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All right, welcome to the AdaptX Podcast where we have conversations with individuals who

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are building accessible businesses, advocating for inclusion or excelling in adaptive sports.

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Our intention is never to speak on behalf of those with disabilities, but provide a

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platform to share insights into a more accessible world.

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Today we are joined by Dr. Hayley Kavanagh.

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She is currently working in the role of research and developmental coordinator for the Young

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Athletes Program with Special Olympics Ireland, designing and implementing a coach-led fundamental

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movement skill intervention.

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She previously undertook the role of health and wellbeing coordinator for the organization,

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increasing their health education program reach by 300%.

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Her doctoral studies at Dublin City University focused on fundamental movement skill proficiency

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in children with intellectual disabilities.

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Hayley, thank you for joining me today.

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Thanks so much for having me.

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I'm excited to be here.

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I want to quickly mention for our listeners in the US, which is most of our audience,

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that Hayley might refer to FMS as the fundamental movement skills.

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Our fitness professionals in the States might be familiar with that abbreviation as functional

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movement screen, but two very different assessments and objectives.

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Throughout the episode, I'll let you clarify what that consists of and how it's measured.

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For me personally, I had a very formative experience with Special Olympics.

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It was my first introduction to disability at 15 years old.

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Over the last, I guess, half of my life, the last 15 years has revolved around inclusion

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and sport and fitness.

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Did you have a unique experience that initially influenced this career path?

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Yeah, absolutely.

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In Ireland, we have our final year exams in high school called the Leaving Certificate.

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At that time, everyone's trying to compete to get as many points as possible to get a

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college degree or course that you want to attend.

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I knew I wanted to work somewhere in the health and science space, but I wasn't 100% sure

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what I wanted to do.

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I did really well, but the course that I got given then was Sports, Science and Health

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at Dublin City University.

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At the time, I was a bit disappointed with how I performed, even though overall it would

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be deemed a good score.

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I said, look, I'll go in, I'll try sports science, and I can do physiotherapy afterwards

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if I want to or if I need to.

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So I went in and in the first year, we covered a topic called Adapted Physical Activity.

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It was the first time that I'd ever heard of that phrase.

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It was the first time that I'd ever even heard of the concept of sports and physical

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activity for people with disabilities.

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I went up to my lecturer and said, how do I get involved in this area?

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It just really, really intrigued me.

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She said, go and volunteer with your local Special Olympics club.

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So having no knowledge in basketball or prior experience, I went down to my local club and

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I was assistant coaching and just helping out with children who were learning to play

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basketball for Special Olympics.

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Then I was there for about a year or two and they were rolling out a new program called

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Young Athletes, which was for children with ID aged 4 to 12 years.

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I kind of took a lead role on that program and rolling it out within the club setting.

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I really, really enjoyed it.

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I was volunteering then right up until COVID hit really, and then we kind of went online

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for a bit.

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So that's how my love for this area really grew.

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And again, during college, we had the opportunity to do a placement, like a six month work experience.

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So I chose, and again, we had to interview and it was quite competitive, but I had the

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opportunity to work at an intellectual disability service.

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So in their gym and swim programs.

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And that organization is called Stewart's Care.

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So again, it was a totally different side.

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This time it was adults that we were getting to work with for the first time and just seeing

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how much sport and physical activity meant for them.

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During that time period of the placement as well, there was a few people who were coming

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into the gym who were users of motorized wheelchairs.

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And one guy in particular had said to me that he had an acquired intellectual disability

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and he remembered what it was like to play football before he then was a motorized wheelchair

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user.

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So I got my thinking cap on and I remember again, we had learned about power chair football

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and I think our lecturer had told us about boxes that you could put on the front of the

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chair.

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So that's what we went out and did.

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And we brought plastic boxes, cable tie them to the front of the motorized wheelchairs,

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got really large footballs and we started Ireland's first intellectual disability power

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chair football team.

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So that was really exciting.

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And we did a big fundraiser and actually raised money for proper equipment and actual guards

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to go on the front of the chairs because when people were crashing into each other, the

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boxes were just flying and splintering everywhere.

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And then from there, just before I finished my final year, I actually got a job running

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the sport and physical activity programs for that organization.

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Again, it was a really blessed opportunity and that came about.

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So that's how it started really for me.

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Do you remember, it's something that I've been asked before and I haven't always been

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able to pinpoint it or accurately describe it.

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Do you remember what the emotions you felt were or what kind of initially drew you?

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Because I started with unified basketball as well and I guess it was kind of like a

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youth athletes, young athletes program because there wasn't that differentiation at the time,

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but we did have kids that were all the way down to five or six.

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But I just remember being drawn to the unique aspect of those relationships where the athletes

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we were working with really just wanted my time instead of they didn't have these expectations

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for me.

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What college are you going to go to?

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How do you perform in your varsity basketball game this weekend?

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All they cared about was me being present and I found that very refreshing.

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I was wondering if there was a specific aspect of the experience that drew you in?

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I think it's the people themselves.

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We always slag and joke at Special Olympics saying, once you go to one session, you're

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hooked.

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You're not getting away.

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You're going to want to come back time and time again.

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But I think it's those people that you get to meet.

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Like you said, it's very much about your time and being there in the moment.

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I think you giving them 10 minutes of your time means so much to them as well.

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And that just comes back in leaps and bounds.

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It's such a nice feeling being there and just getting to know people.

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I think for the children as well, it's other things where parents might be saying, look,

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they're having difficulty in school.

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But the minute they come into the sports hall, they're running in, they're meeting friends

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for the first time.

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It's the relationships even with each other that are built in that environment of Special

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Olympics as well.

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So yeah, I just love the people.

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I just love working with them.

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The university system might be a little different in Ireland than it is in the States.

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But like you mentioned, an assessment that you took towards the end of high school that

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determined what path you were going to go is that a competency assessment?

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Like the US has SATs or is that like a match fit type of assessment?

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No, it is more competency based.

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So it's eight subjects, English, maths, history, science, those type of subjects.

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And yeah, it's a point system.

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So it's basically how well you can perform on the day.

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And they're delivered over a two week period.

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So you're just going in exam after exam after exam.

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And it's based off your marks performed on that single day, essentially.

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So that's very stressful at the time.

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Yeah, absolutely.

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What were your doctoral studies like?

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Did you have a specific research goal?

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Yeah.

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So I suppose when I talk about stress, I still think those high school exams are probably

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the most stressful time.

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Even with the doctoral stuff was quite challenging at times, but still very enjoyable.

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I think the reason I suppose I got interested in the area of research as well as part of

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the sports science degree, we do research and things.

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And again, in final year, you have to pick a topic of your choice.

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And at that time, I'd pretty much decided I love the area of adaptive physical activity.

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This is what I want to go into.

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And I have had some exposure volunteering with other PhD and doctoral researchers on

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their projects.

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And one study in particular was called Moving Well Being Well.

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We were going around across the island of Ireland, assessing children's fundamental

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movement skills.

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And these are children now in mainstream primary education.

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So that was my first taste of fundamental movement skills and the idea of physical literacy.

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So for my project, then I decided, what does that look like then for children with intellectual

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disabilities?

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Because what I'd seen and from the research, it showed that typically developing children

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had quite poor levels of motor skill proficiency.

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And I could only imagine with all the opportunities presented to them, what was it going to be

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like on the other hand then for children who weren't presented, but as much opportunity

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to take part in sport and physical activity?

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So again, we kind of started that research or piloted it then in my final year.

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And then COVID did hit at that time as well.

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So it was only around November, I think 2020 then when we'd put an application in to say,

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OK, we actually want to do this as a doctoral research study and take it a bit further.

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And we had originally approached Special Olympics Ireland in 2019 to kind of flag the idea with

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them and just see what they thought.

