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My guest today is Dr. Theresa Regan.

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Dr. Regan is the founder and director of the OSF Health Care Adult Diagnostic Autism Clinic

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for ages 14 and over.

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She has experience with autism assessments reaching nearly 1,000 adolescents and adult

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evaluations working as a neuropsychologist specializing in brain behavior relationships.

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It is no secret Dr. Regan is a specialist for adults with autism.

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Dr. Regan is an author of a book series called Understanding Autism and Host of a Successful

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Podcast Autism in the Adult, where she covers vast amounts of useful everyday benefits of

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adults with autism, whereby she reaches audiences to better understand adults with autism.

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Her podcast features various series for a variety of topics and is, in my opinion, provides

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such valuable insights on how adults with autism can learn necessary skills and understanding

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to better navigate life.

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In addition, Dr. Regan has experience being a mother of an autistic young adult.

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These topics of adults with autism are extremely important to me in my personal life and I'm

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very thankful for her consideration and knowledge.

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And now my conversation with Dr. Theresa Regan.

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Dr. Regan, tell me about your journey into psychology and into autism and then specifically

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adults and adolescents with autism.

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Well, I had a kind of a backdoor journey, which I think has actually been a real blessing

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for me.

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So in high school, I thought I wanted to do something with my life that involved the brain

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and understanding the brain as far as thinking and how we become who we are.

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So I ended up studying in graduate school clinical psychology, which means I work with

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clients and their families.

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And then I specialized in the brain part of that, which is neuropsychology.

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And in neuropsychology, you get to pick, would you like to focus on adults or would you like

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to focus on children?

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And so I ended up on the adult track, which usually includes like adolescents, adults

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and then geriatric adults.

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And after that, I had trained in many hospital settings and I ended up getting a professional

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job in Central Illinois, Peoria, Illinois.

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And I worked in the hospital setting and continue to.

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I'm at 25 years here now at OSF Healthcare in Peoria.

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And boy, I've had the opportunity to see lots of different things and learn lots of different

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things.

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And mostly I focus on in adults, how changes in the brain, wiring and structure can impact

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thinking skills and also emotional expression, personality and behaviors.

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So that was my base.

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So I might, for example, do a checkup with someone to see if there looks to be a dementia

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process going on, or I might work with someone who has a traumatic brain injury or an infectious

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brain injury.

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So I got to do that for a long time throughout my training and then also in the hospital

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setting.

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And again, that was just such a great global broad experience.

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And then I became a mother and in our journey with our son, you know, it was confusing and

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just, it was hard because he seemed in so much distress and I didn't know how to help

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him or what was, you know, you get lots of advice as a parent, you know, but you can

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still feel very isolated and alone and trying to figure out how to help your kids.

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And so he had interventions from an early age and then at about four, I requested the

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autism assessment and that was done through Easter Seals.

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So he was diagnosed just after he turned five.

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And I remember thinking, I am not prepared for this.

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I do not know what I'm doing.

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And then I stopped and I thought, you know, my whole life has really prepared me for this

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in some ways.

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Like I at least have a framework for understanding that brain wiring impacts how a person experiences

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the world, how they express themselves, I at least have that lens, that framework.

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And so I just, I'm a very kind of activated person.

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So when I'm stressed, I kind of jump in and I try to learn and I try to experiment with

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what might be helpful and what's not helpful.

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So over that journey, then I'm also of course working at the hospital and I'd see patients

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in the hospital setting and the staff would be confused, you know, like, I just don't

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understand what we're missing with this individual.

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How could we help them?

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How could we understand?

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And I think, I know what this is, it's undiagnosed autism and it may be in an 82 year old or

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maybe in, you know, a 54 year old and not only do pediatric specialists not know how

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to recognize it in adults, but adult specialists don't know because they don't focus on developmental

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issues and they don't realize that developmental issues impact the presentation and the needs

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of that individual throughout their whole lifespan.

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So I just had experience after experience where it was such a blessing to be able to

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add that component of understanding to the staff, to the client, to the family members.

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And then I thought, you know, I just really want to dive into that more.

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And at some point, you know, I realized I'm just really providing the service we should

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just make it official and say, you know, we do this type of service for adults.

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And so the administration gave me permission to form a name and put into practice the adult

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diagnostic autism clinic.

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And I've done over a thousand assessments now and I think, you know, I start at 14 as

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the age range that I see.

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And then I think the oldest diagnostic assessment, the person was in their 80s, like maybe 82.

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And I realized too how important it is to distinguish autistic characteristics from

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what might look like a dementia to someone who doesn't know how to recognize the developmental

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features.

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And I came in through the back door, but that gave me another viewpoint, a different perspective

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that I've been really blessed by.

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Wow.

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And so I got a couple of different things from the introduction.

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It's like, in my experience, it seems like the most educated people with autism are those

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that live it or are around it.

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Yeah.

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And they're superior over any research.

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Yeah.

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I think there's part of the living day today that you just can't get from a book.

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I mean, in graduate school, I certainly learned about autism.

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And of course, we know a lot much more about it now.

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And I had gone to conferences about it before and I didn't even realize what I was seeing

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until he was about four.

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So even as a neuropsychologist, it's really hard to translate what you're seeing into this

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vocabulary of neurology, especially for young parents too.

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I think parents are encouraged to require the same behavior from all of their kids and

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to have very close, clear consequences.

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And what I've really been blessed by is the ability just to be a detective with people

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and be like, wow, they're really overwhelmed.

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What has led to this and how can we help them regulate better?

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How can we help them feel better?

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And what a breakthrough that is for people to be able to look at it in that different

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way.

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Yeah.

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I'm delighted whenever you said that you just typically jump into things.

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I think action, jumping into things and stress are anti-correlated.

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So if you just get into it, your stress will calm.

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And much more people would understand that.

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As a psychologist, did you feel extra pressure because of you are navigating this and you

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should be well-conformed or maybe even an expert?

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I think that also was a blessing to me to realize that all the book knowledge in the

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world, because my graduate program was like nine years after my bachelor's degree.

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So it's an intense brain program.

