WEBVTT

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Hi, my name is Jordan. I am a special education

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teacher from the UK. I share my passion for everything

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communication, sensory regulation and fun lesson

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ideas for my classroom of disabled pupils aged

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4 to 11. Each week I am joined by experts in

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the field answering your questions and sharing

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our knowledge and experience working alongside

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our beautiful young people. Let's get started.

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First of all, a message about our sponsor. Today's

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link in the description below to make the switch

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today. Now to the episode. Hello everybody and

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welcome to the Sensory Classroom podcast. My

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name is Jordan and today I'm joined by Liz Evans

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from the Untypical OT. Liz is an occupational

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therapist and solo parent in a neurodiverse family.

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She supports neurodivergent parents to protect

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against burnout, to move from survival to peace

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through a neuroaffirming, trauma and sensory

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responsive approach. I'm really excited to speak

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to her about the all -important topic of parental

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burnout and the sensory side of parenting today.

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Hello, Liz. Hi, Jordan. Thanks for having me.

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You are so welcome. An important topic. something

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I mean gosh this is episode 63 now of my podcast

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and we've skirted around this topic and I don't

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know why I've had lots of parents on and maybe

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they just don't want to talk about it maybe they're

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not comfortable talking about it there's a lot

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of unfortunate shame around this topic but it

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is very real do you mind I suppose so people

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can understand where you're coming from in this

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and why we've chosen to talk about this today

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from your perspective a little bit about you

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and your family yeah absolutely so firstly yeah

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as you say parental burnout very real and I was

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in it even with the job that I do and the work

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that I do I ended up in burnout and lots of people

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were kind of talking about you know autistic

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burnout or neurodivergent burnout I think that

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probably played a part in my burnout but actually

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the majority of my burnout came from the parenting

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responsibilities roles and the difficulties that

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we found ourselves in and where that started

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was I have to myself I'm dyslexic I have a an

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older son who is in mainstream And I have a son

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who is on an EASOS package, so educated other

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than at school. So we weren't able to find a

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school to meet his needs. He's educated at home,

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funded through the local authority, and he's

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diagnosed as autistic. And he had a huge mental

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health breakdown whilst in school. I was working.

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I'm a solo parent. It was really, really hard

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and not knowing kind of what to do. And eventually

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we had to go through the process of... Diagnostics,

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EHCP applications. You didn't even have an EHCP

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at that point. No, nothing. No, nothing. And

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we ended up at tribunal. The county took me all

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the way to tribunal. Naively, I think I thought

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as an OT, my background as an occupational therapist,

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I've worked in child and adolescent mental health.

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I've worked in community pediatric teams. I've

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worked in specialty schools. I thought, I know

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it's hard, but I reckon I can get through this.

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Boy, was I wrong. And that, I think, was a big

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wake -up call for me as a therapist, that I knew

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it was hard, but I didn't realise quite how hard.

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And even with the knowledge that I had, I was

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still coming up against the difficulties that

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other parents were. And I thought, I somehow

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naively thought I could navigate my way through

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that. Yeah, really, really wrong. And I don't

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think I'm the only professional. I'm finding

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more and more now as I'm kind of talking about

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it as a professional, other professionals going,

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Actually, yeah, I've had exactly the same. I

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thought I would get through it and I didn't.

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So I had this mission, Jordan. I had this mission

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that I felt I had to do something about was I

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had to help protect other parents against burnout.

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Because typical kind of burnout, when people

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go, oh, just do a bit more self -care, that doesn't

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work. Have a bath, go and get a massage. It doesn't

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even touch the sides. Go and have a bit more

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of a sleep. You could send me to Barbados for

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two weeks on my own. It wouldn't even touch the

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sides. So I knew things had to be different and

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I knew that I had to use kind of my OT skills

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to be able to do that. But actually the kind

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of very stereotypical, how do we support people

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in burnout, wasn't going to work for us. if we

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were one neurodivergent parents or if we weren't

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sure whether we were neurodivergent as parents

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or when you're a typical in neurodivergent families,

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that typical just take a rest was not going to

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cut it. Yeah. Yeah. I mean, what you're dealing

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with is so much more than exhaustion, isn't it?

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Absolutely. Can you explain a little bit about

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how this burnout is different? I've certainly

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seen it as a teacher with parents, usually the

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children that, have haven't got a school place

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a suitable school place and but also parents

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that are fighting for diagnosis for EHCP for

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the EHCP to then be met for AAC devices for the

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right therapy it's almost like the relentlessness

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of the fight you just feel like you're getting

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somewhere and then you've just got a whole other

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barrier. Is that what makes it different? Is

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there even more than that? I think the difference

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is as well is that, if you look at the diagnostic

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criteria, workplace burnout is the only burnout

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that is recognised. So if you look at the WHO

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definition, which is the World Health Organisation,

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they only refer to workplace burnout. which I

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think is rubbish. And when I get into my occupational

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therapy hat on, when I'm looking at occupation

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is more than just work, it's all the things that

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we have to do and want to do, is I don't understand

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how burnout can just happen in a workplace. Burnout

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can happen anywhere. And I think there is some

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research and some stats around burnout is higher

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in parents with kids with additional needs. And

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I... suspect and I've got no evidence of this

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one but my kind of feeling of that is that we

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often find ourselves in systems that we are we

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can't change so when you burn out and you get

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stressed or overwhelmed by something the natural

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reaction is to go okay well I'm going to step

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away from that I'm going to move away from it

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or if it's your job you might think well I'm

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not going to continue in that job I'll go get

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another job but when you're talking about parenting

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and you find yourself in systems that you can't

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step outside of that's I think where you end

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up with the parental burnout it is like you say

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it's the consistent stress it's being overwhelmed

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and your capacity to deal with chronic stress

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that just keeps coming at you and you don't get

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a chance to recover and there's the sciencey

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bit behind that but basically we need to be able

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to go into a part of our autonomic nervous system

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to be able to recover from stress and when you're

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in high levels of stress which some of us as

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parents in neurodivergent families are and for

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me it was at some points I was trying to keep

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my son alive It was that serious and I was coming

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up against a system that was unfeeling, uncaring,

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unmovable, uncontactable. There was no person.

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It was just this thing in our lives that I felt

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was having a huge impact on my family and our

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well -being and I couldn't change it. And as

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a parent, that is terrifying. Yeah, and I feel

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like I've seen parents that can take any... thing

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for themselves like they're mistreated they're

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not spoken to they're ignored for themselves

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they can almost take that but it's one more step

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on it's the injustice of it all but it's the

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most vulnerable in our society that are being

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time and time again ignored and you don't you

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have less time less energy less capacity to have

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this fight and yet you're the ones that are forced

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in this position But it's not even your fight.

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You're fighting for your children, which makes

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it even more burnoutable, I suppose, because

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you just have to keep going for them. I feel

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like if it was for you, you would have stopped

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ages ago. You would, like wrongly, obviously,

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but you'd have stopped ages ago because you'd

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have just accepted, you know, that that can't

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be done. Yeah. But of course you don't because

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you're fighting for the voices. You're fighting

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for these people that you love so much. desperate

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to protect and of course that leads to burnout

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because you're human yeah you just it outweighs

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your capacity to keep going and i think it was

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you know as part of my burnout was that i went

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i got through the stuff that i needed to do and

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that's often what happens you're running on adrenaline

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and all your stress hormones are kicking in and

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i got through the tribunal all but kind of all

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but carried across the finish line by an advocate

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that I thought I could get through tribunal.

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I couldn't. I had to get some support in to do

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it. And it wasn't until we got through tribunal,

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that's when my burnout hit. And boy, did it hit.

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It came in from the side and literally took me

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off my feet. And I think a lot of parents, the

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stress of dealing, because people think I'm talking

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about, when I talk about parental burnout, they

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think I'm talking about burnout from their children.

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Yes. I was saying that. Yeah, exactly that. I

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think that's exactly what people think. They're

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like, oh, you're tired. You're like physically

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harmed. It's not at all true to the children.

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If the systems were in place to support your

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family, you'd thrive. Yeah, it's exactly that.

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And I really try to push that point home is that,

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yes, our kids stress us out. You know, I've met

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parents that haven't got neurodivergent kids.

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Their kids push them to the limits and kids do

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that to us. But this is kind of a next level

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and it's being able to... you know more and more

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I talk to parents and for me personally as well

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it was about trying to keep my kids safe I needed

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to keep him safe and I wasn't being allowed to

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do that as a parent and when you think about

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what's the kind of I mean my kids laugh and joke

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at me because I'll go to them what's the one

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thing I've got to do and they go keep us safe

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But ultimately that is the bottom line. As a

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parent, I've got to make sure my kids get to

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the end of the day. If we get fed and everyone's

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happy and watered and whatever, that's a bonus.

