WEBVTT

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Hi, my name is Jordan. I am a special education

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teacher from the UK. I share my passion for everything

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communication, sensory regulation and fun lesson

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ideas for my classroom of disabled pupils aged

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4 to 11. Each week I am joined by experts in

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the field answering your questions and sharing

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our knowledge and experience working alongside

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our beautiful young people. Let's get started.

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Lovely. Hello, everybody, and welcome to the

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Sensory Classroom podcast. My name is Jordan,

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and today I am joined by Sarah, who is a parent

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and psychotherapist and a mother to an 11 -year

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-old daughter, Mia, who is dyslexic and neurodivergent.

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And we're going to talk to her about Mia and

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her own journey in parenthood, but through that

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psychotherapist lens today. Hello, Sarah. Hello,

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Jordan. Thank you for having me. Thank you so

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much for being here. I was really interested

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in your offer to come onto the podcast and to

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learn more about you as a parent and going through

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the fight of finding a suitable education for

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your daughter and all of that. And I'm sure lots

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of parents can relate to that. But through the

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psychotherapist lens, I find really interesting.

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Can you tell us a little bit more about yourself

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first, please, so that we can kind of know where

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you're coming from in all of this? Yeah, OK,

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so I was in the health and fitness industry for

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over 30 years and I used to have a gym as well.

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And I've always wanted to train as a psychotherapist

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from when I was about 20 and my own mental health.

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I was sectioned when I was 20 and I had a really

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good clinician, which was amazing. So I always

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want to be a psychotherapist. But when I was

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at school. About age nine, I showed interest

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in wanting to be a PE teacher and an English

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teacher. I was very, very good at school. And

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at the time, the teacher told me to stay in my

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own lane. And I didn't quite know what that meant.

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And also at school, unfortunately for me, at

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the time in the 70s, I was dyslexic, but I didn't

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know that. And the teachers, unfortunately, back

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then used to call me thick, used to kind of humiliate

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me in class. And that put me off academia for

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the rest of my life. And I just followed the

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journey, the path of sport. I was very good on

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the verge of becoming an international javelin

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thrower. And then I got injured. I decided I

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didn't want to do that. Trained as a PT. Did

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that for multiple years. Where I lived, unfortunately,

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there was a fire in Grenfell where I was born

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and raised. And I had friends. who I lost, and

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I had friends who had family members that were

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lost in the fire. And I remember one of my friends

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said to me, you've always wanted to be a therapist.

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Why don't you go and train and bring it back

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to the community? That's what I did. Yeah, that's

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what I did. And through my training, still I

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did not know I was dyslexic. It was only at 48

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I found out when one of the tutors said, you

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write beautifully, your essays, these are postgraduate,

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mind you, but you can't spell for shit. So my

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language and your grammar. You know, it was a

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ha ha moment because even throughout the training,

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I was struggling. I was struggling to keep up

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with the reading. I was struggling to keep up

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with the essays. And I thought it was me. I thought

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I was done. You know, all of those stories that

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my teachers told me were coming true. On reflection,

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I wasn't. I was dyslexic. And then once I found

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that out at 48, I just flew with it and I went

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on to do a master's. Wow. So what support needed

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to be in place? Because it's not just knowing,

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is it? What support did you access to enable

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you to do that? Well, what was really good, I

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got more time with my essays. I got help at my

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institution. Yeah, I got so much resources that

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it felt like. I could just fly through these

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papers. I got instruments. I got equipment to

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help me read better. I got reflected lenses and

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cards. There was so much. It opened up a whole

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new world to me, but it made me really quite

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confident. Yeah. And achieve what you could achieve,

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right? And that's the point, that it's the knowing

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and the resources and the scaffolding in place.

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to help you achieve what you need to and then

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support others as well, ultimately, because without

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all that support, you wouldn't then be there

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to support. So then let's talk about your advocacy

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then with your daughter, because you understanding

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more about yourself, I assume, has helped you

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to navigate your daughter's needs as well. Can

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you tell us a little bit about that? Well, yeah,

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my daughter's got dyslexia and it was during

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lockdown I was helping her to read and obviously

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being dyslexic myself. I was starting to identify

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similarities, what she was doing. And we went

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back to the school and the school said because

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of the lockdown, and obviously we were teaching

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her at home, to wait a short period to get her

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assessed. Because it could have just been because

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of the lockdown and catch up. But I knew, I knew

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in my heart she was dyslexic. So she got diagnosed

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in 2023, which the school were amazing at helping,

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but they had limited resources. Mia is also very,

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very creative. So she loves to sing, dance and

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act. And this is how I think, you know, she masked

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a lot of her dyslexia at school. And at the time,

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she was doing a part time class at a performing

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arts school. I can mention it, Sylvia Young.

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And, you know, she said she would like to go

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for an audition. And I was like, oh, I don't

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know about that. Not from the sort of acting

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and singing perspective, but you have to do two

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written pieces, a contemporary and a Shakespeare.

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Mia's never, never at that time read Shakespeare.

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So that was my own bias coming through, thinking

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she had dyslexia, she wouldn't be able to achieve

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it. Right. The contemporary was a lot harder

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than the Shakespeare. She literally nailed Puck

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in no more than about four hours. And I was absolutely

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blown away. And I think it's the rhythm of Shakespeare.

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Interesting. To me... I'm not dyslexic, but I

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really struggle to memorise. My memory is really

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poor. So, yeah, me trying to learn Shakespeare

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felt really impossible. So that's so interesting

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that the rhythm helped her to navigate that quite

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complex language. Believe it or not, I actually

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didn't think she would get it. I really didn't,

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because I didn't get it myself. I could read

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Shakespeare, I'll pluck. But literally within

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three, four hours, she came back to me and said,

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Mummy, I'm ready to record. And I was like...

