1 00:00:00,000 --> 00:00:12,360 Welcome to Unlimited Parenting where we discuss what it's like having children with disabilities 2 00:00:12,360 --> 00:00:14,680 and or special health care needs. 3 00:00:14,680 --> 00:00:21,980 My name is Allison and today I have with me Melissa and Sarah and today is Bring Your 4 00:00:21,980 --> 00:00:26,640 Own Topic, everyone's favorite, favorite podcast. 5 00:00:26,640 --> 00:00:29,200 The podcast where I make my coworkers uncomfortable. 6 00:00:29,200 --> 00:00:31,240 So let's begin. 7 00:00:31,240 --> 00:00:34,040 Melissa, would you like to start? 8 00:00:34,040 --> 00:00:37,200 What topic have you brought to the table to discuss today? 9 00:00:37,200 --> 00:00:43,560 Recently it has been the summer, we had the Olympics and it's been very sports minded 10 00:00:43,560 --> 00:00:49,040 in my family lately and so I was thinking as a special needs parent all of the Olympic 11 00:00:49,040 --> 00:00:51,280 events that I could participate in. 12 00:00:51,280 --> 00:00:59,840 I'm an Olympic medalist in a lot of areas and I was going to tell you guys about them. 13 00:00:59,840 --> 00:01:05,640 So Olympic gold medalist toenail clipper. 14 00:01:05,640 --> 00:01:11,480 I'm Olympic bronze medalist at Giving Medicine with whipped cream because there's a new one, 15 00:01:11,480 --> 00:01:14,480 it's a new event that I just started shooting for the stars baby girl. 16 00:01:14,480 --> 00:01:16,280 I think I can get there. 17 00:01:16,280 --> 00:01:18,240 There's a little boxing that happens. 18 00:01:18,240 --> 00:01:19,840 I don't do actual hitting. 19 00:01:19,840 --> 00:01:21,620 I just get hit. 20 00:01:21,620 --> 00:01:25,480 So I'm good at dodging a lot of punches, kicks, throws. 21 00:01:25,480 --> 00:01:31,000 Maybe it's more MMA but that's not an Olympic event. 22 00:01:31,000 --> 00:01:36,460 There's some break dancing that I think some of that happens unintentionally just when 23 00:01:36,460 --> 00:01:42,600 I'm trying to like my moves are not good and they're not choreographed but they happen. 24 00:01:42,600 --> 00:01:49,160 So I very much look like an Australian lady when I am break dancing because it's not real 25 00:01:49,160 --> 00:01:50,160 break video. 26 00:01:50,160 --> 00:01:52,720 It's a good one. 27 00:01:52,720 --> 00:02:03,240 And then I know that this is not a, well I was trying to figure out how to do this. 28 00:02:03,240 --> 00:02:06,840 No I was trying to figure out what kind of Olympic event this could be but it was more 29 00:02:06,840 --> 00:02:14,160 of just after bath time it's very much like wrestling a greased pig but it's a wet body 30 00:02:14,160 --> 00:02:22,040 that you're trying to get a diaper and pajamas on a moist body and it's hard but we're really 31 00:02:22,040 --> 00:02:23,400 good at it. 32 00:02:23,400 --> 00:02:24,400 Yeah, no. 33 00:02:24,400 --> 00:02:30,120 So I just was bringing some humor to this topic and I wondered what other Olympic events 34 00:02:30,120 --> 00:02:34,280 that we all are curling. 35 00:02:34,280 --> 00:02:35,760 Curling the luge. 36 00:02:35,760 --> 00:02:39,080 Everyone can all do the luge. 37 00:02:39,080 --> 00:02:41,800 Oh, oh, oh, track. 38 00:02:41,800 --> 00:02:42,800 Yeah. 39 00:02:42,800 --> 00:02:47,720 There's some eloping that would be very much a track event. 40 00:02:47,720 --> 00:02:49,200 Some high jumping height. 41 00:02:49,200 --> 00:02:53,720 Oh yeah but not the guy who had the accident when he was jumping on that guy. 42 00:02:53,720 --> 00:03:01,360 I mean if it was the Olympics is the dog the agility track when you're like, hey, that's 43 00:03:01,360 --> 00:03:02,640 not an Olympic sport. 44 00:03:02,640 --> 00:03:04,080 Oh you're right. 45 00:03:04,080 --> 00:03:06,040 And then cross country. 46 00:03:06,040 --> 00:03:11,400 Where Kevin Hart and Snoop Dogg were narrating the Olympics or whatever. 47 00:03:11,400 --> 00:03:13,000 They were in first place. 48 00:03:13,000 --> 00:03:14,000 Yes. 49 00:03:14,000 --> 00:03:15,000 Yeah. 50 00:03:15,000 --> 00:03:18,640 I have to tell you I know this wasn't part of our topic but really that was one of my 51 00:03:18,640 --> 00:03:22,880 favorite thing about the Olympics is Snoop and Kevin Hart and their commentary. 52 00:03:22,880 --> 00:03:24,640 I just want people to make it funny. 53 00:03:24,640 --> 00:03:26,720 I do too and that's where I am today. 54 00:03:26,720 --> 00:03:31,160 So my Olympic events that I enter into I don't interwillingly enter them. 55 00:03:31,160 --> 00:03:33,800 I'm just a participant that has to. 56 00:03:33,800 --> 00:03:39,160 Because I'm the person that sits on the couch eating popcorn mixed with M&Ms and a big 57 00:03:39,160 --> 00:03:45,960 old coke watching the Olympics like really that's the best dive you can do. 58 00:03:45,960 --> 00:03:50,000 So you would be judging my toenail clipping and you'd be like really you could do a little 59 00:03:50,000 --> 00:03:51,000 bit better. 60 00:03:51,000 --> 00:03:57,800 You're still using the baby toenail clippers. 61 00:03:57,800 --> 00:03:59,640 Sometimes I have to wait till my kids are asleep. 62 00:03:59,640 --> 00:04:00,640 Yes. 63 00:04:00,640 --> 00:04:01,640 Or medicated. 64 00:04:01,640 --> 00:04:02,640 Yeah. 65 00:04:02,640 --> 00:04:03,640 That's a good one. 66 00:04:03,640 --> 00:04:04,640 I am being so for real. 67 00:04:04,640 --> 00:04:08,880 But maybe that gives me an unfair advantage if we are talking in terms of Olympics sport. 68 00:04:08,880 --> 00:04:09,880 No doping. 69 00:04:09,880 --> 00:04:10,880 No doping. 70 00:04:10,880 --> 00:04:11,880 No doping. 71 00:04:11,880 --> 00:04:15,080 And okay I have a real question. 72 00:04:15,080 --> 00:04:18,340 And this is not my topic but now that we're talking about it I really want to ask. 73 00:04:18,340 --> 00:04:22,960 So this may not be politically correct but I'm giving it my best shot. 74 00:04:22,960 --> 00:04:30,760 You know how when you play a sport and maybe you get a little delay or you get some extra 75 00:04:30,760 --> 00:04:33,440 support and they call it a handicap. 