WEBVTT

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Hi, my name is Jordan. I am a special education

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teacher from the UK. I share my passion for everything

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communication, sensory regulation and fun lesson

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ideas for my classroom of disabled pupils aged

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4 to 11. Each week I am joined by experts in

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the field answering your questions and sharing

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our knowledge and experience working alongside

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our beautiful young people. Let's get started.

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Hello everybody and welcome to the Sensory Classroom

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podcast. My name is Jordan and today I am joined

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by Celeste from Root, Rise and Learn. She is

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a mum to two neurodivergent children, home educator,

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formerly teacher and now a movement therapist

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specialised in sensory integration. So, so much

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to cover today when we talk about the waiting

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time between diagnosis and what you can do in

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that time, whether you're a teacher or a parent.

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Hi Celeste. Good morning. How are you this morning?

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I'm really well and I'm really excited to talk

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to you today. I'm a big super fan of sensory

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classroom. I'm a huge super fan of sensory integration

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so I feel like we've got a lot to talk about

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today. We're friends. Shall we talk a little

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bit about discussing how the hell you wear all

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of these hats and how that came to be? Yes. So,

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I mean, basically, it's kind of my life story

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has all converged into me finally making the

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world a better place. So I am a mum, let's start

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there, of two amazing, highly neurodiverse kiddos.

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We are so all over the diagnostic map. We have

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all the HD in the house. We are dealing with

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ARFID, Tourette's, OCD. Sensory processing disorder,

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auditory processing disorder, speech and language

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delay. So I've been in every possible therapy,

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every medical setting. We also have some medical

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issues. So yeah, I mean, my experience with my

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kiddos, I also have ADHD. Did you find out that

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after parenting or did you already know that?

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That's late diagnosed. I wasn't massively surprised,

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to be honest. Yeah, yeah. out of that process

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with my kids as well and great it's great we're

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we're living the fully neurodiverse life here

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and because of my kiddos needs and kind of the

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timing that it all lined up kind of during the

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covid season is that when we came to making educational

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choices i as also being a former teacher and

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actually my very first job was in a in a school

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for children with very extreme disabilities and

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send needs. So that was my very first job straight

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out of the gate was supporting a music therapist

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in that setting. So I went right in the deep

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end. But I taught Key Stage 1 for quite a long

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time in mainstream. So when I came to making

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decisions for my own kids, I've kind of been

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behind the scenes and My son was maybe four or

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five during COVID, and it was kind of a no -brainer

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that we would start out home educating. And it

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has been just the best decision that I think

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we possibly could have made for them and for

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our whole family dynamic. Their development,

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their mental health and well -being, their overall

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well -being as a child, just the fact that they

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can take their time. and the benefit that it's

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been to our attachment as well has been fantastic

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but yeah so that's how I became a mom educate

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home educator but most recently my journey now

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into being on the other side of the desk from

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where I would sit as a parent as a movement therapist

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it was kind of natural to be honest because we

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and I know we're going to talk about this a lot

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today waited and waited and waited for occupational

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therapy, for sensory diets. And it got to a point

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where I just became really impatient with it

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and said, well, you know, my poor kiddo is sitting

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here. Their needs don't change. Their needs don't

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pause. They will just actually get harder to

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deal with as they grow. And especially if they're

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not met. And I was noticing my son started to

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kind of maladapt to certain things. And I was

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like, nope. I've got to do something. What can

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I do? What do you mean by that maladapt? So maladaptation,

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you know, kids are built to survive. They're

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built to cope and they will try to cope with

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whatever skill they have at that time. And so

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for him, you know, in the sensory environment,

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his way of dealing with an extreme noise sensitivity

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at the time was to be louder than the noise.

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And I think that is quite common. Yes. And he

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was, you know, he was very little at the time.

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But I noticed... the change pretty quickly from,

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you know, guarding against the noise to making,

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just start to scream and, you know, bang on things.

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And I thought, hang on, that's really distressing

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behavior for you because I can see his little

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body was really struggling through it. And I

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was offering all the things, you know, have some

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ear defenders, have this, have that. And for

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him at that time, that was the only way that

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he could in his nervous system cope with that.

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So I did the thing that all moms do, parents

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do when you are either waiting for a diagnosis

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and, you know, there's very little steer. I make

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a bit of a joke of it on my Instagram account

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and I film some skits to tell my story because

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some of the most ridiculous things that I've

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heard in a GP's office or, you know, waiting

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for SLT or trying to explain to an OT what. is

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happening at home but yeah I've just been waiting

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a really long time and I thought I'm going to

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start reading and as I read I thought well I

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can try and apply some of these things and that

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led me down a path of maybe I should retrain

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seeing as I've read all of the books on the shelf

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and luckily I was working with a play therapist

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for both my kids at the time and she was so excited

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about me you know possibly retraining and she

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you know helped me find some courses some training

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pathways and that kind of led me to this amazing

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therapy the neurodevelopmental movement therapy

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which includes reflex integration and sensory

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mapping all of that as part of it and I qualified

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last year and I'm so happy that I've done that

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the work that I've done with my own kids has

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been really transformative for them and I'm a

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little bit more about what movement therapy is

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and entails and includes because I don't know

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I don't know if many people have heard of it.

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I don't know exactly what it entails. What makes

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movement therapy different? Why is it different?

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That's a really good question. So I think everyone

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would be familiar if I said occupational therapy.

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Everyone would kind of know loosely what that

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looks like. So movement therapy is part of occupational

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therapy. It would be almost like an additional

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qualification that an occupational therapist

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would do. if they wanted to support a child on

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a more foundational level. I think it's very

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popular in Europe. It's probably one of the first

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therapies that you'd be offered if you, for example,

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had a diagnosis in Denmark. And that is exactly

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where the therapy comes from. It was pioneered

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in Denmark. If you're interested by a doctor

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called Harold Blomberg, you can see his book

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right here, actually, in my little blue book.

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movements that heal. That was actually one of

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the first books that I read when I was kind of

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suspicious that we may have all the HD in the

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house. But since the 70s, it's really gained

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a lot of traction. There's a lot of really good

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research with regards to how it positively impacts

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the nervous system. But what it is, is it starts

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with attachment. So whoever the patient is, and

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that for me is usually the child, being that

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that's... kind of my bag. I've got kids, I've

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worked with kids, I understand how to approach

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children. But it's also being applied quite widely

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with early onset dementia or kind of adult neurological

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disorders like Parkinson's. Actually, I've been

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helping my lovely dad who's got early stage Parkinson's

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and it's been really helpful for him for neurological

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pain. But back to kids. So it starts with, let's

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say, the child. And then you would need the parent

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caregiver, the safe adult, that could also be

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a teacher or a TA if it's being applied in the

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classroom, present, and then the therapist. And

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what it basically is, it's a range of very, it

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starts with innate rhythmic movements. So those

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are very simple, very... small quite relaxed

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calming movements they're very easy to embed

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in play and they're actually fantastic for kind

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of a bedtime routine because most of them are

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done lying down if you think about the movements

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that a baby would make when they're just starting

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to move their body there's a lot of rocking a

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lot of rolling very gentle but very rhythmic

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movements and we can sing together We can breathe

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together. You can use gentle tapping. And what

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that basically does is it causes the nervous

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system to come into repose. So you are down -regulating.

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The blood pressure drops. The body relaxes. And

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you're starting to access a part of the brain

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at the back called the cerebellum, which is responsible

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for most function. And it's kind of the gatekeeper

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between the kind of infant brain, the limbic

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brain. the lizard brain that people call it sometimes,

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and the cortex, the higher function here. Everything

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has to wire up that way from the spine. And what

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it does, it accesses that quite infantile part

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of the brain. And especially in a neurodiverse

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brain, it allows the neurological connections

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that were made in early life to just revisit

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how they're wired. So that can mean that any

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connections that weren't made Because of, you

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know, I don't know, birth trauma or infant illness

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or... Yes. So it's really prevalent in neurodivergence

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actually just because of the way the neurology

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forms. And that's because, I mean, there's so

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much research about this. It'd be very easy to

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look it up yourself on Google. But autism, neurodivergence

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of any sort, is a neurological difference. Neurodivergence.

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The actual connection in the brain forms at a

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slower pace. The synapses, which is where the

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electricity fires between two different parts

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of that connection, forms at a slower pace. And

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sometimes it forms multiple connections. And

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what would normally happen in an holistic body,

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a non -neurodiverse body, is that those connections,

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when they're unused, would die off. They would...

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stripped back they would prune that's the word

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that people use so that's one reason why i called

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my therapy root rise and learn that's my little

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practice name because an autistic brain does

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look like roots um you know for example let's

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say i want to stand up very simple signal that

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signal might have to go from here to here to

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get to my legs but in a child with any sort of

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neurological difference that signal may get to

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here but then fire in six different directions

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because the brain hasn't been able to get past

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this blockage for many reasons, and it hasn't

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been able to prune off all the other pathways.

