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All right, welcome to the AdaptX podcast where we have individuals who are building accessible

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businesses, advocating for inclusion or excelling in adaptive sports. Our intention is never to

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speak on behalf of those with disabilities, but provide a platform to share their voice and

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amplify their ideas to a more accessible world. Today we are joined by Sean and Seamus Evans,

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a father and son duo from Galway, a small town in upstate New York. In addition to being a

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physical therapist, Sean is senior vice president of programs with Ainsley's Angels of America.

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Seamus was born with cerebral palsy, which has resulted in him using a power wheelchair

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for mobility. Although Seamus may have some physical limitations, his ability to dream big

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is limitless. He and his father have run thousands of miles together and have participated in hundreds

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of races. The team has a passion for promoting inclusion and took on two transcontinental runs

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to spread awareness about inclusivity. This past Monday, they participated in their first

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Boston Marathon together, which I am excited to talk about more. So Sean and Seamus, thank you

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for joining me. Thanks for having us. All right, yeah, maybe we'll start with Boston because

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I think that will be like the first topic that we'll probably promote since it's fresh in

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everyone's minds. So maybe take us through the process of when did you first want to run Boston?

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Why did you want to run Boston? And how did you qualify to run Boston? Yeah, so yeah, you say

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it's fresh. Fresh in our minds, it's still fresh in my legs too. I ran Boston for the first time

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in 2003 as an individual. Now that was before Seamus was even born. Seamus was born in 2006.

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Kind of like every runner, you know, not every, but a lot of runners have that as a goal to want

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to run Boston. And I was the same way when I was running as an individual. I ran Boston six

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consecutive times through 2008. And then I started chasing faster times. I was looking for faster

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courses to run on. Ended up running a 226 marathon in Vermont City Marathon in 2009.

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So that was the fastest I ever got. Fast forward a couple years, Seamus had been training with me

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since he was basically old enough to sit in his jogging stroller. I guess that would have been

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2007. He would have been a year old. But in 2013 Seamus decided that he wanted to start running

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races together, which I thought was a great idea. We got some new wheels that allowed for his growing

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body to be more comfortable. We got those from Ainsley's Angels. And once Seamus got those new

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wheels, we did start racing together. And I would say in the back of my mind at that time,

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knowing that Dick and Rick had done it 37 times or whatever it was, that hopefully Seamus and I

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would be able to get there someday. I don't know that Seamus knew about it at that time,

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but we ran our first marathon together. We ran an ultra marathon together in 2013.

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And I guess that was the first time that we really covered a lot of distance. Do you remember

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specifically when Boston entered your mind? Oh, you know what it probably was? At the Louisiana

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Marathon in 2015, we had the opportunity to meet Dave McGilvery, who was the keynote speaker at the

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Louisiana Marathon. And he had found out that we were getting ready and preparing for our first

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transcontinental run from Seattle to New York City. And of course, Dave had done the same thing

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in 1978. He ran from Medford, Oregon to Medford, Massachusetts. So there was a special place in his

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heart for what we were getting ready to attempt. And he brought us each some Boston Marathon

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apparel and presented us with that on stage as he delivered his keynote speech. And I would say

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that's probably when Seamus was really introduced to Boston. Yeah, so that was eight or nine years

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ago and Seamus at the time you weren't old enough to run Boston. So there is the 18 year old

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minimum for riders as well. So you recently just turned 18, right? Yes. And that allowed you guys

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the opportunity to do it. So you ran a qualifying race back in August or September? Yeah, you want

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to talk about the qualifiers. When was Sacketts? Yeah, that was Labor Day weekend in Sacketts

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Harbor. And this was the first time that they were running the race. So it was not, there weren't too

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many people there, which was good because going around people in big marathons is a bit of a

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challenge and can take up time. So when we're trying to qualify, having that minimal people

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there was a little bit helpful. And then so we started out really good. We had a great pace.

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And then around mile nine, our chair broke. The handlebar snapped clean off and

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my dad had to push the chair from way lower than where he was used to. So he ended up

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running the rest of the 17 miles from down low. And we still qualified with a time of 259.