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Really? Okay, well, let's try a first take. She

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nailed it in the first take. And since then,

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she's been reading Shakespeare. She got into

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the school. She auditioned and she got in. She

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got a place. And she's been there since September.

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For anyone who doesn't know, this is an incredibly

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prestigious school. Lots of the actors that you

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will have heard of will have been to Sylvia Young.

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So it's a very prestigious school in London,

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yeah. And, you know, some of our friends and

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family and people that know us are like, oh,

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do you want her to be a singer or a dancer and

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that's a performer? Actually, I don't think she

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wants to be that. She's actually said she wants

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to be a lawyer. But what the school does is that

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Monday to Wednesday is academia and then Thursday

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to Friday is vocational. So the week is split.

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So Mia can pay attention to the academia and

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then she can forget about that and then she can

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concentrate on her singing, dancing and acting.

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And since she's been there, I mean, I'm probably

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going to get emotional now. Mia's 10 going on

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11. And for the last probably three years, Mia

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hasn't slept properly. You know, she would get

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up two or three times in the night. She'd go

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to bed at midnight, one o 'clock in the morning,

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no matter what I put in place. And since starting

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this school and this structure, Mia goes to bed

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at 9 .30, which is as good as it's going to get

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for a neurodiverse child or for Mia at least.

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And she sleeps through. She does not get up and

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she comes home and the things she tells me, the

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academic things she's learning, Greek mythology,

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all of these things, I'm like, oh my God, she's

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actually enjoying learning. She does her homework

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independently. It's just, it's not about being

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famous and shishish and it's not that. So what's

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the difference? Is it that she, is it that her

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interests are? being validated is it that her

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peers are have the same interests as her is it

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any support and strategies in place what are

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they doing that's different that she wasn't offered

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in mainstream school well for start there's only

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11 other children in her class okay and huge

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difference very stark difference and the majority

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of the children not all of them but there's quite

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a few children with neurodiversities and it's

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embraced It's celebrated. There's no shame around

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it. She'll get up in class and she'll say, she'll

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do a speech and she can't say a word and she'll

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just turn to her peer and say, what does that

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say? The teachers are probably neurodivergent

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too or the teachers are probably dyslexic too

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because it's really common, isn't it, with dyslexia

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that it's like the creative side of your brain

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really flourishes, left side of brain thinkers,

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if you will. And lots of the teachers I can assume

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would be able to relate to Mia in a lot of ways

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that her brain works. English teachers dyslexic.

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Right. That's so cool, isn't it? That's so cool.

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And I do advocate for adults and mentors and

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any adults in children's lives to be really open

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with any diagnosis that they have, because it

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really does show the children that it isn't a

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barrier. It doesn't have to limit you. It's just

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you maybe need some more support strategies or

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a different way of doing it. in order to achieve

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that's so wonderful to hear that you found her

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school because i can only imagine like how her

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journey would have gone it's almost like a crossroads

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isn't it can i imagine how her journey would

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have gone had she still been in mainstream 30

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plus children busy um yeah just less i say it's

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advocacy and celebration of her neurodivergence

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And, you know, being in a smaller school is better

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for Mia. There's only 250 pupils as opposed to

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mainstream, which is usually 900 to 1 ,000 pupils.

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And even though she's dyslexic, we're waiting

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for an assessment for autism because I do know

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Mia's got autism. It's just a formality you have

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to go through. But I know I've kept journals.

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I've always kept journals my whole life myself,

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but I've kept a journal from 2023 up until today

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and continue about Mia. And I see how she used

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to interact at her previous school with regards

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to her peers. There was a lot of masking. There

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was a lot of her going to playdates and having

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to survey and see where she fitted in. As well,

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I don't see that at her current school. That's

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really interesting, isn't it? She obviously feels

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safe enough to be herself because it's accepted.

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Yeah, masking is really common with girls with

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autism, women with autism. They camouflage their...

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themselves to fit into different social groups

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and it can be really detrimental to their own

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mental health and to them yeah to them feeling

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feel fully feeling part of the group and scene

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and that can be really detrimental to their social

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groups but also relationships too if they're

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constantly changing themselves to be what the

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other person wants me to be it can make them

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incredibly vulnerable yeah And also at the previous

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school, because, you know, they were really good,

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but under -resourced and multiple children, 30

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plus in the class. But if Mia ever wants a pit

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stop, we call them pit stops, time out, she can

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actually remove herself from the class without

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being penalised for that or judged for that and

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take five or 10 minutes and then come back in.

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Yeah. Yeah. It's such a manageable strategy,

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isn't it? Let's talk about your journey with

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this then, because I want, I'm wondering from

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a psychotherapist lens, the family, the weight

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of a family carrying that, you know, navigating

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the ROM setting and not necessarily having a

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choice before she got her new school. What kind

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of... What happened for you? What did that feel

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like for you? And how did you navigate that?

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I mean, being a psychotherapist, I have tools

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and resources. But when I look back on some of

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my journals, it was almost like being really

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isolated, cased in a single cubicle and sort

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of trying to bang on these walls, doors to be

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let free or for someone to hear me. And, you

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know, as I said, we're waiting for an assessment,

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but you know. You know your child and it's almost

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like you have to jump through so many hoops for

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so long for them to tell you what's innate in

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you that you know, especially when you've been

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keeping journals. Yeah. Yeah. The evidence is

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there. The evidence is clear. And still yet they

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ask you to wait and monitor and report. Yeah,

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it's frustrating. And what tools, if there's

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parents listening here that are in exactly that

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space, in that cubicle, banging on those walls

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and relentless cubicles as well. You just get

