WEBVTT

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Hi, my name is Jordan. I am a special education

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teacher from the UK. I share my passion for everything

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communication, sensory regulation and fun lesson

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ideas for my classroom of disabled pupils aged

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4 to 11. Each week I am joined by experts in

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the field answering your questions and sharing

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our knowledge and experience working alongside

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our beautiful young people. Let's get started.

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Hello everybody and welcome back to the Sensory

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Classroom podcast. Today I am joined by Richard,

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Supporting Service for Parents, to support with

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the process, the paperwork, the understanding

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of everything to do with SEN as far as I can

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see from your website. Hello Richard. Hello Jordan,

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thank you for having us. You are so welcome.

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When your team reached out I was so pleased because...

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I think about 99 % of messages I get is about

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the EHCP process or diagnosis. It's a whole new

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world and lots of parents are kind of brought

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into this world and jumped in the deep end and

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all these acronyms and everything. It's really

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confusing. It's quite terrifying. Absolutely.

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And all this medical jargon. all these words

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and therapists all of a sudden included or if

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you're lucky they're included i suppose um and

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it can be very overwhelming and that kind of

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doesn't seem to stop either i've got uh parents

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of teenagers uh and they're still navigating

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the system and the process and learning things

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yeah it's it's one of those incredibly frustrating

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situations where you think just just because

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you've been successful with getting an assessment

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and getting the HCP you almost think that that's

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it it's done and sadly that is just so far from

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the truth in so many instances and there's another

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battle to be done and now a transition and an

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annual review and it's yeah it's it's so overwhelming

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for so many people who had no idea that they

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were about to embark on this level of a journey

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in the battle absolutely so let's just talk about

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SOS SEN and what you offer parents So we are

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a charity that's been running for over 20 years.

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Primarily it was set up in Richmond to support

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a school there, but it's grown. The variety of

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services that we offer, we've got a number of

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services for free. So we have a free... helpline

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where people can call and speak to one of our

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advisors for sort of 20 30 minutes and ask the

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next next steps guidance we have several advice

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centers which are walk -in centers where people

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can come along bring their paperwork talk to

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us about their situations again they'll be with

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an advisor for 30 40 minutes talk through their

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case and find out their next steps again that's

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free And then we offer document writing services.

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So we've talked about EHCPs. When those come

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through to you, we have identified that local

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authorities, intentionally or unintentionally,

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they will put some language and wording in there

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that isn't actually helpful or isn't going to

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hold anyone to account. and what our team does

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is we will go through that report and we will

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pick out all of that sort of unhelpful language

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and we will help to rewrite that EHCP so as it

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is geared up to ensure that that child gets equitable

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education. There are a number of reasons why

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local authorities will either refuse to assess

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or refuse to issue EHCPs and blockages in place

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and parents then need to appeal those decisions

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so we will help them to write grounds for appeals

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and our team will support them in doing that

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the other thing that we do as well is pre -action

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protocol letters or judicial review letters so

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if a local authority are not quite acting lawfully

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our team will put letters together that have

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been created by our legal officer Linda Wright,

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who's got over 25 years of SEND law experience,

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she will write those letters that we can send

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across to the local authorities and just remind

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them of their lawful duties. We've found thus

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far in the last year that's had a 97 % success

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rate at getting local authorities to overturn

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decisions. Wow. They're kind of a good selection

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of things that we do. The bulk of what we're

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looking to do is to empower families so as they

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can navigate this really complicated system and

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ensure that all children and young people get

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equitable education. That's our open plan. Absolutely.

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And in the world as it should be. charities like

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yours shouldn't have to exist right every child

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should be in education they should be getting

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appropriate and suitable education they should

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have their legal needs and educational needs

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and health needs met you know so many jobs that

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charities do should just be being done right

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it's it's it breaks my heart that how needed

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and your charity is my goodness is it needed

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um yeah it kind of breaks my heart that it even

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should exist really I couldn't agree more. And

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I often say it's one of the weirdest sensations

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to lead an organisation like this because for

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a measure of success, what I really want is my

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success is that our charity has to close down

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because we're not needed anymore, which is the

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weirdest thing to say. But actually, I think

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it's horrific that a charity like ours has to

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exist. I'm pleased that we are there and that

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we can help and that we will continue to help.

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But I think it's dreadful that we have to even

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exist in order to do it. It's a shame. Yeah,

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absolutely. So you were talking about the free

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call -ins. What kind of questions are you regularly

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getting from, is it mainly parents? It's largely

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sort of parents and carers. From time to time

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we'll get calls from SENCOs or other professionals

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just saying, I don't know how, what do I need

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to do to support this family or how can I navigate

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them to you? But largely it's parents and carers.

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And what we tend to find is a lot of the calls

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are around the EHCPs. It's very much a case of

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my child has these needs and I need to get the

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support in place, but how do I do that? And often

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we are saying, do they have an EHCP? And we hear

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so many people say, no, the school has told us

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that we don't need one or that we don't qualify

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for one. the legal test to qualify for any hcp

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is actually it's a really i'm going to say it's

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a low bar um in in the sense of may this child

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have any special educational needs and may they

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benefit from any additional support class if

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if if the answers to those two things is yes

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qualify for any hdp so when we hear schools and

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local authorities saying no they don't qualify

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you know Have they put any different provision

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in place? Yes. Does your child have any additional

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needs? Yes. Didn't he ask for yes? And it's not

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even diagnose additional needs, is it? I know

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you can have an EHCP without a diagnosis, can't

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you? I think that's often... a misconception

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is oh but we're on the pathway for say an autism

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diagnosis it's going to take four years so we

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can't get an ehcp until then and that's just

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not the case is it it's not no and and you don't

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need that formal diagnosis because again it's

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it's the language that's used within the law

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may the child have um any additional needs or

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special educational needs it does not state does

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this child have or what what um especially educational

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needs as a child have so it's really really vague

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for the right reasons um so yeah they don't need

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the formal diagnosis obviously that helps but

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the local authorities should be putting provisions

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in place to do their own assessments to help

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families with that as well should yes northerly

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they absolutely should um and that's what we

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have to remind them of yeah yeah and they are

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over run under funded under staff as well you're

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right but i know that's not an excuse and they

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need to do their legal obligation just as we

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all do um but yeah that is why isn't it um and

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it's not just schools that can apply for ehc

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please is it parents can put in that initial

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referral right yeah absolutely um so To apply

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for any HCP, it can be either the school or the

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parent. There are merits to doing it both ways.

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You tend to find that if you are doing it through

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the school, then you've got a bit more backing

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and the local authority might pay more attention.

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But each local authority is different. But yeah,

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if you're finding that your school isn't prepared

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to submit that paperwork and put that through,

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then absolutely parents can do that independently.

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Maybe a little bit. Maybe that's when your support

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comes in as well. Maybe it needs to be worded

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in a maybe slightly different way or you to add

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certain things in there. Yeah, yeah. And we've

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got a whole backlog of webinars. And in there,

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we did a webinar on, I think it's called the

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Send 35 form, which is essentially applying for

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those things. I don't know if that's applying

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for the tribunal. I'm not the one who's legally

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trained. But we've done an awful lot of support

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on our webinars on how to apply for AHCPs, what

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should it look like, how to apply to tribunal.

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All of those things are there to just, again,

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further empower the families. I can imagine that's

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really helpful because even when you get the

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AHCP, it's such a massive... of lots and lots

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of different words, like I said at the beginning,

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lots of different acronyms, and it's the legal

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requirements. As a parent, I can imagine, and

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as a teacher, I certainly feel it, you want to

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get it right. But when you've got 15 days to

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check that it's all right, it can be a real huge

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pressure and lots of things can get missed. Are

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there any things that you particularly, any areas

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of the EHCP that you would particularly focus

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on or you would ensure that we had in place?

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Or is it kind of different for every child? I

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think it's very, very different for every child.

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And I think it's important that within that plan,

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all of the needs are identified, clearly identified.