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That's awesome. Impressive feat for both of you, I'm sure.

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Because it was the first time they had run a marathon, I just reached out to the race director

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and explained who we were and what we were attempting to do. And they welcomed us with a

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open arms. And we were so grateful for that because originally we had planned to run the

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Buffalo marathon. And I did that. I had registered for that because that was where I first qualified

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as an individual. I thought it would be neat to go back and qualify there as a team. After I

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reached out to the Buffalo race director, he had actually invited Seamus and I to be the keynote

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speakers for their dinner. And we were going to sign books at their expo. And then Seamus' Odyssey

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of the Mind team qualified for the world finals last year. So we had to postpone our plans and

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change our plans. So I reached out to Sackett's Harbor kind of last minute, just maybe six weeks

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before the race. And again, they welcomed us with open arms. So it all worked out really, really

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well. There's a qualifying window for Boston that ends like mid September. And I only know because

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the other night I was looking at what would qualify for the World Finals. And I was like,

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I'm looking at what would qualify Jacob and I possibly for like 2025. And I think we have to

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run before September 15th or something. So Sackett's, you said Sackett's is Labor Day

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weekend. Isn't Buffalo a little bit later in the fall? Buffalo is actually Memorial Day weekend.

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Oh, okay. All right. When I was marathoning as an individual, I used to double. I used to do Boston

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and then five or six weeks later I would do Buffalo. But yeah, I mean, I'd recommend Sackett's

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Harbor. Definitely. It's an out and back course, a little bit uphill on the way out and downhill on

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the way back. And yeah, I mean, it worked out really, really well for us. And the great thing

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about Sackett's Harbor, like you mentioned, there's that window for qualifying for Boston.

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Well, Sackett's Harbor falls in the window that qualifies you for two years. So if you're between

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the first and 15th of September, I think you get a two year qualifier or you know, whatever it is,

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18 months. So we are actually qualified at Sackett's Harbor for 2025 as well. Though perfect.

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Yeah, that works out perfectly. So maybe we'll transition to Boston this year. Seamus, what was

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your favorite part of the weekend? I guess I know you guys kind of came in late because you had a

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competition. So you didn't really get there till Sunday. But maybe what was your favorite part of

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the race? Definitely the crowd. Most marathons that I run, it feels like the time that it takes.

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But at Boston, with the crowd, all the energy and the positivity, it did not feel like we were out

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there for almost three hours. It went by very fast. Yeah, the crowds are crazy. Yeah, crowds

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are insane. I actually found that. Oh, go ahead. I was just gonna say one of the things that he said

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to me was, Dad, it feels like we're at the finish line of every other marathon the whole way. Yeah,

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exactly. The whole way. Yeah, it was crazy. We couldn't hear any of the music on our chair.

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Usually we have a speaker playing music, couldn't hear any of it. I almost felt like I was getting

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kind of propelled to running. I shouldn't say I almost felt I definitely got propelled to running

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way faster than I wanted to because of the crowds. So it almost like was a not it certainly wasn't a

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negative, but it got me way thrown off for sure. No doubt. I mean, that is a challenge in Boston,

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always. The transcontinental runs that you guys have done, I know they've had a mission behind them.

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It's not just running an insane amount of miles. So maybe could you take us through the two different

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segments that you did and what you did along the way? Yeah, so I had mentioned earlier that, you

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know, Seamus and I ran that ultra marathon in 2013. Well, after that ultra marathon Seamus

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came up with the idea that he'd like to run that far every single day for his summer vacation. And

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in that ultra marathon, it was a six hour time event and we had covered 45 miles. So he was like

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in first grade at the time. So my wife and I helped him with the math and said, oh, if we ran that

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far every single day for summer vacation, we could run 3000 miles. And he thought, you know, that

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sounded neat. And he said, how far could we make it if we ran 3000 miles? So we pulled out a map

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of the United States and said we could run from this ocean to this ocean and pointed, you know,

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Pacific to Atlantic. And it was like a little light bulb went off in Seamus's head. And he said,

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we got to do that. And my wife and I honestly kind of brushed it off at the time he was seven years

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old. And, you know, it was fun. It was neat to dream about and think about, but we never actually

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thought that it would come to fruition. And we would come up with, you know, reasons or excuses.