00:13:15.309 --> 00:13:16.950
through one door and then you find yourself in

00:13:16.950 --> 00:13:19.889
another cubicle. It's relentless. Are there any

00:13:19.889 --> 00:13:22.470
strategies or support systems that you could

00:13:22.470 --> 00:13:25.649
suggest that could help them? Actually, yeah,

00:13:25.710 --> 00:13:28.820
I mean. Given my time, I've kept a journal and

00:13:28.820 --> 00:13:31.519
I've taken strands from that journal and I've

00:13:31.519 --> 00:13:34.139
sort of compiled a self -care guide for parents

00:13:34.139 --> 00:13:36.799
with special needs because within my practice,

00:13:36.860 --> 00:13:40.279
I do have a lot of parents who come to me with

00:13:40.279 --> 00:13:42.960
children who have special needs and I also have

00:13:42.960 --> 00:13:44.980
a lot of parents themselves who have special

00:13:44.980 --> 00:13:47.980
needs. So you have that sort of like a special

00:13:47.980 --> 00:13:50.600
needs child and you also have special needs hitting

00:13:50.600 --> 00:13:53.870
each other as well, which is another layer. So

00:13:53.870 --> 00:13:57.429
for me, I've sort of compiled sort of top 10

00:13:57.429 --> 00:14:01.470
things to think about. And one is your mental

00:14:01.470 --> 00:14:04.950
health and protecting your mental health. And

00:14:04.950 --> 00:14:07.789
for me, it was letting go of being a perfect

00:14:07.789 --> 00:14:13.610
parent. Wow. Yeah. Wow. That's powerful. So often

00:14:13.610 --> 00:14:15.350
we need to be everybody. We need to wear every

00:14:15.350 --> 00:14:18.690
hat. We need to. be everything that everybody

00:14:18.690 --> 00:14:22.470
else is failing our child without just recognizing

00:14:22.470 --> 00:14:26.230
that we're already everything they need us to

00:14:26.230 --> 00:14:29.230
be. That is so powerful. Yeah. And there's a

00:14:29.230 --> 00:14:32.549
great clinician, a psychotherapist, Donald Winnicott,

00:14:32.610 --> 00:14:36.690
that says The Good Enough Parent, which is a

00:14:36.690 --> 00:14:39.250
really good book to read. So, you know, I've

00:14:39.250 --> 00:14:41.049
learned I've had good days and bad days. I'll

00:14:41.049 --> 00:14:43.529
have good days and bad days. I'll feel frustrated.

00:14:44.409 --> 00:14:48.529
I feel I don't have all the answers. And that's

00:14:48.529 --> 00:14:52.629
okay. I ask for help. I have my own therapist

00:14:52.629 --> 00:14:55.730
for this reason. I am a therapist, but I also

00:14:55.730 --> 00:14:58.129
have my own therapist for this reason. So I will

00:14:58.129 --> 00:15:01.970
always ask for help. Yeah, that's a great first

00:15:01.970 --> 00:15:07.029
strategy. Acceptance. Accept what you can do

00:15:07.029 --> 00:15:10.309
that is realistic. And you're probably doing

00:15:10.309 --> 00:15:14.590
a lot. Yeah. Amazing. What else is on the list?

00:15:15.179 --> 00:15:17.940
Learn about your child's needs, but I would,

00:15:18.059 --> 00:15:20.860
from my own experience, not overwhelm yourself.

00:15:21.740 --> 00:15:25.139
Because obviously I would delve deep into manuals

00:15:25.139 --> 00:15:28.279
and books and go online and listen to all of

00:15:28.279 --> 00:15:31.019
that. And it can be quite overwhelming. And I

00:15:31.019 --> 00:15:34.440
would say, you know your child. Yeah. You know

00:15:34.440 --> 00:15:37.340
your child. Yeah, you're the expert in them.

00:15:37.620 --> 00:15:41.740
Yeah. Yeah. Yeah. Yeah. And even when you're

00:15:41.740 --> 00:15:45.419
told your child is dyslexic or has autism or

00:15:45.419 --> 00:15:49.019
ADHD, it's vast. It's not the same for everybody.

00:15:49.860 --> 00:15:54.500
So I take what Mia has and I adapt to our nuclear

00:15:54.500 --> 00:15:57.480
family, our living arrangements, our relationship.

00:15:58.460 --> 00:16:00.980
Yeah. Yeah, and a lot of those strategies that

00:16:00.980 --> 00:16:02.460
work, you've probably already found them even

00:16:02.460 --> 00:16:04.139
though you didn't know why or how they work.

00:16:04.990 --> 00:16:07.470
You're probably already doing it. I see parents

00:16:07.470 --> 00:16:10.309
a lot that are naturally doing the things that

00:16:10.309 --> 00:16:13.090
I support parents to do because they've found

00:16:13.090 --> 00:16:15.370
their way, because they're the expert in their

00:16:15.370 --> 00:16:17.610
child and what their child needs. It's a really

00:16:17.610 --> 00:16:20.769
cool point. Yeah. And I would say find your people,

00:16:20.909 --> 00:16:24.830
find your tribe, people you can connect to, other

00:16:24.830 --> 00:16:29.210
parents, support groups, podcasts like this.

00:16:30.009 --> 00:16:32.789
So important to find your tribe and your allies.

00:16:33.250 --> 00:16:35.330
Yeah. Because it can be lonely and isolating.

00:16:35.809 --> 00:16:37.490
At least there's other people in the cubicle

00:16:37.490 --> 00:16:40.909
with you then. Yeah, for sure. For sure. And

00:16:40.909 --> 00:16:45.009
also just take time. Mia has pit stops, but so

00:16:45.009 --> 00:16:51.190
do I. Yeah. So to have a coffee, a tea, just

00:16:51.190 --> 00:16:55.409
sit and do nothing, which is something. Yeah.

00:16:55.409 --> 00:16:57.350
And know that that's enough. That's still part

00:16:57.350 --> 00:17:00.669
of the support of your child. It's not selfish.

00:17:01.570 --> 00:17:05.450
Yeah. No. Self -care, a lot of mums particularly,

00:17:05.690 --> 00:17:08.730
but dads as well, think self -care is being selfish.