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And then any provisions that are being put in

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place need to be, essentially they need to follow

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the SMART model and they need to be... incredibly

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specific we see an awful lot of times in ehcps

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there's very vague language used so um this child

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may benefit from a one -to -one they go well

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sure they may yeah because they don't want to

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commit because they don't want to commit to yeah

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because any if you say some do you need something

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in the ehcp then it's a legal obligation is that

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is that accurate essentially yeah it means that

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you can then hold the score to account and say

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because again what we would do is we would then

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say how many hours one -to -one does this child

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need and who is going to be that one -to -one

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and then it would be how many hours are they

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putting in place who is managing that who's training

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it we made that very very specific and we put

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all of those things in place and essentially

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we we help families to make sure that language

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is there so as they can then hold the school

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to account and say, well, hold on, you've told

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me that for 10 hours a week, my child's going

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to get one -to -one by a trained autism friendly

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specialist. And I know that last week they only

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had five hours and that's consistent what's going

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on. It means that they can then hold the school

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to account for those things. Absolutely. So for

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those that are listening that haven't heard of

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smart targets before, if they need to be specific.

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They need to be measurable. They need to be achievable.

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They need to be realistic and they need to be

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timed. So by timed, it means to be given to a

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certain date. So by the time they're in year

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one or by the time they leave key stage two or

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next term, whatever it is, they need to be timed.

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And that's what a smart target is. And you're

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absolutely right. It keeps the school and it

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keeps the county and it keeps the young person

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and the parents all accountable, doesn't it?

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To achieving these things. And I think actually

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it's exactly that. It keeps everyone to account

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and it gives everyone a fair and reasonable understanding

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of what are we looking for? What are we hoping

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to achieve from doing this? And if we review

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this next year and no progress has been made,

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but all of the provisions have been put in place,

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well, then we know. We did all of those things

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right, but that didn't get the desired outcome.

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So what needs to change? And it just helps us

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to kind of log that and move those thoughts forward.

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In that view, actually, sometimes as a teacher,

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because I'm somebody that writes the EHCP, so

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I'm kind of on the other side of it. And sometimes

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my young people don't achieve the target in the

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given time, but all the provision is in place.

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And sometimes it is a bit of guesswork as to

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how... far they can get in that given time frame

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I've also had children that have way out past

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it and you look back and think why did I write

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that target you're way ahead so it is estimate

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isn't it and and we can only guess and make assumptions

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with the team around the child with the parents

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with the therapist whoever's involved it's a

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it's a best guess as to by the time they're in

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this with all this support in place we hope or

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we believe that they could achieve this, isn't

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it? And I think it's not being afraid to admit

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actually that progress wasn't made, but the provision

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was in place. Essentially, we have to accept

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there is no box tick here. It's, oh, this young

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person has autism and that young person has autism.

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That does not mean that those two people are

00:15:02.120 --> 00:15:05.019
going to... followed the exact same path in their

00:15:05.019 --> 00:15:08.100
education but that's the same for any human being

00:15:08.100 --> 00:15:13.220
right we we all have unique um elements and factors

00:15:13.220 --> 00:15:16.179
coming into our lives and we all learn differently

00:15:16.179 --> 00:15:19.259
so i think you're absolutely right you you could

00:15:19.259 --> 00:15:22.120
look at that child and go based on the assessment

00:15:22.120 --> 00:15:24.940
based on my understanding based on my skills

00:15:24.940 --> 00:15:27.679
i believe if we put these things in place we

00:15:27.679 --> 00:15:30.960
will be able to achieve these things then reflecting

00:15:30.960 --> 00:15:32.759
and saying, we did put those things in place

00:15:32.759 --> 00:15:36.519
and it didn't work. I think we need to feel safe

00:15:36.519 --> 00:15:40.379
and confident that that can happen. And a lot

00:15:40.379 --> 00:15:43.379
of the work that we do with parents is about

00:15:43.379 --> 00:15:45.940
building that relationship with school, not kind

00:15:45.940 --> 00:15:49.799
of marching through the doors and banging on

00:15:49.799 --> 00:15:51.419
the doors and saying, you know, you've messed

00:15:51.419 --> 00:15:54.039
up. You need to have a good relationship with

00:15:54.039 --> 00:15:56.320
schools and say, you know, what else can we do?

00:15:56.970 --> 00:15:58.850
Are there any other training sessions? Are there

00:15:58.850 --> 00:16:01.549
any other sort of models that we can adopt? All

00:16:01.549 --> 00:16:04.590
things like that to kind of acknowledge that

00:16:04.590 --> 00:16:07.070
if everyone's pulling in the right direction,

00:16:07.169 --> 00:16:09.370
that's when we'll see progress for that child.

00:16:09.649 --> 00:16:12.590
Yeah, and maybe use the EHCP review as an opportunity

00:16:12.590 --> 00:16:15.330
to be curious about why that wasn't achieved.

00:16:15.429 --> 00:16:17.110
Was it achievable in the first place? Maybe it

00:16:17.110 --> 00:16:20.879
wasn't a smart target. um maybe uh they've had

00:16:20.879 --> 00:16:24.539
lots of medication complications um or hospital

00:16:24.539 --> 00:16:27.120
visits or maybe they've had about sickness or

00:16:27.120 --> 00:16:29.059
maybe they've had a change in key worker like

00:16:29.059 --> 00:16:31.259
there's lots of different reasons why a child

00:16:31.259 --> 00:16:32.720
might not achieve a target it's really important

00:16:32.720 --> 00:16:34.320
to put that on there as well isn't it because

00:16:34.320 --> 00:16:37.240
that gives a real great reflection in the ehcp

00:16:37.240 --> 00:16:40.600
review as you're reviewing it to be curious why

00:16:40.600 --> 00:16:43.679
why didn't they or why did they completely like

00:16:43.679 --> 00:16:47.320
blow this target out of the water you know Were

00:16:47.320 --> 00:16:51.139
we being too limited in our expectations of this

00:16:51.139 --> 00:16:54.200
child and to reflect on that as well? Yeah, absolutely.

00:16:54.840 --> 00:16:58.720
And I think that's beauty and that's how it should

00:16:58.720 --> 00:17:02.639
be. We should always be curious about what's

00:17:02.639 --> 00:17:05.400
happening for our children, what they need, what's

00:17:05.400 --> 00:17:09.839
working, what's not working. And if we kind of

00:17:09.839 --> 00:17:12.299
have that baseline of where they're at and then

00:17:12.299 --> 00:17:15.960
when things aren't there, what's happening? You

00:17:15.960 --> 00:17:19.359
know, how can we help? And I noticed that when

00:17:19.359 --> 00:17:21.900
it comes to the afternoon sessions, that's when

00:17:21.900 --> 00:17:24.279
they're struggling to focus. So what's happened

00:17:24.279 --> 00:17:28.339
between now and then? And what's something that

00:17:28.339 --> 00:17:31.039
we might be able to put in place to support them?

00:17:31.559 --> 00:17:35.539
And I think, you know, we need to accept and

00:17:35.539 --> 00:17:39.740
we need to acknowledge and give credit to teachers

00:17:39.740 --> 00:17:44.720
as well because they're in a room with 30 children.