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And all this knowledge, there's always something we don't know.

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And that piece of humbling experience, and I remember thinking back to things I have

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thought in my mind that with life experience, I would never say again.

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Like I remember walking into Walmart before I had a child and I saw a child, maybe three

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or four in the cart and they had a pacifier in their mouth.

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And I in my infinite wisdom, not being a parent, thought to myself, that would never

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happen in my house.

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And then as a parent, my child had this fixation with turning and holding three pacifiers in

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each hand and two in his mouth.

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And that was how he regulated and he'd turn them.

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And I had to go into Walmart really quickly.

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I never took him into any, but I had to grab a photo.

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So I said to him, and he was probably, oh, he probably was around four.

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So I said, we're just going to run in really quickly.

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And you can only take one.

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And I said, it's going to be really quick.

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And sure enough, someone in the line started to tell me about how to stop that.

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And they're like, here, you can just take it out of his mouth.

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And they were taking it out of his mouth.

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And I had to be, remember that humbling contrast.

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And like that was me.

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Without life experience, that was me.

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And so it also has given me some grace to let people be in a different place than I am

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because they haven't had that experience.

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And so I just was able to say, you know what, we're not going to do that today, but I appreciate

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your input.

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So it's a humbling experience to live it and realize that you didn't have the whole picture.

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And it also, I think, if handled well, allows you to extend grace to people who don't understand

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or are in a different place.

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And that's OK.

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Yeah.

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It would have been a typical or an easy reaction to kind of get on to that other person for

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not knowing anything about what's going on.

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Yeah.

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And I could have felt very criticized.

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Even as a parent, and parents get weary of criticism.

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But again, because I had had that experience in Walmart, and I had processed that since

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then, and I thought, what a contrast.

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And I was able to choose then in the moment, instead of being really emotional or shaming

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to them.

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I was able to stop.

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And so I think that's been my experience that here I am with all this book knowledge and

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experiences the way that you really grow.

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And can I grow while extending grace?

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So I think that's been one of the biggest takeaways as far as my professional intersection

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with my personal life.

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Yeah.

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That's wonderful.

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And I'm reminded of your brain behavior relationship as a neuropsychologist and just having an

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extreme interest with neuroplasticity and how we change and develop all the time.

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That's pretty cool to me.

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So what are some common themes adults with autism come to you with?

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What that looks like for them and their life?

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For them around others.

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So one thing to keep in mind, and I, you know, a lot of times when I share stories, I'm sharing

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experiences that are based in a time of struggle.

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So as a clinician, people come to me in a season of struggle.

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Yeah, that's a good thing.

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Yeah, that doesn't mean that everything about autism is struggle.

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But when people intersect in my clinic, they're coming for assistance and that they've been

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in a season of struggle.

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So a lot of times the themes are that there's been, they've hit a roadblock in their ability

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to understand themselves and to shift their behaviors to meet the expectations of others.

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And people around them are confused and they're confused.

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And there can be this kind of shaming situation.

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And it kind of goes back again to some of the parenting things too.

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Like as a parent, you get a lot of this input like, that wouldn't happen in my house.

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And again, I've said that.

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And or things like, you know, if your child is struggling, it's because you aren't doing

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something correctly.

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And then as they get older into adulthood, they get the message that if they're struggling,

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it's because they're not doing something well.

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And we have this kind of American, and I'm sure part of it is just a human outlook.

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But in the United States, we have this value for independence and determination and willpower.

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And you know, there are posters around that say the only thing holding you back is you,

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you know.

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And so, but what that can lead to, if you don't understand neurology, is this feeling

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like if you are not meeting the expectation of the classroom, if you are not meeting the

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expectation of the Christmas party or whatever, it's because you don't have the will or determination

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to regulate yourself in a complex situation.

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And so one of the themes that has been, and again, I think this is one of the biggest

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reasons to get a clarifying diagnosis is that if something is a stumbling block for someone's

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wellness and it's related to a traumatic experience or, you know, poor life choices or whatever,

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our psychology approach can be very helpful if the difficulty regulating or meeting their

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goals is related to a nervous system that needs something different.

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We need to know that.

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And not only can it break that cycle of shame and stuckness, like I'm stuck because none

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of the traditional things are going to are really helping me to overcome this.

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But it gives new approaches that you wouldn't otherwise have.

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So you have a better understanding, you have new approaches and the theme of why are we

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stuck?

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Is it because of you or me?

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You know, that can be broken and we can focus on being detectives and figuring things out

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together and partnering together.

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So regulation, you know, the ability to stay calm and psychologically present in various

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situations can be one thing that people present with as far as struggle.

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Communication and relationships could be a point of struggle.

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And sometimes it's that adulting piece, you know, like just getting through the day and

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why am I brilliant in physics but I struggle to pay my bills on time or whatever.

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So those would be some common things.

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But the overall shift could be about this greater understanding, breaking those assumptions

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that just keep us trapped and then focusing on solutions for those stumbling blocks.

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Yeah.

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Yeah.

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I think an easy way to describe autism is lacking adaptive responses, especially from

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the some of the neurobiology of autism and how we have to integrate into society and

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social norms.

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And that's very much in contrast of the autistic phenotype.

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And without knowing that you have the autistic phenotype, like officially, that can be very

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challenging.

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Yeah.

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I think and a lot of the challenge is just that people don't know.

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I mean, they don't.

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There's just a lack of knowledge and that's something we can help with, you know.

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So autism has become a household word in many respects, but at the same time, not many people

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know what it looks like.

234
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Yeah.

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They know.

236
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Yeah.

237
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Yeah.

238
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So translating like this is neurology in this person can be really important.

239
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But yeah, the brain's neurologic architecture that we're born with, the more knowledge we

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have about each individual, you know, the more enlightened we can be about, oh.

241
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So because we'll always say, what does this behavior mean?

242
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Because behavior is communication.

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So if somebody who doesn't know autism interacts with someone, they're still going to be saying

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like, what does it mean that they looked at me that way?

245
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What does it mean that they didn't say this or they did say this?

246
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And we're supposed to get meaning out of behavior.

