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Welcome to Unlimited Parenting, where we discuss parenting children with disabilities or special

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health care needs.

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My name is Allison, and today I am joined by everyone's favorite, Melissa.

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Hey!

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Is that the sound of the real thing?

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That's feedback I've received.

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You're so lame.

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I wish.

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Please someone.

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Please, please someone send in that feedback.

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I'm just kidding.

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And today we are here to record another installment of IPUL Found It on Facebook.

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This is the second episode of that series, so if you missed the first, they are not in

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any way chronological or connected, but you're welcome to go back and listen to it because

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they are covering different questions.

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So if you missed the first episode, just a little backstory is I was on Facebook.

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Weird.

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You keep opening some TikTok.

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I'm very old.

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And I was noticing that there are lots of questions that get asked in a lot of groups,

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you know, whether they're diagnosis specific groups or just Treasure Valley groups, statewide

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groups.

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There's a lot of questions that get asked and sometimes there's not a lot of answers.

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Sometimes there are a lot of answers.

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And I thought, what if we took some of those questions, we researched them to, you know,

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the end of the world, and then we came back and presented a fully reviewed answer to some

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of those questions.

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Love it.

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So that's what we've done.

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Today we have four questions and if it's a...

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I'm laughing because she said four questions, but the amount of paperwork that is before

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us.

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Sorry, it looks like more than four.

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Listen, I researched it a lot.

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And she says she is researching this to the depths of the internet and back.

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She's serious.

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And if you're curious about where I found this information, I would be happy to link

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it and or provide it to you.

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So I saved the receipts.

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Good deal.

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I'm sure you'll all be too.

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Just in case you wanted to know more.

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Okay.

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So question number one.

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Okay.

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And for this question in specific, it will be a lot of me kind of explaining, but then

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I would like to hear your family perspective on this first question.

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Okay.

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It is, what is ESY and how is a student eligible for it?

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So let's first begin by explaining that ESY is extended school year.

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Yep.

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Right?

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Okay.

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So here we go.

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ESY is the principle that each student with a disability is, in fact, entitled to an

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individually designed education established in a series of court cases that led to the

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adaptation in 1975 of the federal law that we now know as IDEA, right?

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The Individuals with Disabilities Education Act.

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Basically, what I'm saying here is, is that there's been a lot to get to where we are

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right now.

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So if you remember nothing from the words that come out of my mouth next, please remember

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that this didn't happen overnight.

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A subsequent series of court cases and policy clarifications established providing special

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education services beyond the usual school year is a part of FATE, which is the Free

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and Appropriate Public Education.

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Everybody deserves one.

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Everybody gets one.

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These decisions have prescribed the basic requirements for the ESY program eligibility

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and defined some of the related extended school year elements, such as the length and type

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of the program, funding, and transportation.

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In addition to all of that, the Office of Civil Rights of the Department of Education

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ruled that even students regarded as disabled under Section 504 of the Rehabilitation Act

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and not eligible for services under IDEA have to be considered for ESY services.

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So I'll allow a pause for that to blow your mind for a second.

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Okay, mind blown?

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The wow.

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It came out of, like my head is that emoji right now.

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A letter of finding issued by OCR to the Baltimore City Public Schools.

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Again, I recognize that this is not Idaho, but it still sets a precedent, right?

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States that Section 504 regulations require that the individual needs of every child be

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examined, considered, and met.

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While 180 days of school may be adequate for some, again, this is not my word, and this

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is from a letter from a while ago.

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So this is not current zeitgeist, but for some handicapped students, it may not be an

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adequate amount of time for others.

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So eligibility for extended school year services at no cost to the parent is determined by

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the child's team.

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Okay, so buckle up for another one.

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Because there's a whole lot of work that went into extended school year.

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So if nothing, maybe this just gives you a greater appreciation for extended school year.

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So Royce Royce versus Fountain in December 29, 1994, the court noted that emerging skills

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and quote unquote breakthrough opportunities.

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So that's like when a child is on the brink of learning how to read, right?

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And should be incorporated into the eligibility analysis for extended school year.

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The child is in a critical stage of developing a skill which has great potential for increasing

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his or her self-sufficiency.

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If such a skill is not completely acquired and mastered, it is likely that that skill

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will be lost due to the interruption of summer vacation.

