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Welcome to Unlimited Parenting where we discuss what it's like having children with disabilities

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or special healthcare needs.

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My name is Allison and today with me is my partner in crime, Melissa, and we would like

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to welcome you to everybody's favorite podcast, Bring Your Own Topic.

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This is a podcast series where I ask people to come in blindly with a topic and then we

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are going to discuss.

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Today is a little unique because it will just be myself and Melissa and we will discuss

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topics that are completely unknown to one another.

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She has no idea what I'm about to say.

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I have no idea what she's about to say and we're committed to keeping the recording faithful.

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So there should not be a lot of edits.

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We're just going to roll with it.

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I think that's what makes it fun.

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And makes me sweat.

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It makes you sweat and I have fun.

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Okay.

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Okay.

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I think it's only fair that you go first.

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What?

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Oh my gosh.

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Okay.

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Well, so this is a very light.

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Well, it's kind of lighthearted.

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Okay.

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I want to know.

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This comes from personal experience.

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So and this could be a couple of things.

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So where this came, there's so many qualifiers.

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I'm scared.

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Where this came to me was today when I was putting my child in the back seat of my car

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and I'm like, what the crap is all of this?

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What is this stuff?

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Oh, in your car?

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In the back of my car.

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Okay.

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Where my child sits.

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My child with special healthcare needs.

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Okay.

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Okay.

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Uh huh.

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So.

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So I looked at the back seat of my car and it reminded me of what the bottom of our diaper

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bag used to look like.

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Right.

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And I have graduated and we are no longer, I mean, he's still in diapers, but we don't

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need a diaper bag anymore.

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And that was hallelujah.

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One of the best days of my life when we could give up the diaper bag.

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But now it is all just in the back seat of my car.

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And so it's not contained in a bag.

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It's not contained.

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What I thought I was giving up actually created more of a mess.

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So I'm thinking I need to get some sort of a containment system now for the back of the

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car.

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Genius.

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Right?

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But I don't know if it would work.

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The things in which I found, I have listed some of them.

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And I just wanted to know if this was normal or if I am just.

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You want me to tell you you're a weirdo?

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I'm transporting pig pen around, I think.

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I don't know.

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I'm going to clean my car this weekend.

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That's the other thing that I.

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I always say that.

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And then I have it for the last couple of weeks.

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Okay, I'm ready.

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So we have blocks.

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We have so many blocks and beads.

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They're beatable blocks.

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So you know, my kid is obsessed with beads right now and they're the wooden beads and

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the shoelace that goes through them.

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So those types, they are everywhere in my car.

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Do you want me to give you the equivalent of what's in mine?

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Yeah.

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So I don't have to use, but I have fidget spinners.

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Okay, probably 14.

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Okay, what I have chewies, a tangled mess of chewy necklaces that are all one blob right

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now.

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So my son won't use the necklaces, but he likes those.

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I don't know.

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They're probably like seven or eight inches.

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They're like the munchkin for kids that are seizing, but they're the really long ones.

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And they're not like Sophie the giraffe who had that one hole, you know, and then she

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would get mold all up in her.

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But these ones are they're hollow.

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Do these ones vibrate?

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No.

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Okay.

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We have that one too.

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But since that one was $45, I try to watch it a little more closely.

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You don't throw it on the back seat of your car.

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The way I have seen my son get in the car and pick one off the ground and I go, you

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know what, just buckle up.

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That's where I'm going with this.

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Just buckle up.

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Oh my word.

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That's I think how Reese's avoided COVID for his own.

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I'm sorry.

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I think that's how Silas gets everything.

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So there are some, there were some French fries.

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There was a half eaten English muffin that the peanut butter had been dried up on.

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Okay.

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I am not a disgusting person.

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No.

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No, this is the kids.

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This is the kid's seat.

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This is the kid's seats.

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Mine has two weeks ago, we went to Starbucks for a hot chocolate and every time we get

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out of the car, I say, Hey, I need you to, this is, this is a true, I don't care.

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I mean, you guys can feel the way you feel about me.

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Every time we get out of the car, I say, we need to get two things.

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Let's just pick up two things.

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And I know there are parents out there who say, you know, what we enter the car with,

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we leave the car with and that everything always gets picked up.

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That's a good idea.

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I'm trying to survive.

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I say, pick up two things.

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And for, we're all in different spots.

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I know.

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I have for two weeks, I have been saying, please make one of those two things.

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That Starbucks cup.

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I am so scared to lift the lid.

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And he goes, mom, it's totally empty.

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And I'm like, I don't know.

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I wouldn't believe that at all.

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Hey, I'll come clean it out because I still can't smell from when I had COVID.

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That's right.

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That's right.

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I am the perfect person for that kid.

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And maybe that's the other problem in my car.

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My car might smell and I can't smell it.

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And my not-for-full child is not telling me that it smells.

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I don't know.

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Maybe that's why he doesn't want to get in the car.

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That's why school pickups.

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It's so bad.

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I don't know if this was...

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No, no, no.

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You're selling yourself way too short.

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I've recently been in your car and it does not stink.

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Thank you.

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Yeah.

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Now, appreciate it.

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The big black, I don't know about.

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Oh, I don't know about her.

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No.

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Well, my husband drives out.

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I can't promise anything on that.

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There's some sweaty shoes in there.

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There's some...

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Well, at least you can see out of it.

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Your daughter's car, you can't even see out of it.

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I hope she listens to this.

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I hope she does too.

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Anyway, sorry, go on.

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The other thing I found were some progress reports that were shoved under the floor mat.

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I'm like, holy moly, that needs to go in my IEP binder.

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What am I?

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Who am I?

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I am a parent-centered employee.

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That is not a filing system I should be proud of.

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So I had...

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It's the beginning of the year.