247
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But if they don't know that neurology presents that way, then there's these wrong assumptions.

248
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Well, they just don't care enough or they don't care about me or they're focused on

249
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this interest and they think it's more important than me.

250
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So if we can introduce this knowledge that this is what neurology looks like in this

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person and their behavior doesn't mean that you've been rejected or you've been slighted,

252
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it means that this is what intrigues their wiring.

253
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This is what their wiring loves.

254
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And how do we translate that so that both people's needs can be met and that you can

255
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understand each other?

256
00:22:53,160 --> 00:22:58,240
So it's not me against them or them against me, but it's, oh, we have nervous systems

257
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and this is what yours looks like.

258
00:23:00,360 --> 00:23:01,360
Yeah, okay.

259
00:23:01,360 --> 00:23:07,920
Yeah, so I had a follow-up question and I was wondering some helpful tools or protocols

260
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that you might have in your experience, especially with the amount of logistics that you've worked

261
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with, though they might be kind of general things that's helped.

262
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But I was just curious if there's some common protocols or tools that you guys work with

263
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or work with.

264
00:23:31,040 --> 00:23:41,480
So I think one intervention tool is essentially explanation, like translating.

265
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So even when people come, often they come with family or they, even when they suspect

266
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this might be what it is, they often don't see all the pieces that hang together in the

267
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brain and why.

268
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So part of the big intervention is pointing that out, like your brain really loves this

269
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and this works for you in this way.

270
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But look at how it could work against you in this way.

271
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So really giving them that more true narrative is one of the interventions, I think.

272
00:24:21,880 --> 00:24:36,920
And then one of the things I think is so important that no counselor or teacher or physician

273
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really is going to bring up is the use of physical inputs for regulation.

274
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And I think the autistic really needs that.

275
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And what I mean is that looking at that proprioceptive and vestibular input to just calm and regulate

276
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the nervous system.

277
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So what we tend to do if someone's dysregulated, if they're upset or if they can't get activated,

278
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we tend to talk to them about it.

279
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So let me tell you why you should be in a different place emotionally.

280
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Let me tell you why you should behave differently.

281
00:25:18,880 --> 00:25:27,880
And this talking while someone's dysregulated is not really helpful to the autistic because

282
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talking is draining.

283
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So the autistic is like, I'm already drained.

284
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You are talking to me about being drained.

285
00:25:39,000 --> 00:25:43,800
You know, let's send you to counseling so that you can talk more about how you're

286
00:25:43,800 --> 00:25:46,640
feeling. And I have nothing against counseling.

287
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I do it.

288
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I think it's very effective.

289
00:25:48,760 --> 00:25:55,520
But there's something else the autistic needs, which is how do I just get my nervous system

290
00:25:55,520 --> 00:26:02,560
to feel calmer and to feel better in my own skin before we start talking about regulation?

291
00:26:02,560 --> 00:26:09,720
And so what I love to think about is, you know, if we have an infant that is screaming

292
00:26:09,720 --> 00:26:16,800
and crying and they just get very dysregulated and talking isn't going to help them, you

293
00:26:16,800 --> 00:26:22,680
know, and explaining why they don't need to cry isn't going to help them and punishing

294
00:26:22,680 --> 00:26:24,800
them or whatever.

295
00:26:24,800 --> 00:26:32,720
But what does help them is holding them, which gives them pressure input, proprioceptive input

296
00:26:32,720 --> 00:26:37,560
or swaddling them and rocking them.

297
00:26:37,560 --> 00:26:39,480
That's vestibular input.

298
00:26:39,480 --> 00:26:47,360
So we have this very innate nervous system pattern built into us.

299
00:26:47,360 --> 00:26:50,160
Everybody who has a nervous system has this.

300
00:26:50,160 --> 00:26:57,080
And a lot of us use strategies to calm and center the nervous system based on this principle

301
00:26:57,080 --> 00:26:59,080
without even thinking about it.

302
00:26:59,080 --> 00:27:04,040
Like one person might say, oh, riding my bike outside is the best.

303
00:27:04,040 --> 00:27:11,360
I just feel really calm and rejuvenated, but I can't ride on a stationary bike.

304
00:27:11,360 --> 00:27:12,960
That's not going to do it.

305
00:27:12,960 --> 00:27:20,360
Well what they might be saying is, I really need that movement input because vestibular

306
00:27:20,360 --> 00:27:25,160
input needs you to move through space like rocking, right?

307
00:27:25,160 --> 00:27:31,600
And then you can, what I love about this is everybody can use these tools.

308
00:27:31,600 --> 00:27:36,200
It's an inherent nervous system thing.

309
00:27:36,200 --> 00:27:43,000
So everyone can relate to it and it really lends itself to this detective mindset of,

310
00:27:43,000 --> 00:27:46,880
oh, your nervous system really likes this.

311
00:27:46,880 --> 00:27:59,840
And so if somebody is pacing or they're overactive, they're not sitting down, we could say as

312
00:27:59,840 --> 00:28:04,560
a detective, oh, wow, your body really wants a movement now.

313
00:28:04,560 --> 00:28:07,440
How else could you get that?

314
00:28:07,440 --> 00:28:10,920
Let's see if a swing helps you feel better regulated.

315
00:28:10,920 --> 00:28:17,400
And you get this partnership, you get this detective kind of thing, and then people learn

316
00:28:17,400 --> 00:28:20,560
how to take care of their nervous system.

317
00:28:20,560 --> 00:28:29,600
Otherwise, what happens is we get into this kind of pattern where we try to make sure

318
00:28:29,600 --> 00:28:37,320
everything in our external environment and life is just so, so that our nervous system

319
00:28:37,320 --> 00:28:40,320
feels okay.

320
00:28:40,320 --> 00:28:45,760
And we spend a lot of time trying to make sure unexpected things don't happen and loud

321
00:28:45,760 --> 00:28:48,880
things don't happen.

322
00:28:48,880 --> 00:28:56,680
And that's fine, but it is impossible to totally do that and it's exhausting.

323
00:28:56,680 --> 00:29:02,320
So adding this element of how are we going to take care of your nervous system today?