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You know, like it's going to take a lot of time. I don't know if I can train or prepare my body

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for that. I don't even know if it's physically possible or financially possible and on and on.

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But about three months later, Seamus was persisting. And when I was tucking him in,

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after reading him his bedtime story, he said, Dad, when we run across America, can we donate chairs

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to kids like me? Can we gift them chairs so that they can feel what it's like to go fast? And,

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you know, I walked out of his room and said to my wife, we got to try. We got to try to make this

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happen. So for the next 18 months, I trained in earnest and we planned and tried to figure out

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all the logistics. And in the summer of 2015, we started, like I said, Puget Sound in Seattle,

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Washington and ran 56 miles a day for 60 consecutive days. And we donated 35 Freedom

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Running chairs to kids and families along the way. All Seamus' idea. Nothing that was ever on my

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bucket list. Seamus, great idea. Very, very kind of, very kind to your dad to have him running that

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much. What were the logistics of donating all those chairs? Were chapters kind of along the route

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meeting you guys or were you transporting? At that point, we weren't as, Ainsley's Angels wasn't as

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wide reaching as it is now. In fact, a lot of our Ainsley's Angels ambassadorships, or at least a

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handful were born out of that run across America. So what we did to solicit like applications for

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families was we reached out to iRun4, which is like a Facebook community of people that run for

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individuals with disabilities or special needs. We took applications from them and we ended up with

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35 applications. The only caveat of the application was that they had to be able to get near or to the

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route that we were running. We got 35 applications and we were able to raise enough money to donate

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all 35 of those chairs. Seamus, what was the most challenging part of that summer?

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So on day six, there was a lot of negative stuff that happened. We got a late start and we had to

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present a chair live on TV. So having a late start from that, not a bad reason to have a late start,

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but we made it to our destination a little bit later. And then there was a gas leak in the RV,

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which caused my mom to have a migraine. It was like a propane leak inside. Yeah. So she opened

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the vents and then we were driving to like a party that they were throwing for us a barbecue.

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And we forgot to close the vents. So a tree took the panel clean off and my brother was going to

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make me a sandwich and he cut his finger while he was doing that. So he was throwing up and passing

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out. And then so we got to our party and we'd said to decompress. And I said to my family,

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why do you guys look so sad? We had a great day today. We got to donate a chair on TV.

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We got to do an interview. And after the barbecue, we were going to a water park. So a lot of positive

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things. And so I think the hardest part was staying positive through the whole time. But

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when we were together as a family, that was pretty easy.

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Yeah. Sean, does that positivity from Seamus translate to races as well? And how does it help

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your performance in races, especially when you meet adversary like Sackets Harbor or Boston when

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it's a challenging course in the later half? Yeah. I mean Seamus is and has always been the

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eternal optimist. And I personally am not always that way. I'm always running through scenarios

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of what could go wrong and what do I need to do to plan to try and avert that. But Seamus always

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kind of has the attitude that things are going to work out and he's always right. That positivity

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definitely helps to propel us through everything really. Not just racing, but every day. We run

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into obstacles. We run into challenges. But I think about some of the things that we do

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about some of the obstacles and challenges that Seamus faces on a daily basis and that we're able

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to work together as a team to overcome that. And maybe that's kind of the reason that he has the

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attitude he does of positivity. So no doubt. I mean, when the chair broke in Sackets Harbor,

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it wasn't even a question about stopping. It was, you know, how are we going to make this work so

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that we can continue to try and meet our qualifying time? And we did have to make some adjustments.

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You know, I couldn't turn the chair because I had no leverage like we normally, you know,

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pop a wheelie and turn. And we had hairpin turns because it was an out and back. So I ran around

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to the front of the chair, lifted up the front tire and dragged them behind me when I needed to.

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And there were several turns that we had to do that on. And again, we still met the qualifying

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standard. Seamus kept his smile the entire time. And I'm sure that that helped me to stay positive.

