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Welcome to Unlimited Parenting where we discuss what it's like having children with disabilities

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and or special health care needs.

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Both.

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Why not?

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Why not?

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And we are here today with another installment of IPUL Found It on Facebook.

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This is a series where myself and Melissa and other IPUL staff members will go through

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local Idaho Facebook groups and find questions that we will give in-depth answers to here

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on this podcast.

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So with me today is Melissa.

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Welcome Melissa.

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Hello.

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Thanks for having me again.

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You're so welcome.

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Thank you for coming even though you don't have a choice.

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Today we are answering four questions.

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All right.

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So buckle up and prepare yourself.

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Only four?

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Only four.

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Those Facebook groups are wild.

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You just picked a good one.

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They have a lot of really good conversations but I also want to stay away from what is

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your favorite name of service, right?

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Who's your favorite OT?

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Yeah.

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So if we weed out some of those questions we get to ones like these.

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Okay.

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Good.

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So the first one is have you ever heard of the Talking Book Service?

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I have heard of it.

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And that is the exact same way that I felt when I read that comment.

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Yes.

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Have I heard of it?

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Yes.

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Do I know how to link you to it?

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Yes.

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Yes.

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I could do that.

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But do I know a lot more about it?

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Not as much as I should.

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So I took this opportunity.

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Yay.

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To educate.

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To educate all of us.

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Okay.

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As always the link to this will be provided in the description box below but it's IdahoTalkingBooks.org

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and as you can imagine this is linked through the library.

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That's where I've heard about it is our friends at the Commission on the Libraries.

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But you're going to elaborate.

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A little bit.

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Okay.

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Yeah.

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And hopefully now everyone knows more too.

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Okay.

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So it is lovingly referred to as TBS, not Taking Back Sunday for those elder millennials,

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but Idaho Talking Book Service.

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You don't know Taking Back Sunday?

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I'm not an elder millennial.

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I'm 18 myself.

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I'm not a boomer either but I'm in my...

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You really don't know Taking Back Sunday?

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No I don't.

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I'm a veteran.

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It's a band.

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What?

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I don't know that.

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No.

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Do you know My Chemical Romance?

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Yeah.

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The Idaho Talking Book Service is a free, everyone's favorite word, convenient audiobook library

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service for Idahoans who are unable to read standard print due to things like low vision,

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blindness, perceptual or even a reading disability.

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And I don't know why but that last one was something that I had not considered.

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Of course that should be accessible to you if you had a reading disability.

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The service is completely free for users who receive titles by downloading them and or

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having the materials mailed directly to them at their residence at no cost.

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Wow.

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Really?

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Yes.

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So cartridges like the old school way, like eight tracks almost.

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Okay.

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Or accessing so I'm assuming CDs, cassettes.

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Wow.

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Okay.

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Did you ever...

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I had no idea.

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Did you ever pop a cassette in to listen to a book back in the day?

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No.

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I did.

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You did?

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Mm-hmm.

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I read a lot of Tolstoy that way just listening to it in the car.

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It's dry.

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It's hard to read.

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I'm sure.

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So even even me, an individual with no supports for visual...

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You were using...

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I was using it without ever even thinking of who the intended audience was.

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Well, isn't that the same thing with a lot of assistive technology?

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It starts off as assistive technology for people with disabilities and then it becomes

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this mass movement of everyone.

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It's universal.

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Everyone's using it.

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It's universal design.

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Originally, technology like that was so astronomically expensive and it wasn't accessible for the

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masses.

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And then technology became what it is.

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Apple became what it is and now we have tablets that are accessible for everyone.

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And then we can put programs on it like AAC devices, those types of things.

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So there you go.

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That's one.

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I love it.

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Even though you didn't ask for it.

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I did.

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You did.

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That's right.

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Never mind.

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Did you know that the Idaho Talking Book Service, again, lovingly referred to as TBS, not Taking

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Max Sunday, is available to Idaho residents in any of the following categories?

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Yes, please.

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No.

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I just remembered how I have heard about the Talking Book Service.

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Fred Riggers, when hit.

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So Fred Riggers, for all of us in Idaho, was a disability champion.

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And every February we celebrate Disability Awareness Day down at the state capitol and

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we lovingly refer to it as Fred Riggers Disability Awareness Day.

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Last year when his daughter gave the speech, because Fred is no longer with us, his daughter

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talked about how Fred, because Fred lost his vision later in life.

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Because he was a farmer as a farmer.

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He started accessing the Talking Book Service.

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That's how I have heard of it.

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How have I forgotten that story?

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I don't know, but that I just put two and two together.

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So Fred Riggers is our connection to the Talking Book Service.

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I have a friend in his long hair and a tie.

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So I just made that connection and that's how I've heard of it.

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I'm sure our friends at the Commission on the Libraries have talked about it extensively

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as well, but I know it from Fred Riggers and his daughter talking to us about it last year

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at Disability Awareness Day.

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Well squirrel, sorry.

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No, something tells me that Fred Riggers would have accessed it as an individual who is blind

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or has a visual impairment that makes them unable to comfortably read books with print,

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which I love that.

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I love the language that the Talking Book Service uses.

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If you can comfortably read it.

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It makes it sound less, what's the word?

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You know the flailing.

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Durable medical equipment.

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More access to everyday information.

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It's regular everyday people.

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Or an individual who has a perceptual or reading disability.

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An individual who has a physical disability that makes it difficult to hold or manipulate

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a book, i.e. turning pages.

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Or to focus or move their eyes as needed to read a print book.

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Or facilities like schools, hospitals, nursing homes that regularly serve clientele meeting

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eligibility requirements.

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And you may be asking yourself, Allison, this sounds like an audiobook, like Audible.

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That is, I was actually going to ask you that.

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Where you read my mind.

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Well thank you, because I would love to tell you why.

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So there's two reasons where it's more accessible and different than an audiobook.

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So the first is, once your application is approved, you or your caregiver will receive

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a phone call from the Talking Book Service.

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They're going to set you up an account in a way that works best for you.

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You're not going to get that from Audible.

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Maybe you love westerns.

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Or you can't get enough of biographies.

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There are more than a hundred thousand fiction and nonfiction audiobook titles available,

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along with 70 magazines and a selection of locally recorded audiobooks and magazines

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about Idaho and the northwest.

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You're kidding, that is so cool.

