 --> 00:01:58.719 He was born with a defective heart. He had chromosome 00:01:58.719 --> 00:02:01.680 22 deficiency, which can give you like almost 00:02:01.680 --> 00:02:04.500 180 things that can go wrong. And one of the 00:02:04.500 --> 00:02:06.500 things for him was, you know, his heart was almost 00:02:06.500 --> 00:02:09.219 like reversed. So he had to go through like three 00:02:09.219 --> 00:02:11.240 heart surgeries. And there was other medical 00:02:11.240 --> 00:02:14.620 stuff that he went through altogether, probably 00:02:14.620 --> 00:02:18.099 about 16 to 17 procedures. But he always had 00:02:18.099 --> 00:02:20.819 that positivity in him. He always, you know, 00:02:21.000 --> 00:02:22.939 bounced back and as if like nothing was wrong. 00:02:23.039 --> 00:02:25.639 He always tried to find the good in everything 00:02:25.639 --> 00:02:28.569 that he did. you know, or any medical struggles 00:02:28.569 --> 00:02:30.310 he went through, he found the good and just like, 00:02:30.330 --> 00:02:31.849 yeah, I'm gonna be okay, you know, and he was 00:02:31.849 --> 00:02:34.250 like, I always say that he was a manager on the 00:02:34.250 --> 00:02:38.069 Circus basketball team. Yes. And he loved Circus 00:02:38.069 --> 00:02:40.169 Orange basketball, loved them. On top of, you 00:02:40.169 --> 00:02:43.710 know, the Celtics, the Vikings, New York Yankees, 00:02:43.710 --> 00:02:46.370 and every time a team would lose, I'm like, oh, 00:02:46.490 --> 00:02:47.770 Leon, what's going on? He's like, it's gonna 00:02:47.770 --> 00:02:50.550 be okay. It's like, he always like, next game 00:02:50.550 --> 00:02:52.409 they're gonna win. So he always found the good. 00:02:53.030 --> 00:02:54.930 And the way we came with that slogan, a friend 00:02:54.930 --> 00:02:57.719 of ours, who was because our organization is 00:02:57.719 --> 00:03:01.159 all based on volunteers you know nobody we just 00:03:01.159 --> 00:03:03.879 bunch of people who just when we lost liam just 00:03:03.879 --> 00:03:06.639 kind of took us over under their wing and they 00:03:06.639 --> 00:03:10.740 helped us establish this foundation and a friend 00:03:10.740 --> 00:03:13.099 of ours said give me three i asked all of us 00:03:13.099 --> 00:03:16.080 to give three words that describe liam so we 00:03:16.080 --> 00:03:17.919 all put our two cents in and all of a sudden 00:03:17.919 --> 00:03:19.599 he's like he just found the good and everything 00:03:19.599 --> 00:03:22.319 and that's why we're kind of going live like 00:03:22.319 --> 00:03:25.310 liam find the good That's absolutely beautiful. 00:03:25.669 --> 00:03:30.610 And I mean, especially in these crazy times the 00:03:30.610 --> 00:03:33.430 last 10 years, it's been harder to find the good. 00:03:34.129 --> 00:03:36.789 So people like that are inspiring and what keep 00:03:36.789 --> 00:03:40.830 us going. And the other thing I realized is just 00:03:40.830 --> 00:03:44.009 how important the number 22 is. Can you tell 00:03:44.009 --> 00:03:46.030 us about the significance of the number 22? Yeah. 00:03:46.129 --> 00:03:48.800 So number 22 was just... It's like everywhere 00:03:48.800 --> 00:03:52.400 we go, it's with us. Liam was born with the chromosome 00:03:52.400 --> 00:03:57.479 22 deficiency. Liam passed at age 22. We have, 00:03:57.599 --> 00:04:00.639 you know, my kids, you know, Liam, 22, Miriam 00:04:00.639 --> 00:04:04.539 is 21, Sophia is 19, Nolan, who is 12 years old, 00:04:04.719 --> 00:04:07.919 actually, he was 12 yesterday. He was born on 00:04:07.919 --> 00:04:10.620 the 22nd of November. So it's kind of like... 00:04:10.599 --> 00:04:13.919 22 is just wherever we go. And lately, like, 00:04:14.020 --> 00:04:15.900 it just seems that you look on your phone, it's 00:04:15.900 --> 00:04:18.560 22. You go, you know, our friends who are part 00:04:18.560 --> 00:04:20.779 of our foundation, they keep saying, like, oh, 00:04:20.879 --> 00:04:22.519 my God, look, number 22 is here. Like, every 00:04:22.519 --> 00:04:24.980 time something important is happening, that number 00:04:24.980 --> 00:04:27.860 just pops up. And I'm