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That decision of the US Supreme Court in Maryland, again Maryland, wow, prescribed very specific

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requirements relative to the ESY procedures.

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The court found that the explanation about extended school year contained a brochure

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that got distributed to all students and that that was NASS efficient and ordered additional

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explanation be provided to all parents.

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The court in that decision also ordered that the student's eligibility for extended school

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year be considered at each annual review meeting because at this point it had not been, right?

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And the parents sign a form acknowledging that they received this information.

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So quick recap, IDEA has been around decades, but extended school year was kind of more

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of a conversation starting 1994, right?

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The district must document the decision and the discussion reached for consideration of

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ESY.

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So that's something that you might have noticed when you are looking at your IEP, was extended

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school year discussed, was it determined necessary?

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And now that looks like a checkbox.

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And part of that is in thanks to this decision in 1994.

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Christine.

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Here's another one.

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Okay.

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A number of federal courts, I'm talking my boys Johnson v Bixby, the federal circuit

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court in 1990.

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And get this one, battle versus Pennsylvania.

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That sounds like a UHC fight.

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It does.

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UFC?

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Sure.

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Anyway, tell us in the comments, which is the third federal.

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WEE, I don't know.

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Can you smell what Bixby?

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What cocaine?

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Okay, that last one is 1980.

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Sorry.

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Mentioned that one of the standards that needs to be considered in determining the need for

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extended school year is, and this might shock you, the ability of the parents to provide

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structure at home.

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The regression and recruitment issue will not be as severe.

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Thus, extended school year services through the school staff may not be necessary.

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So again, this is really emphasizing that the IEP is, in fact, don't be surprised, a

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team.

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Sure.

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So can the team provide those services, including the parents?

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So perhaps the parent feels, you know what, we're going to decline ESY.

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You may have been found eligible for it, but I feel like I can provide those supports in

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home.

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Right.

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Okay.

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Now, that's some federal level business.

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Federal level litopity.

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What about the state of Idaho?

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What's the state of Idaho have to say about extended school year?

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Well, let me tell you.

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It's basically what you've already heard, that it's mandatory and it's mandatory that

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it be assessed.

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Right.

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Provide special education and related services to an eligible student with a disability beyond

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the conventional number of instructional days, that 180 that we talked about earlier, and

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this is key, at no cost to the parents.

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It must be based on the IEP team decision that meets Idaho standards.

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The district shall provide extended school year services for students with disabilities

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who qualify.

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Right.

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The student's educational program is based on individual needs and not determined by

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what the program already has available in the district.

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That is straight from the special education manual.

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I'll repeat it again.

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The student's educational program is based on individual needs and is not determined

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by what programs are readily available within the district.

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Again, another very important statement coming up.

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A student cannot be required to fail or to go for an entire school year without extended

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school year services simply to prove a need.

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The IEP team shall consider the following.

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The term means special education and or related services that are provided beyond the regular

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school year.

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Now I feel like I'm at the end of that commercial when they're just trying to say, oh, Zempit

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can, and they result in...

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You'll say micro machines, but you're probably too young and you don't even remember that.

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I don't know what a micro machine is.

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Well, the micro machines, it was these little teeny...

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Anyways, I talked really fast.

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Let me just put it at those.

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Yeah, you checked really fast.

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The goal of ESY at the end of the day is to assist students with disabilities with the

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emergence and maintenance of IEP goals addressed during the school year, right?

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Right.

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These goals can include independence, behavior, socialization, communication, academics, but

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it provides a different focus from general education summer school programs.

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So we're talking about emerging skills, regression recruitment, and self-sufficiency.

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Okay?

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Okay.

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Okay, one more thing I wanted to include.

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I don't want to bore you guys to absolute death, but I do have IDEA CFRs if you really

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wanted to go crazy and look up more about what IDEA in specific has to say about extended

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school year, and they are 300.106 and 300.20 through 300.324.

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If you want to go crazy, go crazy.

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Play that for your weekend extravaganza.

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Exactly.

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So, full disclosure, I am not a parent of a child who qualifies for extended school

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year, but you are.

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I am.

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And I would like to hear more about if you chose to pursue extended school year or not.

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Okay.

