WEBVTT

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Welcome back to the Light Keepers podcast, an

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exclusive production of A Guiding Light, our

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nonprofit charity dedicated to the idea that

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knowledge is power and good information leads

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to a better life. I'm Clayton Vandiver, your

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Light Keeper, with my co -host, as always, Charlene,

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our licensed clinical social worker certified

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in the state of Florida. This show is dedicated

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to everyone who wants to get the most quality

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out of life that they can. Join us for the conversation

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this week. Part two of The Odd Couple, when the

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family members just can't quite agree on their

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plan of action. And so much more on this week's

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edition of the Light Keepers Podcast. Please

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leave your questions or comments below and join

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our conversation. Questions are answered during

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our next show online each Wednesday evening at

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7 p .m. Eastern. The Light Keepers podcast is

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an exclusive production of A Guiding Light Incorporated.

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And tonight it is a continuation. We're actually

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just continuing to tape this because it was so

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much. We wanted to squeeze a little bit more

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into that show last week that was getting too

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long. We decided to just continue right on with

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the conversation and talk about a few of the

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things that we didn't quite have time to get

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into. Now, what was our show about last week,

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The Odd Couple? So The Odd Couple is, I was telling

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a story about a couple that I met with recently

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to talk about their advanced directives. had

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opted for a do not resuscitate order. They no

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longer wanted to be resuscitated if their heart

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stopped. And this was a surprise to the spouse.

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This was a surprise to the spouse. Okay. Because

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it might have been a recent change of heart,

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a change of mind, inspired by recent medical

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events in their family. Change of heart literally.

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That can happen. So the one question that I didn't

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ask in the last show, and should have, good follow

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-up question, so what do you do then as a counselor?

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If they don't agree, they don't have a way to

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figure this out. I know at the time you mentioned

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that they had to step back and take a moment.

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And you even offered to call them back, I think,

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later. Yeah. And understand that... When a professional

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counselor speaks with patients, you know, sometimes

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it's shared little very generic details, no details

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at all, very generic information about that call

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is shared with me or I'm sure with other spouses,

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but no specific identifying information. That

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HIPAA protection, and I have to mention this

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right off the bat, that HIPAA protection is crucial.

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It's not only legal. it's critical to the counselor

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-patient relationship that none of their information,

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it's not going to be shared on this show and

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it's not going to be shared to me. But she did

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mention afterwards that she had to have them

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step back and sort of give them a moment to think

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about it, I guess. Correct. So sometimes as a

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therapist, the... The meeting can be difficult,

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not just for the people that are there for counseling,

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but for the therapist as well. Nobody enjoys

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confrontation, but in the therapeutic process,

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there is a time and a place where confrontation

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can be beneficial. Sometimes it's just bound

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to happen. That is very true. And yes, sometimes

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I use those experiences for the benefit of others

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by sharing. a little bit about that without ever

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sharing enough information that the person could

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be identified. Right. I mean, I don't know who

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these people are. I don't know their names. I

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don't even know what part of the country they're

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in or even if they're in this country. I don't

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know what scope and scale. And I'm not going

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to tell you. counseling carries i know it's it's

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broad uh it's a very broad uh scale and scope

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and geographic coverage when you think about

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what we do um we talk with people all the time

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in person over the phone over the computer and

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there's i mean it could be anybody anytime anywhere

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it could It could be a family member for all

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anybody knows. And I would never know that. Because

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God knows we've had these situations within our

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own families. Right. I would never know that.

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But the thing is, is sometimes the person that

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you depend on the most to carry out your wishes

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doesn't agree with them. Yeah. And when that

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happens, you have to have a very honest conversation

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because guess what? If they're not going to carry

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out your wishes, it doesn't matter if that's

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mom, dad, wife, husband, brother, sister, niece,

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nephew, uncle, cousin, doesn't matter. If they're

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not going to carry out your wishes, they need

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to not be your medical power of attorney. Well,

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they have to be on the same page with you. And

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at the moment that you discovered that page,

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those were two different pages that you were

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reading. And that's a great way to put it. If

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they're not on the same page, they need to not

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be on the paper. Oh, they need to not be reading

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that book. Yeah. Yeah. Not in the book. And these

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were on two different pages. And as soon as you

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realized that, you had to step away from the

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book and say, you know, let's give you guys a

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moment to think about this, which was shared

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with me later only as one of those generic, very

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general moments of my workday that, you know,

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this was really challenging and something unique

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that I haven't experienced before, I think is

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what you said. They came up to this question

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and they said, well, I'm sure this is what he

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wants too on his because this is what I want

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on mine. And he says, no, actually, I'd like

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that different. And it is something that I had

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encountered before, but never without the other

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person knowing. This was the first time that

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it got sprung on the spouse in the moment. Okay.