not into this, you know, 00:04:28.139 --> 00:04:30.199 like, but it's just, it's a comforting, maybe 00:04:30.199 --> 00:04:33.379 I'm seeking it, I don't know. You know, I know 00:04:33.379 --> 00:04:35.740 exactly what you mean. I struggle with faith 00:04:35.740 --> 00:04:37.860 and... you know, is there religion? Is it the 00:04:37.860 --> 00:04:41.639 universe? But these coincidences happen sometimes 00:04:41.639 --> 00:04:43.779 and it makes you start to think maybe there is 00:04:43.779 --> 00:04:48.120 something because it's just it's amazing. So 00:04:48.120 --> 00:04:51.480 on November 29th at Jamesville DeWitt High School 00:04:51.480 --> 00:04:54.620 9 a .m. it is the Live Like Liam Run and Walk. 00:04:55.000 --> 00:04:59.000 Now what's great about this organization is not 00:04:59.000 --> 00:05:04.589 only are you raising money for families in need, 00:05:04.870 --> 00:05:07.149 but you're creating endowments for the Upstate 00:05:07.149 --> 00:05:08.970 Foundation for Chromosome Research, the Ronald 00:05:08.970 --> 00:05:11.129 McDonald House. Talk about some of the things 00:05:11.129 --> 00:05:14.069 that you guys do with the organization. So when 00:05:14.069 --> 00:05:16.949 we first decided to get this organization going, 00:05:17.209 --> 00:05:20.269 our goal was to have every place that had an 00:05:20.269 --> 00:05:23.629 effect on Liam, who made him who he was. And 00:05:23.629 --> 00:05:28.550 Liam was, you know, he had special needs. So 00:05:28.550 --> 00:05:32.180 JD High School, JD is from kindergarten all the 00:05:32.180 --> 00:05:34.860 way to senior. The support that they gave him 00:05:34.860 --> 00:05:37.819 was amazing. So what we do is we do a scholarship 00:05:37.819 --> 00:05:40.199 there to go to any kid who showed perseverance 00:05:40.199 --> 00:05:44.079 or kindness to others. So that's one. The other 00:05:44.079 --> 00:05:46.120 one would be the Ronald McDonald House. Obviously 00:05:46.120 --> 00:05:48.860 when we are at Strong Memorial with Liam's third 00:05:48.860 --> 00:05:50.980 heart surgery, my wife was pregnant at the time. 00:05:51.420 --> 00:05:54.199 And if it wasn't for Ronald McDonald House, I 00:05:54.199 --> 00:05:55.939 think it would have been really hard for us. 00:05:56.019 --> 00:05:58.839 You know what I mean? The floor above where Liam 00:05:58.839 --> 00:06:01.730 had his surgery, and it made our lives very easy. 00:06:01.810 --> 00:06:05.350 So we knew the value of that. Upstate Foundation, 00:06:05.649 --> 00:06:08.629 now we're blessed that financially we can continue 00:06:08.629 --> 00:06:10.670 with our life no matter how many, you know, all 00:06:10.670 --> 00:06:13.209 these obstacles that, you know, we faced. But 00:06:13.209 --> 00:06:15.410 when we were in the hospital, we saw so many 00:06:15.410 --> 00:06:17.810 times where one of them was at the emergency 00:06:17.810 --> 00:06:19.350 room and mother came in. She's like, I don't 00:06:19.350 --> 00:06:22.269 have money to park, but her kid is. So, you know, 00:06:22.370 --> 00:06:24.550 people couldn't afford food for lunch or for 00:06:24.550 --> 00:06:27.709 guests. So we decided to establish this endowment. 00:06:28.029 --> 00:06:31.589 So that way, people can go to families of kids 00:06:31.589 --> 00:06:34.550 who are sick in the hospital, also some of that 00:06:34.550 --> 00:06:37.009 to go towards research, you know, chromosome 00:06:37.009 --> 00:06:40.649 research, especially chromosome 22. And lastly, 00:06:41.810 --> 00:06:43.689 actually, then we have the Inclusive You program 00:06:43.689 --> 00:06:45.709 at Syracuse University, which is a program for 00:06:45.709 --> 00:06:47.790 kids with special needs, but they'll have the 00:06:47.790 --> 00:06:50.649 opportunity to attend college, to have the experience 00:06:50.649 --> 00:06:53.670 of being a student and be able to, you know, 00:06:53.769 --> 00:06:55.490 give them options to go into the world after 00:06:55.490 --> 00:06:58.560 they graduate. Now the state covers two years 00:06:58.560 --> 00:07:00.779 but the second two years they don't and it's 00:07:00.779 --> 