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So we had to update all of our insurance and I didn't have my insurance cards on me.

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So I foolishly said, I will take the form with me.

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Yesterday, I turned in this form covered in coffee.

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It was covered.

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She was like, can you actually reread this number to me?

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Because it's been...

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And read it.

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And I was like, I'm so sorry.

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This is making me feel so much better.

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I'm so glad.

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Okay.

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Okay.

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So there was some IEP stuff.

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Oh, I have...

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This you will not have.

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I had...

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A G-tube?

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I have some G-tube supplies in there.

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Yep.

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Because you never know.

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You just never know when you're going to need...

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You just don't.

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So that's true.

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I don't have G-tube supplies, but can I tell you?

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I have three sizes of diapers.

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Because you never know for the next...

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I don't have three sizes.

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I just have three diapers.

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Some of...

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I also have to keep a spare set of shorts and underwear at all times.

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That is such a good idea.

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And I usually do.

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And I don't have that right now.

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I need to put that back in.

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Can you imagine if we kept all of this in a bag?

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That's my point.

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So it used to be in this nice little container called a diaper bag.

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And then I was so excited to graduate from the diaper bag, but I'm thinking it needs

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more containment.

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And I still need these things.

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Yeah.

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And I know a lot of people have big feelings on this and I respect that.

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But Shein...

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Shein?

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Oh, whatever.

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Oh, I don't...

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And I know we're anti-consumerism right now.

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Cheap plastic.

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But there is something to be said about how cheap they have those storage containment.

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If you go to Shein and you...car accessories or whatever.

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Really?

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Oh my gosh.

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The stuff that they have on there is stuff I would have never...

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They have car trash cans.

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Okay.

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And I can almost get behind that.

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Yeah.

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Because...

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Absolutely.

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What do we call those things on the doors?

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The trash cans.

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In our car, you want to...

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You know where your straw wrapper goes?

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In the door.

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The most embarrassing thing I think that...well, not the most, but one of the most embarrassing

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things that has ever happened to me is my husband of almost 17 years coming out to the

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van and going, Jesus, he's taking out all of these receipts.

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He's like, Panda Express twice in one week.

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Are we going for a goal?

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Yes, we are.

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A personal best.

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And I'm like, if you don't bring your negativity to me, are you just jealous that I didn't

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bring you spring rolls?

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Yes.

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That's what it is.

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I sometimes...

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Oh no.

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Those receipts, I throw those away though so that there's not evidence.

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That's true.

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I imagine...

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I imagine...

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I imagine in a mobile receipt from Starbucks.

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If there were no children and our cars could be whatever we wanted them to be, you would

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have honey in your car.

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Yeah.

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You would have...

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What were you...

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Okay.

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You would have...

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It's nature's amoxicil.

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You would have honey and bread.

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You'd have a bread box.

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Mary, you'd have a bread box, honey, bread.

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You'd have tortilla chips.

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You'd have salsa.

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You'd have a fridge where you can keep your salsa.

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Are you going to say Cherry Coke Zero?

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You know, Cherry...

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I currently have that in my trunks.

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I have to hide it in there for my son.

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So that's where it is.

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You'd have Taylor Swift.

267
00:09:47,640 --> 00:09:48,640
Check.

268
00:09:48,640 --> 00:09:49,640
I already done.

269
00:09:49,640 --> 00:09:50,640
What is that called?

270
00:09:50,640 --> 00:09:51,640
The thing that people...

271
00:09:51,640 --> 00:09:52,960
Is it a windscreen?

272
00:09:52,960 --> 00:09:55,160
You put it in your car when it's hot so the sun doesn't...

273
00:09:55,160 --> 00:09:56,160
Oh yeah.

274
00:09:56,160 --> 00:09:57,160
Yours would be Taylor Swift.

275
00:09:57,160 --> 00:10:00,240
When she has that big purple dress.

276
00:10:00,240 --> 00:10:01,240
All fanned out.

277
00:10:01,240 --> 00:10:02,240
It would be.

278
00:10:02,240 --> 00:10:03,240
Remember when she didn't...

279
00:10:03,240 --> 00:10:04,240
I don't know if that's speak now.

280
00:10:04,240 --> 00:10:05,240
Sorry.

281
00:10:05,240 --> 00:10:06,880
Remember when she didn't brush out her curls.

282
00:10:06,880 --> 00:10:09,040
I do, but that was back then.

283
00:10:09,040 --> 00:10:10,040
That was the early 2000s.

284
00:10:10,040 --> 00:10:11,040
None of us did.

285
00:10:11,040 --> 00:10:12,040
Yeah, that's true.

286
00:10:12,040 --> 00:10:14,080
They were the Utah girls.

287
00:10:14,080 --> 00:10:15,080
Who am I?

288
00:10:15,080 --> 00:10:16,080
Exactly.

289
00:10:16,080 --> 00:10:17,080
To judge a billionaire.

290
00:10:17,080 --> 00:10:19,160
So anyways, all this to say, I'm looking...

291
00:10:19,160 --> 00:10:24,160
I needed some camaraderie to say that I wasn't alone when it came.

292
00:10:24,160 --> 00:10:27,400
We have library books on the bottom of the floor of our car.

293
00:10:27,400 --> 00:10:28,400
Homework.

294
00:10:28,400 --> 00:10:29,400
Oh yeah.

295
00:10:29,400 --> 00:10:32,400
At least three coats.

296
00:10:32,400 --> 00:10:34,520
At least stuffies.

297
00:10:34,520 --> 00:10:39,280
So many squishmallows.

298
00:10:39,280 --> 00:10:44,480
I'm worried if we were ever in an accident, I could tell a first responder, there are

299
00:10:44,480 --> 00:10:49,440
three kids in my car and they would be like, oh, we can find her the squishmallows.

