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All right. Okay, welcome to the AdaptX podcast where we have conversations with individuals

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building accessible businesses, advocating for inclusion or excelling in adaptive sports.

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Our intention is never to speak on behalf of those with disabilities, but to provide a platform to

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amplify their voices and share their ideas to a more accessible world. Today I'm joined by Justin

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Hagel, the Colgate Darden Endowed Professor and the Director of the Center for Movement, Health,

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and Disability in the Department of Health, Human Movement Studies and Special Education at Old

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Dominion University. Contextualized within the interdisciplinary field of adapted PE, his primary

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research interests center on exploring how disabled individuals experience physical activity

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participation, including within school-based physical education context. Since joining Old

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Dominion University in 2015, Dr. Hagel has amassed over 270 peer-reviewed research publications,

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as well as several edited or authored texts. He currently serves as the Director of Project

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CAPER and the Co-Director of the MAMC, two adaptive physical activity training collaboratives that are

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funded through the U.S. Department of Education, focusing on training doctoral students in the

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field. He is also currently the past President of the North American Federation of Adapted

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Physical Activity and the Editor-in-Chief for the peer-reviewed Publications Quest and Adapted

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Physical Activity Quarterly. Might have to redo that bio and not mispronounce afterwards, but

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you gave me a good challenge there. So, Justin, thanks for joining me.

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Yes, my pleasure. Thank you for the invitation. No worries on mispronouncing. I don't want to

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be sad this whole time we're talking. Why did you dedicate your career to

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exploring and understanding inclusion? That's a great question. I think I got into

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the field of adapted physical activity after having some hands-on experiences

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with various programs for people who are blind or visually impaired. That's kind of where I

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started off at least learning about the field. I was also a teacher at a school for autistic kids

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in Queens and New York for three years, also kind of helped build that passion. I didn't start

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talking about or thinking about inclusion much until a few years into my tenure here at ODU.

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There was this moment where I started thinking about the incongruence between what disabled

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people were telling me about their experiences within general PE classes and the concepts of

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inclusion, how I understood them. So, we were pushing kids into general PE in the name of

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inclusion, but they weren't having positive or meaningful experiences in those classes.

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To me, that just didn't make any sense. So, then I started spending a lot of time talking

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to other researchers and scholars around the world about inclusion and trying to learn as

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much as I could and then writing a bit about it afterwards.

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Yeah, absolutely. I feel like most people that get into the space had some sort of formative

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experience, whether it's a program like you mentioned or for me it was first volunteering

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with Special Olympics in high school. Is there anything that you initially believed, I'm sure

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there is, that you now think differently or that you no longer believe? Or kind of like,

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yeah, I guess how has your understanding evolved over the years? And I'm sure we'll dive into

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some of the finer details throughout this conversation.

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Yeah, I think if my beliefs hadn't changed over the years, I think that would be more concerning.

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As a faculty member, my job is to learn and it's to then share what I've learned with people.

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As I've learned various things through research, through talking with disabled people about their

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experiences, through understanding our field on a national and international level, and then

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our field on a national and international level, I've learned a lot and it's changed the way I think,

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changed the way I think about and talk about our field and changed the way I think about and talk

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about disabled people within movement spaces. Initially, I probably thought, you know, it's just

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great that people are active. So great, let's get people active without thinking about the why.

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And now most of my life and most of my time I dedicate toward thinking about

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that and asking other people the question why. Yeah, and that's hopefully what I hope I'll be

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able to ask you today. But I started with special education. I was initially pursuing a degree to

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be a teacher before I decided I wanted to open a gym. But I distinctly remember, and I've been a

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caregiver for a boy with Down syndrome and autism since I was 19. And I distinctly remember in those

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classes, professors, well one advocating exclusively for person first language, and I've noticed that

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you use identity first language and I know there's nuances with that conversation. But I also remember

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them advocating for the full integration of people with disabilities in general education

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classrooms with no exceptions. And I just had Jacob, the boy I watch in mind, moderate to severe

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disabilities if you classify him in that way. I'm like, there's no way he would be able to

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participate in a meaningful way. There's no way he would enjoy it and there's no way it wouldn't

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be disruptive for the other classmates. So like, why is that the standard? So I guess how do you

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explore the intersection of inclusion, exclusion, sub-separate classes for exclusively for people

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with disabilities? Like where does that exist in the education landscape? Yeah, I think that,

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I think you bring up a lot of good points, right? I think the language piece is great. I think

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one of the best examples of how my thinking has changed over time is the tension I now have

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between the person first language that I was trained to use during my undergraduate, masters,

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and doctoral work, and then the identity first language that I now believe in because of the way

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in which disabled people are disabled through society and how that's reflective of respecting

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that disabled people are disabled by society, not by the impairments that they have or exclusively

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by the impairments that they have. In terms of inclusion within schools and spaces, I think

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historically our field, adaptive physical activity generally, has had preferred treatment of

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integrated spaces and so years ago, just for clarity, years ago I did the best I could to help

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distinguish what integrated or general PE is versus inclusive PE. So for me, I try to use the term

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integrated to describe the physical space or place where disabled and non-disabled people are

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together and I use the term inclusive very differently as you know from some of the stuff

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that you had read to represent an intersubjective experience of acceptance, belonging, and value.

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And so with that, we have been prioritizing integrated spaces for a long time and I think

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unfortunately when we've done that, we've done it at the risk of further marginalizing disabled

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people by dumping them into spaces and people have been bringing this up for years. There are

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scholars in the 80s and 90s and early 2000s in adaptive PE who have brought this up and have

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written about this. So most of the stuff I write today that's about this is not really different.

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We're not really pushing things forward. We're actually kind of circling back to ideas that have

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existed already and just providing more of a platform for them I think and hearing disabled

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people say it themselves I think is a bit more powerful. Yeah, well that while that research

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might have been around for decades, I don't think I really was exposed to it outside of your material.