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And Karen Coventry, who's the director of sport there and she's my boss now, was like,

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she loves evidence based research and it's something that was relatively new for the

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organization.

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They hadn't gone down that path before.

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So they were taking a chance and the young athletes, they see it as the future of the

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Special Olympics program.

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You know, they're coming in, we want to give them the best opportunity to develop their

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fundamental movement skills.

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But yet they had no findings on how was the program going?

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Are the children developing their skills?

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What is their baseline levels like?

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So that's really where the project kind of stemmed from.

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Yeah.

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Yeah, I think if you look solely at the literature and I'm sure it's accurate in many ways, individuals

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with disabilities, lower gross motor functioning abilities.

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And I wonder sometimes if that's a product of their disability or whether it's a product

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of a lack of opportunities to develop.

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When you speak on like nature versus nurture, does it appear to be specific to a diagnosis

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or does it maybe stem from a lack of opportunities to good programming like young athletes?

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I think there's a bit of both.

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Definitely.

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I think that in terms of say the cognitive side of things that what the research would

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say is that because of say the cognitive disability that then developmentally children with intellectual

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disabilities are behind.

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They're typically developing peers.

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Like they might learn to walk at a later stage and things like that, which means then their

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movement patterns are developing at a later rate.

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So but then on the other side of things, there is definitely less opportunities for children

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with ID to take part in sport and physical activity and even anecdotal evidence that

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we would have heard or if a child with an intellectual disability is attending a mainstream

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primary school, we've heard stories of them being left out of physical education class,

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like they're left sitting on a bench because maybe the teacher doesn't know how to adapt

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the activity to include them.

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Or there's a fear or worry maybe from parents or from teachers about what if they get injured

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or what if they get hurt side of things as well.

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So I definitely think it's combination of both.

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But then again, from what we've seen when we're out in the field as well is that children

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who tend to take part in more than one activity, so more than one sport or you know, they're

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being physically active more than one day a week, their fundamental movement skill proficiency

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is definitely higher because they've had more exposure to it.

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And I think the key about fundamental movement skills is that the more you need to be provided

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with opportunities to learn, reinforce and practice them.

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You know, it's the same with everything with with reading, with writing, the more we do

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it, the better we are at it.

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And so yeah, exactly the same for fundamental movement skills.

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Yeah, that learn, reinforce, practice is essential because I think sometimes there's a lot of

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seasonal based programs for people with disabilities.

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But it's like the same thing in the fitness space.

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But if you came to me with a specific fitness goal, and my response was, yeah, we have our

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next eight week program starting next month.

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And then after that eight week program, the next one starting a month later, like, that's

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not the best recipe for fitness improvement, motor skill improvement, etc.

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So it really reinforces the essential piece of year round programming, I suppose.

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Yeah, and young athletes, the young athletes program is a year round program, which is

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great.

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So the only time it really runs alongside the school year.

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So the only time periods that the children would not be taking part is over the summer

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months.

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And again, some clubs depending on volunteer availability, they might run through or for

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as long as they can through the summer as well.

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And then at Christmas time, maybe for two weeks or in December.

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So it is it is a really good program in that respect that it is year round.

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However, it is just one day a week.

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So we are really trying to encourage athletes to take part in other things outside of the

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program as well.

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And once athletes are between the ages of six and eight, it's just it is sport dependent.

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They can join other sports programs that we have on offer with Special Olympics.

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However, we are obviously trying to encourage, you know, I think one thing that the coaches

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tell me they struggle with a bit sometimes is managing parents expectations because they

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might say my child has been in the program a year.

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I want them to go to a sport.

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And we're trying to say, but they haven't developed, you know, all of the skills that

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they need to be able to play basketball or to play football or to do those things.

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So I think if it is the one day a week, you know, we need to be recognizing that it might

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take a bit longer.

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Whereas if they're physically active outside of the program, then those skills will develop

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at a faster rate.

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So is this seen as a prerequisite to participation or like a supplementary option?

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So at the moment, we probably are trying to go down the prerequisite route a bit.

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It was only introduced in 2016, this young athletes program for the first time, because

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prior to that, it would have been I think children had to be aged eight to join the

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sports program.

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So parents were looking for their children to get into things earlier, which of course,

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you know, any other child might start a sport or, you know, at age four, it could be.

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So that's why the program then was introduced.

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So yeah, look, we are trying to say that it's a prerequisite, but we don't stop anybody

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if they want to wait and join a sports program either.

245
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Yeah.

246
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Yeah.

247
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I just wonder if sometimes the best way to get better at a sport is to practice it or

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just to be to be engaged in it to a degree.

249
00:15:20,060 --> 00:15:28,720
So the parallel between like you have to meet XYZ standard to participate or you start participating,

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you identify where the deficits are and then you try to address those deficits either within

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practice or within supplementary training.

252
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Yeah, it's an interesting model.

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But you had mentioned some of the cognitive deficits may be contributing to slower processing

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speeds and lower gross motor skills.

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While we push like authentic conclusions of people with and without disabilities, like

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seamlessly coexisting or various diagnoses coexisting, could you make the case for like

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more specialized programs being beneficial for people with disabilities?

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So for example, in the States, there's like Down Syndrome Sports of America.

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So for athletes solely with Down Syndrome, like, could you make the case for specialized

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being advantageous to kind of level the playing field?

261
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I think that's an interesting question.

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I think I suppose we also are looking at society and what's happening in our communities and

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things like that as well.

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So while you might say, okay, so everybody with Down Syndrome, let's do this program

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because, you know, we can tailor it, obviously tailoring it to meet individual needs is so

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important, but I think that that can happen at a sports session or the young athletes

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program anyway.

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Because with the help of the coaches and volunteers, they get to know their athletes really, really

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well.

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I think that that is what is more important than I suppose, grouping people into more

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kind of categories for sports.

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I think Special Olympics in general, you know, we are segregated in that sense that it is

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only for people with intellectual disabilities or I know in the United States you have unified

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sports.

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At the moment in Ireland, we haven't rolled out that program model as of yet.

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I think in the future, it's probably something that the organization might look at.

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But as of now, we're solely a program for people with ID and I think it's part of coach

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education and training that catering for the individual athlete and to meet their individual

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needs is part of what we do anyway.

280
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So everybody should be able to be included and catered for within the session.

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Yeah, and I'm a big proponent of the mixed ability model, not necessarily advocating

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for specialized but yeah, it's just an interesting idea of like what environment is someone most

283
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successful in and then what environment do they feel most included in.

284
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I think for a long time, I thought that inclusion was just like the presence of people with

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or without disabilities.

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But now, now the literature kind of trends towards inclusion as an experience or as an

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emotion that's kind of ever evolving and it's really up to the individual to determine

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when they feel included and not myself as a gym owner or a coach to say like, oh, this

289
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program is inclusive.

290
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It's kind of it's up to the participant, I guess to a degree.

291
00:18:18,360 --> 00:18:25,760
What are the unique challenges of conducting research with this population?

292
00:18:25,760 --> 00:18:30,760
So you know, one thing that I will start with is that no matter what mood I was in before

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going to, you know, an assessment or testing session, leaving the session, I was always

294
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happy just because the children themselves just make you really, really happy and they're

295
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just a joy to be around.

296
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But I think some of the challenges or kind of solutions as well that we would have implemented.

297
00:18:46,600 --> 00:18:52,360
So when I was helping with other researchers at the time in those primary school settings,

298
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we would have groups of children and we would say, you know, number one, go do your run.

299
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Number two, go that does not work when you're working in an adaptive setting.

300
00:19:02,800 --> 00:19:07,800
So we would work one on one with each child and we would go through the full battery of

301
00:19:07,800 --> 00:19:12,320
fundamental movement skill assessments with them as part of the assessment.