76 00:04:33,440 --> 00:04:36,960 Oh like in golf as I think too. 77 00:04:36,960 --> 00:04:39,760 This player gets a handicap. 78 00:04:39,760 --> 00:04:43,240 Are we doing away with that at any point? 79 00:04:43,240 --> 00:04:45,200 You're the sports person in my life. 80 00:04:45,200 --> 00:04:47,720 I play sports that have handicaps though. 81 00:04:47,720 --> 00:04:48,720 Okay. 82 00:04:48,720 --> 00:04:49,720 Okay thank you. 83 00:04:49,720 --> 00:04:50,720 So it's not every sport. 84 00:04:50,720 --> 00:04:51,720 No. 85 00:04:51,720 --> 00:04:52,720 They don't call that in every sport. 86 00:04:52,720 --> 00:04:53,720 Absolutely. 87 00:04:53,720 --> 00:04:54,720 Nothing. 88 00:04:54,720 --> 00:04:55,720 Just golf. 89 00:04:55,720 --> 00:04:56,720 It's just golf. 90 00:04:56,720 --> 00:04:57,720 Okay so are we going to deprecate? 91 00:04:57,720 --> 00:05:01,960 Like do I need to start a petition to get rid of that term? 92 00:05:01,960 --> 00:05:02,960 Because I maybe. 93 00:05:02,960 --> 00:05:06,960 Okay so my husband does watch a lot of golf as well. 94 00:05:06,960 --> 00:05:07,960 I know. 95 00:05:07,960 --> 00:05:10,880 If you need a minute to let that sink. 96 00:05:10,880 --> 00:05:11,880 I'm really sorry. 97 00:05:11,880 --> 00:05:14,200 That surprises me about your husband. 98 00:05:14,200 --> 00:05:15,200 I know. 99 00:05:15,200 --> 00:05:16,640 Okay I apologize. 100 00:05:16,640 --> 00:05:21,200 I mean no ill will but I'm in a shroud in a mystery. 101 00:05:21,200 --> 00:05:24,680 He's in the closet watching golf. 102 00:05:24,680 --> 00:05:28,280 Golf just seems like the most boring sport to watch on TV. 103 00:05:28,280 --> 00:05:29,440 It is. 104 00:05:29,440 --> 00:05:30,440 It's okay. 105 00:05:30,440 --> 00:05:31,440 You know what though? 106 00:05:31,440 --> 00:05:34,600 Maybe this is just basketball. 107 00:05:34,600 --> 00:05:37,000 I can't watch basketball. 108 00:05:37,000 --> 00:05:41,800 I just recently found out that there are two teams on a football team. 109 00:05:41,800 --> 00:05:42,800 She did. 110 00:05:42,800 --> 00:05:44,440 No hear me out. 111 00:05:44,440 --> 00:05:45,440 Hear me out. 112 00:05:45,440 --> 00:05:46,580 Yes gotcha. 113 00:05:46,580 --> 00:05:49,840 So when was the last Super Bowl that had Tom Brady? 114 00:05:49,840 --> 00:05:50,840 It was a few years ago. 115 00:05:50,840 --> 00:05:51,840 Okay thank you. 116 00:05:51,840 --> 00:05:55,560 A few years ago the last Super Bowl I watched. 117 00:05:55,560 --> 00:05:58,200 I looked at my husband and we're not alone. 118 00:05:58,200 --> 00:06:00,080 We're in a party. 119 00:06:00,080 --> 00:06:02,320 There are multiple people around us. 120 00:06:02,320 --> 00:06:05,720 And I said wait a second. 121 00:06:05,720 --> 00:06:06,720 The Patriots are out there. 122 00:06:06,720 --> 00:06:07,960 Where's Tom Brady? 123 00:06:07,960 --> 00:06:10,800 And my husband goes he's on the sidelines. 124 00:06:10,800 --> 00:06:11,800 It's not his turn to play. 125 00:06:11,800 --> 00:06:13,360 What do you mean it's not his turn to play? 126 00:06:13,360 --> 00:06:15,240 I thought he played the whole game. 127 00:06:15,240 --> 00:06:22,400 And actually if you're my kid on the high school football team you play both ways. 128 00:06:22,400 --> 00:06:23,400 I do. 129 00:06:23,400 --> 00:06:24,940 We confused her. 130 00:06:24,940 --> 00:06:28,680 So in high school you can play both teams but college and pro you can't. 131 00:06:28,680 --> 00:06:32,440 Well you could if they want you to. 132 00:06:32,440 --> 00:06:34,960 But there would be reasons that you wouldn't want. 133 00:06:34,960 --> 00:06:37,440 You know what this is why I like IDEA. 134 00:06:37,440 --> 00:06:40,240 There is no maybe potentially perhaps. 135 00:06:40,240 --> 00:06:42,920 This is what it is and this is what it's not. 136 00:06:42,920 --> 00:06:44,320 Call me a black and white thinker. 137 00:06:44,320 --> 00:06:47,320 I wouldn't call you that. 138 00:06:47,320 --> 00:06:50,320 That would be rude. 139 00:06:50,320 --> 00:06:51,980 I know but okay so. 140 00:06:51,980 --> 00:06:54,900 So that I just I want you guys to know I'm an Olympian. 141 00:06:54,900 --> 00:06:56,960 You are. 142 00:06:56,960 --> 00:07:02,840 I bet you could also do some of the hand eye coordination sports because you're like throwing 143 00:07:02,840 --> 00:07:04,800 clothes in the laundry hamper. 144 00:07:04,800 --> 00:07:07,400 Yeah or like diapers in the waste basket. 145 00:07:07,400 --> 00:07:10,600 Table tennis is at the Olympics. 146 00:07:10,600 --> 00:07:11,960 Yeah sorry listen. 147 00:07:11,960 --> 00:07:13,960 But really table tennis is in the Olympics. 148 00:07:13,960 --> 00:07:19,320 This show is called Allison doesn't know anything about sports. 149 00:07:19,320 --> 00:07:20,680 Episode 85. 150 00:07:20,680 --> 00:07:22,920 I think yeah we could have multiple. 151 00:07:22,920 --> 00:07:25,500 Yeah we could. 152 00:07:25,500 --> 00:07:28,840 We could just have episodes about what I don't know. 153 00:07:28,840 --> 00:07:29,840 That's not fair. 154 00:07:29,840 --> 00:07:30,840 All of I know. 155 00:07:30,840 --> 00:07:34,440 You primarily are sports based. 156 00:07:34,440 --> 00:07:35,880 I could read a book about it. 157 00:07:35,880 --> 00:07:39,960 You was the 84th man to die in the mosquito bowl. 158 00:07:39,960 --> 00:07:40,960 Okay. 159 00:07:40,960 --> 00:07:42,600 Anyways I'm Olympian. 160 00:07:42,600 --> 00:07:43,600 Was that you? 161 00:07:43,600 --> 00:07:44,600 Me that was me. 162 00:07:44,600 --> 00:07:45,600 Olympian Melissa. 163 00:07:45,600 --> 00:07:49,520 Okay but if you added all of your score together would that put you silver medal because I 164 00:07:49,520 --> 00:07:52,440 heard you say you wanted one bronze. 