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So for it to get from here to here takes a lot

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more time and effort, and sometimes it misfires.

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And that's why often with neurodivergence, we

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see a lot of gross motor issues. That's kind

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of the first big flag is, oh, they didn't crawl

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for a very long time, or they didn't walk, or

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they skipped crawling. and just stood up. Or

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in later life, postural issues and then fine

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motor issues. Obviously, if gross motor issues

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struggle, fine motor issues absolutely will be

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problematic. So what this therapy does is it

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targets that one pathway. We take it right back

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to the earliest kind of developmental stage that

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we can find. And we then send positive input,

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positive sensory input in the right direction,

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repetitively. So it's basically almost like a

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manual reset for some of the neurology in the

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brain. And I can say in my own kids who had,

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I mean, even three or four years ago, and I did

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their sensory profiles myself, very serious sensory

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issues, very serious. You know, we had a full

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-on ARFID diagnosis. My daughter was functionally

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deaf in a room where there were more than two

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people. Extreme tactile issues. Noise sensitivity,

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the whole bag. You know, it has taken time. But

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now, you know, my son's eating has come on so

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much. We are now borderline. Are we still ARFID?

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Are we not? My daughter's auditory processing

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is still auditory processing disorder. However,

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her adaptation in an environment is a lot more

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comfortable and I guess more natural. And I can

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see also gross motor skills have come on so,

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so far. We had a lot of cross -body issues, couldn't

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catch. And, you know, to the extent where if

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I put a ball anywhere near either of my children,

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they'd freak out. But now, you know, and it wasn't

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that we were practicing catching. We were doing

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these little exercises together, reflex integration

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exercises for probably about a period of 18 months.

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And now, you know, my son's joining a football

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camp next week. So I've seen the positives out

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of this. But I think the biggest positive actually

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is in our relationship because like, well, many

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other therapies, it relies on that sense of security

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between the child and whoever's doing the therapy.

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And I think this works so well in the home and

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with families because of exactly that. Like it

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relies on that safe person. And I would much

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rather give parents the tools to do this safely.

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parents, caregivers, teachers, you know, wherever

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child is spending the majority of their time,

00:14:22.919 --> 00:14:26.200
to do this safely, to build attachments. Because

00:14:26.200 --> 00:14:28.620
I think a healthy attachment, you can do anything

00:14:28.620 --> 00:14:31.179
with that. A healthy attachment and a regulated

00:14:31.179 --> 00:14:35.080
child and the world's your oyster, right? Yeah.

00:14:35.120 --> 00:14:38.279
And it sounds errorless to me. So in that mind,

00:14:38.399 --> 00:14:41.340
they can't fail at it. Therefore, it's boosting

00:14:41.340 --> 00:14:43.419
that confidence, building that trust and that

00:14:43.419 --> 00:14:47.139
loyalty. Is the... impact of movement because

00:14:47.139 --> 00:14:50.559
it is very movement based it was also impacting

00:14:50.559 --> 00:14:54.200
so many other areas of the sensory system is

00:14:54.200 --> 00:14:57.059
that because the nervous system as a whole is

00:14:57.059 --> 00:15:00.200
more grounded and rooted therefore they can cope

00:15:00.200 --> 00:15:02.019
with other things or is it more than that what

00:15:02.019 --> 00:15:05.120
does the evidence show in that respect it's probably

00:15:05.120 --> 00:15:07.700
a bit of both I think when a child is really

00:15:07.700 --> 00:15:10.580
well regulated, it's almost like all the lights

00:15:10.580 --> 00:15:13.460
are green and they're much more receptive. So

00:15:13.460 --> 00:15:15.980
I think, you know, that's why I do advocate for

00:15:15.980 --> 00:15:18.659
it being starting with attachment. And, you know,

00:15:18.659 --> 00:15:22.379
we call it heart connection because if we can

00:15:22.379 --> 00:15:25.440
turn the lights green, then you can really see,

00:15:25.580 --> 00:15:28.879
okay. where what's what's actually happening

00:15:28.879 --> 00:15:31.779
in the child at this point in time but the science

00:15:31.779 --> 00:15:34.759
is I mean it's fascinating and I'm still learning

00:15:34.759 --> 00:15:38.899
as I as I go and reading and there's more research

00:15:38.899 --> 00:15:41.860
coming out every every couple of weeks at the

00:15:41.860 --> 00:15:44.559
moment this is a really popular therapy in America

00:15:44.559 --> 00:15:47.259
at the moment and actually I think probably people

00:15:47.259 --> 00:15:50.720
will have seen stuff pop up online which I'd

00:15:50.720 --> 00:15:52.399
like to talk about they might have seen kind

00:15:52.399 --> 00:15:55.629
of The moro reflex seems to be quite fashionable

00:15:55.629 --> 00:15:57.570
at the moment. And there's people kind of throwing

00:15:57.570 --> 00:15:59.769
kids over balls. Don't do that. Don't do that.

00:16:00.370 --> 00:16:03.149
But, you know, that might ring bells. But the

00:16:03.149 --> 00:16:06.690
research is really interesting. So my kind of

00:16:06.690 --> 00:16:10.649
current rabbit hole of scientific exploration

00:16:10.649 --> 00:16:14.049
is the connection between the neurology of the

00:16:14.049 --> 00:16:17.840
hand and of the mouse in the sensory motor. function

00:16:17.840 --> 00:16:21.259
of of the kind of oral sensory area and that's

00:16:21.259 --> 00:16:23.279
been interesting for me because my little girl

00:16:23.279 --> 00:16:26.299
has a speech and language delay she's a gestalt

00:16:26.299 --> 00:16:29.500
processor it's so much fun some of the things

00:16:29.500 --> 00:16:33.019
that she comes out with love it but you know

00:16:33.019 --> 00:16:35.860
she had a lot of kind of oral motory issue oral

00:16:35.860 --> 00:16:40.139
motor issues just with the formation of words

00:16:40.139 --> 00:16:43.519
and we spent so much time in SLT we had a lovely

00:16:43.519 --> 00:16:47.340
SLT But it wasn't really until I really started

00:16:47.340 --> 00:16:49.080
kind of putting these two things together because

00:16:49.080 --> 00:16:52.080
of my training that I started gaining traction.

00:16:52.460 --> 00:16:56.059
And it all, just to briefly go into the science,

00:16:56.220 --> 00:16:59.840
starts in early infancy. So one of the reflexes,

00:16:59.840 --> 00:17:03.799
it's called Palmar -Babkin reflex and the grasp

00:17:03.799 --> 00:17:06.220
reflex. So if you've ever been near a newborn,

00:17:06.579 --> 00:17:09.740
they will hold on to anything that you put in

00:17:09.740 --> 00:17:13.059
their palm. And if they're stimulated anywhere

00:17:13.059 --> 00:17:15.880
near their palm, they will try and grasp. And

00:17:15.880 --> 00:17:18.420
that's really critical because their instinct

00:17:18.420 --> 00:17:22.299
is my caregiver is trying to feed me. So I will

00:17:22.299 --> 00:17:24.380
close my hand and open my mouth. And there is

00:17:24.380 --> 00:17:26.559
a, you know, the neurology all flows through

00:17:26.559 --> 00:17:29.160
the same kind of port here at the back of the

00:17:29.160 --> 00:17:31.839
neck in the cerebellum. Now, there's also research

00:17:31.839 --> 00:17:34.559
to say that particularly with autism spectrum.

00:17:35.309 --> 00:17:38.029
that there is a developmental delay in the biology

00:17:38.029 --> 00:17:40.470
of the cerebellum. So, you know, both my kids

00:17:40.470 --> 00:17:43.069
had feeding issues when they were very little.

00:17:43.190 --> 00:17:44.569
I think it's not when I talk to parents on the

00:17:44.569 --> 00:17:48.630
podcast that that is so often a missed but early

00:17:48.630 --> 00:17:51.609
sign when they look back. Oh, of course they

00:17:51.609 --> 00:17:53.630
had apraxia. Of course they were going to be

00:17:53.630 --> 00:17:57.369
non -speaking or pre -verbal. We could see those

00:17:57.369 --> 00:18:03.509
oral motor challenges right from the start. Yeah,

00:18:03.529 --> 00:18:07.250
absolutely. So, I mean, the way that these reflexes

00:18:07.250 --> 00:18:09.210
work, they really do impact this. And they also

00:18:09.210 --> 00:18:12.009
impact auditory processing. Because depending

00:18:12.009 --> 00:18:16.690
on how much your infant struggles with feeding

00:18:16.690 --> 00:18:19.509
in those early days, it depends on how, you know,

00:18:19.569 --> 00:18:22.029
it will affect how their head is placed, which

00:18:22.029 --> 00:18:25.150
ear is open to the environment and needs to be

00:18:25.150 --> 00:18:27.509
processed through. And are they receiving...