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Yeah, it was a great article in Runners World about it. We'll have to link it in the show notes

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of the episode so people can read about the Sackets Harbor experience. But Seamus, have you

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guys had any races where the conditions like weather-wise were less than ideal? And how does

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it feel? That was my biggest fear with Boston was it was going to be cold and raining just for Jacob's

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sake, like getting pelted with rain for three or four hours. What is the worst race experience

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that you've had weather-wise? Three years ago? I don't know which one do you think? Marine Corps.

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Oh yeah. Yeah. So about three years ago, we were running Marine Corps and we said, you know,

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this was probably going to be our last Marine Corps as I was entering high school. And the weather

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for that was about probably 40 degrees and cold, cold downpours of rain. It's not fun. The chair

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was filling with water. So anytime we would tip to turn, all the water would rush to like the back

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where I was sitting. So that was not very comfortable. And after the race, I said,

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we cannot end on that year. That was not a good enough weather to end. So we ended up continuing

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to do Marine Corps. Yeah. There were parts of that race where we were running through

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eight inches. And I'm not exaggerating eight inches of standing water on the road. It's just

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probably the most challenging weather that we've ever run in just because it was relentless rain.

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I had put Seamus's feet in like a bag, like a plastic bag to try and keep them dry. When we

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finished the race, I dumped about two gallons of water out of that bag. That's great. There was no

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staying dry. Since then, we've gotten a nice little rain shield that is a little more tight

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fitting and fits the chair a little better. So if we encounter those type of conditions again,

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we'll be a little better prepared. You guys have done a lot of races and

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kind of all around the country. What marathon or shorter distance, I suppose, as well race,

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would you say is the most inclusive? Or what do you notice about some races that are more inclusive

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than others? What makes them more inclusive? I would say Marine Corps marathon seems to be

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one of the more inclusive races that we participated in just because of the number of wheels on the

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course and the way that they take care of the wheeled athletes. We're amongst the start. I

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think there's like a hundred duos usually, which is unique. And then a lot of hand crank and push

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rim. And of course, there's a lot of veterans involved in that race. I would say that's probably

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one of the most inclusive that we've ever been a part of. And that takes place right around

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Halloween weekend every year in Washington, DC. Yeah. And I mean, this year we were a part of the

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biggest duo field that Boston's ever had. But obviously, I would love to see them continue to

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expand that division. I feel like if you can accommodate 20, I'm not sure why you couldn't

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accommodate 30. Yeah. And you look at Marine Corps marathon, and I think that the total

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field is something like 40,000. And like I said, a hundred duos, a hundred

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duos, and probably as many hand cranks all on the course together sharing the road.

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What's the line between competing as a duo and advocating as a duo? Is there a downside of

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wanting to run well, or are we supposed to just be content with being out there and showcasing

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inclusion? You know, I think that even coming out of Boston and us having a surprisingly good,

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faster time than I expected just helps with publicity for what we do. So I think the two

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can go hand in hand. It doesn't just have to be that we're going out to participate, though I

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think that is our number one goal is going out to participate. But then when you do it with a little

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bit of competitive spirit and a little bit of pace, it draws a little more attention. And like

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you mentioned the Runners World article, Seamus and I were driving home from the race on Monday,

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and I think we did three interviews on the car ride home through the van speakerphone,

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just because people have heard of what we have done as a duo, what we've accomplished as a family.

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And I think that it does help a little bit to be able to still run, rely on Seamus to pull me a

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little faster once in a while. Yeah, and I mean, it certainly doesn't diminish the accomplishments

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of anyone that's not competing for a specific time. It's still equally essential. But I do think

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you're right that it turns a little more heads and hopefully like even at Boston, like there's

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prize purses for every division except duos. So like maybe it will get to a point where duos

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are recognized in the same lens that push rim or hand cycle is and it probably would require people

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like yourselves kind of moving that forward as a more competitive field. Yeah, yeah, I thought the

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same thing as we were driving home on Monday. You know, the other thing that obviously has helped

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a lot is Dick and Rick's longevity in doing it. And hopefully Seamus and I are able to maintain

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that as a father son duo. You know, it's just astounding how long they were able to do it for.