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How cool is that?

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You're not going to get that on Audible.

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No.

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The individual who helps you set up your account can even find books just from the name of

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a character.

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You're basically getting a curated service.

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You are.

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Isn't that wild?

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There's also an online catalog to search for available titles and new patrons narrow down

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their reading choices.

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They decide how many audiobooks they would like to receive and how often.

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Again, that is something that's different from, let's say, just our regular local library,

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their audiobook selection, right?

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You don't get to decide how many you want.

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I mean, you have a cap.

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You can only pick so many.

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Another way it's different than a service such as Audible or potentially just the traditional

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library is that you can also download titles to a computer or a device via Braille and

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audio reading download, BARD.

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BARD Express is an easy way for patrons to access BARD on their computer, which is amazing.

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And not only that, but you can receive help with BARD from a customer service representative

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if you're having some kind of technical difficulties.

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The way the library as a whole just bends over backwards to assist people is something

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that will never not be heartwarming to me.

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I agree.

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Well, hardly.

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It is just...and you know I don't take advantage of the library as often as I should.

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You know that I'm a bad person.

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I'm a bad citizen.

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I could live at the library.

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I know this is so cool.

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My son has all of these.

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This is absolutely a service that we could be accessing.

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And I could tell them that I want books that are all about Bluey.

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I could pick a character and have it curated for Reese.

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What are some topics that would interest him?

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That while not the same as the Talking Books Service, the library also has those Tony boxes.

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So you could borrow a Tony box and then borrow the Bluey figurine.

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Yeah, you can try it before you buy it.

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I didn't have the Tony box.

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Melissa, hold on.

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Are you seated?

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I'm wearing your seatbelt.

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At the library, you can check out Nintendo Switch games.

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You can check out other console games.

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You can check out like regular board games.

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Some locations you can check out like a fishing pole.

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What?

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The way you can get anything at the library.

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This is turning into a library podcast.

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I love the library.

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Wow.

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I love the library.

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Okay.

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Again, this will be in the description box, but I'm going to include the phone number,

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the email, the address, which if you're not local to the Treasure Valley, it is in Boise.

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It's off State Street.

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Okay.

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But again, like I mentioned before, they can mail you.

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Okay.

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So any Idaho resident?

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Any Idaho resident.

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Okay.

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The hours are just your typical Monday through Friday, 8 to 5.

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Yay.

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So thank you for adding that little caveat about Fredriggers though, because that really

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brings life to this section.

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I love that.

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I cannot believe that I forgot about that from last year.

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I just connected for some reason.

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I was like hyperglycemic from eating too many cookies.

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Maybe.

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Or sexy.

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Yeah.

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Disability Awareness Day will do that to you.

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There's a lot of cookies.

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There's a lot of cookies.

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This next question, I want you to keep it very realistic, nothing fancy-pancy.

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Just tell what you really do.

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And I think I specifically picked this question because I would like to bring to light everybody

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struggles with this.

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There is no perfect person.

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There can be perfect days.

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And remember, social media is a liar.

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And so if they show you one thing, the other side of the room may look completely different.

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So having said all of that, the question is, how do you keep your house clean when you

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have children with disabilities?

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The answer is nothing is ever clean.

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This is your life now.

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Yeah.

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Yeah.

264
00:11:54,360 --> 00:11:59,440
I will tell you, we got a robot vacuum and that was helpful.

265
00:11:59,440 --> 00:12:00,440
Clean Latifa.

266
00:12:00,440 --> 00:12:04,040
She named her robot vacuum Clean Latifa.

267
00:12:04,040 --> 00:12:10,040
And she removes one task daily that I always had to do when we got, you know, with dogs

268
00:12:10,040 --> 00:12:12,840
and kids and all of that.

269
00:12:12,840 --> 00:12:13,840
So that was helpful.

270
00:12:13,840 --> 00:12:15,960
It's never clean.

271
00:12:15,960 --> 00:12:20,160
It's always three steps forward, two steps forward, three steps back.

272
00:12:20,160 --> 00:12:22,400
But that's still two steps forward.

273
00:12:22,400 --> 00:12:24,320
Yeah, you're right.

274
00:12:24,320 --> 00:12:25,400
And I guess that's what I do.

275
00:12:25,400 --> 00:12:29,640
I really try to pick a room a day and that's what we do.

276
00:12:29,640 --> 00:12:30,640
That's smart.

277
00:12:30,640 --> 00:12:37,280
So when I was a stay at home mom, which hands down the hardest job I've ever had in my life.

278
00:12:37,280 --> 00:12:39,000
I would absolutely agree.

279
00:12:39,000 --> 00:12:40,760
When I was a stay at home mom, that's what I did.

280
00:12:40,760 --> 00:12:42,600
I had this like weekly schedule.

281
00:12:42,600 --> 00:12:48,320
Saturday and Sunday was like the yard and Monday was the kids rooms and Tuesday was

282
00:12:48,320 --> 00:12:49,320
a bathroom.

283
00:12:49,320 --> 00:12:51,120
And that's kind of how I survived.

284
00:12:51,120 --> 00:12:52,120
Yeah.

285
00:12:52,120 --> 00:12:59,160
But now that I'm not a stay at home mom, and I obviously work a little bit at least, I

286
00:12:59,160 --> 00:13:07,300
do have a system, but I don't know if it's sustainable for me.

287
00:13:07,300 --> 00:13:10,360
But I don't know if that's because I am who I am.

288
00:13:10,360 --> 00:13:11,360
You know what I mean?

289
00:13:11,360 --> 00:13:12,360
Okay, so here we go.

290
00:13:12,360 --> 00:13:15,320
I do...

291
00:13:15,320 --> 00:13:20,560
I'm laughing because some people will say, you know, sitting down is like the arch nemesis

292
00:13:20,560 --> 00:13:21,560
to cleaning.

293
00:13:21,560 --> 00:13:23,840
Like if you sit down, you'll never get back up again and finish.

294
00:13:23,840 --> 00:13:27,040
If you had the gumption and you were cleaning and then you're like, I'm going to take a

295
00:13:27,040 --> 00:13:28,040
little break.

296
00:13:28,040 --> 00:13:29,040
And then you never come back.

297
00:13:29,040 --> 00:13:30,040
Yeah.

298
00:13:30,040 --> 00:13:31,040
I'm the opposite of that.

