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Welcome to the NICU Dad podcast, a podcast for NICU

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Dads by NICU Dads. I'm Alex Zavala, a father to two preemie

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girls, Mia who was born at 30 weeks, and Emerson who was born

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at 27 weeks. Combined my wife Jenn and I both spent over 100

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days in the NICU. After my last NICU experience, I started The

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NICU Dad. I did this to try and fill the gap in information

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and support that was lacking for NICU Dads. Be sure and check

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out thenicudadad.com and hopefully, you will find it a

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useful resource. In this podcast, we will cover many

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topics that NICU parents face but from the NICU Dad's

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perspective. Topics such as premature birth, bereavement,

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PTSD, and many others. These dads who you'll hear share their

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stories in hope of letting other NICU dads know they are not

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alone.

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Welcome to Episode One of The NICU Dad podcast. In this

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episode, I'm interviewed by Hand to Hold's very own Kelli Kelley.

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This was also our very first episode for the NICU Dad

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Discussions podcast we did. In this episode, I share my NICU

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story. I hope you enjoy it.

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I am so excited, Alex, to have you on our first podcast

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specifically for dads and just so excited to talk to you today

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and hear your NICU story.

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Thanks for having me. I'm very excited about all of this and

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just hopefully excited to see what we can do for NICU

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families but also mainly NICU dads.

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Well, those dads are often overlooked, you know, and I want

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to share with our audience. If you don't know Alex, Alex is

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THE NICU Dad. And as we mentioned in his introduction

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has a wonderful blog for dads and is very active in the

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NICU community and his daughter's hospital but in our

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community and does a lot of work does a lot of good for our

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NICU graduate families. But you're not a small little guy,

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are you Alex? You're a big guy, got a full beard. I mean, you

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are a handsome man and you know, one that you wouldn't think

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would shed a tear you just are a tough tough looking guy with

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some tattoos going. But as we've discussed, as we've gotten to

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know each other, we've done all that falls away when you have a

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traumatic birth and a baby in the NICU and dads are very

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vulnerable. But we don't always talk about it. We just you know,

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we kind of, the dad takes on the tough guy role in the NICU

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because he's got to take care of himself and his wife and the

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baby and there's just a lot going on. But I'm so glad that

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you're going to offer this space for dad discussions, real NICU

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dad discussions about what it's really like in the NICU

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and to start, I just really want you to start from the beginning,

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tell us how did you become a NICU dad? What do you remember

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about that day?

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Well, for us, and once again, I mean, thank you guys so much for

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doing this and just everything you do for the NICU

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community. So for us, both of both of our daughters are born

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premature. Our oldest, my stepdaughter was born at 30

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weeks, and she weighed three pounds, six ounces. And our

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youngest was born at 27 weeks. And she weighed two pounds, five

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ounces. With her, that was my NICU journey. And that's

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really where I became a NICU dad was with our youngest. So

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with this pregnancy, pregnancy being high-risk, as soon as we

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found out we were pregnant, and we were seeing a bunch of doctors.

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We always joke now about how we had more pictures of our baby

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before she was even born than after, just because we're getting

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so many sonogram pictures and ultrasounds and stuff like that.

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Just constantly checking up and making sure that she wasn't born

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early. And we did shots, which was quite an ordeal if anybody's

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ever had to do that. I was having to administer shots to my

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wife, I think weekly. And that was a complete, it was a giant

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nightmare within itself just doing that, and all the

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difficulties that come with that. But everything was going

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okay with the pregnancy. Everything was fine. And about

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at 27 weeks, we just went into 27 weeks, they administered a

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test that they do at 27 weeks, they do this test and it tests

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the proteins in the mother. And pretty much if the test comes

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back positive, you're likely to deliver within the next two

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weeks. And we took our test and it came back negative. It was on

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a Thursday. Never forget this. It was on a Thursday test came

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back negative. And the doctor said, Hey, you know what you guys got a

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two-week window, go and travel, you know, do whatever you you

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need to do to, you know, to take care of, because after this next,

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you know, after this two-week period, you know, things

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are going to be touchy or, you know, we're gonna have to be

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more sensitive to everything. And that was a Thursday. So that

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Monday morning was the first day of summer for our oldest, we had

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planned on spending our first day of summer swimming and

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everything, I was going to go to work for a little while. And my

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wife went to work that morning, we had gone the day before to

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one of the stores to register for our baby shower, you know,

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something you do about that time, going into 27 weeks, it

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was something we were going to plan for. So the day before that

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evening, we had spent shopping around looking at things and

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registering for our baby shower that we were planning on having,

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you know, a few weeks down the line. But that next morning,

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that Monday morning, my wife went to work, and I dropped off our

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oldest at my mom's house, at her grandmother's house. And I went

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to work also just for a little while, I was just going to go