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So I will back kind of way back up.

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My son is going into the... What?

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We're having a moment.

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I just had a moment.

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He's going into the ninth grade.

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That means he is a freshman in high school.

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That is disgusting.

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Okay.

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He is eligible for ESY.

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He is eligible for extended school year.

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However, it's not something that we choose at this time to pursue and participate in.

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But backing way up, we did a couple of times participate in ESY.

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The first time we participated is when he had the emerging skill of walking.

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It was... Talk about something that's important.

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Right?

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And so I'm like, absolutely, we're going to do this.

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We are going to do this.

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He had his cute little walker.

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His physical therapist had some really, really great goals that we used to foster some independence.

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So he got himself this nifty little walker.

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He qualified in March for extended school year.

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The walker came in May, and a week later he started walking.

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So that was wonderful.

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So we used the entirety of the six week ESY session to focus on how he was going to maneuver

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and continuing to learn the school environment, the playground environment, because it was

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now a really new skill.

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It was no longer a skill that we were working on getting out, but now it was an emerging

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skill.

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So we spent that entire six weeks working one to... Well, I don't want to say one to

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one with a physical therapist, but with some really, really individualized physical therapy

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goals.

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I will say that it was a little bit of a struggle because when he participated this particular

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year it was at a school different than the school that he normally went to during normal

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school, just whatever.

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And it was with a team that was different from his school team.

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So it was different paraprofessionals and a different lead special education teacher.

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The reason that this worked though, the physical therapist was the same physical therapist

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that came from his traditional school.

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Oh, so someone he knew.

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So someone he knew.

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So it worked, and it worked, and he walked, and we never looked back.

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So that skill was not something that regressed.

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We emerged and here we are so many years later.

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The next year we had a very similar conversation with his team because we had just started

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Reese's nonverbal, but uses a communication device.

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And we had just secured the communication device, a new system, and we're really trying

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to get that up and running with the team and everybody and get him on board.

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And it was an emerging skill that we didn't want to say only us as a family worked on

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for the summer.

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We wanted everybody on the team to work with it.

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00:15:42,560 --> 00:15:46,920
And again, we were at a different school with a different team, a different SPED teacher,

251
00:15:46,920 --> 00:15:49,840
and this time with a different speech pathologist.

252
00:15:49,840 --> 00:15:50,840
And it didn't work.

253
00:15:50,840 --> 00:15:52,040
This time it didn't work.

254
00:15:52,040 --> 00:15:53,120
Reese pushed back.

255
00:15:53,120 --> 00:15:58,360
Reese, it took us almost the entirety of the six weeks to get him really acclimated to

256
00:15:58,360 --> 00:16:02,680
the new staff, to the new.

257
00:16:02,680 --> 00:16:07,280
And so we didn't see what we thought we would see from it like we did the year before with

258
00:16:07,280 --> 00:16:09,320
the walking.

259
00:16:09,320 --> 00:16:13,480
And so from that point on, he still qualifies every year.

260
00:16:13,480 --> 00:16:22,160
We had the conversation in February of this year about he has some emerging skills, communication

261
00:16:22,160 --> 00:16:26,480
still being one of those, and that would still qualify him.

262
00:16:26,480 --> 00:16:35,320
But it's not something that we at this time really pursue as a family because, and truly,

263
00:16:35,320 --> 00:16:40,880
it's because the team is different and there's not consistency, and I know for my child that

264
00:16:40,880 --> 00:16:44,720
consistency is key.

265
00:16:44,720 --> 00:16:46,240
And I want to give him a summer.

266
00:16:46,240 --> 00:16:47,720
I want to give him some time.

267
00:16:47,720 --> 00:16:50,800
So we kind of struggle with that a little bit.

268
00:16:50,800 --> 00:16:55,200
Is this intervention that he desperately needs, or is this something, like you said in the

269
00:16:55,200 --> 00:17:02,920
open, that can be somewhat replicated in the home and that we don't have to worry about?

270
00:17:02,920 --> 00:17:06,040
I don't have to worry that he's not going to use the communication device when we go

271
00:17:06,040 --> 00:17:07,040
back to school.

272
00:17:07,040 --> 00:17:11,120
I know that we are still utilizing it, that we're still, that these are still skills that

273
00:17:11,120 --> 00:17:12,120
we're working on.