165 00:07:52,440 --> 00:07:59,480 I just said I'm not good at the medication giving yet because my kiddo has primarily 166 00:07:59,480 --> 00:08:05,980 always received his meds via his G tube and we now have a new one that he has to take 167 00:08:05,980 --> 00:08:10,320 by mouth and it has been a challenge but we're getting him. 168 00:08:10,320 --> 00:08:12,360 I can't believe I didn't send you this tick tock. 169 00:08:12,360 --> 00:08:16,200 I saw a tick tock last night. 170 00:08:16,200 --> 00:08:20,620 I stumbled on the disability talk and I'm so happy I'm finally there. 171 00:08:20,620 --> 00:08:26,000 This mom had it looked like a garlic press. 172 00:08:26,000 --> 00:08:29,280 She put the pill in it crushed it. 173 00:08:29,280 --> 00:08:33,160 She mixed it up in a little bit of fluid and then she had us okay think you all know what 174 00:08:33,160 --> 00:08:34,160 I'm talking about. 175 00:08:34,160 --> 00:08:35,160 Mine is like a screw. 176 00:08:35,160 --> 00:08:36,160 Yeah that's what mine is. 177 00:08:36,160 --> 00:08:37,160 It did not look like that. 178 00:08:37,160 --> 00:08:40,600 It looked like and she like a lemon squeezer. 179 00:08:40,600 --> 00:08:44,760 You guys can't see me but I'm squeezing my hand as if I'm pushing a garlic press like 180 00:08:44,760 --> 00:08:50,120 a milk and a cow and then she puts it in the fluid and then she gets a syringe and she 181 00:08:50,120 --> 00:08:53,040 just put it in his mouth. 182 00:08:53,040 --> 00:08:57,400 Would he do that or is he cool just following the pill? 183 00:08:57,400 --> 00:09:00,040 This particular pill is one that can't be crushed. 184 00:09:00,040 --> 00:09:01,040 Really? 185 00:09:01,040 --> 00:09:02,040 He's like an ER? 186 00:09:02,040 --> 00:09:03,040 Yeah. 187 00:09:03,040 --> 00:09:05,480 Oh I didn't know. 188 00:09:05,480 --> 00:09:11,000 So yeah I guess I had to wrap that up nicely with a bronze medal medication giver because 189 00:09:11,000 --> 00:09:17,360 I'm getting there but I have multiple gold medals in toenail clipping. 190 00:09:17,360 --> 00:09:18,920 So for real you're just a gold medalist. 191 00:09:18,920 --> 00:09:19,920 I'm a gold medalist. 192 00:09:19,920 --> 00:09:20,920 I'm a gold medalist. 193 00:09:20,920 --> 00:09:24,680 I would say I'm a gold medalist at changing diapers. 194 00:09:24,680 --> 00:09:26,720 Yeah I probably am too. 195 00:09:26,720 --> 00:09:29,720 People are like you're already done. 196 00:09:29,720 --> 00:09:32,720 Where have you been? 197 00:09:32,720 --> 00:09:33,720 You know what I want? 198 00:09:33,720 --> 00:09:35,760 Excuse me I want like a mini. 199 00:09:35,760 --> 00:09:39,160 You remember when we used to wash cloth diapers or you've seen someone wash cloth diapers 200 00:09:39,160 --> 00:09:41,880 and they have the little thing connects to the toilet. 201 00:09:41,880 --> 00:09:45,800 It's like a shower sprayer and you can spray the diaper off before you wash it. 202 00:09:45,800 --> 00:09:46,800 That's a real thing? 203 00:09:46,800 --> 00:09:47,800 Yes what I want. 204 00:09:47,800 --> 00:09:48,800 Is that a bathroom? 205 00:09:48,800 --> 00:09:49,800 A toilet? 206 00:09:49,800 --> 00:09:50,800 I don't know I don't know. 207 00:09:50,800 --> 00:09:51,800 I just don't like a bidet. 208 00:09:51,800 --> 00:09:52,800 It is interesting. 209 00:09:52,800 --> 00:09:53,800 Oh wow. 210 00:09:53,800 --> 00:09:54,800 It sits by the toilet. 211 00:09:54,800 --> 00:09:55,800 Oh okay. 212 00:09:55,800 --> 00:09:56,800 I don't know. 213 00:09:56,800 --> 00:10:00,160 I'm just doing this justice. 214 00:10:00,160 --> 00:10:03,720 Parents of children who use cloth diapers are going to come for me in the comments. 215 00:10:03,720 --> 00:10:05,560 But you use cloth diapers. 216 00:10:05,560 --> 00:10:08,400 I know but it does not very well. 217 00:10:08,400 --> 00:10:10,240 I was using the bidet to wash them out. 218 00:10:10,240 --> 00:10:12,200 I'm just kidding I didn't. 219 00:10:12,200 --> 00:10:20,240 But I want like a power washer kind of a thing for parents of adult children to use. 220 00:10:20,240 --> 00:10:21,240 Yeah. 221 00:10:21,240 --> 00:10:25,320 Because I've heard some horror stories about some bowel movements and I'm wondering like 222 00:10:25,320 --> 00:10:26,920 who could you use? 223 00:10:26,920 --> 00:10:28,680 You could absolutely use something like that. 224 00:10:28,680 --> 00:10:29,680 Yeah. 225 00:10:29,680 --> 00:10:30,680 Yeah. 226 00:10:30,680 --> 00:10:32,760 A lot of times that's why we utilize the shower. 227 00:10:32,760 --> 00:10:35,360 Okay thank you because I am. 228 00:10:35,360 --> 00:10:39,920 My kids use diapers but it's like a urinary incontinence thing so we don't have the full 229 00:10:39,920 --> 00:10:42,520 spectrum of love and joy that you guys do. 230 00:10:42,520 --> 00:10:43,520 Yeah it's fun. 231 00:10:43,520 --> 00:10:46,640 So does that mean you guys could be Olympic swimmers too? 232 00:10:46,640 --> 00:10:49,000 That's an event that I don't want to enter. 233 00:10:49,000 --> 00:10:52,040 We try to not enter those events. 234 00:10:52,040 --> 00:10:53,040 We try. 235 00:10:53,040 --> 00:10:59,400 But usually those events take place when you're at the doctor's office so all the tools and 236 00:10:59,400 --> 00:11:02,640 supports are at home where you can't access them. 237 00:11:02,640 --> 00:11:04,040 It's always the case. 238 00:11:04,040 --> 00:11:05,040 Your turn Sarah. 239 00:11:05,040 --> 00:11:09,520 So I wasn't quite sure what to talk about. 240 00:11:09,520 --> 00:11:15,000 So I was presented with an option to look into a clinical trial. 241 00:11:15,000 --> 00:11:16,000 Okay. 242 00:11:16,000 --> 00:11:21,480 For my child and I, my brain is struggling. 243 00:11:21,480 --> 00:11:29,360 Am I using my son as a science experiment or should we just let things lie where they 244 00:11:29,360 --> 00:11:30,360 lie? 245 00:11:30,360 --> 00:11:32,200 Oh my god we don't get this deep and bring their own topic. 246 00:11:32,200 --> 00:11:33,200 I know sorry. 247 00:11:33,200 --> 00:11:34,200 This is intense. 