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And then, you know, when I have to retire, maybe Seamus's brother can step in and continue Seamus

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being able to participate. Yeah, yeah, that would be awesome. I mean, my favorite part of what you've

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shared so far is just the closeness of your family, even like a summer being spent running, living in

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an RV, like that's just really impressive to me. So I think my favorite part of the whole story is

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just how close you guys are. And honestly, you know, that was one of the hardest parts of Monday was

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that Nicole and Simon couldn't be there. You know, they had obligations back here with Simon with

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track practice and Nicole with school that they just, they didn't feel like they could stay there

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like they could step away from it. And we totally understood it, but it was hard to not have them

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at a race like Boston, you know, when they are by our sides or cheering us on as much as possible.

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And you know, you mentioned that summer of 2015. Those are some of my most favorite memories.

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Yeah, it was amazing. We saw some amazing things and ran across the country. But honestly, some of

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my most favorite memories are time in the RV, just the four of us, you know, out on the road,

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you know, visiting around that tiny little table at dinner or playing games at UNO or whatever.

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I'm going to cherish those memories forever. Yeah, absolutely. I can't imagine that your favorite

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part of that experience was running nearly 60 miles a day. I can't imagine that was the most

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comfortable part of the experience. But Seamus, what are your goals for the next few years,

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maybe both academically and athletically? Yeah. So coming up pretty, pretty soon, I'm

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hosting a Blue Gene mile at my school to raise awareness for mental illness and suicide awareness.

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So that is where people will come to our high school track. They'll throw on a pair of blue

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jeans and run a mile. And then I'll give them a, everyone will get an award of some sort.

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And then after that, starting to get ready for college, I recently committed to U Albany

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to study physics and mechanical engineering. Really impressive. Is U Albany close to where you guys

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live? Yeah, it's about like 45 minutes away. But Seamus' goal is to go and live on campus. And

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that's what we're trying to navigate as a family now is, you know, we've been, you know, we've been

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working with the residents life and disability services, and they're all on board. Now it's just

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a matter of finding the personal care assistance that that will be able to help them. Yeah. Why

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don't you tell them about some of the other athletic things that you do in general and hope

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to continue? Oh, yeah. So, um, yeah, one of the one of the big ones is right now I'm shooting

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track currently, and we have two competitions coming up that I'm going to, hopefully, can do

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pretty well. And then over the summer, I will be a part of the why not sailing club at Lake George.

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And last year I won the the regatta that they hosted. So hopefully this summer, I'll be able

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to participate in that again. So one of the really neat things about that program, again, it's called

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why not, is Seamus can totally sail independently. Now, I didn't know anything about sailing, but

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Seamus, they have the boats rigged. They're for people with disabilities. They have a joystick

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that operates the rudder and the pulleys for the rope so he can operate the sails. And Seamus

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has been sailing since he was 12 years old. I hopped in the boat with him because they were short

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volunteers one day this summer and Seamus has us like sideways at a 45 degree angle. And I'm like

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Seamus, is this is this what we're supposed to be doing? We were flying with the wind and it was

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just amazing. So the thing that's neat about that is he you know, he doesn't have to rely on my legs

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to propel him. And he can do it solo. It's really, really rewarding to watch. Absolutely, Sean. As

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a father, maybe 18 years ago, when you found out that Seamus was going to have cerebral palsy,

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what were your initial reactions? And how has what he's accomplished over the last 18 years

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likely vastly exceeded all of your expectations, I would imagine? Yeah, you know, it's interesting

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because Seamus wasn't diagnosed with cerebral palsy at birth. He was, you know, as far as the

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doctors in the hospital and everything were concerned was, you know, he was born a healthy

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baby, his APGAR scores are normal, there was no, you know, trauma or anything that you often hear

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about with cerebral palsy. My job at the time was pediatric physical therapy. And that's all I was

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doing, working primarily with individuals with neurological conditions similar or or having

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cerebral palsy. So I actually took it to the doctor several times. And I said, I think, you know,

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some of the things that Seamus is exhibiting, you know, he was holding his hands and tight little

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fists. He had ankle clonus, which is kind of that, you know, beating of his ankles.