00:18:28.119 --> 00:18:30.440
feeding on one side versus the other side or

00:18:30.440 --> 00:18:33.019
you know my son for example would only feed sitting

00:18:33.019 --> 00:18:36.819
up so it's a completely different sensory input

00:18:36.819 --> 00:18:39.079
that they're getting and the amount that a baby

00:18:39.079 --> 00:18:42.759
feeds right that's a constant affirmation of

00:18:42.759 --> 00:18:46.559
that sensory pathway in one way or another So

00:18:46.559 --> 00:18:48.700
when we started with my daughter working on her

00:18:48.700 --> 00:18:51.900
palmar reflex, and yes, there were lots of kind

00:18:51.900 --> 00:18:54.980
of paper scrunching exercises and lots of, you

00:18:54.980 --> 00:18:58.539
know, gentle circle drawing and trying to, you

00:18:58.539 --> 00:19:01.940
know, isolate fingers and gripping things as

00:19:01.940 --> 00:19:05.059
tightly as we could. Interestingly, I have a

00:19:05.059 --> 00:19:08.119
little video of her, which I'm kind of dubious

00:19:08.119 --> 00:19:09.819
to share because I'm really worried about sharing

00:19:09.819 --> 00:19:12.059
kids on the internet. Maybe I'll act it out.

00:19:12.160 --> 00:19:14.000
Maybe I'll do that. I'll turn it into a skit.

00:19:14.720 --> 00:19:19.700
But when we started at the very start of me applying

00:19:19.700 --> 00:19:22.619
this with my own kiddos, when she scrunched anything

00:19:22.619 --> 00:19:25.900
up, the reflex to open her mouth and stick her

00:19:25.900 --> 00:19:28.740
tongue out was so strong that she actually had

00:19:28.740 --> 00:19:31.619
to stop and she said out because it was such

00:19:31.619 --> 00:19:34.160
a strong reflex. And, you know, I could see it

00:19:34.160 --> 00:19:37.319
kind of gradually integrating and becoming less

00:19:37.319 --> 00:19:40.079
prevalent. We had so much fun. It's so easy to

00:19:40.079 --> 00:19:43.359
embed this in play. It's so easy to embed this

00:19:43.359 --> 00:19:46.200
in play. We were dragons, you know, scrunching

00:19:46.200 --> 00:19:50.200
and exhaling and shouting. And we learned about

00:19:50.200 --> 00:19:52.579
the Maori. So we were doing lots of kind of facial

00:19:52.579 --> 00:19:56.279
exercises. But yes, I mean, it's such a great

00:19:56.279 --> 00:20:00.440
therapy to use at home, especially if you home

00:20:00.440 --> 00:20:03.839
educate, because your connection with your kids

00:20:03.839 --> 00:20:07.099
is, well, it never stops, really. Yeah, absolutely.

00:20:07.440 --> 00:20:09.230
And then you mentioned that the big... beginning

00:20:09.230 --> 00:20:11.670
when you were explaining about it that it's with

00:20:11.670 --> 00:20:15.069
the supporting adult and the therapist is that

00:20:15.069 --> 00:20:19.029
always how it's done or eventually can the safe

00:20:19.029 --> 00:20:21.210
adult the supporting adult learn enough from

00:20:21.210 --> 00:20:22.990
the therapist that they could do it one -to -one

00:20:22.990 --> 00:20:24.970
with the child how does that transition work

00:20:24.970 --> 00:20:29.190
yeah so I think I was thinking through this as

00:20:29.190 --> 00:20:33.089
a parent to highly sensitive kids If I introduced

00:20:33.089 --> 00:20:35.450
a random stranger into the house, nothing's going

00:20:35.450 --> 00:20:38.569
to happen. It's not a positive experience. So

00:20:38.569 --> 00:20:43.390
I think what I would suggest now, and this is

00:20:43.390 --> 00:20:45.970
kind of against how it would be practiced in

00:20:45.970 --> 00:20:48.670
the field, is to actually work directly with

00:20:48.670 --> 00:20:51.950
the parent or caregiver first. Okay. And for

00:20:51.950 --> 00:20:55.150
them to then try and apply it at home. You know,

00:20:55.170 --> 00:20:58.589
we can use other checks and balances. Can you...

00:20:58.890 --> 00:21:01.809
film what happens can you explain what happens

00:21:01.809 --> 00:21:04.809
can you record and let's listen back be really

00:21:04.809 --> 00:21:09.250
observant I'm a huge advocate for kind of Montessori

00:21:09.250 --> 00:21:11.829
style observation I think knowing the child is

00:21:11.829 --> 00:21:14.710
so important and watching for the smallest signals

00:21:14.710 --> 00:21:16.950
little twitch here are they holding their breath

00:21:16.950 --> 00:21:19.089
are they tensing what's tensing is it the big

00:21:19.089 --> 00:21:20.990
toe just the big toe or is it the whole foot

00:21:20.990 --> 00:21:24.349
the whole leg you know very in -depth observation

00:21:24.349 --> 00:21:29.180
and then what I think it's best to be done parent

00:21:29.180 --> 00:21:33.039
to child or caregiver to child and then if you

00:21:33.039 --> 00:21:36.319
know at some point they feel comfortable to have

00:21:36.319 --> 00:21:39.140
me in the room or even on on a zoom chat in the

00:21:39.140 --> 00:21:43.200
corner i can observe and help that way but i

00:21:43.200 --> 00:21:45.740
mean really like you said it is errorless you

00:21:45.740 --> 00:21:49.980
know you you can't injure a child with the very

00:21:49.980 --> 00:21:54.460
gentle motion and a very strong relational connection

00:21:54.460 --> 00:21:59.819
which is why When I see kind of these, you know,

00:21:59.839 --> 00:22:04.980
one minute Instagram reel therapy suggestions,

00:22:05.500 --> 00:22:09.579
quick fix suggestions popping up and, you know,

00:22:09.599 --> 00:22:13.220
children are being thrown over peanut balls or

00:22:13.220 --> 00:22:15.819
spun around really fast and you can integrate

00:22:15.819 --> 00:22:17.980
their reflex by doing this a thousand times.

00:22:18.119 --> 00:22:21.410
Don't do that to a child. Don't. It's a very

00:22:21.410 --> 00:22:23.430
gentle exercise, has to be approached really

00:22:23.430 --> 00:22:25.930
carefully because you're talking to the neurology.

00:22:25.930 --> 00:22:27.809
You don't want to send something off in the wrong

00:22:27.809 --> 00:22:31.170
direction or traumatize the child or worse, you

00:22:31.170 --> 00:22:35.609
know, these retained reflexes can reemerge. especially

00:22:35.609 --> 00:22:38.730
in neurodivergent children or adults because

00:22:38.730 --> 00:22:41.609
the neurology is you know like tree roots there's

00:22:41.609 --> 00:22:44.769
almost too much present they can re -emerge you

00:22:44.769 --> 00:22:47.450
don't want that to happen you know suddenly you're

00:22:47.450 --> 00:22:49.529
getting that professional support even if you're

00:22:49.529 --> 00:22:51.430
the one leading the therapy with your child that

00:22:51.430 --> 00:22:53.589
you've got those professional eyes on to make

00:22:53.589 --> 00:22:56.049
sure that you are doing it in a safe way for

00:22:56.049 --> 00:22:59.269
their bodies exactly exactly especially if they're

00:22:59.269 --> 00:23:04.279
highly sensitive that i I was trying to explain

00:23:04.279 --> 00:23:06.660
this to one of my first clients. I was like,

00:23:06.700 --> 00:23:10.740
use the loaf of bread test. If you wouldn't do

00:23:10.740 --> 00:23:12.819
it to a loaf of bread that you've just bought

00:23:12.819 --> 00:23:14.599
from the shop because you know it's going to

00:23:14.599 --> 00:23:18.380
squish, don't do it to a child. Very gentle hands,

00:23:18.640 --> 00:23:22.500
very gentle motion, right? We should definitely

00:23:22.500 --> 00:23:23.940
be caring for our children more than loaves of

00:23:23.940 --> 00:23:26.799
bread. But I think, you know, it is very difficult

00:23:26.799 --> 00:23:30.420
because especially, you know, going through my

00:23:30.420 --> 00:23:33.819
own kind of un... undeschooling, unschooling

00:23:33.819 --> 00:23:36.640
process, having been a teacher for many years,

00:23:36.740 --> 00:23:42.000
I realize now as an adult, as a ADHD adult, a

00:23:42.000 --> 00:23:45.359
lot of my kind of assumed practice or behavior

00:23:45.359 --> 00:23:49.339
as a parent or a teacher was influenced by, you

00:23:49.339 --> 00:23:51.500
know, I guess like a generational difference

00:23:51.500 --> 00:23:54.759
that now, I mean, isn't it wonderful and exciting

00:23:54.759 --> 00:23:57.079
to be in a season where we can question those

00:23:57.079 --> 00:24:00.119
things and do make different choices, make gentler

00:24:00.119 --> 00:24:03.430
choices. Yeah. And the right choice is for you

00:24:03.430 --> 00:24:06.410
and your family. And it feels like that's respected.