302
00:19:12,320 --> 00:19:17,580
Anyway, you would demonstrate this time we've actually brought in a visual support protocol.

303
00:19:17,580 --> 00:19:22,760
So we're using, you know, the pictorial exchange communication system, symbols and pictures

304
00:19:22,760 --> 00:19:28,240
to show the athletes the skill, then we demonstrate and then we ask them to copy us and to do

305
00:19:28,240 --> 00:19:29,240
the skill then.

306
00:19:29,240 --> 00:19:34,200
So definitely working on a one to one basis, building that rapport, getting to know the

307
00:19:34,200 --> 00:19:40,720
athletes name, a lot of motivation and encouragement is definitely needed in those settings as

308
00:19:40,720 --> 00:19:41,720
well.

309
00:19:41,720 --> 00:19:46,000
And I think that's probably, you know, some of the challenges maybe we might have faced

310
00:19:46,000 --> 00:19:51,360
is that not knowing the researchers, but I suppose that that could happen anywhere.

311
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I think you just have to build that rapport when you go in and make it seem like fun and

312
00:19:56,720 --> 00:20:01,840
that it's a game and not be putting obviously any pressure or anything saying we don't

313
00:20:01,840 --> 00:20:03,120
mention that it's a test.

314
00:20:03,120 --> 00:20:04,920
We mentioned that it's a few games that we're doing.

315
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We want to see how good you are at performing the skills and then just rewarding with a

316
00:20:09,840 --> 00:20:12,440
sticker and things like that at the end.

317
00:20:12,440 --> 00:20:18,200
And I think challenging wise, because again, we're a volunteer led organization, sometimes

318
00:20:18,200 --> 00:20:22,840
life happens for people and if there's one lead volunteer, then a session might be canceled

319
00:20:22,840 --> 00:20:27,640
if that volunteer can't attend, which means that we'd miss out on attending the club on

320
00:20:27,640 --> 00:20:28,760
that week.

321
00:20:28,760 --> 00:20:34,400
Other things, usual stuff like weather or if it's an outdoor session and it starts raining

322
00:20:34,400 --> 00:20:36,600
really heavy and the children can't be outside.

323
00:20:36,600 --> 00:20:39,320
So just those type of challenges really.

324
00:20:39,320 --> 00:20:44,760
And I suppose also the number because we work on a one to one basis and most sessions are

325
00:20:44,760 --> 00:20:49,920
only 40 minutes to an hour long, we only get through a certain number of children.

326
00:20:49,920 --> 00:20:51,800
We only get to assess a certain number.

327
00:20:51,800 --> 00:20:55,600
Whereas again, if you were going to a school, you could spend the whole day there and probably

328
00:20:55,600 --> 00:21:00,680
do between 30 to 40 children, you know, every hour, hour and a half type thing.

329
00:21:00,680 --> 00:21:04,880
But that is it's just not the same when you're working with a special population.

330
00:21:04,880 --> 00:21:10,240
So our testing periods are that bit more challenging and a bit longer probably than what would

331
00:21:10,240 --> 00:21:11,840
typically be expected.

332
00:21:11,840 --> 00:21:19,160
Are you able to articulate, I guess verbally without visuals and stuff, the criteria of

333
00:21:19,160 --> 00:21:23,720
the fundamental movement screen, like what motor skills you're looking at, what activities

334
00:21:23,720 --> 00:21:26,920
they're doing during that testing?

335
00:21:26,920 --> 00:21:29,320
So we use two types of assessments.

336
00:21:29,320 --> 00:21:35,120
So we use the test of gross motor development three and the box two.

337
00:21:35,120 --> 00:21:42,280
So in the TGMD three, that's things like running, skipping, horizontal jump in terms of your

338
00:21:42,280 --> 00:21:47,640
locomotor skills, your object control would be catching, kicking, overhand throw, underhand

339
00:21:47,640 --> 00:21:50,040
throw, one hand strike, things like that.

340
00:21:50,040 --> 00:21:52,840
And then the two assessments in the box two are balanced.

341
00:21:52,840 --> 00:21:57,720
So a beam balance where you're standing on one leg with your hands on your hips and then

342
00:21:57,720 --> 00:22:01,600
walking heel to toe on a line with hands on your hips.

343
00:22:01,600 --> 00:22:08,640
So the ones that the athletes or the children would struggle with a lot is the balance assessments.

344
00:22:08,640 --> 00:22:15,600
And when we looked at in terms of percentage mastery, so how close are they at scoring

345
00:22:15,600 --> 00:22:17,220
in all of the criteria?

346
00:22:17,220 --> 00:22:22,680
So a one would mean that you achieved that criteria, a zero means that you didn't.

347
00:22:22,680 --> 00:22:28,440
And there's between three and four criteria per skill in the test of gross motor development

348
00:22:28,440 --> 00:22:29,440
three.

349
00:22:29,440 --> 00:22:33,840
And then for the box two, it's whether you can, how many steps can you do out of those

350
00:22:33,840 --> 00:22:34,840
six?

351
00:22:34,840 --> 00:22:39,480
If any, if you get all six, you don't have to do a second trial, but you're given a second

352
00:22:39,480 --> 00:22:40,800
trial if you don't get six.

353
00:22:40,800 --> 00:22:43,480
And then for the beam balance, it's a 10 seconds.

354
00:22:43,480 --> 00:22:48,680
Can you hold that position for 10 seconds without dropping your leg?

355
00:22:48,680 --> 00:22:52,440
So the balance is definitely in terms of percentage mastery.

356
00:22:52,440 --> 00:22:57,880
When we assessed during the doctoral studies, a hundred children with intellectual disabilities,

357
00:22:57,880 --> 00:23:02,800
no percent of them had mastered those skills of balance, which was particularly concerning

358
00:23:02,800 --> 00:23:07,920
because I know in later life for people with intellectual disabilities, the risk of falls

359
00:23:07,920 --> 00:23:10,780
and the prevalence of falls tends to be a lot higher.

360
00:23:10,780 --> 00:23:16,560
So if between the ages of four to 12, if your balance is already quite poor, where does

361
00:23:16,560 --> 00:23:19,020
that leave you as you start to get older?

362
00:23:19,020 --> 00:23:23,000
So it was definitely, that was probably the most surprising thing for me that came out

363
00:23:23,000 --> 00:23:25,680
of the findings.

364
00:23:25,680 --> 00:23:29,040
Does there need to be a familiarization period for the participants?

365
00:23:29,040 --> 00:23:34,920
Like, like, is there some degree of understanding and practicing the tests that would just show

366
00:23:34,920 --> 00:23:41,320
someone or that would lead to improvement, but not necessarily insinuate that they've

367
00:23:41,320 --> 00:23:46,080
globally improved their ability to balance, but just that they got better at that specific

368
00:23:46,080 --> 00:23:48,680
test through practice?

369
00:23:48,680 --> 00:23:49,680
Very possibly.

370
00:23:49,680 --> 00:23:54,280
I think in terms of the assessment batteries that we were using and the reason we selected

371
00:23:54,280 --> 00:24:00,000
those was because they were deemed to be the most appropriate for field use with that particular

372
00:24:00,000 --> 00:24:01,000
population.

373
00:24:01,000 --> 00:24:06,480
I know other studies, like we had found afterwards, that visual support protocol was used with

374
00:24:06,480 --> 00:24:12,440
the tests of gross motor development three back in 2017 with children who had autism.

375
00:24:12,440 --> 00:24:17,000
And they did show that with the visualization pictures and the cards, that the children

376
00:24:17,000 --> 00:24:21,200
performed better in the assessments than without the cards, which is why we introduced them

377
00:24:21,200 --> 00:24:26,120
this time to help with cognitive understanding of what we are asking the children to do.