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There were just a few different things that I took to the doctors. And they just said, Sean,

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you're just paranoid dad who knows too much, he's gonna outgrow it. You know, there's nothing really

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to be concerned about here. Finally, when he was about 10 months old, and wasn't really sitting or

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crawling or anything, they agreed to an early intervention evaluation. He obviously qualified

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because he had developmental delay. And then about two months later, that right later than that,

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right around his first birthday is when we saw a neurologist, he was actually diagnosed with

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cerebral palsy. So your question was, you know, how did you how did you feel? Or how did you react?

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And I think I had known that it was coming for a long time. And my wife, you know, and I had had

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obviously had a lot of conversations about it. And Nicole at the time was a special education

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teacher. So we were well versed in what services were available and how to navigate that system.

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And, and without ever really talking about it, you know, Nicole and I, you know, set the plan in

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progress to whatever Seamus wants to try or do, we're going to figure out a way to make that

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happen through how you know, how we have to accommodate, adapt, and make things accessible.

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And that's what we've done his entire life. And then, you know, he asked how how he kind of Seamus

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his last 18 years have turned out now. Again, my goal was to get him involved and to participate in

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whatever he wanted to do. I had no idea that he was going to bring our family on the journey

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that we've been on. I mean, I, again, beyond my wildest dreams, I had no idea that he was going

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to be such a big dreamer and such a positive beam of light in this family, and really has led the

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way. And a lot of times I say, you know, I'm just here riding Seamus's coattails and helping to put

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his his mission into being and he has really helped us to figure out and see what inclusion is all about.

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Yeah. Now you guys are very involved with Ainsley's Angels, which is an organization that does

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something similar for a lot of families around the country. Seamus, do you want to tell the audience

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a little bit about what Ainsley's Angels is? Yeah. So Ainsley's Angels is a rider athlete organization,

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and they'll pair able body runners with our rider athletes and participate in endurance events like

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5Ks, marathons, ultra marathons, and then some people have even done triathlons, which is a

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really cool experience. Are you guys going to do any triathlons or have you done any triathlons?

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We have. We've done three or four. Yeah, yeah, we've done several. And the neat thing about

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Ainsley's Angels, and I know you know, Brendan, is we're really trying to branch out even just

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beyond race day and figuring out how we can bring inclusion to every day, you know, it's a really

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great way to do that. And so we're trying to do that every day, you know, through our ally

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development program and more inclusion experiences beyond race day, whether that be, you know, an

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outing or a move, you know, sensory friendly movie nights or whatever, we just want everybody to be

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able to be included and involved in whatever they want to try. Yeah, can you maybe just elaborate a

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little bit on that? So launched last November, our ally development program is geared at creating

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disability allies, people that can help to promote inclusion, disability awareness, and disability

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acceptance in their local communities. And that's what the program is geared toward educating them

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about what they need to do. And so the goal of the program is for each individual in the cohort to

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create a community inclusion project that addresses a need in their local community, whether

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it be, you know, an accessible playground or adult size changing tables in the in the restroom or

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accessible entrances to businesses, whatever it is, and they're working on those projects now,

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Yeah, I love that. And some of the I've stayed in contact with a few of the people that I met

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from Boston when I came up to speak to that group. But I love how comprehensive it is, right. So

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racing is important racing showcases inclusion, but there's a lot more to getting your community

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involved and making your community more inclusive and accessible. So I think that program kind of

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bridges that gap really nicely. Thank you. What is what's next for you guys? Do you have plans for

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our next races? Yeah, what are you talking about what you're doing? Well, I mean, we have we have

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a couple short races here and we will run with our local ambassadorship here all spring and summer

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before she heads off to college. But we have some big plans for the fall. Yeah. So in October,

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we're going to be running the Marine Corps marathon again. But this time I won't be running

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with my dad. He's going to be pushing our friend, Jill, and my friend, my friend, John, who's also

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an a six ambassador is going to be pushing me in his first marathon ever. So it'll be really fun

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to see how he feels about that experience, not only being his first marathon, but his first time

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pushing someone. Yeah, absolutely. Is that the first time that someone other than your dad has

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pushed you in a race? Not maybe a marathon. Yeah. Yeah. Yeah. Because I think about that sometimes

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where like, for example, like I, we host a 5k for my gym. And so instead of instead of running,

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I'm organizing the race. So Jacob doesn't participate because I'm not running. And I

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sometimes wonder if like, if I would want someone else pushing him, I don't know, to me, it feels

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like something that him and I do together, like it feels like a special thing that him and I do

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together. So was there any part of you that was like hesitant to let someone else push Seamus?