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But they are at the end of the day and I've got

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them there. Okay, tick, I've done the job that

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day. And you're coming up against systems that

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either don't allow you to do that or make it

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so difficult to do that. And I hear lots of,

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and as part of being a professional, I've been

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in those conversations and heard those conversations

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of that parent. They're a tricky parent. They're

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a difficult parent. Watch out for that parent.

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They're a bit of a handful. And mine, I try to

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talk a lot now with professionals that I supervise

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and stuff like that. But why? Why do you think

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they're like that? Where's that come from? And

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a lot of the time, I'd say 99 .9 % of the time,

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anxiety. They're really worried. They're frightened

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and they don't know what to do. So they come

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at it with the only skills they've got available

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to them. And that might be being really difficult.

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Yeah. And also, so sometimes I get students that

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are year five. So they're age 10. They've had

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10 years of fighting the health care system,

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the education system, county, all of these fights.

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They're used to that being their baseline. They're

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used to having to fight. So finally, when they

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come to us. They've still got that fight, that

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adrenaline still spike. They're still ready for

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it to go wrong because everything else has before.

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And you've got to respect that as an educator.

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If you're a teacher listening and you've got

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these fight or fright parents, that is what it

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is. They are waiting for it to fail because they've

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only ever. And they don't feel safe. The kids

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aren't safe and they don't feel safe. And when

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you're in that part of your brain, in that stress

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response, you are in protection mode. It's fight,

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flight or freeze. And there's others, but fight,

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flight and freeze are your main ones. And as

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you say, if you've got a parent that's been in

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that stress response for so long, moving out

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of that takes a long time, a long, long time.

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And I think there's some difficulty in some of

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the work that I do with parents is... They often

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don't realise they're burnt out. It's become

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normal. They're literally functioning. I was

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functioning. I had two kids. I'm a solo parent.

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I had no choice. But I was burnt out. I couldn't

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give my kids what they needed. Somebody said

00:13:13.190 --> 00:13:15.909
to me once, you know, what do you enjoy doing?

00:13:16.149 --> 00:13:17.870
I just burst into tears on them because I thought,

00:13:17.889 --> 00:13:20.230
I don't know anymore. I'm so used to being in

00:13:20.230 --> 00:13:22.909
this protection mode. Doing things that I enjoyed

00:13:22.909 --> 00:13:25.590
had gone out the window completely. Yeah, you

00:13:25.590 --> 00:13:27.549
didn't even know yourself. Is that the long...

00:13:28.000 --> 00:13:31.299
term effect of being in this mode and are there

00:13:31.299 --> 00:13:33.720
other long -term effects that you're noticing

00:13:33.720 --> 00:13:36.879
either in yourself or in others of this long

00:13:36.879 --> 00:13:41.279
-term sustained burnout mode I think some I think

00:13:41.279 --> 00:13:44.519
the main one for me was the exhaustion and I

00:13:44.519 --> 00:13:46.179
think most parents will kind of go to you oh

00:13:46.179 --> 00:13:47.940
that's just being a parent you're always tired

00:13:47.940 --> 00:13:52.049
but this exhaustion was different I knew it was

00:13:52.049 --> 00:13:54.269
different it was and the only way I could describe

00:13:54.269 --> 00:13:57.190
it is it's bone tired a bit like you know when

00:13:57.190 --> 00:14:01.769
you get flu like I can't physically move my bones

00:14:01.769 --> 00:14:06.870
ache um it's that level of exhaustion on a daily

00:14:06.870 --> 00:14:08.669
basis that you're kind of you get up and you

00:14:08.669 --> 00:14:11.970
go through the process but if you gave me a bed

00:14:11.970 --> 00:14:13.970
to lie down on I would probably just that would

00:14:13.970 --> 00:14:15.429
be me done and you probably wouldn't get me back

00:14:15.429 --> 00:14:18.049
out of it um and People say to me, well, take

00:14:18.049 --> 00:14:19.970
a rest. But there was always that fear in me

00:14:19.970 --> 00:14:21.289
that if I took a rest, I wouldn't get back up

00:14:21.289 --> 00:14:24.649
again. So I just kept going and kept going and

00:14:24.649 --> 00:14:26.970
kept going and kept going. And so it's things

00:14:26.970 --> 00:14:30.570
like that. It's things like I found my tolerance

00:14:30.570 --> 00:14:33.649
to things went down. We probably might touch

00:14:33.649 --> 00:14:36.250
on some sensory stuff later. But for me, I know

00:14:36.250 --> 00:14:39.070
I can be tactile defensive. I find being touched

00:14:39.070 --> 00:14:41.730
quite a lot quite difficult. But I can kind of

00:14:41.730 --> 00:14:46.120
manage it. But when I was in burnout, whoa. Don't

00:14:46.120 --> 00:14:48.480
come anywhere near me. And I've got one that's

00:14:48.480 --> 00:14:52.360
a real hugger. And he loves a hug. And that was

00:14:52.360 --> 00:14:55.659
really hard to find a way through. And what do

00:14:55.659 --> 00:14:59.980
I do? Do I mask my needs as a parent and give

00:14:59.980 --> 00:15:02.139
him what he needs? Or do we find a way through?

00:15:02.259 --> 00:15:04.980
We had to find a way through. That meant I could

00:15:04.980 --> 00:15:08.840
respect my sensory system and what that needed.

00:15:09.580 --> 00:15:11.500
But also I could make that connection with him

00:15:11.500 --> 00:15:13.360
and make sure he could still get what he needed.

00:15:13.399 --> 00:15:15.299
And we still needed that contact, but could we

00:15:15.299 --> 00:15:16.960
do it in a different way? I suppose that adds

00:15:16.960 --> 00:15:19.379
to the cycle as well, doesn't it? Of you're feeling

00:15:19.379 --> 00:15:21.399
burnt out, so you can't give him what he needs.

00:15:21.539 --> 00:15:23.840
So you either mask yourself and get yourself

00:15:23.840 --> 00:15:28.059
worse or you ignore, is the wrong word, but don't

00:15:28.059 --> 00:15:30.639
give him the exact needs he wants. And then you

00:15:30.639 --> 00:15:32.759
feel more shame and you get more burnt out and

00:15:32.759 --> 00:15:34.919
the cycle continues. And that's probably happening

00:15:34.919 --> 00:15:37.440
in so many different areas of your life in so

00:15:37.440 --> 00:15:39.940
many different ways. And I think as parents,

00:15:40.059 --> 00:15:43.460
we are notorious at putting our needs bottom

00:15:43.460 --> 00:15:45.879
of the pile. Everybody else's needs get put first.

00:15:45.960 --> 00:15:47.639
And if there's some space left over, then we

00:15:47.639 --> 00:15:49.519
might do something. Women as well. Parents and

00:15:49.519 --> 00:15:52.279
women. I think like the double up of that. I

00:15:52.279 --> 00:15:55.879
feel like there's three layers there of just

00:15:55.879 --> 00:15:59.340
all really bad at meeting your own needs and

00:15:59.340 --> 00:16:01.500
putting your needs first. Don't meet my needs.

00:16:01.539 --> 00:16:03.779
Sometimes don't know what my needs are. I'm going

00:16:03.779 --> 00:16:06.100
to mask them. And mine needs aren't as important

00:16:06.100 --> 00:16:09.639
as everybody else's. Again, I try to be really

00:16:09.639 --> 00:16:13.419
clear. I'm not saying that parents, we suddenly

00:16:13.419 --> 00:16:15.379
forget about what our kids need, dump them. It's

00:16:15.379 --> 00:16:17.580
all about us. Yeah, it's unrealistic, isn't it?