299
00:13:31,040 --> 00:13:36,200
So what I do is I take an hour and I split it up.

300
00:13:36,200 --> 00:13:41,620
So I'll do 20 minutes on, so 20 minutes of a task and then 40 minutes off, 40 minutes

301
00:13:41,620 --> 00:13:43,840
of doing whatever I want.

302
00:13:43,840 --> 00:13:48,600
And I do that from the moment I get home from work until I go to bed.

303
00:13:48,600 --> 00:13:53,400
And I've been doing that for five and a half months now.

304
00:13:53,400 --> 00:13:57,200
And my husband made fun of me in a loving, sweet way.

305
00:13:57,200 --> 00:13:58,880
He kind of like, this will never last.

306
00:13:58,880 --> 00:14:01,300
Like that doesn't sound sustainable at all.

307
00:14:01,300 --> 00:14:04,440
I don't know what it is, but that has clicked for me.

308
00:14:04,440 --> 00:14:06,240
It's 21 days to form a habit.

309
00:14:06,240 --> 00:14:07,240
Right?

310
00:14:07,240 --> 00:14:08,240
You did it.

311
00:14:08,240 --> 00:14:09,240
Exactly.

312
00:14:09,240 --> 00:14:12,000
I did it, but I don't know why that that works.

313
00:14:12,000 --> 00:14:20,080
I think it's kind of because I love these little blips on YouTube, these little shows

314
00:14:20,080 --> 00:14:23,320
that the channels that I sub, the shows are 30 minutes.

315
00:14:23,320 --> 00:14:24,320
Okay.

316
00:14:24,320 --> 00:14:27,000
So in that 40 minute of your downtime, right?

317
00:14:27,000 --> 00:14:31,580
So 30 minutes off, I watch a show and then I pop up and I clean for 20 minutes.

318
00:14:31,580 --> 00:14:35,340
And I have this like almost down to a science.

319
00:14:35,340 --> 00:14:40,960
So sometimes I'll set like a visual timer that we have for our kids and I'll set it

320
00:14:40,960 --> 00:14:43,620
up and I'll watch 20 minutes tick away.

321
00:14:43,620 --> 00:14:47,520
Sometimes I'll get an audio book and then I'll set the timer on the audio book so it

322
00:14:47,520 --> 00:14:50,320
just cuts off after 20 minutes.

323
00:14:50,320 --> 00:14:57,920
Or I pick three to four songs that equate to exactly 20 minutes.

324
00:14:57,920 --> 00:15:00,480
And I have them in a playlist in my phone.

325
00:15:00,480 --> 00:15:02,280
Is your 20 minute cleaning playlist?

326
00:15:02,280 --> 00:15:03,280
Yeah.

327
00:15:03,280 --> 00:15:04,280
But I use several.

328
00:15:04,280 --> 00:15:06,160
I can get like different kinds of variety.

329
00:15:06,160 --> 00:15:07,420
But then I know, right?

330
00:15:07,420 --> 00:15:10,080
Because there's a different- Cleaning needs different music.

331
00:15:10,080 --> 00:15:11,080
Exactly.

332
00:15:11,080 --> 00:15:14,000
Sometimes Lil Jon and the East Side Boys.

333
00:15:14,000 --> 00:15:15,520
And then other times is Katie Lang.

334
00:15:15,520 --> 00:15:18,840
You never know what you're going to get.

335
00:15:18,840 --> 00:15:21,640
Katie Lang is not where I thought we were going.

336
00:15:21,640 --> 00:15:22,640
So you're right.

337
00:15:22,640 --> 00:15:25,560
You never know with Alison what you're going to get.

338
00:15:25,560 --> 00:15:27,720
I don't think that's the- I could never do that.

339
00:15:27,720 --> 00:15:30,880
But I feel like also it really breaks it down.

340
00:15:30,880 --> 00:15:35,920
So like, okay, I'll give you another example of why I think this works for me.

341
00:15:35,920 --> 00:15:36,920
And you know what?

342
00:15:36,920 --> 00:15:37,920
Sometimes- It doesn't happen.

343
00:15:37,920 --> 00:15:41,600
So what you do is you pick those little tasks for 20 minutes.

344
00:15:41,600 --> 00:15:42,600
And you know what?

345
00:15:42,600 --> 00:15:45,200
It's up to you how you use those 20 minutes.

346
00:15:45,200 --> 00:15:49,160
So you could be- it could take you 20 minutes to clean a bathroom sink.

347
00:15:49,160 --> 00:15:51,720
How motivated are you, right?

348
00:15:51,720 --> 00:15:55,640
So sometimes I'm out here cleaning a whole bathroom in 20 minutes and sometimes I'm like,

349
00:15:55,640 --> 00:15:57,980
oh, I missed a spot on the sink.

350
00:15:57,980 --> 00:16:00,400
And it's still, you know, it's up to you.

351
00:16:00,400 --> 00:16:03,720
But I still think like, oh, I still clean for 20 minutes.

352
00:16:03,720 --> 00:16:06,380
So here, let me give you a real example of why this works.

353
00:16:06,380 --> 00:16:10,560
So sometimes I look at a big task and I'm like, I'm never- I can't, I don't have the

354
00:16:10,560 --> 00:16:12,600
energy to do that.

355
00:16:12,600 --> 00:16:14,840
Do as much as you can in 20 minutes.

356
00:16:14,840 --> 00:16:17,600
So I have an island in my kitchen.

357
00:16:17,600 --> 00:16:22,400
And on one side of it is the sink, on the other side of it is the bar stools.

358
00:16:22,400 --> 00:16:26,820
And my children, for whatever reason, will not take off their shoes.

359
00:16:26,820 --> 00:16:37,080
So they kick at this island and it's just Nutella and shoe marks and Crayola marker.

360
00:16:37,080 --> 00:16:40,120
And I look at it and I go home and I start crying, right?

361
00:16:40,120 --> 00:16:41,880
Like the bane of my existence.

362
00:16:41,880 --> 00:16:44,880
I tell you what, you can get that thing so clean in 20 minutes.

363
00:16:44,880 --> 00:16:46,160
You just get a magic eraser out.

364
00:16:46,160 --> 00:16:50,560
And you feel so good afterwards because then the little piece board right underneath of

365
00:16:50,560 --> 00:16:54,240
it is clean and you can vacuum and you don't even have to mop.