248 00:11:34,200 --> 00:11:35,200 It is. 249 00:11:35,200 --> 00:11:36,200 Okay. 250 00:11:36,200 --> 00:11:37,200 Tell me more about it. 251 00:11:37,200 --> 00:11:44,480 There were older children yesterday that found this trial and part of me has always felt 252 00:11:44,480 --> 00:11:47,640 like in this journey we're here for a reason. 253 00:11:47,640 --> 00:11:49,840 Truman is for a reason. 254 00:11:49,840 --> 00:11:56,840 To help people be better at their jobs, help the doctors really practice their gift. 255 00:11:56,840 --> 00:11:57,840 Yeah he's a gift giver. 256 00:11:57,840 --> 00:12:00,360 He is definitely good at that. 257 00:12:00,360 --> 00:12:06,360 We are always the bottom 10% of you know whatever they say is not going to happen. 258 00:12:06,360 --> 00:12:09,120 We're that 10% that does happen. 259 00:12:09,120 --> 00:12:15,520 And so he's constantly challenging his providers and his doctors and his parents about how 260 00:12:15,520 --> 00:12:18,760 well they are good at doing their job. 261 00:12:18,760 --> 00:12:20,560 And so he's the ultimate litmus test. 262 00:12:20,560 --> 00:12:24,720 He is and so I've always felt you know with all the different medications that we're trying 263 00:12:24,720 --> 00:12:30,360 back and forth we sometimes just feel like a walking science experiment anyway. 264 00:12:30,360 --> 00:12:32,480 Okay okay. 265 00:12:32,480 --> 00:12:43,400 So I'm waffling on how to move forward on a clinical trial that could enhance his quality 266 00:12:43,400 --> 00:12:44,400 of life. 267 00:12:44,400 --> 00:12:48,320 I don't want to change him because Truman is who he is. 268 00:12:48,320 --> 00:12:49,320 Right. 269 00:12:49,320 --> 00:12:56,360 But if you're presented with an opportunity to elevate someone's quality of life. 270 00:12:56,360 --> 00:12:57,800 How do you not right? 271 00:12:57,800 --> 00:13:01,400 For them not for me but yeah. 272 00:13:01,400 --> 00:13:06,820 So let me ask you this as a person who's really outside of this I think my first question 273 00:13:06,820 --> 00:13:10,680 would be is this kind of like a pill? 274 00:13:10,680 --> 00:13:12,540 Is it an injection? 275 00:13:12,540 --> 00:13:13,540 Is it surgery? 276 00:13:13,540 --> 00:13:14,540 Like how in the face is it? 277 00:13:14,540 --> 00:13:20,640 It would be surgery and implantation and the kiddo is filled with metal already. 278 00:13:20,640 --> 00:13:21,640 Oh right. 279 00:13:21,640 --> 00:13:22,640 He's got surgery. 280 00:13:22,640 --> 00:13:31,360 He has a rod from the T2 right above the shoulders and neck to his pelvis. 281 00:13:31,360 --> 00:13:32,640 So it's his whole back basically. 282 00:13:32,640 --> 00:13:38,280 So his entire back and he has a back luffin pump that gives a medication to his spinal 283 00:13:38,280 --> 00:13:41,280 fluid and then a feeding tube. 284 00:13:41,280 --> 00:13:45,720 So it's like are we really creating this bionic boy? 285 00:13:45,720 --> 00:13:52,240 Or you know maybe philosophically thinking this is what we're put on the earth to do 286 00:13:52,240 --> 00:13:53,640 for him. 287 00:13:53,640 --> 00:13:54,920 Okay. 288 00:13:54,920 --> 00:13:56,560 So let me ask you this. 289 00:13:56,560 --> 00:14:01,040 Let's say you go through with it right and he does receive that he does become a part 290 00:14:01,040 --> 00:14:02,680 of this clinical trial. 291 00:14:02,680 --> 00:14:05,280 What are some side effects he could experience? 292 00:14:05,280 --> 00:14:07,560 Yeah I need to do more research. 293 00:14:07,560 --> 00:14:14,400 Well I guess another thing that I'm thinking is that your son is a non-speaking individual 294 00:14:14,400 --> 00:14:21,120 so it's not like it could take away inability but it has the potential of giving inability 295 00:14:21,120 --> 00:14:26,120 and this is something that has worked before for another person right? 296 00:14:26,120 --> 00:14:27,120 Yeah. 297 00:14:27,120 --> 00:14:29,040 So just one person? 298 00:14:29,040 --> 00:14:30,520 They've only done it on one person? 299 00:14:30,520 --> 00:14:33,240 But it's been improved through the FDA. 300 00:14:33,240 --> 00:14:34,640 Stop really? 301 00:14:34,640 --> 00:14:35,640 Mm-hmm. 302 00:14:35,640 --> 00:14:36,640 Yeah. 303 00:14:36,640 --> 00:14:37,720 So I know. 304 00:14:37,720 --> 00:14:38,720 So what are the requirements? 305 00:14:38,720 --> 00:14:40,520 Like who are they looking for? 306 00:14:40,520 --> 00:14:48,040 They're looking for someone who is quadriplegic so even has no use of his all four limbs. 307 00:14:48,040 --> 00:14:55,200 That's what that means and the inability to verbally speak words and get anything out 308 00:14:55,200 --> 00:14:58,800 to anyone to understand what he needs and wants. 309 00:14:58,800 --> 00:15:05,040 So what you're saying here is that he is the perfect candidate and it could benefit him 310 00:15:05,040 --> 00:15:07,520 and it's at no cost to you? 311 00:15:07,520 --> 00:15:13,800 I don't think so but you know where do I and where his guardian will be his legal guardian 312 00:15:13,800 --> 00:15:15,360 so it's... 313 00:15:15,360 --> 00:15:18,040 So let me ask a different question. 314 00:15:18,040 --> 00:15:21,600 What Truman uses in AAC device? 315 00:15:21,600 --> 00:15:24,040 Have you asked him how he felt about it? 316 00:15:24,040 --> 00:15:25,120 That's a good question. 317 00:15:25,120 --> 00:15:31,000 I think, not that I can remember but I do remember his brothers talking to him about 318 00:15:31,000 --> 00:15:35,680 it while we were at the movie the other day and I didn't know enough about it to also 319 00:15:35,680 --> 00:15:43,160 inform him of it so that will be a conversation for sure that we have together and with his 320 00:15:43,160 --> 00:15:45,120 dad and you know things like that. 321 00:15:45,120 --> 00:15:46,440 Yeah and the full team really. 