378
00:24:26,120 --> 00:24:30,720
Because yes, 100 percent that probably, you know, I'd almost say definitely comes into

379
00:24:30,720 --> 00:24:31,720
play.

380
00:24:31,720 --> 00:24:35,200
But in terms of the protocols, the way they stand at the moment, there isn't really a

381
00:24:35,200 --> 00:24:38,680
familiarization period.

382
00:24:38,680 --> 00:24:43,000
And then again, I suppose if you were to add that in, that even further elongates how much

383
00:24:43,000 --> 00:24:46,480
testing time or assessment time is required.

384
00:24:46,480 --> 00:24:52,160
And for the project that we're doing at the moment, we're like under very strict or tight

385
00:24:52,160 --> 00:24:53,160
timeline.

386
00:24:53,160 --> 00:24:58,400
So we were hoping to assess 90 children within a three week period.

387
00:24:58,400 --> 00:25:02,160
And the coaches would deliver an eight week intervention and then we would reassess, you

388
00:25:02,160 --> 00:25:06,440
know, eight weeks later in another three week round.

389
00:25:06,440 --> 00:25:10,400
So it's quite challenging if you were to add a familiarization period.

390
00:25:10,400 --> 00:25:14,600
But I would imagine or hypothesize that it would help.

391
00:25:14,600 --> 00:25:16,880
Yeah, yeah, yeah, absolutely.

392
00:25:16,880 --> 00:25:20,920
Because I just wonder if the first time they're introduced to the test and then they go through

393
00:25:20,920 --> 00:25:26,140
the intervention and then they do the test again, whether improvements are specifically

394
00:25:26,140 --> 00:25:31,040
to the intervention could be attributed specifically to the intervention or to a degree of being

395
00:25:31,040 --> 00:25:33,880
more familiar with the test, being more comfortable with the test.

396
00:25:33,880 --> 00:25:39,040
I think sometimes it's even a struggle to try and encourage children to come up and

397
00:25:39,040 --> 00:25:43,800
do the assessments with us as well, because their session continues on in the background

398
00:25:43,800 --> 00:25:45,560
whilst we're working one on one.

399
00:25:45,560 --> 00:25:50,160
It's like, oh, my coach and my friends are having more fun than what you're doing over

400
00:25:50,160 --> 00:25:51,160
here with me.

401
00:25:51,160 --> 00:25:53,960
So, you know, we did have a few athletes saying, no, that's boring.

402
00:25:53,960 --> 00:25:54,960
I don't want to do it.

403
00:25:54,960 --> 00:25:58,720
And that's them, you know, saying, no, I'm not consenting to take part.

404
00:25:58,720 --> 00:26:02,440
So my fear would be to ask them to do it more than once.

405
00:26:02,440 --> 00:26:07,440
They would probably be like, nope, I want to just do my session the way it is.

406
00:26:07,440 --> 00:26:11,840
Yeah, definitely speaks to motivation.

407
00:26:11,840 --> 00:26:18,440
Like influencing a lot of test results as well to like how engaged they are, how well

408
00:26:18,440 --> 00:26:23,280
they're concentrating on the task versus being distracted by that external stimuli.

409
00:26:23,280 --> 00:26:27,880
Are you able to share kind of what the eight week intervention plans to look like or maybe

410
00:26:27,880 --> 00:26:32,960
how a fitness program that works with young individuals with disabilities could adopt

411
00:26:32,960 --> 00:26:37,960
pieces of this intervention to work on some of these gross motor skills with their clients?

412
00:26:37,960 --> 00:26:44,000
Yes, so when we were designing it, I suppose some key things that we had in mind was repetition.

413
00:26:44,000 --> 00:26:48,920
Number one is really important for this population and the structure.

414
00:26:48,920 --> 00:26:52,520
A lot of the coaches would say to us, you know, the athletes like to follow the same

415
00:26:52,520 --> 00:26:53,520
structure.

416
00:26:53,520 --> 00:26:57,240
They like to know what happens when they enter the session, what's happening next.

417
00:26:57,240 --> 00:27:02,400
And typically how most coaches would end their session is with a parachute game.

418
00:27:02,400 --> 00:27:08,200
So what we did was we made sure that over the eight weeks there was only four warm ups,

419
00:27:08,200 --> 00:27:12,240
activities or games suggested, and they were trying to incorporate, you know, a range of

420
00:27:12,240 --> 00:27:17,320
different fundamental movement skills, mainly locomotor and balance for their warm up.

421
00:27:17,320 --> 00:27:22,320
And then we would repeat the same four for the following, you know, last four weeks of

422
00:27:22,320 --> 00:27:24,400
the eight week program.

423
00:27:24,400 --> 00:27:30,800
We also wanted to try and focus on a range of fundamental movement skills as well, because,

424
00:27:30,800 --> 00:27:34,940
you know, you could just focus, say, on locomotor skills and you're probably guaranteed to see

425
00:27:34,940 --> 00:27:37,440
an increase then over eight weeks.

426
00:27:37,440 --> 00:27:44,280
But because of our findings from the PhD where we were seeing overall low motor skill proficiency

427
00:27:44,280 --> 00:27:48,880
across the different skills, we wanted to try and incorporate as many as possible.

428
00:27:48,880 --> 00:27:53,120
So each week we would focus on two key skills.

429
00:27:53,120 --> 00:27:58,600
We would do like a skill development game or activity where the coach is reinforcing

430
00:27:58,600 --> 00:28:01,240
some of the key coaching or teaching points.

431
00:28:01,240 --> 00:28:05,560
And then we would focus on a game based approach, incorporating that skill then.

432
00:28:05,560 --> 00:28:08,080
And that's kind of the structure of how it would go.

433
00:28:08,080 --> 00:28:12,080
We also have an obstacle course each week as well, because again, you can get a range

434
00:28:12,080 --> 00:28:16,160
of skills in there and, you know, bring in kind of stories as well.

435
00:28:16,160 --> 00:28:21,240
You know, you're at the zoo or you're at the circus and you've to splash in the puddles,

436
00:28:21,240 --> 00:28:25,960
jump over a log, those type of things where you're really engaging the athletes and getting

437
00:28:25,960 --> 00:28:28,320
their imagination working as well.

438
00:28:28,320 --> 00:28:33,480
From your research and your experience out in the field here, what has been the biggest

439
00:28:33,480 --> 00:28:40,240
surprise to you or what has been the thing that has been most unique in terms of maybe

440
00:28:40,240 --> 00:28:46,560
what you hypothesized when you started and then what you realized through data collection?

441
00:28:46,560 --> 00:28:50,440
I think I suppose it does come back to that balance number as well.

442
00:28:50,440 --> 00:28:57,160
So we did compare in previous research, we compared the percentage mastery of balance

443
00:28:57,160 --> 00:29:02,120
for children with intellectual disabilities and typically developing children of the same

444
00:29:02,120 --> 00:29:03,120
age and gender.

445
00:29:03,120 --> 00:29:05,120
So they're age and gender matched.

446
00:29:05,120 --> 00:29:09,080
And the typically developing children, it was 75% mastery in the balance compared to

447
00:29:09,080 --> 00:29:10,080
the 0%.

448
00:29:10,080 --> 00:29:15,120
So that really, really did not only concern me, but we kind of brought it up to the coaches

449
00:29:15,120 --> 00:29:18,040
then and focus groups and said, you know, are you surprised?

450
00:29:18,040 --> 00:29:20,840
What do you think of this 0% mastery?

451
00:29:20,840 --> 00:29:25,080
And they said, well, you never gave us any equipment or you never thought us how to do

452
00:29:25,080 --> 00:29:27,800
balance activities or coach them.

453
00:29:27,800 --> 00:29:31,040
So I think, you know, we were saying, okay, yeah, you are right.