00:17:47.360 --> 00:17:51.900
33 sometimes by themselves yeah um and they are

00:17:51.900 --> 00:17:57.640
they are dealing with 30 plus individuals all

00:17:57.640 --> 00:18:00.259
with personalities all with home lives all with

00:18:00.259 --> 00:18:03.960
emotional sort of mental health and physical

00:18:03.960 --> 00:18:06.279
health like all of those needs are there and

00:18:06.279 --> 00:18:09.220
they're coming into that room to to ask a teacher

00:18:09.220 --> 00:18:11.400
even if that teacher has an additional support

00:18:11.400 --> 00:18:14.250
in the room to ask that teacher to have an acute

00:18:14.250 --> 00:18:16.650
awareness of every single one of those people

00:18:16.650 --> 00:18:21.049
and to constantly know every single thing and

00:18:21.049 --> 00:18:24.549
get every every single thing right that's a big

00:18:24.549 --> 00:18:28.130
ask okay and we have to acknowledge that sometimes

00:18:28.130 --> 00:18:32.849
teachers are allowed to be human too they're

00:18:32.849 --> 00:18:35.289
allowed to make those errors but again we we

00:18:35.289 --> 00:18:37.609
go back to what support is in place and is everyone

00:18:37.609 --> 00:18:39.950
trying to pull together for the right sort of

00:18:39.950 --> 00:18:43.609
end result i think lots of teachers love their

00:18:43.609 --> 00:18:45.809
pupils and love the job and definitely want to

00:18:45.809 --> 00:18:47.349
do what's best for their pupils I don't think

00:18:47.349 --> 00:18:50.930
there are many teachers that don't go into this

00:18:50.930 --> 00:18:53.369
job for the right reasons absolutely but also

00:18:53.369 --> 00:18:55.289
there's very little training for us I don't think

00:18:55.289 --> 00:18:57.970
parents understand that I was so I'm a special

00:18:57.970 --> 00:18:59.950
education teacher now but I was primary school

00:18:59.950 --> 00:19:03.210
teacher trained and we didn't talk about EHCPs

00:19:03.210 --> 00:19:06.430
in my training we didn't talk about special education

00:19:06.430 --> 00:19:09.509
in my training we spoke about dyslexia So I just

00:19:09.509 --> 00:19:12.049
want parents to know as well that teachers are

00:19:12.049 --> 00:19:14.269
very much relying on the SENCO. And the SENCO

00:19:14.269 --> 00:19:17.609
is very much relying on their little training.

00:19:18.990 --> 00:19:21.329
Don't assume that the teachers just know this

00:19:21.329 --> 00:19:22.750
stuff and are taught this stuff and are choosing

00:19:22.750 --> 00:19:25.710
not to do it. They might genuinely not know.

00:19:25.769 --> 00:19:27.990
And that's not through lack of care. It's just

00:19:27.990 --> 00:19:32.150
through lack of training, really. The world of

00:19:32.150 --> 00:19:34.710
disability and special educational needs is constantly

00:19:34.710 --> 00:19:38.470
growing and evolving. I've worked within the

00:19:38.470 --> 00:19:41.809
world of special educational needs. I've worked

00:19:41.809 --> 00:19:46.490
within that field within the last 10 to 12 years.

00:19:47.809 --> 00:19:51.549
It's only when I started working at SOS SEN that

00:19:51.549 --> 00:19:55.190
I started to learn a lot more about neurodiversity.

00:19:56.890 --> 00:19:59.450
I'd never, and this isn't a special education,

00:19:59.650 --> 00:20:02.809
I'd never heard of the term aotus education other

00:20:02.809 --> 00:20:05.750
than at school. And I was like, okay, what is

00:20:05.750 --> 00:20:10.230
this? What do I need to learn? We are now identifying

00:20:10.230 --> 00:20:15.509
so many forms of neurodiversity and we're celebrating

00:20:15.509 --> 00:20:19.109
that as we should. We are also finding that a

00:20:19.109 --> 00:20:22.549
lot of adults are late diagnosed with neurodiversity

00:20:22.549 --> 00:20:27.349
and they are looking going, actually. i've navigated

00:20:27.349 --> 00:20:30.150
the system but here's some of those things so

00:20:30.150 --> 00:20:31.970
we are constantly learning constantly evolving

00:20:31.970 --> 00:20:35.049
and i think again if we are curious about that

00:20:35.049 --> 00:20:40.470
and feel safe to get it wrong because as we are

00:20:40.470 --> 00:20:43.109
learning we're going to use language that isn't

00:20:43.109 --> 00:20:46.529
isn't hasn't quite landed and it's kind of evolving

00:20:46.529 --> 00:20:49.670
um i know certainly with my work there's a number

00:20:49.670 --> 00:20:52.940
of um there's a number within my team that um

00:20:52.940 --> 00:20:57.039
self -identify um and diagnosis of neurodiversity

00:20:57.039 --> 00:20:59.380
and i'm learning about those things and i'm learning

00:20:59.380 --> 00:21:02.859
what measures i can put in place to make reasonable

00:21:02.859 --> 00:21:06.279
adjustments to support them right and i think

00:21:06.279 --> 00:21:08.279
we need to feel safe to be able to do that and

00:21:08.279 --> 00:21:10.359
to learn and to ask those questions and to be

00:21:10.359 --> 00:21:14.579
able to and i think continue to build that relationship

00:21:14.579 --> 00:21:19.680
between school and and teacher and and parent

00:21:19.680 --> 00:21:24.000
and say actually I'm really curious about autism.

00:21:24.140 --> 00:21:26.539
I've never experienced autism before. Could you

00:21:26.539 --> 00:21:29.220
come and actually talk to me about it? I'd love

00:21:29.220 --> 00:21:32.440
to learn. I know certainly from my own personal

00:21:32.440 --> 00:21:36.319
experiences, I'm an adoptive parent. And quite

00:21:36.319 --> 00:21:38.240
often we would have to go into the schools and

00:21:38.240 --> 00:21:40.180
spend time with the teachers and say, I'd like

00:21:40.180 --> 00:21:42.680
to talk to you about adoption. I'd like to talk

00:21:42.680 --> 00:21:44.839
to you about children in care and some of their

00:21:44.839 --> 00:21:49.369
own sort of... challenges difficulties or traumas

00:21:49.369 --> 00:21:51.509
that may affect their their behavior in the classroom

00:21:51.509 --> 00:21:54.230
i think that's wonderful because the parents

00:21:54.230 --> 00:21:57.250
because it's an open safe conversation isn't

00:21:57.250 --> 00:21:59.829
it and ultimately as the parent you're not only

00:21:59.829 --> 00:22:02.450
supporting your own child in that class you're

00:22:02.450 --> 00:22:05.930
you're supporting all future children yeah that

00:22:05.930 --> 00:22:08.410
that teacher may that may come across i think

00:22:08.410 --> 00:22:11.430
that's a wonderful thing to do i i think so i

00:22:11.430 --> 00:22:14.490
think the more that families can do that and

00:22:14.490 --> 00:22:16.670
they can get involved in their schools There

00:22:16.670 --> 00:22:19.710
were times even in our own journey where I met

00:22:19.710 --> 00:22:22.450
some teachers that were disengaged. They weren't

00:22:22.450 --> 00:22:24.869
interested in learning about adoption trauma

00:22:24.869 --> 00:22:27.809
and what that meant. And you understand, you

00:22:27.809 --> 00:22:30.109
get frustrated and you go, okay, that's not the

00:22:30.109 --> 00:22:32.950
one I'm going to win. But then other teachers

00:22:32.950 --> 00:22:38.549
welcomed us into the space and asked an abundance

00:22:38.549 --> 00:22:41.250
of questions. So when you're in that environment

00:22:41.250 --> 00:22:44.089
and if you have that relationship, harbour it.

