WEBVTT

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Hi, my name is Jordan. I am a special education

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teacher from the UK. I share my passion for everything

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communication, sensory regulation and fun lesson

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ideas for my classroom of disabled pupils aged

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4 to 11. Each week I am joined by experts in

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the field answering your questions and sharing

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our knowledge and experience working alongside

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our beautiful young people. Let's get started.

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Hello everybody and welcome to the Sensory Classroom

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podcast. Today I am joined by Frozen Light Theatre,

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a wonderful and accessible theatre company aimed

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at adults with PMLD. Hello. Hello. Thank you

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so much for being here. We're super excited to

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be here today. So pleased. I've often just speak

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to speech and language therapists or creational

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therapist teachers, but oh my goodness, I came

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across your account and it's so exciting to me.

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And I just think everybody has to hear about

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this. And there's so much we can learn from you.

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So I'm really appreciative of you being here

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today. Thanks for having us. So I've explained

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a little bit, a really little bit about what

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you do, but in your own words, what is it that

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you do and what makes you? different from other

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theatre companies? So we make what we describe

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as sensory theatre and as you said for adult

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audiences with profound and multiple learning

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disabilities and we're really excited about transporting

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audiences to new worlds and have new experiences

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but making sure that's accessible. Every part

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of our show has a sensory element. goes with

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it. So say, for example, we're in the desert,

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then we'll have a bowl of potentially like warm

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sand that gets taken to the audience. And it

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serves the purpose of showing the audience where

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we are on a sensory level, but also allowing

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our performers to have a kind of nonverbal communication

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with our audience member and bring that prop

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and go, I've got this cool thing. Do you want

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to show me what we want to do with it? And have

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this kind of conversation and really see the

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people that are in the audience. So the audience

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are very much. a part of the production. And

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we take those shows and we tour them to 60 venues

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across the country. We specifically tour art

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centres and theatre venues across the UK. And

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both of us come from a background of touring

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SCN schools. And when we started Frozen Light,

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we made a very specific decision to say, OK,

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no, we want to take our shows outside of kind

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of settings and take them into theatre spaces.

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And part of that was around creating really high

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quality theatre events and with huge theatre

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sets and theatre lighting and theatre sound to

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make it a really high quality piece of theatre.

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And I'm assuming because you're taking it outside

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of these settings that are built for people with

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profound and multiple learning disabilities,

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that you're also... being faced with the same

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barriers in the local community that they're

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facing every day so can you talk to me a little

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bit about those barriers and how you as a theatre

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company are kind of overcoming that because I

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think that would help everybody in the local

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community as well. So we're you know we're very

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passionate about taking the work out to theatres

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and I think it came from a space where when we

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were performing in special schools kind of We

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were going in when the rest of the school had

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gone to the Panto and those guys with the most

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complex needs, with the most profound learning

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disabilities couldn't go to the Panto because

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it wasn't accessible. And so we really wanted

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to fill that gap. But we knew that in doing that,

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we would need to do a lot of work with those

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theatre venues so that they had everything in

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place that was needed to ensure that they were

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welcoming and open. to our audiences what does

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that yeah what does that look like what like

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because i suppose it's physical things like ramps

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and toilets and seating space but is it also

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is there other elements to consider as well making

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your space accessible so firstly our shows are

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for an audience of six people with profound learning

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disabilities and their carers so okay a really

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small audience so that there is time for that

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one -to -one interaction that means that the

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audience who are often six wheelchair users,

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will be on stage with us and our set. So we need

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quite a large space. We can't perform in like

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a tiny, a tiny little theatre. And it needs to

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be a large open space, like a black theatre,

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black box with removable seats. It's kind of

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our ideal space. It needs to be kind of eight

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metres by eight metres at a minimum. So we're

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already looking for theatres that have this kind

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of very accessible space that is accessible for

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an all wheelchair using audience. And then we

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also want to ensure that the audience can always

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come through the front door of the theatre. That's

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really important for us. So sometimes we might

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speak to a venue that go, OK, yeah, but there

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is an accessible route through the back of the

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car park. And we go, no, no, no, we really we

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we won't come unless the audience is coming in

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through the same entrance as everyone else. So

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that is kind of like an absolute basic. But at

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the same time, we are aware that we are touring

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to venues that were built a long time ago. And

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there's all sorts of. historical you know what

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do they call them when they're when they're historical

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when you like a grade one listed building or

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grade two listed building it's a can actually

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physically change yes there's a grade one listed

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building so so there are certain things that

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we say the audience have to be able to do but

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there are other things that we try and make it

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work um one for example is you mentioned toilets

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we're extremely passionate about changing places

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toilets um and we love touring to venues with

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the changing places toilets but we cannot tour

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to 60 venues with a Changing Places toilet because

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they don't exist. So it's about trying to get

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to all the venues with Changing Places toilets,

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but then also knowing that that doesn't happen

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everywhere. So we often say to venues we're going

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to, could you let audiences know where the closest

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Changing Places toilet is just so they've thought

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about it? And also to say to venues, you know,

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tell audiences what your accessible toilet is

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like. Is it big? Is it small? Do you know the

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measurements so that audiences know what to expect

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from a venue? And one really exciting thing that

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has happened is when we first started touring

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12 years ago, I think about five venues we toured

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to had a changing places and now about 12 do.

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So to have been on the road for 12 years and

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to have seen that actual change in buildings

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and building planning has been really amazing.

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And obviously we hope in the future that every

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venue will eventually have a changing places

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tour. And I suppose you're... proving to these

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theatre companies that these people exist and

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are visible and are worthy of theatre and you

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know all of these things that seem obvious when

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you're in the bubble I know you're in my bubble

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too we know this stuff but sometimes our bubble

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bursts doesn't it and we realise that actually

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not everybody does think that way or know that

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way through ignorance through lack of understanding

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through lack of experience whatever it is they

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don't realise that they're not actually accessible

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at all even though they might have some access,

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they might not be fully accessible. So by seeing

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your theatre and by seeing your audience and

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seeing how it works, I hope that the theatre

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are also left with questions and how they can

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improve. And that was one of the reasons we wanted

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to tour to theatre venues, because I have a really

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strong belief that only when people are visible

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is the world going to get better, you know, and

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if it's, unfortunately, society is so challenging.

