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Alright, welcome to the AdaptX Podcast where we have conversations with individuals who

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are building accessible businesses, advocating for inclusion, or excelling in adaptive sports.

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Our intention is never to speak on behalf of those with disabilities, but provide a

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platform to share insights into a more accessible world.

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Today we are joined by Kristen Secor.

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Kristen was born with a rare form of muscular dystrophy, which affects her strength, endurance,

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balance, and breathing.

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Despite her physical challenges, she continues to pursue her love of travel and has explored

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20 countries across four continents, including Antarctica.

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Now she uses her knowledge to help others with mobility challenges to travel to their

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dream destinations through the information and resources that she provides on her wheelchair

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accessible travel blog, World on Wheels Blog.

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Kristen, thank you for joining me today.

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Thank you so much for having me.

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When did your passion for travel begin?

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So I've always had a passion for travel.

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We always took family vacations, but I did my first international trip right after graduate

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school and that really fueled the fire of just seeing new places and history and it

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just instilled an absolute love of travel even more than I already had.

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What were you studying in graduate school?

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So I was studying psychology.

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I was a licensed mental health counselor for 11 years and then my disability progressed

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and I wasn't able to do that job anymore and that's kind of when I pivoted into the blog.

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What aspects of the job I guess were you first unable to do due to your muscular dystrophy?

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So that's when I, so my muscular dystrophy is progressive.

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So when I was working full time, I was walking with a cane and then I was hospitalized for

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like six weeks due to pneumonia and that's when I lost a lot of strength.

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I became a full time ventilator user and my doctor had decided that just for health and

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safety reasons it wasn't going to be a good fit anymore.

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I get sick really easily so that was her biggest concern.

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How were you able to balance maybe the susceptibility of getting sick with this love for travel?

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Was there an intersection between the two that maybe made you concerned about pursuing

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that as a career and as a hobby?

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Really, I think my love of travel outweighs the risk.

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It's when I feel alive.

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It's when I'm most fulfilled.

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So I do take precautions and make sure that I'm healthy, that I have antibiotics on hand.

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Should I get sick when I'm traveling?

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I always discuss my travel plans with my doctors.

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After a pandemic, I would wear a mask and you know take those precautions and things

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like that.

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So I always think for me anyway that I would rather not live in a bubble.

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That's not really living so I'd rather do what I love and just be fulfilled that way.

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Absolutely.

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Well, you're far more adventurous than me.

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I don't think I've left Massachusetts in like five years.

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So to each their own.

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What was I guess what was like the first trip that you took that really drew you into that

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as a hobby?

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I mentioned that I traveled right after graduate school.

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I went to England and Scotland with a friend of mine.

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She had studied abroad there so she really knew the area and just seeing the history.

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Like in America, we have old buildings but they're nothing like old buildings in Europe.

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So getting to see some of the castles and some of just like the different it's a similar

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culture but it's also a different culture.

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So it really was a nice segue into all of them and it really just made me love it.

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Absolutely.

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What countries have you visited that you would consider to be the most accessible?

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England is well, specifically London is really accessible.

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All their public transportation pretty much is wheelchair accessible.

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They have plenty of hotel rooms that are adapted for wheelchair users and there's a lot of

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things to do.

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Even their castles are at least partially accessible.

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Like you can tour Bohemian Palace and Windsor Castle and all these iconic sites.

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Barcelona was also pretty good in terms of all of those things.

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So I would say some of the bigger cities in Europe are probably the most accessible.

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But I always challenge myself to go to places that really aren't as user friendly for people

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with disabilities just because I'm stubborn and I want to see it all.

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I don't want my physical limitations to hold me back as much as possible.

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I know that there's always kind of a limit of what you can do.

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But that's why I went to Antarctica and South America and those really are not as accessible

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as the US or even Europe.

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But it was still a fantastic trip.

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Yeah you said something interesting there that you kind of gravitate sometimes towards

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areas that aren't user friendly or that aren't accessible.

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We sometimes hear so much about how it's the business owner or the building's responsibility

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to be fully compliant, which it certainly is.

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But how much of the responsibility do you think is sometimes on the individual to advocate

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for themselves and educate these people because they might not be familiar with accessibility

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standards.

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They might get into a business but none of their training revolves around accessibility

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standards.

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So what's that balance between the burden or responsibility being on the user and then

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on the business?

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I think a lot of the responsibility is on the business.

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Because I will say when you go to other countries they don't all have accessibility laws like

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we do in the US.

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So they don't have those requirements to be accessible and I think that's where my responsibility

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comes in to educate them.

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You know what you can get a lot more customers if you just put a ramp in instead of stairs

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or if you had an accessible bathroom because you know there's so many people that travel

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that are disabled and that travel and you could really increase your clientele.

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I mean I think you have to come at it from not only a human perspective, right?

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Where you're like hey you know what if you're a grandmother or your sister or your brother?