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So whether that's a testament to how the dissemination of content and material has evolved

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over the years with advances in internet and just how we consume information or not, those concepts

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might be around but I'm curious as to why they were not initially adopted. What do you think is

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the resistance to those ideas? It's a good question. I mean I think it's hard to really look at

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the etiology for why some ideas take and why some don't. For me at least, when I first started

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writing about integrated spaces not necessarily being inclusive, I had a handful of people who've

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been around for a long time, some recently retired who reached out and said I'm glad you're writing

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this but you know we did this 20-25 years ago and that actually got me thinking like that means

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we need to keep going and some of it is to respect those voices as you had said when we opened

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you know the podcast is about amplifying disabled people's voices. Part of what we need to do at

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least in our field is respect and listen to what disabled people are telling us and that doesn't

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mean a wholesale movement away from integrated spaces. What it means is listening to disabled

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people about what's best for them and allowing them perhaps choice into which spaces they're

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existing and participating within and respecting that like acceptance and belonging and value can

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happen across space and place. It doesn't depend on non-disabled people being there. That's a

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pretty ableist concept isn't it? Yeah yeah absolutely. I had a conversation last week with

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someone with cerebral palsy and she was like you wouldn't be able to pay me to come work out at

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your gym and she referenced back to gym class in elementary and middle school and how she was

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integrated into gym class but in that sense she had to do the warm-up laps with everyone which

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required everyone waiting for her to finish and staring at her as she finished and all these

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negative experiences to the point where now she won't be active into adulthood and it made me

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like as I was reading your papers and as I was thinking back to my experiences in middle school,

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high school, PE, it's tricky because like if you look at

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people don't always want to participate in PE whether they have a disability or not.

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So how do you value and in the same lens and they might not want to participate in mathematics or

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science but these are things that they should do. So how do you balance student feedback,

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student preferences with also expectations and standards? Yeah I think that there's a

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difference to me between engaging in the class and engaging in a class in a setting that is

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most educational or appropriate for you and so you know within special education including within

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adapted PE there's supposed to be a variety of spaces or places or placements offered for

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disabled kids to engage in any material whether it's math or physical education and so I think

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it's a matter of listening to feedback to say you don't need to participate in PE. I think it's

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listening to feedback to ensure that the environment in which PE is provided is the one that's most

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appropriate and meaningful for the child and I think the same is for math, same as for whatever

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topic it might be and so you know if we're shoving or dumping whatever word we want to use,

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disabled kids into integrated spaces without like providing a specific

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or with providing modifications and trying our best and we have very kind-hearted adapted PE

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people or PE people trying to do so but it doesn't provide meaningful experiences for the child.

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It still means we need to rethink what we're doing in the schools regardless of you know how great

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the teachers are you know how wonderful the peers are if the kids not participating or having a

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meaningful experience why are we doing them? Because we're not doing them because we're not

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doing them because we're not doing them because we're not doing them because we're not doing them

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and so it means why are we doing them? Yeah I think I've read that PE teachers on average only have

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one to two classes in pre-service education that's related to adapted PE or disability

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inclusion as a whole. Do you think that's one of the primary underlying factors or I mean even if

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they could be misled to assume that as long as they check the box of there's people with

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disabilities in my class I'm being inclusive like where do you think the disconnect is and how can

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it be addressed? I don't think it's one disconnect. I think there's many many many disconnects. I think

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one is what you said that there's this conceptualization that as long as disabled kids

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are in the room it's an inclusive class and for for administrators and perhaps for teachers but

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probably more so administrators and parents for them oh we're an inclusive school we're good to go

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kids exist in the same space regardless of what they're doing within that space.

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The piece about training is is interesting but it's also and it might have some impact but that's

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probably the most villainized piece among APE folk. It seems to me that over time APE people

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specifically faculty have said over and over that all they need is more training all they need is

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more training we only have one class in higher ed programs if they had more training everybody

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be better at this. You know that might be true but you know our field's been around for about

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40 years now and more training isn't on the horizon and so we have to rethink what we're doing.

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You know if you need more training to teach in an integrated placement but you don't need more

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training to provide a high quality experience for children in a different placement why are we so

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focused on the placement why aren't we focused on the high quality experience. How can you gauge

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acceptance belonging or the experience as a whole with someone like my Jacob who doesn't have any

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verbal language and might not be able to comprehend what you're asking him? Yeah that's that's a

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question that we've talked about often in like research circles about how do you talk to kids

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with like limited expressive or receptive language skills about acceptance belonging and value or

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you know disabilism or exclusion within any setting and so you know there's a variety of

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different types of data collection or assessment that people might use. We've used with a faculty

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member out in Illinois named Wes Wilson we use drawing based inquiry where we've asked kids to

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draw what PE looks like for them and then we've asked them questions about those drawings and

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we've used a variety of different techniques to elicit what that meaning is for them with a couple

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of master students in the past we've had photo based inquiry where we've asked kids to take

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photos of what is meaningful for them within a PE environment. There's a lot of different ways to

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talk with disabled people who don't necessarily speak the same way that typical data collection

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would collect like not every kid's going to want to be interviewed regardless of disability.