366
00:16:54,240 --> 00:16:58,600
You just get those like Lysol or Clorox wipes, put them on your feet and just scrub at the

367
00:16:58,600 --> 00:16:59,600
floor.

368
00:16:59,600 --> 00:17:05,080
20 minutes goes by and you're like, holy crap, this looks so nice.

369
00:17:05,080 --> 00:17:06,840
And you know what that does, my friend?

370
00:17:06,840 --> 00:17:08,800
It motivates you.

371
00:17:08,800 --> 00:17:10,000
So then you have an option.

372
00:17:10,000 --> 00:17:11,920
You can say, hey, I am so motivated.

373
00:17:11,920 --> 00:17:15,620
I'm going to keep cleaning or I'm going to take my 40 minute break.

374
00:17:15,620 --> 00:17:17,440
Sometimes I just keep on going.

375
00:17:17,440 --> 00:17:19,800
You just need a little bit to get you started.

376
00:17:19,800 --> 00:17:21,920
It doesn't sound like this plan would work for you though.

377
00:17:21,920 --> 00:17:22,920
I don't know.

378
00:17:22,920 --> 00:17:28,320
I need some kind of a plan, but I look, but maybe it would because I look at the heaping

379
00:17:28,320 --> 00:17:31,160
pile of laundry and I'm like, nah, it'll be there tomorrow.

380
00:17:31,160 --> 00:17:32,920
We got enough clothes left.

381
00:17:32,920 --> 00:17:35,560
See and I'm right because we do.

382
00:17:35,560 --> 00:17:39,040
It's really funny that you bring that up.

383
00:17:39,040 --> 00:17:45,080
I will just out myself right here and right now on air live.

384
00:17:45,080 --> 00:17:48,760
I love doing laundry.

385
00:17:48,760 --> 00:17:49,960
I know, I know.

386
00:17:49,960 --> 00:17:52,200
I just tanked in the poles.

387
00:17:52,200 --> 00:17:55,200
I am so unrelatable and unlovable.

388
00:17:55,200 --> 00:17:58,400
People are going to stop listening.

389
00:17:58,400 --> 00:18:01,400
Thanks a lot.

390
00:18:01,400 --> 00:18:03,720
You can do sit down and fold it.

391
00:18:03,720 --> 00:18:06,280
Sometimes, sometimes I stand up and watch a show.

392
00:18:06,280 --> 00:18:07,280
Do you know what else?

393
00:18:07,280 --> 00:18:08,280
You know what else?

394
00:18:08,280 --> 00:18:11,680
That 20 minutes or whatever, 40 minutes in downtime.

395
00:18:11,680 --> 00:18:12,880
I fold laundry in my day.

396
00:18:12,880 --> 00:18:14,240
So I could do, I do that.

397
00:18:14,240 --> 00:18:15,520
And I guess that's why I get mad.

398
00:18:15,520 --> 00:18:17,800
Like I'm like, this is my time.

399
00:18:17,800 --> 00:18:18,800
This is my time.

400
00:18:18,800 --> 00:18:22,440
Because I'm not doing my laundry, I'm doing everyone else's.

401
00:18:22,440 --> 00:18:25,160
See, and yes, that's my problem.

402
00:18:25,160 --> 00:18:26,560
I know we've been about this.

403
00:18:26,560 --> 00:18:30,000
I can get behind the washing, the drying and the folding.

404
00:18:30,000 --> 00:18:32,200
I truly don't like putting it away.

405
00:18:32,200 --> 00:18:33,200
Yeah.

406
00:18:33,200 --> 00:18:34,200
I don't like putting it away.

407
00:18:34,200 --> 00:18:35,200
What I hate are socks.

408
00:18:35,200 --> 00:18:36,200
I just hate socks.

409
00:18:36,200 --> 00:18:37,600
There's six people in our house.

410
00:18:37,600 --> 00:18:41,400
A lot of them have the same size feet and it is so hard.

411
00:18:41,400 --> 00:18:45,560
Do you just put, I have different kind of socks because they're all weirdos and like

412
00:18:45,560 --> 00:18:46,800
different kind of things.

413
00:18:46,800 --> 00:18:50,000
And so I don't do this personally, but I had a friend growing up.

414
00:18:50,000 --> 00:18:55,000
I would always go over to her house and her mom kept all of the socks in a laundry basket

415
00:18:55,000 --> 00:18:56,320
and you had to fend for yourself.

416
00:18:56,320 --> 00:18:59,920
That's what we, that's how much she hated folding socks.

417
00:18:59,920 --> 00:19:01,960
That is the current situation of the morning.

418
00:19:01,960 --> 00:19:03,560
And I support the buying house.

419
00:19:03,560 --> 00:19:04,560
I do.

420
00:19:04,560 --> 00:19:07,640
It is a community sock ban and it is fair all the way.

421
00:19:07,640 --> 00:19:08,800
We're just pulling socks out.

422
00:19:08,800 --> 00:19:09,920
But you know what?

423
00:19:09,920 --> 00:19:12,640
Your kids have socks and that's all that matters.

424
00:19:12,640 --> 00:19:13,640
You're exactly right.

425
00:19:13,640 --> 00:19:16,080
They might not match, but they have socks on.

426
00:19:16,080 --> 00:19:18,200
Reese doesn't care.

427
00:19:18,200 --> 00:19:20,440
A couple of other things, but I appreciate that.

428
00:19:20,440 --> 00:19:27,920
I think as a special needs family, we need more of a routine for our cleaning.

429
00:19:27,920 --> 00:19:29,480
So I can get behind this.

430
00:19:29,480 --> 00:19:33,000
It works for some people, but it doesn't work for others.

431
00:19:33,000 --> 00:19:34,000
Once a routine.

432
00:19:34,000 --> 00:19:37,600
I mean, I, yeah, we got to get through some sports seasons.

433
00:19:37,600 --> 00:19:38,800
I think that's what's killing me.

434
00:19:38,800 --> 00:19:39,800
Right?

435
00:19:39,800 --> 00:19:40,800
Yeah.

436
00:19:40,800 --> 00:19:41,800
Yeah.

437
00:19:41,800 --> 00:19:42,800
I don't know, but you're right.

438
00:19:42,800 --> 00:19:44,160
A routine would be really helpful.