00:16:17.580 --> 00:16:21.179
That just isn't it. What it is saying is often

00:16:21.179 --> 00:16:24.379
I'll say to parents, but what do you do? What

00:16:24.379 --> 00:16:27.320
do you do for you? And often I get met with tears

00:16:27.320 --> 00:16:30.399
or a silence with people desperately thinking,

00:16:30.559 --> 00:16:34.539
I don't know. Or the other one I will get is

00:16:34.539 --> 00:16:38.419
trying to explain away why they can't. And I

00:16:38.419 --> 00:16:41.460
get that because we don't have huge amounts of

00:16:41.460 --> 00:16:43.480
time. You know, people used to say to me, you

00:16:43.480 --> 00:16:44.840
just need to go and do this or you just need

00:16:44.840 --> 00:16:46.419
to go and do that. I think, when am I going to

00:16:46.419 --> 00:16:49.059
do that? I've got a really unwell mental health,

00:16:49.100 --> 00:16:51.799
but his mental health is really poorly. I've

00:16:51.799 --> 00:16:54.200
got another one in school. I'm working, cleaning

00:16:54.200 --> 00:16:56.399
the house, doing dinner. When am I going to do

00:16:56.399 --> 00:16:58.639
that? But I think once I kind of came out of

00:16:58.639 --> 00:17:00.960
my burnout and was able to put my OT hat back

00:17:00.960 --> 00:17:04.019
on, I knew I had to find a way to do something

00:17:04.019 --> 00:17:07.339
for me each day, even if. It was the tiniest

00:17:07.339 --> 00:17:09.539
thing. And I've got this thing at the moment

00:17:09.539 --> 00:17:11.759
that I do, and the boys will laugh at me, but

00:17:11.759 --> 00:17:14.200
I sit with a cup of tea at least once a day on

00:17:14.200 --> 00:17:16.920
the back doorstep with the door open. Even in

00:17:16.920 --> 00:17:20.539
the rain, even in the cold, just because it gives

00:17:20.539 --> 00:17:24.720
me a couple of minutes. Do I always get my whole

00:17:24.720 --> 00:17:27.500
cup of tea drunk? No. But there is an element

00:17:27.500 --> 00:17:29.460
of protected space. I can still hear the kids

00:17:29.460 --> 00:17:31.039
in the background. If it's all kicking off, I

00:17:31.039 --> 00:17:34.519
can go and help. But they know that's my time.

00:17:34.599 --> 00:17:36.660
And I will say to them, if I can, and it's safe

00:17:36.660 --> 00:17:40.440
to, just give me two minutes. I've got one that

00:17:40.440 --> 00:17:43.380
will set a timer. Give me two minutes. I need

00:17:43.380 --> 00:17:45.839
this time out somewhere. And I talk about it

00:17:45.839 --> 00:17:48.420
being a pause rather than a full stop. You can

00:17:48.420 --> 00:17:51.039
find time for a pause, but we can't always find

00:17:51.039 --> 00:17:53.579
time for great big long, you know, I'm going

00:17:53.579 --> 00:17:55.500
to take the whole day off and go to a spa. That's

00:17:55.500 --> 00:17:57.259
not going to happen. And do you think that little

00:17:57.259 --> 00:18:01.180
and often has helped you be realistic? Absolutely.

00:18:01.460 --> 00:18:03.740
It's little and often finding something to do

00:18:03.740 --> 00:18:06.680
for me and trying to bring back in. And it sounds

00:18:06.680 --> 00:18:09.440
a bit cheesy, but bringing in a bit of joy for

00:18:09.440 --> 00:18:13.220
me. Because I really did get to that point where

00:18:13.220 --> 00:18:16.259
I thought, I don't know what I like anymore.

00:18:16.519 --> 00:18:20.660
I don't know what I do that I enjoy. Some of

00:18:20.660 --> 00:18:23.480
that I think is probably all parents go through

00:18:23.480 --> 00:18:26.019
that. There's an element of we take on a parenting

00:18:26.019 --> 00:18:28.650
role. Our life becomes about taking the kids

00:18:28.650 --> 00:18:30.730
wherever they want to go, whatever they want

00:18:30.730 --> 00:18:33.710
to do. And we do lose a sense of who we are.

00:18:33.769 --> 00:18:36.210
And possibly as well, we get to a certain age

00:18:36.210 --> 00:18:38.750
where the activities that we did in our 20s are

00:18:38.750 --> 00:18:41.970
not what we can do in our mid 40s. You know,

00:18:41.990 --> 00:18:43.490
I decided I was going to go back to netball.

00:18:43.609 --> 00:18:47.289
My body did not thank me for that. Maybe a bit

00:18:47.289 --> 00:18:50.190
ambitious. Yeah. But I thought, I know what I'm

00:18:50.190 --> 00:18:51.809
going to find something for me. Also how great

00:18:51.809 --> 00:18:54.130
that that's what you were thinking. Like, it's

00:18:54.130 --> 00:18:56.990
almost like. that you had gone and tried it.

00:18:57.190 --> 00:18:59.890
Like that's sometimes just trying something new

00:18:59.890 --> 00:19:03.190
is the thing, isn't it? Absolutely. And I think,

00:19:03.190 --> 00:19:05.769
I mean, people that follow me will know that

00:19:05.769 --> 00:19:07.950
I have, I've decided to ride a motorbike. I'm

00:19:07.950 --> 00:19:11.049
47 years old. I'm arthritic. I struggle with

00:19:11.049 --> 00:19:14.250
my arthritis, but I thought I'm going to learn

00:19:14.250 --> 00:19:16.039
to ride a motorbike. Why not? I'm just going

00:19:16.039 --> 00:19:18.380
to do that. And there are some days that I get

00:19:18.380 --> 00:19:21.079
on the motorbike and I just go around and do

00:19:21.079 --> 00:19:23.039
little loops outside. I'm still learning, so

00:19:23.039 --> 00:19:25.140
I'm still not that great. It's really hard as

00:19:25.140 --> 00:19:28.140
well. I learned to ride last year and it's really

00:19:28.140 --> 00:19:31.519
hard. That feeling of also doing something new,

00:19:31.640 --> 00:19:33.339
doing something difficult, doing something hard.

00:19:33.420 --> 00:19:35.619
You also, when you're learning something like

00:19:35.619 --> 00:19:37.839
that, you have to really concentrate. It's very

00:19:37.839 --> 00:19:40.839
mindful. You have to be in the now. You cannot

00:19:40.839 --> 00:19:44.099
be thinking about anything else other than your

00:19:44.099 --> 00:19:45.940
gears, your balance, what's happening on the

00:19:45.940 --> 00:19:49.640
road and all of those things. And maybe if meditation

00:19:49.640 --> 00:19:51.740
doesn't work, that's your meditation. You have

00:19:51.740 --> 00:19:53.700
to be, like, active in your meditation. You have

00:19:53.700 --> 00:19:56.680
to be active in your mindfulness. And, yeah,

00:19:56.759 --> 00:19:58.559
doing something difficult and active, I can imagine,

00:19:58.599 --> 00:20:01.440
is a great thing to do. Yeah. I mean, probably

00:20:01.440 --> 00:20:03.680
motorbiking is probably quite extreme. I'm not

00:20:03.680 --> 00:20:05.440
saying to everyone, like, if you motorbike, you'll

00:20:05.440 --> 00:20:07.480
have, like, masses of mums now gearing up for

00:20:07.480 --> 00:20:10.579
motorbiking. I mean, I'm here for it. I think

00:20:10.579 --> 00:20:12.579
it'd be great. Absolutely. Put the kids in a

00:20:12.579 --> 00:20:16.670
sidecar. I'm here for it. But like you said,

00:20:16.769 --> 00:20:18.789
there's also for me, there's a massive sensory

00:20:18.789 --> 00:20:23.329
element in biking. And I've got a partner that

00:20:23.329 --> 00:20:25.509
bikes and that's how I first got into it is I

00:20:25.509 --> 00:20:28.269
go pillion with him. And he said he thinks I'm

00:20:28.269 --> 00:20:29.930
the only person that he knows that gets on as

00:20:29.930 --> 00:20:32.150
a pillion rider and can go to sleep on the back

00:20:32.150 --> 00:20:35.210
of the motorbike. Which, don't worry, I am safe.

00:20:35.529 --> 00:20:37.410
He's got like a one that's kind of... Is it the

00:20:37.410 --> 00:20:40.269
white noise? Is it the vibration? The white noise

00:20:40.269 --> 00:20:43.349
and the vibration. So when you're on the motorbike,

00:20:43.410 --> 00:20:46.190
you just get that sound with all the wind. I

00:20:46.190 --> 00:20:49.369
think there's no demands of me. I can't pick

00:20:49.369 --> 00:20:51.150
up a telephone. I can't respond to anything.