324
00:29:02,320 --> 00:29:05,160
You know, how can you get pressure input?

325
00:29:05,160 --> 00:29:11,840
Pressure input gives the brain proprioceptive signals and that calms the nervous system.

326
00:29:11,840 --> 00:29:18,600
How can we get you the stabular input where the fluid in your ear is moving?

327
00:29:18,600 --> 00:29:20,480
Do you need a rocking chair?

328
00:29:20,480 --> 00:29:21,760
Do you need to ride your bike?

329
00:29:21,760 --> 00:29:24,000
Do you need a hammock?

330
00:29:24,000 --> 00:29:30,440
And that gives the brain centering input and how does that fit with you?

331
00:29:30,440 --> 00:29:35,200
And so that's part of the really activating thing too.

332
00:29:35,200 --> 00:29:41,360
Let's be a detective, let's partner together, and then let's figure out how to get your

333
00:29:41,360 --> 00:29:43,080
nervous system what it needs.

334
00:29:43,080 --> 00:29:53,080
And to use those physical inputs is so important, I think, because talking through other strategies,

335
00:29:53,080 --> 00:29:58,680
this reliance on talking first, I think, can be too overwhelming.

336
00:29:58,680 --> 00:30:03,520
You know, let's help your nervous system feel better first, and then we can talk through

337
00:30:03,520 --> 00:30:04,520
some things.

338
00:30:04,520 --> 00:30:07,560
Yeah, that's incredible insight.

339
00:30:07,560 --> 00:30:14,680
And I think it's unfortunately, it's not considered as often as it should be.

340
00:30:14,680 --> 00:30:18,200
I was thinking about Temple Grand and designing the squeeze machine.

341
00:30:18,200 --> 00:30:19,200
Yeah, exactly.

342
00:30:19,200 --> 00:30:20,200
Yeah.

343
00:30:20,200 --> 00:30:24,720
And it's just so helpful, everything you described.

344
00:30:24,720 --> 00:30:27,560
I like squeezing paper towels in my head.

345
00:30:27,560 --> 00:30:28,560
Yes, yes.

346
00:30:28,560 --> 00:30:34,640
And that, you know, you sharing that, that gives people ideas, right?

347
00:30:34,640 --> 00:30:39,440
It's kind of a creativity based on a revelation.

348
00:30:39,440 --> 00:30:43,840
So we have this revelation that squeezing something feels good.

349
00:30:43,840 --> 00:30:49,240
And then we have this innovation or creative mindset of how else could your system get

350
00:30:49,240 --> 00:30:50,600
that.

351
00:30:50,600 --> 00:30:56,800
What kind of effective way, what kind of, how can we really get the most out of that

352
00:30:56,800 --> 00:30:57,800
for you?

353
00:30:57,800 --> 00:31:03,600
Yeah, also, as you were describing that, I was thinking that you're giving people an

354
00:31:03,600 --> 00:31:11,160
ability to kind of zoom out out of the situation and have a more perspective on what is happening

355
00:31:11,160 --> 00:31:13,960
and what are some other options that I can do.

356
00:31:13,960 --> 00:31:14,960
Yes.

357
00:31:14,960 --> 00:31:16,240
Yeah, you need someone.

358
00:31:16,240 --> 00:31:27,240
And that's, it's, you know, we're stuck a little bit because we don't have enough experts

359
00:31:27,240 --> 00:31:32,560
who can help someone step back and see the big picture.

360
00:31:32,560 --> 00:31:38,760
And so they're stuck in their own skin and in their own head, you know, and they're like,

361
00:31:38,760 --> 00:31:40,240
okay, what could I do?

362
00:31:40,240 --> 00:31:43,240
But they can't, they can't move beyond that.

363
00:31:43,240 --> 00:31:48,120
And the expert is supposed to say, what I see is this pattern.

364
00:31:48,120 --> 00:31:50,200
Have you noticed this pattern?

365
00:31:50,200 --> 00:31:54,040
And then they'll say, oh, so that links with this.

366
00:31:54,040 --> 00:32:03,560
Okay, you know, you need someone outside and who's knowledgeable enough about the brain

367
00:32:03,560 --> 00:32:10,680
and neurology to start to show you pattern, how the pattern works for you and against

368
00:32:10,680 --> 00:32:14,000
you, and to have this creative partnership.

369
00:32:14,000 --> 00:32:20,640
So people who are trying to do that on their own, I applaud them, you know, for that self,

370
00:32:20,640 --> 00:32:23,880
that journey to figure out yourself.

371
00:32:23,880 --> 00:32:32,080
Ideally, it would be nice to have an expert to come alongside and to say, I'm wondering

372
00:32:32,080 --> 00:32:37,560
if you've considered this because this is how neurology works.

373
00:32:37,560 --> 00:32:39,560
And I'm noticing this.

374
00:32:39,560 --> 00:32:44,000
Yeah, that's a whole people can catch onto that.

375
00:32:44,000 --> 00:32:47,920
That's valuable information.

376
00:32:47,920 --> 00:32:55,000
So I know in your podcast, you talk a lot about different aspects of life.

377
00:32:55,000 --> 00:32:58,240
So I have a couple that I've really want to ask you about.

378
00:32:58,240 --> 00:33:03,280
And the first one is, how about adults and relationships?

379
00:33:03,280 --> 00:33:05,280
Yeah.

380
00:33:05,280 --> 00:33:18,760
And what I love about the diagnostic piece, again, is this ability to break some of the

381
00:33:18,760 --> 00:33:23,280
misunderstanding about relationships.

382
00:33:23,280 --> 00:33:29,280
So you know, we, I gave some parenting examples because that's where I learned, you know,

383
00:33:29,280 --> 00:33:33,720
in parenting my son, but these examples across the lifespan.

384
00:33:33,720 --> 00:33:40,960
So you know, how does this pattern and way of interacting impact friendship or dating

385
00:33:40,960 --> 00:33:45,800
or retirement or marriage or kids?