439
00:19:44,160 --> 00:19:47,120
So take what resonates and we expect doesn't.

440
00:19:47,120 --> 00:19:48,120
Right?

441
00:19:48,120 --> 00:19:52,880
So here's a few more things I thought of and or read.

442
00:19:52,880 --> 00:19:57,560
Number one, like you, we've kind of already touched on this, try to build in habits.

443
00:19:57,560 --> 00:20:02,680
This is something that I heard about on TikTok and I think it's kind of like my system just

444
00:20:02,680 --> 00:20:09,680
on the other side of the continuum where this woman has said every time she does something,

445
00:20:09,680 --> 00:20:11,640
she kind of just cleans up.

446
00:20:11,640 --> 00:20:16,340
Not like cleaning up after herself or cleaning as you go, but she's brushing her teeth and

447
00:20:16,340 --> 00:20:20,960
while she's brushing her teeth, she leaves her bathroom and just cleans her kids sink.

448
00:20:20,960 --> 00:20:22,800
She like does like with like.

449
00:20:22,800 --> 00:20:23,800
Okay.

450
00:20:23,800 --> 00:20:25,160
So she's and that's a tasking.

451
00:20:25,160 --> 00:20:26,160
Yeah.

452
00:20:26,160 --> 00:20:28,040
That's a system that really worked for her.

453
00:20:28,040 --> 00:20:31,160
You know, you gave me a really good idea a while ago and I did it for a while.

454
00:20:31,160 --> 00:20:32,160
Oh my God.

455
00:20:32,160 --> 00:20:33,160
I saw it.

456
00:20:33,160 --> 00:20:34,160
I'm gonna write that down.

457
00:20:34,160 --> 00:20:35,160
I write that down.

458
00:20:35,160 --> 00:20:36,160
This is going to be on a plaque in her office.

459
00:20:36,160 --> 00:20:37,160
Okay.

460
00:20:37,160 --> 00:20:40,120
So everyone knows.

461
00:20:40,120 --> 00:20:46,480
I got a new washer and dryer and it has the ability to do a delayed wash and so for a

462
00:20:46,480 --> 00:20:51,340
while I was really, really getting in the habit of leaving for work, putting a load

463
00:20:51,340 --> 00:20:56,000
in setting it as a delayed wash so that it would be done right when I got home to be

464
00:20:56,000 --> 00:20:58,360
able to move that to the dryer and that worked.

465
00:20:58,360 --> 00:21:00,960
It was really sustainable and I need to get back in the habit of that.

466
00:21:00,960 --> 00:21:01,960
I forgot about that.

467
00:21:01,960 --> 00:21:03,720
That was a good use of a system.

468
00:21:03,720 --> 00:21:05,280
You forgot about that?

469
00:21:05,280 --> 00:21:06,280
I forgot.

470
00:21:06,280 --> 00:21:07,280
I don't know what happened.

471
00:21:07,280 --> 00:21:10,240
I just squirreled and I went on and I got something else.

472
00:21:10,240 --> 00:21:11,240
Yeah.

473
00:21:11,240 --> 00:21:12,240
Yeah.

474
00:21:12,240 --> 00:21:13,240
Someone needs something.

475
00:21:13,240 --> 00:21:17,040
My problem is if I lose one day, I can't get off of our routine.

476
00:21:17,040 --> 00:21:18,040
That is really hard.

477
00:21:18,040 --> 00:21:19,040
Yeah.

478
00:21:19,040 --> 00:21:20,040
That is really hard.

479
00:21:20,040 --> 00:21:21,040
It's only gonna get better.

480
00:21:21,040 --> 00:21:22,040
I'll text.

481
00:21:22,040 --> 00:21:23,040
That was a really good idea.

482
00:21:23,040 --> 00:21:24,040
Yeah, you text me.

483
00:21:24,040 --> 00:21:25,040
Okay.

484
00:21:25,040 --> 00:21:26,040
Every morning.

485
00:21:26,040 --> 00:21:27,040
Put your laundry in.

486
00:21:27,040 --> 00:21:30,840
Another one that I read, which okay, from here on out, some of these are going to seem fairly

487
00:21:30,840 --> 00:21:37,240
obvious but decluttering I think is something and this kind of pairs in with the next one

488
00:21:37,240 --> 00:21:42,000
I decluttered last night at my coat closet and always remembered I have them in my car

489
00:21:42,000 --> 00:21:43,000
for you.

490
00:21:43,000 --> 00:21:45,000
Yes, I love a good coat.

491
00:21:45,000 --> 00:21:47,040
I guess I do, Dookie.

492
00:21:47,040 --> 00:21:52,360
So yeah, decluttering and that pairs with something else, which is evaluating the function

493
00:21:52,360 --> 00:21:57,120
of the items that you have in your home and I think that this really resonated with me

494
00:21:57,120 --> 00:22:05,200
as a special needs parent because I love the little choch keys and you know what?

495
00:22:05,200 --> 00:22:12,880
I'll be darned if those don't get broken or lost or in some cases used as a weapon but

496
00:22:12,880 --> 00:22:23,040
I have to look at that from a mom perspective, a mom of a parent of a child with disabilities

497
00:22:23,040 --> 00:22:24,040
and say I love this.

498
00:22:24,040 --> 00:22:28,160
I'm gonna wrap it in bubble wrap and maybe it'll come out again someday.

499
00:22:28,160 --> 00:22:32,140
It doesn't mean I need to get rid of it but I need to evaluate the function of my home.

500
00:22:32,140 --> 00:22:37,120
Another way that I did that is our dining room.

501
00:22:37,120 --> 00:22:39,440
We don't have a table in our dining room.

502
00:22:39,440 --> 00:22:42,820
We eat at the counter like I mentioned.

503
00:22:42,820 --> 00:22:48,440
That area now has a swing and a crash pad and all kinds of stuff.

504
00:22:48,440 --> 00:22:53,020
Evaluate your rooms and how to, you know what?

505
00:22:53,020 --> 00:22:54,780
Sometimes you might love a shag house.

506
00:22:54,780 --> 00:22:59,160
You might love a shag carpet but maybe this is not the season of your, I mean really is

507
00:22:59,160 --> 00:23:00,160
there any season?

508
00:23:00,160 --> 00:23:02,720
I don't know why I prefer a shag carpet but maybe.