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for an hour or two and then come back and we're going to spend our

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first day of summer together. So around 9 am, I'm at work,

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probably about 45 minutes from where we live. And around 9 am, I

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get a call, I get a phone call. And it's my wife. And I can't

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understand anything she's saying. She's just crying and

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crying and crying. And she finally, I can finally understand

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that she's telling me that her water broke. So we're just kind

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of in shock. You know, she's 27 weeks pregnant. I'm thinking

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the worst. She says her water broke, she doesn't know what to

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do. She's at work, they're calling an ambulance. And the

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phone goes dead. And her boss calls me back and her boss is a

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friend of the family. And she tells me that her water broke,

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they're calling an ambulance and they're taking her to the

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hospital. And that's all they tell me really. So I'm sitting

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there with this news. And like I said, I'm thinking the worst.

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27 weeks, I never had before that I didn't. The survival rate

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that I thought for 27 weeks was zero. Pretty much when she told

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me her water broke, I thought we lost our baby. And so I jumped

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in my truck. And that 45 minute ride to the hospital was made in

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about 10 minutes. I'm sure other NICU dads have made that car

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ride. And it's like nothing else. There's a lot of promises.

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It's still so painful to talk about, you know? Yeah. Well,

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yeah.

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After all this time, you can just hear the pain in your voice

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and it's like you're back there, right? You're just back there.

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Yeah, absolutely. Absolutely.

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Making that drive. It plays like a movie in your head.

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Yeah, every time. Every time. It's been five years and I'm

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never going to forget that car ride. There were so many

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promises. There were so many. I swear I'm never going to do this

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again. I swear I'm going to start doing this and just please,

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please, please. And just begging and pleading, you know, with

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whether you believe in God or a higher power or anything. I mean,

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you're just holding on to hope on that ride. And, you know, it

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plays like a movie now. It played like a movie then. It was

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kind of an out of body experience. I mean, everything

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was just so surreal. Just like in the movies, you know, it was

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the truck pulling in to a screeching halt in a parking lot

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and a dad running into a hospital and starting, you know,

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just like in the movies. I ran in there and I'm like, where's

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the maternity ward? My wife, they brought my wife in in an

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ambulance and she's having a baby and where do I go? Where do

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I go? And, you know, somebody pointing to me down this hall

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and running in there and the movie didn't stop. The movie

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didn't stop. I ran into the room and I opened that door and it

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was just another scene from a movie. It was my wife on a bed

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surrounded by a team of doctors and there's her boss and every,

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you know, she has this look of fright. She was so scared and

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she's crying and, you know, her boss is crying and I'm walking

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in and we don't know anything. We don't know anything other

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than the baby, you know, we're just trying to save the baby's

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life and the doctors were trying to slow down everything to make

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sure she didn't go into labor. And we just kind of look at each

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other and we're crying and holding hands and, you know, and

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I'm telling her I'm sorry.

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And why were you apologizing? Do you remember? Like what were

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you? Yeah, I was just, you know, like nothing had changed for me

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as far as still thinking that we were, our baby was done, you

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know, and I was just telling her I'm sorry for all this

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happening. And, you know, I don't know if it's the months

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before where you're trying, you know, being a high risk

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pregnancy, you know, and all the stuff you go through, you know,

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to have it, to have everything happen like that. You know, I

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don't know if it makes it worse because you were so careful.

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You were so, you know, you were already stressed. And then, you

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know, to see it happen like that, I don't know if it was just,

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you know, I imagine it's probably still the same, but it

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was still so hard. And we went and just like everything else,

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like I said, you know, I know we're just another story in this

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book of NICU families that goes through the same thing. Before

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we could even real or even, you know, grasp what was happening,

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we find out that the baby's breech and they're going to have

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to do an emergency C-section. And, you know, I'm trying to get

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information from the doctors and, you know, I'm trying to tell

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them, you know, like what do you mean, what's going on? And just

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as quickly as, you know, here we are, baby's coming and we're

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taking the mom out. And, you know, so this is all happening

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only in a matter of minutes. And they whisk her out and they tell

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me, you know, they take me back to go and get scrubbed up for

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surgery. And I barely have enough time to shoot a couple of text

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messages to, you know, my parents, you know, her sister, just

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to let other people know kind of what's going on because nobody

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knows what's going on. And they take me back. I get scrubbed in,

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get my, you know, everything ready for surgery. And there's a

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lot of alone time for a NICU dad, or at least there was for me.

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And so you're, it's a very, very lonely, scary place. And it's

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humbling, it's everything. You know, the emotions, I mean, I guess

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that's why it's still hard to talk about today. Just because of

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the different scenarios and situations that you're dealing

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with are things that you wouldn't want to wish on your worst enemy.