274
00:17:12,120 --> 00:17:13,760
So yeah, that's where we are.

275
00:17:13,760 --> 00:17:14,760
Did I?

276
00:17:14,760 --> 00:17:18,440
Yeah, no, that makes a lot of sense.

277
00:17:18,440 --> 00:17:25,280
I'm curious, and it's not to say that just because you're eligible for ESY one year,

278
00:17:25,280 --> 00:17:28,200
it doesn't mean you're going to be eligible the following year, right?

279
00:17:28,200 --> 00:17:31,800
That's a really good point because there's been a couple years where we weren't.

280
00:17:31,800 --> 00:17:37,720
Maybe his later years, for one reason or another, he didn't have eligibility.

281
00:17:37,720 --> 00:17:43,920
I potentially could have pushed that if it was something that I felt strongly about,

282
00:17:43,920 --> 00:17:45,760
but I didn't.

283
00:17:45,760 --> 00:17:46,760
I don't know.

284
00:17:46,760 --> 00:17:54,080
I don't necessarily feel like we ever were in fear of losing anything where he wasn't

285
00:17:54,080 --> 00:17:55,920
found eligible for.

286
00:17:55,920 --> 00:18:01,800
Before we close out on this, I want to give a few pointers on what Extended School Year

287
00:18:01,800 --> 00:18:02,800
is not.

288
00:18:02,800 --> 00:18:05,280
Please do.

289
00:18:05,280 --> 00:18:13,520
Extended School Year is not mandated 12-month services for all students with disabilities.

290
00:18:13,520 --> 00:18:20,840
Just because you qualify for an IEP does not mean you automatically qualify for ESY.

291
00:18:20,840 --> 00:18:26,560
Extended School Year is not required for the convenience of the school or parents, and

292
00:18:26,560 --> 00:18:30,120
therefore, it cannot serve as a respite care service.

293
00:18:30,120 --> 00:18:36,000
It is not required or intended to maximize educational opportunities for any student

294
00:18:36,000 --> 00:18:37,640
with disabilities.

295
00:18:37,640 --> 00:18:42,480
Remember the recoupment emerging skills conversation.

296
00:18:42,480 --> 00:18:49,400
I would even venture to say that it's not super convenient for parents.

297
00:18:49,400 --> 00:18:54,000
It's a six-week, and transportation is provided if that's something your child is eligible

298
00:18:54,000 --> 00:18:58,120
for, but it's just in the morning.

299
00:18:58,120 --> 00:19:00,840
You've got to figure out how to maneuver around it.

300
00:19:00,840 --> 00:19:09,160
Absolutely, it's never intended for the convenience of a family or for babysitting services.

301
00:19:09,160 --> 00:19:14,600
It is not necessary to continue instruction on previous year's IEP goals.

302
00:19:14,600 --> 00:19:19,680
Rather, the focus would be on those specific critical skills where regression due to an

303
00:19:19,680 --> 00:19:23,720
extended vacation may occur.

304
00:19:23,720 --> 00:19:29,160
It's not to help students with disabilities advance in relation to their peers, like an

305
00:19:29,160 --> 00:19:33,080
IEP maybe throughout the school year.

306
00:19:33,080 --> 00:19:38,800
It's not for those students with disabilities who exhibit regression, which is only related

307
00:19:38,800 --> 00:19:47,600
to medical problems resulting in degeneration or transitional life situations such as divorce

308
00:19:47,600 --> 00:19:50,000
or death of a family member.

309
00:19:50,000 --> 00:19:55,880
It is not required solely when a child fails to achieve IEP goals during the year.

310
00:19:55,880 --> 00:20:02,440
It is not to provide a child with education beyond what is prescribed in his or her IEP.

311
00:20:02,440 --> 00:20:09,720
So, I hope I have left everyone with a very concrete explanation of what extended school

312
00:20:09,720 --> 00:20:11,440
year is and isn't.

313
00:20:11,440 --> 00:20:12,440
Yes.

314
00:20:12,440 --> 00:20:14,080
Do you feel educated?

315
00:20:14,080 --> 00:20:16,080
I do.

316
00:20:16,080 --> 00:20:17,520
Okay, perfect.