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often that people do just stay home or stay in

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their institutions and so we wanted to do this

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to be like let's let this group of people through

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the door and see what they can bring to your

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organization and that extends to the fact that

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you know we're very clear with theater venues

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we will be in the brochure. And no, we won't

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be a small bit at the back. We will be on the

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next page next to the Rombert or Stadler's World,

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whatever, you know, we want to be there because

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you should be shouting about this audience that

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exists within your community and shouting about

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what you're doing to enable them to come through

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your doors. Yeah, and to make it feel more accessible

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to other people in the community that might be

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really fearful or had a really traumatic or bad

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experience in the past to maybe try again because

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it might be different this time I suppose that

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you're trying to have that conversation aren't

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you yeah and when you talk about different sorts

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of barriers that audiences face some of those

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barriers are attitudinal so we provide training

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to every venue we go to we used to do that in

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person we used to go to every venue and kind

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of provide training on who the audience are what

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to expect but then we realized that actually

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a lot of venues have quite fast staff turnovers

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so we would do the training and then by the time

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it would get round to it the staff have moved

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on so we now have an online training platform

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so every venue that we tour to are expected to

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take part in the online training platform and

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that has been specifically curated to theatre

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technicians to theatre programmers to theatre

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front of house and it's a different journey you

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go on through the training depending on what

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your role is And the idea of that is that everyone

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who has anything to do with our show will take

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part in the training. It only takes half an hour.

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And that is all just about welcoming an audience's

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profound learning abilities and making people

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feel welcome because it isn't just about our

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show. We've obviously spent a really long time

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making sure our sensory show is the best possible

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thing they can be. But we want to make sure that

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the audience's entire day out is fantastic, not

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just the hour of our show. And we've had a really

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positive response from that online training.

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And our hope is that a venue would then go on

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to look at other accessible opportunities within

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their local communities. So that's great that

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they've had Frozen Light, but is there also an

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accessible music event that could happen? Is

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there other accessible theatre companies that

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could be programmed? And hopefully through having

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Frozen Light, that will then make the venue more

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accessible by programming other people as well.

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absolutely and it's so needed it's so important

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i feel like lots of the support systems and just

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stuff on offer kind of falls off for adults um

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i mean schools especially special schools are

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incredibly good and proud of inclusive practices

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and events and you know holding all these workshops

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and things and then colleges sometimes but it

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kind of just falls off like it just seems to

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be this abyss of nothing and that's so wrong

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and i'm really pleased that that is your focus

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in particular i do think it really sparks a really

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important conversation so you said you had training

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for the theatre I'm assuming as a company as

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well you also keep your actors and everybody

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that you bring along on tour up to date with

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training as well what does that look like is

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it something that you continue to do is something

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you do in -house and what is important to include

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within that so for for a lot of years myself

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and Amber um were in the shows and we said had

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a background um working in special schools but

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also I worked in adult social care for a lot

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of years which was kind of all the passion of

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working for adults and seeing that lack of accessible

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opportunities working in a day centre and so

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we performed in it and just kind of did it when

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we've taken ourselves out of the shows because

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our tours have got so massive we've spent a long

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while developing a kind of training program with

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the actors and We've done various things and

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it's ever evolving. But with the cast that's

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on the road at the minute with our show, The

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Ancient Oak of Baldor, we delivered a really

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practical kind of actor training that is absolutely

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based on connection. And that's what you need

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to be able to do. So when we cast, we're looking

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for actors who are able to be open, who are able

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to improvise, who are able to take off their

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mask, who are able to kind of access interactions

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on a very human level. And then the training

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that we did is about holding that connection,

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about being open, about playing. And as performers,

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as actors, you know, they're the skills that

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we have. That's the gift that we have is inherently

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we're good at playing and have gone into adulthood

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and people have allowed us to carry on playing.

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What a gift. And so to be able to bring that.

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to the audience and not every actor can do it

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you know it's difficult you know if you're an

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actor that wants to say your lines in the same

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place every night that's not going to happen

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in our shows but you may say your line but you

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may be being hugged by someone at the same time

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that's fine and so giving giving the actors those

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skills and confidence to be able to improvise

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and to be able to kind of do whatever the audience

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needs from you everything we do is about saying

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yes to a group of people who often said no to

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so we kind of create this safe space and where

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we can go yeah you want to throw that on my head

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let's see what happens because I've got budget

00:12:40.659 --> 00:12:45.080
to to um replace that and I can um I can up and

00:12:45.080 --> 00:12:47.519
your mum doesn't have to You know, what a gift

00:12:47.519 --> 00:12:49.820
as well. You know, like we can make as much mess

00:12:49.820 --> 00:12:52.960
and no overworked teacher, carer, parent has

00:12:52.960 --> 00:12:55.759
to do that. Like we can do that. So actors as

00:12:55.759 --> 00:12:57.899
well who are willing to sweep the stage afterwards

00:12:57.899 --> 00:13:00.299
and things like that, you know, so all of that

00:13:00.299 --> 00:13:03.960
is tied into the training. As an actor, I can

00:13:03.960 --> 00:13:06.379
feel that is so exciting to have a different

00:13:06.379 --> 00:13:07.779
show every night, to not really know what's going

00:13:07.779 --> 00:13:11.179
to happen, to have this energy in the audience.

00:13:11.220 --> 00:13:12.720
We're such a bespoke audience as well, you know,

00:13:12.720 --> 00:13:18.159
six adults and their carers. is so quite intimate

00:13:18.159 --> 00:13:20.879
isn't it it's so intimate that that seems really

00:13:20.879 --> 00:13:22.879
exciting to me as an actor that you never really

00:13:22.879 --> 00:13:25.120
know what it's going to feel like it could feel

00:13:25.120 --> 00:13:27.059
really emotive it could be really loud it could

00:13:27.059 --> 00:13:29.799
be really quiet and quite you know emotional

00:13:29.799 --> 00:13:33.200
and and you know like you say a structure a script

00:13:33.200 --> 00:13:36.399
but also to be able to play with that is so exciting

00:13:36.399 --> 00:13:39.480
yeah for the actors and the audience I can imagine

00:13:39.480 --> 00:13:42.120
because they're part of it they're part of the

00:13:42.120 --> 00:13:44.539
cast almost it's so intimate is that kind of

00:13:44.539 --> 00:13:47.909
how it feels? Yeah, definitely how it feels.

