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Welcome to Unlimited Parenting, where we discuss what it's like raising children with disabilities

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or special health care needs.

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I'm Allison, and with me today are my partners in crime, Melissa and Sarah, and we are going

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to be talking about person-centered planning and charting the life course.

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Stick around to the end to hear about our upcoming collaboration with the Idaho Council

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on Developmental Disabilities, where you can learn more about person-centered thinking.

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All right, so I'm going to pass off the mic to both Sarah and Melissa, and what you can

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expect from this episode is a little bit about why person-centered planning is important,

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what is person-centered thinking, what is person-centered training, as well as some

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of our very favorite charting the life course tools that you can use when you are supporting

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your new adult in their journey.

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So take it away, ladies.

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Thank you much.

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Thank you.

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Happy to be here and share.

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But without podcast direction, we're going to be a little lost.

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I'm just kidding.

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Well, I'm still here.

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Okay, don't leave the room.

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All right, why don't we start with what in the heck is even that?

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Person-centered planning, charting the life course.

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Good question.

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Yep.

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Good launching point.

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Go ahead.

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So person-centered planning is really an emphasis or a focus on planning a life or planning,

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making a plan, keeping that person that we're talking about at the center.

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Usually a person with a disability, yeah, but at the center.

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So very much what it sounds like, that person is at the center of a team of people that

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have their best intentions for that person in mind.

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And I think to not leave this person out, the person is truly at the center, we are

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making sure that we are including things and planning with that person and the things that

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they want to do in their own life, not what we think they want to do.

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Absolutely.

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Yeah.

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So charting the life course is essentially a framework within person-centered planning

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that has some really valuable tools and processes that you and I, Sarah, have been lucky enough

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to go through the ambassador program.

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But charting the life course is a framework developed out of the University of Missouri,

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Kansas City.

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Like Sarah said, it's to put the individuals at the forefront and to develop plans and

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systems of plans, it's not just one and done.

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Right.

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Because I mean, to have a life that requires a lot of support from multiple areas, family,

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friends, paid supports, natural supports, we want to make sure that we're doing a good

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job when we're helping our individuals plan their life.

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And so some of the tools that came out of this life course model help families, help

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the individuals, help people who are caring for and providing the services do a more inclusive

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job at using all areas of life that our families and loved ones are going to be living.

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I think person-centered planning for me takes some of the deficit eligibility out of the

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picture and puts in, you know, what is this person's interest?

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What are their goals?

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What are their hobbies?

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What do they want to do?

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Not just what are their deficits that make them eligible for supports and services.

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It's creating a more wholesome, like you said, an inclusive plan.

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And it might sound pretty self-explanatory.

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Once you get in the middle and you start using some of these tools, for me, at least the

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light bulbs started to go off on, oh my gosh, we try to overthink so many things.

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And when we're looking at these tools and that we're going to talk about more as we

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go through this, but like the support star and the trajectory and what are we doing now?

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Who's in our life now that can help create this beautiful plan that will hopefully be

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the best support?

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Yeah, I agree.

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And I like using and we'll talk about the tools.

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I like using the tools to kind of separate and pull out different components too, right?

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Because when we are talking about planning a person's life or planning transition to

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adulthood, that's kind of a big ask.

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So if we take these tools and just pull out the little pieces, it helps us feel a little

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bit more manageable, we have control and helps the process a little bit.

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All right.

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That said.

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So if I was going to wrap that up in a nice little bow, you could maybe say that prison

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center planning is empowering because it is going to encourage the new adult, the youth

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to take an active role in their own planning, right?

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It's hyper individualized.

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All of the tools help them determine where they want their trajectory to go.

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It encourages that constant collaboration between the youth and their parents or the

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youth and voc rehab or the youth and their employment plan or whatever the case may be.

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And it's very goal oriented, like you said, there's not a lot of deficits, you know, and

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I love the part.

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I think one of my favorite parts about this philosophy is that failure is almost encouraged.

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It is, yes, in the sense that we want you to fail so that you can learn some things

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so that we can come back to the table and we can say, hey, you know, that thing that

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you really wanted to do, we gave it a shot.

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Maybe it didn't work out so well.

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So now where are we going to go from here?

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So if we're talking about person centered planning, where are we going to start?

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How do we how do we even get the process started now that we know the philosophy?

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I mean, you have a lot of ways that you could start.

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You know, there's a lot of people out there that can help provide the tools and that legwork

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you choose.