317
00:20:17,520 --> 00:20:23,520
Hearing no further questions, I would like to move on to question number two.

318
00:20:23,520 --> 00:20:29,680
This one, I'm not sure, please, if you have any feedback, feel free, but I'm not sure

319
00:20:29,680 --> 00:20:33,080
this is something that really interests me.

320
00:20:33,080 --> 00:20:35,840
No, I feel like that's wrong.

321
00:20:35,840 --> 00:20:38,680
I don't feel like it's something that you've pursued.

322
00:20:38,680 --> 00:20:40,880
But if you've ever had a parent ask about it, please.

323
00:20:40,880 --> 00:20:42,880
Oh, I know, I'll show you.

324
00:20:42,880 --> 00:20:48,960
The second question I found on Facebook is, what is neurofeedback therapy and will Family

325
00:20:48,960 --> 00:20:50,720
Direct pay for it?

326
00:20:50,720 --> 00:20:51,720
Did I put that in there?

327
00:20:51,720 --> 00:20:52,720
No, I'm just kidding.

328
00:20:52,720 --> 00:20:53,720
No, because I don't know.

329
00:20:53,720 --> 00:20:54,720
You're right.

330
00:20:54,720 --> 00:20:55,720
I don't know much about it.

331
00:20:55,720 --> 00:20:59,200
So, I'm going to learn right along with all of you.

332
00:20:59,200 --> 00:21:00,200
All of you listeners.

333
00:21:00,200 --> 00:21:01,200
I hope you're ready.

334
00:21:01,200 --> 00:21:02,200
I am.

335
00:21:02,200 --> 00:21:06,360
Before I even start, I want to say the following.

336
00:21:06,360 --> 00:21:11,200
EIPL is endorsing neurofeedback therapy and none of the staff at EIPL have received neurofeedback

337
00:21:11,200 --> 00:21:13,280
for themselves or their children.

338
00:21:13,280 --> 00:21:14,360
That is correct.

339
00:21:14,360 --> 00:21:20,400
I am going to state some facts that I have researched and if I state an opinion, I will

340
00:21:20,400 --> 00:21:23,040
attribute it to the person who provided it.

341
00:21:23,040 --> 00:21:24,040
Okay.

342
00:21:24,040 --> 00:21:25,160
Thank you.

343
00:21:25,160 --> 00:21:27,480
Except right now, here's my opinion.

344
00:21:27,480 --> 00:21:29,520
I will here attribute it to you.

345
00:21:29,520 --> 00:21:31,880
I think it sounds kind of cool.

346
00:21:31,880 --> 00:21:32,880
That's my opinion.

347
00:21:32,880 --> 00:21:33,880
Okay.

348
00:21:33,880 --> 00:21:34,880
Okay, now here we go.

349
00:21:34,880 --> 00:21:43,680
Neurofeedback is also referred to as EEG biofeedback, but since that's a mouthful, they say neurofeedback.

350
00:21:43,680 --> 00:21:44,680
They mean-

351
00:21:44,680 --> 00:21:45,680
Which is not a mouthful.

352
00:21:45,680 --> 00:21:48,280
Listen, you got to make some choices.

353
00:21:48,280 --> 00:21:49,280
Yeah.

354
00:21:49,280 --> 00:21:50,760
I'm surprised it's not an acronym.

355
00:21:50,760 --> 00:21:53,240
I'm really just, in this world, everything-

356
00:21:53,240 --> 00:21:54,240
NFB?

357
00:21:54,240 --> 00:21:55,600
Is that what the acronym would be?

358
00:21:55,600 --> 00:21:56,600
NFB?

359
00:21:56,600 --> 00:21:58,480
I'm glad it's not an acronym.

360
00:21:58,480 --> 00:22:00,480
Okay, neurofeedback.

361
00:22:00,480 --> 00:22:06,880
Noninvasive and is referred to as a learning modality that is designed to find and then

362
00:22:06,880 --> 00:22:10,640
retrain dysregulated brainwave patterns.

363
00:22:10,640 --> 00:22:17,160
In the simplest of terms, you can think of it as a guided exercise for your brain that

364
00:22:17,160 --> 00:22:21,440
is based on a psychological concept called operant conditioning.