300
00:10:49,440 --> 00:10:51,920
There should be a kid attached to them.

301
00:10:51,920 --> 00:10:52,920
Okay.

302
00:10:52,920 --> 00:10:54,400
Well, I feel better.

303
00:10:54,400 --> 00:10:55,400
I feel good.

304
00:10:55,400 --> 00:10:56,400
I'm glad.

305
00:10:56,400 --> 00:10:57,400
I'm glad.

306
00:10:57,400 --> 00:11:03,480
Now I want to know if you could have anything in your car that you don't currently have,

307
00:11:03,480 --> 00:11:04,480
what would it be?

308
00:11:04,480 --> 00:11:05,480
More cup holders.

309
00:11:05,480 --> 00:11:06,480
I hate my car.

310
00:11:06,480 --> 00:11:07,480
I have no team.

311
00:11:07,480 --> 00:11:11,840
So what is my husband's car?

312
00:11:11,840 --> 00:11:16,040
Big Black used to have so many cup holders and now my car has...

313
00:11:16,040 --> 00:11:17,120
I do.

314
00:11:17,120 --> 00:11:21,080
Your little car though in the back seat, does it have the thing that comes down in the...

315
00:11:21,080 --> 00:11:22,080
Oh no.

316
00:11:22,080 --> 00:11:23,080
What is the story?

317
00:11:23,080 --> 00:11:24,800
Well, it has one of those things that comes...

318
00:11:24,800 --> 00:11:26,080
Yeah, it's kind of a story.

319
00:11:26,080 --> 00:11:31,240
It has a thing that comes down and you can access the trunk because it's an all-wheel

320
00:11:31,240 --> 00:11:33,560
drive car that you can ski through.

321
00:11:33,560 --> 00:11:37,640
What is this car that you can do that and the battery's in the back?

322
00:11:37,640 --> 00:11:38,640
It is in the back.

323
00:11:38,640 --> 00:11:43,160
What in the Germans' auto making is happening here?

324
00:11:43,160 --> 00:11:44,220
Exactly.

325
00:11:44,220 --> 00:11:50,000
And so we refrain from using that pull down because Reese will now throw stuff in the

326
00:11:50,000 --> 00:11:51,000
trunk.

327
00:11:51,000 --> 00:11:52,000
He can access the trunk.

328
00:11:52,000 --> 00:11:54,400
He could potentially crawl through that.

329
00:11:54,400 --> 00:11:57,800
So we don't encourage that access.

330
00:11:57,800 --> 00:12:04,400
All I'm imagining is you're driving to McCall and someone is honking at you because Reese

331
00:12:04,400 --> 00:12:10,200
has stuck his hand through the taillight and he's just waving at guys.

332
00:12:10,200 --> 00:12:12,320
I would realize that he wasn't there.

333
00:12:12,320 --> 00:12:13,320
No, of course.

334
00:12:13,320 --> 00:12:14,320
But that's where...

335
00:12:14,320 --> 00:12:15,320
Happen.

336
00:12:15,320 --> 00:12:16,320
Yeah.

337
00:12:16,320 --> 00:12:17,320
I mean...

338
00:12:17,320 --> 00:12:19,040
Griswold family Christmas, that's where I've gone.

339
00:12:19,040 --> 00:12:20,040
Absolutely.

340
00:12:20,040 --> 00:12:23,520
That's why we don't use those cupholders.

341
00:12:23,520 --> 00:12:25,200
So in a new car...

342
00:12:25,200 --> 00:12:26,200
I want more cupholders.

343
00:12:26,200 --> 00:12:27,320
You'd want more cupholders.

344
00:12:27,320 --> 00:12:28,320
How many do you think?

345
00:12:28,320 --> 00:12:31,840
There are six of you, so at least six.

346
00:12:31,840 --> 00:12:34,880
Well, that's a four-seater car though.

347
00:12:34,880 --> 00:12:35,880
My whole family is...

348
00:12:35,880 --> 00:12:37,560
I guess we'd have to get a new car too, huh?

349
00:12:37,560 --> 00:12:38,920
I would just want...

350
00:12:38,920 --> 00:12:40,120
There's a roof rack.

351
00:12:40,120 --> 00:12:41,120
Yeah.

352
00:12:41,120 --> 00:12:42,560
I would just want...

353
00:12:42,560 --> 00:12:43,880
I have two right now.

354
00:12:43,880 --> 00:12:46,360
I would like four.

355
00:12:46,360 --> 00:12:47,960
I would like one in the door.

356
00:12:47,960 --> 00:12:48,960
Okay, so...

357
00:12:48,960 --> 00:12:50,120
I would like a cupholder.

358
00:12:50,120 --> 00:12:52,720
It surprises me that you don't have one in the door.

359
00:12:52,720 --> 00:12:53,720
I don't.

360
00:12:53,720 --> 00:12:57,160
Yeah, I have one in the middle, and then you can pull up my console and you can have another

361
00:12:57,160 --> 00:12:59,440
in the middle, but then my arm hits it.

362
00:12:59,440 --> 00:13:00,800
It's just not user-friendly.

363
00:13:00,800 --> 00:13:06,120
I would like you to know, before I say this, that I bought this car used.

364
00:13:06,120 --> 00:13:08,600
My minivan is a Honda Odyssey.

365
00:13:08,600 --> 00:13:10,640
I did purchase it used.

366
00:13:10,640 --> 00:13:11,640
The people who...

367
00:13:11,640 --> 00:13:12,640
With 18 cupholders.

368
00:13:12,640 --> 00:13:14,800
The people who owned it before me were total ballers.

369
00:13:14,800 --> 00:13:19,960
I don't know what they did for jobs, but they had all the bells and whistles on this son

370
00:13:19,960 --> 00:13:21,560
of a gun.