00:20:51.789 --> 00:20:54.109
And sometimes my partner laughs as I get off

00:20:54.109 --> 00:20:55.970
the other end and I go, I've had about 20 billion

00:20:55.970 --> 00:20:58.849
different ideas, usually about work, and I'm

00:20:58.849 --> 00:21:00.490
off about something. He's like, oh God, she's

00:21:00.490 --> 00:21:04.069
off. But other times I get that space and that

00:21:04.069 --> 00:21:07.130
quiet. He's driving. I don't even think about

00:21:07.130 --> 00:21:08.910
the driving. I literally just sit. And like you

00:21:08.910 --> 00:21:11.549
say, in the moment, I've got countryside around

00:21:11.549 --> 00:21:14.809
me or whatever it is around me. and and the vibrations

00:21:14.809 --> 00:21:16.670
with me and i can just film what i start like

00:21:16.670 --> 00:21:18.650
this i think he can tell because my helmet will

00:21:18.650 --> 00:21:24.130
hit the back of his you'll have to get in um

00:21:24.130 --> 00:21:27.309
helmet mike so that he can yeah are you still

00:21:27.309 --> 00:21:31.289
with me yeah hello hello after liz yeah yeah

00:21:31.289 --> 00:21:34.730
whereas i think you say with the driving if parents

00:21:34.730 --> 00:21:38.009
can't have access to a motorbike with your ot

00:21:38.009 --> 00:21:41.670
hat on what are the sensory things that they

00:21:41.670 --> 00:21:45.980
can do regulate and be in their bodies and ground

00:21:45.980 --> 00:21:47.200
themselves because that's what we're talking

00:21:47.200 --> 00:21:49.680
about here isn't it yeah so the biggest thing

00:21:49.680 --> 00:21:51.660
i would say is one is finding something that

00:21:51.660 --> 00:21:54.339
you enjoy and brings you some form of joy whatever

00:21:54.339 --> 00:21:58.160
that is and the other thing is movement and that

00:21:58.160 --> 00:22:00.839
movement can be any kind of movement and we know

00:22:00.839 --> 00:22:03.880
that when we get stressed and anxious our bodies

00:22:03.880 --> 00:22:07.319
produce chemicals within us to keep us safe get

00:22:07.319 --> 00:22:09.240
us ready for flight flight freeze responses all

00:22:09.240 --> 00:22:12.349
that kind of stuff but actually In the days when

00:22:12.349 --> 00:22:15.589
we would have run, we would have used those chemicals

00:22:15.589 --> 00:22:18.430
to be able to do those things. When that doesn't

00:22:18.430 --> 00:22:20.829
happen now, it stays within our body. We get

00:22:20.829 --> 00:22:23.430
like a truncated response. It stays within us.

00:22:23.750 --> 00:22:25.829
And then that's what can make us poorly. High

00:22:25.829 --> 00:22:28.869
levels of cortisol, all that kind of stuff. So

00:22:28.869 --> 00:22:31.829
we need to move our bodies. And we know from

00:22:31.829 --> 00:22:34.309
a sensory perspective that is calming and regulating.

00:22:34.690 --> 00:22:37.529
And it can be anything. I'll say to some of my

00:22:37.529 --> 00:22:39.480
parents, you can't get out. If you've got kids

00:22:39.480 --> 00:22:43.180
that have got significant needs that you can't

00:22:43.180 --> 00:22:45.019
leave the house, I'm talking about just walking

00:22:45.019 --> 00:22:47.339
up and down the stairs three times, that kind

00:22:47.339 --> 00:22:49.460
of thing. If you've got a garden, but it's only

00:22:49.460 --> 00:22:51.400
a little one, can you walk around the garden

00:22:51.400 --> 00:22:55.259
and be outside? But how can you move your body

00:22:55.259 --> 00:22:59.859
today in some way? If that's having a dance with

00:22:59.859 --> 00:23:03.480
one of the kids, if it's a walk that you've got

00:23:03.480 --> 00:23:06.500
that you do. you know even just round the block

00:23:06.500 --> 00:23:09.180
a really quick one and some people will say and

00:23:09.180 --> 00:23:11.619
I think I felt like that is when I was deep in

00:23:11.619 --> 00:23:14.460
burnout I couldn't even I couldn't I couldn't

00:23:14.460 --> 00:23:16.359
go outside I didn't want to go outside and movement

00:23:16.359 --> 00:23:18.859
was really hard and what I'd say at those points

00:23:18.859 --> 00:23:23.460
is even just thinking about going to do it can

00:23:23.460 --> 00:23:26.559
help So it might be, I don't get too much into

00:23:26.559 --> 00:23:29.319
the visualization stuff and making things, I'd

00:23:29.319 --> 00:23:31.940
ground it very much in reality. So if you've

00:23:31.940 --> 00:23:34.180
got a loop that you do around your house, you

00:23:34.180 --> 00:23:37.079
know, around the block, could you visualize that

00:23:37.079 --> 00:23:39.859
loop that you just start to think about doing

00:23:39.859 --> 00:23:41.579
it? Because starting to think about it will mean

00:23:41.579 --> 00:23:43.619
you'll get to the point of being able to do it.

00:23:44.420 --> 00:23:48.220
But actually the tendency and what we tend to

00:23:48.220 --> 00:23:50.500
want to do is to do nothing when we're burnt

00:23:50.500 --> 00:23:54.079
out. We just stop and I'll get my... OT hat on

00:23:54.079 --> 00:23:57.339
that actually we need to be doing within reason

00:23:57.339 --> 00:24:00.779
we need to be able to recover but we are occupational

00:24:00.779 --> 00:24:03.859
beings we are doing beings and that when we stay

00:24:03.859 --> 00:24:06.720
still for too long that can make us even more

00:24:06.720 --> 00:24:09.640
poorly so I think movement is a big thing for

00:24:09.640 --> 00:24:12.119
me sensory wise I think that's a benefit for

00:24:12.119 --> 00:24:13.859
the children as well not only to have a more

00:24:13.859 --> 00:24:18.599
regulated co -regulated parent But also the movement

00:24:18.599 --> 00:24:20.960
for them, the outside time for them is also important.

00:24:21.079 --> 00:24:23.200
So don't think of it as, oh, I'm being so selfish,

00:24:23.240 --> 00:24:25.299
I'm doing this for me, which would often just

00:24:25.299 --> 00:24:29.880
build this cycle. Actually, you are doing it

00:24:29.880 --> 00:24:32.400
for them. Everything you do to make yourself

00:24:32.400 --> 00:24:34.779
more regulated, more grounded and more ready,

00:24:34.980 --> 00:24:38.160
it's going to make you better for them. Absolutely.

00:24:38.359 --> 00:24:41.640
And I think what's hard for parents is people

00:24:41.640 --> 00:24:44.019
like you and I, Jordan, that know about our sensory

00:24:44.019 --> 00:24:47.279
systems. A lot of parents, and I've done some

00:24:47.279 --> 00:24:50.660
work with this with parents, is they can tell

00:24:50.660 --> 00:24:52.740
me their kid's sensory system and their kid's

00:24:52.740 --> 00:24:55.019
sensory profile. They don't know theirs. And

00:24:55.019 --> 00:24:57.480
so I do some work with parents around starting

00:24:57.480 --> 00:25:00.839
to recognize your own sensory profile. Because

00:25:00.839 --> 00:25:03.359
sometimes our sensory profiles clash with our

00:25:03.359 --> 00:25:05.400
kids. Yeah, well, like you said, with the hugging,

00:25:05.579 --> 00:25:08.440
it makes so much sense that once you knew that,

00:25:08.539 --> 00:25:11.240
you could honor their need and your own. Whereas

00:25:11.240 --> 00:25:13.759
without knowing your own, you're just wondering.

00:25:14.520 --> 00:25:16.759
why it feels so difficult for you to meet their

00:25:16.759 --> 00:25:19.500
needs without realizing why I think internally

00:25:19.500 --> 00:25:21.680
what I would do then with that before I kind

00:25:21.680 --> 00:25:23.359
of put two and two together which seems ridiculous

00:25:23.359 --> 00:25:25.720
as no tea but I think when you're in it it's

00:25:25.720 --> 00:25:28.299
really hard to get the perspective isn't it hopefully

00:25:28.299 --> 00:25:32.819
so I think When I was in it, I felt very shameful

00:25:32.819 --> 00:25:35.460
of that reaction. It made me feel like I was

00:25:35.460 --> 00:25:37.220
a bad parent, that I didn't want my kids near

00:25:37.220 --> 00:25:40.019
me, that I should be enjoying my time with my

00:25:40.019 --> 00:25:42.279
kids. I should enjoy a hug with my kids. And

00:25:42.279 --> 00:25:45.759
I'm an awful person because they're trying to

00:25:45.759 --> 00:25:48.299
hug me and I want them to be as far away as possible.

00:25:48.500 --> 00:25:50.480
That's really hard. It wasn't until I had to

00:25:50.480 --> 00:25:51.880
start working through that and thinking, why

00:25:51.880 --> 00:25:55.299
am I feeling that? I know why you're feeling

00:25:55.299 --> 00:25:57.619
that. Because actually, you don't like being

00:25:57.619 --> 00:26:00.380
hugged by anyone particularly. And when I'm stressed,

00:26:00.759 --> 00:26:03.680
that's even harder. That tolerance has gone.