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Maybe you don't want to use the charting the life course.

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Maybe you do.

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And I think at the end of this, we're going to talk about some opportunities, like you

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said, that are coming up that families can get involved in.

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But what if you wanted to start now?

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I mean, we could we could Google I'm determined or we can Google person centered planning

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and a lot of tools and resources are going to pop up.

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It's just how do you want to use those?

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And does your person want you to use those?

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I guess that's what we have to ensure that we are doing this for the individual and that

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individual this is what they want moving forward.

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And I think I think, too, that it really helps you kind of like you said earlier, Melissa,

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pick out the things that are that you want to focus on and that are manageable.

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There are a lot of tools on the Web site.

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There's a lot of different ideas and tricks out there.

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But this kind of helps you break it down to hone in or focus on one aspect of the plan.

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My son is 13 going on 14.

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I have been using on going on going on 21.

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I was immediately like you are 16 going on 17.

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I have it.

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We haven't necessarily dove in headfirst to person centered planning.

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But we have gotten our feet wet a little bit.

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More so with the trajectory.

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It's something that we have used as a family to as a launching point of what we don't want

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for our son.

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So I know person centered planning and like you like Alison said, failure is almost encouraged.

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And that's kind of what we're we we don't want him living in an institution.

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We don't want Reese to end up in a group home.

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And we don't think Reese wants that either.

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So we're using you know some of his the information that he can give us to use the trajectory

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as a launching point.

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OK this is what we don't want.

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So what are we going to do in the interim to ensure that that doesn't happen?

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So what are the supports that are in the moment working?

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So all of this to say that we don't have to wait until our person is an adult or we don't

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have to wait till our person is 17 and almost going to be an adult.

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Some of these tools can really be used starting at 10, 11, 12 to just start planning the future.

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But it puts that person at the forefront.

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It does.

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It really makes you as you're going throughout the entire process that person stays front

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and center.

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It's kind of the same as when I go to an IEP meeting and I take a picture of my kiddo because

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he's not there.

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But it's really just ensuring that the person and that person's wishes and desires are taken

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into not even taken into consideration that that is the guiding force.

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They're honored.

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Yeah that they're honored.

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Honored I like that.

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So let me pop in and share some tips for what I think can help everyone be successful in

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person center planning.

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And a lot of this is echoing kind of what you ladies have already said.

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But you know number one listen to your child.

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It is really easy to come in hot and go this worked for you your whole life and you're

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going to want this and we're going to do it because it's the same way we've always done

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it right.

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But let's take a let's take a breath and a break and to determine what their preferences

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and desires are and that should drive our plan.

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Yep that's driving the car.

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And then you know keep that a flexible living breathing document.

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Yeah.

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Because life is unpredictable.

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Things might need to change.

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It's not set in stone once it's created.

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So stay open to adjusting the plan as interests evolves.

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My son's interest interests aren't the same as what they were 10 years ago and I can expect

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they will be different 10 years from now.

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So always keeping that in mind when we're creating a plan utilize your resources take

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advantage of all of them.

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I know parents the limited work of art vocational training educational opportunities any kind

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of workplace training take advantage take advantage encourage our youth to develop these

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skills that promote independence.

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You know I know you guys are going to talk about this but you know maybe leading part

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of an IEP meeting or how can we take charge of knowing who we are and sharing what our

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likes and dislikes are.

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But I think when we talk about person centered planning we need to consider the tools that

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families and individuals can use to help them guide them through this process.

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And that's where something like charting the life course can come in handy.

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And there are a lot of person centered planning tools out there.

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And the reason that we at Idaho parents and limited are honing in on charting the life

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course is because like they said Melissa and Sarah are ambassadors for charting the life

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course and we are going to talk about what we know about.

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So let me ask you this.

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What is charting the life course.

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It's a framework like we talked about that's been developed by the University of Missouri

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Kansas City Institute for Human Development.

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It helped me start from I don't know what to do.

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I don't know how to do this to formula helping me organize and formulate our thoughts my

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thoughts in how to best support my son Truman and what he wanted in his life taking a look

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at the things that he's already doing that he enjoys doing and then putting that into

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a daily plan life trajectory so that as he moves throughout life his needs and wants

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and desires will be.

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He will be able to do those.

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The supports that he that are paid to help him and those that are those people in his

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life that are his natural supports his brothers his parents.

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All of us play a key role in making sure that Truman lives his best life in all the ways.