371
00:13:21,560 --> 00:13:23,800
It's got these blackout shades.

372
00:13:23,800 --> 00:13:24,800
Wow.

373
00:13:24,800 --> 00:13:25,800
I know.

374
00:13:25,800 --> 00:13:29,480
And my brother's going to listen to this podcast and go, that comes standard on a Honda Odyssey.

375
00:13:29,480 --> 00:13:30,480
Oh.

376
00:13:30,480 --> 00:13:31,480
They have blackout shades.

377
00:13:31,480 --> 00:13:32,480
Calm down, Jenny.

378
00:13:32,480 --> 00:13:33,480
Sir, calm it down.

379
00:13:33,480 --> 00:13:38,360
For those of you who don't know, my brother is a manager at a car dealership.

380
00:13:38,360 --> 00:13:40,680
Do you really listen to our podcasts?

381
00:13:40,680 --> 00:13:41,680
Sometimes.

382
00:13:41,680 --> 00:13:42,680
That's awesome.

383
00:13:42,680 --> 00:13:43,680
Sometimes when I make them.

384
00:13:43,680 --> 00:13:44,680
What great support?

385
00:13:44,680 --> 00:13:45,680
Yeah.

386
00:13:45,680 --> 00:13:46,680
And I share TikToks.

387
00:13:46,680 --> 00:13:49,560
I was just about to say it and then I'm like, wait, what if that's not the place that he

388
00:13:49,560 --> 00:13:50,560
works?

389
00:13:50,560 --> 00:13:52,520
Oh, and the car also has a vacuum.

390
00:13:52,520 --> 00:13:54,000
Oh, that's right.

391
00:13:54,000 --> 00:13:55,680
It has a vacuum.

392
00:13:55,680 --> 00:14:01,080
And when I tell you that the 2025 has a fridge, you know what I want?

393
00:14:01,080 --> 00:14:02,360
You up with a loaner or something?

394
00:14:02,360 --> 00:14:03,360
I know.

395
00:14:03,360 --> 00:14:04,360
Rehaler.

396
00:14:04,360 --> 00:14:07,400
You need actual perspective from a family.

397
00:14:07,400 --> 00:14:08,400
Those Kia Carnivals.

398
00:14:08,400 --> 00:14:09,400
Okay.

399
00:14:09,400 --> 00:14:10,400
Goodness.

400
00:14:10,400 --> 00:14:11,400
They're so bad.

401
00:14:11,400 --> 00:14:13,760
But I have to tell you about this.

402
00:14:13,760 --> 00:14:14,760
Okay.

403
00:14:14,760 --> 00:14:15,760
The Kia Carnival.

404
00:14:15,760 --> 00:14:16,760
Okay.

405
00:14:16,760 --> 00:14:17,760
It's an 11 seater.

406
00:14:17,760 --> 00:14:18,760
This 11 seat.

407
00:14:18,760 --> 00:14:19,760
Hold on.

408
00:14:19,760 --> 00:14:20,760
Hear me out here.

409
00:14:20,760 --> 00:14:22,040
It's not sold in the United States.

410
00:14:22,040 --> 00:14:23,040
Why?

411
00:14:23,040 --> 00:14:24,040
I don't know.

412
00:14:24,040 --> 00:14:27,440
But the Kia Carnival 11 seater, the seats can turn.

413
00:14:27,440 --> 00:14:29,560
Like you know when you're on a metro and you're sitting the wrong way?

414
00:14:29,560 --> 00:14:30,560
Yeah.

415
00:14:30,560 --> 00:14:31,560
You get stomach sickness.

416
00:14:31,560 --> 00:14:32,560
Maybe that's just me.

417
00:14:32,560 --> 00:14:33,560
No, no, no, I do.

418
00:14:33,560 --> 00:14:38,240
The way my son would spin in that son of a gun, he would just sit there and make the

419
00:14:38,240 --> 00:14:39,600
chair spin.

420
00:14:39,600 --> 00:14:42,040
Wait, it doesn't like lock while you're driving?

421
00:14:42,040 --> 00:14:43,240
I'm sure it does.

422
00:14:43,240 --> 00:14:44,240
I feel like.

423
00:14:44,240 --> 00:14:47,000
But I feel like he would break it and it would spin.

424
00:14:47,000 --> 00:14:48,760
And I'm almost like a tilt-a-whirl.

425
00:14:48,760 --> 00:14:50,840
I realize that's completely unsafe.

426
00:14:50,840 --> 00:14:53,680
Well, as long as you were strapped into that seat.

427
00:14:53,680 --> 00:14:54,680
He's a specie-re-seeker.

428
00:14:54,680 --> 00:14:57,960
And if he could spin in the car, it would make car rides so much easier.

429
00:14:57,960 --> 00:15:02,360
So if you're out there and you're listening, can you make a spinning seat?

430
00:15:02,360 --> 00:15:03,360
Kia, U.S. Kia.

431
00:15:03,360 --> 00:15:04,360
Honda.

432
00:15:04,360 --> 00:15:05,360
A spinny seat.

433
00:15:05,360 --> 00:15:06,360
Hyundai.

434
00:15:06,360 --> 00:15:07,360
Honda.

435
00:15:07,360 --> 00:15:08,360
I don't know.

436
00:15:08,360 --> 00:15:11,360
How many car, how many BMW?

437
00:15:11,360 --> 00:15:12,360
Ford.

438
00:15:12,360 --> 00:15:13,360
Jaguar.

439
00:15:13,360 --> 00:15:14,360
Oh, GMC.

440
00:15:14,360 --> 00:15:15,360
Chevrolet.

441
00:15:15,360 --> 00:15:16,360
What are we doing?

442
00:15:16,360 --> 00:15:18,760
I don't know, but my husband would be so proud of me right now.