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There's been a few, there's been a few situations. One, you know, like he ran the, a mother love and

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run 5k with my wife one time, which was really neat and a group of her friends. He's run a couple

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races with me and Simon with Simon, his brother doing the bulk of the pushing again, that's all

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family stuff. But then we went down and ran the Louisiana marathon and I might've been like 2017

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or 18. And one of his friends pushed him in the half marathon down there with a group of adults

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that were there to assist as needed. So there's been a couple, you know, individual unique

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opportunities, but I tend to be the same way, you know, I like having Seamus to lean on and that

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smile to pull me along. And I have not really run a race other than a couple trail races when I was

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training for the run across America. I haven't run a race without Seamus since 2012 or 2011 or

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something. It's been a long time. Yeah. Yeah. I've never raced without Jacob and I never had raced

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before Jacob and I started running together. So it's something that just, I guess that

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uniqueness makes it feel a little more personal. Like, I don't think I would ever want to push

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someone else. And I'm not sure selfishly whether I would want someone outside of my wife to push

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Jacob. She's pushed him in like our local 5k and stuff, but it just does feel like some sort of

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special bond that we've come in. I often tell my coach that I'm faster with the chair than I am

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without. And maybe that's because I don't have any running experience or maybe it is a biomechanics

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thing, but like for you, do you feel like it's a lot harder to run fast with the chair or? I mean,

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I think over this Seamus and I have now been running together for, I mean, longer, but racing

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together for 11 years. And I think that, you know, I just have kind of evolved into, you know, how to

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master running with the chair. I don't feel like I need my arms anymore. And I do a lot of running

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without the chair too, because I run with his brother Simon and we train together. But as far

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as racing with the chair, like in Boston on Monday, I was glad I had the chair. Yeah, absolutely. And

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maybe like, I kind of glanced over quickly, but in Boston, I guess, how did you feel like the course

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was with the chair or how do you feel like running it was? Well, do you want to, I mean,

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I had told Brendan we were going to go out at seven minute pace. Yeah, I was not lying. That

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was my intention. You lied to me. I turned, the gun goes off and you already had like a 20 second

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lead on all of us. You must have, I split 540 for the first mile. So you must have been 515 or 520

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because you were a good, you were a good 15 or 20 seconds ahead of us.

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You want to talk about those first few miles, Jay?

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So when the gun goes off and we start out sprinting and my dad had told me his plan and I'm like,

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I don't know how close they were sticking to the plan. And then we get about five miles in and I

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get a text from my mom saying, what the heck? I thought you guys were sticking to six minutes.

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I was like, tell your dad to save some for a heartbreak. So I read him that text and then he

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reined it in a little bit. And we stuck to the plan of going slow, easy on the

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uphills, cranked it on the downhills. And then through that plan, we were able to get our PR.

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Yeah. I was just going to say as far as the course goes, as far as the course goes,

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I forgot how undulating Boston was and I had run it six times, but it's been 15 years since I last

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ran it. And those undulating hills, that's what beats you up because you're down and then you're

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up and then you're down. And it's like what we train in all the time. But that's why my legs are

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so sore today. I'm still feeling the ramifications as well. But yeah, it was something where I just

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could not really slow down the first half. And I'm getting texts. We have our phone mounted on the

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arrow bars. I'm getting texts like, oh, you're crushing it. I'm like, no, this is not good.

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This is not what I wanted. They're like, you're doing great. I'm like, it's not going to end well.

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But I knew it was coming. My only disappointment is that I was cramping so bad by 17 that I couldn't

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really run up the hills. But I actually didn't think the Newton Hills were that intimidating.