00:13:48.149 --> 00:13:51.029
And again, I think it's a really exciting opportunity

00:13:51.029 --> 00:13:53.830
as a performer to be able to do that. They're

00:13:53.830 --> 00:13:56.509
not shows that you get bored of doing and you

00:13:56.509 --> 00:13:59.470
can do the same show 200 times and it feels really

00:13:59.470 --> 00:14:02.049
different every time just due to how much it

00:14:02.049 --> 00:14:04.149
changes. Just in those one -to -one moments,

00:14:04.370 --> 00:14:06.610
our script stays the same, the structure of the

00:14:06.610 --> 00:14:08.730
show stays the same, the show won't ever kind

00:14:08.730 --> 00:14:11.879
of... change its form entirely but those one

00:14:11.879 --> 00:14:14.179
-to -one moments with the audience really changed

00:14:14.179 --> 00:14:16.700
the feeling and experience of you as a performer

00:14:16.700 --> 00:14:20.620
in the show adapting adapting while still respecting

00:14:20.620 --> 00:14:22.419
privacy obviously I don't want you to give any

00:14:22.419 --> 00:14:24.639
too much away but could you explain like is there

00:14:24.639 --> 00:14:27.259
anything that comes to mind as you're as you're

00:14:27.259 --> 00:14:30.200
saying exactly that those lovely intimate moments

00:14:30.200 --> 00:14:34.360
between the cast and the audience does anything

00:14:34.360 --> 00:14:36.799
spring to mind as to what that What a lovely

00:14:36.799 --> 00:14:38.379
moment, basically, just so that our listeners

00:14:38.379 --> 00:14:42.519
can kind of picture what that might entail. I

00:14:42.519 --> 00:14:45.080
think it's something I always tell the performers

00:14:45.080 --> 00:14:48.639
is, you know, you think you know, after you've

00:14:48.639 --> 00:14:50.360
done the show a hundred times, you think you

00:14:50.360 --> 00:14:53.240
know everything that can be done with this prop,

00:14:53.419 --> 00:14:56.419
but that an audience will always surprise you.

00:14:56.480 --> 00:15:00.620
So we had a kind of a show I was doing. We had

00:15:00.620 --> 00:15:02.919
kind of torches and mirrors and we were working

00:15:02.919 --> 00:15:05.519
with the audience with reflection. And I've done

00:15:05.519 --> 00:15:08.179
this show like a lot of a lot of times, 50 times

00:15:08.179 --> 00:15:10.179
or something thinking of this is what we do.

00:15:10.240 --> 00:15:13.360
We look and someone grabbed the torch, made me

00:15:13.360 --> 00:15:16.279
open my mouth and then inspected my teeth, you

00:15:16.279 --> 00:15:18.440
know, and you go, OK, that's the new one. I'm

00:15:18.440 --> 00:15:21.039
excited now. Let's you know, and then I can take

00:15:21.039 --> 00:15:23.139
that and incorporate that when I meet someone

00:15:23.139 --> 00:15:25.220
else and go, oh, this guy yesterday taught me

00:15:25.220 --> 00:15:27.299
this cool thing. Should we have a look what that

00:15:27.299 --> 00:15:29.879
is? You know? Yeah. Is this cool to you? Yeah.

00:15:30.299 --> 00:15:33.440
Yeah. We talk about the sensory moments in our

00:15:33.440 --> 00:15:35.879
shows as offers, offers to the audience. So,

00:15:35.899 --> 00:15:38.299
you know, we are offering a plate of pickles.

00:15:38.379 --> 00:15:42.139
We are offering herbs to smell. We are offering

00:15:42.139 --> 00:15:46.620
root of the tree to feel. But again, audiences

00:15:46.620 --> 00:15:49.519
can do what they offer, what they will. So, you

00:15:49.519 --> 00:15:52.080
know, some people might eat the pickles. Some

00:15:52.080 --> 00:15:53.860
people might smell the pickles. Some people might

00:15:53.860 --> 00:15:56.460
throw the pickles. And all those things are fun

00:15:56.460 --> 00:15:59.080
things to do with pickles. So it's just about

00:15:59.080 --> 00:16:04.019
listening. How important is it to you to create

00:16:04.019 --> 00:16:07.879
a rich and broad multisensory experience rather

00:16:07.879 --> 00:16:12.820
than maybe just touch or sound or texture, taste?

00:16:12.940 --> 00:16:15.340
How much goes into your thoughts around making

00:16:15.340 --> 00:16:17.279
sure that every sense, because I can imagine

00:16:17.279 --> 00:16:22.000
you do, is met? So we go into a lot by in the

00:16:22.000 --> 00:16:24.559
very beginning of our R &D, our rehearsal and

00:16:24.559 --> 00:16:27.720
development process, we look at building. the

00:16:27.720 --> 00:16:30.299
environment of the show what is the world where

00:16:30.299 --> 00:16:31.960
the show is going to take place so currently

00:16:31.960 --> 00:16:34.440
our show on the road is the ancient oak of baldor

00:16:34.440 --> 00:16:38.100
it's got quite like a lord of the rings oldie

00:16:38.100 --> 00:16:41.279
worldie folk feeling to it so yeah we spend a

00:16:41.279 --> 00:16:43.820
lot of time looking at that world what does that

00:16:43.820 --> 00:16:46.460
world look like what's it smell like what does

00:16:46.460 --> 00:16:50.519
it taste like but saying that our different shows

00:16:50.519 --> 00:16:52.980
do favor different things sometimes you want

00:16:52.980 --> 00:16:55.679
it to include everything but at the same time

00:16:56.269 --> 00:16:58.110
I would say that our last show, The Bar at the

00:16:58.110 --> 00:17:01.110
Edge of Time, because it included like a gig

00:17:01.110 --> 00:17:03.830
and a cocktail bar, that did lend itself more

00:17:03.830 --> 00:17:07.190
towards a music environment and it had less kind

00:17:07.190 --> 00:17:09.490
of hands in bowls type moments. And I'd say that

00:17:09.490 --> 00:17:13.069
we did find that audiences who prefer kind of

00:17:13.069 --> 00:17:15.529
rocking backwards and forwards to music preferred

00:17:15.529 --> 00:17:18.829
The Bar at the Edge of Time to an audience who

00:17:18.829 --> 00:17:22.869
might prefer their hands in bowls. which might

00:17:22.869 --> 00:17:24.769
lend itself to another one of our shows, for

00:17:24.769 --> 00:17:27.029
example, Home. So, you know, I think different

00:17:27.029 --> 00:17:29.329
shows lend themselves to different audiences.