386
00:33:45,800 --> 00:33:56,400
And that's another benefit of having someone outside of yourself to say, okay, you're in

387
00:33:56,400 --> 00:34:03,400
a new season, you know, so our bodies change over time, our brains change over time, our

388
00:34:03,400 --> 00:34:08,400
chemistry changes and our life circumstances change.

389
00:34:08,400 --> 00:34:17,560
So those all kind of coincide and someone could say to you, hey, you know, I think the

390
00:34:17,560 --> 00:34:29,320
things that you used to regulate yourself before this relationship, you know, are less

391
00:34:29,320 --> 00:34:34,120
available to you now because you have this schedule or you're with this person, they

392
00:34:34,120 --> 00:34:41,160
don't like, you know, interact interacting with that activity or they want more one

393
00:34:41,160 --> 00:34:42,920
on one time.

394
00:34:42,920 --> 00:34:50,360
So someone to help partner with you to say, how were you regulating before and are you

395
00:34:50,360 --> 00:34:55,040
getting enough regulation now and how could we shift that?

396
00:34:55,040 --> 00:34:57,440
And then things like communication.

397
00:34:57,440 --> 00:35:10,680
So I'm just a firm believer that any characteristic that we have as humans, our strengths need

398
00:35:10,680 --> 00:35:12,320
to be identified.

399
00:35:12,320 --> 00:35:19,640
And then we need to understand that our strengths work against us in certain situations.

400
00:35:19,640 --> 00:35:25,040
It's not that this characteristic that I have is all good or all bad.

401
00:35:25,040 --> 00:35:32,000
It's that it really works for me here, but boy, I can get stuck in this area, you know,

402
00:35:32,000 --> 00:35:33,000
with us.

403
00:35:33,000 --> 00:35:38,680
And so, you know, social relationships and communication can have some of that too.

404
00:35:38,680 --> 00:35:46,520
So the individual who has that self-knowledge may be able to see in their new relationship

405
00:35:46,520 --> 00:35:47,960
how that impacts them.

406
00:35:47,960 --> 00:35:57,800
For example, they may be great and love having conversations about very interesting topics

407
00:35:57,800 --> 00:36:08,560
and or let's work on this project together or but if they're with a partner who wants

408
00:36:08,560 --> 00:36:18,760
to have heart-to-heart conversations and gaze into each other's eyes, that may be fine,

409
00:36:18,760 --> 00:36:27,240
but the self-knowledge part can say, you know, my nervous system leans toward task or topic

410
00:36:27,240 --> 00:36:29,000
oriented activities.

411
00:36:29,000 --> 00:36:36,560
I see that your nervous system really likes to connect with relational discussions.

412
00:36:36,560 --> 00:36:41,240
And I want to be there for that.

413
00:36:41,240 --> 00:36:45,000
But this is how my nervous system leans.

414
00:36:45,000 --> 00:36:50,600
So all of us will make sacrifices in a relationship with a partner.

415
00:36:50,600 --> 00:36:56,000
And for example, if you're making that sacrifice and you're like, I really want you to get

416
00:36:56,000 --> 00:37:01,320
what you need, let's have that relational conversation.

417
00:37:01,320 --> 00:37:07,840
I'm going to need some alone time or a bike ride or whatever to regroup after that.

418
00:37:07,840 --> 00:37:13,440
You know, so this is me showing up for you.

419
00:37:13,440 --> 00:37:14,840
And I want to do that.

420
00:37:14,840 --> 00:37:22,320
I also want to reset my nervous system after we do that.

421
00:37:22,320 --> 00:37:28,440
So the ability to know that about themselves and then to have words to wrap around that

422
00:37:28,440 --> 00:37:31,960
to communicate that to somebody else.

423
00:37:31,960 --> 00:37:36,880
And it goes back to that thing that we're always, whether we realize it or not, we're

424
00:37:36,880 --> 00:37:40,120
trying to figure out what that behavior means.

425
00:37:40,120 --> 00:37:43,240
What does it mean that he doesn't want to talk to me?

426
00:37:43,240 --> 00:37:48,960
You know, well, it may not mean a whole lot.

427
00:37:48,960 --> 00:37:58,240
It may mean that this is how he expresses love in the relationship in this other way.

428
00:37:58,240 --> 00:38:04,560
But to be able to start with that knowledge and for the autistic to be able to recognize

429
00:38:04,560 --> 00:38:12,440
that in themselves and communicate it, that can be huge because it can break up that tendency

430
00:38:12,440 --> 00:38:20,520
to get stuck and to just have kind of a shame or, you know, a relationship where the biggest

431
00:38:20,520 --> 00:38:25,360
communication is you're not living up to my expectations.

432
00:38:25,360 --> 00:38:30,640
That can be very wearying and a big misunderstanding really.

433
00:38:30,640 --> 00:38:32,640
Yeah.

434
00:38:32,640 --> 00:38:39,920
There's a lot of almost barriers to being compatible with other people.

435
00:38:39,920 --> 00:38:41,520
Yeah.

436
00:38:41,520 --> 00:38:57,240
And if you know what you enjoy the most in relationship, you can consider that when you're

437
00:38:57,240 --> 00:39:01,000
joining with a partner.

438
00:39:01,000 --> 00:39:09,120
I think what doesn't work is thinking that all relationships should look the same and

439
00:39:09,120 --> 00:39:19,280
then trying to become that person, you know, because our relationship should look like

440
00:39:19,280 --> 00:39:22,160
these people who have a relationship.

441
00:39:22,160 --> 00:39:28,520
And I think if you start with your own nervous system and the nervous system of your partner,

442
00:39:28,520 --> 00:39:29,640
what makes me tick?

443
00:39:29,640 --> 00:39:30,640
What makes them tick?

444
00:39:30,640 --> 00:39:34,240
What do they need out of a relationship that I don't need?

445
00:39:34,240 --> 00:39:35,240
And vice versa.

446
00:39:35,240 --> 00:39:38,000
And then are we compatible?

447
00:39:38,000 --> 00:39:44,880
Because compatibility may be there with someone else who also loves to talk and do rather

448
00:39:44,880 --> 00:39:51,920
than gaze into someone's eyes and, you know, process emotions.