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You know, when they take her into surgery, you're not worried for

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both. And of course, that's not going to change. That's going to

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be your next, you know, the rest of your NICU experience is going

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to be you worrying about more than one person. I had a moment

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where the doctor was walking by and, you know, he got me ready.

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And before he left, you know, I'm asking him, pleading with him

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to just take care of my wife and my baby, just, you know, just to

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make sure that they both survive, because that's what you're going

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into. You don't know what's going to happen. You know, you don't

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know if you're going to lose one or both or, you know, or how this

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is actually going to end. And we get into the operating room and

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they do the C-section and that, we have that experience and, you

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know, I'm sure like everybody else, they, I'll never forget

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them taking my daughter out and saying, you know, oh, it's a girl

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and not hearing anything. Dead silence. And that silence seemed

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to last forever. And it was just, it almost was so long where it

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confirmed my suspicion, you know, or confirmed my thoughts just

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because they, you know, they tell you, oh, it's a girl and they

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take her and just silence. There's no baby crying. And it seemed

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like that little, however many minutes was a lifetime. And then,

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thank God, I hear her cry. And I know, I hear a lot of other dads

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talk about that, about how long that really seems before you hear

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that cry. Sometimes when they take a baby out in the C-section.

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And from there, it was a team of doctors working on my daughter

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and seeing how little she was and what she looked like. It just,

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it seemed unreal. And then my focus went back on my wife.

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Unreal that she could live. Just, she didn't.

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Yeah. Yeah. And there was still, there was still, you know, with

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her being so small and, you know, the whole experience, it was

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just, she can't be okay. You know, you're just hoping and praying

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that, you know, let everything be okay. But just let her make it.

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And you see her and she's so fragile and just so tiny. But then,

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you know, there's a team of doctors around her and working on her.

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And then my focus goes to my wife and she was losing a lot of blood.

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She was really, you know, kind of going in and out of it.

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And so, I mean, that was my concern next was, you know, is she going

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to be okay? You know, it was just, it's supposed to be one of the

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most happiest points of your life, the birth of your child.

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And I don't want to say it was a nightmare, but it's the two mixed together.

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Right. You know, it's a nightmare that you're in, but at the same

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time, if everything comes out okay, it's one of the greatest days of

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your life. So they got Jen, my wife, taken care of and she started

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doing better. And they took our daughter, Emerson, back into the NICU

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and they took Jen to recovery. And so they asked me to go if I wanted to

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see my daughter in the NICU. And I said, absolutely. They had already

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taken Jen to recovery. So I go back there and I see her. And as crazy

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as it sounds, I knew immediately she was going to be okay.

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You could just, she was such a fighter. And you could just see it.

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You could tell. I could tell. And I took a picture of our hands touching.

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And that tiny little hand grabbing my finger, her hand was about as big

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as the tip of my finger and about as big as the nail on your thumb.

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And, but I just knew immediately she was going to be okay. Just, she had

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so much fight. And I'm in here taking pictures of her and talking to her

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and just trying to spend that time with my baby. But then, you know,

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then the guilt, not a lot of NICU dads have, starts coming in. My wife

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hasn't even seen our daughter. She doesn't know what she looks like.

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She doesn't know anything about her. And, you know, the dorm is a baby's

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born and handed to the mom. You know, that's what you see. That's what's

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supposed to happen. And that doesn't happen for NICU moms a lot of times.

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So I tried to take a bunch of pictures and then I left her, as hard as that

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was, to go see my wife. And, you know, I'm kind of showing her pictures

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and she's still trying to come back to normal, you know, after surgery.

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And that, you know, that's the NICU shuffle for dads. You know, that started

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for me of who do I need to be with, where do I need to be, and what do I do?

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I mean, it's so hard to describe all the emotions and feelings that happen

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at this one time. Because you're responsible for everybody. You're fine,

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even though inside you were freaking out and breaking and trying everything

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you can to hold it together. Because you're also talking to doctors.

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You know, you're trying to be at two places that weren't and trying to take

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care of 100 things all at the same time. And so they told me, because Emerson

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was so small, the NICU there couldn't handle her. So she had to be

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transported to another hospital.

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Oh, that's so scary. I know so many of our families are in that situation,

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unfortunately. And then it often means the babies are separated from their

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moms, right?

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Yeah, exactly.

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So this NICU shuffle you just talked about becomes, I don't even know the

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right word. It's more than shuffle.

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Yeah, it's definitely, and it's so common, especially for those reasons.

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We went and they transported her to Dell Children's Hospital in Austin,

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which once again was probably about 30, 45 minutes away from where we lived.

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And they asked me if I wanted to follow the ambulance to the hospital.

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And I couldn't believe it as I was saying it, but when they asked, I said

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maybe. And everything in me was telling me to say yes. But on the other end,

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I had my wife in the hospital. And let us not forget, our oldest is still

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at grandma's house. And I'm barely able to kind of text people to give updates.