00:17:09.450 --> 00:17:12.990
But I always say, if the pot is empty and it's

00:17:12.990 --> 00:17:15.450
not replenished, how can anyone dip into it?

00:17:16.549 --> 00:17:19.289
Yeah, it's that co -regulation, isn't it? How

00:17:19.289 --> 00:17:22.170
could they be regulated if you're not regulated?

00:17:23.230 --> 00:17:25.990
It works both ways, doesn't it? So you helping

00:17:25.990 --> 00:17:29.569
yourself helps them. It's allowing that. It's

00:17:29.569 --> 00:17:35.519
giving yourself grace. in that yeah because also

00:17:35.519 --> 00:17:38.480
more often than not the parents of neurodivergent

00:17:38.480 --> 00:17:40.779
children are neurodivergent themselves whether

00:17:40.779 --> 00:17:43.119
you know it or not and you need those breaks

00:17:43.119 --> 00:17:46.480
it's crucial to your whole psyche and survival

00:17:46.480 --> 00:17:51.680
that you take that regulation yeah and also just

00:17:51.680 --> 00:17:54.299
you know talk about your hard feelings and you

00:17:54.299 --> 00:17:58.900
know with a therapist or a close friend or a

00:17:58.900 --> 00:18:02.500
support group or just to yourself in a journal.

00:18:03.420 --> 00:18:06.519
Sometimes allowing yourself to say the things

00:18:06.519 --> 00:18:09.680
you feel releases something. It's okay to feel

00:18:09.680 --> 00:18:13.960
guilty. Yeah, it's okay to feel sad, to feel

00:18:13.960 --> 00:18:18.500
angry and annoyed at the situation. Yeah, it's

00:18:18.500 --> 00:18:21.099
okay. And I think to allow yourself to feel that

00:18:21.099 --> 00:18:24.019
and speak that in whatever shape or form will

00:18:24.019 --> 00:18:26.700
release something, lifts go of something. Yeah.

00:18:27.319 --> 00:18:30.180
And then I wonder if that will help you to use

00:18:30.180 --> 00:18:36.940
that as fuel to help, you know, continue fighting.

00:18:37.259 --> 00:18:41.099
We could let it out to safe people in a safe

00:18:41.099 --> 00:18:43.599
way, in a way that feels safe for you rather

00:18:43.599 --> 00:18:45.240
than, you know, it's going to come out somewhere,

00:18:45.359 --> 00:18:49.359
isn't it? So rather than to your caseworker who

00:18:49.359 --> 00:18:52.329
then isn't going to help your case at all. You

00:18:52.329 --> 00:18:54.109
can let it out to a friend in a safe environment,

00:18:54.250 --> 00:18:57.190
non -judgmental, and receive what you need to

00:18:57.190 --> 00:19:00.170
receive after that to then use that as fuel to

00:19:00.170 --> 00:19:02.869
fight the caseworker and advocate for your child.

00:19:03.730 --> 00:19:08.309
Absolutely. Absolutely. And advocate and, you

00:19:08.309 --> 00:19:11.049
know, I've learned also now not to fight every

00:19:11.049 --> 00:19:14.930
battle, to choose my battles wisely. Yeah, so

00:19:14.930 --> 00:19:20.569
to recognise what to let go of right now. Not

00:19:20.569 --> 00:19:24.009
yet, maybe. What's the biggest thing for your

00:19:24.009 --> 00:19:27.650
child? Yeah. And just to choose wisely what's

00:19:27.650 --> 00:19:30.809
most important and to get help and support in

00:19:30.809 --> 00:19:33.049
that battle. You don't have to do it solely by

00:19:33.049 --> 00:19:35.970
yourself. Right. There are many organisations

00:19:35.970 --> 00:19:38.470
for people that can't necessarily advocate for

00:19:38.470 --> 00:19:41.970
themselves or can't maybe articulate or write,

00:19:42.049 --> 00:19:44.589
especially if they're neurodivergent, etc. There's

00:19:44.589 --> 00:19:47.269
so many resources that we have that can compile

00:19:47.269 --> 00:19:50.309
an email that you can send out. to whoever you

00:19:50.309 --> 00:19:54.029
need to send out yeah yeah there's been two organizations

00:19:54.029 --> 00:19:57.109
on this podcast actually so if that if that sounds

00:19:57.109 --> 00:19:59.890
like you and that's a huge limit to you um a

00:19:59.890 --> 00:20:02.769
disability social worker can help you or kate

00:20:02.769 --> 00:20:06.829
or um an early help hub support can help you

00:20:06.829 --> 00:20:09.809
or there's also sos cn that have been on this

00:20:09.809 --> 00:20:11.269
podcast that can help you and there's also a

00:20:11.269 --> 00:20:13.250
lawyer who specializes in hdps that's been on

00:20:13.250 --> 00:20:15.369
this podcast that can also help you so and they

00:20:15.369 --> 00:20:19.519
all offer free or affordable You know, it doesn't

00:20:19.519 --> 00:20:21.839
have to be a postcode lottery. It doesn't have

00:20:21.839 --> 00:20:24.400
to be only the elite get this support. There

00:20:24.400 --> 00:20:26.140
are loads of amazing charities out there that

00:20:26.140 --> 00:20:28.559
are doing this really important work so that

00:20:28.559 --> 00:20:30.779
you can advocate for your child with the tools

00:20:30.779 --> 00:20:35.200
kit that you need to continue. Yeah. And also

00:20:35.200 --> 00:20:38.559
I found, remember, I'm not just a carer. I mean,

00:20:38.579 --> 00:20:40.880
we're carers anyway, just as parents, but there's

00:20:40.880 --> 00:20:43.140
another layer when you have a child with neurodiversity