00:17:29.349 --> 00:17:31.769
So we try very hard to kind of include all senses,

00:17:32.009 --> 00:17:34.609
but you can't always be all things to all people.

00:17:34.630 --> 00:17:37.150
And we love to be able to provide different experiences

00:17:37.150 --> 00:17:39.569
so some people can come away and be like, oh,

00:17:39.609 --> 00:17:41.450
yeah, I like that one, but I preferred this one.

00:17:41.529 --> 00:17:43.289
And some people preferred The Bride at the Edge

00:17:43.289 --> 00:17:45.029
of Time and some people prefer The Ancient Oak

00:17:45.029 --> 00:17:47.509
of Baldor and some people love both or hate both.

00:17:48.059 --> 00:17:50.460
And to like things and to hate things is all

00:17:50.460 --> 00:17:53.519
part of experiencing the world and culture. And

00:17:53.519 --> 00:17:56.200
we really welcome all of it. And I suppose just

00:17:56.200 --> 00:17:58.660
by you offering it, rather than there being an

00:17:58.660 --> 00:18:01.400
expectation that they would do things in a certain

00:18:01.400 --> 00:18:03.339
way, the audience do something in a certain way,

00:18:03.359 --> 00:18:05.180
just by offering, I suppose you are given the

00:18:05.180 --> 00:18:08.059
opportunity to still touch and smell and do all

00:18:08.059 --> 00:18:09.980
of those things that they might need to do in

00:18:09.980 --> 00:18:13.180
order to access without that demand. I want to

00:18:13.180 --> 00:18:15.279
talk about mental health. I was doing some research.

00:18:16.140 --> 00:18:18.279
earlier that had shocking figures i don't know

00:18:18.279 --> 00:18:22.940
if you've heard similar that uh amongst an audience

00:18:22.940 --> 00:18:26.339
amongst any group of people 10 of those people

00:18:26.339 --> 00:18:29.019
on average um will suffer with their mental health

00:18:29.019 --> 00:18:33.660
at some point if you add a cognitive disability

00:18:33.660 --> 00:18:37.720
onto that it's around 40 and if you add PMOD

00:18:37.720 --> 00:18:40.640
so physical disability it's more like 84 % shocking

00:18:40.640 --> 00:18:42.759
numbers I don't want people to hear that and

00:18:42.759 --> 00:18:44.880
think oh being disabled makes you depressed because

00:18:44.880 --> 00:18:47.539
that is absolutely not what this means it is

00:18:47.539 --> 00:18:51.779
the oppression and the lack of accessible spaces

00:18:51.779 --> 00:18:55.960
and the marginalization that brings on this feeling

00:18:55.960 --> 00:18:58.839
of loneliness and depression and I think that's

00:18:58.839 --> 00:19:00.599
why I wanted to mention that here is that it's

00:19:00.599 --> 00:19:03.460
really important that that is at the forefront

00:19:03.460 --> 00:19:06.220
of all our minds that we have more access to

00:19:06.220 --> 00:19:08.500
storytelling and more access to the creative

00:19:08.500 --> 00:19:11.160
arts and to the community and to feel included

00:19:11.160 --> 00:19:14.960
to try and get these figures changed because

00:19:14.960 --> 00:19:18.299
it it just isn't okay these people exist they're

00:19:18.299 --> 00:19:22.259
here on purpose they have every right to access

00:19:22.259 --> 00:19:25.380
the world as everybody else does and I think

00:19:25.380 --> 00:19:27.799
it's really important that we you know kind of

00:19:27.799 --> 00:19:30.900
acknowledge the need there is such a huge need

00:19:31.579 --> 00:19:34.420
for access i mean theater is so emotive isn't

00:19:34.420 --> 00:19:38.279
it it's so ingrained in our human nature even

00:19:38.279 --> 00:19:40.880
when we were in survival mode back in when we

00:19:40.880 --> 00:19:43.680
lived in caves art the arts existed there's a

00:19:43.680 --> 00:19:46.539
reason why it's so important that it's so important

00:19:46.539 --> 00:19:49.759
and it exists are you okay with just mentioning

00:19:49.759 --> 00:19:52.960
like the you know what why is theater important

00:19:52.960 --> 00:19:56.000
for this audience yeah the impact importance

00:19:56.000 --> 00:20:00.940
on mental health really i think it's Really interesting

00:20:00.940 --> 00:20:04.859
question and actually the story behind The Ancient

00:20:04.859 --> 00:20:07.880
Oak of Baldor is looking at a story of loss and

00:20:07.880 --> 00:20:12.680
grief and the protagonist loses her partner in

00:20:12.680 --> 00:20:15.759
the story and kind of goes through this journey

00:20:15.759 --> 00:20:19.319
of coming to terms with her loss. And we chose

00:20:19.319 --> 00:20:21.980
that as a subject matter, having, again, done

00:20:21.980 --> 00:20:26.299
this work for a really long time and having some

00:20:26.299 --> 00:20:28.859
of our audience members who have died during

00:20:28.859 --> 00:20:33.339
that time and seeing how death is such a huge

00:20:33.339 --> 00:20:37.599
part of the PMRD community and also seeing that

00:20:37.599 --> 00:20:40.299
due to just so many barriers that it isn't explored.