00:07:03.480 not you know it's pricey and not everybody could 00:07:03.480 --> 00:07:06.060 afford having their kids go for the next two 00:07:06.060 --> 00:07:08.879 years so we were blessed to be able to establish 00:07:08.879 --> 00:07:10.980 this hundred thousand dollar scholarship that 00:07:10.980 --> 00:07:13.639 we're covering over five year period like twenty 00:07:13.639 --> 00:07:17.040 thousand dollars every year for that purpose 00:07:17.040 --> 00:07:20.079 only and we've done forty thousand so far in 00:07:20.079 --> 00:07:22.769 just five months. That's amazing. So and then 00:07:22.769 --> 00:07:25.350 out of nowhere, which was amazing too, Krauss 00:07:25.350 --> 00:07:27.730 reached out to us, the NICU unit. We're going 00:07:27.730 --> 00:07:29.889 to collaborate with them on something to do with, 00:07:29.949 --> 00:07:32.629 you know, Liam was at the NICU there. So every 00:07:32.629 --> 00:07:34.449 place that affected us helped us. We're trying 00:07:34.449 --> 00:07:37.069 to help people back. It's such a beautiful thing 00:07:37.069 --> 00:07:39.149 you're doing. And it really touches me. You know, 00:07:39.149 --> 00:07:41.310 I'm not making this about me. It's just so you 00:07:41.310 --> 00:07:43.610 want so, you know, I understand. We talked a 00:07:43.610 --> 00:07:45.750 little bit about before when I was six years 00:07:45.750 --> 00:07:48.689 old, I lost my three year old brother to leukemia 00:07:48.689 --> 00:07:51.939 and. we went out to Minnesota where I was giving 00:07:51.939 --> 00:07:54.740 him a bone marrow transplant. And I don't have 00:07:54.740 --> 00:07:57.240 many memories because I was so young, but I do 00:07:57.240 --> 00:08:00.279 remember, just not too many details, but we stayed 00:08:00.279 --> 00:08:03.199 at a Ronald McDonald House. And I just remember 00:08:03.199 --> 00:08:08.139 how sad and scared and worried my parents were 00:08:08.139 --> 00:08:11.139 financially and emotionally. And I remember when 00:08:11.139 --> 00:08:13.279 we got to the Ronald McDonald House, obviously 00:08:13.279 --> 00:08:15.779 it didn't fix things, but I remember it allowed 00:08:15.779 --> 00:08:19.759 them to take a breath. And so what you're doing 00:08:19.759 --> 00:08:23.079 for them, it really hits home. Me and I thank 00:08:23.079 --> 00:08:25.819 you. You guys stayed at a Ronald McDonald House? 00:08:25.839 --> 00:08:27.819 We stayed at Ronald. Yeah, I mean, everything 00:08:27.819 --> 00:08:30.240 was at, you know, upstate, but the last surgery 00:08:30.240 --> 00:08:32.799 was as strong. So we ended up going up there. 00:08:33.139 --> 00:08:36.779 And I'm telling you, it's as a parent of a kid 00:08:36.779 --> 00:08:40.980 who's sick, every little bit helps to ease some 00:08:40.980 --> 00:08:43.740 of the burdens and some of the worries. So that's 00:08:43.740 --> 00:08:47.529 if we can change 0 .01 percent. and make things 00:08:47.529 --> 00:08:49.669 better, we're happy that we can do that. That 00:08:49.669 --> 00:08:52.610 means, that hits me right here, man. You know, 00:08:52.809 --> 00:08:55.490 we've had, are you familiar with David's Refuge? 00:08:55.590 --> 00:08:59.289 Yes. David's Refuge, similar kind of idea. They 00:08:59.289 --> 00:09:03.450 help caregivers for people who have sick family 00:09:03.450 --> 00:09:06.629 members and same deal. It's just what you guys 00:09:06.629 --> 00:09:08.649 are doing is so important because as you said, 00:09:08.970 --> 00:09:11.450 when you have, especially a sick child, people 00:09:11.450 --> 00:09:13.370 don't, you know, people think of, oh no, you 00:09:13.370 --> 00:09:15.009 know, we've got to worry about the healthcare 00:09:15.009 --> 00:09:20.539 and the medical and... No. I have to pay bills 00:09:20.539 --> 00:09:23.720 this month. Can you contact this company? Can 00:09:23.720 --> 00:09:26.799 you go grocery shopping? To have that kind of 00:09:26.799 --> 00:09:31.539 stuff can make such a huge difference. I want 00:09:31.539 --> 00:09:34.159 to talk a little bit about Liam and his involvement 00:09:34.159 --> 00:09:36.179 at Syracuse University. How did that come about? 