322 00:15:46,440 --> 00:15:55,100 I guess I am more like do we just leave it alone or leave Truman alone and move throughout 323 00:15:55,100 --> 00:16:01,280 space and time the way it is or provide an opportunity to join a clinical trial and I 324 00:16:01,280 --> 00:16:08,520 know that we've explored clinical trials here with our own kids in the office and had discussions 325 00:16:08,520 --> 00:16:14,840 about it and I just never thought it would be possible for my family. 326 00:16:14,840 --> 00:16:23,000 And so now I am faced with that mental grappling right? 327 00:16:23,000 --> 00:16:25,320 So I know it was a heavier topic than the Olympics. 328 00:16:25,320 --> 00:16:26,320 Sorry. 329 00:16:26,320 --> 00:16:27,320 No we could offer some. 330 00:16:27,320 --> 00:16:30,400 But it just presented itself over the last couple of days and I'm like this might be 331 00:16:30,400 --> 00:16:37,040 a really good thing to talk about because we all want what's best for our kids and those 332 00:16:37,040 --> 00:16:42,560 of us who have kids who are extremely challenging be it medically, physically, behaviorally, 333 00:16:42,560 --> 00:16:48,480 we're always looking to make sure that they live the best life that they can. 334 00:16:48,480 --> 00:16:50,040 When is there like a due date? 335 00:16:50,040 --> 00:16:53,600 Like do you have to give someone like not sure? 336 00:16:53,600 --> 00:16:54,600 Not sure. 337 00:16:54,600 --> 00:16:58,200 All I know is the intake form is going to take about an hour. 338 00:16:58,200 --> 00:17:01,120 Well and is it an interview or it's just the form? 339 00:17:01,120 --> 00:17:03,240 It's just the patient registry form? 340 00:17:03,240 --> 00:17:07,720 I mean I know we're not supposed to give advice here at Idaho Parents Unlimited but 341 00:17:07,720 --> 00:17:08,720 I would do it. 342 00:17:08,720 --> 00:17:09,720 Right? 343 00:17:09,720 --> 00:17:11,720 I know I would do it. 344 00:17:11,720 --> 00:17:12,720 Yeah. 345 00:17:12,720 --> 00:17:15,920 I assume that if Truman consents which I feel like he would. 346 00:17:15,920 --> 00:17:16,920 Yeah. 347 00:17:16,920 --> 00:17:17,920 Yeah. 348 00:17:17,920 --> 00:17:22,280 I mean he just gets so frustrated that people can't understand him. 349 00:17:22,280 --> 00:17:27,600 I think this is a really good time to plug those person centered planning tools and you 350 00:17:27,600 --> 00:17:33,620 can use some of the support star and you can use some of those trajectory tools to really 351 00:17:33,620 --> 00:17:39,120 navigate this conversation with Truman and the other members of his team. 352 00:17:39,120 --> 00:17:40,120 Yeah. 353 00:17:40,120 --> 00:17:41,520 Well and your boys kind of found... 354 00:17:41,520 --> 00:17:42,520 And his older brothers. 355 00:17:42,520 --> 00:17:43,520 Yeah. 356 00:17:43,520 --> 00:17:45,280 They have always been trying. 357 00:17:45,280 --> 00:17:46,760 They hate all the meds that he has to take. 358 00:17:46,760 --> 00:17:48,040 And that is honestly so sweet. 359 00:17:48,040 --> 00:17:49,720 I know isn't that just the sweetest? 360 00:17:49,720 --> 00:17:58,520 They're four and six years older than him and yeah they just heard about it and were 361 00:17:58,520 --> 00:18:03,520 like mom have you tried... looked into this and I'm like no what is it? 362 00:18:03,520 --> 00:18:05,160 So I know. 363 00:18:05,160 --> 00:18:06,160 My youngest always... 364 00:18:06,160 --> 00:18:07,160 Right? 365 00:18:07,160 --> 00:18:11,600 He used to ask when the scientists were going to make the talking medicine for my son who 366 00:18:11,600 --> 00:18:12,600 is not verbal. 367 00:18:12,600 --> 00:18:13,600 Oh my god. 368 00:18:13,600 --> 00:18:14,600 Right? 369 00:18:14,600 --> 00:18:15,600 Yep. 370 00:18:15,600 --> 00:18:19,920 And he's like you know science is doing amazing things and there's clinical trials and all 371 00:18:19,920 --> 00:18:24,160 of these things and yeah he always wants to hear his brother talk. 372 00:18:24,160 --> 00:18:28,360 You know even if it's to tell him to get away from him and stop playing with his toys. 373 00:18:28,360 --> 00:18:30,240 We want to hear our kids talk. 374 00:18:30,240 --> 00:18:32,760 I know and I think we don't want to change them right? 375 00:18:32,760 --> 00:18:37,040 We don't want to change them and we're not trying to cure whatever it is that they have 376 00:18:37,040 --> 00:18:41,400 because what our kids experience is not curable. 377 00:18:41,400 --> 00:18:42,720 Right. 378 00:18:42,720 --> 00:18:43,800 But it's that quality of life. 379 00:18:43,800 --> 00:18:47,960 Enhancing that quality of life so that when we're not around. 380 00:18:47,960 --> 00:18:48,960 Yeah. 381 00:18:48,960 --> 00:18:49,960 Yeah. 382 00:18:49,960 --> 00:18:50,960 That's a hard conversation to have. 383 00:18:50,960 --> 00:18:51,960 It is. 384 00:18:51,960 --> 00:18:53,400 Even if you're just having it with yourself. 385 00:18:53,400 --> 00:18:54,400 Right. 386 00:18:54,400 --> 00:18:56,400 And just in your own... 387 00:18:56,400 --> 00:18:57,680 Yeah. 388 00:18:57,680 --> 00:19:01,920 And it's a conversation that even amongst families can have. 389 00:19:01,920 --> 00:19:03,920 Oh my god you're different. 390 00:19:03,920 --> 00:19:04,920 Yeah. 391 00:19:04,920 --> 00:19:05,920 Right? 392 00:19:05,920 --> 00:19:11,760 And then you I guess need to carve a safe space out in your heart for when you do have 393 00:19:11,760 --> 00:19:18,120 those conversations with families so that you have some tools to navigate if it's going 394 00:19:18,120 --> 00:19:20,680 to go an opposite way. 395 00:19:20,680 --> 00:19:21,680 Yeah. 396 00:19:21,680 --> 00:19:25,360 And then I think that pushes us to be on our own isolated island anyway. 397 00:19:25,360 --> 00:19:26,360 So right. 398 00:19:26,360 --> 00:19:27,360 Oh my gosh. 399 00:19:27,360 --> 00:19:28,360 Yeah. 400 00:19:28,360 --> 00:19:29,360 It'll be within our family unit. 401 00:19:29,360 --> 00:19:30,360 Yeah. 402 00:19:30,360 --> 00:19:31,360 Our tight family unit. 403 00:19:31,360 --> 00:19:33,120 Not to tell you that we worked this through. 