00:22:44.460 --> 00:22:46.839
and throw everything you've got at that relationship

00:22:46.839 --> 00:22:49.559
because that's how you not only help your child,

00:22:49.599 --> 00:22:51.779
but you help, like you say, Jordan, you're going

00:22:51.779 --> 00:22:56.119
to help generations of children. And those teachers

00:22:56.119 --> 00:23:00.359
might then influence other teachers. And that's

00:23:00.359 --> 00:23:02.779
how we grow. That's how we learn by just continuing

00:23:02.779 --> 00:23:08.279
to learn in our own sort of world what this means

00:23:08.279 --> 00:23:10.400
and how it impacts us and how it impacts somebody

00:23:10.400 --> 00:23:13.230
else. and trying as best as we can to understand

00:23:13.230 --> 00:23:15.309
the empathy of how is this going to feel for

00:23:15.309 --> 00:23:19.289
that child um and they're not they're not just

00:23:19.289 --> 00:23:21.849
being difficult they're not they're not just

00:23:21.849 --> 00:23:25.509
trying to misbehave just because isn't that fun

00:23:25.509 --> 00:23:29.369
i mean i wish i was wearing yesterday yesterday

00:23:29.369 --> 00:23:32.329
i was wearing my no such thing as naughty jumper

00:23:32.329 --> 00:23:35.049
um which would have been quite good in this conversation

00:23:35.049 --> 00:23:37.130
because there absolutely is no such thing as

00:23:37.130 --> 00:23:40.049
naughty have you as a charity noticed an increase

00:23:40.049 --> 00:23:44.210
in Because everyone's talking about, you know,

00:23:44.289 --> 00:23:47.529
over -diagnosis. Everyone's autistic these days,

00:23:47.529 --> 00:23:49.670
and I'm sure you can guess what I think about

00:23:49.670 --> 00:23:53.170
that. But have you noticed as a charity an increase

00:23:53.170 --> 00:23:58.690
in this need? So the year prior to me coming

00:23:58.690 --> 00:24:03.509
on board, so between 22 to 23, our charity supported

00:24:03.509 --> 00:24:08.660
around about 1 ,200 families. The last financial

00:24:08.660 --> 00:24:12.460
year, so between 23 to 24, that went up to 3

00:24:12.460 --> 00:24:16.759
,400 families that we supported. This year alone,

00:24:16.759 --> 00:24:22.519
we're already on target to help 5 ,200. Yeah,

00:24:22.579 --> 00:24:28.359
so we're seeing exponential growth in this. I

00:24:28.359 --> 00:24:30.940
was going to say, what contributes towards that?

00:24:31.019 --> 00:24:32.519
Because I'm sure it's probably a few factors,

00:24:32.619 --> 00:24:36.339
isn't it? Yeah, I think it's a number of factors.

00:24:37.559 --> 00:24:40.099
By and large, I think people's awareness is growing.

00:24:40.299 --> 00:24:45.240
I think people are starting to understand what

00:24:45.240 --> 00:24:48.960
rights they have and they are talking more with

00:24:48.960 --> 00:24:53.160
other families and saying, well, what is an EHCP?

00:24:53.660 --> 00:24:56.019
How do I get one? What's the purpose? What's

00:24:56.019 --> 00:24:59.359
the point? We are also, like I said earlier,

00:24:59.539 --> 00:25:04.279
we're finding more adults are becoming self -aware

00:25:04.279 --> 00:25:07.619
of their own neurodiversity as a result. They

00:25:07.619 --> 00:25:10.299
are then understanding that and saying, I wonder

00:25:10.299 --> 00:25:12.819
if my child might be struggling with school because

00:25:12.819 --> 00:25:16.539
of X. So we've got a better global awareness

00:25:16.539 --> 00:25:21.319
of the various forms of neurodiversity. It's

00:25:21.319 --> 00:25:24.019
not that we have more neurodiverse individuals

00:25:24.019 --> 00:25:27.680
today than we did 10 years ago. It's that we

00:25:27.680 --> 00:25:31.160
see those signs and understand what those behaviors

00:25:31.160 --> 00:25:36.180
mean. And now we can go, right. If we put X,

00:25:36.240 --> 00:25:38.019
Y, and Z in place, that's just going to make

00:25:38.019 --> 00:25:44.680
life a tiny bit easier. So, yeah, I think that's

00:25:44.680 --> 00:25:47.240
a huge contributing factor. I think people are

00:25:47.240 --> 00:25:50.700
just becoming so much more aware of a whole array

00:25:50.700 --> 00:25:54.359
of needs in themselves, in their young people,

00:25:54.440 --> 00:25:57.599
and they are then speaking with others and forming

00:25:57.599 --> 00:26:02.059
part of those communities. You could argue that

00:26:02.059 --> 00:26:05.000
this is one of the very few benefits of social

00:26:05.000 --> 00:26:08.720
media where people are talking and we're actually

00:26:08.720 --> 00:26:11.819
building communities where people can actually

00:26:11.819 --> 00:26:14.160
share those behaviours and say, I'm seeing this

00:26:14.160 --> 00:26:16.380
behaviour in my child and someone goes, me too.

00:26:16.920 --> 00:26:18.980
Have you had this assessment? Have you checked

00:26:18.980 --> 00:26:22.000
this? And we're just learning better and we're

00:26:22.000 --> 00:26:23.900
learning what we can ask. Yeah, you get access

00:26:23.900 --> 00:26:26.160
to a whole world of therapists and special education

00:26:26.160 --> 00:26:28.880
teachers and charities that are talking about

00:26:28.880 --> 00:26:31.430
this stuff. And because of how the algorithm

00:26:31.430 --> 00:26:34.029
works, it kind of feeds it to the right people.

00:26:34.470 --> 00:26:39.109
And yeah, you can learn a lot, can't you? Oh,

00:26:39.230 --> 00:26:42.190
absolutely. And there's just a wealth of knowledge

00:26:42.190 --> 00:26:45.950
out there if you're prepared to kind of take

00:26:45.950 --> 00:26:48.890
the time to learn it. And now so many parents

00:26:48.890 --> 00:26:52.099
are. on knowing that they can do that and they

00:26:52.099 --> 00:26:54.420
know how to access it, which is fantastic. Yeah,

00:26:54.420 --> 00:26:56.779
and they're feeling empowered to question the

00:26:56.779 --> 00:26:58.640
system. I feel like maybe before, maybe even

00:26:58.640 --> 00:27:02.000
just 10 years ago, it would be the teachers that

00:27:02.000 --> 00:27:04.660
would approach the parents about their neurodiverse

00:27:04.660 --> 00:27:08.140
children or children with a cognitive disability

00:27:08.140 --> 00:27:10.619
or, you know, whatever it was. Whereas now I

00:27:10.619 --> 00:27:12.660
feel like the tables have turned and it is very

00:27:12.660 --> 00:27:15.519
often now parents that are approaching that conversation

00:27:15.519 --> 00:27:18.400
initially, even sometimes pre -nursery saying,

00:27:19.180 --> 00:27:23.759
my child isn't meeting these steps or is doing

00:27:23.759 --> 00:27:27.700
these things i think it might be might be this

00:27:27.700 --> 00:27:32.579
yeah absolutely and um and i think the relationship

00:27:32.579 --> 00:27:35.059
as well is changing between parent and school

00:27:35.059 --> 00:27:39.059
um you know i often talk about the first time

00:27:39.059 --> 00:27:42.140
i walked into our son's classroom i was like

00:27:42.140 --> 00:27:44.599
well the last time i was in the classroom i was

00:27:44.599 --> 00:27:48.230
a pupil and the teacher was god and i wasn't

00:27:48.230 --> 00:27:50.490
allowed to question anything that they said and

00:27:50.490 --> 00:27:52.569
it can feel quite intimidating when you disagree

00:27:52.569 --> 00:27:54.589
with this person because you're like oh it normally

00:27:54.589 --> 00:27:59.730
ends up in detention um so that relationship

00:27:59.730 --> 00:28:02.950
has got to change and you've also got to have

00:28:02.950 --> 00:28:05.970
that faith and trust in that system and then

00:28:05.970 --> 00:28:08.490
when you learn actually sometimes that doesn't

00:28:08.490 --> 00:28:13.589
quite come to fruition But you then learn that

00:28:13.589 --> 00:28:15.190
you've got to be that advocate for your child

00:28:15.190 --> 00:28:17.470
and you've got to fight for their rights, which

00:28:17.470 --> 00:28:21.750
you don't necessarily expect. Yeah. So again,

00:28:21.829 --> 00:28:23.329
I think that's changing. I think how parenting

00:28:23.329 --> 00:28:25.210
and teaching is going, I mean, all of childcare

00:28:25.210 --> 00:28:28.069
has developed lots in the last 10 to 20 years.