509
00:23:02,720 --> 00:23:06,560
I got a lamp for the first time like two years ago.

510
00:23:06,560 --> 00:23:13,000
We were not a lamp family because lamps would be either knocked over or thrown over or run

511
00:23:13,000 --> 00:23:18,720
into or we couldn't be a lamp family and then we got to that stage where we couldn't.

512
00:23:18,720 --> 00:23:19,720
But now you can.

513
00:23:19,720 --> 00:23:20,720
Yeah, now you can.

514
00:23:20,720 --> 00:23:21,720
Yes.

515
00:23:21,720 --> 00:23:26,080
So I think that's another way to maintain cleanliness is don't, I guess at the end of

516
00:23:26,080 --> 00:23:30,600
the day what I'm trying to say is don't break your back trying to clean something if it's

517
00:23:30,600 --> 00:23:33,880
just something that you're cleaning.

518
00:23:33,880 --> 00:23:36,640
And saying that just makes me think throw the kids out, right?

519
00:23:36,640 --> 00:23:40,080
Because if you can't, then they'll let you.

520
00:23:40,080 --> 00:23:41,080
Another thing.

521
00:23:41,080 --> 00:23:44,080
I don't give a fuck.

522
00:23:44,080 --> 00:23:45,080
Right.

523
00:23:45,080 --> 00:23:46,440
The old reliable's, right?

524
00:23:46,440 --> 00:23:49,580
Lean on a family member, have someone come and help you clean.

525
00:23:49,580 --> 00:23:55,360
Maybe even do that like parallel play where you have someone with you to watch you clean

526
00:23:55,360 --> 00:24:00,120
that can sometimes help motivate people and make it a game with your kid to the extent

527
00:24:00,120 --> 00:24:05,400
that they're able to help with chores, whether that's developmentally or physically to the

528
00:24:05,400 --> 00:24:07,440
extent that they're able.

529
00:24:07,440 --> 00:24:10,560
My son thinks it's so fun to put the laundry away.

530
00:24:10,560 --> 00:24:11,560
Really?

531
00:24:11,560 --> 00:24:12,560
He loves it.

532
00:24:12,560 --> 00:24:13,560
And I'm like, hey, guess what?

533
00:24:13,560 --> 00:24:14,560
I'm done, Jack.

534
00:24:14,560 --> 00:24:15,560
You put it away.

535
00:24:15,560 --> 00:24:17,560
I'll show him where everything goes.

536
00:24:17,560 --> 00:24:20,560
And then he goes, Silas, this is not where the shirts belong.

537
00:24:20,560 --> 00:24:21,560
Oh my God.

538
00:24:21,560 --> 00:24:23,560
I've never lived anything more.

539
00:24:23,560 --> 00:24:25,560
That's funny.

540
00:24:25,560 --> 00:24:26,560
All right.

541
00:24:26,560 --> 00:24:27,800
That's what we have.

542
00:24:27,800 --> 00:24:31,000
We hope you liked some part of that.

543
00:24:31,000 --> 00:24:37,520
And I mean, feel free to send us a form telling us what you liked and we can include it.

544
00:24:37,520 --> 00:24:38,520
Can I add one other thing?

545
00:24:38,520 --> 00:24:39,520
Please do.

546
00:24:39,520 --> 00:24:50,120
I would say if you are struggling, if you are a family that has a child with very complex

547
00:24:50,120 --> 00:24:54,080
and fragile medical needs in the Treasure Valley, there is an organization called Raise For

548
00:24:54,080 --> 00:24:57,200
Rare that will help families out with housecleaning.

549
00:24:57,200 --> 00:25:01,760
So if there's maybe if this was a family member on Facebook that was reaching out because they

550
00:25:01,760 --> 00:25:07,920
are just spent and their child is very medically fragile and they don't have the ability to

551
00:25:07,920 --> 00:25:11,600
clean their house, I don't know what the context of this question was, but Raise For Rare is

552
00:25:11,600 --> 00:25:17,480
a rare, is an organization for rare families that can help with some of those things.

553
00:25:17,480 --> 00:25:19,600
So I would just plug that.

554
00:25:19,600 --> 00:25:20,600
I love it.

555
00:25:20,600 --> 00:25:21,600
Yeah.

556
00:25:21,600 --> 00:25:23,280
They're not coming to my mind.

557
00:25:23,280 --> 00:25:27,280
It's not an organization that's going to help families that have behavioral needs.

558
00:25:27,280 --> 00:25:33,320
It is an organization specifically for families with rare diagnosis and diseases that are

559
00:25:33,320 --> 00:25:35,040
very, very medically complex.

560
00:25:35,040 --> 00:25:38,800
So yeah, if it's applicable, let that be a resource that you lean on.

561
00:25:38,800 --> 00:25:39,800
Right?

562
00:25:39,800 --> 00:25:40,800
Sorry.

563
00:25:40,800 --> 00:25:41,800
That was just a thought I had.

564
00:25:41,800 --> 00:25:42,800
No, it was wonderful.

565
00:25:42,800 --> 00:25:43,800
Thank you.

566
00:25:43,800 --> 00:25:50,720
Last but not least, the final question, what is an ABLE account and does my child need

567
00:25:50,720 --> 00:25:51,720
one?

568
00:25:51,720 --> 00:25:53,880
Oh, we shifted gears.

569
00:25:53,880 --> 00:25:54,880
We did.

570
00:25:54,880 --> 00:25:55,880
Sorry.

571
00:25:55,880 --> 00:25:56,880
This is a big shift.

572
00:25:56,880 --> 00:26:02,760
So I think my simplest answer and then I'll let you expand on it because I know you are

573
00:26:02,760 --> 00:26:06,560
a family who actually has an ABLE account.

574
00:26:06,560 --> 00:26:12,160
And I love the part where you talk about, so no pressure, about how you found the bank.

575
00:26:12,160 --> 00:26:13,160
Yeah.

576
00:26:13,160 --> 00:26:14,160
Okay.

577
00:26:14,160 --> 00:26:19,200
The simplest answer, listeners, is that an ABLE account is a savings account for people

578
00:26:19,200 --> 00:26:21,400
with disabilities and their family.

579
00:26:21,400 --> 00:26:28,160
And it's a result of the passing of the ABLE Act of 2014, so 2014, that provides the opportunity

580
00:26:28,160 --> 00:26:35,360
for individuals with disabilities to save money beyond their typical resource limits.