00:20:40.579 --> 00:20:42.779
So one of the things we wanted to do with the

00:20:42.779 --> 00:20:47.299
Ancient Oak of Baldor is to look at death. and

00:20:47.299 --> 00:20:50.380
how we can process it through storytelling. And

00:20:50.380 --> 00:20:54.400
again, we do it through layers in our work. So

00:20:54.400 --> 00:20:57.039
there is the verbal story that is there. There

00:20:57.039 --> 00:21:00.140
is the live music that is played. We've chosen

00:21:00.140 --> 00:21:02.680
the cello. During this show, there's live cello

00:21:02.680 --> 00:21:05.079
and we feel that the cello really tells the story

00:21:05.079 --> 00:21:09.180
through quite an emotional, emotive score. So

00:21:09.180 --> 00:21:13.150
we wanted to pick that subject to... give our

00:21:13.150 --> 00:21:15.690
audiences the opportunity to kind of explore

00:21:15.690 --> 00:21:19.069
challenging subjects but we do it within a very

00:21:19.069 --> 00:21:22.730
safe space we open the show with a very fun festival

00:21:22.730 --> 00:21:26.470
full of full of joy and the show also ends ends

00:21:26.470 --> 00:21:29.410
in joy so it's kind of exploring different emotions

00:21:29.410 --> 00:21:33.750
whilst keeping the audience safe yeah so important

00:21:33.750 --> 00:21:35.069
it's actually something that we've been looking

00:21:35.069 --> 00:21:37.329
at in my own class this year one year ago we

00:21:37.329 --> 00:21:39.730
lost a people with pmrd and it and yeah like

00:21:39.730 --> 00:21:43.400
you say it's unfortunately part of the caring

00:21:43.400 --> 00:21:46.720
for and being part of a community of PMLD is

00:21:46.720 --> 00:21:49.960
that that is that is the reality so I've also

00:21:49.960 --> 00:21:54.220
been exploring how do we look at grief and work

00:21:54.220 --> 00:21:58.819
through grief with these sensory based learners

00:21:58.819 --> 00:22:01.200
because it's so important I didn't just want

00:22:01.200 --> 00:22:04.200
to assume that they weren't aware I didn't want

00:22:04.200 --> 00:22:07.539
to assume that they were all good with it I didn't

00:22:07.539 --> 00:22:10.519
want to assume anything And I didn't want, certainly

00:22:10.519 --> 00:22:12.160
didn't want to, you know, sweep it under the

00:22:12.160 --> 00:22:13.779
rug because I just didn't think that was respectful

00:22:13.779 --> 00:22:16.619
in any way at all to anybody. So, yeah, we did

00:22:16.619 --> 00:22:18.740
it through storytelling and stories and senses.

00:22:18.960 --> 00:22:20.779
And I think it was really important for the caregivers

00:22:20.779 --> 00:22:23.160
as well in the room to know that we were acknowledging

00:22:23.160 --> 00:22:26.039
this and marking this with some kind of legacy

00:22:26.039 --> 00:22:31.480
that something will do year on year. The audience

00:22:31.480 --> 00:22:34.579
experienced lots of loss, even if it isn't death,

00:22:34.700 --> 00:22:38.220
through their peers. Lots of loss through...

00:22:38.640 --> 00:22:40.299
caregivers and so you know there's that change

00:22:40.299 --> 00:22:42.980
in adults people just disappear out of your life

00:22:42.980 --> 00:22:45.240
and you never see them again it could be a teacher

00:22:45.240 --> 00:22:47.579
it could be a carer it could be a friend who

00:22:47.579 --> 00:22:50.460
moves schools or transitions to a different setting

00:22:50.460 --> 00:22:53.579
they experience loss all the time in fact they

00:22:53.579 --> 00:22:56.440
probably the community they experience loss the

00:22:56.440 --> 00:22:59.960
most i would say and and yet i think as caregivers

00:22:59.960 --> 00:23:03.440
we're talking about it least with with them so

00:23:03.440 --> 00:23:05.380
finding accessible ways to do it like you say

00:23:05.380 --> 00:23:08.960
in a safe environment that feels comfortable

00:23:08.960 --> 00:23:12.019
and very safe to have those incredibly emotive

00:23:12.019 --> 00:23:16.519
topics brought up is incredibly important and

00:23:16.519 --> 00:23:20.519
important for the carer as well and I think I

00:23:20.519 --> 00:23:23.680
think for us, you know, stories and art and theatre

00:23:23.680 --> 00:23:28.019
and TV and film all help us make sense of the

00:23:28.019 --> 00:23:30.480
world. That's what the arts have done is you

00:23:30.480 --> 00:23:33.799
understand yourself or understand your situation

00:23:33.799 --> 00:23:37.940
by seeing it reflected elsewhere. And so that

00:23:37.940 --> 00:23:39.859
was kind of our belief. What we wanted to do

00:23:39.859 --> 00:23:42.400
with this show is to try in a safe environment

00:23:42.400 --> 00:23:44.960
in something that is distant. And that's the

00:23:44.960 --> 00:23:47.359
reason you do that with art, because it is distant

00:23:47.359 --> 00:23:50.759
from you and you can leave and it's not. it's

00:23:50.759 --> 00:23:53.259
it's not there it's transient it happens in the

00:23:53.259 --> 00:23:56.059
moment so that's why we wanted to do that and

00:23:56.059 --> 00:23:59.660
then kind of going back to your question about

00:23:59.660 --> 00:24:04.660
well -being is for me for lots of people like

00:24:04.660 --> 00:24:06.920
their well -being is greatly enhanced by sharing

00:24:06.920 --> 00:24:09.559
collective artistic experiences with people whether

00:24:09.559 --> 00:24:11.880
that's dancing in a nightclub going to the theater

00:24:11.880 --> 00:24:14.460
going to the cinema going to a gig all of those

00:24:14.460 --> 00:24:18.609
things that people do to add -ons to people's

00:24:18.609 --> 00:24:21.490
lives there's a reason I believe people live

00:24:21.490 --> 00:24:25.250
and places where people find joy and shared communal

00:24:25.250 --> 00:24:27.650
experience and this is a group of people that

00:24:27.650 --> 00:24:30.730
are often not offered that you know especially

00:24:30.730 --> 00:24:33.049
as you say especially when you go into adulthood

00:24:33.049 --> 00:24:37.470
that kind of those collective shared experiences

00:24:37.470 --> 00:24:41.210
those experiences of art are less than say what

00:24:41.210 --> 00:24:44.210
I do And so really wanting to make sure that

00:24:44.210 --> 00:24:46.829
we provided that, that it was fun, that it was

00:24:46.829 --> 00:24:48.910
enjoyable, that it was a trip out, that it was

00:24:48.910 --> 00:24:51.269
something everybody in the room shares. You share

00:24:51.269 --> 00:24:53.069
in the energy, you share in the space. And whether

00:24:53.069 --> 00:24:57.089
you cognitively understand verbally the story,

00:24:57.170 --> 00:24:59.470
by having it there, you're going on the same

00:24:59.470 --> 00:25:01.529
emotional journey as everyone in the room. You're

00:25:01.529 --> 00:25:03.569
sharing the air, you're sharing the space, you're

00:25:03.569 --> 00:25:06.809
sharing those feelings that are happening, which

00:25:06.809 --> 00:25:09.470
is what we all do. We could go and see a foreign

00:25:09.470 --> 00:25:11.720
language. film that we didn't understand but

00:25:11.720 --> 00:25:14.180
I think you would still follow that same same

00:25:14.180 --> 00:25:17.640
story so yeah absolutely that's why we make theatre