00:28:28.769 --> 00:28:32.029
It's very much not the adult's way is the right

00:28:32.029 --> 00:28:34.690
way and children sit and listen and, you know,

00:28:34.809 --> 00:28:37.869
they're vessels to be filled. It's not that.

00:28:37.910 --> 00:28:39.549
It's much more collaborative. It's much more

00:28:39.549 --> 00:28:43.990
child -led. awareness of emotion more emotionally

00:28:43.990 --> 00:28:47.170
intelligent teaching trauma -led teaching I'd

00:28:47.170 --> 00:28:50.190
like to hope anyway and I hope I think the teaching

00:28:50.190 --> 00:28:53.009
training is slowly catching up with that we were

00:28:53.009 --> 00:28:57.490
about five years ten years behind maybe but it

00:28:57.490 --> 00:28:59.250
certainly is how children are being brought up

00:28:59.250 --> 00:29:01.849
now isn't it is to be emotionally led child led

00:29:01.849 --> 00:29:04.509
we're much more aware of the impact on those

00:29:04.509 --> 00:29:07.450
early years now I would like to say as a as a

00:29:07.450 --> 00:29:09.230
whole this is a very sweeping statement but as

00:29:09.230 --> 00:29:12.049
a whole of we're much more aware than we were

00:29:12.049 --> 00:29:13.809
10 or 20 years ago. And that's going to have

00:29:13.809 --> 00:29:15.230
an impact on education, isn't it? It's going

00:29:15.230 --> 00:29:18.190
to have an impact on how parents are parenting

00:29:18.190 --> 00:29:20.069
their children, therefore how they would like

00:29:20.069 --> 00:29:23.029
their children to be educated and all of that.

00:29:23.529 --> 00:29:26.130
I think you're absolutely right. And I think

00:29:26.130 --> 00:29:28.730
the more that we learn, the better informed that

00:29:28.730 --> 00:29:30.950
we become and the better practices that we start

00:29:30.950 --> 00:29:34.349
to put in place. Being the charity that we are,

00:29:34.569 --> 00:29:40.029
we have... We have just under 100 volunteers

00:29:40.029 --> 00:29:44.269
working with us. A lot of those are SEM parents

00:29:44.269 --> 00:29:49.210
themselves. And a high portion of those volunteers

00:29:49.210 --> 00:29:53.009
also identify as having some form of special

00:29:53.009 --> 00:29:57.470
educational need themselves. As a charity, what

00:29:57.470 --> 00:30:00.789
I've done is I've taken the lead there to make

00:30:00.789 --> 00:30:04.410
sure that our environment is that of a... special

00:30:04.410 --> 00:30:07.250
educational needs friendly environment. So we've

00:30:07.250 --> 00:30:10.230
changed a lot of our practices internally to

00:30:10.230 --> 00:30:12.210
make sure that all reasonable adjustments have

00:30:12.210 --> 00:30:16.549
been made to meet the needs of all individuals.

00:30:17.190 --> 00:30:20.170
As such, I'm having those conversations with

00:30:20.170 --> 00:30:24.869
my peers in other organisations. An example is

00:30:24.869 --> 00:30:28.349
when it comes to us interviewing anyone, I will

00:30:28.349 --> 00:30:30.849
send the interview questions in advance so that

00:30:30.849 --> 00:30:34.569
person can do some proper prep time. um and we

00:30:34.569 --> 00:30:37.089
get the best from them and it's coming coming

00:30:37.089 --> 00:30:39.289
out in research that for a neurodiverse individual

00:30:39.289 --> 00:30:42.569
that is the ideal way for them to go for an interview

00:30:42.569 --> 00:30:45.309
process as a result i'm starting to see my peers

00:30:45.309 --> 00:30:47.789
in other organizations following that pattern

00:30:47.789 --> 00:30:50.769
and doing those things so we're all growing we're

00:30:50.769 --> 00:30:53.730
all learning and we're all moving that way so

00:30:53.730 --> 00:30:56.970
absolutely i think you're right that as we learn

00:30:56.970 --> 00:31:00.109
so many more environments will be changing and

00:31:00.109 --> 00:31:04.680
we will just become We will become neurodiverse

00:31:04.680 --> 00:31:08.519
friendly in all of the ways that we operate to

00:31:08.519 --> 00:31:12.460
ensure that, because when I do that and it's

00:31:12.460 --> 00:31:15.599
helpful for someone with any form of neurodiversity.

00:31:16.319 --> 00:31:18.480
It's not something that's then unhelpful for

00:31:18.480 --> 00:31:22.500
a neurotypical person. It's the same as what

00:31:22.500 --> 00:31:25.220
we say, you know, if you are in a room and you

00:31:25.220 --> 00:31:27.220
are trauma -informed and you are putting trauma

00:31:27.220 --> 00:31:30.519
-informed teaching in place, it's not that the

00:31:30.519 --> 00:31:32.000
children who have not gone through trauma are

00:31:32.000 --> 00:31:34.039
going, ah, well, I feel left out because you

00:31:34.039 --> 00:31:36.299
don't care about, like you care too much about

00:31:36.299 --> 00:31:39.319
my emotional needs. Everyone benefits when we

00:31:39.319 --> 00:31:42.460
start to put those sort of checks and measures

00:31:42.460 --> 00:31:45.759
in place and that support in place. So, yeah,

00:31:45.799 --> 00:31:48.319
I think it will be a ripple effect. I really

00:31:48.319 --> 00:31:50.440
hope so. I really hope so. They're definitely

00:31:50.440 --> 00:31:53.599
still, maybe I'm just in this bubble, like an

00:31:53.599 --> 00:31:56.440
echo chamber, but it certainly feels like it's

00:31:56.440 --> 00:31:59.779
ramping up that everybody that is aware is kind

00:31:59.779 --> 00:32:02.900
of buzzing and it's all rippling out. It really

00:32:02.900 --> 00:32:07.200
does feel like change is happening, which is

00:32:07.200 --> 00:32:11.539
incredibly exciting for me. So we've spoken a

00:32:11.539 --> 00:32:15.140
lot about the initial EHCP process as far as

00:32:15.140 --> 00:32:17.779
if they haven't got one. But of course, lots

00:32:17.779 --> 00:32:20.259
of parents listening to this will already have

00:32:20.259 --> 00:32:22.740
a child with an EHCP, but it doesn't stop, does

00:32:22.740 --> 00:32:26.140
it? It's still checking if it's accurate, relevant,

00:32:26.259 --> 00:32:29.599
legal requirement. I know we spoke about legal

00:32:29.599 --> 00:32:32.609
requirements before. I meant to say that it's

00:32:32.609 --> 00:32:34.950
not a legal requirement that they meet the target.

00:32:35.069 --> 00:32:37.190
It's just a legal requirement that the provision

00:32:37.190 --> 00:32:39.009
is in place in order to meet the target. I meant

00:32:39.009 --> 00:32:40.690
to say that earlier because I don't know if I

00:32:40.690 --> 00:32:43.809
made that clear. But also I noticed on your website

00:32:43.809 --> 00:32:47.109
that you do a lot around phase transfers, which

00:32:47.109 --> 00:32:53.329
is a huge thing in itself. Moving from early

00:32:53.329 --> 00:32:56.250
years to primary and primary to secondary and

00:32:56.250 --> 00:33:00.059
secondary. to adult learning and that often brings

00:33:00.059 --> 00:33:03.619
a lot of anxiety for families because they might

00:33:03.619 --> 00:33:05.579
have just felt like they've got everything right

00:33:05.579 --> 00:33:08.579
the child is settled i'm finally got this adult

00:33:08.579 --> 00:33:11.039
that understands my child my child is happy in

00:33:11.039 --> 00:33:14.180
school we've fought all the fights and then they're

00:33:14.180 --> 00:33:16.160
year six and all of a sudden they've got or year

00:33:16.160 --> 00:33:17.920
five actually they've got to apply for secondary

00:33:17.920 --> 00:33:20.819
schools and yeah and yeah do you get a lot of

00:33:20.819 --> 00:33:24.839
parents at these stages uh yeah coming in contact

00:33:24.839 --> 00:33:29.509
as well Yeah, so we find, in particular, we find

00:33:29.509 --> 00:33:34.869
the month of February after phase transfer for

00:33:34.869 --> 00:33:40.890
secondary, we see a huge spike in our helpline

00:33:40.890 --> 00:33:42.930
and our advice centre attendance and things like

00:33:42.930 --> 00:33:46.289
that because people are like, what do I do? How

00:33:46.289 --> 00:33:50.329
do I cope with this? And it's incredibly terrifying

00:33:50.329 --> 00:33:53.650
for so many families because, like you say, there's...