00:24:06.569 --> 00:24:09.190
There's a greater respect and understanding for

00:24:09.190 --> 00:24:12.190
that than ever, I feel. Yes, exactly. I think

00:24:12.190 --> 00:24:15.650
the family unit is so important. And whatever

00:24:15.650 --> 00:24:19.089
your family looks like, whatever the caregiving

00:24:19.089 --> 00:24:21.650
unit looks like. And, you know, I didn't go as

00:24:21.650 --> 00:24:25.029
far as to say, you know, if you're in a learning

00:24:25.029 --> 00:24:27.529
environment or you're in a setting and you are.

00:24:28.009 --> 00:24:30.069
the adult in charge or there are other adults

00:24:30.069 --> 00:24:32.609
present there, you do form a little nervous system.

00:24:32.670 --> 00:24:35.890
You form a little family during that time. And

00:24:35.890 --> 00:24:38.190
it's so important for children to feel rooted

00:24:38.190 --> 00:24:41.910
and secure in whatever familial situation they're

00:24:41.910 --> 00:24:46.150
in. Yeah. And children spend so much time of

00:24:46.150 --> 00:24:49.950
their day at school if they're at a setting.

00:24:50.289 --> 00:24:53.950
They're incredibly influential. Exactly. I fully

00:24:53.950 --> 00:24:57.299
agree. Fully agree. Yeah, in a good way and bad

00:24:57.299 --> 00:25:00.079
way sometimes, you know, depending on the environment

00:25:00.079 --> 00:25:02.359
and the child suitability to that environment.

00:25:03.220 --> 00:25:06.799
Exactly, exactly. And I think one of the things

00:25:06.799 --> 00:25:09.079
that I'm quite passionate about advocating for

00:25:09.079 --> 00:25:11.660
is a family's right to make the right choice

00:25:11.660 --> 00:25:14.660
for their. child and whatever that choice might

00:25:14.660 --> 00:25:17.900
be I'm very passionate about home education about

00:25:17.900 --> 00:25:20.319
EOTAS I know you've just recently done a whole

00:25:20.319 --> 00:25:24.119
podcast on EOTAS but you know for whatever situation

00:25:24.119 --> 00:25:26.839
you're finding yourself in is to firstly be able

00:25:26.839 --> 00:25:30.440
to access the right support and secondly to be

00:25:30.440 --> 00:25:33.740
supported in making neuroaffirming choices along

00:25:33.740 --> 00:25:36.519
the way yeah for yourself and your children and

00:25:36.519 --> 00:25:38.920
sometimes home education is appropriate for your

00:25:38.920 --> 00:25:40.779
children but it might not be appropriate or safe

00:25:40.779 --> 00:25:44.670
for you right now So it's really important to

00:25:44.670 --> 00:25:48.730
manage your whole family. Your whole family dynamic.

00:25:49.089 --> 00:25:52.369
Absolutely. Absolutely. And, you know, one of

00:25:52.369 --> 00:25:55.029
the lovely things that I also get to do is that

00:25:55.029 --> 00:25:58.150
I get to talk families through those choices.

00:25:58.230 --> 00:26:00.869
And, you know, that slightly left of my therapy

00:26:00.869 --> 00:26:05.069
hat and more into the, well, I've seen all sides

00:26:05.069 --> 00:26:08.829
of education and I'm a mom and I've walked through

00:26:08.829 --> 00:26:12.529
all of this diagnostic. pathways and waiting

00:26:12.529 --> 00:26:16.630
lists and we're still on a waiting list for Tourette's

00:26:16.630 --> 00:26:20.109
diagnosis I feel like parents like yourself are

00:26:20.109 --> 00:26:23.490
forever on a waiting list for something or forever

00:26:23.490 --> 00:26:26.769
forever waiting and then your child has a growth

00:26:26.769 --> 00:26:30.309
spurt or a developmental change and then something

00:26:30.309 --> 00:26:33.390
else comes up and you're you're back on on that

00:26:33.390 --> 00:26:36.990
what does that do for a parent for teachers that

00:26:36.990 --> 00:26:39.640
are listening How does it feel to live in that

00:26:39.640 --> 00:26:42.619
space of constantly advocating, fighting, waiting,

00:26:43.039 --> 00:26:46.460
filling out forms, waiting again, proving yourself,

00:26:46.720 --> 00:26:50.259
not being believed? What is that like? Can you

00:26:50.259 --> 00:26:54.500
explain that? It's exhausting, firstly, because

00:26:54.500 --> 00:26:58.079
you're doing all of that whilst still parenting,

00:26:58.279 --> 00:27:02.420
often in high stress environments, with your

00:27:02.420 --> 00:27:05.660
child who you adore, with every fibre of your

00:27:05.660 --> 00:27:09.230
being, and you would... do anything to help them

00:27:09.230 --> 00:27:13.109
just be okay, just for one day, for one hour.

00:27:13.210 --> 00:27:17.849
And it is very isolating because once you are

00:27:17.849 --> 00:27:21.250
on that waiting list or, you know, you are a

00:27:21.250 --> 00:27:25.230
patient and it is a professional medical situation.

00:27:25.710 --> 00:27:29.910
And, you know, I have had... a very mixed bag

00:27:29.910 --> 00:27:32.490
personally and I know I'm not alone I've spoken

00:27:32.490 --> 00:27:34.569
to a lot of families who are in a similar situation

00:27:34.569 --> 00:27:36.950
some in really difficult situations and then

00:27:36.950 --> 00:27:39.130
some who are able to afford to go privately and

00:27:39.130 --> 00:27:41.269
you know have a have a whole different experience

00:27:41.269 --> 00:27:45.750
but broadly there isn't a lot of compassion towards

00:27:45.750 --> 00:27:50.509
the parent in those initial circumstances and

00:27:50.509 --> 00:27:52.410
there are a lot of questions about environment

00:27:52.410 --> 00:27:56.589
and there need to be but I think if you are in

00:27:56.589 --> 00:28:00.619
the thick of things It is depressing. It is exhausting.

00:28:01.400 --> 00:28:04.779
It is demoralizing. And you do, honestly, you

00:28:04.779 --> 00:28:07.660
start kind of feeling like you're going a little

00:28:07.660 --> 00:28:10.039
loopy because you start questioning yourself.

00:28:10.160 --> 00:28:12.079
Well, is this my fault? You have to believe that

00:28:12.079 --> 00:28:14.539
blame and shame that's being put on you. Yeah.

00:28:14.660 --> 00:28:18.299
And the parent shaming really is, I think, probably

00:28:18.299 --> 00:28:20.420
what I would say is one of the biggest problems

00:28:20.420 --> 00:28:23.880
at the moment in that. in that kind of medical

00:28:23.880 --> 00:28:27.799
pathway world, diagnostic pathway. And I've experienced

00:28:27.799 --> 00:28:30.940
it. I've walked into an occupational therapy

00:28:30.940 --> 00:28:34.160
setting where, you know, they've known from my

00:28:34.160 --> 00:28:37.400
brief that I'm, you know, I'm qualified. I've

00:28:37.400 --> 00:28:38.960
done this for a long time. I've worked in settings.

00:28:39.119 --> 00:28:41.980
I've been able to very thoroughly explain what

00:28:41.980 --> 00:28:45.920
I can see is happening and have still been taken

00:28:45.920 --> 00:28:48.779
down a peg. for some of the choices that I've

00:28:48.779 --> 00:28:51.460
made for my kids or completely left to field

00:28:51.460 --> 00:28:53.099
things I was like wow that feels like a cheap

00:28:53.099 --> 00:28:59.440
shot yeah I've seen it before nurses or you know

00:28:59.440 --> 00:29:02.599
whatever you know highly intelligent intellectual

00:29:02.599 --> 00:29:05.480
able to write these letters and send these forms

00:29:05.480 --> 00:29:09.640
and and do the research and and still being closed

00:29:09.640 --> 00:29:11.839
having like closed doors you know slammed in

00:29:11.839 --> 00:29:14.180
their face it just makes you think if that's

00:29:14.180 --> 00:29:17.440
happening to you guys How are the parents that

00:29:17.440 --> 00:29:21.039
are illiterate or disabled themselves or struggling

00:29:21.039 --> 00:29:26.619
multiple siblings with complex needs, how are

00:29:26.619 --> 00:29:29.980
they able to even start the process? It's so

00:29:29.980 --> 00:29:33.059
ableist in its format, isn't it? Enormously,

00:29:33.180 --> 00:29:35.759
yeah. Enormously ableist. And, you know, I mean,

00:29:35.759 --> 00:29:37.980
at the moment I'm working with a lovely single

00:29:37.980 --> 00:29:41.980
mum. who has three kids on the spectrum, various

00:29:41.980 --> 00:29:45.359
educational choices made for benefit. And she's

00:29:45.359 --> 00:29:48.660
fantastic. She is on it. And we're going through

00:29:48.660 --> 00:29:52.140
DLA applications at the moment. And it's horrific.