00:25:17.640 --> 00:25:21.180
because we have a belief in in that and me and

00:25:21.180 --> 00:25:23.380
Amber just love going to the theatre going to

00:25:23.380 --> 00:25:26.140
gigs going to music going to all of that that's

00:25:26.140 --> 00:25:28.059
what we live for so we wanted to ensure that

00:25:28.059 --> 00:25:29.940
this group of people had the opportunity to do

00:25:29.940 --> 00:25:32.400
that as well absolutely they're incredibly community

00:25:34.039 --> 00:25:36.240
sacred spaces aren't they I feel like everybody

00:25:36.240 --> 00:25:38.720
comes into a space like a theatre or a cinema

00:25:38.720 --> 00:25:42.859
or similar as strangers and it feels different

00:25:42.859 --> 00:25:46.019
when you leave you have a collective experience

00:25:46.019 --> 00:25:49.039
that you've shared together you feel closer in

00:25:49.039 --> 00:25:51.720
a way I've never left a theatre or a cinema with

00:25:51.720 --> 00:25:54.799
a group of audience that I the same as when I

00:25:54.799 --> 00:25:58.019
came in there's a collective hubbub about it

00:25:58.019 --> 00:25:59.839
there's an excitement it feels a little bit safer

00:25:59.839 --> 00:26:01.819
because you've had that shared experience and

00:26:01.819 --> 00:26:05.480
I wonder if that transcends also into the community

00:26:05.480 --> 00:26:07.500
of your audience as well there's kind of that

00:26:07.500 --> 00:26:10.440
connection there of that shared experience which

00:26:10.440 --> 00:26:13.039
is really wonderful isn't it you I don't think

00:26:13.039 --> 00:26:15.160
you can do it any other way other than through

00:26:15.160 --> 00:26:17.839
the arts actually that you know we don't know

00:26:17.839 --> 00:26:19.279
each other we haven't spoken we've just been

00:26:19.279 --> 00:26:22.089
sitting idly next to each other and yet we've

00:26:22.089 --> 00:26:25.549
communicated and shared this amazingly emotive

00:26:25.549 --> 00:26:29.390
experience which maybe can only be replicated

00:26:29.390 --> 00:26:31.509
with going through some kind of trauma together

00:26:31.509 --> 00:26:35.049
almost because again you you've got that kind

00:26:35.049 --> 00:26:39.569
of connection and that um immediate companionship

00:26:39.569 --> 00:26:40.910
because you've gone through the same experience

00:26:40.910 --> 00:26:42.450
with each other well I feel like theatre does

00:26:42.450 --> 00:26:45.069
that kind of connection as as well in some way

00:26:45.609 --> 00:26:47.569
Yeah. And we like to have what we call in our

00:26:47.569 --> 00:26:50.509
shows, individual sensory moments and then collective

00:26:50.509 --> 00:26:52.809
sensory moments. So there are some one -to -one

00:26:52.809 --> 00:26:55.009
moments that really are just about performer

00:26:55.009 --> 00:26:57.009
and audience member, which might be smelling

00:26:57.009 --> 00:26:59.410
herbs. But then we have these collective sensory

00:26:59.410 --> 00:27:01.730
moments, which everyone experiences at the same

00:27:01.730 --> 00:27:04.730
time, which is being covered in petal confetti,

00:27:04.809 --> 00:27:07.569
for example. So, and maybe like a smell is something

00:27:07.569 --> 00:27:10.109
that people experience at the same time. So I

00:27:10.109 --> 00:27:12.549
think it's about a mixture of making accessible

00:27:12.549 --> 00:27:14.869
by having something that is just for you, but

00:27:14.869 --> 00:27:17.640
then to be able to have moments that are all

00:27:17.640 --> 00:27:20.740
of us together. And the Ancient Oak of Balzor

00:27:20.740 --> 00:27:23.799
and also our show Fire Songs, they're both set

00:27:23.799 --> 00:27:25.799
in the round. And setting a show in the round

00:27:25.799 --> 00:27:28.319
really does give you that kind of feeling of

00:27:28.319 --> 00:27:31.279
being in a group. Yeah, absolutely. And you can

00:27:31.279 --> 00:27:34.619
enjoy everybody else as part of the backdrop

00:27:34.619 --> 00:27:36.960
of the show. It really does feel like you're

00:27:36.960 --> 00:27:39.279
all collaborating on this thing, which it sounds

00:27:39.279 --> 00:27:41.640
like that's exactly how I'll... you work which

00:27:41.640 --> 00:27:44.480
is just rather wonderful what kind of feedback

00:27:44.480 --> 00:27:48.240
have you had I'm sure that carers have I hope

00:27:48.240 --> 00:27:50.359
they have shared you know reviews and feedback

00:27:50.359 --> 00:27:53.960
on on how they found the shows and and yeah I'm

00:27:53.960 --> 00:27:55.579
sure that resonates with you so do you want to

00:27:55.579 --> 00:27:57.779
share some of the feedback that you that you've

00:27:57.779 --> 00:27:59.960
had yeah I think I think it's I think it's really

00:27:59.960 --> 00:28:01.599
interesting and we spend a lot of time thinking

00:28:01.599 --> 00:28:05.380
about feedback because the feedback we get from

00:28:05.380 --> 00:28:08.039
our audiences is in the moment you know it's

00:28:08.039 --> 00:28:10.680
very much like I'm enjoying this experience I'm

00:28:10.680 --> 00:28:12.440
having with you or I would like you to leave

00:28:12.440 --> 00:28:16.059
now and so a lot of that feedback happens in

00:28:16.059 --> 00:28:19.420
that kind of non -verbal space where we're having

00:28:19.420 --> 00:28:23.599
this communication and connection and that you

00:28:23.599 --> 00:28:26.859
know is it's very difficult to put into words

00:28:26.859 --> 00:28:30.119
because it doesn't exist in a linguistic sphere

00:28:30.119 --> 00:28:34.119
like it doesn't exist in words it exists in held

00:28:34.119 --> 00:28:38.059
space it exists in this little space between

00:28:38.059 --> 00:28:41.859
two humans the empathy space and that's quite

00:28:41.859 --> 00:28:46.099
that's quite challenging for funders or um people

00:28:46.099 --> 00:28:49.680
that want to know that feedback we obviously

00:28:49.680 --> 00:28:52.619
get we get lovely feedback from from people's

00:28:52.619 --> 00:28:56.140
family members from their carers you know um

00:28:56.140 --> 00:28:59.740
and that that's that's brilliant and that's fantastic