00:09:36.279 --> 00:09:41.220 That's so awesome. I'm obviously always bleeding 00:09:41.220 --> 00:09:44.460 orange. Of course. You know, but then we, you 00:09:44.460 --> 00:09:46.299 know, Coach Beheim, you know, we reached out 00:09:46.299 --> 00:09:49.139 to them through a friend and he was amazing. 00:09:49.240 --> 00:09:52.860 So was, you know, Julie. They were great. We 00:09:52.860 --> 00:09:54.720 told them, you know, we went through the inclusive 00:09:54.720 --> 00:09:58.899 you program and then, you know, the one time, 00:09:58.919 --> 00:10:00.600 you know, I took him with, you know, I took him, 00:10:00.600 --> 00:10:03.519 he introduced him to everybody and he felt like 00:10:03.519 --> 00:10:05.559 it was home for him. Yeah. I mean, like he hated 00:10:05.559 --> 00:10:08.240 missing any practices. I'm like, what'd you do? 00:10:08.340 --> 00:10:10.159 I clapped. I clapped. I'm like, that's awesome. 00:10:10.220 --> 00:10:12.379 He goes, but just makes the students feel good, 00:10:12.500 --> 00:10:14.620 like the players. You know what I mean? Finding 00:10:14.620 --> 00:10:16.700 the good. Finding the good. Exactly. Although 00:10:16.700 --> 00:10:19.700 his role wasn't that big. But just to be feeling 00:10:19.700 --> 00:10:22.059 the sense of belonging. Because kids with special 00:10:22.059 --> 00:10:23.720 needs, they need that. You know what I mean? 00:10:23.820 --> 00:10:25.860 And they're aware. As much as you don't think, 00:10:26.100 --> 00:10:29.139 they're aware of what goes on. So then after 00:10:29.139 --> 00:10:32.139 Coach Beham retired, Coach Autry jumped in. And 00:10:32.139 --> 00:10:36.940 Coach Autry was beyond incredible. because Liam 00:10:36.940 --> 00:10:39.639 passed away while Coach Autry was coach. And, 00:10:39.679 --> 00:10:42.360 you know, he they had their golf tournament one 00:10:42.360 --> 00:10:44.759 year and they made a very generous donation for 00:10:44.759 --> 00:10:46.340 us. You know, the Bayham Foundation has been 00:10:46.340 --> 00:10:49.580 helping us like crazy. Also, Julie's been wonderful. 00:10:50.419 --> 00:10:53.220 And so our orange connection has been great. 00:10:53.460 --> 00:10:59.000 And, you know, it just it helped him. You know, 00:10:59.100 --> 00:11:01.240 feel that he belongs to keep going to that, you 00:11:01.240 --> 00:11:04.299 know, I mean, so so and so it was it was really 00:11:04.299 --> 00:11:08.860 special. That's absolutely beautiful. Gosh, so 00:11:08.860 --> 00:11:12.960 much I could ask. You know, when a family goes 00:11:12.960 --> 00:11:14.980 through something like this, I mean, it changes 00:11:14.980 --> 00:11:19.600 you, good or bad. You know, what are some of 00:11:19.600 --> 00:11:22.559 the things that you learned from this whole experience 00:11:22.559 --> 00:11:25.600 as a family? If you want to talk about that. 00:11:25.740 --> 00:11:27.600 Yeah, I mean, you know, when he passed away, 00:11:27.820 --> 00:11:29.879 completely unexpected because, I mean, Liam had 00:11:29.879 --> 00:11:32.340 all these medical and it ended up being a brain 00:11:32.340 --> 00:11:35.679 aneurysm. Yeah, I mean, I'm like... It was just 00:11:35.679 --> 00:11:38.259 like we were and my wife and I were just like 00:11:38.259 --> 00:11:40.960 Why like why did this you know? I mean, but then 00:11:40.960 --> 00:11:43.159 we had two options We had the option of say, 00:11:43.299 --> 00:11:45.519 you know what it is what it is We're done, you 00:11:45.519 --> 00:11:48.159 know and just not do anything or say, you know 00:11:48.159 --> 00:11:51.440 what we have the support group we have the means 00:11:51.440 --> 00:11:53.820 to make a difference and that's what we're gonna 00:11:53.820 --> 00:11:57.659 do and it's just I would have never in my wireless 00:11:57.659 --> 00:11:59.559 imagine that I'd be sitting doing it podcast 00:11:59.559 --> 00:12:02.759 or I'll be going talking in front of the The 00:12:02.759 --> 00:12:05.179 staff at the inclusive you program and you know 00:12:05.179 --> 00:12:08.399 with Ken Silverwood and under all these deals 00:12:08.399 --> 00:12:10.779 