00:20:43.140 --> 00:20:46.180
and you can, your identity sometimes for me was

00:20:46.180 --> 00:20:48.680
all wrapped up in that. and I had to remember

00:20:48.680 --> 00:20:52.920
I'm Sarah you know I'm a 53 year old woman with

00:20:52.920 --> 00:20:55.500
needs and desires and passions and interests

00:20:55.500 --> 00:20:59.779
of my own and to remember my identity because

00:20:59.779 --> 00:21:02.799
it did for a while get lost yeah I see that I

00:21:02.799 --> 00:21:05.640
see that in a lot of friends yeah how do you

00:21:05.640 --> 00:21:09.440
find that on that you know how do you navigate

00:21:09.440 --> 00:21:14.759
finding yourself again within this advocacy it's

00:21:14.759 --> 00:21:19.269
remembering At the core of me, you know, my hopes,

00:21:19.430 --> 00:21:22.230
my dreams, my desires, all the things I want

00:21:22.230 --> 00:21:26.930
for Mia, my loves to celebrate my own wins and

00:21:26.930 --> 00:21:29.710
gains, all the things I'm advocating for Mia

00:21:29.710 --> 00:21:32.450
and to try and do those occasionally or just

00:21:32.450 --> 00:21:36.869
acknowledge them. Yeah. Yeah. So true. Yeah,

00:21:36.930 --> 00:21:40.049
I guess that would also show Mia a great model

00:21:40.049 --> 00:21:43.470
as well. So even though you're doing it for yourself,

00:21:43.589 --> 00:21:46.660
you're also doing it for her too. Yeah. Yeah.

00:21:46.859 --> 00:21:50.700
Or you can justify it. Yeah. And just, you know,

00:21:50.700 --> 00:21:53.839
also just to celebrate the small wins, you know,

00:21:53.839 --> 00:21:55.980
literally waking up in the morning and me is

00:21:55.980 --> 00:21:59.779
refreshed and, hello, mummy, and gets up and

00:21:59.779 --> 00:22:01.420
goes straight to the bathroom and does everything

00:22:01.420 --> 00:22:03.980
that's required of her without me having to ask

00:22:03.980 --> 00:22:09.519
is a massive win. Is a massive win. So celebrating

00:22:09.519 --> 00:22:12.609
those wins. Yeah, I guess that comes back to

00:22:12.609 --> 00:22:14.390
having a tribe as well, that you can celebrate

00:22:14.390 --> 00:22:16.829
those wins with the people that understand how

00:22:16.829 --> 00:22:20.569
big those little things are. Yeah, for sure.

00:22:20.670 --> 00:22:23.670
For sure. So, yeah, they're kind of my top tips.

00:22:23.890 --> 00:22:26.150
I have a daily self -care routine and checklist

00:22:26.150 --> 00:22:28.869
that I go through myself, which I always, you

00:22:28.869 --> 00:22:31.150
know, advocate for parents to do. You know, I

00:22:31.150 --> 00:22:32.609
try when I get up in the morning not to look

00:22:32.609 --> 00:22:34.250
at my phone and that's the first thing I don't

00:22:34.250 --> 00:22:37.230
want to do. I try to have a cup of tea and have

00:22:37.230 --> 00:22:40.039
a quiet moment before the day starts. And just

00:22:40.039 --> 00:22:42.480
pick one thing out of the day that I can focus

00:22:42.480 --> 00:22:45.759
on, big or small. Achieve it or not, just one

00:22:45.759 --> 00:22:49.359
thing. The multiple things usually a mum with

00:22:49.359 --> 00:22:52.240
a neurodiverse or dad has to think about. And

00:22:52.240 --> 00:22:54.700
to be in the moment. I've realised over the last

00:22:54.700 --> 00:22:57.279
two years, just really trying to stay in the

00:22:57.279 --> 00:23:00.839
moment. Yeah, I see that as a teacher actually.

00:23:00.980 --> 00:23:03.500
It's something really special with my autistic

00:23:03.500 --> 00:23:06.579
learners in particular. The high support needs

00:23:06.579 --> 00:23:09.759
autistic learners are always in the present moment.

00:23:10.019 --> 00:23:13.240
They're so reactive to what's in the now. And

00:23:13.240 --> 00:23:16.640
it's really beautiful to sit with them in that.

00:23:16.720 --> 00:23:18.920
And because they're in no rush to like, I don't

00:23:18.920 --> 00:23:20.380
know, sometimes get on with the next thing because

00:23:20.380 --> 00:23:22.480
they're looking through the dappled light in

00:23:22.480 --> 00:23:24.279
the trees or they're looking at their hand or

00:23:24.279 --> 00:23:26.500
they're really enjoying stimming with a ribbon.

00:23:26.519 --> 00:23:28.940
And they're fully in that moment, embracing the

00:23:28.940 --> 00:23:31.640
beauty of that moment. And it's really, it's

00:23:31.640 --> 00:23:35.690
such a great excuse as. a supporting adult to

00:23:35.690 --> 00:23:38.269
follow their lead with that and think do you

00:23:38.269 --> 00:23:41.230
know what yeah those shadows are beautiful or

00:23:41.230 --> 00:23:44.549
that moon is beautiful or yeah this bath water

00:23:44.549 --> 00:23:48.150
is so fun and rather than constantly thinking

00:23:48.150 --> 00:23:50.210
about what's next what's next what's next just

00:23:50.210 --> 00:23:55.170
take a pause and be led by them is the best part

00:23:55.170 --> 00:23:58.309
of my job that I get to call that my job, to

00:23:58.309 --> 00:24:01.869
be able to be led by them and take that pause

00:24:01.869 --> 00:24:04.670
and to actually look around me. Because so often

00:24:04.670 --> 00:24:10.670
we look, but we don't see. And to just see the

00:24:10.670 --> 00:24:13.250
beauty in the world. One of my parents said,

00:24:13.309 --> 00:24:15.210
oh, sorry, we're late today because we had to

00:24:15.210 --> 00:24:18.410
watch a bug cross the road and it took like half

00:24:18.410 --> 00:24:21.500
an hour. I think there is so much beauty in the

00:24:21.500 --> 00:24:23.960
world that we miss because we're always so in

00:24:23.960 --> 00:24:25.819
a rush. We're always thinking like, what's next?