454
00:29:31,040 --> 00:29:37,480
So we needed to look then at our equipment pack and toolkit that we provide to the coaches.

455
00:29:37,480 --> 00:29:41,400
So we've added now a balanced beam, we've added balanced rocks.

456
00:29:41,400 --> 00:29:47,800
And as part of this new intervention, we are giving coaching cues and we had videos recorded

457
00:29:47,800 --> 00:29:52,760
of each of the activities so the coaches could see exactly how they should be demonstrating

458
00:29:52,760 --> 00:29:53,960
each of those as well.

459
00:29:53,960 --> 00:29:58,800
So I think coach education is a really big thing because with Special Olympics, a lot

460
00:29:58,800 --> 00:30:03,800
of the coaches may be family members or they may be parents with no sporting background.

461
00:30:03,800 --> 00:30:07,920
And the reason they set up a club or the reason they show up week on week is because they

462
00:30:07,920 --> 00:30:12,920
want to help and provide something for their child and for other children in the community.

463
00:30:12,920 --> 00:30:16,200
So the education side is definitely really important.

464
00:30:16,200 --> 00:30:21,320
And we've had, we had a coaches training online there last week, just before the intervention

465
00:30:21,320 --> 00:30:22,320
started this week.

466
00:30:22,320 --> 00:30:27,720
And I was a bit nervous because the coaches are very honest, which I love, but they hadn't

467
00:30:27,720 --> 00:30:30,040
seen the session plans yet.

468
00:30:30,040 --> 00:30:33,320
So we talked through each of the plans over the eight weeks.

469
00:30:33,320 --> 00:30:35,720
And then I said, does anybody have any feedback or questions?

470
00:30:35,720 --> 00:30:39,160
And they said, one of the coaches said, yeah, I have something to say.

471
00:30:39,160 --> 00:30:40,540
And I was like, mm hmm.

472
00:30:40,540 --> 00:30:42,040
And she goes, I love it.

473
00:30:42,040 --> 00:30:43,960
You listen to us in the focus groups.

474
00:30:43,960 --> 00:30:46,300
This is exactly what we wanted.

475
00:30:46,300 --> 00:30:48,060
We can't wait to try it.

476
00:30:48,060 --> 00:30:50,040
So that was really, really nice to hear.

477
00:30:50,040 --> 00:30:52,760
And it was a sigh of relief saying, OK, great.

478
00:30:52,760 --> 00:30:54,200
It is what they are looking for.

479
00:30:54,200 --> 00:30:58,720
And we've managed to put down on paper what the coaches needed.

480
00:30:58,720 --> 00:31:02,520
And I had an email from one of the coaches who delivered on Tuesday evening to say it

481
00:31:02,520 --> 00:31:04,360
really helps the other volunteers.

482
00:31:04,360 --> 00:31:08,960
So it meant that not everybody in the room was relying on him because I think that's

483
00:31:08,960 --> 00:31:12,880
one of the things as well that I was seeing out in the field was that if there is only

484
00:31:12,880 --> 00:31:18,800
one lead person who knows the session plan or the activity, if they get distracted because

485
00:31:18,800 --> 00:31:22,840
a child is off maybe doing something that they shouldn't be, then the rest of the session

486
00:31:22,840 --> 00:31:27,960
tends to fall apart because other people can't step in and pick up where that person has

487
00:31:27,960 --> 00:31:28,960
left off.

488
00:31:28,960 --> 00:31:33,040
So everybody, he said he handed the session plan out to everybody and everyone was on

489
00:31:33,040 --> 00:31:34,600
the same page then.

490
00:31:34,600 --> 00:31:38,680
And most importantly, the athletes enjoyed it, which is what we want to be hearing.

491
00:31:38,680 --> 00:31:39,680
So, yeah.

492
00:31:39,680 --> 00:31:40,680
Yeah.

493
00:31:40,680 --> 00:31:46,240
So the focus group of coaches who are providing feedback as to what they believe they need.

494
00:31:46,240 --> 00:31:50,040
You're working with a population that might not be able to always articulate like, I'm

495
00:31:50,040 --> 00:31:52,880
struggling with this or I need to work on that.

496
00:31:52,880 --> 00:31:59,440
Do you guys also leverage parent or caregiver surveys to understand where they perceive

497
00:31:59,440 --> 00:32:03,920
their children are behind in motor skill development?

498
00:32:03,920 --> 00:32:09,720
So we did previously ask a question, how would you rate your child's ability compared to

499
00:32:09,720 --> 00:32:11,520
other children of the same age?

500
00:32:11,520 --> 00:32:16,720
I think a lot of people said in and around the same, but it's interesting that you mentioned

501
00:32:16,720 --> 00:32:21,760
parents because I've just sent out a parent's questionnaire this afternoon.

502
00:32:21,760 --> 00:32:26,680
And what we are assessing now is parents' knowledge and confidence about the topics

503
00:32:26,680 --> 00:32:29,840
of physical literacy and fundamental movement skills.

504
00:32:29,840 --> 00:32:35,480
Because again, we know parents are a big facilitator to children being physically active at a young

505
00:32:35,480 --> 00:32:39,640
age because they're the ones who are putting them in the car and driving them to the sports

506
00:32:39,640 --> 00:32:41,880
hall or venue.

507
00:32:41,880 --> 00:32:47,280
And again, the research would say that more active parents raise active children.

508
00:32:47,280 --> 00:32:50,480
So I think education though is a big part for us.

509
00:32:50,480 --> 00:32:55,320
So it'll be interesting now to see how the parents' knowledge and confidence about these

510
00:32:55,320 --> 00:32:56,680
topic areas are.

511
00:32:56,680 --> 00:33:02,200
And then tomorrow and Sunday, I'm actually out with two clubs, young athletes clubs delivering

512
00:33:02,200 --> 00:33:03,320
parents' workshops.

513
00:33:03,320 --> 00:33:09,080
So we collaborated with the University of Alberta who have a workshop called Play Shop

514
00:33:09,080 --> 00:33:13,880
and they deliver that to parents of preschool children aged three to five years.

515
00:33:13,880 --> 00:33:18,400
And when I came across their work, I said, this sounds like something that we really

516
00:33:18,400 --> 00:33:19,400
need.

517
00:33:19,400 --> 00:33:24,640
So we've been reaching out and linking in with them since September, since we first

518
00:33:24,640 --> 00:33:29,640
had the idea for the project or started applying for ethical approval.

519
00:33:29,640 --> 00:33:32,680
And they've shared their materials with us.

520
00:33:32,680 --> 00:33:36,640
And again, a lot of the games that they're teaching the parents, they can be done at

521
00:33:36,640 --> 00:33:38,640
home with simple enough equipment.

522
00:33:38,640 --> 00:33:43,040
You know, using tea towels or using pillows and things like that.

523
00:33:43,040 --> 00:33:49,160
So we put a little parents pack together for tomorrow with beanbags and ropes.

524
00:33:49,160 --> 00:33:54,160
You know, I call them like snakes for balancing and walking on hula hoops, you know, for on

525
00:33:54,160 --> 00:34:00,320
the floor and jumping into balloons to a small ball for catching a larger one for kicking

526
00:34:00,320 --> 00:34:05,560
plastic cups to use as a target for kicking into or throwing something up.

527
00:34:05,560 --> 00:34:10,600
So the games that the researchers from Play Shop have, I think will be really, really

528
00:34:10,600 --> 00:34:13,720
beneficial for the athletes that we work with.

529
00:34:13,720 --> 00:34:16,360
So the plan is for this intervention.

530
00:34:16,360 --> 00:34:20,980
So three groups are taking part in the eight weeks of session plans.

531
00:34:20,980 --> 00:34:25,280
And then another two groups are doing the eight weeks of session plans plus this parents

532
00:34:25,280 --> 00:34:26,280
workshop.