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So I'm trying to figure out what's going on. And just to give you a timeframe

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on how fast all this happened, that phone call came at 9 a.m. in the morning

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that Monday. The baby was born around noon. So everything happened just in a

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matter of three hours or so. And so they took her, and I mean, this is another

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thing about moms and what they deal with. They were taking, they were

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transporting our daughter in an oscillet that was ready for transport,

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which basically is like an incubator that's completely covered. You can't even

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see the baby in there, just barely. And they were wheeling her out. They stopped

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her. They stopped right by my wife and I. And we took a picture. And that

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picture, I know we don't think about it a lot, but it's so haunting just of the

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NICU experience in the beginning. And what we go through, that was our baby

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picture. Like that was our first family photo. And that was the only glimpse

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that my wife had of our daughter. And it's just, it's so wrong, you know,

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and unfair for it to be that way for NICU families and moms and dads. You know,

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you're robbed us so much. But they took her and took her to the hospital. I made

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sure that everything was set up for my wife and what she needed. And I left

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there, went home. The whole time afterwards, I was like, I need a shower.

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You know, I need to, you know, figure out what makes her my daughter. Are our

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other daughters okay? And she has dinner. And that started the bigger NICU

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journey and the bigger NICU shuffle of dads that have a wife in one hospital, a

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baby in one. And then you still have siblings and pets and work and

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everything else in another area. And it's always where are you going to go? Who

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needs you the most? And what do you do? And I remember I left the hospital. My

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wife's sister had come in and, you know, that helped us huge. You know, that was

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just so huge for us. Because she got to stay with her while she healed in the

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hospital. And I ran home, packed up our dog and some clothes for my daughter,

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went to my parents' house, visited with her for maybe an hour or so, made sure

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she was taken care of. And then I drove to the hospital. And I spent the night

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there. And that, you know, just kind of had that whole experience, which was

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something I'll never forget also. I mean, walking in and seeing your baby in the

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NICU with all the tubes and wires and everything all over them, it was, I

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don't know, it's indescribable. The picture I get in my head, I am a big guy.

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I'm probably about 6 foot, weigh about 300 pounds. And the nurse that was in

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there the first time that I saw our daughter, she's now a friend of our family

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and everything. She's part of our family, which most of your NICU staff becomes.

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But she's a very small person. She's probably about 5 foot or so. And I'll

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never forget this. We joke about it now. But the first time that I walked in and

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she pulled the cover back, I lost it. You know, just seeing how frail and how

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small and just that whole image of her with all the wires and just, you know,

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not looking like a normal baby that you see that's delivered. It was just, I

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don't want to use the word horrific, but sometimes it is. You know, and your baby

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doesn't look like a normal baby. And it's just, it's so scary. So scary.

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And I think you're trying to be brave, right? I think for moms, I don't want to

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be sexist in any way, but I think for women and showing our emotions and breaking

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down in sobs, but I think for dads, they feel, I don't know, a little more reserved

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that they can't show. Oh, absolutely. There's a machismo there that we're not

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supposed to cry. And I tell everybody this. I never cried before this. Before our

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daughter was born, I was not a crier. You know, and that's how I was brought up.

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But from that day forward, I mean, especially when I talk about this, and that's

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why you get what you get, but you know, seeing her that way, and I don't know if

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it was the total of all the day's events or so, but I just couldn't compose

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myself anymore, and I just lost it. And like I said, here I am, this big guy with

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this tiny woman just rubbing my back telling me it's going to be okay.

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Thank God for those nurses. You know, they've seen a lot of dads before you, and

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they understand. They really do understand. So walk me through. So now, how long

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did Jen have to stay in the other hospital before she was discharged?

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Well, you know, hats off to my wife. She's a very determined woman. They almost

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let her out and discharged her the next day, almost. But she, I mean, physically,

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she just couldn't do it. She ended up staying in the hospital, I think, for two

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nights, and then was released. But she couldn't walk. You know, she was still

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healing, but there's no keeping, you know, a mom away from her baby. So luckily

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and thankfully at the hospital that we're at, they had, in the NICU, they had

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these sleep rooms, and we were fortunate enough to get them pretty much every

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night for almost a week. And that was just an adventure within itself. We would

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go and we would spend the night there and sleep there, which was great because I

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was wheeling her around in a wheelchair. And she would pump in there, and it was

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just such a great experience. But we would also have to pack up our stuff and

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see if we were going to get it the next night. But fortunately, like I said, we

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were able to have that for a whole week. And that week, my wife was able to heal.