00:24:25.839 --> 00:24:28.480
What's next? What's next? And so often our high

00:24:28.480 --> 00:24:31.599
support needs learners don't do that, which can

00:24:31.599 --> 00:24:33.039
be frustrating when you're the adult trying to

00:24:33.039 --> 00:24:35.319
get them somewhere on time. Also, there is so

00:24:35.319 --> 00:24:38.200
much beauty in that. Yeah. And the thing as a

00:24:38.200 --> 00:24:40.960
parent, when you're advocating and you can juggle

00:24:40.960 --> 00:24:42.980
looking after them sometimes and be like, no,

00:24:43.059 --> 00:24:46.359
this is what. beyond all the advocating and the

00:24:46.359 --> 00:24:49.440
letters. And this is actually what they need.

00:24:49.579 --> 00:24:52.440
It's really helping. Yeah, I guess. Because the

00:24:52.440 --> 00:24:54.799
long -term goal in your head is thinking, well,

00:24:54.859 --> 00:24:56.700
I need to find the right school and I need to

00:24:56.700 --> 00:24:58.640
finish that letter. I need to apply for this

00:24:58.640 --> 00:25:00.579
funding and I need to sort out the AAC. And oh

00:25:00.579 --> 00:25:02.160
my God, I haven't even printed those symbols

00:25:02.160 --> 00:25:04.299
yet. And I need to, like, that's where our heads

00:25:04.299 --> 00:25:07.059
are at. But actually the child just wants...

00:25:07.240 --> 00:25:09.759
a cuddle or they want their tv program on or

00:25:09.759 --> 00:25:11.319
they need their weighted blanket or they want

00:25:11.319 --> 00:25:13.619
their chewy or they want their routine or they

00:25:13.619 --> 00:25:16.660
want some toast and actually bringing yourself

00:25:16.660 --> 00:25:18.900
down to the current moment and what you what

00:25:18.900 --> 00:25:22.400
they need then and giving them that is also great

00:25:22.400 --> 00:25:25.609
that is also advocacy work isn't it One hundred

00:25:25.609 --> 00:25:27.349
percent. I mean, it was only, I think it was

00:25:27.349 --> 00:25:30.710
a few months ago, you know, I was knee high in

00:25:30.710 --> 00:25:33.750
paperwork, process notes, you know, trying to

00:25:33.750 --> 00:25:36.190
write grant applications. And it was about sort

00:25:36.190 --> 00:25:38.349
of 8 .30 at night and Mia wanted to go out in

00:25:38.349 --> 00:25:41.349
our pyjamas to go sit on the bench. And I don't

00:25:41.349 --> 00:25:43.990
know really what she wanted to do. She wanted

00:25:43.990 --> 00:25:45.890
to go sit on the bench, take her tap shoes and

00:25:45.890 --> 00:25:48.089
just show me routine. And I literally caught

00:25:48.089 --> 00:25:51.470
myself being like, no, I'm busy. But then I was

00:25:51.470 --> 00:25:54.809
like, no, actually. This is what I'm doing this

00:25:54.809 --> 00:25:58.490
for. Right. So, you know, I had to go outside

00:25:58.490 --> 00:26:01.549
and fix my hair and put my slippers on and sit

00:26:01.549 --> 00:26:03.450
on the bench, which worked out to be like 10,

00:26:03.470 --> 00:26:05.569
15 minutes. But I remember that and I'll always

00:26:05.569 --> 00:26:07.670
remember that, is that that's what she needed

00:26:07.670 --> 00:26:09.750
in the moment. This is what I'm doing all of

00:26:09.750 --> 00:26:12.869
this for. Absolutely. It's so easy to lose sight

00:26:12.869 --> 00:26:16.029
of that, isn't it? Yeah. For sure. For sure.

00:26:16.430 --> 00:26:21.150
That is such great advice. What changes would

00:26:21.150 --> 00:26:26.819
you want to see? in these systems that are set

00:26:26.819 --> 00:26:31.039
up? I mean, like you said, the school were brilliant,

00:26:31.099 --> 00:26:33.019
they just didn't have the resources. What changes

00:26:33.019 --> 00:26:35.380
do you want to see in order to support all children?

00:26:35.460 --> 00:26:37.599
Because not all children can go to a fantastic

00:26:37.599 --> 00:26:41.960
performing arts school. What needs to happen

00:26:41.960 --> 00:26:45.299
in order for all children to thrive and parents

00:26:45.299 --> 00:26:50.220
to thrive? I think we need to look at our schooling

00:26:50.220 --> 00:26:53.950
system. It's very classic academic. And, you

00:26:53.950 --> 00:26:56.670
know, academia is so important, but also the

00:26:56.670 --> 00:26:59.069
arts. I mean, the arts have been lost, absolutely

00:26:59.069 --> 00:27:02.289
lost, forgotten about in school. And I think

00:27:02.289 --> 00:27:04.190
we need to bring the arts back in and we need

00:27:04.190 --> 00:27:07.210
to think about how we teach our children, regardless

00:27:07.210 --> 00:27:10.710
if they have a neurodiversity or not. All children

00:27:10.710 --> 00:27:13.190
learn very differently. Everyone has a special

00:27:13.190 --> 00:27:17.349
niche, something. And we need to start to explore

00:27:17.349 --> 00:27:19.349
that in our school, in our system, our curriculum

00:27:19.349 --> 00:27:22.240
and academia and what that looks like. Yeah,

00:27:22.259 --> 00:27:24.180
I couldn't agree more. I couldn't agree more.