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So there's ways to do it to me the first step isn't figuring out how to talk to them it's opening our

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minds that we can communicate if we can communicate with a child with a disability or disabled child

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then we can ask them questions about acceptance belonging and value. Yeah absolutely that brings

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up a good point because as I was reading through this I'm reflecting on my own gym and my own

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space and my own business and just my understanding of inclusion and how it exists in those spaces and

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I'm thinking of specific clients of mine who like you said don't have the receptive or the expressive

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language and thinking about smiley face scales and how I could find a way to help them understand

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to like gather their experience within my gym as a whole but I also wonder they don't have other

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opportunities to be physically active so they don't have a frame of reference to compare

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inclusive fitness too so you had mentioned in one of the previous responses that like assuming that

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programs that only train people with disabilities as exclusive is an ableist comment but I wonder if

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too often people with disabilities don't have the opportunities to experience different environments

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to forge like a complete picture or at least to have something to compare to I'm not sure I'm

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articulating that well but if the only experience and the only opportunity that people with

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disabilities have is to participate alongside other people with disabilities then they don't

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know what the other environments are like yeah no I think that's a good point and you know if you

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think about how schools are generally structured there's not a lot of choice for any child with

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what kind of placements or spaces that they're experiencing sport physical activity in right

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there's generally just one thing offered and that setting or that concept I guess of funneling

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people into settings kind of goes into adult life as well where you know if you came through a school

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for the blind a lot of the connections you have likely are within like the blindness community

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and so therefore you like are more likely to engage in like blind sports in environments that

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are you know blindness specific and likely dominated by blind people whereas I suppose if you went

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through an integrated school and the only physical activity or p.e. experiences you might be offered

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are integrated you likely will have those experiences more readily available to you after

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graduation or at least hypothetically that's how it should be it's probably not actually that way

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but I guess going back to an earlier point if that's the case and you're within the integrated

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space and the experience is not pleasant or you don't feel valued within it you're more than likely

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learning that you don't belong in that space which likely then perpetuates inactivity after graduation

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so it's a really difficult double-edged sword where you'd probably want people to have both

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opportunities at some point during their forming experience but it's very uncommon I think

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especially in like low low income areas or rural areas where access to like adapted sport outside

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of school is limited yeah well that's why we've it's probably the biggest thing that I think I've

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shifted on over the years is my first model for my gym was heavily influenced by Special Olympics

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like Unified Sports Models so I had high school volunteers helping with our quote unquote adaptive

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programs that met a few times a week and we worked pretty hard to transition to a model where the

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presence of a disability is just another factor to contribute to your program design process and

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you can train at whatever time of day or with whoever you choose you would like to so our

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wheelchair users with CP like maybe they're most comfortable with other people with disabilities

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and there's a few sessions throughout the week where the gym is almost exclusively people with

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disabilities and they can choose that but they can also choose other times so I think when

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adaptive fitness is just viewed as a program or an initiative and it meets once or twice a week

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that's not enough so I guess that's that's I'm kind of advocating I guess when I speak to fitness

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professionals to find ways to not allow the disability to be a defining characteristic of

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when and how someone trains yeah I mean I like the idea of a comprehensive offering where

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people can look at the calendar of the gym and say at this time only disabled people are here

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or at this time only autistic people are here and the setting of the gym is designed for

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you know the strengths of autistic people or disabled people or whatever group it might be

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and if you know if the value of the gym is also to include those integrated programs to make sure

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that this is clear and obvious in the schedule you know so that when people show up at the gym

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they understand that like here's what's happening at these times you're welcome to join the gym

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but you're making that decision yourself like we're not funneling you into our values you're

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allowed to pursue your own values within your gym experience is it fine to not be inclusive to

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everyone like is there like I I'm probably not competent or uh skilled enough to support

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certain levels of spinal cord injury or like I don't have a skill set to be able to do that

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I don't have a skill set to help everyone and there's environments in my gym that might not be

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ideal for someone who doesn't prefer a lot of sensory stimulation like is it fine to exclude

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people on the grounds of this isn't going to be the best place for you or do you think it's fine

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I mean that's a personal decision no yeah yeah I think I I would trend towards being transparent

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with what the environment is what we can offer and give them the opportunity to decide if if

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that's something they want to try yeah I think it would be more dangerous to say we're fully

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inclusive depending on what you how you use the word inclusive but we're fully

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capable of supporting everybody's needs and then people show up and you can't support those needs

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then tell them up here are the people who we know we can support these groups of people

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and so that's what we're going to do yeah so for all the years my gym has been around I've referred

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to it as an inclusive strengthening conditioning facility um with just inclusion being the primary

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word I was familiar with um and it's necessary from a marketing standpoint right like gyms aren't

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typically designed with disability in mind so uh until it's the expectation and not the exception

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I do think you need to articulate that people with disabilities are welcomed in your space and

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inclusion is just kind of the term I know in one of your papers you talk about how it's hard to uh

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like hang your hat on a word that's so vague and can mean so many different things but do you think

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I should not call it an inclusive strengthening conditioning facility should I call it an integrated

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strengthening conditioning facility or I mean I think you should call it whatever you want this

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is uh I think if you think from a branding perspective and a marketing perspective calling

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something inclusive is typically attractive to people um but you know as you know from the

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writing that that I sent you um for me to say something is inclusive is is a promise that

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you're making that you might not be able to fulfill so if you're saying everybody who shows

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up at your gym is going to feel accepted a sense of belonging and a sense of value every day that

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they show up I think you're making a promise that's impossible to keep it doesn't matter disabled

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non-disabled um I don't think you can keep that for anybody and so if you're striving toward

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inclusion and striving toward those you know meaningful subjective or inter-subjective

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experiences I think that's really the only thing you can promise or anybody can promise PE teachers

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gym owners you know higher ed faculty you strive toward providing an environment that people can

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feel supported accepted have meaningful experiences but to say that it's happening

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before anybody even shows up is uh it's difficult yeah yeah and as I was kind of thinking through

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what we could do better with goal reviews and client conversations putting more of an emphasis

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on that experience and not just the quantifiable performance goals of are you improving your 5k

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time are you improving your lifts but looking at the community aspects and the sense of belonging

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and value are there scales and assessment protocols that ask these questions and do so effectively