404 00:19:33,120 --> 00:19:39,080 Well that's how we've always approached all of our decisions is from that medical standpoint. 405 00:19:39,080 --> 00:19:42,200 How can him as that sinner, right? 406 00:19:42,200 --> 00:19:43,200 That person centered planning. 407 00:19:43,200 --> 00:19:45,200 They're the sinner. 408 00:19:45,200 --> 00:19:50,480 How can we guide all of our choices and honor what we feel would be best for him? 409 00:19:50,480 --> 00:19:51,480 It's a hard line. 410 00:19:51,480 --> 00:19:55,440 But I mean if he was a typical kid. 411 00:19:55,440 --> 00:19:57,560 And that's always what we want to treat our children like. 412 00:19:57,560 --> 00:19:59,300 That they're just typical kids. 413 00:19:59,300 --> 00:20:01,960 He could do this without asking any of our consent. 414 00:20:01,960 --> 00:20:04,640 Because he's an adult and he can do whatever he wants. 415 00:20:04,640 --> 00:20:08,120 So if Truman consents to it, it doesn't matter what anybody else thinks. 416 00:20:08,120 --> 00:20:09,120 Yeah, that's true. 417 00:20:09,120 --> 00:20:10,120 You're right. 418 00:20:10,120 --> 00:20:11,400 You're making the best decision. 419 00:20:11,400 --> 00:20:12,400 Yeah. 420 00:20:12,400 --> 00:20:13,400 Cool. 421 00:20:13,400 --> 00:20:14,400 What about you? 422 00:20:14,400 --> 00:20:15,400 Yeah. 423 00:20:15,400 --> 00:20:16,400 What's your topic? 424 00:20:16,400 --> 00:20:17,400 Oh God. 425 00:20:17,400 --> 00:20:18,400 What about me? 426 00:20:18,400 --> 00:20:19,400 Well it's not. 427 00:20:19,400 --> 00:20:20,400 Time to regret. 428 00:20:20,400 --> 00:20:24,480 It's not as deep as a clinical trial or as fun. 429 00:20:24,480 --> 00:20:25,480 Oh God. 430 00:20:25,480 --> 00:20:28,000 Thanks for making me go last. 431 00:20:28,000 --> 00:20:31,320 Mine is about the conference that I recently went to. 432 00:20:31,320 --> 00:20:32,320 Oh yeah. 433 00:20:32,320 --> 00:20:36,920 So it was the Division of Early Childhood for the Council on Exceptional Children. 434 00:20:36,920 --> 00:20:38,960 Okay, that's five times fast. 435 00:20:38,960 --> 00:20:48,920 It meets annually and its audience is administrators, teachers, coaches, early education providers, 436 00:20:48,920 --> 00:20:50,960 and parent training information centers. 437 00:20:50,960 --> 00:20:57,320 So one thing that I thought was really interesting was how different every state is. 438 00:20:57,320 --> 00:20:58,320 Yeah. 439 00:20:58,320 --> 00:20:59,800 It was really unique. 440 00:20:59,800 --> 00:21:07,320 I thought that the sessions were hands down the best ones that I had ever been to. 441 00:21:07,320 --> 00:21:10,840 The keynote speaker was fantastic. 442 00:21:10,840 --> 00:21:14,640 I made a lot of connections. 443 00:21:14,640 --> 00:21:16,220 I talked to a lot of vendors. 444 00:21:16,220 --> 00:21:21,360 So I feel like I have more resources that we could give to parents now as a result. 445 00:21:21,360 --> 00:21:23,880 But it was the hardest thing to go by myself. 446 00:21:23,880 --> 00:21:24,880 But she did it. 447 00:21:24,880 --> 00:21:25,880 It was so hard. 448 00:21:25,880 --> 00:21:26,880 I know. 449 00:21:26,880 --> 00:21:31,000 Oh my God, you guys, I had to get an Uber by myself. 450 00:21:31,000 --> 00:21:32,000 I'd never. 451 00:21:32,000 --> 00:21:33,000 Welcome, Allison. 452 00:21:33,000 --> 00:21:34,560 Welcome to the 20th century. 453 00:21:34,560 --> 00:21:35,560 There's Ubers. 454 00:21:35,560 --> 00:21:38,480 I'd never done any of that before. 455 00:21:38,480 --> 00:21:40,400 And it was my Uber driver's birthday. 456 00:21:40,400 --> 00:21:41,400 Oh, really? 457 00:21:41,400 --> 00:21:42,400 Yeah. 458 00:21:42,400 --> 00:21:43,400 Uh-huh. 459 00:21:43,400 --> 00:21:46,640 And he even showed me proof because he was like, a lot of people don't believe me because 460 00:21:46,640 --> 00:21:50,760 they think I just want a bigger tip or more stars or whatever. 461 00:21:50,760 --> 00:21:53,280 So he's like, no, really, it's really my birthday. 462 00:21:53,280 --> 00:21:55,600 And then has a license for every day. 463 00:21:55,600 --> 00:21:56,600 Right. 464 00:21:56,600 --> 00:21:58,720 And he, it was really funny. 465 00:21:58,720 --> 00:21:59,720 He's very serious. 466 00:21:59,720 --> 00:22:00,720 He's really polite. 467 00:22:00,720 --> 00:22:03,360 He said, you know, can I take a call? 468 00:22:03,360 --> 00:22:04,560 Oh, that's nice. 469 00:22:04,560 --> 00:22:06,520 I said, sure, why not? 470 00:22:06,520 --> 00:22:07,520 Answer the phone. 471 00:22:07,520 --> 00:22:09,960 And he answers the phone and you could. 472 00:22:09,960 --> 00:22:10,960 Hands free. 473 00:22:10,960 --> 00:22:11,960 Hands free. 474 00:22:11,960 --> 00:22:12,960 Hands free. 475 00:22:12,960 --> 00:22:13,960 Everyone was very safe. 476 00:22:13,960 --> 00:22:17,960 I don't know what the laws are in New Orleans regarding driving while on the phone, but 477 00:22:17,960 --> 00:22:19,040 it was very safe. 478 00:22:19,040 --> 00:22:25,080 And I think it's so funny how no matter what language someone is speaking, you can recognize 479 00:22:25,080 --> 00:22:26,120 happy birthday. 480 00:22:26,120 --> 00:22:28,320 It was so sweet. 481 00:22:28,320 --> 00:22:29,320 And it was just cool. 482 00:22:29,320 --> 00:22:31,400 It was in. 483 00:22:31,400 --> 00:22:35,380 He ended up telling me that he spoke his native language was Chinese. 484 00:22:35,380 --> 00:22:39,080 So someone was calling him to wish him happy birthday and they say it in Chinese. 485 00:22:39,080 --> 00:22:41,080 And I was in, he was like, let me take it off speakerphone. 486 00:22:41,080 --> 00:22:43,080 I was like, no, leave it. 487 00:22:43,080 --> 00:22:45,320 Listen, please. 488 00:22:45,320 --> 00:22:46,320 That's it was. 489 00:22:46,320 --> 00:22:47,320 It was so sweet. 490 00:22:47,320 --> 00:22:49,240 And then never heard it. 491 00:22:49,240 --> 00:22:52,320 You know, the singing kind of panders out. 492 00:22:52,320 --> 00:22:54,640 And then you start hearing all of these little voices. 