443
00:15:18,760 --> 00:15:22,600
OK, remember, I'm not going to edit any of this out.

444
00:15:22,600 --> 00:15:23,600
We've got.

445
00:15:23,600 --> 00:15:25,880
I guess it's time for my turn.

446
00:15:25,880 --> 00:15:26,880
It is.

447
00:15:26,880 --> 00:15:29,200
OK, now mine sucks in comparison to that.

448
00:15:29,200 --> 00:15:30,360
You're the one that wanted me to go first.

449
00:15:30,360 --> 00:15:31,360
I know.

450
00:15:31,360 --> 00:15:32,360
Mine sucks.

451
00:15:32,360 --> 00:15:36,720
OK, I wanted to talk about, and this isn't going to shock you at all.

452
00:15:36,720 --> 00:15:40,600
I wanted to talk about something emotionally and politically charged.

453
00:15:40,600 --> 00:15:41,600
Wah wah.

454
00:15:41,600 --> 00:15:43,440
But for real, I do.

455
00:15:43,440 --> 00:15:44,440
OK.

456
00:15:44,440 --> 00:15:50,560
I want to talk about handling all of this change and moving forward when the future

457
00:15:50,560 --> 00:15:51,560
is so unpredictable.

458
00:15:51,560 --> 00:15:52,560
OK.

459
00:15:52,560 --> 00:15:55,360
Because you want to talk to me about it.

460
00:15:55,360 --> 00:15:57,400
I want to talk to you about it.

461
00:15:57,400 --> 00:15:59,720
Everything is changing.

462
00:15:59,720 --> 00:16:00,720
Yeah.

463
00:16:00,720 --> 00:16:03,440
So there's a new administration.

464
00:16:03,440 --> 00:16:07,520
Every time that change is, it's a big, it's a whole bunch of stuff.

465
00:16:07,520 --> 00:16:12,840
I think more particularly, it's the dissolving of the Department of Education.

466
00:16:12,840 --> 00:16:24,920
So families of children with disabilities, IDEA, it's not just a policy.

467
00:16:24,920 --> 00:16:26,680
It's more of a lifeline.

468
00:16:26,680 --> 00:16:27,680
Absolutely.

469
00:16:27,680 --> 00:16:32,980
Like a protection that my child is going to receive a free and appropriate public education.

470
00:16:32,980 --> 00:16:37,160
And I must say this, and I'm hoping that we're having this conversation and you're listening

471
00:16:37,160 --> 00:16:41,120
to this conversation no matter where you fall on the political divide, because that's not

472
00:16:41,120 --> 00:16:42,520
what this conversation is about.

473
00:16:42,520 --> 00:16:47,880
You could be the most left leaning or the most right leaning.

474
00:16:47,880 --> 00:16:49,600
That doesn't matter in this conversation.

475
00:16:49,600 --> 00:16:53,320
IDEA existed before the Department of Education.

476
00:16:53,320 --> 00:16:54,320
So let's just all.

477
00:16:54,320 --> 00:16:56,440
And I don't think a lot of people know that.

478
00:16:56,440 --> 00:17:01,640
I don't think a lot of people, and I don't think I knew that prior to three months ago.

479
00:17:01,640 --> 00:17:03,840
I don't think I'd ever thought about it that way.

480
00:17:03,840 --> 00:17:04,840
Yeah.

481
00:17:04,840 --> 00:17:07,320
I mean, I've seen timelines, but I never thought about it like that.

482
00:17:07,320 --> 00:17:13,160
I mean, like I said, it guarantees all of those protections.

483
00:17:13,160 --> 00:17:21,880
And the thought of moving it to the Health Resource Service Administration, what does

484
00:17:21,880 --> 00:17:30,240
that mean for service delivery, accountability, supports, maybe nothing?

485
00:17:30,240 --> 00:17:32,000
Maybe everything stays the same.

486
00:17:32,000 --> 00:17:33,000
Right?

487
00:17:33,000 --> 00:17:34,000
We don't know.

488
00:17:34,000 --> 00:17:35,000
We don't know.

489
00:17:35,000 --> 00:17:36,000
And it just keeps you.

490
00:17:36,000 --> 00:17:38,880
That is the whole point of this conversation is I don't know.

491
00:17:38,880 --> 00:17:42,760
And I know that you know this about me, but maybe some of the listeners don't.

492
00:17:42,760 --> 00:17:44,400
I hate not knowing.

493
00:17:44,400 --> 00:17:45,400
She really does.

494
00:17:45,400 --> 00:17:46,400
I can't believe that.

495
00:17:46,400 --> 00:17:47,980
I hate not knowing what's coming next.

496
00:17:47,980 --> 00:17:50,440
I hate not being able to plan and prepare.

497
00:17:50,440 --> 00:17:52,820
And I know that a lot of people feel like nothing will change.

498
00:17:52,820 --> 00:17:54,320
And that's wonderful.

499
00:17:54,320 --> 00:17:55,320
And that's hopeful.

500
00:17:55,320 --> 00:17:56,320
Hopeful.

501
00:17:56,320 --> 00:17:57,540
Yeah, I hope that.

502
00:17:57,540 --> 00:18:01,980
So I guess what I'm saying is, is that there are people out there listening right now who

503
00:18:01,980 --> 00:18:10,240
feel the way I do about not being the best at navigating change and uncertainty.

504
00:18:10,240 --> 00:18:13,160
I have some thoughts that I wanted to share.

505
00:18:13,160 --> 00:18:16,220
But I wanted you to know where I was coming from when I was talking about this.

506
00:18:16,220 --> 00:18:17,520
It's not about Trump.

507
00:18:17,520 --> 00:18:21,640
It's not about Biden left, right, up, down, sideways.

508
00:18:21,640 --> 00:18:22,640
It's not about that.