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yeah I don't think so um I don't think they exist I've worked with uh well briefly worked

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with an AP teacher up in Fairfax County who I think is probably the best one in the country

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that I know his name is Brad Wiener and he's put together a website that has resources for PE

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teachers to talk to kids about feeling accepted a sense of belonging sense of value I think he does

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remarkable work I say we briefly worked together because it didn't take him very long to figure

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that stuff out whereas for me it's very difficult to figure out like the practical side of things

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but I don't think scales or questionnaires are going to do it I think it's like constant and

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consistent engagement with people and so if you know your people as a gym owner and you can talk

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to those people not only is that going to enhance the likelihood that they feel accepted and valued

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but you also can gather a sense of what is helping them feel accepted but like the sense of belonging

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and sense of value it's about meeting and talking with people not about you know just checking some

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boxes to say you're inclusive yeah is he at UVA no he's an he's an AP supervisor Fairfax at

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county school district okay all right so he's an actual like physically in schools and teaching

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AP not not a researcher he's actually working on my committee no because there's a there's a student

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from UVA completing his PhD dissertation and he reached out to me last week he's with Dr. Block

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and he asked if he could it could develop yeah Matt so his PhD thesis project I guess is going

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to be on developing assessment protocols for the course that I teach and so we kind of talked about

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what those outcomes would be and it's it's something that I've struggled with so just I guess for

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context we teach a course to personal trainers and strength conditioning coaches on how to create

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more accessible spaces and more effective programming for people with disabilities and

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you can improve confidence I guess but that doesn't mean that they're competent and there's

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probably some degree of selection bias if you're looking at like attitudinal beliefs towards

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disability that people that seek out my course probably already feel pretty strongly about the

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value of disability inclusion so we're trying to figure out I guess what we want to measure

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and the primary objective is to create more environments for people with disabilities to

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train that's a second order effect to help them get to the level of success that they want to

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to us training the trainers who then go and deliver those services so with Michelle actually she had

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mentioned like well why don't we interview some of the clients that coaches who've taken your course

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and like why don't you why don't you talk to the clients themselves instead of the coaches

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to see how they're benefiting from the services that those trainers provide and that would be

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good insight into I guess the sense of belonging and value and acceptance that they feel but I'm

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interested in how to quantify that I guess maybe it doesn't even need to be quantified but

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and I guess that's the that's really the question is why are we quantifying stuff you know why are

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you why quantify somebody's personal and lived experience where you know there are stories about

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the experience is going to be far more meaningful than just a number saying it was good you know

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right like the the color and the gray that you can develop from learning from the person and

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listening to what they're saying and not reducing what people think and feel to a number is you know

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going to be of much higher quality I think so yeah I would encourage you to talk to the clients and

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or engage with a research team and have that research team do the work because you probably

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can't and shouldn't do that work being invested in having obviously a conflict of interest with

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talking to clients and hoping to get positive results out of it but you know having a research

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team come in and speak with you know 20 of your clients to see what those experiences are like

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would probably provide to you really valuable information that you wouldn't get from you know

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a survey or you know a scale or something of that nature yeah one of the bigger projects I guess

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that I hope to tackle is is coming up with some sort of standards or systems to I guess define

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it's not the word but to characterize whether a gym is making the appropriate efforts to being

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more inclusive and accessible I framed that a different way than I might have framed it before

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speaking to you like the standards of how can a gym become inclusive so standards for inclusive

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fitness facilities so I guess that's where the the quantifiable stuff seems like it's relevant

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but maybe it's it's not well I think I think the way you word it is is it's fun to to pick apart

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right so is it about effort to be inclusive or or is it about people feeling included because if

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it's about effort I mean you know I could put a lot of effort into pushing a wall over but that

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wall is probably never going to move I'm not strong enough to move it but you know if you

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if you want to measure whether people feel included or what they can what can be done to have kids or

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have people feel included I actually again think listening to the people is the way to go and

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perhaps you know engaging in some sort of project where you're working with the clientele to develop

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that framework and they can essentially tell you exactly what you need to do in order to

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support feelings of inclusion within your settings you know of course gains and like gyms are about

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games right drinking protein shake you know bench pressing all that stuff and that's important stuff

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as well but to me if you want to make a gym environment inclusive then it's about talking

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to the clients and asking them what can be done or what is being done that makes you feel welcomed

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here and then you can develop your whole framework on what an inclusive fitness facility is and

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what an inclusive gym feels like based on the voices of and opinions and experiences of your clients

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yeah that's a good idea I think like so addressing obviously ADA standards as the base level and then

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going beyond that and having consistent conversations and a feedback loop and a

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performance improvement plan type of thing where you're addressing the barriers and the issues

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of creating a lack of a sense of belonging or acceptance yeah I think there's a there are

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qualitative methodologies that people talk about like either participatory research or

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co-production research depending on you know who you're talking to and like what specific

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particularities of the research that you'd want to do in order to construct like these recommendations

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or criteria or what have you but there's ways to do it it takes a lot of work but the outcome if

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well and you're working with those clients that you're talking about I mean you could have

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something that's very unique that doesn't exist elsewhere because honestly I don't think people

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take the time to listen to and develop ideas with clients I think instead it's easier to

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think about and develop those ideas without them and then apply it and hope that it works

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yeah yeah that's where we've been revising and rewriting courses alongside people with disabilities

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who are either sharing their lift experiences in gyms or they're sharing their expertise or

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subject matter expertise on various topics but what is your vision I guess for an ideal

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physical education class or environment oh I don't have a vision for an ideal class I don't

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think that's reasonable I think for me people entering PE and exiting feeling like they can

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be active as adults is the objective and I don't really care what it looks like I think that's what

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it has what we need so when we look at national shape standards or national shape objective

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shape is our our national organization shape America the objective is to help people develop