00:29:52.259 --> 00:29:55.779
And I, you know, I just sat with her and said,

00:29:55.819 --> 00:29:58.619
look, just take your time. It's okay. Like, it's

00:29:58.619 --> 00:30:02.339
okay. We can do it together. We can find a way

00:30:02.339 --> 00:30:04.910
through this. She's dyslexic. It's really difficult

00:30:04.910 --> 00:30:07.109
completing a form when you're dyslexic. All the

00:30:07.109 --> 00:30:08.730
forms are horrendous anyway, all the forms are

00:30:08.730 --> 00:30:10.490
actually, because you always have to say what

00:30:10.490 --> 00:30:13.269
your child can't do, what they struggle with,

00:30:13.390 --> 00:30:16.069
what their failures are. And yet all we want

00:30:16.069 --> 00:30:19.230
to see as parents and educators is that we want

00:30:19.230 --> 00:30:21.869
to share all this joy. We want to celebrate them.

00:30:22.210 --> 00:30:25.190
And there's no space, there's no page on the

00:30:25.190 --> 00:30:27.549
form for that. In fact, it would go against what

00:30:27.549 --> 00:30:29.190
you're trying to do. It would go against benefiting

00:30:29.190 --> 00:30:31.559
the children if we were to do that. And that

00:30:31.559 --> 00:30:37.519
just feels so wrong. And that's before any dyslexia

00:30:37.519 --> 00:30:41.880
or form anxiety and trauma and, you know, so

00:30:41.880 --> 00:30:46.000
much, so much. So many barriers to why these

00:30:46.000 --> 00:30:49.319
children aren't, you know, aren't getting the

00:30:49.319 --> 00:30:52.279
support that they very, very rightly deserve.

00:30:53.039 --> 00:30:55.579
Exactly. And, you know, they're always somewhere

00:30:55.579 --> 00:31:00.089
at the bottom of the food chain. you're you know

00:31:00.089 --> 00:31:02.890
holding so many things together as a parent or

00:31:02.890 --> 00:31:06.109
caregiver and you know you want to be channeling

00:31:06.109 --> 00:31:08.349
all the help towards the children but very often

00:31:08.349 --> 00:31:11.509
there's so little coming in yeah and that was

00:31:11.509 --> 00:31:14.009
my experience personally it was a really dark

00:31:14.009 --> 00:31:17.650
time you know it was post -covid I had two under

00:31:17.650 --> 00:31:21.230
four not speaking the other not eating neither

00:31:21.230 --> 00:31:24.170
one of them sleeping I was exhausted trying to

00:31:24.170 --> 00:31:28.140
you know find support we're on diagnostic pathway

00:31:28.140 --> 00:31:31.559
just waiting waiting waiting and you have to

00:31:31.559 --> 00:31:34.240
find a way of surviving in that circumstance

00:31:34.240 --> 00:31:37.799
and you know I'm trying to be now the change

00:31:37.799 --> 00:31:41.890
that I wish I had access to and There is, there

00:31:41.890 --> 00:31:44.210
are places that people can go. You know, I'm

00:31:44.210 --> 00:31:47.230
lucky where I live now. Our borough here has

00:31:47.230 --> 00:31:50.150
a really great autism advisory service, but it

00:31:50.150 --> 00:31:53.589
only goes so far. And very rarely are they willing

00:31:53.589 --> 00:31:56.069
or able to talk about your personal situation

00:31:56.069 --> 00:31:58.690
and to, you know, just look slightly outside

00:31:58.690 --> 00:32:01.049
of the box. And that's really difficult when

00:32:01.049 --> 00:32:04.950
you have all the HD, which is its own whole world

00:32:04.950 --> 00:32:09.809
of concern. And, you know, there are. whatsapp

00:32:09.809 --> 00:32:12.670
groups and there are facebook groups and i i

00:32:12.670 --> 00:32:16.650
joined as many as i could and some were helpful

00:32:16.650 --> 00:32:21.009
some were really depressing yeah it can be overwhelming

00:32:21.009 --> 00:32:27.589
with the huge difference in opinions yeah and

00:32:27.589 --> 00:32:31.849
theories and with research and it can be an absolute

00:32:31.849 --> 00:32:34.269
minefield to know what is right for your child

00:32:34.269 --> 00:32:38.319
there's so much noise isn't there listen to this

00:32:38.319 --> 00:32:41.880
podcast, buy this book, try this gummy. Yeah.

00:32:41.900 --> 00:32:44.619
Yeah. All of it. There's so much noise. And all

00:32:44.619 --> 00:32:48.299
you want to do as a parent is make the right

00:32:48.299 --> 00:32:51.200
choices for your child. And it's so hard to know

00:32:51.200 --> 00:32:55.299
what that looks like. How did you, you said you're

00:32:55.299 --> 00:32:59.279
well -read. How did you navigate that noise to

00:32:59.279 --> 00:33:02.299
find what was right for your family? Well, I

00:33:02.299 --> 00:33:06.529
mean, I did and I didn't. There were days where

00:33:06.529 --> 00:33:08.970
I was like, I don't know what I'm doing. I don't

00:33:08.970 --> 00:33:11.109
know what I'm doing. There were days where I,

00:33:11.109 --> 00:33:14.349
you know, I remember kind of probably the worst,

00:33:14.609 --> 00:33:18.829
hardest week of parenting where my son was having

00:33:18.829 --> 00:33:21.730
kind of cascade meltdowns and I needed to go

00:33:21.730 --> 00:33:24.970
to ASDA and I had no help, no support. I thought,

00:33:24.970 --> 00:33:26.470
okay, I'm going to go in the middle of the day.

00:33:26.529 --> 00:33:29.450
It's going to be quiet. I'll put him in the trolley

00:33:29.450 --> 00:33:31.450
where he feels secure. I've got weighted blankets.

00:33:31.650 --> 00:33:34.890
I took the whole shebang. And he had the most

00:33:34.890 --> 00:33:37.529
catastrophic meltdown in Asda. He was pulling

00:33:37.529 --> 00:33:41.410
things off the shelf. I had to get security guard

00:33:41.410 --> 00:33:43.970
to help me keep the trolley upright because he

00:33:43.970 --> 00:33:46.509
was really, it was a real harrowing situation.

00:33:47.309 --> 00:33:49.569
Everyone was safe and it was totally fine in

00:33:49.569 --> 00:33:53.690
the end. But in the moment, I'm just standing

00:33:53.690 --> 00:33:55.490
there thinking, they're going to take my children

00:33:55.490 --> 00:33:59.400
away from me because I... don't feel like and

00:33:59.400 --> 00:34:02.039
I don't look like I know what I'm doing and you

00:34:02.039 --> 00:34:05.480
know you do attract opinions and looks and glances

00:34:05.480 --> 00:34:09.500
and I mean that was a really I know that is really

00:34:09.500 --> 00:34:11.920
common very few people are willing to say that

00:34:11.920 --> 00:34:15.280
and it's hard to talk about because it's true

00:34:15.280 --> 00:34:17.800
and I think every parent or foster parent I'm

00:34:17.800 --> 00:34:19.800
I've a foster parent point of view I completely

00:34:19.800 --> 00:34:21.699
resonate with with what you're talking about

00:34:22.489 --> 00:34:24.690
completely resonate and then and then also in

00:34:24.690 --> 00:34:26.949
then this shame and guilt comes on you as well

00:34:26.949 --> 00:34:33.110
for letting that in exactly this weird muddle

00:34:33.110 --> 00:34:35.949
of advocating for your child and like hating

00:34:35.949 --> 00:34:39.389
everybody that's looking but also being ashamed

00:34:39.389 --> 00:34:42.610
that you're even bothered by people looking and

00:34:42.610 --> 00:34:45.610
it's the whole thing and and feeling like you

00:34:45.610 --> 00:34:48.369
yeah why can't I cope with my own child you know

00:34:48.369 --> 00:34:52.719
there's so much going on there for a parent in

00:34:52.719 --> 00:34:56.900
that situation. What do you wish that people

00:34:56.900 --> 00:35:01.599
around you did? You know, for those that aren't

00:35:01.599 --> 00:35:04.760
in that situation, but that maybe see that in

00:35:04.760 --> 00:35:08.960
ASDA, what do you wish people did in that situation?