00:28:59.740 --> 00:29:02.579
it's kind of it's balancing both of those and

00:29:02.579 --> 00:29:05.740
we have a project called the sensory studio which

00:29:05.740 --> 00:29:08.420
is where we work with four women with profound

00:29:08.420 --> 00:29:10.559
learning disabilities and we work with them every

00:29:10.559 --> 00:29:13.859
month as artists and they're part of our creative

00:29:13.859 --> 00:29:17.000
team of making our shows and and we come up with

00:29:17.000 --> 00:29:21.019
ideas in there we take them into the more linguistic

00:29:21.019 --> 00:29:23.759
rehearsal room we bring them back into the studio

00:29:23.759 --> 00:29:26.940
and we work with we work in that way but part

00:29:26.940 --> 00:29:31.319
of the reason we set up that project was to explore

00:29:31.319 --> 00:29:34.240
to explore that was to explore how do we actually

00:29:34.240 --> 00:29:37.619
get evaluation that is actually from the person

00:29:37.619 --> 00:29:40.519
and not a second hand evaluation because otherwise

00:29:40.519 --> 00:29:43.000
how do you know it's just it's just our perception

00:29:43.000 --> 00:29:47.880
isn't it yeah um was three years in we're still

00:29:47.880 --> 00:29:51.960
working on that question well it's it's new research

00:29:51.960 --> 00:29:53.740
isn't it um i don't know if you know much about

00:29:53.740 --> 00:29:56.380
dr joanna grace's work but she's just finished

00:29:56.380 --> 00:29:59.559
her doctorate on exactly that including these

00:29:59.559 --> 00:30:01.140
people with profound and multiple learning disabilities

00:30:01.140 --> 00:30:03.720
in research you know how do we get this because

00:30:03.720 --> 00:30:07.000
they're missing from so much research and feedback

00:30:07.000 --> 00:30:09.579
and reviews For exactly that reason, because

00:30:09.579 --> 00:30:11.420
they cannot give it linguistically, but you're

00:30:11.420 --> 00:30:13.700
absolutely right. My God, do they give it in

00:30:13.700 --> 00:30:15.319
the moment, actually with no inhibition, with

00:30:15.319 --> 00:30:17.779
far more honesty than we could ever give, which

00:30:17.779 --> 00:30:19.299
is just rather wonderful. But it's just how to

00:30:19.299 --> 00:30:21.460
capture that, isn't it? And how to ensure that,

00:30:21.500 --> 00:30:24.180
yeah, funders, applications and things are accessible

00:30:24.180 --> 00:30:26.640
to that as well. I know Joanna Grace, I can't

00:30:26.640 --> 00:30:28.839
remember her name, but she worked alongside someone

00:30:28.839 --> 00:30:31.819
for her doctorate. Her research was with people

00:30:31.819 --> 00:30:33.359
with profound multiple learning disabilities.

00:30:33.960 --> 00:30:36.259
And like you say, she couldn't get their feedback.

00:30:36.720 --> 00:30:39.859
in words or paper so she drew pictures she's

00:30:39.859 --> 00:30:42.019
an artist but she drew pictures on post -its

00:30:42.019 --> 00:30:44.400
and that was her dissertation research and that

00:30:44.400 --> 00:30:49.160
is what she put in um which is just yeah what

00:30:49.160 --> 00:30:51.720
is her name so that's johanna yes that's right

00:30:51.720 --> 00:30:54.240
does in this so that that work came out of the

00:30:54.240 --> 00:30:59.829
sensory studio amazing johanna johanna yes came

00:30:59.829 --> 00:31:01.990
and worked with us in the sensory studio and

00:31:01.990 --> 00:31:04.630
did these beautiful drawings. And she was very

00:31:04.630 --> 00:31:07.369
committed to working with adults and so came

00:31:07.369 --> 00:31:09.430
and worked with us. The drawings really capture

00:31:09.430 --> 00:31:11.410
those interactions and they capture that space

00:31:11.410 --> 00:31:13.289
in between and they capture the energy and what

00:31:13.289 --> 00:31:15.450
was happening in that moment. And we're doing

00:31:15.450 --> 00:31:18.190
an exhibition with her in September in Norwich,

00:31:18.349 --> 00:31:21.329
where she's going to be exhibiting the work that

00:31:21.329 --> 00:31:25.670
was created there alongside her thesis that she's

00:31:25.670 --> 00:31:28.250
created for her PhD, which is called the Unreadable

00:31:28.250 --> 00:31:32.960
Thesis. which is a tool and I don't want to talk

00:31:32.960 --> 00:31:36.579
about her research but and my understanding is

00:31:36.579 --> 00:31:40.339
it is a tool that is used to get to know somebody

00:31:40.339 --> 00:31:42.660
with PMLD a kind of tool for play and a tool

00:31:42.660 --> 00:31:46.000
tool for for learning about somebody which she'll

00:31:46.000 --> 00:31:48.140
then have a written thesis but we're less interested