00:27:24.420 --> 00:27:27.099
There is so much that comes from the creative

00:27:27.099 --> 00:27:29.920
arts. I mean, I am a huge advocate in creative

00:27:29.920 --> 00:27:33.299
arts. My degree was in acting and my A -levels

00:27:33.299 --> 00:27:35.859
are in music, dance, drama and performing arts.

00:27:35.980 --> 00:27:38.339
So like I am a very creative arts person and

00:27:38.339 --> 00:27:40.799
it's never hindered me. It's helped me to go

00:27:40.799 --> 00:27:43.319
through interviews. It's helped me advocate for

00:27:43.319 --> 00:27:45.920
myself. It's helped me do this kind of stuff,

00:27:45.960 --> 00:27:49.039
this advocacy work. It's helped me to communicate

00:27:49.039 --> 00:27:52.880
with others about my advocacy work, you know,

00:27:52.900 --> 00:27:55.680
it's never closed doors. We even forget the acting

00:27:55.680 --> 00:27:58.099
and dance, you know, it's that confidence, it's

00:27:58.099 --> 00:28:00.680
that self -esteem, it's being able to articulate

00:28:00.680 --> 00:28:02.779
yourself, it's being able to relate to others,

00:28:03.039 --> 00:28:05.039
put yourself in somebody else's shoes and see

00:28:05.039 --> 00:28:07.900
how they feel, that empathy. There is so much

00:28:07.900 --> 00:28:11.079
important work with creative arts. I mean, there's

00:28:11.079 --> 00:28:14.720
a reason why back in the caves thousands of years

00:28:14.720 --> 00:28:20.359
ago that we had music and art. Even though we

00:28:20.359 --> 00:28:22.660
were in survival mode, me, Rick and Art were

00:28:22.660 --> 00:28:24.799
there because they are fundamental to our whole

00:28:24.799 --> 00:28:27.380
human makeup. They're really important to us.

00:28:27.440 --> 00:28:29.099
And yeah, we are losing sight of that in schools

00:28:29.099 --> 00:28:33.019
and it's a shame. Because no children will benefit.

00:28:33.259 --> 00:28:35.779
All children, arguably. All children will benefit,

00:28:35.940 --> 00:28:37.559
regardless if they're neurodiverse or not. I

00:28:37.559 --> 00:28:39.279
mean, if you just look at music and you look

00:28:39.279 --> 00:28:42.279
at my son likes to listen to urban and hip hop

00:28:42.279 --> 00:28:46.099
music. And, you know, it's the poetry. They're

00:28:46.099 --> 00:28:49.660
genius, the way they put... syllables and words

00:28:49.660 --> 00:28:53.779
and phrases together. You know, as old people,

00:28:53.779 --> 00:28:56.160
we look at it, oh no, that music's too loud and

00:28:56.160 --> 00:28:58.519
it's fierce. But if you sit and listen to some

00:28:58.519 --> 00:29:01.579
of these artists, absolutely brilliant. Yeah.

00:29:02.099 --> 00:29:05.519
Yeah. And great way to express yourself and explore

00:29:05.519 --> 00:29:07.299
these emotions. You know, we're talking about,

00:29:07.299 --> 00:29:09.700
you know, young men who aren't able to express

00:29:09.700 --> 00:29:12.140
themselves safely or support, you know, there's

00:29:12.140 --> 00:29:15.359
such poor mental health around males. And I wonder

00:29:15.359 --> 00:29:18.000
if... That would also support, you know, if they

00:29:18.000 --> 00:29:20.380
had a way to openly express themselves through

00:29:20.380 --> 00:29:24.000
the arts, might help and support them in that.

00:29:24.279 --> 00:29:27.539
Even in dance, from the oldest of time, we danced

00:29:27.539 --> 00:29:31.059
in conflict, we danced in battle. You know, if

00:29:31.059 --> 00:29:33.140
you take it right back to Brazilian slavery,

00:29:33.420 --> 00:29:35.259
this is how they danced to inform each other

00:29:35.259 --> 00:29:39.140
of danger. To speak and connect, communicate.

00:29:40.200 --> 00:29:43.450
Yeah, it's so part of art, isn't it? So important.

00:29:43.589 --> 00:29:46.130
Yeah, I am a huge advocate for that. I completely

00:29:46.130 --> 00:29:50.150
agree. And I guess teachers are controlled by

00:29:50.150 --> 00:29:52.789
the curriculum given by the government. But there

00:29:52.789 --> 00:29:56.009
is still there is still space for creativity.

00:29:56.349 --> 00:29:58.650
Yes, you have your English and maths and science

00:29:58.650 --> 00:30:03.329
topics to cover. But if we just think a little

00:30:03.329 --> 00:30:07.069
bit more creatively, we can infuse the creative

00:30:07.069 --> 00:30:09.730
arts through everything we do. I suppose it just

00:30:09.730 --> 00:30:12.859
takes a little bit more. thought thinking outside

00:30:12.859 --> 00:30:15.319
the box to enable us you know yes we might not

00:30:15.319 --> 00:30:17.519
have art on our timetable we might spend one

00:30:17.519 --> 00:30:21.599
art week every year yeah but we can infuse it

00:30:21.599 --> 00:30:24.960
into everything we do to in order to reach all

00:30:24.960 --> 00:30:28.559
peoples I mean if we can't pull it in the classroom

00:30:28.559 --> 00:30:31.920
we can certainly pull it on a tree to the classroom