00:26:04.220 --> 00:26:06.220
So we talk about being curious, don't we? Being

00:26:06.220 --> 00:26:08.180
curious about why our children are doing certain

00:26:08.180 --> 00:26:10.680
things and the importance of curiosity rather

00:26:10.680 --> 00:26:13.140
than, you know, seeing it as what we believe

00:26:13.140 --> 00:26:15.700
is like negative behavior or purposeful or attention

00:26:15.700 --> 00:26:16.920
seeking or anything like that. Let's just be

00:26:16.920 --> 00:26:19.500
curious. But maybe we're not being curious enough

00:26:19.500 --> 00:26:22.079
about our own needs. Why are we struggling with

00:26:22.079 --> 00:26:24.779
certain things? Why are we not enjoying a certain

00:26:24.779 --> 00:26:27.200
experience? Why are we avoidant of certain things

00:26:27.200 --> 00:26:30.680
and being curious about our own selves too? What

00:26:30.680 --> 00:26:35.039
are some ways that if you've got a parent that

00:26:35.039 --> 00:26:38.460
is exactly as you describe in your support network,

00:26:38.559 --> 00:26:40.660
or maybe you're a teacher, you know, you're aware

00:26:40.660 --> 00:26:43.359
of what you're talking about isn't them, but

00:26:43.359 --> 00:26:46.079
it's definitely someone they know about. How

00:26:46.079 --> 00:26:49.680
can they be actual help to that person? Is there

00:26:49.680 --> 00:26:51.519
a way that they could be actual help to that

00:26:51.519 --> 00:26:54.200
person? It's really funny because I often, when

00:26:54.200 --> 00:26:56.420
I'm talking direct to the parents, I talk to

00:26:56.420 --> 00:26:59.700
them about finding a safe circle and finding

00:26:59.700 --> 00:27:02.299
a safe circle with people that you feel you can

00:27:02.299 --> 00:27:04.960
be really open and honest about when you're talking.

00:27:05.079 --> 00:27:08.220
Those people that don't have those people in

00:27:08.220 --> 00:27:10.460
your group that go, you just need to, you know,

00:27:10.460 --> 00:27:12.259
you just need to go and get some more self -care.

00:27:12.319 --> 00:27:15.450
You just need to go and do whatever it is. is

00:27:15.450 --> 00:27:17.509
making sure you've got that safe circle. I think

00:27:17.509 --> 00:27:20.210
if you're working with people like a parent and

00:27:20.210 --> 00:27:23.490
you suspect they could be burnt out, is recognising

00:27:23.490 --> 00:27:26.390
that. And I don't mean by going, I think you're

00:27:26.390 --> 00:27:29.210
burnt out to the parent. But acknowledging to

00:27:29.210 --> 00:27:31.589
you and yourself and the way that you're working

00:27:31.589 --> 00:27:35.569
with that parent is thinking, okay, this parent

00:27:35.569 --> 00:27:37.950
possibly could be burnt out. If they are burnt

00:27:37.950 --> 00:27:39.490
out, they are going to be struggling to take

00:27:39.490 --> 00:27:42.109
on information. They are going to be struggling

00:27:42.109 --> 00:27:44.930
to implement what. I'm asking them to do because

00:27:44.930 --> 00:27:47.730
often as professionals, we are saying to parents

00:27:47.730 --> 00:27:50.009
all the things we need them to go and do on top

00:27:50.009 --> 00:27:53.029
of all the other things they are doing. And I

00:27:53.029 --> 00:27:55.109
work quite, in my days when I work more with

00:27:55.109 --> 00:27:57.230
the kids, I used to be really mindful of that.

00:27:57.289 --> 00:27:59.549
I wasn't sending parents home with more and more

00:27:59.549 --> 00:28:01.890
work to do and more and more demand on them because

00:28:01.890 --> 00:28:04.650
actually that's really, really hard. They've

00:28:04.650 --> 00:28:07.670
got enough to do. And I know some professionals

00:28:07.670 --> 00:28:09.230
would be like, they just come in and want me

00:28:09.230 --> 00:28:11.490
to sort their kids out. Of course they do. They

00:28:11.490 --> 00:28:14.069
are knackered. They were absolutely shattered.

00:28:14.789 --> 00:28:16.789
And then the thought of another professional

00:28:16.789 --> 00:28:18.750
saying to them, oh, here's a program to take

00:28:18.750 --> 00:28:20.490
home. Here's a this to deliver. Here's a this

00:28:20.490 --> 00:28:23.750
to practice. Which is obvious, right? Let's not

00:28:23.750 --> 00:28:27.029
fool ourselves. I've had so many meetings where

00:28:27.029 --> 00:28:29.809
it might as well be targets for the parent rather

00:28:29.809 --> 00:28:32.309
than targets. child yes because it's right you

00:28:32.309 --> 00:28:34.349
just need to do symbols you just need to start

00:28:34.349 --> 00:28:36.490
an AAC device but you need to model it at all

00:28:36.490 --> 00:28:39.170
times and you just need to start sensory circuits

00:28:39.170 --> 00:28:41.390
you know four or five times a day and you just

00:28:41.390 --> 00:28:43.970
need and it's this parent goes home with just

00:28:43.970 --> 00:28:47.150
so much many things and targets and unrealistic

00:28:47.150 --> 00:28:51.750
things to do yes they'd all be wonderful of course

00:28:51.750 --> 00:28:55.049
they'd be all great they're not wrong is it realistic

00:28:55.049 --> 00:28:59.390
are we just putting that family into burnout

00:28:59.390 --> 00:29:02.630
even more yes and i think it's you know how can

00:29:02.630 --> 00:29:05.809
you what could you take off that parent if you

00:29:05.809 --> 00:29:07.269
want them to do something is there something

00:29:07.269 --> 00:29:09.210
else you could take off is there a telephone

00:29:09.210 --> 00:29:11.150
call you could make that they've been trying

00:29:11.150 --> 00:29:13.390
to make and not getting a response to where could

00:29:13.390 --> 00:29:16.410
you support that parent what could you do to

00:29:16.410 --> 00:29:18.190
support them and then the other thing that i

00:29:18.190 --> 00:29:21.190
talk about as well with professionals is is starting

00:29:21.190 --> 00:29:24.730
to recognize sensory stuff and doing that by

00:29:24.730 --> 00:29:27.359
kind of modeling for ourselves So I often don't

00:29:27.359 --> 00:29:29.619
get into, you know, telling a parent where they

00:29:29.619 --> 00:29:32.119
might have sensory needs. But what you might

00:29:32.119 --> 00:29:34.400
do is start talking about you as a teacher or

00:29:34.400 --> 00:29:36.819
you as a whatever professional you are, or if

00:29:36.819 --> 00:29:38.759
you're a friend or whatever it is, talking about

00:29:38.759 --> 00:29:41.240
your sensory needs. You know, I find it really

00:29:41.240 --> 00:29:44.759
difficult normalizing language around sensory

00:29:44.759 --> 00:29:49.359
reactions that we've all got a sensory profile,

00:29:49.619 --> 00:29:51.839
every single one of us. And every single one

00:29:51.839 --> 00:29:53.859
of us is unique in our sensory profile. No one's

00:29:53.859 --> 00:29:57.450
is the same. And they flex and they move depending

00:29:57.450 --> 00:29:59.849
on our stress levels or how safe and relaxed

00:29:59.849 --> 00:30:02.750
we feel. But normalising language around sensory

00:30:02.750 --> 00:30:06.089
information and sensory processing and our sensory

00:30:06.089 --> 00:30:10.990
reactions, our sensory needs. I often, parents

00:30:10.990 --> 00:30:13.809
will say to me, oh, so -and -so's got weighted

00:30:13.809 --> 00:30:16.410
blankets is often a very common one. I steal

00:30:16.410 --> 00:30:18.970
it all the time. I'm like, steal it more? In

00:30:18.970 --> 00:30:21.390
fact, get yourself one. You don't have to feel

00:30:21.390 --> 00:30:25.690
bad about using. a weighted blanket, if it feels

00:30:25.690 --> 00:30:29.269
nice, use it more. You've found something that

00:30:29.269 --> 00:30:33.509
works. And things like, you know, often parents

00:30:33.509 --> 00:30:36.029
go to me, oh, you know, I've got like, they call

00:30:36.029 --> 00:30:37.289
them fidget toys or whatever you want to call

00:30:37.289 --> 00:30:39.589
them. But they've got something, they've stolen

00:30:39.589 --> 00:30:42.049
it off one of the kids that they will kind of

00:30:42.049 --> 00:30:43.490
say, well, yeah, when I'm on meetings and stuff

00:30:43.490 --> 00:30:46.670
on calls, on Zoom calls, I've got one and I use

00:30:46.670 --> 00:30:49.309
it. Use it more. Put it in your handbag. Take

00:30:49.309 --> 00:30:52.079
it with you somewhere. Have it. Wherever it might

00:30:52.079 --> 00:30:54.680
be, if you're going to a meeting that's really

00:30:54.680 --> 00:30:58.460
tricky, take it with you. Help find a way that

00:30:58.460 --> 00:31:02.039
you can regulate your sensory system. And sometimes