493 00:22:54,640 --> 00:22:55,640 Happy birthday. 494 00:22:55,640 --> 00:22:58,800 I was like this huge group and they were, I wanted to cry. 495 00:22:58,800 --> 00:23:01,240 You could tell that they were just like little voices. 496 00:23:01,240 --> 00:23:05,680 And he was like, and he looked up in the, in the rear view mirror and he was like nieces, 497 00:23:05,680 --> 00:23:06,680 nephews. 498 00:23:06,680 --> 00:23:08,480 And he was, oh my, it was so sweet. 499 00:23:08,480 --> 00:23:11,640 And I was like, what are you doing working on your birthday? 500 00:23:11,640 --> 00:23:12,640 Really? 501 00:23:12,640 --> 00:23:16,240 Something about Uber gives you double diamonds or something. 502 00:23:16,240 --> 00:23:18,680 You work on your, I'm like, encourage. 503 00:23:18,680 --> 00:23:20,080 That's what I was thinking. 504 00:23:20,080 --> 00:23:24,360 And it brings me back to the whole thing about, and I know you feel this Melissa very strongly 505 00:23:24,360 --> 00:23:26,960 in your bones working on Thanksgiving. 506 00:23:26,960 --> 00:23:27,960 No, yes. 507 00:23:27,960 --> 00:23:33,400 I feel that for those of you who don't know, Melissa had a life in retail before I pull 508 00:23:33,400 --> 00:23:37,520 and I had a life of a much shorter than Melissa in retail. 509 00:23:37,520 --> 00:23:39,240 So I'm old. 510 00:23:39,240 --> 00:23:45,440 No, because I just didn't spend that much time in that world, but you worked a lot of 511 00:23:45,440 --> 00:23:47,600 Thanksgiving and I refuse. 512 00:23:47,600 --> 00:23:51,760 I will never work another that that was a condition of my employment at I pull. 513 00:23:51,760 --> 00:23:55,320 I was like, Hey, I'm never working Thanksgiving or Black Friday. 514 00:23:55,320 --> 00:23:58,160 And the answer was like, no, no, neither am I. 515 00:23:58,160 --> 00:23:59,160 Yeah. 516 00:23:59,160 --> 00:24:01,280 She's like, it's a federal holiday. 517 00:24:01,280 --> 00:24:02,280 You don't have to. 518 00:24:02,280 --> 00:24:03,280 I would volunteer. 519 00:24:03,280 --> 00:24:06,600 I would volunteer because you've gotten double time. 520 00:24:06,600 --> 00:24:07,600 Yeah. 521 00:24:07,600 --> 00:24:09,160 And I was like, I'm all about that. 522 00:24:09,160 --> 00:24:10,160 Right. 523 00:24:10,160 --> 00:24:13,320 But I was salaried for most points so that I was told to be here. 524 00:24:13,320 --> 00:24:14,320 We had to. 525 00:24:14,320 --> 00:24:15,320 Yeah. 526 00:24:15,320 --> 00:24:19,520 In all fairness, my kids were really, really little and they didn't care about Thanksgiving 527 00:24:19,520 --> 00:24:20,520 yet. 528 00:24:20,520 --> 00:24:21,520 No. 529 00:24:21,520 --> 00:24:22,520 They were just happy together and they thought that that was cool. 530 00:24:22,520 --> 00:24:24,600 But it wasn't like you were missing out on Christmas. 531 00:24:24,600 --> 00:24:26,720 No, and I didn't miss out. 532 00:24:26,720 --> 00:24:28,960 I still participated in our dinner. 533 00:24:28,960 --> 00:24:34,320 It just was always, yeah, it was always, I got to hurry through this or, you know, I 534 00:24:34,320 --> 00:24:38,520 wasn't in an enjoyable or Melissa's family doesn't stay to do the dishes because she 535 00:24:38,520 --> 00:24:41,360 has to get ready to go for the next shift. 536 00:24:41,360 --> 00:24:42,360 Right. 537 00:24:42,360 --> 00:24:44,240 I noticed that though, I know I'm sorry. 538 00:24:44,240 --> 00:24:48,280 I know this wasn't my topic, but I did notice that parents are like, their family members 539 00:24:48,280 --> 00:24:49,880 are like, you chose this. 540 00:24:49,880 --> 00:24:50,880 Yeah. 541 00:24:50,880 --> 00:24:51,880 You just take the day off. 542 00:24:51,880 --> 00:24:52,880 Yeah, no. 543 00:24:52,880 --> 00:24:54,240 And I think you really don't understand. 544 00:24:54,240 --> 00:24:58,200 No, and I don't think anyone has the right to say, right. 545 00:24:58,200 --> 00:24:59,200 Target never sleeps. 546 00:24:59,200 --> 00:25:00,200 You chose this. 547 00:25:00,200 --> 00:25:03,640 No, it's something, hey, sweet, I have to work. 548 00:25:03,640 --> 00:25:05,560 And that's a stipulation, right? 549 00:25:05,560 --> 00:25:07,320 Like I don't know. 550 00:25:07,320 --> 00:25:08,320 I know. 551 00:25:08,320 --> 00:25:09,320 I hate that excuse. 552 00:25:09,320 --> 00:25:14,840 It was really, it was, it came full circle when my mom decided to work retail for a little 553 00:25:14,840 --> 00:25:17,760 bit and then she was like, oh my word, it's so hard. 554 00:25:17,760 --> 00:25:18,760 I'm like, yeah. 555 00:25:18,760 --> 00:25:19,760 Thank you. 556 00:25:19,760 --> 00:25:21,160 And that's what I was telling you. 557 00:25:21,160 --> 00:25:22,160 I think mine is yours. 558 00:25:22,160 --> 00:25:23,160 You're welcome. 559 00:25:23,160 --> 00:25:24,160 So I guess. 560 00:25:24,160 --> 00:25:29,280 Now my daughter works retail too, so it's just full circle and she'll have to have a 561 00:25:29,280 --> 00:25:32,960 job that everyone needs to, I think, I experienced that. 562 00:25:32,960 --> 00:25:33,960 And it's a retail service. 563 00:25:33,960 --> 00:25:34,960 Oh my gosh. 564 00:25:34,960 --> 00:25:38,200 It makes you a more compassionate human. 565 00:25:38,200 --> 00:25:39,200 It really does. 566 00:25:39,200 --> 00:25:43,240 And you learn how to speak to people nicely or appreciative. 567 00:25:43,240 --> 00:25:44,240 Appreciative. 568 00:25:44,240 --> 00:25:45,240 Yep. 569 00:25:45,240 --> 00:25:49,520 I love, I love how Melissa will shut the door so no one can hear her when she has to use 570 00:25:49,520 --> 00:25:50,520 her customer service. 571 00:25:50,520 --> 00:25:51,520 For real. 572 00:25:51,520 --> 00:25:52,520 I hate that. 573 00:25:52,520 --> 00:25:55,520 I'm for real. 574 00:25:55,520 --> 00:25:57,000 We all have those. 575 00:25:57,000 --> 00:25:58,000 Oh, absolutely. 