509
00:18:22,640 --> 00:18:26,680
It's about I don't know what could possibly happen to my child and his supports if you're

510
00:18:26,680 --> 00:18:31,420
having these larger conversations about disbanding things.

511
00:18:31,420 --> 00:18:38,280
And I should you should be really transparent that we've had families reach out with these

512
00:18:38,280 --> 00:18:39,280
very good.

513
00:18:39,280 --> 00:18:41,120
And that's kind of why we're bringing that to you guys.

514
00:18:41,120 --> 00:18:42,120
Exactly.

515
00:18:42,120 --> 00:18:46,640
I think had these families have these conversations twice this week.

516
00:18:46,640 --> 00:18:51,280
Someone has asked me, what does this mean for my child if the Department of Education

517
00:18:51,280 --> 00:18:52,280
is dissolved?

518
00:18:52,280 --> 00:18:53,280
Yeah.

519
00:18:53,280 --> 00:18:55,760
And I said, that's a great question.

520
00:18:55,760 --> 00:18:57,640
Let me think about it for a second.

521
00:18:57,640 --> 00:19:02,520
And that's hard for us in our role as the Parent Training Information Center, because

522
00:19:02,520 --> 00:19:05,560
we want to give families answers.

523
00:19:05,560 --> 00:19:09,760
And for us to say we don't know is hard.

524
00:19:09,760 --> 00:19:14,160
Yeah, it's gross for me to say and it's gross for me to feel because I really don't know.

525
00:19:14,160 --> 00:19:25,640
And I know that there are people who are overwhelmed by TikTok, overwhelmed by the news, overwhelmed.

526
00:19:25,640 --> 00:19:29,280
I am but I'm also talking about the other people in my life who are like, I can't handle

527
00:19:29,280 --> 00:19:30,280
one more thing.

528
00:19:30,280 --> 00:19:32,560
Don't just don't talk to me about it.

529
00:19:32,560 --> 00:19:35,240
I'm apolitical at this point.

530
00:19:35,240 --> 00:19:37,760
So we don't have answers yet.

531
00:19:37,760 --> 00:19:39,120
That's the hardest part.

532
00:19:39,120 --> 00:19:51,000
But the thing about uncertainty is that it forces us to think about what matters most

533
00:19:51,000 --> 00:19:53,320
and how we can protect it.

534
00:19:53,320 --> 00:19:58,840
So I guess what I'm saying is when you're thinking about what you don't know, you can

535
00:19:58,840 --> 00:20:03,240
only think about the things that you can control and what you don't know.

536
00:20:03,240 --> 00:20:04,840
So here's my thoughts.

537
00:20:04,840 --> 00:20:07,840
Stay informed, but don't overwhelm yourself.

538
00:20:07,840 --> 00:20:12,440
So knowledge is power, but too much information can be overwhelming.

539
00:20:12,440 --> 00:20:16,200
So pick sources that you like and update yourself when you can.

540
00:20:16,200 --> 00:20:20,480
But if even I hope that if even the people who are like, I can't handle one more thing,

541
00:20:20,480 --> 00:20:21,920
I hope they've already turned the podcast off.

542
00:20:21,920 --> 00:20:25,800
I hope they're already like, I'd rather listen to clean out the back of my car.

543
00:20:25,800 --> 00:20:26,800
I'd rather do that.

544
00:20:26,800 --> 00:20:27,800
Yeah.

545
00:20:27,800 --> 00:20:29,200
Then listen to this.

546
00:20:29,200 --> 00:20:35,280
So if this is too much for you, please turn it off and then take action where you can

547
00:20:35,280 --> 00:20:39,380
and when you can if there's something you want to take action about.

548
00:20:39,380 --> 00:20:42,880
So if you write letters, give testimony.

549
00:20:42,880 --> 00:20:44,360
Yeah, that's what I was going to say.

550
00:20:44,360 --> 00:20:49,640
Kind of pick something that you feel that you could be in control of and you share stories

551
00:20:49,640 --> 00:20:51,720
about how this has impacted you.

552
00:20:51,720 --> 00:20:55,640
Which like the this can be this whole I don't know what's happening.

553
00:20:55,640 --> 00:20:56,640
There's so much uncertainty.

554
00:20:56,640 --> 00:20:57,640
Excuse me.

555
00:20:57,640 --> 00:21:00,080
It can be applied to the families as paid caregivers.

556
00:21:00,080 --> 00:21:01,080
Oh, yeah.

557
00:21:01,080 --> 00:21:02,080
Is it happening?

558
00:21:02,080 --> 00:21:03,080
Is it not happening?

559
00:21:03,080 --> 00:21:04,080
What do we do?

560
00:21:04,080 --> 00:21:05,080
Are we sharing stories?

561
00:21:05,080 --> 00:21:07,320
Yeah, I agree.

562
00:21:07,320 --> 00:21:10,280
So I mean, it applies to that too.

563
00:21:10,280 --> 00:21:14,000
Focus on your circle of control.

564
00:21:14,000 --> 00:21:21,440
So I, Allison, can't control federal decisions, but I do have the ability to provide testimony

565
00:21:21,440 --> 00:21:23,360
in my local community.

566
00:21:23,360 --> 00:21:25,840
I can volunteer at my school.

567
00:21:25,840 --> 00:21:28,040
I can attend school board meetings.

568
00:21:28,040 --> 00:21:32,320
I can continue to support the families that call in and ask these questions and say, hey,

569
00:21:32,320 --> 00:21:33,320
I'm right here with you.

570
00:21:33,320 --> 00:21:34,320
I know it's hard.

571
00:21:34,320 --> 00:21:36,560
I don't know what's going to happen next either.

572
00:21:36,560 --> 00:21:39,540
Do what you can when you can where you can.