00:33:54.640 --> 00:33:58.279
The child has become as settled as they can be.

00:33:58.720 --> 00:34:00.960
They've learnt the environment, they've learnt

00:34:00.960 --> 00:34:04.279
the teacher, the teacher learnt them and they

00:34:04.279 --> 00:34:08.420
feel safe. And finally when they feel safe, all

00:34:08.420 --> 00:34:10.099
of the adults around them are going, brilliant,

00:34:10.260 --> 00:34:14.820
now let's change it all again. It's like quadruple

00:34:14.820 --> 00:34:18.380
the size of people that are around you and instead

00:34:18.380 --> 00:34:20.639
of that one or two teachers, let's give you ten.

00:34:21.710 --> 00:34:25.150
Instead of that one teacher having 30 to 35 students,

00:34:25.329 --> 00:34:30.489
now that one teacher's got, what, 150 a day?

00:34:31.210 --> 00:34:34.650
Yeah. Everything is ramped up and amplified and

00:34:34.650 --> 00:34:37.090
the fear and the anxiety that follows that is

00:34:37.090 --> 00:34:43.070
huge. I think for any parent, let alone us here,

00:34:43.070 --> 00:34:46.210
for any parent, like year six to year seven transition

00:34:46.210 --> 00:34:48.320
is huge because... The parents don't walk them

00:34:48.320 --> 00:34:50.440
to the gate. The parents aren't as involved with

00:34:50.440 --> 00:34:53.400
the teacher. They don't get the same communication

00:34:53.400 --> 00:34:58.340
level. There is higher expectation. So any child

00:34:58.340 --> 00:35:00.300
will be feeling those anxieties, but add special

00:35:00.300 --> 00:35:04.659
educational needs onto that. And anxiety naturally

00:35:04.659 --> 00:35:09.000
is just through the roof, isn't it? Absolutely.

00:35:09.900 --> 00:35:12.539
And you're right. You know, as soon as your child

00:35:12.539 --> 00:35:15.719
goes into senior school, you've got to take away

00:35:15.719 --> 00:35:21.510
some of your, um sort of cotton wool you wrap

00:35:21.510 --> 00:35:23.670
them in um you've got to take away some of your

00:35:23.670 --> 00:35:26.369
sort of protective natures and you've got to

00:35:26.369 --> 00:35:29.349
let them flourish a little bit but if you've

00:35:29.349 --> 00:35:31.630
just navigated primary school and there's been

00:35:31.630 --> 00:35:36.210
anxiety fueled conversations week in week out

00:35:36.210 --> 00:35:38.989
all that that's going to do is just cause you

00:35:38.989 --> 00:35:42.050
more anxiety um and the pressure's on for everyone

00:35:42.050 --> 00:35:45.739
and i think i think that is felt um it's nerve

00:35:45.739 --> 00:35:47.699
-wracking it's nerve -wracking without scn and

00:35:47.699 --> 00:35:50.880
then you add scn in and everything gets amplified

00:35:50.880 --> 00:35:54.500
again um and it's really really challenging um

00:35:54.500 --> 00:36:00.760
so yeah again that is about where possible building

00:36:00.760 --> 00:36:04.960
strong solid relationships we often talk about

00:36:04.960 --> 00:36:09.619
um find your tribe um find other people in similar

00:36:09.619 --> 00:36:12.849
situations to yourself Talk to your peers and

00:36:12.849 --> 00:36:15.349
speak to them. What are they doing that's working?

00:36:15.429 --> 00:36:18.010
What's helping? Are there any schools that could

00:36:18.010 --> 00:36:21.469
be recommended? Visiting those places and getting

00:36:21.469 --> 00:36:24.809
comfortable and talking to your child about what

00:36:24.809 --> 00:36:27.590
would work, what would make you feel safe? How

00:36:27.590 --> 00:36:32.010
can we help you to feel safe? Largely doing a

00:36:32.010 --> 00:36:34.809
lot of the same conversations and same battles

00:36:34.809 --> 00:36:38.469
that you've done previously. Being that huge

00:36:38.469 --> 00:36:42.380
advocate for... for your child basically and

00:36:42.380 --> 00:36:45.360
just finding any way possible to continue to

00:36:45.360 --> 00:36:49.920
do that. Yeah, exactly. So if you have got the

00:36:49.920 --> 00:36:52.760
school and you're looking to transition, I do

00:36:52.760 --> 00:36:54.840
something called a map meeting. So it's like

00:36:54.840 --> 00:36:57.949
a person around. a team around the child kind

00:36:57.949 --> 00:37:00.110
of meeting really and we talk about what the

00:37:00.110 --> 00:37:02.210
dream would be like what the dream transition

00:37:02.210 --> 00:37:04.489
would be like what the nightmare transition would

00:37:04.489 --> 00:37:06.670
be like and everything in between what can we

00:37:06.670 --> 00:37:08.550
do to make this more the dream than the nightmare

00:37:08.550 --> 00:37:10.289
what things need to be put in place and we do

00:37:10.289 --> 00:37:13.809
it around spring ahead of the july so that last

00:37:13.809 --> 00:37:16.789
term we can be fully prepared what does the child

00:37:16.789 --> 00:37:19.130
child need what does the parent need what do

00:37:19.130 --> 00:37:21.809
the next teachers need in order for this to be

00:37:21.809 --> 00:37:24.170
much more like the dream scenario that we all

00:37:24.170 --> 00:37:26.650
speak about than than the nightmare and we reflect

00:37:26.650 --> 00:37:29.789
on the past and and we like imagine the future

00:37:29.789 --> 00:37:32.409
and it's a really really lovely meeting and i

00:37:32.409 --> 00:37:34.489
find what happens and the children are invited

00:37:34.489 --> 00:37:37.619
as well if they want to be And what happens is

00:37:37.619 --> 00:37:40.380
the parents come with all this fear and anxiety

00:37:40.380 --> 00:37:42.840
and they leave with a plan. It doesn't mean that

00:37:42.840 --> 00:37:45.300
the anxiety is not there anymore. It just means

00:37:45.300 --> 00:37:47.119
they feel like maybe they've got a bit more control

00:37:47.119 --> 00:37:50.760
over it. And that everybody, it is not just them

00:37:50.760 --> 00:37:54.039
holding that. It's we've divvied out the jobs.