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And she got to the point where she could walk around and everything. But, you

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know, and we had our baby just right down the hall, which was huge for us. Our

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NICU stay with Emerson was for 67 days. And we ran into a bunch of some of the

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same issues that other NICU families do, maternity leave, how are you going to

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manage that. You know, you don't know how long your NICU stay is going to be, but

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sometimes you have an idea, especially with the preening. You know you're not

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getting out, you know, in four weeks or so until that baby gets older and bigger.

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And so those are some of the things that we had to deal with. We were very set on

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trying to be as involved as we could be. And so it was very important for us to

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be there for the doctors, for our daughter, as much as we could in the NICU,

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for rounds and things like that. We were just, we were trying to soak up as much

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information as we could. You know, that's some advice that I offer to anybody in

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the NICU experience, you know, as much as you can try, you know, to be involved.

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We think it was something that really helped our daughter and helped her thrive.

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But I'm a small business owner here in Austin, Texas. And so I was fortunate

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enough to be able to change my schedule a little bit. And even my wife at work,

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they kind of changed her schedule also. But you know, she was pumping and doing

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things like that. So it was a shuffle. And it was a huge shuffle. And so if she was

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at work, I was there first thing in the morning. I'd drop, you know, I'd go check

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on her daughter or drop her off at my parents' house or what have you. And then

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I would go straight to the hospital. And my wife would usually go to work and then

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she would come, you know, like around 2 in the afternoon. And when she did,

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I would go to work. And afterwards when I was done, I'd come back and meet her

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and we'd be there in the NICU for the rest of the afternoon and the evening.

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Then have the grueling task of trying to leave the NICU, you know, every night.

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But that was pretty much life for us, was doing that shuffle and trying to still

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take care of everything at home also.

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Well, talk to me a little bit about your feelings during that time. I think, you

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know, you've gotten your footing there in the NICU. And I assume knowing you,

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you were taking care of Emerson as far as being involved in her care. So talk to

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me a little bit about what does it feel like being a dad in the NICU?

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It was, I think, the first week. Definitely the first two days are the most important

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and the hardest for a NICU dad. You know, those first two days, you don't know

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what's going on. And even with the NICU dads that I talk to now, I see it all the

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time. And that's, you almost become a zombie those first two days because you're

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not sleeping. You know, a lot of times these things, like I said, happen so fast.

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It was three hours between the time I got the phone call and our daughter was

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born. And just, you're trying to take care of everything. You're exhausted,

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completely exhausted. And then you have the emotions and the stresses of trying

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to take care of your family, your wife, your baby. I don't think a lot of times

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we have the time to deal with our emotions. I mean, you just kind of swallow

379
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hard and put all that stuff down. And you try to just push through. And physically,

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I think that might be what we have to do to make it through those first two days.

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And that first week is tough too because you've done that the first two days and

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now you have the rest. It catches up to you by the end of that first week. And

383
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just dealing with the emotions and shoving them down, they come back up too.

384
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There's a lot of cries in the shower. There's a lot of just breakdowns and

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stresses, arguments that you have out of nowhere. But it's every emotion.

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I mean, it's so hard to describe and it is so traumatic. And that's why a lot of

387
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NICU dads deal with PTSD and deal with these things just because of that.

388
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And I really, I think after that first week and second week, a lot of things,

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I don't want to say you get your groove, but you're kind of more familiar with

390
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everything and kind of also are able to process the emotions and what's

391
00:37:22,240 --> 00:37:27,240
happening a little easier than you did because a lot of times we're not dealing

392
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with that stuff anymore. So it's foreign to you. I'm not an emotional guy.

393
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So the things that I was feeling or dealing with that first week, I'm familiar

394
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with them. You're in such a vulnerable place. And I think like most men, we're

395
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not used to being there. I know for me that was a real unfamiliar place and that

396
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was a big deal.

397
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Well, what best advice do you have for dads while they're in the NICU? How do

398
00:38:07,240 --> 00:38:15,240
you, not just survive, but are there tips for actually thriving in the NICU?

399
00:38:15,240 --> 00:38:18,240
What's your best advice?

400
00:38:18,240 --> 00:38:29,240
My best advice? My best advice would be just to kind of, as best as you can,

401
00:38:29,240 --> 00:38:38,240
take it day by day. I always tell people now that a NICU journey or NICU stay is

402
00:38:38,240 --> 00:38:46,240
a marathon. It's not a sprint. And in that also, I think you have to face

403
00:38:46,240 --> 00:38:53,240
reality. I was in denial and maybe most dads get that way too. I was in for the

404
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short-term NICU stay. My baby's getting out of here. She's going to beat all the

405
00:38:59,240 --> 00:39:05,240
odds and we're going to get out of here as fast as we can. And it just, at some

406
00:39:05,240 --> 00:39:10,240
point, reality needs to set in and you need to prepare yourself that you're not

407
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leaving there in a couple of days. It's going to be however long it needs to be.