449
00:39:51,920 --> 00:39:56,640
Neither of those approaches are all good or all bad.

450
00:39:56,640 --> 00:40:05,800
But you can't consistently give someone all they need emotionally all the time if your

451
00:40:05,800 --> 00:40:09,720
nervous system works in a different way.

452
00:40:09,720 --> 00:40:11,920
So starting with the self-knowledge.

453
00:40:11,920 --> 00:40:12,920
Yeah.

454
00:40:12,920 --> 00:40:13,920
Yeah.

455
00:40:13,920 --> 00:40:19,360
There's a lot of autistic phenotypes have competing goals.

456
00:40:19,360 --> 00:40:21,800
Everybody has competing goals.

457
00:40:21,800 --> 00:40:28,680
The more we do one thing, it's going to subtract from us being able to do the other things.

458
00:40:28,680 --> 00:40:35,160
But with autism, like with the restrictive, fixated interest and the scheduling and the

459
00:40:35,160 --> 00:40:37,400
difficulties with social communication.

460
00:40:37,400 --> 00:40:38,400
Yeah.

461
00:40:38,400 --> 00:40:44,160
This is a whole relationship part of something that I personally struggle with quite a bit.

462
00:40:44,160 --> 00:40:47,720
I know that's maybe too personal.

463
00:40:47,720 --> 00:40:53,080
But autism came on the radar for me from romantic relationship and coworkers.

464
00:40:53,080 --> 00:40:55,680
So various forms of relationships.

465
00:40:55,680 --> 00:40:58,400
And it was just like, okay, wow.

466
00:40:58,400 --> 00:40:59,800
I mean, just.

467
00:40:59,800 --> 00:41:00,960
Yeah.

468
00:41:00,960 --> 00:41:09,880
And I think with romantic partnerships, if you have that self-knowledge, sometimes you

469
00:41:09,880 --> 00:41:13,120
can make choices that are a little outside the box.

470
00:41:13,120 --> 00:41:25,680
Like I have couples that do really well, but they each keep their own living space.

471
00:41:25,680 --> 00:41:28,920
And maybe they've been together nine years, you know.

472
00:41:28,920 --> 00:41:32,840
But why do they do well?

473
00:41:32,840 --> 00:41:35,800
They have their own space.

474
00:41:35,800 --> 00:41:39,320
They realize how they work best as a couple.

475
00:41:39,320 --> 00:41:45,720
And they're not trying to make their relationship look like someone else's relationship.

476
00:41:45,720 --> 00:41:54,840
I think another thing that happens with relationships can be that over time, there's increasing complexity

477
00:41:54,840 --> 00:41:57,440
in adult romantic relationships.

478
00:41:57,440 --> 00:42:04,880
A lot of times because the longer you're with someone, you know, then you're expected to

479
00:42:04,880 --> 00:42:11,360
go to weddings with them or meet their family or go to their holiday family vacations.

480
00:42:11,360 --> 00:42:13,840
And maybe you have children together.

481
00:42:13,840 --> 00:42:23,000
And this multitasking starts to come into play where it's not just a one-on-one relationship.

482
00:42:23,000 --> 00:42:29,440
You have this exponential demand start coming.

483
00:42:29,440 --> 00:42:38,760
And that means you're extending yourself in these multiple areas and probably don't have

484
00:42:38,760 --> 00:42:44,040
as much access to what regulates you.

485
00:42:44,040 --> 00:42:53,320
And it can feel like life just kind of goes on without asking our permission, right, to

486
00:42:53,320 --> 00:42:54,600
expand and change.

487
00:42:54,600 --> 00:43:05,200
And so attention to what, you know, the social media relationship or family looks like versus

488
00:43:05,200 --> 00:43:07,200
what actually fits me.

489
00:43:07,200 --> 00:43:10,040
Because a lot of pressures.

490
00:43:10,040 --> 00:43:11,040
A lot.

491
00:43:11,040 --> 00:43:14,120
Yeah, social comparison and fitting in.

492
00:43:14,120 --> 00:43:20,840
A lot of conversation was just fitting in and a lot of early on, a lot of just like

493
00:43:20,840 --> 00:43:21,840
modeling people.

494
00:43:21,840 --> 00:43:22,840
Right.

495
00:43:22,840 --> 00:43:27,920
Because that's what we're supposed to do and how much conflict that it actually ends

496
00:43:27,920 --> 00:43:28,920
up being.

497
00:43:28,920 --> 00:43:29,920
Right.

498
00:43:29,920 --> 00:43:36,560
It's kind of funny because parents talk about their teens and peer pressure, but we all

499
00:43:36,560 --> 00:43:39,360
feel peer pressure, don't we, at any age.

500
00:43:39,360 --> 00:43:46,760
You know, so and so is retiring to the Florida Keys and I don't have that.

501
00:43:46,760 --> 00:43:52,040
And so we're always comparing and it doesn't do us much good.

502
00:43:52,040 --> 00:43:53,040
Yeah.

503
00:43:53,040 --> 00:43:57,760
As you was describing some of that, it's like, yeah, it makes sense.

504
00:43:57,760 --> 00:44:03,880
As you're explaining, we work inward and then work out from ourselves.

505
00:44:03,880 --> 00:44:11,440
Because if this isn't broke or this isn't fixed or functioning, then all the entangled

506
00:44:11,440 --> 00:44:16,000
social dynamics of life will be off.

507
00:44:16,000 --> 00:44:20,440
That's very powerful.

508
00:44:20,440 --> 00:44:25,600
What is your experience with adults and employment?

509
00:44:25,600 --> 00:44:32,120
Yeah, that's, that's a difficult thing, isn't it?

510
00:44:32,120 --> 00:44:33,120
Yeah.

511
00:44:33,120 --> 00:44:34,120
Sorry.

512
00:44:34,120 --> 00:44:41,520
Yeah, yeah, you're fine.

513
00:44:41,520 --> 00:44:49,960
I think there's a whole range of, of how that looks and how people experience that.