00:31:02.039 --> 00:31:04.519
that's just playing around with what works for

00:31:04.519 --> 00:31:07.920
you and what doesn't, if that makes sense. I

00:31:07.920 --> 00:31:10.980
put on parents, that would make it harder, making

00:31:10.980 --> 00:31:14.720
them do the phone call. giving them unnecessary

00:31:14.720 --> 00:31:17.099
targets even unnecessary meetings you know it

00:31:17.099 --> 00:31:18.799
doesn't need to be a meeting or can it just be

00:31:18.799 --> 00:31:21.799
an email giving things visually as well maybe

00:31:21.799 --> 00:31:23.819
giving them a list written down of all the information

00:31:23.819 --> 00:31:25.640
rather than saying over the phone and expecting

00:31:25.640 --> 00:31:28.539
them to retain that information and that isn't

00:31:28.539 --> 00:31:30.559
patronizing this isn't patronizing this is support

00:31:30.559 --> 00:31:32.980
systems and if you genuinely want to help his

00:31:32.980 --> 00:31:35.140
family then then this is what can make and then

00:31:35.140 --> 00:31:37.059
maybe also just making sure that you have the

00:31:37.059 --> 00:31:40.220
relationship and embed that kind of relationship

00:31:40.220 --> 00:31:43.839
where they can say what they need or can say

00:31:43.839 --> 00:31:46.039
when something is or isn't helpful because without

00:31:46.039 --> 00:31:48.480
that they're just going to stay in that unsafe

00:31:48.480 --> 00:31:51.279
mode you know it's really important to try and

00:31:51.279 --> 00:31:52.960
build on that relationship and that trust as

00:31:52.960 --> 00:31:56.380
much as you can And that starts with you liking

00:31:56.380 --> 00:31:58.640
and loving and advocating for their child as

00:31:58.640 --> 00:32:01.180
much as they are. I think if they see that, that

00:32:01.180 --> 00:32:04.559
is a really easy way of building trust with them

00:32:04.559 --> 00:32:06.759
because ultimately that is all they want from

00:32:06.759 --> 00:32:08.880
the world is just for their child to be seen

00:32:08.880 --> 00:32:11.420
and heard and loved. So even if you can't do

00:32:11.420 --> 00:32:13.779
anything with the parent, just love their child,

00:32:13.799 --> 00:32:17.759
I would say, is probably the easiest advice I

00:32:17.759 --> 00:32:20.900
could give because it just means, I mean, God,

00:32:21.019 --> 00:32:23.839
I've had parents in tears over. burnout for sure

00:32:23.839 --> 00:32:26.180
but when they really go is when they just see

00:32:26.180 --> 00:32:29.059
that we love and see their child because they

00:32:29.059 --> 00:32:33.839
just yeah relief finally it's not just me that

00:32:33.839 --> 00:32:36.940
loves their child see no it's not just me that

00:32:36.940 --> 00:32:40.160
doesn't see him as unlikable unlovable unteachable

00:32:40.160 --> 00:32:42.119
and all those things that they've been maybe

00:32:42.119 --> 00:32:45.130
not told as clearly as that but through behaviors

00:32:45.130 --> 00:32:46.869
of other people or through attitudes of other

00:32:46.869 --> 00:32:48.849
people they've certainly been shown that they

00:32:48.849 --> 00:32:51.869
think those things so just to love their child

00:32:51.869 --> 00:32:54.210
and see and advocate for their child as much

00:32:54.210 --> 00:32:57.130
as they do is a huge start you know and then

00:32:57.130 --> 00:32:59.230
work off of that in that relationship building

00:32:59.230 --> 00:33:01.690
that certainly that's certainly the way i go

00:33:01.690 --> 00:33:05.750
is um and as a as a special education teacher

00:33:05.750 --> 00:33:07.630
and all teachers are special education teachers

00:33:07.630 --> 00:33:12.940
um these days I think it is crucial that we prioritise

00:33:12.940 --> 00:33:15.259
those relationships. It's a really intimate relationship,

00:33:15.500 --> 00:33:18.900
the teacher -parent relationship when you've

00:33:18.900 --> 00:33:21.779
got a send child, because your child might not

00:33:21.779 --> 00:33:24.660
be able to communicate between home and school

00:33:24.660 --> 00:33:26.819
as well as other children can. Even if they have

00:33:26.819 --> 00:33:28.819
words, they still might not be able to communicate

00:33:28.819 --> 00:33:31.079
what's happened. You know, they're quite vulnerable

00:33:31.079 --> 00:33:32.880
in that way and that can breed a lot of fear.

00:33:33.619 --> 00:33:35.980
So as teachers, if we're really supporting that

00:33:35.980 --> 00:33:40.329
communication. and yeah building that relationship

00:33:40.329 --> 00:33:43.170
we have our kids in our class for seven years

00:33:43.170 --> 00:33:46.769
um and we're like family by the time they leave

00:33:46.769 --> 00:33:50.430
year six we really are um I love that I know

00:33:50.430 --> 00:33:52.829
what football teams they support and all their

00:33:52.829 --> 00:33:55.490
siblings names and you know their dad's names

00:33:55.490 --> 00:33:57.190
and their grandma I recognize at the gate and

00:33:57.190 --> 00:33:59.890
all those wonderful things you just know them

00:33:59.890 --> 00:34:02.690
so intimately and even if you've got a child

00:34:02.690 --> 00:34:04.809
for a year you know I think it's really important

00:34:04.809 --> 00:34:09.829
that we We, as teachers, prioritise that, actually

00:34:09.829 --> 00:34:12.269
really seeing the family, knowing the family

00:34:12.269 --> 00:34:15.949
and not just doing the... Absolutely. I think

00:34:15.949 --> 00:34:19.210
it feels often our kids that have got additional

00:34:19.210 --> 00:34:22.010
needs are quite vulnerable in whatever way it

00:34:22.010 --> 00:34:26.349
is. Even those kids that maybe their behaviours

00:34:26.349 --> 00:34:28.849
are bigger behaviours, more outward behaviours,

00:34:28.849 --> 00:34:35.690
that even those kids are vulnerable. But us as

00:34:35.690 --> 00:34:39.730
parents to go, yeah, have my child. You know,

00:34:39.730 --> 00:34:41.750
I remember sometimes my kids going to school

00:34:41.750 --> 00:34:44.869
and everything in me is screaming, don't send

00:34:44.869 --> 00:34:47.969
them. Keep hold of them. They're not safe. You

00:34:47.969 --> 00:34:50.389
keep hold of them. I don't trust what's going

00:34:50.389 --> 00:34:53.050
to happen when they're out of my sight. And some

00:34:53.050 --> 00:34:54.489
people would go, oh, that's overattachment and

00:34:54.489 --> 00:34:56.230
all that kind of stuff. No, I think that was

00:34:56.230 --> 00:34:59.050
just being a mum and being a mum. They're not

00:34:59.050 --> 00:35:01.849
safe. Let's be honest. Like in school, sometimes

00:35:01.849 --> 00:35:04.300
their needs aren't met. best they can sometimes

00:35:04.300 --> 00:35:06.820
they're not heard or listened to sometimes damaging

00:35:06.820 --> 00:35:09.960
and harmful systems are used so actually as a

00:35:09.960 --> 00:35:11.579
parent it's really important you listen to that

00:35:11.579 --> 00:35:13.800
gut sense because let's safeguard your children

00:35:13.800 --> 00:35:16.619
and definitely have that open communication and

00:35:16.619 --> 00:35:19.360
definitely be that tricky parent of questioning

00:35:19.360 --> 00:35:21.639
systems things if they don't feel right in your

00:35:21.639 --> 00:35:24.500
gut please question them I'd way rather be questioned

00:35:24.500 --> 00:35:27.860
and you know, have a moment to either justify

00:35:27.860 --> 00:35:30.340
my response or maybe question what I'm doing

00:35:30.340 --> 00:35:33.059
if a parent isn't sure. So please be that tricky

00:35:33.059 --> 00:35:36.139
parent first off. And please give us as much

00:35:36.139 --> 00:35:38.179
information as you want us to know. Something

00:35:38.179 --> 00:35:41.039
that I get asked a lot when children are starting

00:35:41.039 --> 00:35:42.980
school for the first time, whatever age they

00:35:42.980 --> 00:35:44.400
are, you know, they could be starting a new setting