408
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And you need to prepare yourself for that marathon, whether physically,

409
00:39:21,240 --> 00:39:28,240
mentally, emotionally. Everyone is counting on you. And that's a NICU dad.

410
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Your wife has to heal so she can help take care of the baby. Your family is

411
00:39:33,240 --> 00:39:38,240
depending on you. The other siblings are depending on you because you're still

412
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dads. You still have to go to work. We still need to pay for these astronomical

413
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medical bills that are about to hit you. Your wife needs you to help her and

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make sure she's taken care of so she can help take care of the baby also. And

415
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it is what it is. But it's so important that you understand that role and that

416
00:40:00,240 --> 00:40:05,240
you do everything that you can to help get yourself ready for that marathon. And

417
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I think those types of things and however it's going to take you to prepare for

418
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that. And I think finding somebody to talk to, especially after, even initially,

419
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I think that makes a big difference. And that's what's going to set you up to be

420
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a more successful NICU dad, which is going to help your whole family. And I

421
00:40:26,240 --> 00:40:30,240
think it's so important to talk to somebody. And that goes for even after the

422
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NICU. I mean, just because now we're seeing so much. It's so stressful. And the

423
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things that we encounter and deal with on a daily basis during that NICU stay,

424
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you're going to carry those. You're going to carry those for a long time. I mean,

425
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I obviously can't talk about it without crying. And I'm five years later. And so

426
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I think another discussion later on needs to be about sharing your story and

427
00:40:54,240 --> 00:40:59,240
talking to somebody. But the best advice for a NICU stay, I think, is just

428
00:40:59,240 --> 00:41:04,240
getting yourself prepared for that marathon, dealing with the reality of the

429
00:41:04,240 --> 00:41:10,240
situation that you're in and knowing that it's not going to shorten and sweet.

430
00:41:10,240 --> 00:41:15,240
And if it is, great. But prepare yourself for that long haul.

431
00:41:15,240 --> 00:41:20,240
I think that's great advice. And did you ever seek any professional counseling

432
00:41:20,240 --> 00:41:26,240
or reach out to a peer mentor or a friend? How did you cope?

433
00:41:26,240 --> 00:41:36,240
I didn't. And I think now being involved in what I am and doing what I do have

434
00:41:36,240 --> 00:41:43,240
my eyes been opened onto some of the things that I deal with now. I see the

435
00:41:43,240 --> 00:41:49,240
benefits of talking to someone. And even if not professional, just talking to

436
00:41:49,240 --> 00:41:53,240
someone. I mean, every time I share my story or talk about this, it feels like a

437
00:41:53,240 --> 00:41:59,240
weight has been lifted off my shoulders. I didn't realize it. And we get in this

438
00:41:59,240 --> 00:42:05,240
primal, just, you know, free of flight mode. And you go straight to fight. And

439
00:42:05,240 --> 00:42:12,240
it's in our DNA. It's in our everything. As a dad, you're the protector. And you

440
00:42:12,240 --> 00:42:18,240
go straight to fight. And you're fighting through this whole NICU journey. And

441
00:42:18,240 --> 00:42:21,240
you're fighting for your family. You're fighting for yourself. I mean, it's

442
00:42:21,240 --> 00:42:27,240
just, it's a primal thing that's inside of us. And so a lot of times you don't

443
00:42:27,240 --> 00:42:32,240
acknowledge what you're going through. You just keep pushing through. And then

444
00:42:32,240 --> 00:42:35,240
once you get home and everything gets back to normal and your baby gets better,

445
00:42:35,240 --> 00:42:41,240
you never open that back up until you're willing to do that and share your story.

446
00:42:41,240 --> 00:42:45,240
And that's when it opens. And if not, that never gets dealt with.

447
00:42:45,240 --> 00:42:50,240
I think that's great. Great advice as well. So touch me a little bit about what

448
00:42:50,240 --> 00:42:57,240
made you start your NICU Dad blog? How long before, how long after your NICU

449
00:42:57,240 --> 00:43:00,240
journey did you start that blog?

450
00:43:00,240 --> 00:43:07,240
It took a few years. It really, I started it last year. We basically incubated at

451
00:43:07,240 --> 00:43:11,240
home for about a year after our daughter came home. And for us, we were just,

452
00:43:11,240 --> 00:43:14,240
we're going to do whatever it takes to not have her ever go back to the

453
00:43:14,240 --> 00:43:20,240
hospital. So we, you know, we were germaphobes, everything. During that time,

454
00:43:20,240 --> 00:43:23,240
during that course of that year, we started looking at all the organizations

455
00:43:23,240 --> 00:43:28,240
that helped us and we saw all the support we got in the NICU. We just wanted to

456
00:43:28,240 --> 00:43:33,240
give back. Our NICU staff was just so incredible and they all became a second