00:37:54.239 --> 00:37:58.460
We've got a plan in place and to hope for the

00:37:58.460 --> 00:38:00.199
best transition that we could possibly do. Because

00:38:00.199 --> 00:38:02.480
it is a huge thing for the children. So that's

00:38:02.480 --> 00:38:07.269
something that we do. And I implore you. training

00:38:07.269 --> 00:38:09.050
powerpoint all about it actually so if you want

00:38:09.050 --> 00:38:10.869
that and i'll include that in the notes below

00:38:10.869 --> 00:38:14.369
um all about that kind of meeting um because

00:38:14.369 --> 00:38:16.269
it's quite a structured meeting and it is it

00:38:16.269 --> 00:38:19.170
is incredibly helpful however i've also had some

00:38:19.170 --> 00:38:25.510
uh students who have received the not their choice

00:38:25.510 --> 00:38:27.909
school and not even one that they've even put

00:38:27.909 --> 00:38:30.739
as their top three schools and i've also had

00:38:30.739 --> 00:38:32.539
students that haven't had a school at all and

00:38:32.539 --> 00:38:34.260
now they're in their second year of tool waiting

00:38:34.260 --> 00:38:36.599
for their secondary school placement so i'm also

00:38:36.599 --> 00:38:38.699
aware there are parents that also might want

00:38:38.699 --> 00:38:41.880
to come to you that don't even have a school

00:38:41.880 --> 00:38:43.679
that they can be anxious about there just is

00:38:43.679 --> 00:38:48.440
no answers um due to lack of provision or suitable

00:38:48.440 --> 00:38:52.139
provision yeah do you get that in february as

00:38:52.139 --> 00:38:56.579
well Yeah, unfortunately we do. There's an awful

00:38:56.579 --> 00:38:58.300
lot of parents that come to our advice centres

00:38:58.300 --> 00:39:00.440
and say, you know, my local authority have said

00:39:00.440 --> 00:39:03.780
that in our area there are no places, there are

00:39:03.780 --> 00:39:09.360
no spaces at all for my child. We then offer

00:39:09.360 --> 00:39:11.760
advice and guidance and I won't go into the advice

00:39:11.760 --> 00:39:14.260
and guidance. No, but they can contact you if

00:39:14.260 --> 00:39:18.019
they need it. Yeah, absolutely. And yeah, we

00:39:18.019 --> 00:39:20.659
talk them through. What are the next steps? How

00:39:20.659 --> 00:39:22.599
can they approach this and what can they do?

00:39:23.940 --> 00:39:28.519
What measures can they put in place to try and

00:39:28.519 --> 00:39:33.599
get a provision set? But yeah, it's horrific.

00:39:34.119 --> 00:39:37.679
And again, it's just adding that anxiety and

00:39:37.679 --> 00:39:42.139
particularly for a young person that needs kind

00:39:42.139 --> 00:39:44.579
of those safe boundaries, those routines, that

00:39:44.579 --> 00:39:46.800
knowledge and that awareness to be able to feel

00:39:46.800 --> 00:39:50.070
safe. and you're not even giving them a named

00:39:50.070 --> 00:39:56.230
school, it's quite terrifying. So, yeah, we offer

00:39:56.230 --> 00:39:59.010
our advice and guidance on how to navigate that

00:39:59.010 --> 00:40:01.550
and how to kind of push forward to get the right

00:40:01.550 --> 00:40:04.289
answers there. That's amazing. That's really

00:40:04.289 --> 00:40:06.369
helpful. And you mentioned that you have walk

00:40:06.369 --> 00:40:10.130
-in support. Is that based in a particular area

00:40:10.130 --> 00:40:18.440
of the UK or is that UK -wide? stepped into the

00:40:18.440 --> 00:40:22.159
role, a lot of Sosson's work was quite South

00:40:22.159 --> 00:40:28.659
-centric. So we had centres in Waterloo, we've

00:40:28.659 --> 00:40:35.260
got Aldershot, Worcester Park, the Richmond areas,

00:40:35.980 --> 00:40:40.179
Hampton Core. So it was very much kind of based

00:40:40.179 --> 00:40:44.139
there. My aim has been to expand our physical

00:40:44.139 --> 00:40:48.579
presence as a charity. So in the last year, we've

00:40:48.579 --> 00:40:55.320
opened centres in Birmingham, Bristol, Canterbury.

00:40:56.760 --> 00:40:59.780
Last week, we launched one in Essex in Chelmsford.

00:41:00.500 --> 00:41:02.719
Next week, we are launching one in Westminster.

00:41:03.920 --> 00:41:07.639
The idea is for us to continue to grow our physical

00:41:07.639 --> 00:41:11.199
presence because we know how important that is.

00:41:12.049 --> 00:41:14.929
If I could wave the magic wand, I would have

00:41:14.929 --> 00:41:17.829
an advice intro at least in every major city

00:41:17.829 --> 00:41:22.010
in England. But my team has told me I have to

00:41:22.010 --> 00:41:25.949
take it slow. One day it will be needed. Well,

00:41:25.969 --> 00:41:27.489
actually, hopefully it won't be needed is the

00:41:27.489 --> 00:41:29.909
plan. And then the second thing is maybe if it

00:41:29.909 --> 00:41:32.570
is needed, then hopefully you do that. So if

00:41:32.570 --> 00:41:34.989
people aren't near one, which is amazing that

00:41:34.989 --> 00:41:36.570
you have so many, but if people aren't near one,

00:41:36.710 --> 00:41:39.530
is it call support and online support that they

00:41:39.530 --> 00:41:44.619
can access? Yeah, so we've got the helpline service

00:41:44.619 --> 00:41:48.619
that they can call. Again, when I first took

00:41:48.619 --> 00:41:51.980
on the charity, we were open around about 10

00:41:51.980 --> 00:41:55.960
hours a week on average. We're now up to 35 hours

00:41:55.960 --> 00:41:58.500
a week during term time that we're open and that

00:41:58.500 --> 00:42:01.619
they can speak to an advisor. We often advise

00:42:01.619 --> 00:42:03.199
people to have a look at our Facebook because

00:42:03.199 --> 00:42:05.900
that will constantly promote when our opening

00:42:05.900 --> 00:42:09.780
hours are. And they can call our advice centres.

00:42:10.539 --> 00:42:12.900
our advice line and and they can get support

00:42:12.900 --> 00:42:17.219
through that and on our website as well you've

00:42:17.219 --> 00:42:21.340
also got email support so if you reached out

00:42:21.340 --> 00:42:24.579
to us you can present your sort of like your

00:42:24.579 --> 00:42:27.519
your challenge at the moment via email and then

00:42:27.519 --> 00:42:31.340
within a few days one of our advisors will come

00:42:31.340 --> 00:42:34.320
back to you on email so we've got a whole host

00:42:34.320 --> 00:42:36.780
of other ways that people can access that support

00:42:36.780 --> 00:42:41.510
and there's no limit to it either um so if a

00:42:41.510 --> 00:42:45.489
family were to call the helpline today they could

00:42:45.489 --> 00:42:49.010
call it again tomorrow um and in a year and same

00:42:49.010 --> 00:42:52.429
as an advice center they can just like we we

00:42:52.429 --> 00:42:54.250
see some advice centers our family will come

00:42:54.250 --> 00:42:56.130
back month after month because they're just getting

00:42:56.130 --> 00:42:59.409
that next step and next step so there's there's

00:42:59.409 --> 00:43:01.550
no limit to to the support that we'll offer the

00:43:01.550 --> 00:43:04.050
only limitations we have is is volunteer availability

00:43:04.050 --> 00:43:08.159
basically yes of course How do you fund all this

00:43:08.159 --> 00:43:11.980
incredible work? How can we support it? But also,

00:43:12.079 --> 00:43:14.739
how do you keep going? How do you keep developing?