professors It just brought me out of my shell 00:12:10.779 --> 00:12:12.460 and it just showed me that you know what you 00:12:12.460 --> 00:12:14.740 can really this If we want to do it, you can 00:12:14.740 --> 00:12:17.100 do it Don't come up with excuses and I'm hoping 00:12:17.100 --> 00:12:19.340 that would be like an example to my kids and 00:12:19.340 --> 00:12:22.879 to our friends and their kids that there's It's 00:12:22.879 --> 00:12:24.860 good to make a difference in this, you know and 00:12:24.860 --> 00:12:26.799 change things for people around you if you can. 00:12:27.340 --> 00:12:30.600 Yeah, that is absolutely beautiful and You know, 00:12:30.720 --> 00:12:36.139 I couldn't agree more. How did... I don't remember 00:12:36.139 --> 00:12:39.039 if we really touched on this. How did the Live 00:12:39.039 --> 00:12:41.700 Like Liam organization start? How did... I know 00:12:41.700 --> 00:12:43.980 you guys said we can make a difference, but I 00:12:43.980 --> 00:12:45.559 know you said some families kind of gathered 00:12:45.559 --> 00:12:46.779 around. You want to talk about that a little 00:12:46.779 --> 00:12:48.600 bit? Yeah, so, I mean, a very close friend of 00:12:48.600 --> 00:12:52.440 mine, you know, who used to call himself Liam's 00:12:52.440 --> 00:12:54.600 mentor, but used to take him to YBR to put bets 00:12:54.600 --> 00:12:58.240 on football games, which was awesome. But he 00:12:58.240 --> 00:13:02.980 loved Liam very much and him and I after Liam 00:13:02.980 --> 00:13:05.360 passed, I'm like, we cannot let this kid's name 00:13:05.360 --> 00:13:07.299 go, you know what I mean? And he's like, I'm 00:13:07.299 --> 00:13:10.460 with you, you know? And then another friend of 00:13:10.460 --> 00:13:12.279 ours, we told him and he's like, I'm on board. 00:13:12.399 --> 00:13:13.720 And then another friend, he's like, I'll help 00:13:13.720 --> 00:13:16.179 you with the 501C3 to be a nonprofit. So it's 00:13:16.179 --> 00:13:18.019 just like these people out of nowhere. And then 00:13:18.019 --> 00:13:21.120 all of a sudden we reached out to like 15 people. 00:13:21.340 --> 00:13:23.080 We said, we want to start this foundation. We 00:13:23.080 --> 00:13:26.259 need to, you know, all of a sudden. I got $15 00:13:26.259 --> 00:13:29.320 ,000 in checks from 10 people. Oh my God. That's 00:13:29.320 --> 00:13:31.159 how it all started. And then we're like, OK, 00:13:31.480 --> 00:13:33.419 so then what are the events we want to do? So 00:13:33.419 --> 00:13:36.539 we did a home run derby, the first home run derby 00:13:36.539 --> 00:13:39.899 down at JD, Lindenfields. And it was nothing 00:13:39.899 --> 00:13:42.279 more than you pay $22, you hit the ball, you 00:13:42.279 --> 00:13:44.919 get gift cards, raffle. We ended up raising $7 00:13:44.919 --> 00:13:48.399 ,000 in three hours. That's insane. I mean, it's 00:13:48.399 --> 00:13:52.019 as if it's self -propelled. We just put the idea 00:13:52.019 --> 00:13:56.200 and things happen. It's just been amazing like 00:13:56.200 --> 00:13:58.919 we did our first run. We had almost 600 runners, 00:13:59.059 --> 00:14:03.279 you know the last year we raised $27 ,000 we 00:14:03.279 --> 00:14:06.460 had the support and then every penny we're raising 00:14:06.460 --> 00:14:11.100 is Going to these organizations We sometimes 00:14:11.100 --> 00:14:14.179 paying out of our own pockets to buy supplies 00:14:14.179 --> 00:14:17.419 and t -shirts and stuff like that Because we 00:14:17.419 --> 00:14:20.120 don't want that money is not it's specifically 00:14:20.120 --> 00:14:22.940 for these organizations. So so that's what I 00:14:22.940 --> 00:14:25.620 mean, last year, more than 600 community members 00:14:25.620 --> 00:14:27.659 came together to honor the life of Lee. I mean, 00:14:27.700 --> 00:14:31.740 that number alone is outstanding. A couple more 00:14:31.740 --> 00:14:36.559 questions. The syndrome is called deGeorge syndrome. 