00:31:48.140 --> 00:31:50.140
in that yeah exactly of course I'm so pleased

00:31:50.140 --> 00:31:51.819
that I'm so pleased that you're working with

00:31:51.819 --> 00:31:53.819
these people because it's so important and it's

00:31:53.819 --> 00:31:56.420
so at the forefront and I feel like it's together

00:31:57.440 --> 00:32:00.400
we're we're making change we're really you know

00:32:00.400 --> 00:32:02.119
making these steps I think together that all

00:32:02.119 --> 00:32:04.720
helps doesn't it you know we're on the ground

00:32:04.720 --> 00:32:07.099
doing the experimenting and giving the feedback

00:32:07.099 --> 00:32:10.059
and then it's an incredibly incredible mind that

00:32:10.059 --> 00:32:11.759
are then put into something that can actually

00:32:11.759 --> 00:32:15.079
hopefully change legislation and for anyone who

00:32:15.079 --> 00:32:17.359
wants to check out Johanna's post -its they're

00:32:17.359 --> 00:32:20.819
on instagram at sensory .studio .ethnography

00:32:20.819 --> 00:32:24.579
so you can look at all the post -its that Johanna

00:32:24.579 --> 00:32:27.269
did from the sensory studio and I think those

00:32:27.269 --> 00:32:30.529
post -its really do share the essence of those

00:32:30.529 --> 00:32:33.589
one -to -one moments. Yeah, I think anyone that's

00:32:33.589 --> 00:32:36.450
a carer will look at a good few of these post

00:32:36.450 --> 00:32:38.670
-its and know exactly what is happening because

00:32:38.670 --> 00:32:41.309
we've felt that too. And I just think they're

00:32:41.309 --> 00:32:42.869
really exciting. I'm really pleased. I had no

00:32:42.869 --> 00:32:45.009
idea. Sorry, I didn't. That seems really funny.

00:32:45.069 --> 00:32:47.490
It just shows what a small world this community

00:32:47.490 --> 00:32:49.789
and this bubble is, right? But I just heard it

00:32:49.789 --> 00:32:51.230
and thought it's just really exciting. So how

00:32:51.230 --> 00:32:53.690
exciting that, you know, it's all to do with

00:32:53.690 --> 00:32:56.559
the same project. That's just... makes it seem

00:32:56.559 --> 00:33:01.400
even better in my mind. So people are listening.

00:33:01.759 --> 00:33:04.960
They're going to want to get involved in this.

00:33:05.019 --> 00:33:07.279
I know they are. So where are you touring and

00:33:07.279 --> 00:33:10.380
how can people come and get involved and bring

00:33:10.380 --> 00:33:15.299
their, yeah, buy tickets and get that happening?

00:33:15.900 --> 00:33:21.059
So we're on www .frozenlighttheatre .com and

00:33:21.059 --> 00:33:23.500
we are currently touring the Ancient Oak of Baldor.

00:33:24.119 --> 00:33:26.240
We will have a summer season of Night Out in

00:33:26.240 --> 00:33:29.319
Nature, our outdoor show. And our choral show,

00:33:29.400 --> 00:33:32.039
Fire Songs, is in London in August. So if you

00:33:32.039 --> 00:33:34.480
go on the website, it shows all the tour dates

00:33:34.480 --> 00:33:36.400
that are currently live. And if they're not on

00:33:36.400 --> 00:33:39.579
there yet, they will be. And we also announce

00:33:39.579 --> 00:33:42.640
all our upcoming dates once they go on sale on

00:33:42.640 --> 00:33:46.329
Facebook, Instagram and X. where you can find

00:33:46.329 --> 00:33:49.809
us as at Frozen Light Theatre or at Frozen Theatre

00:33:49.809 --> 00:33:53.349
on X. So just, you know, keep in touch. And we

00:33:53.349 --> 00:33:54.829
also have a mailing list, which you can sign

00:33:54.829 --> 00:33:58.470
up to on the website. And if you aren't a care

00:33:58.470 --> 00:34:00.410
of someone with PMLD, but you really want to

00:34:00.410 --> 00:34:03.210
see the show, do also just reach out to us. Don't

00:34:03.210 --> 00:34:05.329
buy a ticket, but send us an email, which you

00:34:05.329 --> 00:34:07.609
can find on our website. And we always try and

00:34:07.609 --> 00:34:09.449
make space for anyone who's interested in our

00:34:09.449 --> 00:34:12.619
work. amazing thank you so much i always use

00:34:12.619 --> 00:34:14.539
these kind of chats as a bit of cpd for myself

00:34:14.539 --> 00:34:17.880
basically so i always give myself a little mission

00:34:17.880 --> 00:34:20.119
for the following week after these chats and

00:34:20.119 --> 00:34:24.320
i think my one this time is to uh sit with and

00:34:24.320 --> 00:34:26.800
resonate with the feedback the immediate feedback

00:34:26.800 --> 00:34:29.780
i am getting from my lesson or from whatever

00:34:29.780 --> 00:34:34.230
session i'm doing and just honor that And then

00:34:34.230 --> 00:34:37.329
inform my practice. So if anyone else is listening

00:34:37.329 --> 00:34:39.650
to this, maybe that could be your homework for

00:34:39.650 --> 00:34:41.630
this week as well is just, you know, honoring

00:34:41.630 --> 00:34:43.610
that feedback. It might not be linguistic. It

00:34:43.610 --> 00:34:45.329
might not be from your senior leadership team.

00:34:45.369 --> 00:34:46.750
It might not be from your colleagues, but it

00:34:46.750 --> 00:34:49.469
is more important. And we need to really honor

00:34:49.469 --> 00:34:52.610
that feedback. And yeah, make these changes.

00:34:52.809 --> 00:34:55.250
So thank you so much for joining me. And I for

00:34:55.250 --> 00:34:57.849
one will be joining that mail list and emailing

00:34:57.849 --> 00:35:01.090
you and making my way over. unfortunately I'm

00:35:01.090 --> 00:35:03.550
in Cornwall so it's it's just there's nothing

00:35:03.550 --> 00:35:05.809
here there is nothing here Theatre Royal Plymouth

00:35:05.809 --> 00:35:09.750
will be in Plymouth amazing I'll be there I'm

00:35:09.750 --> 00:35:12.489
so excited and I know this will really excite

00:35:12.489 --> 00:35:14.489
my love of theatre again because I have fallen

00:35:14.489 --> 00:35:17.269
out of love with it but this is you must this

00:35:17.269 --> 00:35:20.469
is what it is for me in my heart this is theatre

00:35:20.469 --> 00:35:23.170
so yeah that's really exciting to me thank you

00:35:23.170 --> 00:35:25.769
so much Amber and Lucy for joining me on my podcast

00:35:25.769 --> 00:35:28.809
and yeah have a great theatre season this year

00:35:29.480 --> 00:35:31.099
Thank you for having us. Thanks for having us.