00:35:44.400 --> 00:35:46.539
or whatever, what information to give. And I

00:35:46.539 --> 00:35:49.619
just say... give me everything. Don't worry about

00:35:49.619 --> 00:35:51.579
being that parent of like, oh, they do this on

00:35:51.579 --> 00:35:53.159
a Monday and they don't like this and they do

00:35:53.159 --> 00:35:55.019
that. Please tell us everything because it gives

00:35:55.019 --> 00:35:57.619
us something to work off of. I love the parents

00:35:57.619 --> 00:35:59.360
that write in the homeschool book every day and

00:35:59.360 --> 00:36:02.260
are calling, emailing and all those things or

00:36:02.260 --> 00:36:04.260
talking to us at the gate because it gets us

00:36:04.260 --> 00:36:06.019
to know you and your child and it definitely

00:36:06.019 --> 00:36:08.360
makes the job. a lot easier and then maybe as

00:36:08.360 --> 00:36:09.820
teachers we could be doing the same for parents

00:36:09.820 --> 00:36:11.960
making sure we're communicating what they've

00:36:11.960 --> 00:36:13.840
done that day what they found tricky you know

00:36:13.840 --> 00:36:15.780
what isn't going well and being honest about

00:36:15.780 --> 00:36:18.440
that rather than hiding it I feel like goes a

00:36:18.440 --> 00:36:20.380
long way about building that trust as well what

00:36:20.380 --> 00:36:23.019
are we struggling with maybe we ask the parent

00:36:23.019 --> 00:36:24.860
what they do what have they tried what do they

00:36:24.860 --> 00:36:28.289
suggest you know giving them a voice for the

00:36:28.289 --> 00:36:32.510
first time um advocate for their child and to

00:36:32.510 --> 00:36:34.730
support us to support them i think is really

00:36:34.730 --> 00:36:36.429
important because ultimately the parent is the

00:36:36.429 --> 00:36:39.170
expert in their in their child yeah we talk about

00:36:39.170 --> 00:36:41.429
experts and parents the parents are the experts

00:36:41.429 --> 00:36:44.469
but often i think they don't feel well they might

00:36:44.469 --> 00:36:46.750
feel it but they it's not acknowledged as that

00:36:46.750 --> 00:36:48.550
and i think you know i even experienced that

00:36:48.550 --> 00:36:52.920
going into meetings for my son is I've run meetings,

00:36:53.119 --> 00:36:55.699
I've run an EHCP, I've done all sorts of stuff

00:36:55.699 --> 00:36:57.960
as an occupational therapist. But when I went

00:36:57.960 --> 00:37:02.840
into a meeting as a mum, as my son's mum, I suddenly

00:37:02.840 --> 00:37:06.019
felt I had no voice. My voice disappeared. And

00:37:06.019 --> 00:37:07.880
actually in some of those meetings, I had more

00:37:07.880 --> 00:37:09.699
experience than some of the people running those

00:37:09.699 --> 00:37:13.199
meetings. Yeah. And yet my voice wasn't... What

00:37:13.199 --> 00:37:16.860
could be done better to... enable your voice

00:37:16.860 --> 00:37:19.179
because if you don't have a voice then my goodness

00:37:19.179 --> 00:37:21.000
what are other parents doing that don't have

00:37:21.000 --> 00:37:23.480
the degree and the experience and the know -how

00:37:23.480 --> 00:37:25.880
and know all the acronyms and the words you know

00:37:25.880 --> 00:37:27.880
that some parents really don't know that they

00:37:27.880 --> 00:37:29.980
find meetings or just being in school incredibly

00:37:29.980 --> 00:37:34.480
triggering what can we do to support that because

00:37:34.480 --> 00:37:38.239
that's the first step isn't it it has to be it

00:37:38.239 --> 00:37:40.380
has to be and it's listening And it's really

00:37:40.380 --> 00:37:43.219
listening. It's not just going, oh, you know,

00:37:43.239 --> 00:37:45.199
Mrs. Whatever or Miss Whoever, because I'm a

00:37:45.199 --> 00:37:47.400
miss, is that, you know, do you want to give

00:37:47.400 --> 00:37:49.900
us some feedback? And it's kind of like a formality

00:37:49.900 --> 00:37:53.760
in the meeting. And there's got to be a space

00:37:53.760 --> 00:37:58.139
for that parent's voice that people properly

00:37:58.139 --> 00:38:00.619
listen to and don't just go, yeah, we've got

00:38:00.619 --> 00:38:03.039
mum's opinion. And we're on to the next bit.

00:38:03.139 --> 00:38:05.719
Let's get a professional in now to give us their

00:38:05.719 --> 00:38:08.639
opinion. And we need the professionals in there

00:38:08.639 --> 00:38:10.519
because as parents, we don't know everything

00:38:10.519 --> 00:38:14.239
in that sense, but we do know our kids. And I

00:38:14.239 --> 00:38:17.500
think one, it's being listened to, but two, it's

00:38:17.500 --> 00:38:19.980
finding a way that that parent can communicate

00:38:19.980 --> 00:38:22.340
in that meeting. I have parents that come to

00:38:22.340 --> 00:38:24.219
me that say they get into a meeting and then

00:38:24.219 --> 00:38:26.559
they can't speak. They're so intimidated by being

00:38:26.559 --> 00:38:30.400
in there. They can't speak. parents that go in

00:38:30.400 --> 00:38:33.559
that might be dyslexic like i am and they struggle

00:38:33.559 --> 00:38:35.659
to hold the information in their head that they

00:38:35.659 --> 00:38:37.599
want to get through and then they come out and

00:38:37.599 --> 00:38:39.880
go oh i wish i'd said whatever and they haven't

00:38:39.880 --> 00:38:42.420
been able to there might be parents that are

00:38:42.420 --> 00:38:44.300
neurodivergent in other ways they could be autistic

00:38:44.300 --> 00:38:47.780
or adhd and they find meetings particularly difficult