514
00:44:49,960 --> 00:44:57,800
And I think we're not, we don't have the big picture yet because we don't have everyone

515
00:44:57,800 --> 00:45:10,240
diagnosed correctly yet, the people that we have diagnosed, maybe people who've hit a

516
00:45:10,240 --> 00:45:15,960
real difficult season and gone in for more assessment or maybe who have relatives who've

517
00:45:15,960 --> 00:45:24,760
been diagnosed or so it's difficult for us to make conclusions about the big picture

518
00:45:24,760 --> 00:45:28,360
of employment and autism.

519
00:45:28,360 --> 00:45:38,480
I certainly know that there are autistics, you know, in all levels of, of employment,

520
00:45:38,480 --> 00:45:49,320
but having said that, you know, the, the challenge I think can be resiliency.

521
00:45:49,320 --> 00:45:58,720
Being in every day, every week, every month, it's, and sometimes, so I think, you know,

522
00:45:58,720 --> 00:46:07,360
you've heard of that term, autistic exhaustion, I think resiliency can be a core challenge.

523
00:46:07,360 --> 00:46:14,320
And resiliency can impact relationships and it can impact your job and, you know, the

524
00:46:14,320 --> 00:46:19,400
ability to keep doing all these activities.

525
00:46:19,400 --> 00:46:29,280
And so that's what I do hear a lot that it's difficult to stay in the same job, you know,

526
00:46:29,280 --> 00:46:37,800
for a decade or whatever and make a living and pay your bills over the long term.

527
00:46:37,800 --> 00:46:38,800
Yeah, yeah.

528
00:46:38,800 --> 00:46:41,760
That's a lot of challenges there.

529
00:46:41,760 --> 00:46:42,760
Yeah.

530
00:46:42,760 --> 00:46:51,200
Just with the scheduling, like B2, the scheduling and sameness and then adding in more social

531
00:46:51,200 --> 00:46:53,400
webs entangled with that.

532
00:46:53,400 --> 00:46:56,840
Yeah, there's definitely a big social component.

533
00:46:56,840 --> 00:46:57,840
Yeah.

534
00:46:57,840 --> 00:47:05,440
I think that's why helping the autistic understand their nervous system and communicate it to

535
00:47:05,440 --> 00:47:11,640
other people, you know, that can be helpful in the work setting as well.

536
00:47:11,640 --> 00:47:21,240
And trying to figure out what fits your nervous system the best as far as work and also sometimes

537
00:47:21,240 --> 00:47:31,800
making decisions about, you know, not taking the most intense, prestigious job, even if

538
00:47:31,800 --> 00:47:39,080
you're brilliant at something that it may not fit your system to work 60 hours a week,

539
00:47:39,080 --> 00:47:45,320
you know, it may not fit your system to do presentations in other nations or, you know,

540
00:47:45,320 --> 00:47:55,320
there's a point at which caring for your whole system means I'm not going to take that promotion

541
00:47:55,320 --> 00:47:59,360
even though I'm tempted to because it's going to look good.

542
00:47:59,360 --> 00:48:04,560
People are going to acknowledge my talent and my skills and I'm going to get more money,

543
00:48:04,560 --> 00:48:13,360
but the intensity is going to go up and that really does hurt me in a lot of ways and I'm

544
00:48:13,360 --> 00:48:18,560
not willing to pay that price and service to a promotion.

545
00:48:18,560 --> 00:48:28,920
But that's again kind of against our American kind of culture of how are you getting better?

546
00:48:28,920 --> 00:48:31,400
How are you, you know?

547
00:48:31,400 --> 00:48:43,200
So to shoot for balance and how something fits you is not always applauded in the same way,

548
00:48:43,200 --> 00:48:49,560
but I think, you know, it really pays off and for people in a different setting, let's

549
00:48:49,560 --> 00:48:56,200
say it's not occupation, let's say it's school, I see this as well like, well, they should

550
00:48:56,200 --> 00:49:07,640
be in all honors classes because they're brilliant, you know, well, yes, they can do the work,

551
00:49:07,640 --> 00:49:14,760
but you have to take into account their whole life picture, you know, how much demand is

552
00:49:14,760 --> 00:49:21,080
on this person, how much drain to their nervous system, what are we doing to support and fill

553
00:49:21,080 --> 00:49:22,880
their nervous system?

554
00:49:22,880 --> 00:49:24,920
And is there anything left over?

555
00:49:24,920 --> 00:49:27,200
Yeah, yeah, yeah.

556
00:49:27,200 --> 00:49:35,320
And if we're saying this person, their personhood is important, not just their physics knowledge,

557
00:49:35,320 --> 00:49:39,240
you know, can we support them in self care?

558
00:49:39,240 --> 00:49:47,760
Can we support them with having extra and not being drained to exhaustion before we

559
00:49:47,760 --> 00:49:51,800
feel like, boy, they're really doing a good job?

560
00:49:51,800 --> 00:49:59,160
Yeah, there's education, employment, relationships, those three things that we talked about today

561
00:49:59,160 --> 00:50:00,680
are very challenging.

562
00:50:00,680 --> 00:50:01,680
Yeah.

563
00:50:01,680 --> 00:50:08,720
And the insights you gave us is just things that are kind of outside the box that hopefully

564
00:50:08,720 --> 00:50:13,800
people can consider and find some benefits to.

565
00:50:13,800 --> 00:50:25,240
Yeah, I think it does in a lot of ways introduce a different worldview, you know, where to

566
00:50:25,240 --> 00:50:32,680
start when we're making life choices and are we prioritizing something that we feel is

567
00:50:32,680 --> 00:50:39,000
the greatest good and are we making choices that help us along the marathon or we're just

568
00:50:39,000 --> 00:50:48,120
going to sprint for a while and collapse or but again, that can be very against the social

569
00:50:48,120 --> 00:50:55,320
media picture, it can be very against the American way of if you want it enough, you

570
00:50:55,320 --> 00:50:56,920
go get it.

571
00:50:56,920 --> 00:51:01,160
And if you don't have it, it's because you don't want it enough.

572
00:51:01,160 --> 00:51:03,040
So it does challenge us.