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into physically literate adults and I think oftentimes that's the goal of PE for non-disabled

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kids and I think oftentimes among adapted PE people the goal ends up being how do we get our

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kids into the gym instead of how do we have our kids reach that same or aim toward that same

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objective becoming physical literate adults and so there were definitely times that I thought

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differently about this but today my thinking is that I don't really care what PE looks like

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and I think we should think beyond what PE currently looks like but for me the goal has to

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be developing physically literate adults and so how do we do that the best possible way for every

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kid I don't think there's an answer to that question I think cognitive flexibility is really

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important on the teacher end and engagement with the kids is really important to help develop the

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best strategies for reaching that goal but should each kid have the same path toward that goal I

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don't I don't think that's a thing that I could I could say yeah and and you see in youth and

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adolescence that people with disabilities tend to be more active during the school day and then

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less active on the weekends and then significantly less active into adulthood because I guess the

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opportunities aren't there to continue to be physically active because of transportation

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barriers and all the other socioeconomic barriers that people with disabilities might feel like

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disabilities might face into adulthood so it is interesting I haven't really thought of it as

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physical education the experiences in physical education through school is what might incentivize

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or motivate someone once they graduate once they turn 22 plus and they age out of the school system

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if if they're on that track or if they go to university but they to be more active into

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adulthood I guess so PE is almost a segue into kind of what I do at a gym I mean it should be

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that should be the goal of PE I mean no different than learning math in school going back to math

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like you don't learn math in school so that when you graduate you don't math don't engage with

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mathematics right you never do math again right yeah just ends or you know english like you don't

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learn how to write so that you never ever write again like it's all taught so that you could be

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functioning members of society the point of PE is not so you play sports and run around as a child

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and so that you have the skills and the interest and the passion to be physically active into

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adulthood and throughout the lifespan and so what you do with adults should absolutely be the segue

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or it should be a segue from PE it should build from what's done in PE and perhaps PE needs to

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look at what you're doing and then reverse chain down with kids or help teach them to generalize

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what they're doing into settings like that that you work in so that that lifelong physical activity

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can can continue yeah I wonder how that would change the curriculum and what's taught like

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whether you have to learn all these different sport skills whether you have to have a unit on

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uh badminton or whether there's better ways I guess to encourage people to be physically active

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well like how many people have played badminton because yeah I guess that's why it was one of the

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first things that kind of came to mind like it might be helpful to learn how to kick a ball and

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throw a ball etc for a lot of different sports but um let's trash badminton I probably played four

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times in my adult life you know for I played zero so you got me yeah but you know I go to the gym

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every morning I mean maybe not effectively but I go every morning right and like I learned how to

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lift when I was in a high school weight training class and so that likely is the only high school

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PE experience that I functionally use on a daily basis now I still like to engage in sports and

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you know I was playing basketball up until I had ACL surgery last spring so like some of those like

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interests and passion in sports probably got developed in PE but functionally like the weight

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training skills that I learned transitioned really well to going to the gym after almost like it to

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me it almost seems like new partnering with high schools in the area and helping them learn how to

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teach you know fitness to disabled children in high school is like the goal like that would reach

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the goal of developing physically literate people afterwards yeah yeah absolutely I mean we've always

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kind of viewed one of our roles to be the bridge between like PE I think that's a misconception

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sorry PT that's a misconception that I I write about a little bit maybe misconceptions too strong

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because it implies that I have some unequivocal truth that's the opposite but like that PT

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shouldn't be reserved or activity for people with disabilities shouldn't be reserved for PT

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if the only opportunity that people with disabilities have to train is physical therapy

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then they're never going to meet the CDC's levels of daily recommended physical activity so just this

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idea that disabled is not synonymous with injury and there's obviously things that I can't do the

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physical therapist can do but that doesn't mean that I can't try to start supporting people with

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disabilities and kind of welcoming into our environment and then learning alongside them but

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language is a big piece of what you write about obviously the definition of inclusion

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versus integrated and other things special needs is something that pops up more recently in my

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world just people not being fond of special education and special needs as terms do you

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have any visceral reactions to that I mean not not anything that's profound I don't understand

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why special needs I don't know the history of special needs as a term maybe that's something

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I need to think about more and read about more before having like a really sound opinion on it

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I know it doesn't feel right I'm thinking about disabled people who I talk to on a regular basis

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and thinking about how they would react to me saying that they have special needs would be a

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pretty interesting conversation I think I probably would curse that or yell that yeah well from what

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I've heard it's like I don't want my needs to be viewed as special I want them to be viewed as

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basic human rights so and then you see special ed special education I still see a lot of parents

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of people with disabilities refer to their kids as special needs or sped students which is interesting

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but maybe that's just a generational thing and just what they've become accustomed to over the

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years and maybe it will take years to reverse some of that stuff but yeah it was just something that

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came to mind when you think of special education and special needs students well I think with

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language generally it takes a lot of time to change language it takes a lot of time to change

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ideas and so like for us to have an idea perhaps the idea is to discontinue the phrase special

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needs I don't think this like that like you know the inclusion stuff it's not overnight stuff like

402
00:39:18,480 --> 00:39:24,400
this is like teaching generations of people to think differently about the way they talk about

403
00:39:24,400 --> 00:39:30,320
disabled people and allowing that to seep down generations so that that becomes you know the new

404
00:39:30,320 --> 00:39:36,400
phraseology when thinking about or talking about or speaking with disabled people but with that

405
00:39:36,400 --> 00:39:42,400
being said by the time that is reproduced across generations it probably changes a lot more

406
00:39:42,400 --> 00:39:48,320
probably changes again that's the other thing it's like we need to be very reflective and

407
00:39:48,320 --> 00:39:55,840
responsive to changes in the way people talk and think about disability and yeah because if we're