00:43:16.119 --> 00:43:22.300
Yeah, it's a great question. So it's for a range

00:43:22.300 --> 00:43:26.199
of things. So for some of our services, so the

00:43:26.199 --> 00:43:28.840
document writing services, we do charge a small

00:43:28.840 --> 00:43:32.559
fee for those services. On average, our fees

00:43:32.559 --> 00:43:35.119
are around about 10 % of what a solicitor would

00:43:35.119 --> 00:43:41.719
charge for them. I must hasten to add, cost will

00:43:41.719 --> 00:43:44.199
never be a barrier. So if a family speaks to

00:43:44.199 --> 00:43:46.619
us and say, we can't afford this, we've got measures

00:43:46.619 --> 00:43:49.340
that we put in place. Cost won't ever stop a

00:43:49.340 --> 00:43:53.179
service. But we derive an income from that. We

00:43:53.179 --> 00:43:57.380
have a charity shop in Worcester Park that does

00:43:57.380 --> 00:44:01.150
really, really well. And that has sort of subsidised

00:44:01.150 --> 00:44:02.889
an awful lot of the free services that we've

00:44:02.889 --> 00:44:06.130
been able to offer. In addition to that, we've

00:44:06.130 --> 00:44:09.469
been very successful in winning some funding

00:44:09.469 --> 00:44:13.429
from a couple of really reputable organisations

00:44:13.429 --> 00:44:17.389
that have supported us and continue to support

00:44:17.389 --> 00:44:22.250
us and donations as well. So it's been through

00:44:22.250 --> 00:44:25.610
those sort of measures that's allowed us to operate

00:44:25.610 --> 00:44:32.079
and now grow. basically yeah amazing oh I'm so

00:44:32.079 --> 00:44:34.039
pleased that we've spoken to you I can just feel

00:44:34.039 --> 00:44:38.900
that parents I now have somewhere to send parents

00:44:38.900 --> 00:44:42.019
because as a teacher sometimes like I'm not their

00:44:42.019 --> 00:44:44.199
teacher in their class right so I can only say

00:44:44.199 --> 00:44:46.380
what I would do which is really difficult then

00:44:46.380 --> 00:44:48.639
when I don't know the situation so to have a

00:44:48.639 --> 00:44:51.619
charity that I can forward them to to give them

00:44:51.619 --> 00:44:54.300
that bit of hope that bit of advice practical

00:44:54.300 --> 00:44:56.179
advice that can actually help me the face -to

00:44:56.179 --> 00:44:59.900
-face or on the phone is incredibly helpful brilliant

00:44:59.900 --> 00:45:03.739
yeah no and um anything that we can do we absolutely

00:45:03.739 --> 00:45:09.119
will we are in that beautiful stage as a charity

00:45:09.119 --> 00:45:13.500
where we are growing we are expanding but we

00:45:13.500 --> 00:45:17.199
are still at the right size where people have

00:45:17.199 --> 00:45:19.679
a direct line of communication straight through

00:45:20.349 --> 00:45:22.550
And I'm not saying this from a hierarchy perspective,

00:45:22.670 --> 00:45:24.630
but they have aligned to the chief exec of this

00:45:24.630 --> 00:45:27.269
charity where they can talk to me and I can have

00:45:27.269 --> 00:45:29.070
a real conversation and say, if that's not a

00:45:29.070 --> 00:45:32.090
service we offer, why not? What else can we do?

00:45:33.050 --> 00:45:35.190
And I think that that's that beautiful moment

00:45:35.190 --> 00:45:38.489
of we are always able to tap into what do our

00:45:38.489 --> 00:45:42.949
families need? My ethos since I've joined and

00:45:42.949 --> 00:45:47.329
that will always remain is all I care about is

00:45:47.329 --> 00:45:50.869
helping those families to help that child. So

00:45:50.869 --> 00:45:53.230
any decision that I'm making, any meeting that

00:45:53.230 --> 00:45:56.369
I'm going to, all I care about is, will this

00:45:56.369 --> 00:45:59.210
effectively help more families? If the answer

00:45:59.210 --> 00:46:02.469
is no, I'm not going to the meeting. I'm not

00:46:02.469 --> 00:46:04.289
interested. Yeah, it's a waste of time. Yeah.

00:46:04.389 --> 00:46:07.329
Absolutely. All that I want to do and all that

00:46:07.329 --> 00:46:10.449
the team I work with want to do is help more

00:46:10.449 --> 00:46:14.440
families. That's our measure of success. And

00:46:14.440 --> 00:46:16.260
eventually the measure of success is that we

00:46:16.260 --> 00:46:20.239
won't be needed. Yeah. For as long as we are

00:46:20.239 --> 00:46:23.119
needed, the measure of success is everyone that

00:46:23.119 --> 00:46:25.360
needs our help, are we able to answer that call?

00:46:25.519 --> 00:46:28.360
Can we help them? So anything that we can do,

00:46:28.460 --> 00:46:32.059
we want to do more of. It just sounds amazing.

00:46:32.179 --> 00:46:37.380
I'm so pleased that you exist. I really am. I

00:46:37.380 --> 00:46:39.239
usually use these podcasts. I usually give myself

00:46:39.239 --> 00:46:41.820
a bit of homework after these chats. And there

00:46:41.820 --> 00:46:43.820
was something really relevant that you said that

00:46:43.820 --> 00:46:47.559
kind of hit a chord with me as to that you've

00:46:47.559 --> 00:46:49.179
mentioned about the interview, you know, making

00:46:49.179 --> 00:46:50.940
them as successful as possible, sending the questions

00:46:50.940 --> 00:46:54.460
out ahead of time. And there's a lovely analogy,

00:46:54.639 --> 00:46:58.300
isn't there, of when there's snow and the caretaker

00:46:58.300 --> 00:47:01.849
wipes. clears the status first and then does

00:47:01.849 --> 00:47:03.610
the ramp where it actually if they did if they

00:47:03.610 --> 00:47:05.349
started with the ramp everyone could have still

00:47:05.349 --> 00:47:07.989
gotten in rather than waiting it's that beautiful

00:47:07.989 --> 00:47:10.530
analogy isn't it like start with accessible first

00:47:10.530 --> 00:47:12.630
and then everybody can access and that's definitely

00:47:12.630 --> 00:47:14.030
something i'm going to take with me this week

00:47:14.030 --> 00:47:16.710
making this podcast more accessible i easily

00:47:16.710 --> 00:47:18.630
could have sent you the questions ahead of time

00:47:18.630 --> 00:47:20.809
before this and you may not have needed it but

00:47:20.809 --> 00:47:23.030
you may have done and like you said it just makes

00:47:23.030 --> 00:47:24.889
for that better interview it makes for that better

00:47:24.889 --> 00:47:27.889
um experience so thank you for that for that

00:47:27.889 --> 00:47:30.659
beautiful reminder of Just because I'm not at

00:47:30.659 --> 00:47:32.579
school doesn't mean that this can't be accessible

00:47:32.579 --> 00:47:35.760
too. So yeah, I really appreciate that lovely

00:47:35.760 --> 00:47:38.380
reminder. For people listening, where can they

00:47:38.380 --> 00:47:43.760
find you? Where can they find out more? The absolute

00:47:43.760 --> 00:47:47.460
best place will be our website, which is S -O

00:47:47.460 --> 00:47:52.019
-S -S -E -N. dot org dot uk um we use it as an

00:47:52.019 --> 00:47:54.659
outwardly facing site so it's got a lot of information

00:47:54.659 --> 00:47:57.360
there's some booklets information packs that

00:47:57.360 --> 00:48:00.440
you can download and it will also list all of

00:48:00.440 --> 00:48:03.260
the support that we offer so that's that's the

00:48:03.260 --> 00:48:06.280
best place to to reach out to us amazing i'll

00:48:06.280 --> 00:48:08.579
leave that in the description as well um below

00:48:08.579 --> 00:48:10.840
so that uh you don't even need to look for it

00:48:10.840 --> 00:48:13.860
you can just tap on by and and find it and if

00:48:13.860 --> 00:48:15.820
you don't need it then maybe a colleague or a

00:48:15.820 --> 00:48:19.059
friend so maybe save this or save you know their

00:48:19.059 --> 00:48:21.380
account information so that you've got it so

00:48:21.380 --> 00:48:23.519
that inevitably when you have that conversation

00:48:23.519 --> 00:48:25.519
with a friend on a bus or at the school gates

00:48:25.519 --> 00:48:27.539
that you you've got something that you can help

00:48:27.539 --> 00:48:31.079
them with i think is probably good advice yep

00:48:31.079 --> 00:48:34.179
that's great advice i love that thank you so

00:48:34.179 --> 00:48:36.320
much for joining me richard this has been incredibly

00:48:36.320 --> 00:48:39.579
helpful thank you so much for having us it's

00:48:39.579 --> 00:48:42.380
um it's so lovely to to be able to talk to you

00:48:42.380 --> 00:48:44.780
and to share our story with with your listeners

00:48:44.780 --> 00:48:49.300
as well so thanks for having us Thank you.