533
00:34:26,280 --> 00:34:29,860
And then we have our control group who are just doing their typical weekly session.

534
00:34:29,860 --> 00:34:34,600
So the plan will be to see if there's any difference in motor skill proficiency, if

535
00:34:34,600 --> 00:34:38,040
there's improvements and which groups are improving.

536
00:34:38,040 --> 00:34:43,280
Is it the one who are doing the weekly with their coach plus doing twice a week with their

537
00:34:43,280 --> 00:34:46,960
parents like a little game for 10 minutes twice a week?

538
00:34:46,960 --> 00:34:52,520
I think that'll be really interesting to see again with our hypothesis that the more opportunities

539
00:34:52,520 --> 00:34:57,480
you get to learn, practice and reinforce these skills, the better you're going to become

540
00:34:57,480 --> 00:34:58,480
at them.

541
00:34:58,480 --> 00:35:01,480
So yeah, that's the plan.

542
00:35:01,480 --> 00:35:06,620
We try to tie a lot of these episodes into fitness in some ways, so maybe we can try

543
00:35:06,620 --> 00:35:09,320
to make this fitness specific.

544
00:35:09,320 --> 00:35:17,120
So if a gym was working with young individuals with disabilities, intellectual disabilities,

545
00:35:17,120 --> 00:35:22,840
do you have any recommendations, practical recommendations into how they could make a

546
00:35:22,840 --> 00:35:28,640
more robust and enjoyable program for young adults with disabilities, intellectual disabilities

547
00:35:28,640 --> 00:35:29,640
specifically?

548
00:35:29,640 --> 00:35:34,280
Yeah, I think asking your participants, you know, what would you like to do today or what

549
00:35:34,280 --> 00:35:36,080
do you want to focus on?

550
00:35:36,080 --> 00:35:40,560
Because again, people coming into a gym, you know, everybody has different goals and different

551
00:35:40,560 --> 00:35:42,240
interests of why they want to be there.

552
00:35:42,240 --> 00:35:44,000
It might be because I want to get fitter.

553
00:35:44,000 --> 00:35:48,800
It might be because maybe I want to lose a bit of weight or I want to run faster or,

554
00:35:48,800 --> 00:35:49,800
you know, different things.

555
00:35:49,800 --> 00:35:54,920
So I think asking your participants why they're here and what do they want to get out of their

556
00:35:54,920 --> 00:36:00,040
gym, what exercises do they like doing or what are some that they don't really like.

557
00:36:00,040 --> 00:36:02,440
If they don't like them, why don't they like them?

558
00:36:02,440 --> 00:36:08,400
And again, just making sure that I suppose the people gain confidence in their ability

559
00:36:08,400 --> 00:36:14,200
to take part in the exercises as well, because you want them to be able to after they finish

560
00:36:14,200 --> 00:36:18,560
with you, maybe if they're going into another gym, you know, that you're confident in their

561
00:36:18,560 --> 00:36:23,040
ability to be able to safely carry out the exercises as well.

562
00:36:23,040 --> 00:36:29,080
Yeah, and some of the some of the pieces that you were mentioning during the research, like

563
00:36:29,080 --> 00:36:34,640
visual support protocols, things like that might make a better learning experience for

564
00:36:34,640 --> 00:36:36,840
people with disabilities within the gym as well.

565
00:36:36,840 --> 00:36:41,920
So kind of just leveraging, leveraging presenting materials in different ways that you're probably

566
00:36:41,920 --> 00:36:43,840
familiar with universal design.

567
00:36:43,840 --> 00:36:46,400
So yeah, 100%.

568
00:36:46,400 --> 00:36:48,400
I think like a timetable as well.

569
00:36:48,400 --> 00:36:53,120
If it's a class and you know, first we're doing this, then we're doing this and just

570
00:36:53,120 --> 00:36:55,800
to kind of provide that reassurance.

571
00:36:55,800 --> 00:37:00,120
Because I think some people that I've worked with who have autism as well, they really

572
00:37:00,120 --> 00:37:04,560
like structure and they like to know what is happening next and at what time and things

573
00:37:04,560 --> 00:37:05,560
like that.

574
00:37:05,560 --> 00:37:09,960
So even having a visual schedule of the exercises or activities that you're doing could also

575
00:37:09,960 --> 00:37:12,240
be very helpful.

576
00:37:12,240 --> 00:37:17,320
If a gym, if a gym wanted to support more individuals with disabilities, sometimes it

577
00:37:17,320 --> 00:37:22,760
just requires like grassroot efforts of reaching out to organizations that are support, support

578
00:37:22,760 --> 00:37:26,360
those clientele and and learning how you can help them.

579
00:37:26,360 --> 00:37:32,800
How do you think organizations can collaborate with Special Olympics to be kind of a partner

580
00:37:32,800 --> 00:37:33,800
in your mission?

581
00:37:33,800 --> 00:37:38,280
So for example, if you're saying young athletes only meets once a week, if my gym was 10 minutes

582
00:37:38,280 --> 00:37:45,000
away from you, would something like Special Olympics be receptive you think to me offering

583
00:37:45,000 --> 00:37:48,320
additional programs to kind of supplement what you're doing?

584
00:37:48,320 --> 00:37:49,320
Yeah, absolutely.

585
00:37:49,320 --> 00:37:54,400
I think one thing that we're very lucky with in Ireland is that we have a network of local

586
00:37:54,400 --> 00:37:56,800
sports partnerships is what they're called.

587
00:37:56,800 --> 00:38:04,600
So they would be kind of government led groups that each area in the country or not each

588
00:38:04,600 --> 00:38:09,880
area but a lot of the areas would have and they would have a designated person who's

589
00:38:09,880 --> 00:38:14,480
called, sorry, the acronym is SIDO.

590
00:38:14,480 --> 00:38:17,800
They are Sports Inclusion Disability Officers.

591
00:38:17,800 --> 00:38:23,920
So their whole role would be to create opportunities within the local community for people with

592
00:38:23,920 --> 00:38:28,760
disabilities and Special Olympics would really have strong connections and work with them

593
00:38:28,760 --> 00:38:33,360
because again for us, it's just about people getting out there and being active and if

594
00:38:33,360 --> 00:38:37,280
that means, you know, like you said, young athletes is only once a week, we would be

595
00:38:37,280 --> 00:38:43,380
encouraging you to go to other organizations to get active and to get out there because

596
00:38:43,380 --> 00:38:47,600
it will benefit you across your life then and it will benefit you when you come and

597
00:38:47,600 --> 00:38:51,200
take part in the Special Olympics programs or sport and competition as well.

598
00:38:51,200 --> 00:38:57,240
But I think that local sports partnership network is a really big asset that we do have

599
00:38:57,240 --> 00:39:02,360
and that we would be encouraging families, athletes, everyone to tap into because they

600
00:39:02,360 --> 00:39:07,840
run a lot of free programs as well which is really beneficial and it kind of removes that

601
00:39:07,840 --> 00:39:11,840
barrier of cost for people as well.

602
00:39:11,840 --> 00:39:15,880
Can you think of any misconceptions that people have about Special Olympics?

603
00:39:15,880 --> 00:39:20,720
One of the big ones when we speak to students is, oh yeah, the Paralympics would be the

604
00:39:20,720 --> 00:39:26,000
first thing that people say or oh, it's for people who don't have limbs or you know,

605
00:39:26,000 --> 00:39:32,400
like they would be kind of some of the statements that people would make and through my work,

606
00:39:32,400 --> 00:39:36,560
what we've really, really tried to do because I want to encourage as many students to get

607
00:39:36,560 --> 00:39:40,720
involved as possible because I think that's how, like yourself as well, when you just

608
00:39:40,720 --> 00:39:44,320
get started, you get a love for it.