00:38:47.780 --> 00:38:51.860
so is there a way make me normalizing you know

00:38:51.860 --> 00:38:53.460
if you want to bring in somebody to help you

00:38:53.460 --> 00:38:55.719
that's okay if you want to write things down

00:38:55.719 --> 00:38:58.920
that's okay if you prefer to have it on Zoom

00:38:58.920 --> 00:39:01.960
call because that's easier. That's okay. If you'd

00:39:01.960 --> 00:39:04.059
prefer to do it by email because we can bullet

00:39:04.059 --> 00:39:07.679
point it, that's okay. Find a way they can do

00:39:07.679 --> 00:39:10.659
it. That's okay. And just so you know about EHCP

00:39:10.659 --> 00:39:13.619
meetings, we have 15 days after the meeting before

00:39:13.619 --> 00:39:17.119
the thing needs sending off. So if you want the

00:39:17.119 --> 00:39:19.320
meeting and then have think of thoughts, oh,

00:39:19.340 --> 00:39:20.420
I should have said this, I should have said this,

00:39:20.420 --> 00:39:23.480
please email because we can include whatever

00:39:23.480 --> 00:39:27.079
you want. from 15 days from the point of the

00:39:27.079 --> 00:39:29.780
meeting in that paperwork i'd way rather you

00:39:29.780 --> 00:39:32.920
do that than not do it at all it's so important

00:39:32.920 --> 00:39:36.199
your voice is embedded in this paperwork because

00:39:36.199 --> 00:39:39.219
you are the most important person at that meeting

00:39:39.219 --> 00:39:43.000
and ehcp reviews again reviews can bring with

00:39:43.000 --> 00:39:44.780
them a lot of stress as well you know a lot of

00:39:44.780 --> 00:39:46.659
parents have been through a lot getting their

00:39:46.659 --> 00:39:49.300
ehcp in place um every year you know even for

00:39:49.300 --> 00:39:51.679
me when i'm going through my review for the atos

00:39:51.679 --> 00:39:54.480
package every year i think Are they going to

00:39:54.480 --> 00:39:57.099
take it away from me every year? And I'm anxious

00:39:57.099 --> 00:39:58.760
before I get there. I don't know what the local

00:39:58.760 --> 00:40:00.579
authority are going to come with or because the

00:40:00.579 --> 00:40:02.639
local authority run mine. I think sometimes in

00:40:02.639 --> 00:40:04.739
schools, you don't get much input from the local

00:40:04.739 --> 00:40:08.820
authority each year. There is being mindful as

00:40:08.820 --> 00:40:10.199
well in those times that those parents are going

00:40:10.199 --> 00:40:13.340
to come with maybe not experience of your school

00:40:13.340 --> 00:40:16.400
or your place of provision, but they've come

00:40:16.400 --> 00:40:20.260
with experience from elsewhere that they're not

00:40:20.260 --> 00:40:24.260
always listened to or believed or heard. when

00:40:24.260 --> 00:40:26.460
it comes to those things and on all of that adds

00:40:26.460 --> 00:40:29.360
up and that constant kind of drip drip stress

00:40:29.360 --> 00:40:32.400
effect is where we end up down those burnout

00:40:32.400 --> 00:40:35.980
routes for parents the capacity is reached and

00:40:35.980 --> 00:40:38.619
they're out over the top and and then my worry

00:40:38.619 --> 00:40:40.659
is for people when they burn out is the recovery

00:40:40.659 --> 00:40:42.960
is so much longer than the prevention if that

00:40:42.960 --> 00:40:45.690
makes sense yeah If we can get the prevention

00:40:45.690 --> 00:40:47.809
in there and the protection in there, you're

00:40:47.809 --> 00:40:49.789
protecting so many other people than just a parent

00:40:49.789 --> 00:40:52.110
because there is a definite ripple effect. And

00:40:52.110 --> 00:40:54.369
that's not placing blame on those parents, but

00:40:54.369 --> 00:40:56.150
there will be a ripple effect for a parent's

00:40:56.150 --> 00:40:59.210
burnout. Yeah. Yeah. And they don't want that.

00:40:59.250 --> 00:41:03.730
No one wants that. So if you're listening to

00:41:03.730 --> 00:41:07.349
this and you think it's you, then yeah, definitely

00:41:07.349 --> 00:41:11.190
reach out to... Liz or take on some of that advice

00:41:11.190 --> 00:41:13.409
and try and think of you know think of some things

00:41:13.409 --> 00:41:17.250
that you can add or take away from your day to

00:41:17.250 --> 00:41:19.789
make things more manageable and if you have someone

00:41:19.789 --> 00:41:22.690
in your life whatever in whatever kind of relationship

00:41:22.690 --> 00:41:25.750
with you that this kind of you're you're thinking

00:41:25.750 --> 00:41:28.110
of that person as we're talking then maybe see

00:41:28.110 --> 00:41:29.590
if there's some things that you can take off

00:41:29.590 --> 00:41:32.559
of their plate too and be that person because

00:41:32.559 --> 00:41:34.219
you might be the only person that recognizes

00:41:34.219 --> 00:41:36.719
them that in themselves maybe you could be that

00:41:36.719 --> 00:41:39.920
person that sees them for the first time in a

00:41:39.920 --> 00:41:42.920
long time and it can be really tiny little things

00:41:42.920 --> 00:41:45.840
that I had somebody when I was in burnout turned

00:41:45.840 --> 00:41:49.460
up at my front door with a meal cooked and they

00:41:49.460 --> 00:41:51.659
didn't stay didn't ask anything of me they just

00:41:51.659 --> 00:41:54.159
went I was making it I had some leftover they

00:41:54.159 --> 00:41:56.159
didn't they made it for me I know they did but

00:41:56.159 --> 00:41:58.190
that's not what they told me Thought you might

00:41:58.190 --> 00:42:00.369
like it. And handed that to me. My kids were

00:42:00.369 --> 00:42:01.809
never going to eat it because they're the pickiest

00:42:01.809 --> 00:42:04.610
eaters in the world. But it meant I didn't have

00:42:04.610 --> 00:42:06.610
to cook yet another meal that night. And it just

00:42:06.610 --> 00:42:11.170
took a bit of load off me in that moment. And

00:42:11.170 --> 00:42:13.829
that made such a difference to me. Just something

00:42:13.829 --> 00:42:16.309
little like that. Yeah, and it's not even about

00:42:16.309 --> 00:42:18.829
the meal, is it? It's about that person taking

00:42:18.829 --> 00:42:23.630
the time to see you and do something. Yeah, you

00:42:23.630 --> 00:42:25.510
were in somebody else's thoughts. Somebody else

00:42:25.510 --> 00:42:28.380
was, let's face it. We want to be thought about.

00:42:28.420 --> 00:42:30.360
We want to be held in mind. No one wants to be

00:42:30.360 --> 00:42:33.239
forgotten. And actually little things like that

00:42:33.239 --> 00:42:36.059
show that somebody's kept you in mind. And that

00:42:36.059 --> 00:42:39.059
means a lot. Definitely. Such an important conversation.

00:42:39.159 --> 00:42:42.179
If people are listening to this, what would you

00:42:42.179 --> 00:42:47.880
want them to take from this conversation? I think

00:42:47.880 --> 00:42:50.559
the biggest thing is that... It sounds a bit

00:42:50.559 --> 00:42:52.760
cliche, but burnout isn't the end of the story.

00:42:53.059 --> 00:42:55.539
I think I'm very frightened of burnout. And I

00:42:55.539 --> 00:42:57.960
know that I still flirt around the edges of burnout.

00:42:58.099 --> 00:43:00.840
We're not immune to it. Things are going to happen

00:43:00.840 --> 00:43:04.539
in our lives. And if you do burn out or you feel

00:43:04.539 --> 00:43:07.159
you're burning out, it is not because you are

00:43:07.159 --> 00:43:09.719
less of a parent. You have failed in some way.

00:43:10.159 --> 00:43:14.789
It means that. the demands on you have outweighed

00:43:14.789 --> 00:43:17.429
your capacity it's not that you can't do it you

00:43:17.429 --> 00:43:20.210
don't have the skills to do it it means that

00:43:20.210 --> 00:43:23.050
actually the environment the situation that you

00:43:23.050 --> 00:43:26.789
found yourself in has exceeded your capacity

00:43:26.789 --> 00:43:30.510
and that is not a failure that's something else

00:43:30.510 --> 00:43:33.489
going on that and that's not the end of the story

00:43:33.489 --> 00:43:35.769
there are things you can put in place there's

00:43:35.769 --> 00:43:38.369
protections you can put in place and yeah don't

00:43:38.369 --> 00:43:40.349
give up it's not the end of the story the burnout

00:43:41.269 --> 00:43:43.630
Absolutely. If people want to find out more about

00:43:43.630 --> 00:43:46.489
you and how you support, where can they find

00:43:46.489 --> 00:43:49.750
you? So I've got my website. You can find me

00:43:49.750 --> 00:43:52.170
on that, which is the Untypical OT. If you put

00:43:52.170 --> 00:43:54.309
that into Google, it will pop up. I'm also on

00:43:54.309 --> 00:43:58.630
Facebook, Instagram and LinkedIn. And the other

00:43:58.630 --> 00:44:00.670
thing I suppose to pop in there is that a lot

00:44:00.670 --> 00:44:04.349
of parents don't always think one OT could help

00:44:04.349 --> 00:44:07.510
me. People think occupational therapy, that's

00:44:07.510 --> 00:44:09.650
my kids. Occupational therapy, they do the swing

00:44:09.650 --> 00:44:13.519
stuff. So I have got on my Facebook, on my website,

00:44:13.639 --> 00:44:16.860
there's a PDF about what is OT anyway. And it

00:44:16.860 --> 00:44:19.059
just talks through what an OT is. And actually,

00:44:19.239 --> 00:44:21.659
we don't just work with kids. We work with all

00:44:21.659 --> 00:44:24.559
across the lifespan. And parents often think

00:44:24.559 --> 00:44:28.179
I work with them to help their kids. By looking

00:44:28.179 --> 00:44:30.559
after us, I do help their kids. They do help

00:44:30.559 --> 00:44:33.679
their kids. But I work with parents to support

00:44:33.679 --> 00:44:36.039
them and their mental health and their well -being.

00:44:36.079 --> 00:44:38.219
And you can find me on all of those social media

00:44:38.219 --> 00:44:41.239
platforms. Amazing. Thank you so much, Liz. Such

00:44:41.239 --> 00:44:42.760
an important conversation. I know this is going

00:44:42.760 --> 00:44:45.260
to be one that I share with many parents that

00:44:45.260 --> 00:44:47.500
I get in my DMs. So thank you so much for being

00:44:47.500 --> 00:44:51.400
here. And I'll leave all the information that

00:44:51.400 --> 00:44:53.320
you've shared in the description down below.

00:44:53.420 --> 00:44:55.340
So if you need to clickable links, it'll be all

00:44:55.340 --> 00:44:58.119
down there. Thank you, Liz. Thanks for having

00:44:58.119 --> 00:44:58.260
me.