00:14:36.559 --> 00:14:39.220 DeGeorge syndrome. I've never heard of that. 00:14:39.840 --> 00:14:43.259 For those listening or watching, can you explain 00:14:43.259 --> 00:14:46.539 a little bit more about what exactly that syndrome 00:14:46.539 --> 00:14:50.279 is? Yeah, so technically, it's a chromosome deficiency, 00:14:50.559 --> 00:14:55.159 chromosome 22. So we became pedical professionals. 00:14:55.159 --> 00:14:58.799 I'm sure. I'm sure. Yeah. So your chromosomes 00:14:58.799 --> 00:15:02.860 are like zippers. They connect. The teeth connect 00:15:02.860 --> 00:15:05.320 together. And on the chromosome 22, it was like 00:15:05.320 --> 00:15:08.080 this. It was separated. And with that, just like 00:15:08.080 --> 00:15:10.679 the image they gave us at the hospital, but with 00:15:10.679 --> 00:15:14.179 that 180 things, you have droopness of the lip, 00:15:15.259 --> 00:15:20.419 palate issues, immune system, calcium deficiency. 00:15:21.360 --> 00:15:24.080 There's so many things to list. And one of them 00:15:24.080 --> 00:15:26.360 is a defective heart. You know what I mean? So 00:15:26.360 --> 00:15:29.419 with Liam, Liam's heart was, as I said, was reversed. 00:15:30.159 --> 00:15:32.720 So they had to put conduits. They had to take 00:15:32.720 --> 00:15:35.200 a valve out, put an artificial valve. So he went 00:15:35.200 --> 00:15:36.860 through quite a bit. Like his second surgery 00:15:36.860 --> 00:15:41.440 was in the hospital for like 28 days. But he 00:15:41.440 --> 00:15:46.200 lost back. No. If someone's listening and a family 00:15:46.200 --> 00:15:48.539 member gets diagnosed with DeGeorge syndrome 00:15:48.539 --> 00:15:51.059 and you're thinking, what? I've never even heard 00:15:51.059 --> 00:15:52.980 of this. Do you have a recommendation on what 00:15:52.980 --> 00:15:55.500 the first step should be, if you know anyone 00:15:55.500 --> 00:15:56.940 that gets... Well, I mean, to be honest with 00:15:56.940 --> 00:16:00.940 you, you know, the nurses are angels. Of course. 00:16:01.039 --> 00:16:04.039 Yeah, I mean, so when Nolan is my other son, 00:16:04.240 --> 00:16:06.639 when Liam was born, you know, I mean, the nurse 00:16:06.639 --> 00:16:08.740 came to the room, it was just, we were there 00:16:08.740 --> 00:16:10.740 for like, not even 24 hours, and his lips were 00:16:10.740 --> 00:16:13.080 a little purple. And she's like, something is 00:16:13.080 --> 00:16:15.860 not right. And then we end up, they brought him 00:16:15.860 --> 00:16:18.919 to the cardiologist. And we became very good 00:16:18.919 --> 00:16:20.759 friends. You know, pediatric cardiologist was 00:16:20.759 --> 00:16:24.220 amazing. And they started doing some tests and 00:16:24.220 --> 00:16:27.019 they found out that. So then we worked. There's, 00:16:27.019 --> 00:16:29.919 you know, Dr. Sprinson, who does the research 00:16:29.919 --> 00:16:33.240 on that. We did blood work to see if it's safe 00:16:33.240 --> 00:16:35.879 for us to have more kids. And he's like, it's 00:16:35.879 --> 00:16:38.320 nice. It was weird that one in two million get 00:16:38.320 --> 00:16:42.340 that. And it just happened to Liam. So upstate 00:16:42.340 --> 00:16:45.679 is probably is one of the best that can help 00:16:45.679 --> 00:16:48.809 with things. Hopefully, nobody ever has to go 00:16:48.809 --> 00:16:50.809 through it. But if they do, that's the place 00:16:50.809 --> 00:16:53.529 to be. Yeah. That's where my brother was taken 00:16:53.529 --> 00:16:57.149 care of. And this was the 1980s. And even then, 00:16:57.149 --> 00:16:59.269 it was absolutely amazing what they did for us 00:16:59.269 --> 00:17:03.190 and our family. So we've talked about the bad. 00:17:03.289 --> 00:17:05.309 This is good news, York. Let's talk about the 00:17:05.309 --> 00:17:08.630 good, Jalal. Live like Liam, run, walk. 9 a .m. 00:17:08.630 --> 00:17:10.630 at Jamesville DeWitt High School on November 00:17:10.630 --> 00:17:14.849 29th. Tell us about how people can get involved 00:17:14.849 --> 00:17:18.500 or register. And also, what can they expect at 00:17:18.500 --> 00:17:20.740 the Run Walk? Okay, so the Run Walk, it's, again, 00:17:20.859 --> 00:17:24.440 it's not a race. Okay, we don't time it. We'll 00:17:24.440 --> 00:17:26.160 have this year a shot clock just at the end, 00:17:26.480 --> 00:17:28.259 just, you know, or I'm sorry, a clock, you know, 00:17:28.420 --> 00:17:30.619 for people to see, like, how fast they finished. 