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Which I appreciated so much. It made for an interesting

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dynamic. It did. And the reason for sharing it

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later, you know, not just, wow, I really had

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an interesting work day. It opened a conversation

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for us to have about, well, how would you, when

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do you think that might change? When do you think

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you might have a change of heart? And would you

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tell me? Would you share with me ahead of time?

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It's important for us to be on the same page.

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Yeah, and I think I would have. I believe my

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answer at the time was, You mean that's even

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an option? Of course I want resuscitate. I want

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every minute I can possibly have. Which prompted

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the next question you asked me. Circumstances.

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What if? Oh yeah, it was what if, well what if

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your quality of life sucked at that point? Right.

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And quality of life is... Well how bad was my

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quality of life? I would have to have that...

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I'm a person who has to have the terms defined.

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And that's the key thing because quality of life

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is so subjective. Your quality of life, come

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to find out based on that conversation, your

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quality of life is very different from my quality

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of life. We have very different definitions of...

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what we find acceptable. Well, one person might

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be willing to let go while the other person,

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you know, because they don't want to be a burden

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on their family and their children. Another person

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might want to say, no, I'm kind of greedy with

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life. I want as much as I can get, even if I'm

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bedridden, even if somebody has to feed me. I

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don't know. And then halfway through that process,

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you can still, because we're all dynamic individuals,

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you can still have a change of heart and say,

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you know, this feeding me thing, it really is

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awful. And I can see the stress and the strain

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and the burden it's putting on my family. Is

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it too late to change my mind about that? And

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it's never too late. As long as you're capable

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of making that decision, then you can always

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change your wishes. But the thing is, you have

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to have that talk with the person that you have

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chosen as your medical decision maker. And you

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have to be confident that they're going to follow

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through with what you have decided. Because let

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me tell you something else that I have seen.

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When I was working in the hospital, I have seen

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multiple occasions. where we had advance directives

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in writing, and we had families that didn't agree

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with them. And let me tell you something. If

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you have a doctor who is more concerned about

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getting sued than they are about honoring your

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wishes, guess what's going to happen? Yep. Oh,

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my. There is a dynamic there that is very important

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to consider. And those wishes are law, the advance

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directives, even the simple five wishes. The

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five wishes document is legally binding in 46

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states. And I'm sure the other four states have

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documents of their own that carry the same legal

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binding. It is a legally binding document. However,

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just like any other document, and I'm going to

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pull out some wonderful examples here, just like

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any other legally binding document, it is open

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to interpretation. And you would think it would

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be ironclad because it's so specific. Folks,

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our Constitution's pretty specific too, but it's

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interpreted 20 million different ways every day.

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This is true, and while all of these are generally

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upheld, as we all kind of know what they mean,

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everyone has their own desire of what they'd

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like it to mean. And that's what it comes down

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to, the nuances. The nuances. The nuances. So

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if you have... Person A who says they do not

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want life support if they have no quality of

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life. And that person needs life support. And

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you have person B who is making their decisions.

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And person B says, well... I would be okay if

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I was bed -bound with a feeding tube and needed

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a ventilator 24 -7 because to me the most important

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thing is being alive. I don't care in what condition.

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Therefore, to me, that's a decent quality of

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life, so keep them alive. Not bothering to think

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that person A, their definition of quality of

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life might have been, if I can't take care of

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myself, I don't want to be here. Those are, wow,

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that's a heavy conversation and a hard thing

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to decide, even for yourself. Because again,

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as we were saying a minute ago, the dynamics

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of it are your mind can change, your thoughts

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can change as life events happen. And as medical

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circumstances are experienced, it can make you

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revisit these thoughts and change how you feel

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about them. And perhaps even just... opening

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that conversation with a loved one can alter

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your perspective by putting yourself in their

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shoes and realizing how your decision might affect

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them and their lives. And there's so much that

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goes into those decisions. There's not just the

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emotional aspect. There's also the dynamics of

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treatment that's involved. You know, if you have

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someone who has cancer, for example, and they

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don't want treatment, they don't want to do the

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chemo, they don't want to do the radiation, they

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don't want to do any of that, then the first

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thing they're going to hear from people closest

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to them, I would bet money because I've heard

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it said, why are you giving up? Why are you giving

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up? Yes. And cancer is not, that's a topic for

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another show we're going to have to do. Yeah,

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that's a whole show we can do about cancer. Because

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cancer is not a battle to be won. It's not a

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fight. And you hear that all the time. Oh, well,

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you know, they lost their battle with cancer.

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They lost their fight. You know, we need to donate

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so they can keep fighting. Cancer is not a fight.

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It is no different than any other diagnosis.

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That can affect the body, requires treatment.

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It's no different. But we have placed as a society

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that mindset that it is to be defeated. We have

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to defeat it. And unfortunately, the side effect

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of that mindset, there's a stigma associated

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with not treating it. Yeah. And it's a marketing.