00:35:09.059 --> 00:35:12.059
Or do you know? Yeah, I think what would have

00:35:12.059 --> 00:35:16.059
been really helpful is if somebody, and I had

00:35:16.059 --> 00:35:17.760
to literally call the security guard over and

00:35:17.760 --> 00:35:20.019
he just did what I said. I think I kind of screamed

00:35:20.019 --> 00:35:23.420
at him. You know, for people to say, how can

00:35:23.420 --> 00:35:26.719
I help you? Do you need help? And for it to not

00:35:26.719 --> 00:35:29.519
be a, do you need help? Yeah, it's not sympathetic.

00:35:29.719 --> 00:35:32.719
It's not judgmental. It's just practical. Do

00:35:32.719 --> 00:35:34.500
you need help? Yeah. Because you might have had

00:35:34.500 --> 00:35:36.460
your handbag in the next aisle and you've had

00:35:36.460 --> 00:35:38.699
to run or you might have had to, it's like getting

00:35:38.699 --> 00:35:40.639
practical things. Actually, I've got this car.

00:35:40.940 --> 00:35:43.480
Can you go and grab his something from the car

00:35:43.480 --> 00:35:47.179
or can you close the aisle maybe? Yes, yeah.

00:35:47.760 --> 00:35:50.539
Exactly. And I think in the last 10 years, so

00:35:50.539 --> 00:35:52.880
that was quite a while ago now, but I do notice

00:35:52.880 --> 00:35:57.699
now, thanks to a gargantuan effort by other parents,

00:35:57.760 --> 00:36:01.019
families, folks like you, you know, autism advocacy,

00:36:01.420 --> 00:36:06.260
visibility. I do notice now that people are more

00:36:06.260 --> 00:36:11.619
aware that someone might be autistic or neurodiverse

00:36:11.619 --> 00:36:14.159
in public. Even if visible disabilities are,

00:36:14.280 --> 00:36:16.300
there's definitely a... better awareness isn't

00:36:16.300 --> 00:36:18.699
there better awareness now there's still judgment

00:36:18.699 --> 00:36:22.920
and looking and and inquisitiveness but it it

00:36:22.920 --> 00:36:25.440
is done with a bit more understanding as to what

00:36:25.440 --> 00:36:27.619
might be going on there rather than it being

00:36:27.619 --> 00:36:32.159
uh yeah seen as dangerous or or the parenting

00:36:32.159 --> 00:36:36.780
maybe yeah poor parenting exactly exactly yeah

00:36:36.780 --> 00:36:40.079
so generational though i feel like there's still

00:36:40.079 --> 00:36:42.000
some generation maybe that's a bit of a sweeping

00:36:42.000 --> 00:36:44.000
statement there's still that's how i found i

00:36:44.000 --> 00:36:47.639
found Under 30s, far more understanding and sympathetic

00:36:47.639 --> 00:36:52.219
with empathy than I did maybe the over 60s. And

00:36:52.219 --> 00:36:54.900
I think it's just understanding. It's just ignorance,

00:36:55.199 --> 00:36:57.639
I think, in the understanding of what's really

00:36:57.639 --> 00:37:00.500
going on there. Yeah, absolutely. Absolutely.

00:37:00.860 --> 00:37:02.639
And I mean, I was slightly joking with a friend

00:37:02.639 --> 00:37:05.280
of mine who is an adult, late diagnosed, already

00:37:05.280 --> 00:37:08.460
HD lady. She also a former teacher. She said,

00:37:08.519 --> 00:37:11.840
I wonder how many Karens that we encounter in

00:37:11.840 --> 00:37:16.219
daily life are actually. undying yeah i was like

00:37:16.219 --> 00:37:18.000
actually that would make a lot of sense being

00:37:18.000 --> 00:37:21.340
bothered by your behavior so extremely yeah maybe

00:37:21.340 --> 00:37:23.900
they're seeing you know their own guilt and their

00:37:23.900 --> 00:37:26.679
own fears in in that it's interesting question

00:37:26.679 --> 00:37:29.000
isn't it i do think lots of ignorance comes from

00:37:29.000 --> 00:37:31.800
fear of the unknown whether that's a lack of

00:37:31.800 --> 00:37:33.719
education lack of training lack of awareness

00:37:33.719 --> 00:37:36.380
lack of experience i just think lots of ignorance

00:37:36.380 --> 00:37:39.260
comes from fear of the unknown and i think the

00:37:39.260 --> 00:37:41.019
more we're talking about this and conversations

00:37:41.019 --> 00:37:44.619
can be in the main media on main news stories.

00:37:44.699 --> 00:37:48.880
I mean, thinking about the media now, I'm terrified

00:37:48.880 --> 00:37:50.659
of what's to come, but I'm really pleased it's

00:37:50.659 --> 00:37:52.519
in the main media. At least the conversation

00:37:52.519 --> 00:37:55.460
is being spoken about. Regardless of what their

00:37:55.460 --> 00:37:58.260
opinions are, at least it's out there. At least

00:37:58.260 --> 00:38:00.980
we're talking about these children, this really

00:38:00.980 --> 00:38:05.030
important community in our... society yeah at

00:38:05.030 --> 00:38:07.289
least we're discussing it you know I might not

00:38:07.289 --> 00:38:09.170
agree with what everybody thinks but at least

00:38:09.170 --> 00:38:11.889
they think something and I think what was happening

00:38:11.889 --> 00:38:14.070
decades ago is they it wouldn't even have crossed

00:38:14.070 --> 00:38:17.230
their mind to even consider this cohort of our

00:38:17.230 --> 00:38:20.230
community so there's definitely a shift there

00:38:20.230 --> 00:38:22.489
that people are talking about it they have an

00:38:22.489 --> 00:38:26.849
opinion at least absolutely I agree with you

00:38:27.210 --> 00:38:29.230
Thinking about this waiting time, so I'm just

00:38:29.230 --> 00:38:31.869
imagining a parent has stumbled across this podcast.

00:38:32.409 --> 00:38:36.929
They are in the middle of the noise on social

00:38:36.929 --> 00:38:40.170
media and research and not really knowing what's

00:38:40.170 --> 00:38:42.349
right or wrong for their child. They've just

00:38:42.349 --> 00:38:44.730
been to ASDA last week. It wasn't 10 years ago

00:38:44.730 --> 00:38:49.349
and they can completely resonate. now they have

00:38:49.349 --> 00:38:52.150
some answers but they're waiting for so many

00:38:52.150 --> 00:38:55.050
more and they've got a pile of paperwork on their

00:38:55.050 --> 00:38:58.409
dining room table that is mounting up what would

00:38:58.409 --> 00:39:01.190
what's your message for that person having been

00:39:01.190 --> 00:39:04.570
there having been there darling i would start

00:39:04.570 --> 00:39:07.750
there and just reassure them it's going to be

00:39:07.750 --> 00:39:13.190
okay might not be okay today but baby steps one

00:39:13.190 --> 00:39:17.070
thing at a time and i think to Just encourage

00:39:17.070 --> 00:39:22.690
you, that person. It's counterintuitive, but

00:39:22.690 --> 00:39:25.789
put yourself first today. Make sure you've eaten.

00:39:26.530 --> 00:39:28.690
Make sure you've had something to drink. Make

00:39:28.690 --> 00:39:30.949
sure that you're safe in your environment and

00:39:30.949 --> 00:39:34.730
just start from there. If you can secure your

00:39:34.730 --> 00:39:38.369
environment for today in whatever small way you

00:39:38.369 --> 00:39:40.809
can, just to feel like you're gaining a little

00:39:40.809 --> 00:39:44.340
bit of traction. so that you can clear some headspace,

00:39:44.480 --> 00:39:46.659
so that you can clear a little bit of the emotional

00:39:46.659 --> 00:39:50.639
trauma. Try and do that. Just start there. That's

00:39:50.639 --> 00:39:54.139
a small thing. Everything else can wait. And

00:39:54.139 --> 00:39:57.239
then I would say just be careful with what you

00:39:57.239 --> 00:39:59.579
consume because there's a lot. There's a lot

00:39:59.579 --> 00:40:03.119
out there and everybody's trying to sell to you.

00:40:04.199 --> 00:40:06.679
And ironically, the thing that you actually need,

00:40:06.780 --> 00:40:09.760
you can't afford and you're on a 18 month plus

00:40:09.760 --> 00:40:12.219
waiting list for it. And when you arrive there,

00:40:12.420 --> 00:40:18.179
it's not very helpful often. So, you know, find

00:40:18.179 --> 00:40:22.059
one voice that you trust and engage, ask them

00:40:22.059 --> 00:40:24.099
questions, then make your way forward that way.