573
00:51:03,040 --> 00:51:09,520
And when we feel ourselves like cringing at the thought of taking regular classes instead

574
00:51:09,520 --> 00:51:18,280
of honors or turning down a promotion or whatever, you know, that's a good cue that maybe we

575
00:51:18,280 --> 00:51:21,080
should think through what we value the most.

576
00:51:21,080 --> 00:51:25,280
If I'm going to cringe about that, why is that?

577
00:51:25,280 --> 00:51:34,720
You know, let's do some exploring of our own beliefs and why we hold those and whether

578
00:51:34,720 --> 00:51:37,840
they give us the greatest good.

579
00:51:37,840 --> 00:51:42,280
Yeah, well said.

580
00:51:42,280 --> 00:51:48,920
Two things before we wrap up.

581
00:51:48,920 --> 00:51:59,840
Tell us how we can follow you and get introduced to your work both as in the clinic and share

582
00:51:59,840 --> 00:52:04,320
something that you're most excited about recently.

583
00:52:04,320 --> 00:52:11,320
So I would direct people to my website really to look at maybe my projects and my work.

584
00:52:11,320 --> 00:52:15,400
So that's adultandgeriatricautism.com.

585
00:52:15,400 --> 00:52:19,440
The website just got revamped, so I'm excited about that.

586
00:52:19,440 --> 00:52:20,440
It's simpler.

587
00:52:20,440 --> 00:52:22,840
I think it's easier to navigate.

588
00:52:22,840 --> 00:52:24,520
There's a link for the podcast.

589
00:52:24,520 --> 00:52:26,640
There's links for video courses.

590
00:52:26,640 --> 00:52:28,800
There's links for the blog.

591
00:52:28,800 --> 00:52:33,840
So hopefully it's kind of organized in a way that's user-friendly.

592
00:52:33,840 --> 00:52:38,640
You can also contact me through the contact page.

593
00:52:38,640 --> 00:52:43,400
My work in the hospital for diagnosis.

594
00:52:43,400 --> 00:52:48,720
One tricky thing about that and it is aligned with what we've been talking about is that

595
00:52:48,720 --> 00:52:52,920
I have a four-year wait list.

596
00:52:52,920 --> 00:53:01,680
So professionally, it's really stressful for me as well.

597
00:53:01,680 --> 00:53:06,200
You know, like I want to help people.

598
00:53:06,200 --> 00:53:13,800
And so my website is really my answer to that, like I can't see everyone in the office, but

599
00:53:13,800 --> 00:53:23,600
I can extend some knowledge and thought-provoking ideas through the website.

600
00:53:23,600 --> 00:53:30,280
And I think the nicest innovation I have now on the website is the opportunity for video

601
00:53:30,280 --> 00:53:32,600
visits in some geographic areas.

602
00:53:32,600 --> 00:53:40,400
So the one thing COVID did that was very nice for us is allowing video visits across

603
00:53:40,400 --> 00:53:44,320
state lines with certain license restrictions.

604
00:53:44,320 --> 00:53:47,760
So I do have a video visits tab on there.

605
00:53:47,760 --> 00:53:51,400
I've met some great people already through that.

606
00:53:51,400 --> 00:53:54,680
And so that's a really nice option.

607
00:53:54,680 --> 00:53:59,280
And I think there's a nice combination of, you know, lots of free resources and some

608
00:53:59,280 --> 00:54:04,560
paid resources and the books and things like that on the website.

609
00:54:04,560 --> 00:54:06,120
Okay.

610
00:54:06,120 --> 00:54:15,360
The, I just imagine that the video chats, the video therapy, based off of everything

611
00:54:15,360 --> 00:54:20,640
we discussed here is very valuable and is a very efficacy.

612
00:54:20,640 --> 00:54:28,040
I think so because, again, you've got how nice is it to have someone from the outside

613
00:54:28,040 --> 00:54:32,800
that can say, you know what, I would really consider this or I see this pattern.

614
00:54:32,800 --> 00:54:36,560
Because you may not have that expert in your neighborhood.

615
00:54:36,560 --> 00:54:43,360
You know, we've had people from 11 other states travel to our clinic because it's not available

616
00:54:43,360 --> 00:54:44,360
locally.

617
00:54:44,360 --> 00:54:47,760
So I want to make that accessible.

618
00:54:47,760 --> 00:54:54,440
And again, some changes in the law and what we're able to do from COVID have allowed me

619
00:54:54,440 --> 00:54:55,520
to put that on there.

620
00:54:55,520 --> 00:55:02,320
So it's only been on there for like a month or two, but video visits are available and

621
00:55:02,320 --> 00:55:04,200
the information's on the website.

622
00:55:04,200 --> 00:55:05,200
Wow.

623
00:55:05,200 --> 00:55:06,200
Wonderful.

624
00:55:06,200 --> 00:55:07,200
Wow.

625
00:55:07,200 --> 00:55:10,640
Well, Dr. Reagan, thank you so much and good luck with everything and I'll be following

626
00:55:10,640 --> 00:55:11,640
along for sure.

627
00:55:11,640 --> 00:55:12,640
Thanks, Ryan.

628
00:55:12,640 --> 00:55:16,080
I appreciate the talk and the opportunity to come on.

629
00:55:16,080 --> 00:55:17,080
Yeah.

630
00:55:17,080 --> 00:55:20,080
Thank you.

631
00:55:20,080 --> 00:55:24,800
If you're listening to the podcast or listening to the episode, please feel free to leave

632
00:55:24,800 --> 00:55:27,600
a review or ratings.

633
00:55:27,600 --> 00:55:34,960
In podcasting, review and ratings are crucial and I very much appreciate your feedback.

634
00:55:34,960 --> 00:55:44,800
You can contact me on X at RPS, 47586 or click on the hop link so you can have links to all

635
00:55:44,800 --> 00:55:48,800
the show platforms and contact information.

636
00:55:48,800 --> 00:56:00,320
You can email me info.fromthespectrum at gmail.com and thank you for listening to From the Spectrum

637
00:56:00,320 --> 00:56:19,280
podcast.