00:17:30.900 --> 00:17:33.980 It's all on the JD campus. The Walk is on the 00:17:33.980 --> 00:17:36.420 football field. We're gonna have music. We're 00:17:36.420 --> 00:17:38.680 gonna have, you know, there's a lot of donations 00:17:38.680 --> 00:17:40.779 with food. We're gonna have a food truck there. 00:17:41.480 --> 00:17:44.240 And... do which fire department's been kind enough. 00:17:44.279 --> 00:17:45.839 They bring a fire truck. We have the American 00:17:45.839 --> 00:17:49.339 flag and just music. And it's just very interactive. 00:17:49.460 --> 00:17:51.420 You're doing the same loop twice, pretty much. 00:17:52.140 --> 00:17:54.460 And everybody wears the number 22. They have 00:17:54.460 --> 00:17:57.299 the running bibs. It's 22. So nobody's got numbers. 00:17:57.400 --> 00:18:00.960 So we give you a T -shirt and we give you that 00:18:00.960 --> 00:18:05.019 bib. And another detail I love about this is 00:18:05.019 --> 00:18:10.099 there's two different mile. There's a mile walk 00:18:10.099 --> 00:18:12.390 and there's a mile run. the mile walk three mile 00:18:12.390 --> 00:18:14.809 run oh three mile run sorry yeah there's the 00:18:14.809 --> 00:18:19.930 1 .22 mile walk and a 3 .22 mile run in honor 00:18:19.930 --> 00:18:22.730 of the number 22 for liam i absolutely love that 00:18:22.730 --> 00:18:25.369 and of course if you want to buy a t -shirt uh 00:18:25.369 --> 00:18:27.529 22 dollars so yeah so what with the teachers 00:18:27.529 --> 00:18:29.269 what we did is we had because we had to place 00:18:29.269 --> 00:18:31.849 the order you know we had this deadline so we 00:18:31.849 --> 00:18:33.769 had that if you sign up you know you'll get a 00:18:33.769 --> 00:18:35.509 t -shirt we missed whoever missed the deadline 00:18:35.509 --> 00:18:37.819 we might have some extras because we did beef 00:18:37.819 --> 00:18:41.259 up the order a little bit. We have the package 00:18:41.259 --> 00:18:44.460 pickup on Friday from 3 to 6 at JD High School 00:18:44.460 --> 00:18:48.319 Main Gym. And then the day of the sign up, you 00:18:48.319 --> 00:18:50.700 can still show up and sign up for the run. It's 00:18:50.700 --> 00:18:54.140 only $22. And if we have extra t -shirts, we're 00:18:54.140 --> 00:18:57.099 going to donate those. The other thing is with 00:18:57.099 --> 00:18:59.960 the number 22 is everywhere, all the scoreboards 00:18:59.960 --> 00:19:02.900 are all lit up with number 22 also. So wherever 00:19:02.900 --> 00:19:05.700 you go, it's you know, it's there. So that's 00:19:05.700 --> 00:19:08.079 beautiful, man. That's absolutely beautiful. 00:19:09.799 --> 00:19:11.660 Before we go, I mean, I'm going to put the link 00:19:11.660 --> 00:19:14.279 up here because it's a long one to say out loud, 00:19:14.319 --> 00:19:16.740 but to sign up and register as a runner. Are 00:19:16.740 --> 00:19:19.839 you guys also looking for volunteers still or 00:19:19.839 --> 00:19:21.740 are you just looking for for runners? I mean, 00:19:21.759 --> 00:19:23.640 right now, I mean, if we can never have enough 00:19:23.640 --> 00:19:26.039 volunteers because I mean, it's just, you know, 00:19:26.039 --> 00:19:28.440 there's a lot to manage. But as of now, I think 00:19:28.440 --> 00:19:30.160 we're good at volunteers. We just want people 00:19:30.160 --> 00:19:35.700 to just come join us. It's very emotional, but 00:19:35.700 --> 00:19:38.799 it's very satisfying, too. And the vibe is great. 00:19:38.880 --> 00:19:40.579 Like, we've seen people running into each other 00:19:40.579 --> 00:19:42.279 that they haven't seen each other in a very long 00:19:42.279 --> 00:19:44.779 time. So it's becoming more of a community event. 00:19:45.059 --> 00:19:46.880 It's the second annual, correct? The second annual. 