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There's a lot of reprieves where you go uphill, but then you're kind of running on a flat or

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downhill for a little bit of time. So they didn't feel quite as unrelenting as you may think.

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I don't know. Yeah. And the last one is really where I felt it. And that was just the cumulative

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effect of everything that we had done. But as soon as we got to the top, I kind of shook my arm,

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shook my legs out, and we were right back into it. In fact, Simon was tracking us from physics class.

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And he said, Dad, I saw that you had this one mile that was 906. And he was worried. He figured

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that I had cramped up or that we were going to struggle from there on. And then he said,

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but the next mile was 608. Yeah, exactly. And it was good. And like you said, that reprieve,

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and it allows you to use some different muscles. And for me, it allowed me to lean on Seamus and

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let him do the work on the downhills. As long as my stride could go, I tried to let it go.

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Yeah, yeah. Yeah, it's definitely different running with the chair. It's probably a type

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of stride that you adopt to kind of like get used to over time, for sure. But you guys have a lot

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of great resources. You have a book that you guys wrote together, right? If people are interested in

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purchasing that or learning more about your story as a whole, is there a specific

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website or channel that we should direct them to? Yeah, I mean, if people want to follow what Seamus

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is up to or what Seamus and I are up to, our Instagram, Facebook pages are power to push.

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That's power, the number two, and then push. And then as far as like ordering the book,

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it is available on Amazon. But we prefer that everybody order from Ainsley's Angels.org. It's

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the exact same price. It's free shipping in both places. But that way Ainsley's Angels gets a

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little more of the profits. All the money for the sales of the books goes toward benefiting Ainsley's

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Angels and promoting the mission of inclusion. And you know, eventually a goal of ours is to...

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So that book primarily I wrote alone, but Seamus and I do have the goal of writing a book together

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where I think it would be neat to kind of alternate chapters. So we'll see how his schedule allows us

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to do something like that. But that would be, I think, pretty neat in the future. Yeah, I'm sure

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you'll have a lot of free time with your physics and mechanical engineering workload as well to

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write a book. Sounds perfect. But yeah, we'll include some of those links in the show notes

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so people can easily find them. And maybe lastly, if like someone wants to get involved with Ainsley's

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Angels and if there isn't a chapter already in their community, what would be the process of them

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starting one? Oh yeah, I really appreciate that question. You know, AinsleysAngels.org is the

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place to go and then click join our family. If there is a location in your area and we are in

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between 60 and 70 cities and towns across America, but if we're not in your local

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area or region, there's an opportunity to become an ambassador. We take any interested individuals,

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you know, through an application process and then again provide the education so that it's not such

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a daunting task to be able to start and develop and create a thriving ambassadorship in their area.

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Absolutely. Awesome. Yeah, so we'll include all those links so people can easily find them.

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But Sean, Seamus, thanks for the conversation. Congratulations on Boston. I know it was a long

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journey to get there and a great day, hopefully. You guys ran really well. Appreciate everything

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you guys do for the world of inclusion and inclusive endurance sports as a whole.

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Oh, thanks. And likewise to you too, all that you do. And again, the cohort has reached out to me a

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lot of times, you know, that said that they've been listening to your lectures and your podcasts,

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and everything that you do. So we really appreciate it. I hope that we can keep that

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relationship going for future cohorts and that you will continue to be involved because

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that means a lot. Yeah, you might catch us up in Sacketts Harbor as a last ditch effort of

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making it into Boston again next year. Yeah, if you're interested in going to Sacketts Harbor,

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I can put you in touch with the race director. So the Sacketts Harbor race director also ran

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Boston on Monday. You were talking to him, right? I think I saw you guys talking to him before after

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the race. Yeah, yeah, she's incredible. And I'm sure they would love to have another duo. Seamus

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and I won't be there this year in Sacketts Harbor, because he'll be, you know, at school.

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But if you guys go up, maybe Simon and I will go up and run the half marathon or something and

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cheer you on. That'd be really cool. So let me know. Wonderful. I will. Thanks again, guys. I'll

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talk to you soon. Yeah, take it easy, Brandon. Bye.