581
00:26:35,360 --> 00:26:40,720
So they're for eligible individuals to save money to purchase qualified goods and services

582
00:26:40,720 --> 00:26:46,520
that help them gain independence and choice without losing out on the assistance that

583
00:26:46,520 --> 00:26:47,520
they need.

584
00:26:47,520 --> 00:26:49,920
So maybe an ABLE account for prescriptions.

585
00:26:49,920 --> 00:26:50,920
Yeah.

586
00:26:50,920 --> 00:26:54,040
Prescriptions, equipment, vacations.

587
00:26:54,040 --> 00:27:02,680
I mean, it's a means to save money without your assets really being...

588
00:27:02,680 --> 00:27:08,960
So the reason I want to throw this one to you is because a comment I saw, and this is

589
00:27:08,960 --> 00:27:12,760
valid, but I want you to explain the workaround, I guess.

590
00:27:12,760 --> 00:27:15,920
A family said you can't get that in Idaho.

591
00:27:15,920 --> 00:27:19,880
And they're not correct, but I would like you to explain more about it.

592
00:27:19,880 --> 00:27:23,600
So Idaho banking institutions don't offer ABLE accounts.

593
00:27:23,600 --> 00:27:26,180
However, there are federal institutions.

594
00:27:26,180 --> 00:27:27,880
We just went to our...

595
00:27:27,880 --> 00:27:28,880
We bank at Chase Bank.

596
00:27:28,880 --> 00:27:32,960
Chase Bank offers ABLE accounts on a federal or national level.

597
00:27:32,960 --> 00:27:37,260
So we just open a Chase account through, or an ABLE account through our Chase Bank.

598
00:27:37,260 --> 00:27:41,840
So if you're through CCU, you're not going to be able to access it.

599
00:27:41,840 --> 00:27:49,120
Wells Fargo, Chase, Ally, a lot of the bigger, even some of Charles Schwab.

600
00:27:49,120 --> 00:27:51,080
I almost said Les Schwab.

601
00:27:51,080 --> 00:27:52,080
You can't get an ABLE account.

602
00:27:52,080 --> 00:27:53,080
Les Schwab.

603
00:27:53,080 --> 00:27:54,080
Don't try.

604
00:27:54,080 --> 00:27:55,080
Don't do that.

605
00:27:55,080 --> 00:27:56,080
Please.

606
00:27:56,080 --> 00:28:02,660
But yeah, so those bigger national banking institutions will all have the ability for

607
00:28:02,660 --> 00:28:05,760
you as a family to open an ABLE account.

608
00:28:05,760 --> 00:28:07,720
So I will ask you this question.

609
00:28:07,720 --> 00:28:09,120
I'm going to put you on the spot.

610
00:28:09,120 --> 00:28:10,120
Sorry.

611
00:28:10,120 --> 00:28:11,120
I know.

612
00:28:11,120 --> 00:28:12,120
I bank at ICC.

613
00:28:12,120 --> 00:28:15,480
If I wanted to start an ABLE account, could I go to Chase just to start that?

614
00:28:15,480 --> 00:28:19,040
Or would I also have to open a checking account there?

615
00:28:19,040 --> 00:28:20,320
You are now...

616
00:28:20,320 --> 00:28:21,320
It's like chat GPT.

617
00:28:21,320 --> 00:28:23,920
You are now...

618
00:28:23,920 --> 00:28:25,800
I am a banking expert.

619
00:28:25,800 --> 00:28:28,480
And I don't know.

620
00:28:28,480 --> 00:28:30,480
I just from a...

621
00:28:30,480 --> 00:28:31,480
I'm going to find the answer.

622
00:28:31,480 --> 00:28:34,760
I'm assuming you would need to be a Chase customer.

623
00:28:34,760 --> 00:28:36,280
We already were.

624
00:28:36,280 --> 00:28:41,960
So I think their rule is that you have one bank account with $25 and then...

625
00:28:41,960 --> 00:28:42,960
Something like that.

626
00:28:42,960 --> 00:28:45,600
So it's essentially just a way to access the ABLE account.

627
00:28:45,600 --> 00:28:51,840
So can I ask if I have SSI or other public benefits, are there any limitations for an

628
00:28:51,840 --> 00:28:53,040
ABLE account?

629
00:28:53,040 --> 00:28:56,360
So that's why ABLE accounts exist.

630
00:28:56,360 --> 00:29:04,240
So that your social security, you don't stop gaining it if you're saving it.

631
00:29:04,240 --> 00:29:07,880
So because we know that there's income restrictions.

632
00:29:07,880 --> 00:29:12,800
So in a normal account, I think it's a $2,000 limit, right?

633
00:29:12,800 --> 00:29:13,800
I think.

634
00:29:13,800 --> 00:29:14,800
I don't know exactly what it is.

635
00:29:14,800 --> 00:29:23,160
But an ABLE account allows you to go up to $100,000 and it may have even changed in 2024.

636
00:29:23,160 --> 00:29:29,800
Jamie at the Silk, our state independent living council, is the ABLE guru for the state of

637
00:29:29,800 --> 00:29:30,800
Idaho.

638
00:29:30,800 --> 00:29:34,320
So I'm going to have...Alison's going to link Jamie's contact information too.

639
00:29:34,320 --> 00:29:40,800
So for Idaho families, they can reach out to Jamie at our state independent living council.

640
00:29:40,800 --> 00:29:42,560
But you can have $100,000.

641
00:29:42,560 --> 00:29:46,160
I believe it may have gone up to $125,000.

642
00:29:46,160 --> 00:29:49,480
For some reason, I kind of have that in my mind that she was saying that, but don't quote

643
00:29:49,480 --> 00:29:50,480
me on that.

644
00:29:50,480 --> 00:29:54,680
But it allows individuals to have that and carry that in there without penalty or without

645
00:29:54,680 --> 00:29:59,920
losing their social security benefits or any of their Medicaid or any of those.

646
00:29:59,920 --> 00:30:00,920
Exactly.

647
00:30:00,920 --> 00:30:01,920
Exactly.

648
00:30:01,920 --> 00:30:09,040
So can you give us some examples that you've used your son's ABLE account for?