457
00:43:33,240 --> 00:43:37,240
family for us. I mean, you're in there for 67 days. You're seeing these people

458
00:43:37,240 --> 00:43:41,240
every day. They're taking care of your baby. They're sharing all those special

459
00:43:41,240 --> 00:43:45,240
moments for us. So we just had such a strong connection that we wanted to give

460
00:43:45,240 --> 00:43:50,240
back. So we actually started doing things for our NICU. You know, we would bring

461
00:43:50,240 --> 00:43:54,240
up donations. We would have cupcakes for the NICU staff during the holidays. And

462
00:43:54,240 --> 00:43:59,240
we just got very involved in our NICU. Through there, we did that, like I said,

463
00:43:59,240 --> 00:44:04,240
a year after our daughter had come home. I was asked to host a NICU Dads group

464
00:44:04,240 --> 00:44:09,240
at the NICU and speak to other NICU dads and, you know, share our stories and

465
00:44:09,240 --> 00:44:14,240
what have you. But I jumped at the chance. And I'm like, oh, this is great.

466
00:44:14,240 --> 00:44:18,240
Yes, I want to do this. And so I went online and I started looking for

467
00:44:18,240 --> 00:44:22,240
information. You know, I started looking at what are we going to talk about? What

468
00:44:22,240 --> 00:44:26,240
are some of the things I can discuss with other NICU dads? And I jumped online

469
00:44:26,240 --> 00:44:30,240
and started looking for stuff for NICU dads and there was nothing. There was

470
00:44:30,240 --> 00:44:36,240
maybe a story here or a story there on some kind of parenting site or a mom's

471
00:44:36,240 --> 00:44:42,240
site or a mom's blog. NICU dads were just a mention and there really wasn't any

472
00:44:42,240 --> 00:44:48,240
information out there. And it just, I couldn't believe it. And so I decided, you

473
00:44:48,240 --> 00:44:53,240
know what, this has to change. I see the NICU dads when I come up to the NICU.

474
00:44:53,240 --> 00:44:58,240
I know they're there. I know what I went through and I see it in the face of

475
00:44:58,240 --> 00:45:03,240
every man in here that they're going through the same thing. And so that's, I

476
00:45:03,240 --> 00:45:10,240
started the NICUdad.com as a blog and it just, for me, I mean, I don't know if it

477
00:45:10,240 --> 00:45:15,240
was therapeutic getting my story out there and seeing some of the things and

478
00:45:15,240 --> 00:45:20,240
sharing some of the same experiences that other NICU dads are going through

479
00:45:20,240 --> 00:45:26,240
also. I'm starting to see a trend. More information is starting to come out and I

480
00:45:26,240 --> 00:45:32,240
think now even the moms are starting to kind of see it and share information.

481
00:45:32,240 --> 00:45:39,240
Is the importance of identifying what NICU dads are going through. I'm hearing

482
00:45:39,240 --> 00:45:42,240
stories now on some of these parenting groups. I mean, and with the help of

483
00:45:42,240 --> 00:45:46,240
social media, all the information is getting out there now. But I'm seeing

484
00:45:46,240 --> 00:45:51,240
wives share about how their husbands are having to be admitted into the psych

485
00:45:51,240 --> 00:45:55,240
wards in some of these hospitals that they're having NICU stays in. And, you

486
00:45:55,240 --> 00:46:00,240
know, just there's such a high prevalence of anxiety already from people and then

487
00:46:00,240 --> 00:46:08,240
having them go into this situation. It's just, I'm seeing a lot of kind of

488
00:46:08,240 --> 00:46:15,240
emotional PTSD. Just, you know, NICU dads are two times more likely to suffer from

489
00:46:15,240 --> 00:46:21,240
PTSD than NICU moms. And it's, I think, us having the discussion and getting the

490
00:46:21,240 --> 00:46:26,240
word out and just trying to get some of these things in front of, you know, other

491
00:46:26,240 --> 00:46:31,240
NICU dads' faces, at least to get them to, you know, identify maybe something

492
00:46:31,240 --> 00:46:37,240
they dealt with or just help them and just have a story to have a NICU dad that

493
00:46:37,240 --> 00:46:42,240
will help them and make it a little bit easier on their NICU stay. That's one of

494
00:46:42,240 --> 00:46:46,240
the biggest things that I hope for this. And I hope that, you know, other NICU

495
00:46:46,240 --> 00:46:51,240
dads can see that you're not by yourself. This is what we're, you know, I've gone

496
00:46:51,240 --> 00:46:55,240
through it. And I've seen that now. And now we're seeing celebrities. Like, you

497
00:46:55,240 --> 00:47:00,240
know, we talk about, you see guys like Chris Pratt and different other

498
00:47:00,240 --> 00:47:05,240
celebrities that are, you know, have, our NICU dads, you know, have shared some of

499
00:47:05,240 --> 00:47:10,240
the same experiences. And that's what I think we look to have on here. And some

500
00:47:10,240 --> 00:47:15,240
of the guests, too, that have dealt with things. And some of the people that are

501
00:47:15,240 --> 00:47:20,240
trying to do things for the NICU dad community, like Rad White in Australia. I

502
00:47:20,240 --> 00:47:25,240
mean, the guy wrote a book, Enter the NICU. You know, I think right now it's

503
00:47:25,240 --> 00:47:29,240
really starting to grow. I hope we can help a lot of people.