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You know what had limitations and how would you feel differently if you actually encountered

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it personally but then also come at it from a practical and business perspective of hey

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you're missing out on lots of money because you're not accessible.

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And if you really wanted to expand your business you could really attract a lot more clients

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just by making some simple alterations.

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Yeah we definitely talk about how accessibility is not just an altruistic endeavor but it's

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also a profitable and good business practice.

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What is your planning process like when you're preparing for one of these trips?

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I plan at least a year in advance because I need to do research.

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I look at what like the hotel rooms in the US we have photos of a lot of our hotel chains

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so you can see if it may work for you or not.

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In Europe they don't have to post those pictures as much so you've got to email the hotel directly

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and say hey can you send me pictures?

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Can you send me measurements so I can tell if this is going to be a good fit for me?

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Then I have to look at how am I going to get around?

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Is there accessible public transportation?

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Are there private tours available?

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What can I do?

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What challenges can I expect?

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Are there accessible places to eat?

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I use Google Maps a lot to see the street view to see if there are stairs at their entrance.

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I also learn to ask very specific questions.

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If I just ask is it accessible they'll say yes and then I'll show up and there are stairs

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and they're like well you can do stairs right?

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And I'm like no I cannot.

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That's not my definition of accessible but everyone's definition differs.

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So I ask are there stairs?

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Is there an alternative step-free entrance?

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Is there a lift on that bus so I can stay in my wheelchair or is there a ramp?

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Questions like that because I get better results that way but I need time to reach out to all

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these places to ask those questions.

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I also know that accessible facilities are limited so they sell out quickly so I want

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to make sure I get the adaptations I need.

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So yeah I plan anywhere from one to two years in advance depending on where I'm traveling

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to.

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Yeah absolutely.

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We hear about the horror stories of traveling with a wheelchair and how so many airlines

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damage equipment during flights.

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Outside of that what are your primary barriers or concerns when you fly?

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Accessible bedrooms 100%.

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Yes obviously the wheelchair damage is a concern for people as well but on long-haul flights

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you know they the bigger aircrafts have what they call accessible restrooms but they're

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not really accessible.

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Sometimes they just take down a wall between two standard restrooms to make it bigger but

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an aisle wheelchair is what type of wheelchair they use on a plane sometimes barely fits

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into one of their accessible bathrooms and if you need help transferring there's usually

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not room for someone else to be in there to assist you so it can be very challenging and

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I know personally I go to unhealthy measures of you know not eating or drinking to try

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to avoid that situation where I may have to use the restroom.

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Yeah but that becomes increasingly harder when you're flying to places like Antarctica

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I would imagine.

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What was that trip like?

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I don't know the first thing about how that is structured or what the environment is like

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there outside of it being woefully cold so are there yeah what was the what did the trip

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consist of?

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So I did a cruise to Antarctica.

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I left from South America so I flew to Santiago Chile and then we had to sail down the coast

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of South America then went to Antarctica for four days so that part was relatively good

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accessibility wise a lot of the major cruise lines have accessible cabins and facilities

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you know you know you have a place to eat and you know things to do and the ship I did

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didn't actually land you know they didn't take people ashore to Antarctica I knew those

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ships were not going to be accessible so we just sailed into the peninsulas around Antarctica

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we saw a ton of wildlife come back whales every day penguins every day killer whales

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seals birds you know so from a wildlife perspective it was really amazing the mountains and the

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icebergs were just incredibly big like taller than the ship which is several stories high

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and kind of mind-blowing just how massive everything was and yes it was cold but I went

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during Antarctica's summer which would be our winter so it was actually warmer in Antarctica

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than it was in upstate New York when I was down there it was about 32 35 degrees each

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day so it was still cold but not horrible yeah yeah that's that's interesting definitely

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probably a sight that you have to witness to really fully grasp the the magnitude of

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it all how essential is fitness to your ability to travel or just health globally it's really

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important for me especially like the trips I'm taking this year when I'm healthier

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fitness-wise I can stay healthier on the trip my energy is usually a little bit better so

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I definitely need to stay in shape in order to get the most out of my travels and I think

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when you're physically stronger it's easier to maybe ward off viruses and illnesses and

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things like that I know the trips I'm taking this year I'll be in Peru be in the merch

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and so it'll require me to use a special wheelchair that they have and there's not really side

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support so like that core strength is really important and then in September I'm doing

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a gorilla trek in Africa again you're gonna need a lot of core support to hold yourself

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up it's not really the most accessible area so you're gonna have challenges to you know

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over uneven terrain and things like that so I think the stronger you are physically the

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better you want to enjoy your trip absolutely maybe if we can segue into kind of etiquette

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and language if you were if you were to come into my gym and work with me as your trainer

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what questions would you want me to ask you about your disability wait what limitations

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I have so that you understand the kind of what my needs are you know wait where maybe

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what muscle groups to target because obviously with muscular dystrophy there tends to be

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some muscle areas that are weaker than others others have more of a generalized weakness