609
00:39:44,320 --> 00:39:49,120
And so we work with the sports science students who are first years in Dublin City University

610
00:39:49,120 --> 00:39:54,520
and we pair them up with local Special Olympics clubs and we get them out for a six to eight

611
00:39:54,520 --> 00:40:01,120
week period in their own time outside of university hours to get that first taste of volunteer

612
00:40:01,120 --> 00:40:06,200
experience and the feedback from them is, oh, I didn't know or I didn't realize how

613
00:40:06,200 --> 00:40:12,440
sporty people with intellectual disabilities could be, I didn't realize how competitive,

614
00:40:12,440 --> 00:40:18,040
how much fun, like crack, you know, all of that type of thing that people would say to

615
00:40:18,040 --> 00:40:19,040
us afterwards.

616
00:40:19,040 --> 00:40:25,560
Yeah, yeah, the shared recreation seems to be one of the best ways to address attitudinal

617
00:40:25,560 --> 00:40:30,320
barriers and expectations or lower expectations that people have.

618
00:40:30,320 --> 00:40:34,040
Because people are nervous, I think sometimes as well, you know, if you've never met someone

619
00:40:34,040 --> 00:40:39,760
with a disability, I think some people are worried they'll say the wrong thing or that

620
00:40:39,760 --> 00:40:41,360
they'll offend somebody as well.

621
00:40:41,360 --> 00:40:46,000
And I think, you know, our advice would be just be yourself, just get out there and,

622
00:40:46,000 --> 00:40:48,880
you know, people are people at the end of the day.

623
00:40:48,880 --> 00:40:53,760
So I think that's one of the big things that we would say to the students.

624
00:40:53,760 --> 00:40:55,120
Absolutely.

625
00:40:55,120 --> 00:41:01,280
What direction do you hope your research or your work goes in in the coming years?

626
00:41:01,280 --> 00:41:03,200
Have I thought about this question?

627
00:41:03,200 --> 00:41:08,920
I definitely think I would love to stay in my research in the area of adaptive physical

628
00:41:08,920 --> 00:41:09,920
activity.

629
00:41:09,920 --> 00:41:14,320
I potentially would like to broaden it out more towards health because from my previous

630
00:41:14,320 --> 00:41:19,320
role as health and wellbeing coordinator, we have seen a lot of health disparities and

631
00:41:19,320 --> 00:41:23,880
we know that people with intellectual disabilities face a lot of health disparities compared

632
00:41:23,880 --> 00:41:25,960
to the general population.

633
00:41:25,960 --> 00:41:31,400
And things like, you know, dying on average 16 to 20 years earlier than the general population,

634
00:41:31,400 --> 00:41:37,360
twice as likely to have cardiovascular disease, twice as likely to get things like arthritis.

635
00:41:37,360 --> 00:41:43,680
And a lot of those things, they're not because of the intellectual disability diagnosis,

636
00:41:43,680 --> 00:41:49,600
but because of things like lack of access to health care or equal access to health care,

637
00:41:49,600 --> 00:41:56,400
lack of accessible health promotion and health education opportunities, those type of things,

638
00:41:56,400 --> 00:42:03,160
health care professional training or lack of, because what we've seen is that again,

639
00:42:03,160 --> 00:42:06,600
what we are trying to do, so not only with sports science students, but with students

640
00:42:06,600 --> 00:42:12,960
with health care backgrounds like audiology, podiatry, ophthalmology, health promotion,

641
00:42:12,960 --> 00:42:18,560
that we work with those students, deliver an inclusive health lecture, teach them about

642
00:42:18,560 --> 00:42:22,800
the health disparities that people with ID face and then give them an opportunity to

643
00:42:22,800 --> 00:42:24,640
take part in a health screening.

644
00:42:24,640 --> 00:42:28,080
So it's called Healthy Athletes is one of our free health screening programs that we've

645
00:42:28,080 --> 00:42:33,040
run and get them to get hands on experience working with the population so that when they

646
00:42:33,040 --> 00:42:37,400
become health care professionals, when they finish university, that they'll be comfortable

647
00:42:37,400 --> 00:42:42,040
and they'll be confident to treat a patient who has an intellectual disability.

648
00:42:42,040 --> 00:42:44,480
So that's another big part of the work that we do.

649
00:42:44,480 --> 00:42:49,360
And again, I know you mentioned there about the health education programs that I've expanded

650
00:42:49,360 --> 00:42:50,960
since I was with the organization.

651
00:42:50,960 --> 00:42:55,400
So we introduced things like breast cancer awareness workshops.

652
00:42:55,400 --> 00:42:56,960
We introduced Health at Play.

653
00:42:56,960 --> 00:42:59,480
So that's health education for the young athletes program.

654
00:42:59,480 --> 00:43:01,040
So age four upwards.

655
00:43:01,040 --> 00:43:05,360
And again, some of the coaches were saying, what, how do you do health education with

656
00:43:05,360 --> 00:43:06,360
four year olds?

657
00:43:06,360 --> 00:43:07,480
And I said, okay, we'll show you.

658
00:43:07,480 --> 00:43:11,680
So a lot of things like a giant clock to talk about sleep.

659
00:43:11,680 --> 00:43:12,960
So what time do we go to bed at?

660
00:43:12,960 --> 00:43:14,240
What time do we wake up at?

661
00:43:14,240 --> 00:43:17,980
A lot of visual props and tools for hydration.

662
00:43:17,980 --> 00:43:23,840
We have our giant toilet bowls with a little, they call them like puddles or pools of urine.

663
00:43:23,840 --> 00:43:25,640
So the different colors of urine.

664
00:43:25,640 --> 00:43:29,680
And you say, which color should it be and what color is it really though?

665
00:43:29,680 --> 00:43:34,000
And when we drink enough water, we know it should be very light yellow and not smelly.

666
00:43:34,000 --> 00:43:37,320
So these are the types of things for the Health at Play with the younger athletes that we

667
00:43:37,320 --> 00:43:42,440
do because again, getting that health knowledge from a younger age and carrying that on through

668
00:43:42,440 --> 00:43:48,920
as you get older, we just hope to kind of intercept early and establish those lifelong

669
00:43:48,920 --> 00:43:52,080
health behaviors from a young age within the program.

670
00:43:52,080 --> 00:43:57,200
And then we've also brought in mental health was a big one as well around COVID with athletes

671
00:43:57,200 --> 00:44:01,600
saying to us, our adult athletes saying that they were experiencing feelings of social

672
00:44:01,600 --> 00:44:04,520
isolation and loneliness and they miss their friends.

673
00:44:04,520 --> 00:44:08,800
They miss their activities that Special Olympics would have provided.

674
00:44:08,800 --> 00:44:13,640
And that again, for athletes who are going the competitive route and selected for a World

675
00:44:13,640 --> 00:44:16,640
Games opportunity, it's a big deal.

676
00:44:16,640 --> 00:44:19,280
And a lot of nerves and anxiety can come with that.

677
00:44:19,280 --> 00:44:24,040
Being away from home for the first time, getting on a plane for the first time, sharing a room

678
00:44:24,040 --> 00:44:27,720
with somebody for the first time who snores or likes the light on and you don't like the

679
00:44:27,720 --> 00:44:29,120
light on.

680
00:44:29,120 --> 00:44:33,640
So our Stronger Minds, Happier Lives program is a five module program that we worked with

681
00:44:33,640 --> 00:44:35,840
Mental Health Ireland on to design that.

682
00:44:35,840 --> 00:44:40,640
And that was co-produced with a team of Special Olympics athletes who are health messengers.

683
00:44:40,640 --> 00:44:44,720
So they've been trained as role models and advocates for their own health, but the health

684
00:44:44,720 --> 00:44:48,280
of all athletes or people with intellectual disabilities.