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And the other part that I really found interesting and going through some of these trainings

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is that people don't just use these for life planning.

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People use them in their work space meetings project development.

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The basic fundamental philosophy of this is thinking about all of the things that are

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around us that we can use in creating fabulous plans.

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I when I first started using it I was like this is just an IP.

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This is just like an outdoor IP or like a home and community based IP and specifically

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the support star is not.

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So what that did for me and the reason I like it and it was able to give me several launching

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points is because it is broken down into the domains.

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And so it enables you to break it apart a little bit as a family to see what supports

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are you currently have what supports might exist in the community what those natural

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supports are.

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And then we start asking some good questions and conversation starters within all of those

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domains.

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I mean so the transition is a huge beast right.

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And so hitting all of those domains in one tool like the support star so we are having

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our daily life daily life and employment community social spirit spirituality healthy living

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and safety security citizenship and advocacy.

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So we're broken apart into all these different facets but it really then creates a holistic

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individualized plan right.

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So it's an IP on steroids.

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It's an IP just out there for for the individuals every single aspect of their life.

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I guess that's how I started to look at it.

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It's funny because when we were talking in one of our team meetings on this training

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so many people said wouldn't this be great to give to the IP team.

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Wouldn't these things be great to give to the IP team me team or to the doctor or to

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to our community support worker.

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It is kind of like wrapping up this plan in a neat little bow that's easy for all people

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to understand and read.

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And what you said earlier with the children's developmental disability plan that workbook

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I recently filled it out.

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It was so easy to fill out after I have these two I had these tools that I've already used

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these tools and I knew exactly what needed to go into that workbook because I know what

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his interest with his hobbies what he is involved in within the strengths in the community.

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And so it enabled me just to dump it right into his support and spending plan and it

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makes sense and it's it's a cohesive about him.

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It's about him but it's cohesive because this is already a tool that we are using in his

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educational setting as well.

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And the thing the really cool thing is you can take a tool not all tools are going to

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work for every situation or every person.

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I mean when my daughter was trying to figure out where to go to college and everything

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I'm like let's pull out the trajectory and it became kind of a joke like oh no mom's

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going to trajectory me.

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But like you said it is it can be a prod at project management tool.

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It can be something that you utilize in your life tool to as a tool.

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So it's not just for our for our kids.

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Right.

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The charting the life course the life course nexus which is really the centralized entity

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that helps that houses all of the tools that are created through this and all of the the

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support star we keep talking about the support star and the trajectory there's worksheets

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on the Web site that help explain what to put in your in these little buckets and then

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examples of what other people have used in different parts of their world.

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And so it is almost taking the guesswork out of it for all of us and make in helping it

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helped me to think of things that I hadn't thought of because we're so used to just being

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stuck in our little tight little bubbles because that's safe there and looking at all other

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ways that we can pull into some of these plans and get ideas.

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All right.

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Well now that you're excited and you want to know when where how can I learn more.

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Just know that we are going to continue this interactive conversation and in conjunction

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with the Idaho Council on Developmental Disabilities.

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We are thrilled to announce a three part virtual discussion.

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It's going to be a series where we're going to talk about service planning focused on

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strengths, family priorities and personal preferences.

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You're going to find more in the description box but planning without fear using person

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centered tools to reach a strength based result is going to be happening August 27th from

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630 to 730.

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Mountain Standard Time followed by strength based transition planning or exploring the

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impact of transitions across the lifespan.

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That's going to be on September 24th from 630 to 730 Mountain Time followed by the final

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iteration of the series Feeling More Prepared telling your story during eligibility and beyond.

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And that'll be on October 29th from 630 to 730.

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Do one do them all.

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All of the EIPOL ladies will be there to help you along the way.

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Also facilitated by Jill Smith from the DD Council and her information and a link to

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her email will be included in the description box so you can sign up and we hope to see

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you there.

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Yeah, we do.

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We're going to do some fun.

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You'll be able to use these tools and it's going to be very worthwhile.

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You'll see them in action.

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Yes.

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Thank you so much everyone out there for listening in and know that if you are in Idaho or planning

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on moving to Idaho and have questions on systems or services for children with disabilities,

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please consider reaching out to us on our website at EIPOL Idaho.

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That's I P U L Idaho dot org.

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Or by calling us at 208-342-5884.

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Be sure to tune in next time.

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Until then, this has been Unlimited Parenting.

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Thanks for listening.

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you