00:19:46.940 --> 00:19:49.019 And we're hoping to continue it, you know, as 00:19:49.019 --> 00:19:53.519 much as we can. And again, all the proceeds will 00:19:53.519 --> 00:19:58.319 go to the organizations we're working with. So 00:19:58.319 --> 00:20:02.430 we'd appreciate it. Ronald McDonald House. The 00:20:02.430 --> 00:20:06.569 list goes on. All right, last but not least, 00:20:06.990 --> 00:20:10.109 any other plugs you want to get out there? Any 00:20:10.109 --> 00:20:13.450 other events? Anything about the Live Like Liam 00:20:13.450 --> 00:20:15.349 organization in general that you want to... Yeah, 00:20:15.349 --> 00:20:18.029 I mean, we do have, again, our two events, our 00:20:18.029 --> 00:20:20.730 main events, and every year there's somebody 00:20:20.730 --> 00:20:23.650 who is out of nowhere. They're like, let's have 00:20:23.650 --> 00:20:26.009 an event for you. Like this year in the spring, 00:20:26.009 --> 00:20:29.970 in the fall, there's a place called The Knee 00:20:29.970 --> 00:20:33.500 Whiskey Bar. Yeah. and I do like my bourbons 00:20:33.500 --> 00:20:35.460 so we were there and we just became friends with 00:20:35.460 --> 00:20:37.619 the owner and they had this beautiful fundraiser 00:20:37.619 --> 00:20:40.839 for us there so we will be if that thing was 00:20:40.839 --> 00:20:42.420 going to happen again so we'll be letting people 00:20:42.420 --> 00:20:44.960 know about it if there's really good stuff there 00:20:44.960 --> 00:20:50.460 but we do have our home run derby And it's a 00:20:50.460 --> 00:20:53.319 lot of fun. I mean, we had started first with 00:20:53.319 --> 00:20:55.859 JD people and people from FM because of the, 00:20:55.859 --> 00:20:57.980 you know, the close neighborhood together. But 00:20:57.980 --> 00:21:00.339 this year we had travel softball teams. We had 00:21:00.339 --> 00:21:02.680 kids coming from different schools. They were 00:21:02.680 --> 00:21:06.359 participating and it just it was so entertaining. 00:21:06.500 --> 00:21:08.940 And then when you have kids hitting 11 home runs 00:21:08.940 --> 00:21:12.079 in a row. Yeah. And it's just so much fun. So 00:21:12.079 --> 00:21:14.220 so these are the two main events that we do. 00:21:14.559 --> 00:21:16.519 And you can find that it was live like Liam dot 00:21:16.519 --> 00:21:18.740 org live like Liam dot org. We're on Instagram. 00:21:19.000 --> 00:21:21.940 Live Like Liam FDM and on Facebook Live Like 00:21:21.940 --> 00:21:25.059 Liam Foundation. And we do all our advertising 00:21:25.059 --> 00:21:27.579 there and share our information. Well, Jalal 00:21:27.579 --> 00:21:31.779 Zadby, it was an honor to have you here. My heart 00:21:31.779 --> 00:21:36.019 is with you. Thank you. I understand. I do. Sadly, 00:21:36.160 --> 00:21:40.099 I understand what goes on when a child is sick. 00:21:40.829 --> 00:21:43.109 I'm so glad that you have the support of friends 00:21:43.109 --> 00:21:45.529 and family and community. And you have our support 00:21:45.529 --> 00:21:48.009 here at Good News York. Thank you. And you helped 00:21:48.009 --> 00:21:49.450 us find the good today, and that's what this 00:21:49.450 --> 00:21:52.769 show is about. So, Jalal Zagby, one of the co 00:21:52.769 --> 00:21:55.910 -founders of Live Like Liam, LiveLikeLiam .org, 00:21:56.230 --> 00:21:59.950 the Live Like Liam Run -Walk, November 29th, 00:22:00.009 --> 00:22:03.089 9 a .m. at Jamesville DeWitt High School. We've 00:22:03.089 --> 00:22:06.549 got the link. Put it up on the screen. I mean, 00:22:06.609 --> 00:22:10.240 you heard the story. Please. Come be a part of 00:22:10.240 --> 00:22:14.160 it. It's for an amazing cause. And help us find 00:22:14.160 --> 00:22:17.940 the good, like Liam would have wanted. And with 00:22:17.940 --> 00:22:20.279 that, we thank you for joining us on Good News 00:22:20.279 --> 00:22:22.740 York, Monday through Thursday, 5 p .m. Eastern, 00:22:22.920 --> 00:22:25.920 GoodNewsYork .com, on all socials, at Good News 00:22:25.920 --> 00:22:28.000 York. We are sponsored by Ads on the Go, get 00:22:28.000 --> 00:22:31.539 ads on the Go, and you can follow me on all socials, 00:22:31.539 --> 00:22:34.480 at MikeBTV. We'll be back tomorrow with Good 00:22:34.480 --> 00:22:36.079 News York. See you then.