504
00:47:29,240 --> 00:47:34,240
I agree. More so than ever before. We are, you know, we handhold, provide support

505
00:47:34,240 --> 00:47:41,240
for families in hospitals. And hospitals are asking us to develop programs

506
00:47:41,240 --> 00:47:47,240
specifically for those dads because we know how important it is for dads to be

507
00:47:47,240 --> 00:47:52,240
integrated into the care of the child. We know how hard that is for them to go

508
00:47:52,240 --> 00:47:57,240
back to work. And they're trying to, you know, financially support the family.

509
00:47:57,240 --> 00:48:04,240
But, you know, long term, we need our families graduating from the NICU,

510
00:48:04,240 --> 00:48:10,240
united and healthy, emotionally, physically, financially, ready to take

511
00:48:10,240 --> 00:48:15,240
care of their babies long term. Because what you and I both know, that not all

512
00:48:15,240 --> 00:48:20,240
challenges related to being preterm or having a NICU stay end when that baby

513
00:48:20,240 --> 00:48:28,240
goes home. So, you know, the struggle is real. And so for us to inform and

514
00:48:28,240 --> 00:48:34,240
support dads well beyond the NICU as well. You know, my husband dealt with a

515
00:48:34,240 --> 00:48:41,240
lot of challenges and there was no diagnosis for more than 15 years. And so

516
00:48:41,240 --> 00:48:48,240
we don't want dads to suffer quietly and alone. We want them to understand there

517
00:48:48,240 --> 00:48:54,240
are risks for postpartum depression for dads of newborn healthy babies. So when

518
00:48:54,240 --> 00:49:00,240
we look at traumatic birth, it does make sense that our dads would be at risk for

519
00:49:00,240 --> 00:49:08,240
anxiety disorders and PTSD following a traumatic birth and or loss of a baby.

520
00:49:08,240 --> 00:49:16,240
I had an interesting discussion today with a dad whose wife unfortunately

521
00:49:16,240 --> 00:49:22,240
committed suicide from after suffering with postpartum depression. And he was

522
00:49:22,240 --> 00:49:28,240
talking about having wishy understood signs and symptoms and what to look for

523
00:49:28,240 --> 00:49:32,240
and how to have help. So, you know, we'll talk about some of those things too.

524
00:49:32,240 --> 00:49:37,240
How do we support, how do dads support moms? How do they support moms through

525
00:49:37,240 --> 00:49:41,240
breastfeeding or not breastfeeding? Right? There's a lot of things.

526
00:49:41,240 --> 00:49:46,240
You took the words right out of my mouth. Yeah, you took, that's exactly what was

527
00:49:46,240 --> 00:49:50,240
going in my head was supporting and feeding. I mean, and all those things are

528
00:49:50,240 --> 00:49:55,240
so important. Yeah, it's, there's so much out there.

529
00:49:55,240 --> 00:50:00,240
Well, I think we've tapped into something exciting and hopefully our listeners

530
00:50:00,240 --> 00:50:06,240
will think so too. And I very much look forward to working with you in the coming

531
00:50:06,240 --> 00:50:15,240
months and years of producing a really informative but supportive podcast

532
00:50:15,240 --> 00:50:21,240
series. So thank you, Alex Savola, for being so open with your emotions.

533
00:50:21,240 --> 00:50:22,240
Thank you.

534
00:50:22,240 --> 00:50:31,240
Being willing to share your story and being willing to step up and give back to

535
00:50:31,240 --> 00:50:36,240
those that are now walking in your shoes. You are a great man, an amazing dad,

536
00:50:36,240 --> 00:50:40,240
and we are just delighted to be partnering with you. So with that, thank

537
00:50:40,240 --> 00:50:41,240
you so much.

538
00:50:41,240 --> 00:50:43,240
Thank you. Thanks for having me.

539
00:50:43,240 --> 00:50:47,240
Thank you for listening and thank you for your support. Once again, please take a

540
00:50:47,240 --> 00:50:51,240
look at the nickyudad.com. We continue to grow the list of resources we are

541
00:50:51,240 --> 00:50:57,240
bringing Nickyudads. To my fellow Nickyudads, good luck and remember, you

542
00:50:57,240 --> 00:51:02,240
are not alone.