00:40:24.199 --> 00:40:27.719
I would love to be that voice. If you come across

00:40:27.719 --> 00:40:30.400
me, come and find me. And, you know, just start

00:40:30.400 --> 00:40:32.760
there. Find one voice that you trust. Great advice.

00:40:33.719 --> 00:40:37.380
that small step and I guess when you're thinking

00:40:37.380 --> 00:40:39.000
about what your child actually needs in that

00:40:39.000 --> 00:40:41.980
moment they need you they don't need these professionals

00:40:41.980 --> 00:40:44.300
they don't need the paperwork filled out they

00:40:44.300 --> 00:40:46.639
don't need the diagnosis right there and then

00:40:46.639 --> 00:40:50.380
they need you to be present they need you to

00:40:50.380 --> 00:40:56.219
be co -regulated they need you to be as grounded

00:40:56.219 --> 00:40:59.719
as you can be and present in that moment to meet

00:40:59.719 --> 00:41:01.659
their needs in that moment I mean god I love

00:41:01.659 --> 00:41:04.840
my job for So many reasons, but I love my job

00:41:04.840 --> 00:41:07.260
because my learners, for the most part, are so

00:41:07.260 --> 00:41:11.539
in the moment, second by second. They don't care

00:41:11.539 --> 00:41:14.760
how my day's been. They show me that they do.

00:41:15.079 --> 00:41:17.579
They don't care what my morning was like or what

00:41:17.579 --> 00:41:20.579
I'm worried about for tomorrow. They just want

00:41:20.579 --> 00:41:22.980
their drink or they just want their snack or

00:41:22.980 --> 00:41:25.800
they just want a hug or they just need a bounce

00:41:25.800 --> 00:41:28.480
and they just want their toy. And it just, I

00:41:28.480 --> 00:41:31.199
love that because it just keeps me in the moment.

00:41:31.920 --> 00:41:34.579
Which is such a beautiful place to be because

00:41:34.579 --> 00:41:37.019
anxiety comes from a fear of what's to come.

00:41:37.079 --> 00:41:39.179
It isn't what's happening right, right, right

00:41:39.179 --> 00:41:41.860
this second now. And I think children are so

00:41:41.860 --> 00:41:45.000
good at that. All children are really good at

00:41:45.000 --> 00:41:49.619
being in the very present. And adults aren't.

00:41:49.920 --> 00:41:52.840
very good at being in the moment I often find

00:41:52.840 --> 00:41:55.099
that even when I'm doing these beautiful intensive

00:41:55.099 --> 00:41:58.079
interaction sessions with my children I'm trying

00:41:58.079 --> 00:42:00.860
so hard to stay in the moment in tune and so

00:42:00.860 --> 00:42:03.980
easily my brain goes to what I'm having for dinner

00:42:03.980 --> 00:42:07.059
what shopping this is like you know it's so easy

00:42:07.059 --> 00:42:09.139
for us to fall into that but children are so

00:42:09.139 --> 00:42:12.679
good at being in tune and present in the moment

00:42:12.679 --> 00:42:14.559
listening to their bodies what their bodies need

00:42:14.559 --> 00:42:17.340
in that moment what they don't need in that moment

00:42:17.340 --> 00:42:19.099
what they don't want in that moment they're so

00:42:19.099 --> 00:42:22.480
great at that so I feel like to add on to your

00:42:22.480 --> 00:42:27.699
point also for that parent is to let that go

00:42:27.699 --> 00:42:31.119
for today just be there right now your child

00:42:31.119 --> 00:42:33.519
and be whatever they need you to be and whether

00:42:33.519 --> 00:42:36.199
that's opening a bag of crisps turning on giving

00:42:36.199 --> 00:42:39.619
them a deep pressure hug or leaving them alone

00:42:39.619 --> 00:42:42.539
that's what they need you're doing your job you

00:42:42.539 --> 00:42:44.139
there's only so many hats when you spoke about

00:42:44.139 --> 00:42:45.280
hats right at the beginning yeah there's only

00:42:45.280 --> 00:42:48.480
so many hats you can wear and the most important

00:42:48.480 --> 00:42:51.460
hat is the parent hat exactly that attachment

00:42:51.460 --> 00:42:55.150
that which it sounds like you are Because parents

00:42:55.150 --> 00:42:57.329
that think they're not doing enough are definitely

00:42:57.329 --> 00:42:59.170
doing enough. Because if you weren't doing enough,

00:42:59.190 --> 00:43:01.710
you wouldn't worry about not doing enough. Exactly.

00:43:02.190 --> 00:43:04.289
You found this podcast and you're worrying about

00:43:04.289 --> 00:43:06.889
that shows that you're in the right place. You're

00:43:06.889 --> 00:43:11.110
okay. You're absolutely enough. Probably more

00:43:11.110 --> 00:43:15.590
than. More than enough. These parents are just

00:43:15.590 --> 00:43:18.449
incredible. And they haven't often chosen this

00:43:18.449 --> 00:43:21.610
role. And yet they fall so heavily and hard and

00:43:21.610 --> 00:43:25.090
deeply into. being the most incredible advocate

00:43:25.090 --> 00:43:28.510
that yeah you're you're being everything your

00:43:28.510 --> 00:43:30.849
child needs you to be right now even if you don't

00:43:30.849 --> 00:43:33.750
feel like you are just opening that bag of crisps

00:43:33.750 --> 00:43:35.710
for them and turning on their ipad and making

00:43:35.710 --> 00:43:38.590
it for sure it's charged is exactly what they

00:43:38.590 --> 00:43:41.369
need that's what they need and no guilt let it

00:43:41.369 --> 00:43:46.170
go yeah let it go gosh it's easier said than

00:43:46.170 --> 00:43:49.010
done isn't it yeah but you know i mean i'm a

00:43:49.990 --> 00:43:52.269
advocate for speaking to yourself as a parent

00:43:52.269 --> 00:43:54.130
talk to yourself as if you're your own child

00:43:54.130 --> 00:43:58.610
I had for a period of about six months the word

00:43:58.610 --> 00:44:01.710
stop saying sorry written on a piece of cardboard

00:44:01.710 --> 00:44:04.730
and just stuck up in my kitchen and it was really

00:44:04.730 --> 00:44:07.409
transformative for me just because you know we

00:44:07.409 --> 00:44:11.769
do carry a lot of needing to keep up or please

00:44:11.769 --> 00:44:14.769
or so easy to apologize for yourself and your

00:44:14.769 --> 00:44:17.639
children and your children are hearing that they're

00:44:17.639 --> 00:44:20.119
hearing that they're internalizing that something's

00:44:20.119 --> 00:44:23.380
wrong yeah that they should be sorry for something

00:44:23.380 --> 00:44:26.500
yeah yeah it's such a simple thing i mean yeah

00:44:26.500 --> 00:44:29.500
writing those mantras down is a really great

00:44:29.500 --> 00:44:33.340
idea whatever that looks like for you so your

00:44:33.340 --> 00:44:35.900
movement therapy what what does your offer look

00:44:35.900 --> 00:44:38.820
like right if someone was to contact you what

00:44:38.820 --> 00:44:41.539
could they expect from working with you i know

00:44:41.539 --> 00:44:43.500
you you offer lots of different things you right

00:44:43.500 --> 00:44:45.719
talking about A few of those things. I know we've

00:44:45.719 --> 00:44:47.719
spoken a lot about movement therapy, but, you

00:44:47.719 --> 00:44:52.019
know, what is your offer for... What do I do?

00:44:52.940 --> 00:44:55.280
Yeah, what does it look like? What are the options?

00:44:56.159 --> 00:45:00.139
So I have basically kind of just offered whatever

00:45:00.139 --> 00:45:03.119
I can because there are people who need sometimes

00:45:03.119 --> 00:45:06.380
everything that I offer at once and folks who

00:45:06.380 --> 00:45:09.420
just benefit from maybe the therapy or the parent

00:45:09.420 --> 00:45:13.980
coaching or access to resources. So I... basically

00:45:13.980 --> 00:45:16.179
now run something called the book stack parent

00:45:16.179 --> 00:45:18.239
hub and it's called that because i've read all

00:45:18.239 --> 00:45:20.860
the books so that you don't have to and within

00:45:20.860 --> 00:45:23.500
that there are three kind of pathways that i

00:45:23.500 --> 00:45:26.480
can support you so the kind of biggest pathway

00:45:26.480 --> 00:45:29.440
is root rise and learn which is where i offer

00:45:30.190 --> 00:45:32.909
one -to -one therapy the movement therapy reflex

00:45:32.909 --> 00:45:36.610
integration if you need a sensory plan or help

00:45:36.610 --> 00:45:40.050
to create a sensory map or a sensory diet and

00:45:40.050 --> 00:45:43.309
we can do that for one person one child or for

00:45:43.309 --> 00:45:46.659
your whole family which i actually do suggest

00:45:46.659 --> 00:45:49.460
is a good idea because that has a huge impact

00:45:49.460 --> 00:45:52.139
on how children in the home respond to things

00:45:52.139 --> 00:45:54.260
knowing how everybody responds to the environment

00:45:54.260 --> 00:45:56.880
so i can offer those kind of specific therapeutic

00:45:56.880 --> 00:45:59.739
things and i can also offer one -to -one parent

00:45:59.739 --> 00:46:02.280
coaching even if you just want to have a 15 minute

00:46:02.280 --> 00:46:06.519
chat and i have a lot of free things on my blog

00:46:06.519 --> 00:46:09.739
on my store in fact there's only one thing that

00:46:09.739 --> 00:46:11.980
i charge for everything else is free so please

00:46:11.980 --> 00:46:14.829
go and grab those resources I'm on Instagram,

00:46:14.989 --> 00:46:18.710
on Root, Rise and Learn. I'm on TikTok. I'm online,