573
00:21:39,540 --> 00:21:44,120
And I always love when I whenever I think about this, I always love that Mr. Rogers

574
00:21:44,120 --> 00:21:47,440
when he's talking about how his mom always told him to look for the helpers.

575
00:21:47,440 --> 00:21:48,440
Yes.

576
00:21:48,440 --> 00:21:54,120
When things get overwhelming, we'll step back and look for a helper.

577
00:21:54,120 --> 00:21:58,040
And then, you know, that's some that's some dang good advice right here.

578
00:21:58,040 --> 00:22:00,040
Thanks, Mr. Rogers.

579
00:22:00,040 --> 00:22:01,040
Lean on your community.

580
00:22:01,040 --> 00:22:02,640
Lean on your friends.

581
00:22:02,640 --> 00:22:05,440
If you don't want to watch TikTok anymore, tell your annoying friend to quit sending

582
00:22:05,440 --> 00:22:07,100
you TikToks.

583
00:22:07,100 --> 00:22:08,100
Maybe she'll listen.

584
00:22:08,100 --> 00:22:09,100
Maybe she won't.

585
00:22:09,100 --> 00:22:10,100
You never know.

586
00:22:10,100 --> 00:22:11,100
I know.

587
00:22:11,100 --> 00:22:12,100
I know.

588
00:22:12,100 --> 00:22:13,100
But it's fine.

589
00:22:13,100 --> 00:22:15,560
And most importantly, take care of yourself.

590
00:22:15,560 --> 00:22:19,160
You are no use to anybody if you're not taking care of yourself.

591
00:22:19,160 --> 00:22:20,160
Right.

592
00:22:20,160 --> 00:22:21,160
Drink your water.

593
00:22:21,160 --> 00:22:22,160
Right.

594
00:22:22,160 --> 00:22:25,260
I guess the whole self care thing is getting kind of overdone.

595
00:22:25,260 --> 00:22:30,360
It's like what do you need to do to just get from breakfast to bedtime?

596
00:22:30,360 --> 00:22:31,360
Right.

597
00:22:31,360 --> 00:22:35,160
If you need to put your head in the sand and tone to tune it out for a little bit, do that.

598
00:22:35,160 --> 00:22:36,760
Do what's best for you.

599
00:22:36,760 --> 00:22:37,760
Yes.

600
00:22:37,760 --> 00:22:38,760
Yes.

601
00:22:38,760 --> 00:22:39,760
Yes.

602
00:22:39,760 --> 00:22:42,080
Because I have I've had to put my head in the sand and really kind of just focus on

603
00:22:42,080 --> 00:22:45,280
my family and just focus on getting from breakfast to bedtime.

604
00:22:45,280 --> 00:22:46,280
And you feel so much better.

605
00:22:46,280 --> 00:22:47,280
I feel so much better.

606
00:22:47,280 --> 00:22:48,280
I feel so much better.

607
00:22:48,280 --> 00:22:49,280
So much better.

608
00:22:49,280 --> 00:22:53,400
And I am starting to slowly start opening up again.

609
00:22:53,400 --> 00:22:54,400
But I had to.

610
00:22:54,400 --> 00:22:57,080
I had to close off for a little bit.

611
00:22:57,080 --> 00:22:58,840
Because change always feels like a threat.

612
00:22:58,840 --> 00:22:59,840
Yeah.

613
00:22:59,840 --> 00:23:00,840
If you view it that way.

614
00:23:00,840 --> 00:23:02,280
But it can also be an opportunity.

615
00:23:02,280 --> 00:23:03,280
Yeah.

616
00:23:03,280 --> 00:23:04,280
There you go.

617
00:23:04,280 --> 00:23:05,280
What a good sound bite.

618
00:23:05,280 --> 00:23:06,280
Thank you.

619
00:23:06,280 --> 00:23:07,280
Yeah.

620
00:23:07,280 --> 00:23:08,280
I'll be here all week.

621
00:23:08,280 --> 00:23:10,760
Actually, I'll be here till five because it's Friday.

622
00:23:10,760 --> 00:23:11,760
But yeah.

623
00:23:11,760 --> 00:23:14,600
And then I won't be here on Monday because it's a holiday.

624
00:23:14,600 --> 00:23:16,000
So that's right.

625
00:23:16,000 --> 00:23:21,240
But I just wanted I just wanted to say that because it applies to a lot of things that

626
00:23:21,240 --> 00:23:26,040
are happening right now because the legislative season is always hard and things are introduced

627
00:23:26,040 --> 00:23:28,280
and then things are taken away.

628
00:23:28,280 --> 00:23:33,920
And this personal care conversation that we're having in our state and even new administration

629
00:23:33,920 --> 00:23:34,920
changes.

630
00:23:34,920 --> 00:23:36,760
There's a lot of things happening.

631
00:23:36,760 --> 00:23:39,560
And I know that some people are so excited for the change.

632
00:23:39,560 --> 00:23:40,960
Some people are not excited.

633
00:23:40,960 --> 00:23:43,420
No matter what, it's still change.

634
00:23:43,420 --> 00:23:48,640
And when you're an individual who struggles with change, it's like, ah, it can seem like

635
00:23:48,640 --> 00:23:50,280
the end of the world.

636
00:23:50,280 --> 00:23:57,880
I saw a TikTok of this sweep, sweet adult who his trash day got moved.

637
00:23:57,880 --> 00:24:01,160
Oh, from Friday to Wednesday.

638
00:24:01,160 --> 00:24:05,560
And this this guy is like he's calling the city.

639
00:24:05,560 --> 00:24:10,920
And in his home, they had referred to it as like cute, cute Friday or something.

640
00:24:10,920 --> 00:24:13,000
And he's on the phone and he's like, I want cute Friday.

641
00:24:13,000 --> 00:24:14,680
I don't want cute Wednesday.