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sometimes doctors put limits on what you can do to work out so I wouldn't want you to ask

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those questions of you know what kinds of your physicians given you so that we're not

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doing anything that could possibly damage my muscles further I think that's really important

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as well yeah it's not it's not a diagnosis that I'm uh thoroughly well versed in I did

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talk to a physical therapist who specialized in douche ends muscular dystrophy a few years

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back and I actually recall him talking about sometimes concerns with too much muscle damage

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via the working out almost expediting the process of losing muscle mass which is common

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with muscular dystrophy so it's definitely something where a personal trainer if they're

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put in that position should seek out medical guidance from your medical team to better

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understand I guess the scope of the disability what are what are your primary goals with travel

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for the next couple years and kind of growing out your blog as well as these trips that you organize

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so yeah I basically want to show people that you can travel to places you may not have thought

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for accessible even if accessibility isn't perfect that there's still opportunities I think Africa

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is a great example of that you know when I tell people hey I'm going on a gorilla trip they're

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like how the heck you doing that you know like uh because it's in the jungle it's very thick

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vegetation and not really mobility friendly for most people um so I think that is a goal of mine

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and then I think for the small group tours my goal is just to help people they take that stress out

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of planning accessible travel because there's so much work involved it is really stressful and

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overwhelming so if I can take that piece out of it and if I can say hey there's you know

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a group of us going so if you feel like you need extra support because you're anxious about doing

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this you know with mobility problems or with a disability you know there's other people just

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like you that absolutely understand your concerns and what you're going through and we're going to

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be there with you we're gonna have a great time and to also make it more affordable because

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accessible travel costs usually at least twice as much as traditional travel because of some of the

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special tours and things that we need sometimes we have to go with private companies rather than

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like public tours um so if I can make that you know more attainable for people and take that

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anxiety out and just offer support that's really my goal and help them to go to bucket list

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destinations the guru trip I mentioned I have readers coming with me on that trip and that's

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a destination they never thought they'd be able to go on because of accessibility uh before the

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gorilla track we have a small group tour to south africa for a safari so to get to experience that

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like exotic really cool kind of atmosphere and then I'm already planning trips for 2025 we have

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a trip to Switzerland which is a very expensive country to visit so it's more attainable with a

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small group tour because we're splitting the cost amongst a bigger group of people and so yeah I

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just want to create opportunities where right now they're either they don't exist or that people

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just want more support in going there yeah definitely speaks on accessibility because

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on accessibility being multi-dimensional not just a physical uh act of getting into a place but also

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the economic cost that comes with not only international travel to begin with but like

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you mentioned that it can be twice as expensive for individuals with disabilities how has

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uh muscular dystrophy changed your outlook on life

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my muscular dystrophy is such a rare form they really don't have like um kind of an idea of what

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it can do in the future um so I think it reminds me that life is short and it's unpredictable you

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never know what's going to happen and that's true whether you have a disability or whether you're

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able-bodied and so I think I just try to live life to the fullest I try to pursue my passions

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and dreams while I still can really appreciate what I do have and focus on that rather than solely

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focusing on everything that I've lost or that has gone wrong there's so many positives still that

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you can focus on and really find a purpose within your own challenges to make a difference in this

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and I think that's really special yeah absolutely I appreciate uh you sharing that if people are

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interested in learning about the uh the trips that you schedule or reading your blog where would you

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recommend that they go to find you it's blog.com is my blog it has all the information about the

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group trips I organize as well as a lot of posts so if you're traveling on your own and want to know

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more about accessibility there's a lot of information on that blog I'm also active on

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Facebook and you can follow me at world on wheels on Facebook are there any prerequisites to

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participating in those trips uh like having a physical disability or are they open to anyone

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interested they're open to anyone interested um because not all disabilities are visible

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and so I'd like to acknowledge that I have people that are slow walkers because they've had strokes

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or they've had other medical issues I've had people that are able-bodied that just love what

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I'm doing and the trips that I put together and so they're like I want to join and I would love

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you know to go with people no matter what their abilities uh so it's always open to everyone

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awesome Kristen well the work you're doing opens up the door uh for a lot of people literally and

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figuratively so I appreciate uh I appreciate that mission and I appreciate you sharing what you do

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with us today and uh we'll include your blog and Facebook page in the show notes if people want to

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to learn more about the trips that you're planning or possibly accompany you uh accompany you on one

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in the future but again thanks for uh thanks for taking the time to chat with me today thanks for

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having me I appreciate it thank you for listening to the adaptx podcast our effort to amplify the

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ideas of our guests and create more inclusive and accessible industries is futile unless these

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episodes reach a larger audience if you enjoyed our discussion today please leave us a rating or

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review on whichever platform you use and if you would like to learn more about adaptx the course

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that we teach to health and fitness professionals and the projects that our organization is working

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on you can subscribe to our newsletter through our website www.adaptex.org until next Monday