576 00:25:58,000 --> 00:26:02,880 But I remember it was so painful for you when you were training me and you were like, don't 577 00:26:02,880 --> 00:26:05,080 look at me. 578 00:26:05,080 --> 00:26:07,040 It's just so funny and I will never not remember it. 579 00:26:07,040 --> 00:26:08,040 Anyway, I'm sorry. 580 00:26:08,040 --> 00:26:13,520 I say all of that to say, you know, the DEC conference, the Division of Early Childhood 581 00:26:13,520 --> 00:26:14,800 Conference, it's every year. 582 00:26:14,800 --> 00:26:20,000 It's not always in New Orleans, even though that was super fun and cool. 583 00:26:20,000 --> 00:26:21,000 Parents can go. 584 00:26:21,000 --> 00:26:22,000 Really? 585 00:26:22,000 --> 00:26:23,000 Yeah. 586 00:26:23,000 --> 00:26:25,640 If you, there's a family sessions, a family track. 587 00:26:25,640 --> 00:26:30,400 If you have the ability and the propensity and the want and the will and the drive and 588 00:26:30,400 --> 00:26:33,960 I don't know how many other synonyms I can name, you should go. 589 00:26:33,960 --> 00:26:34,960 It was really great. 590 00:26:34,960 --> 00:26:39,520 I hope, I hope that we can, more of us can go next year. 591 00:26:39,520 --> 00:26:44,000 You know, I think the conference that you and I went to was, I think, part of the council 592 00:26:44,000 --> 00:26:45,880 for exceptional children. 593 00:26:45,880 --> 00:26:46,880 They put on the- 594 00:26:46,880 --> 00:26:55,160 It was, I mean, it was for older and dispute resolution, but it did have a component or 595 00:26:55,160 --> 00:27:01,520 a collaboration with the council for exceptional children and they got it going on. 596 00:27:01,520 --> 00:27:03,320 They have so much support. 597 00:27:03,320 --> 00:27:05,760 I mean, they, they networked, right? 598 00:27:05,760 --> 00:27:10,240 OSEP was there, David Cantrell, Kristi Kavall, like everybody was there. 599 00:27:10,240 --> 00:27:14,560 Everything that we would see in our OSEP spaces and I don't want listeners to think that it 600 00:27:14,560 --> 00:27:17,000 was just iPoll that went from Idaho. 601 00:27:17,000 --> 00:27:18,000 Oh no. 602 00:27:18,000 --> 00:27:24,520 There were, there was, and I obviously, I won't say her name, but there was a, an employee 603 00:27:24,520 --> 00:27:27,360 for the Shoshone School District who was there. 604 00:27:27,360 --> 00:27:28,360 Really? 605 00:27:28,360 --> 00:27:29,360 Yes. 606 00:27:29,360 --> 00:27:35,240 Local to Idaho communities were sending people to Louisiana to gain the knowledge, to bring 607 00:27:35,240 --> 00:27:37,480 it back to Idaho. 608 00:27:37,480 --> 00:27:42,280 And there were a lot of, you know, you'll see people that say, you know, like I follow 609 00:27:42,280 --> 00:27:45,400 the Department of Early Childhood practices. 610 00:27:45,400 --> 00:27:51,520 Like they list the practices that they want to see in our communities and we help support 611 00:27:51,520 --> 00:27:52,520 them, right? 612 00:27:52,520 --> 00:27:53,520 Yeah. 613 00:27:53,520 --> 00:27:54,520 I think that's great. 614 00:27:54,520 --> 00:28:00,840 New literature on behavior, new literature on disproportionality, suspensions, whatever 615 00:28:00,840 --> 00:28:01,840 the case may be. 616 00:28:01,840 --> 00:28:02,840 Family engagement. 617 00:28:02,840 --> 00:28:06,440 Family, oh, family engagement was a huge one. 618 00:28:06,440 --> 00:28:12,040 I feel like people, people don't understand how states can be so different though, because 619 00:28:12,040 --> 00:28:16,120 there was one session where I was talking about family engagement and they were just 620 00:28:16,120 --> 00:28:22,800 like, they, they looked at me like I had 75 heads when I was trying to talk about what 621 00:28:22,800 --> 00:28:24,960 Idaho does and they were just like, why? 622 00:28:24,960 --> 00:28:27,640 And I was like, that's a great question, but this is where we are. 623 00:28:27,640 --> 00:28:31,440 So instead of asking me why, maybe give me some solutions. 624 00:28:31,440 --> 00:28:32,680 Yeah. 625 00:28:32,680 --> 00:28:36,000 Because you can't look me in my face and tell me that your state was never in this 626 00:28:36,000 --> 00:28:40,280 position because you were and how did you not be anymore? 627 00:28:40,280 --> 00:28:41,280 Yep. 628 00:28:41,280 --> 00:28:47,360 What were our steps to pull us from where we currently sit to a more robust family engagement? 629 00:28:47,360 --> 00:28:48,360 Yeah. 630 00:28:48,360 --> 00:28:54,720 If I closed my eyes and I dreamed about like what I would want for Idaho, it would be for 631 00:28:54,720 --> 00:29:01,360 everyone to just have compassion and want to be collaborative and want to play in the 632 00:29:01,360 --> 00:29:03,160 sandbox together. 633 00:29:03,160 --> 00:29:07,160 And remember that it's not about he said, she said, it's not about the parent. 634 00:29:07,160 --> 00:29:08,400 It's not about the teacher. 635 00:29:08,400 --> 00:29:12,880 It's about the child who was getting support. 636 00:29:12,880 --> 00:29:17,000 It's not, I had a worse day than you or I'm working harder than you or whatever the case 637 00:29:17,000 --> 00:29:18,000 may be. 638 00:29:18,000 --> 00:29:19,000 It's about the child. 639 00:29:19,000 --> 00:29:21,240 It's a good way to end the podcast. 640 00:29:21,240 --> 00:29:22,240 I think so. 641 00:29:22,240 --> 00:29:30,760 Thank you. 642 00:29:30,760 --> 00:29:36,760 Thank you so much everyone out there for listening in and know that if you are in Idaho or planning 643 00:29:36,760 --> 00:29:42,640 on moving to Idaho and have questions on systems or services for children with disabilities, 644 00:29:42,640 --> 00:29:46,800 please consider reaching out to us on our website at I pull Idaho. 645 00:29:46,800 --> 00:29:56,840 That's I P U L Idaho.org or by calling us at 208-342-5884. 646 00:29:56,840 --> 00:29:58,920 Be sure to tune in next time. 647 00:29:58,920 --> 00:30:02,080 Until then, this has been Unlimited Parenting. 648 00:30:02,080 --> 00:30:29,080 Thanks for listening.