00:30:31.920 --> 00:30:34.859
you know I sort of advocated to my daughter's

00:30:34.859 --> 00:30:36.940
previous school you know in the playground at

00:30:36.940 --> 00:30:39.579
break time why can't there be music You know,

00:30:39.599 --> 00:30:41.599
when we're going into class, why can't the teacher

00:30:41.599 --> 00:30:44.440
have music on so people can enter into class

00:30:44.440 --> 00:30:47.859
how they want to, how they choose? Why can't

00:30:47.859 --> 00:30:50.539
they have a poem or phrase they say as they enter

00:30:50.539 --> 00:30:53.599
or they leave? In the dinner halls, why can't

00:30:53.599 --> 00:30:55.440
we do a fame where we can dance in the dinner

00:30:55.440 --> 00:30:59.420
halls? Yeah, assembly, you know. Please. Yeah,

00:30:59.440 --> 00:31:03.180
yeah, it is. It's about, it comes from teachers

00:31:03.180 --> 00:31:06.809
first, doesn't it? and us advocating for that

00:31:06.809 --> 00:31:09.529
with with those in power because they don't control

00:31:09.529 --> 00:31:13.009
everything we do not yet we do still have that

00:31:13.009 --> 00:31:16.609
flexibility to be able to be um think creatively

00:31:16.609 --> 00:31:20.930
um yeah I love that so much as far as talking

00:31:20.930 --> 00:31:24.349
about Mia and her schooling I know you are you've

00:31:24.349 --> 00:31:26.690
got a campaign right now would you like to tell

00:31:26.690 --> 00:31:28.450
us a little bit more about that to share yeah

00:31:28.450 --> 00:31:30.490
so obviously Mia goes to an independent school

00:31:30.490 --> 00:31:34.049
and Sylvia Young and you know the fees are 20

00:31:34.049 --> 00:31:39.450
,000 a year. So I'm a single mum of two and they're

00:31:39.450 --> 00:31:42.849
a lot. So I've started a crowdfunding page, which

00:31:42.849 --> 00:31:46.890
has been really wonderful with regards to supporting

00:31:46.890 --> 00:31:48.509
Mia because it's more than just a performing

00:31:48.509 --> 00:31:50.809
arts school. This is an environment for Mia.

00:31:50.930 --> 00:31:53.829
She will thrive. Yeah. As a young woman, she'll

00:31:53.829 --> 00:31:56.730
come out with so many resources and skills and

00:31:56.730 --> 00:32:00.289
confidence. And it's so good for her emotional

00:32:00.289 --> 00:32:03.500
state and physical state. Not just the academia

00:32:03.500 --> 00:32:06.200
and the dancing and acting side. Mia, this suits

00:32:06.200 --> 00:32:09.460
her. It fits like a glove. And she's so much

00:32:09.460 --> 00:32:12.160
happier. Even her eczema. Mia used to have eczema,

00:32:12.279 --> 00:32:15.599
which was medicated by the doctors. She no longer

00:32:15.599 --> 00:32:18.940
has eczema. It's just, if I didn't have my journals

00:32:18.940 --> 00:32:22.700
to track this, I myself would be thinking, am

00:32:22.700 --> 00:32:26.759
I making this up? Is this not real? But she doesn't

00:32:26.759 --> 00:32:32.500
have eczema anymore. Her body is better. inside

00:32:32.500 --> 00:32:36.380
and out yeah it's healed yeah i mean she skips

00:32:36.380 --> 00:32:41.640
to school she literally skips into school there's

00:32:41.640 --> 00:32:45.039
no option she has to be there what age what age

00:32:45.039 --> 00:32:47.960
can she be there until to the end to end of her

00:32:47.960 --> 00:32:51.099
journey to year 11 wow it's a lot of fundraising

00:32:51.099 --> 00:32:54.779
to do so if you have heard sarah's story about

00:32:54.779 --> 00:32:57.279
mia and would like to support in any way you

00:32:57.279 --> 00:33:01.430
can please head to mia's bright future dot c

00:33:01.430 --> 00:33:04.890
a r r d dot co that's me as bright future dot

00:33:04.890 --> 00:33:07.650
c a r r d dot co i'll leave that in the description

00:33:07.650 --> 00:33:10.809
below if you want to support sarah if this story

00:33:10.809 --> 00:33:13.730
has resonated with you i know sarah has shared

00:33:13.730 --> 00:33:17.609
such great wisdom over navigating parenthood

00:33:17.609 --> 00:33:19.609
with me i don't first charge day and if that

00:33:19.609 --> 00:33:21.589
has meant something to you then yeah i'd love

00:33:21.589 --> 00:33:24.130
you to pay it forward and support sarah and support

00:33:24.130 --> 00:33:26.069
a friend that's maybe in that same position share

00:33:26.069 --> 00:33:28.650
this podcast with them and share these tips because

00:33:28.650 --> 00:33:32.049
we're all better together Yeah. And I think,

00:33:32.049 --> 00:33:35.670
you know, beyond Mia, my idea now is beyond Mia

00:33:35.670 --> 00:33:37.950
to fundraise for Mia, but she's going to continue

00:33:37.950 --> 00:33:41.109
to stay there, but to fundraise, possibly set

00:33:41.109 --> 00:33:43.910
up an organisation or foundation for other children,

00:33:43.970 --> 00:33:46.910
not just within arts, but any sort of space,

00:33:47.190 --> 00:33:50.750
part -time or full -time, that they need. That's

00:33:50.750 --> 00:33:53.359
fabulous. I love that. Thank you so much, Sarah,

00:33:53.440 --> 00:33:56.240
for joining me. It's been an absolute joy and

00:33:56.240 --> 00:33:59.539
really, really useful tips that are actionable.

00:33:59.599 --> 00:34:02.319
Yeah, that parents listening and teachers listening

00:34:02.319 --> 00:34:05.599
can take and use right away. So thank you so

00:34:05.599 --> 00:34:07.680
much for that. And I wish you and Mia all the

00:34:07.680 --> 00:34:10.420
best in her bright future. Thank you, Gorda.

00:34:10.420 --> 00:34:11.599
Thank you so much. Thank you.