649
00:30:09,040 --> 00:30:10,040
You know what?

650
00:30:10,040 --> 00:30:13,320
Right now, we don't have anything in his ABLE account because he's not receiving social

651
00:30:13,320 --> 00:30:14,440
security.

652
00:30:14,440 --> 00:30:18,000
We opened it...I think there's like $40 in it.

653
00:30:18,000 --> 00:30:19,000
We opened...

654
00:30:19,000 --> 00:30:20,000
Enough to keep it active.

655
00:30:20,000 --> 00:30:21,000
Yeah.

656
00:30:21,000 --> 00:30:28,440
We opened it because he came into some inheritance from a family member and we needed to shift

657
00:30:28,440 --> 00:30:30,920
that into a special needs trust.

658
00:30:30,920 --> 00:30:33,520
And in the process, we ended up opening that.

659
00:30:33,520 --> 00:30:37,160
It was just kind of part of the financial planning process that we went through.

660
00:30:37,160 --> 00:30:38,160
Part and parcel.

661
00:30:38,160 --> 00:30:39,160
Yeah.

662
00:30:39,160 --> 00:30:40,160
So we opened it.

663
00:30:40,160 --> 00:30:45,560
We have it available for when he turns 18 and he starts accessing those benefits himself.

664
00:30:45,560 --> 00:30:46,560
Okay.

665
00:30:46,560 --> 00:30:53,280
Can you give some fake examples of what someone brings it for?

666
00:30:53,280 --> 00:30:59,000
In our office, our executive director, her daughter's ABLE account, they had to open

667
00:30:59,000 --> 00:31:05,800
the ABLE account during COVID because of the what we call stimulus checks that were coming

668
00:31:05,800 --> 00:31:06,800
out.

669
00:31:06,800 --> 00:31:09,840
And so this then put her daughter over the income threshold.

670
00:31:09,840 --> 00:31:15,680
So they were able to put the stimulus checks in her ABLE account.

671
00:31:15,680 --> 00:31:21,600
And then from the ABLE account, she was able to purchase airfare to go to a conference

672
00:31:21,600 --> 00:31:26,440
that specifically was for her individual disorder.

673
00:31:26,440 --> 00:31:33,120
So you can access it that way or you could use it if you needed to pay, if you needed

674
00:31:33,120 --> 00:31:37,600
new furniture for your home as an independent, you know, you're living independently and

675
00:31:37,600 --> 00:31:47,160
you needed to furnish your new space or if you want to, I mean, you know, anything, anything

676
00:31:47,160 --> 00:31:48,160
except the ampersand.

677
00:31:48,160 --> 00:31:52,120
I don't really think if you need to, yes, if you, I don't want to say medication co-pay

678
00:31:52,120 --> 00:31:56,320
because that probably you wouldn't have a co-pay if you are accessing some of these,

679
00:31:56,320 --> 00:31:59,840
but you know, but anything that you need to access cold medicine.

680
00:31:59,840 --> 00:32:00,840
Yeah.

681
00:32:00,840 --> 00:32:01,840
Yeah.

682
00:32:01,840 --> 00:32:02,840
Potential.

683
00:32:02,840 --> 00:32:03,840
Antenic, I mean.

684
00:32:03,840 --> 00:32:06,600
So does your child need it because they have a disability?

685
00:32:06,600 --> 00:32:07,600
No.

686
00:32:07,600 --> 00:32:08,920
But is it helpful?

687
00:32:08,920 --> 00:32:10,240
It certainly sounds like it.

688
00:32:10,240 --> 00:32:11,240
Sure.

689
00:32:11,240 --> 00:32:15,400
And especially when we start really thinking about coming into adulthood and it enables

690
00:32:15,400 --> 00:32:22,200
individuals the ability to kind of save and not be penalized for having a savings account.

691
00:32:22,200 --> 00:32:23,200
Perfect.

692
00:32:23,200 --> 00:32:24,200
Yeah.

693
00:32:24,200 --> 00:32:28,800
But I would say yes, the state independent living councils can speak in much greater

694
00:32:28,800 --> 00:32:33,760
detail, can even get you those institutions that are reputable across the nation that

695
00:32:33,760 --> 00:32:37,540
are, that are very helpful.

696
00:32:37,540 --> 00:32:39,320
You know, we're going to have that linked below.

697
00:32:39,320 --> 00:32:40,320
Yeah.

698
00:32:40,320 --> 00:32:45,320
So I found something in a little, in the little state independent living council folder that

699
00:32:45,320 --> 00:32:51,400
we have qualified living expenses, education, housing, transportation, employment, assistive

700
00:32:51,400 --> 00:32:56,320
technology, IE, ramps, computer software, glasses.

701
00:32:56,320 --> 00:32:57,320
That's kind of surprising.

702
00:32:57,320 --> 00:32:58,720
It is kind of surprising.

703
00:32:58,720 --> 00:33:03,240
Basic living expenses, healthcare expenses not covered by your insurance, IE, the antihistamine

704
00:33:03,240 --> 00:33:05,880
medication and personal assistance services.

705
00:33:05,880 --> 00:33:06,880
Yeah.

706
00:33:06,880 --> 00:33:15,440
And I have had, I have known of families that or of individuals that have paid for a personal

707
00:33:15,440 --> 00:33:18,560
care assistant to attend a vacation with them.

708
00:33:18,560 --> 00:33:21,560
So that is a, that is covered by us too.

709
00:33:21,560 --> 00:33:22,560
Yeah.

710
00:33:22,560 --> 00:33:25,560
I'm learning something new every day.

711
00:33:25,560 --> 00:33:32,680
Pretty cool.

712
00:33:32,680 --> 00:33:38,680
Thank you so much everyone out there for listening in and know that if you are in Idaho or planning

713
00:33:38,680 --> 00:33:44,880
on moving to Idaho and have questions on systems or services for children with disabilities,

714
00:33:44,880 --> 00:33:49,040
please consider reaching out to us on our website at I pull Idaho.

715
00:33:49,040 --> 00:33:58,560
That's I P U L Idaho.org or by calling us at 208-342-5884.

716
00:33:58,560 --> 00:34:00,640
Be sure to tune in next time.

717
00:34:00,640 --> 00:34:03,800
Until then, this has been Unlimited Parenting.

718
00:34:03,800 --> 00:34:30,800
Thanks for listening.