685
00:44:48,280 --> 00:44:54,120
So that team would speak a lot at different conferences or events and advocate on behalf

686
00:44:54,120 --> 00:44:55,880
of people with ID as well.

687
00:44:55,880 --> 00:45:02,120
So they're just some of the programs that we've created and got up and running to help

688
00:45:02,120 --> 00:45:06,040
try and end some of the health disparities that this group face.

689
00:45:06,040 --> 00:45:09,520
Yeah, you got your hand in a lot of different projects.

690
00:45:09,520 --> 00:45:16,400
You had first mentioned wanting to move from adaptive PA to health globally.

691
00:45:16,400 --> 00:45:19,300
And I was going to ask how you defined health, but it seems like you encompassed it pretty

692
00:45:19,300 --> 00:45:20,300
well there.

693
00:45:20,300 --> 00:45:24,760
So not just physical health, but also emotional health, mental health, et cetera.

694
00:45:24,760 --> 00:45:31,680
I think yesterday actually we were down in a county in Ireland called Limerick because

695
00:45:31,680 --> 00:45:32,680
we have been chosen.

696
00:45:32,680 --> 00:45:37,960
I say we, a team of consultants, which I'm lucky to be part of, all really brilliant

697
00:45:37,960 --> 00:45:44,080
researchers in the field of intellectual disability research and studies came together and put

698
00:45:44,080 --> 00:45:50,200
in a proposal to Special Olympics International when they put out a call to look at and assess

699
00:45:50,200 --> 00:45:53,660
the health care system through a systems level approach.

700
00:45:53,660 --> 00:45:57,240
So we were one of 10 sites selected.

701
00:45:57,240 --> 00:46:02,840
We're the only country in Europe to be selected for this project and this team of researchers

702
00:46:02,840 --> 00:46:07,280
over the next few weeks are going to deep dive into the Irish health care system and

703
00:46:07,280 --> 00:46:12,720
see is it really inclusive and accessible for people with intellectual disabilities.

704
00:46:12,720 --> 00:46:18,280
So I think that's a really great start on starting to look at health for this population

705
00:46:18,280 --> 00:46:21,160
and something that hasn't been done previously.

706
00:46:21,160 --> 00:46:26,200
Yeah, that'll be really interesting to see the results of that.

707
00:46:26,200 --> 00:46:30,920
Is that through, what organization is that through just if people want to kind of be

708
00:46:30,920 --> 00:46:31,920
attuned to the results?

709
00:46:31,920 --> 00:46:36,360
So Special Olympics International have partnered with the Missing Billion Initiative and they

710
00:46:36,360 --> 00:46:44,480
created a separate IDD module that is added on to the Missing Billion criteria and that's

711
00:46:44,480 --> 00:46:49,840
basically the assessment tool that we'll be using to determine whether the health care

712
00:46:49,840 --> 00:46:53,000
system is inclusive for people with ID or not.

713
00:46:53,000 --> 00:46:57,920
I think some of the other, there's three states in the US that are involved in the project

714
00:46:57,920 --> 00:46:58,920
as well.

715
00:46:58,920 --> 00:47:04,520
I think Wisconsin was one of them and there's another two on the map that they've shared.

716
00:47:04,520 --> 00:47:06,960
I think places like India and things.

717
00:47:06,960 --> 00:47:11,680
But we're the only, Ireland was the only European country selected to be part of this project.

718
00:47:11,680 --> 00:47:13,680
So we're very grateful for that.

719
00:47:13,680 --> 00:47:15,040
Yeah, absolutely.

720
00:47:15,040 --> 00:47:16,760
That's awesome.

721
00:47:16,760 --> 00:47:21,000
If people want to learn more about the work that you're doing, we can include it in the

722
00:47:21,000 --> 00:47:26,840
show notes of course, but where would you direct them to go or what resources would

723
00:47:26,840 --> 00:47:28,200
you share?

724
00:47:28,200 --> 00:47:33,500
So our social media is Special Olympics Ireland social media pages.

725
00:47:33,500 --> 00:47:38,400
We have Instagram and Facebook and I suppose about Special Olympics in general, Special

726
00:47:38,400 --> 00:47:45,520
Olympics.org for internationally to see where, if you want to volunteer or what are the sports

727
00:47:45,520 --> 00:47:48,360
that we deliver and run and things like that and to see.

728
00:47:48,360 --> 00:47:52,080
There's over 170 countries involved with Special Olympics.

729
00:47:52,080 --> 00:47:55,760
So no matter where you are around the world, I'm sure you'd be able to find a club if you

730
00:47:55,760 --> 00:47:57,680
wanted to volunteer.

731
00:47:57,680 --> 00:47:59,480
And then my LinkedIn, I love LinkedIn.

732
00:47:59,480 --> 00:48:04,040
I love posting updates and things like that and sharing work and projects that's happening.

733
00:48:04,040 --> 00:48:09,200
So happy for people to connect with me on LinkedIn under Hayley Cappna.

734
00:48:09,200 --> 00:48:13,480
Yeah, if you hadn't mentioned that I was going to say LinkedIn, because that was the first

735
00:48:13,480 --> 00:48:18,200
way I was introduced to your work was just through finding one of the research papers

736
00:48:18,200 --> 00:48:23,000
that you shared and you're always posting a lot of good resources and even preparing

737
00:48:23,000 --> 00:48:24,000
for this.

738
00:48:24,000 --> 00:48:28,240
I was mostly just able to read through your LinkedIn feed and learned a lot about the

739
00:48:28,240 --> 00:48:30,200
work that you were doing, which is rare.

740
00:48:30,200 --> 00:48:36,680
Not everyone shares things openly on LinkedIn for their work, but I think it's awesome.

741
00:48:36,680 --> 00:48:39,280
It's supposed to be a professional network.

742
00:48:39,280 --> 00:48:40,720
So it's the perfect place for that.

743
00:48:40,720 --> 00:48:47,000
So we'll include your LinkedIn page in the show notes as well as well as Special Olympic

744
00:48:47,000 --> 00:48:48,120
Ireland pages.

745
00:48:48,120 --> 00:48:51,520
But Hayley, it was great to learn more about what you're doing.

746
00:48:51,520 --> 00:48:57,200
I really both appreciate it and value it greatly.

747
00:48:57,200 --> 00:49:01,320
So again, we'll share those things so people can connect with you if they're interested

748
00:49:01,320 --> 00:49:03,520
in learning more.

749
00:49:03,520 --> 00:49:08,440
Maybe if someone wants to start a young athletes program, they can learn from the model that

750
00:49:08,440 --> 00:49:11,680
you guys have created.

751
00:49:11,680 --> 00:49:15,640
And yeah, I appreciate your time and look forward to sharing this with our audience.

752
00:49:15,640 --> 00:49:16,640
Thank you so much.

753
00:49:16,640 --> 00:49:17,640
It was great being here.

754
00:49:17,640 --> 00:49:20,480
Thank you for listening to the AdaptX Podcast.

755
00:49:20,480 --> 00:49:24,360
Our effort to amplify the ideas of our guests and create more inclusive and accessible industries

756
00:49:24,360 --> 00:49:27,460
is futile unless these episodes reach a larger audience.

757
00:49:27,460 --> 00:49:31,320
If you enjoyed our discussion today, please leave us a rating or review on whichever platform

758
00:49:31,320 --> 00:49:32,320
you use.

759
00:49:32,320 --> 00:49:35,360
And if you would like to learn more about AdaptX, the course that we teach to health

760
00:49:35,360 --> 00:49:39,200
and fitness professionals and the projects that our organization is working on, you can

761
00:49:39,200 --> 00:49:43,600
subscribe to our newsletter through our website, www.adaptex.org.

762
00:49:43,600 --> 00:49:47,760
Until next Monday.