408
00:39:55,840 --> 00:40:04,640
not then we will you know get left behind at some point yeah if you're trying to sell inclusion or

409
00:40:04,640 --> 00:40:11,680
these concepts of inclusion to a PE teacher how how would you convince general education

410
00:40:11,680 --> 00:40:17,360
physical education teacher that they need to learn about these ideas no that's not my job man

411
00:40:18,240 --> 00:40:27,120
I don't you know I think there was a time that I was thinking about like how do we get these ideas

412
00:40:27,120 --> 00:40:34,560
in front of people and I think that ideas are ideas and what I write about is ideas and scholarship

413
00:40:34,560 --> 00:40:42,720
I write our ideas and thoughts and perspectives and I don't think it's it's not who I am to push

414
00:40:42,720 --> 00:40:48,800
my own agenda I don't want my agenda to be misconscued as truth these are perspectives and

415
00:40:48,800 --> 00:40:55,520
ideas and there's people who have conflicting ideas and so I won't spend time you know selling

416
00:40:55,520 --> 00:41:00,560
stuff to people I won't go to conferences and try to sell this idea if somebody asks me to talk

417
00:41:00,560 --> 00:41:06,960
about it I'll talk about it with Brad again like he and I worked on some resources for teachers a

418
00:41:06,960 --> 00:41:12,240
few years ago there was a person named Matt up in Fairfax as well not the Matt you're talking

419
00:41:12,240 --> 00:41:18,000
about a different Matt there's loads of Matt's in Virginia who made a video for us just explaining

420
00:41:18,000 --> 00:41:24,720
what we meant by inclusion but I think you know maybe I'm misunderstanding or over emphasizing

421
00:41:24,720 --> 00:41:30,560
the selling piece but I think we as a field oftentimes are trying to sell ideology and trying

422
00:41:30,560 --> 00:41:35,840
to sell our own perspective as truth and that's just not who I am what I believe is what I believe

423
00:41:35,840 --> 00:41:41,600
it's not a universal truth it might not be a universal truth but it's the concept that people

424
00:41:41,600 --> 00:41:46,400
should be exposed to if you've if you never heard about it I had never heard about it when I was

425
00:41:46,400 --> 00:41:56,640
starting my gym if you taught me it when I was 22 I would have expedited the developments that I've

426
00:41:56,640 --> 00:42:02,560
made over the years so while you say it might not be your job to sell it I'm not sure whose job it

427
00:42:02,560 --> 00:42:09,280
would be it's nobody's job so you're on the forefront of this idea that could positively

428
00:42:09,280 --> 00:42:13,680
benefit a lot of people with disabilities so why would you not try to get more people to adopt it

429
00:42:13,680 --> 00:42:18,320
you know I also don't know if I'm on the forefront so like the first time I saw inclusion as

430
00:42:18,320 --> 00:42:26,000
subjective experiences in papers was I believe it was 2010 Nancy Spencer from University of Alberta

431
00:42:26,000 --> 00:42:32,800
wrote about it and I was like this is I love this like this is incredibly like smart and thoughtful

432
00:42:32,800 --> 00:42:39,280
and this this disabled person centric focus you know I also learned about like the differences

433
00:42:39,280 --> 00:42:44,720
between integrated and inclusive PE from different people I saw a presentation in Brazil years ago

434
00:42:44,720 --> 00:42:50,400
about this and so what I've done is just moved things forward I've kicked the can down the road

435
00:42:50,400 --> 00:42:54,960
per se as far as like developing the ideas and probably writing a little more about it

436
00:42:56,160 --> 00:43:00,720
but this is it's also still relatively new I mean the first paper I wrote about inclusion I think

437
00:43:00,720 --> 00:43:08,560
was in 2019 so that's only five years ago and then we've written a bunch of that since whose job is

438
00:43:08,560 --> 00:43:14,800
it to sell it I don't I don't know if it's anybody's job to sell it again you know we we if you start

439
00:43:14,800 --> 00:43:23,120
selling ideas or pushing ideas too far the problem becomes that you're trying to recolonize knowledge

440
00:43:23,120 --> 00:43:28,400
with your own knowledge and your own ideas I very much believe that we should share our ideas we

441
00:43:28,400 --> 00:43:33,760
should publish ideas and thoughts but it's up to the consumers to decide whether or not to implement

442
00:43:33,760 --> 00:43:42,480
ideas based on these thoughts it's not researchers job to push things to sell ideas some people do

443
00:43:42,480 --> 00:43:48,240
it some people spend a lot of time trying to sell that's who I am yeah I can appreciate that and I

444
00:43:48,240 --> 00:43:52,480
definitely respect that but though the woman that you referenced that started writing about in 2010

445
00:43:52,480 --> 00:43:57,360
like if she adopted that same perspective of it's not my responsibility to change this then these

446
00:43:57,360 --> 00:44:05,760
ideas just live in the silo of people that are already doing these things but it doesn't spread

447
00:44:05,760 --> 00:44:11,360
to people that aren't doing them so yeah but who's to say that these the ideas that those people

448
00:44:11,360 --> 00:44:17,280
should adopt I haven't come across a better one than how you articulate inclusion oh well thanks

449
00:44:17,280 --> 00:44:24,640
but I mean again Nancy's the one that started that idea and I think I'm sure Nancy Nancy and a lot of

450
00:44:24,640 --> 00:44:33,040
people have influenced you so I also appreciate that recognition but like I think it's it's an

451
00:44:33,040 --> 00:44:38,080
idea that's worth exploring and worth implementing if there's always a disconnect between those who

452
00:44:38,080 --> 00:44:44,400
do research and those who impact the people on the ground then the idea is never no no and I agree

453
00:44:44,400 --> 00:44:50,640
with you there I think that having having mechanisms to talk with people who are in the field who are