00:46:19.210 --> 00:46:22.369
bookstackparenthub .co .uk. And you'll find everything

00:46:22.369 --> 00:46:26.090
there. Amazing. So, you know, go and grab a free

00:46:26.090 --> 00:46:29.469
resource. And my calls are free as well. I, you

00:46:29.469 --> 00:46:31.929
know, if you need help, I'm here. I'd rather

00:46:31.929 --> 00:46:35.469
be here than not. So, you know, come and find

00:46:35.469 --> 00:46:38.090
me. And then also there is Help My Home School,

00:46:38.190 --> 00:46:40.969
which has kind of come out of a natural progression.

00:46:41.900 --> 00:46:44.300
from the parent coaching calls to being like,

00:46:44.320 --> 00:46:47.380
well, how do I home educate children with additional

00:46:47.380 --> 00:46:51.820
needs? And, you know, now with the changes in

00:46:51.820 --> 00:46:55.199
the law surrounding home education, there's been

00:46:55.199 --> 00:46:57.320
quite a big conversation about that. And a lot

00:46:57.320 --> 00:46:59.619
of really panicked people. Don't panic. It's

00:46:59.619 --> 00:47:02.619
fine. So you can find me there, Help My Home

00:47:02.619 --> 00:47:05.400
School, which is also under the book stack. That's

00:47:05.400 --> 00:47:08.579
more specific to education choices. And it might

00:47:08.579 --> 00:47:10.960
not necessarily be homeschool or home education

00:47:10.960 --> 00:47:13.360
that you choose. It may be just having a conversation

00:47:13.360 --> 00:47:17.440
about, I need to work. How do we make this happen?

00:47:17.659 --> 00:47:20.860
Or is this the right choice? Is it maybe the

00:47:20.860 --> 00:47:23.539
right choice for a year? But then during that

00:47:23.539 --> 00:47:26.409
year, we're really working on. you know, mental

00:47:26.409 --> 00:47:29.849
health and helping children just come out of

00:47:29.849 --> 00:47:33.070
difficult, you know, school trauma situations.

00:47:33.389 --> 00:47:35.469
And then we're pivoting towards something else,

00:47:35.530 --> 00:47:37.710
you know, conversations like that around education

00:47:37.710 --> 00:47:40.610
choice. And then a little bit of whimsy, my little

00:47:40.610 --> 00:47:42.929
bit of fun is Little Labs Library. I'm really

00:47:42.929 --> 00:47:45.170
passionate about communications. Well, Jordan,

00:47:45.250 --> 00:47:47.650
that's how I found you. I'm really good. Because

00:47:47.650 --> 00:47:49.670
of my little girl, Language Delay, speaking Language

00:47:49.670 --> 00:47:52.250
Delay. So Little Labs Library is basically where

00:47:52.250 --> 00:47:56.800
I kind of offer the... curriculum -based meat

00:47:56.800 --> 00:48:00.219
and potatoes of what happens inside of my homeschool

00:48:00.219 --> 00:48:04.139
and how do I specifically adapt, particularly

00:48:04.139 --> 00:48:08.019
literacy exercises, growth development, all of

00:48:08.019 --> 00:48:11.619
those things for neurodiverse kiddos. What do

00:48:11.619 --> 00:48:14.400
I do? How does it look? And again, lots of free

00:48:14.400 --> 00:48:17.960
resources. Lots about building neurological health

00:48:17.960 --> 00:48:21.780
through reading, building character through reading

00:48:21.780 --> 00:48:25.780
in children who may miss social cues. Or, you

00:48:25.780 --> 00:48:28.539
know, PDA is a big situation in our home here.

00:48:28.619 --> 00:48:32.519
How to approach literacy. I find literacy and

00:48:32.519 --> 00:48:35.960
PDA are just problematic, but there is a way.

00:48:36.219 --> 00:48:39.059
There is a way. And lots of play -based things.

00:48:39.260 --> 00:48:41.619
So there's quite a lot there. Let me go over

00:48:41.619 --> 00:48:44.320
it again. I'm gonna well if you could send me

00:48:44.320 --> 00:48:47.239
all the links I will put them all below so if

00:48:47.239 --> 00:48:49.340
you have heard any of that that you want to join

00:48:49.340 --> 00:48:51.539
all of it or some of it you will find the link

00:48:51.539 --> 00:48:54.699
below because so much of it yeah covers so many

00:48:54.699 --> 00:48:56.579
different things that you might be needing or

00:48:56.579 --> 00:49:00.079
wanting to look more into which all sound fantastic

00:49:00.079 --> 00:49:03.260
and I don't know how you have the time to homeschool

00:49:03.260 --> 00:49:05.579
parent and do all of that but that just sounds

00:49:05.579 --> 00:49:08.000
incredible my kids are a bit off the now so it's

00:49:08.000 --> 00:49:11.389
a little okay it's great and I love ADHD for

00:49:11.389 --> 00:49:13.590
that because I feel like these things would exist

00:49:13.590 --> 00:49:17.389
without ADHD adults because when we see a need

00:49:17.389 --> 00:49:20.750
we we think outside the box and we feel it and

00:49:20.750 --> 00:49:23.329
I think that is that's what it's been so fantastic

00:49:23.329 --> 00:49:27.170
for this space is is parents that are neurodivergent

00:49:27.170 --> 00:49:29.809
and teachers that are neurodivergent seeing a

00:49:29.809 --> 00:49:31.710
need and feeling it and that's where my stuff

00:49:31.710 --> 00:49:33.469
comes from that's where your stuff comes from

00:49:33.469 --> 00:49:34.989
that's where lots of old friends and people in

00:49:34.989 --> 00:49:37.820
this podcast stuff comes from and I love that

00:49:37.820 --> 00:49:41.300
it really celebrates the neurodivergent brain

00:49:41.300 --> 00:49:45.920
in that way that we and we feel it and I love

00:49:45.920 --> 00:49:53.960
that yeah hooray so if you are a parent or teacher

00:49:53.960 --> 00:49:56.000
or other and you feel like you would benefit

00:49:56.000 --> 00:49:58.139
from seeing this stuff then the links are down

00:49:58.139 --> 00:50:01.460
below to follow Celeste in all of her different

00:50:01.460 --> 00:50:04.269
ventures so that you can learn more and join

00:50:04.269 --> 00:50:07.269
her journey and join her stuff work with her

00:50:07.269 --> 00:50:09.309
if you want to and you feel like that would be

00:50:09.309 --> 00:50:12.610
beneficial or have a call with her you know there's

00:50:12.610 --> 00:50:14.670
sounds like so many different ways that you can

00:50:14.670 --> 00:50:17.269
get involved and it it really does sound just

00:50:17.269 --> 00:50:21.309
the most fantastic and and you can see your passion

00:50:21.309 --> 00:50:23.769
for it and you can see that you've lived it it's

00:50:23.769 --> 00:50:29.300
a real live read lots of books but you can see

00:50:29.300 --> 00:50:31.500
how you're talking about it that the books are

00:50:31.500 --> 00:50:34.519
the evidence for what you're actually living

00:50:34.519 --> 00:50:37.280
and I think that's really crucial when you're

00:50:37.280 --> 00:50:40.519
working in this way but that's just just so fantastic

00:50:40.519 --> 00:50:44.519
to just to see thank you so much Celeste for

00:50:44.519 --> 00:50:48.239
thank you Jordan I will share regularly when

00:50:48.239 --> 00:50:51.260
I'm being met with DMs from parents that are

00:50:51.260 --> 00:50:55.579
in that waiting space I think yeah it's so common

00:50:55.579 --> 00:50:57.840
and like you said it's a rolling weight that

00:50:57.840 --> 00:51:01.199
so many can relate to and I think yeah your advice

00:51:01.199 --> 00:51:03.820
over that was was really wonderful so thank you

00:51:03.820 --> 00:51:08.059
for that thank you Jordan have a lovely day thank

00:51:08.059 --> 00:51:08.599
you everybody