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I was sort of smiling because, not because the

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topic isn't a serious one, but because as a communications

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professional, I know that the whole concept of

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the fight is a marketing tool. It's basically

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a tool to raise funds for awareness, to raise

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funds for defeating it. Because without that

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sort of verbiage, People don't get riled up and

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into the battle with you to help you fight something.

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Well, you know, it's just like finding a cure.

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That's a much milder form of saying, let's defeat

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it, let's beat it, let's fight this battle. It's

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the same as developing a cure for something.

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But those sort of semantics don't get people

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emotionally involved. Correct. So that's a marketing.

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Now, to be clear. To be clear, I'm not saying

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that people shouldn't donate because we need

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that research. Absolutely. I learned the other

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day, stepping off topic very briefly, but I learned

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the other day that there are some types of cancers

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now that five years ago were considered fatal

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that they're now controlling with a daily medication.

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You take a pill every day and congratulations,

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your breast cancer is under control. That's right.

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It's amazing. Isn't that a wonderful thing? And

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that's the battle that's being won is the battle

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to raise the funding, to do the research, and

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to be able to find those solutions. The research

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needs to happen. It's happening. We do need better

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treatments and better early detection. I'm not

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disputing that. I am 1 ,000 % behind that. Oh,

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absolutely. What I am disputing is the emotional

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baggage that is now. being associated with people

00:16:00.340 --> 00:16:04.639
who have to factor in that treatment into their

00:16:04.639 --> 00:16:08.980
definition of quality of life right right and

00:16:09.639 --> 00:16:12.480
I want to, we have to bring this conversation

00:16:12.480 --> 00:16:14.820
to a close because, again, we've run out of time.

00:16:15.120 --> 00:16:17.399
It's good information. It's a good conversation

00:16:17.399 --> 00:16:19.639
to have with your loved ones. It's a good conversation

00:16:19.639 --> 00:16:22.340
to have with us, with your comments down below.

00:16:22.379 --> 00:16:25.460
Please do weigh in with your thoughts and suggestions

00:16:25.460 --> 00:16:28.500
for new topics. And before we go, because it's

00:16:28.500 --> 00:16:31.080
such a doggy downer of a subject, I have to leave

00:16:31.080 --> 00:16:35.480
you with a dad joke I heard today. Oh, no. A

00:16:35.480 --> 00:16:42.610
1L llama. is a holy man in Tibet. A 2L llama

00:16:42.610 --> 00:16:47.070
is a beast of burden. So what, I ask you, is

00:16:47.070 --> 00:16:52.669
a 3L llama? I'm not even answering this. A 3L

00:16:52.669 --> 00:16:56.940
llama is a really big fire in Boston. Of course,

00:16:56.960 --> 00:16:59.519
this is all a highly personal choice and no conversations

00:16:59.519 --> 00:17:02.539
we have on the Light Keepers podcast should ever

00:17:02.539 --> 00:17:04.700
take the place of your own medical care team

00:17:04.700 --> 00:17:07.559
or other professional advisor who should always

00:17:07.559 --> 00:17:10.740
be consulted on the specific situational needs

00:17:10.740 --> 00:17:14.259
that you have. We all need good information to

00:17:14.259 --> 00:17:17.279
help make the most informed decisions and live

00:17:17.279 --> 00:17:20.660
life on our own terms. This conversation is to

00:17:20.660 --> 00:17:23.660
help you start thinking because most people are

00:17:23.660 --> 00:17:27.559
not prepared at all. But some people are well

00:17:27.559 --> 00:17:29.779
prepared indeed from joining us right here on

00:17:29.779 --> 00:17:32.759
the Light Keepers podcast every Wednesday at

00:17:32.759 --> 00:17:35.880
7 p .m. Eastern. The Light Keepers podcast is

00:17:35.880 --> 00:17:38.279
an exclusive production of Vanimation Studios

00:17:38.279 --> 00:17:41.559
and The Guiding Light and is found on all audio

00:17:41.559 --> 00:17:45.920
RSS podcast feeds and also on YouTube. Visit

00:17:45.920 --> 00:17:48.799
the website at aguidinglight .org or to make

00:17:48.799 --> 00:17:51.740
a tax -deductible contribution, please send your

00:17:51.740 --> 00:17:54.079
check to the address right here on the screen

00:17:54.079 --> 00:17:56.809
below me. We're so grateful for your support.

00:17:57.089 --> 00:17:59.210
Speaking of that, hit that like and subscribe

00:17:59.210 --> 00:18:03.569
button if you're on YouTube and support us. It's

00:18:03.569 --> 00:18:07.150
free, so you'll catch every single episode. I'm

00:18:07.150 --> 00:18:09.710
Clayton Vandiver, your Light Keeper. We'll see

00:18:09.710 --> 00:18:11.789
you and your llama next time.