454
00:44:50,640 --> 00:44:55,120
practicing in the field is it's critical and that's why I started working with Brad these are

455
00:44:55,120 --> 00:44:59,520
conversations Brad and I had where I believe he said these are cool ideas but it doesn't mean

456
00:44:59,520 --> 00:45:04,720
anything for us and I thought okay well let's work together to figure out what it means for you and

457
00:45:04,720 --> 00:45:10,560
so those resources have been developed and you know again have worked with people when those

458
00:45:11,360 --> 00:45:16,320
um when those requests have been made so there's never been a time that teachers or school districts

459
00:45:16,320 --> 00:45:21,280
or the state of Virginia for example has acceptance belonging and value in their state learning

460
00:45:21,280 --> 00:45:27,440
objectives for PE now there's never been a time where I've said no to sharing the idea but selling

461
00:45:27,440 --> 00:45:34,800
the idea is different because selling means I'm pursuing profit or I'm pursuing capital yeah I

462
00:45:34,800 --> 00:45:38,960
guess I did I when I said selling I guess I I'm more so from the lens of how are you going to

463
00:45:38,960 --> 00:45:44,240
convince people to adopt these things and implement them for maybe no benefit of your own outside of

464
00:45:44,240 --> 00:45:49,360
you would want to see the fruits of your labor benefit people with disabilities yeah I think

465
00:45:49,360 --> 00:45:56,080
with that it's been a long process of trying to develop resources but it's also not my skill set

466
00:45:56,080 --> 00:46:01,680
um one of you brought up Marty earlier Marty Block from UVA and one of my favorite conversations

467
00:46:01,680 --> 00:46:08,800
with Marty is about like he's he's so much better than I am at figuring out how to share ideas in

468
00:46:08,800 --> 00:46:15,680
consumable ways that teachers will adopt them whereas I am like you know flying around like

469
00:46:15,680 --> 00:46:21,680
a space cadet in an old Looney Tune movie right or a Looney Tune show and so he actually wrote a paper

470
00:46:21,680 --> 00:46:28,240
in palestro which is the journal he edits which is for practitioners explaining inclusion as a

471
00:46:28,240 --> 00:46:34,560
subjective experience and acceptance belonging value and I loved it because like to me being

472
00:46:34,560 --> 00:46:41,280
able to translate that information to that particular market is critical but it's not

473
00:46:41,280 --> 00:46:46,400
something that I work really well at I would need to work with practitioners in order to understand

474
00:46:46,400 --> 00:46:52,080
their context to translate what we're thinking conceptually to what they want to do practically

475
00:46:52,880 --> 00:46:59,840
yeah well we quoted your definition of inclusion in a NIH grant application for the value of our

476
00:46:59,840 --> 00:47:05,040
program so hopefully we can hopefully we can implement it into the into the fitness space in

477
00:47:05,040 --> 00:47:11,680
some ways how do you think the fitness industry at large or as a whole could be more inclusive

478
00:47:11,680 --> 00:47:17,200
and accessible for people with disabilities um I think the fitness industry should be talking to

479
00:47:18,240 --> 00:47:24,880
disabled people more um I think our industry the adaptive physical activity piece is like has

480
00:47:24,880 --> 00:47:29,840
shifted considerably in that direction there's a lot of people now that this is like the core of

481
00:47:29,840 --> 00:47:34,880
their research and the core of their scholarship is centered on disabled people and I think there

482
00:47:34,880 --> 00:47:39,680
are a lot of newer people who are doing a lot better job than I do and that I can do with it

483
00:47:39,680 --> 00:47:46,320
and so we're seeing a lot of really cool pushes toward further um centering disabled people in

484
00:47:46,320 --> 00:47:53,520
decisions and adaptive physical activity in the fitness space I've seen a lot less um and that's

485
00:47:53,520 --> 00:47:58,080
not to say it's not happening because you know I don't see everything I don't know everything

486
00:47:58,080 --> 00:48:05,680
that's going on of course I'm a human but I think that um to learn about fitness facilities that are

487
00:48:05,680 --> 00:48:11,200
co-designed with disabled people would be really interesting and to see scholarship on it because

488
00:48:11,200 --> 00:48:17,840
I think while doing it is important and doing it is going to have an impact locally I think

489
00:48:17,840 --> 00:48:24,400
scholarship on it the research on it but also like the concepts and theories on it and on paper

490
00:48:24,400 --> 00:48:29,760
allows it to then spread faster and a wide to a wider space than just doing it locally

491
00:48:30,960 --> 00:48:36,960
yeah absolutely are there any projects at ODU or that you're working on that you're particularly

492
00:48:36,960 --> 00:48:43,760
excited about in the in the coming years now we are always doing something um right now I think

493
00:48:43,760 --> 00:48:48,160
the most exciting stuff is the stuff our PhD students are working on they each have very

494
00:48:48,160 --> 00:48:55,600
different perspectives there's um four full-time students two part-time students each doing really

495
00:48:55,600 --> 00:48:59,680
interesting stuff I'm not going to go too deep into it because I don't know if they want me

496
00:48:59,680 --> 00:49:06,320
sharing their stuff yeah but that's been really cool we're we have a grant application out for

497
00:49:06,320 --> 00:49:12,240
something I'm quite excited about which is developing a PE curriculum with blind and visually

498
00:49:12,240 --> 00:49:18,640
impaired kids to be disseminated to PE teachers so allowing them to help construct what those

499
00:49:18,640 --> 00:49:24,000
experiences should look like we're hoping to hear back soon of whether or not we got the funds to

500
00:49:24,000 --> 00:49:30,560
execute that project and I think that's the beginning that to us is going to be a model

501
00:49:30,560 --> 00:49:38,320
for how we want to help develop and suggest PE curriculum and adaptations and all that good stuff