642
00:24:14,680 --> 00:24:19,240
And the mom had called the city in advance to let them know that her son would be calling

643
00:24:19,240 --> 00:24:20,400
to voice his opinion.

644
00:24:20,400 --> 00:24:22,280
And what I love is that she encouraged him.

645
00:24:22,280 --> 00:24:23,600
You call your city.

646
00:24:23,600 --> 00:24:25,000
You call your local officials.

647
00:24:25,000 --> 00:24:28,320
You make your voice heard, but just know that it might not change.

648
00:24:28,320 --> 00:24:30,480
And that's good to preface it that way.

649
00:24:30,480 --> 00:24:35,640
And so he did exercise rights and I want cute Friday back.

650
00:24:35,640 --> 00:24:37,500
And she said, I am so sorry.

651
00:24:37,500 --> 00:24:39,800
I hear that you want to move to trash day.

652
00:24:39,800 --> 00:24:43,080
But right now, this is what we've decided is best for our community.

653
00:24:43,080 --> 00:24:44,080
And we voted on it.

654
00:24:44,080 --> 00:24:50,120
And he very, very, very, very slowly navigated through that change.

655
00:24:50,120 --> 00:24:51,120
So we can all do it.

656
00:24:51,120 --> 00:24:52,120
I know.

657
00:24:52,120 --> 00:24:53,120
I love that.

658
00:24:53,120 --> 00:24:54,120
I'm going to show you that.

659
00:24:54,120 --> 00:24:55,120
See, again, she does.

660
00:24:55,120 --> 00:24:56,120
She wants to be off TikTok.

661
00:24:56,120 --> 00:24:59,840
And I'm like, when we show you this video, I'm slowly coming around.

662
00:24:59,840 --> 00:25:00,840
You're slow.

663
00:25:00,840 --> 00:25:02,440
I got to get my algorithm where I want it.

664
00:25:02,440 --> 00:25:04,080
I got to get it removed.

665
00:25:04,080 --> 00:25:06,760
Well, I don't know who ruined it.

666
00:25:06,760 --> 00:25:07,760
It's weird.

667
00:25:07,760 --> 00:25:08,760
I don't know.

668
00:25:08,760 --> 00:25:14,360
There's a person in the office next to me.

669
00:25:14,360 --> 00:25:18,560
But I think at the end of the day, all of that is really important that change is hard,

670
00:25:18,560 --> 00:25:23,680
no matter what changes, whether it's at the state level, the federal level, the local

671
00:25:23,680 --> 00:25:24,680
level.

672
00:25:24,680 --> 00:25:27,640
I mean, even some of our school districts are having a lot of change.

673
00:25:27,640 --> 00:25:32,240
We saw change at the beginning of the year with different, you know, in the umpire, exactly

674
00:25:32,240 --> 00:25:36,720
redrawing of some district lines and changing of schools and programs.

675
00:25:36,720 --> 00:25:39,120
So change is inevitable.

676
00:25:39,120 --> 00:25:40,760
I know that.

677
00:25:40,760 --> 00:25:41,760
I don't like it, though.

678
00:25:41,760 --> 00:25:42,760
I know.

679
00:25:42,760 --> 00:25:48,320
And it's so weird to voice that opinion out loud because there is sometimes when change

680
00:25:48,320 --> 00:25:50,760
goes the exact way I want it to go.

681
00:25:50,760 --> 00:25:52,960
And then I'm like, but did we really have to do it so fast?

682
00:25:52,960 --> 00:25:54,840
And it's like, am I ever going to make you happy?

683
00:25:54,840 --> 00:25:55,840
No.

684
00:25:55,840 --> 00:25:57,120
And I guess the short answer is no.

685
00:25:57,120 --> 00:25:58,120
Yeah.

686
00:25:58,120 --> 00:26:01,080
I think any kind of change just immediately sends my hackles up.

687
00:26:01,080 --> 00:26:03,120
And I'm like, I can't.

688
00:26:03,120 --> 00:26:04,120
Well.

689
00:26:04,120 --> 00:26:05,120
But I can.

690
00:26:05,120 --> 00:26:06,120
You can.

691
00:26:06,120 --> 00:26:07,120
And I will.

692
00:26:07,120 --> 00:26:08,120
Will.

693
00:26:08,120 --> 00:26:11,320
And if you have any questions about it, you can call iPoll and we will share with you

694
00:26:11,320 --> 00:26:13,480
all of the updated information.

695
00:26:13,480 --> 00:26:15,680
We're all navigating this together.

696
00:26:15,680 --> 00:26:16,680
Exactly.

697
00:26:16,680 --> 00:26:17,680
Yep.

698
00:26:17,680 --> 00:26:18,680
Exactly.

699
00:26:18,680 --> 00:26:31,320
Thank you so much, everyone out there for listening in and know that if you are in Idaho

700
00:26:31,320 --> 00:26:38,120
or planning on moving to Idaho and have questions on systems or services for children with disabilities,

701
00:26:38,120 --> 00:26:42,480
please consider reaching out to us on our website at iPoll Idaho.

702
00:26:42,480 --> 00:26:52,480
That's I-P-U-L Idaho.org or by calling us at 208-342-5884.

703
00:26:52,480 --> 00:26:54,520
Be sure to tune in next time.

704
00:26:54,520 --> 00:26:57,640
Until then, this has been Unlimited Parenting.

705
00:26:57,640 --> 00:26:58,640
Thanks for listening.

706
00:26:58,640 --> 00:27:01,640
And one last thing I want to tell you, because I couldn't get to the end of this book, but

707
00:27:01,640 --> 00:27:03,040
I hope you have a good one until the very end, whenever and wherever it speaks.

708
00:27:03,040 --> 00:27:04,040
OK, thanks for joining me.