502
00:49:38,320 --> 00:49:44,640
for the future instead of non-disabled faculty making statements about what should happen in PE

503
00:49:44,640 --> 00:49:50,720
we're trying to bring together groups of kids and kids with various disabilities to make those

504
00:49:50,720 --> 00:49:56,800
recommendations maybe quickly kind of tangent off of that do you think having people without

505
00:49:56,800 --> 00:50:04,400
disabilities experience adaptive sports like beat baseball by wearing a blindfold or by having that

506
00:50:04,400 --> 00:50:11,680
sense removed is acceptable I've seen I've seen contradictory thoughts on disability simulations

507
00:50:12,240 --> 00:50:15,440
yeah that's a good question so we've done quite a bit of work on

508
00:50:17,760 --> 00:50:24,640
research on disability simulations I work with a guy named Anthony Maher in the UK on a lot of it

509
00:50:24,640 --> 00:50:31,600
he's done more work than I have in that area I think at this stage I would so I've spoken to

510
00:50:31,600 --> 00:50:37,440
we've spoken to blind or visually impaired people about this and because of the research we've done

511
00:50:37,440 --> 00:50:44,240
I would hesitate to think that that's a high quality experience I don't know I think there's

512
00:50:44,240 --> 00:50:49,760
this perception that you learn what it's like to be blind by being blindfolded which I think is a

513
00:50:49,760 --> 00:50:55,040
really difficult thing to state because you can't really learn how to actually embody blindness just

514
00:50:55,040 --> 00:51:02,480
from 30 minutes in a blindfold right yeah so the message is really difficult for the participants

515
00:51:02,480 --> 00:51:11,360
to get um on with that said I mean people still do this constantly so you know yeah I guess I

516
00:51:12,000 --> 00:51:17,600
the idea that disability is kind of a transient state I could see being seen as offensive like

517
00:51:17,600 --> 00:51:22,880
it could be offensive to someone um who's in a wheelchair when someone comes up to him says oh

518
00:51:22,880 --> 00:51:27,760
yeah I feel yeah I broke my leg back in middle school and they're like yeah you don't feel me

519
00:51:27,760 --> 00:51:32,800
um but like I just I wonder if adaptive sports being integrated into general PE

520
00:51:33,520 --> 00:51:38,080
curriculums can be beneficial I know from a motor learning standpoint and like movement variability

521
00:51:38,080 --> 00:51:43,440
it can be uh even if it's like only being able to use one hand when you play basketball and

522
00:51:43,440 --> 00:51:47,760
and that could be beneficial for the students with hemiplegia that that's their everyday life

523
00:51:47,760 --> 00:51:52,560
and then they're participating equally with their peers but like at our 5k this past June we had a

524
00:51:52,560 --> 00:51:58,400
beat baseball clinic where a beat baseball team came and they they had some of my athletes without

525
00:51:58,400 --> 00:52:03,600
disabilities try to sprint to a base a beeping base with a blindfold on and try to hit a ball and

526
00:52:04,640 --> 00:52:07,600
it was an interesting experience and I enjoyed watching my kids kind of

527
00:52:08,320 --> 00:52:14,960
gain a different appreciation for adaptive sports as different not less but I wonder if it is a

528
00:52:14,960 --> 00:52:21,280
blessed or offensive in any ways I think it can be and I think it's about messaging right so if it's

529
00:52:21,280 --> 00:52:24,640
you're going to learn what it's like to be blind or you're going to learn what it's like to be a

530
00:52:24,640 --> 00:52:32,000
wheelchair user that's just that's simply not true but if it's we want to introduce sports to you

531
00:52:32,000 --> 00:52:36,720
and you're introducing a series of sports and some of those sports happen to be disability sports

532
00:52:37,440 --> 00:52:41,520
but you're not saying this is what it's like to be blind you're saying we're going to play

533
00:52:41,520 --> 00:52:45,840
beat baseball here are the rules here's the functions behind it here's why we're doing it

534
00:52:45,840 --> 00:52:51,600
I think that makes a lot more sense yeah I like that yeah but but if yeah if you start saying this

535
00:52:51,600 --> 00:52:56,240
is what it's like to be blind when you put a blindfold on someone for 15 minutes I mean that's

536
00:52:56,240 --> 00:53:01,760
probably I would assume that's going to offend some people yeah yeah I think that's a fair

537
00:53:01,760 --> 00:53:08,480
assumption uh well Justin it was uh it was an honor to talk to you uh these are all concepts that

538
00:53:08,480 --> 00:53:13,120
are really important to me hopefully I was able to articulate them in a way that was somewhat

539
00:53:13,120 --> 00:53:18,960
coherent uh throughout the conversation but I think gyms could benefit from learning from the

540
00:53:18,960 --> 00:53:24,480
ape space um and specifically the ideas that you that you write about whether you want to

541
00:53:25,120 --> 00:53:29,360
sell them to people or not I think they're worth selling so uh thanks for the time this morning

542
00:53:29,360 --> 00:53:33,200
yeah no my pleasure and yeah I'm not going to sell them but you're welcome you're welcome

543
00:53:33,920 --> 00:53:40,320
and you know I think for those people in the the gym space the fitness space there's loads of

544
00:53:40,320 --> 00:53:45,840
research and loads of work to be done in those areas and and centering it on inclusion or

545
00:53:45,840 --> 00:53:51,360
exclusion as these interests objective or interest objective experiences would be quite interesting

546
00:53:51,360 --> 00:53:56,080
it's just something that you know has to happen we are grateful for the support of our first show

547
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sponsor resolution fitness offers leading brand health club equipment and accessories for residential

548
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549
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550
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fitness facility or home gym to be more accessible visit www.resolutionfitness.ca or the link in the

551
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show notes below you