365
00:22:21,440 --> 00:22:25,960
Now I am going to pause and explain operant conditioning because I think it becomes important

366
00:22:25,960 --> 00:22:27,480
later.

367
00:22:27,480 --> 00:22:30,840
Operant conditioning was first coined by my guy B.F.

368
00:22:30,840 --> 00:22:37,360
Skinner, who wanted to look at the external causes of human behavior.

369
00:22:37,360 --> 00:22:47,800
That word operant is used to refer to any active behavior that operates, get it, operates

370
00:22:47,800 --> 00:22:53,480
on the environment to generate a consequence, so external behavior, not any kind of like

371
00:22:53,480 --> 00:22:55,680
intrinsic causes of behavior.

372
00:22:55,680 --> 00:23:03,760
The word operant is used to refer to any active behavior that operates on the environment

373
00:23:03,760 --> 00:23:05,960
to generate a consequence.

374
00:23:05,960 --> 00:23:13,080
But please remember that in this instance, consequence is an ambivalent term, right?

375
00:23:13,080 --> 00:23:18,240
It could be positive, it could be negative, simply what happens as a result of this behavior.

376
00:23:18,240 --> 00:23:19,240
Are you still with me?

377
00:23:19,240 --> 00:23:20,640
Yeah, I'm still with you.

378
00:23:20,640 --> 00:23:21,640
Okay.

379
00:23:21,640 --> 00:23:22,640
Okay.

380
00:23:22,640 --> 00:23:27,840
Operant, which are followed by reinforcement, will then of course be strengthened and more

381
00:23:27,840 --> 00:23:31,080
likely to continue again in the future, right?

382
00:23:31,080 --> 00:23:36,080
If I tell a funny story and then everybody laughs at me, I'm more likely to tell that

383
00:23:36,080 --> 00:23:39,160
story again or try to be funny again, right?

384
00:23:39,160 --> 00:23:42,360
Hence the child who repeatedly tells the same joke.

385
00:23:42,360 --> 00:23:47,320
In the future, the term operant is to refer to any active behavior that operates upon

386
00:23:47,320 --> 00:23:49,920
the environment to generate a consequence.

387
00:23:49,920 --> 00:23:50,920
Okay.

388
00:23:50,920 --> 00:23:51,920
Okay.

389
00:23:51,920 --> 00:23:52,920
So, clear as mud, perfect.

390
00:23:52,920 --> 00:23:56,080
I told you, you guys, you had a lot of papers.

391
00:23:56,080 --> 00:24:00,720
Listen, I have so many papers, it's ridiculous.

392
00:24:00,720 --> 00:24:02,800
This is what is happening with neurofeedback.

393
00:24:02,800 --> 00:24:10,480
The system is rewarding your brain when your brain provides that preselected brainwave.

394
00:24:10,480 --> 00:24:16,660
So at this point, you may be asking yourself, self, how exactly is this working?

395
00:24:16,660 --> 00:24:23,240
So first, there are sensors that are connected to your brain, again, non-invasive, not painful.

396
00:24:23,240 --> 00:24:24,240
Just outside.

397
00:24:24,240 --> 00:24:25,240
External.

398
00:24:25,240 --> 00:24:26,320
External.

399
00:24:26,320 --> 00:24:28,800
That monitors the brain's activity.

400
00:24:28,800 --> 00:24:29,800
While this is happening-

401
00:24:29,800 --> 00:24:30,800
P-E-G, guys.

402
00:24:30,800 --> 00:24:34,880
Exactly, because that's why it's called P-E-G, biofeedback.

403
00:24:34,880 --> 00:24:38,960
So the sensors are connected to your brain, monitoring your brain's activity.

404
00:24:38,960 --> 00:24:40,720
I wish this was being videoed.

405
00:24:40,720 --> 00:24:42,720
While this is happening-

406
00:24:42,720 --> 00:24:44,280
Lovely, you guys.

407
00:24:44,280 --> 00:24:50,480
While all of this is happening, the computer is interpreting the signals that it's receiving.

408
00:24:50,480 --> 00:24:54,300
So if the brain is doing what we want it to do, then a reward is given.

409
00:24:54,300 --> 00:24:56,600
So let's take my child, for example.

410
00:24:56,600 --> 00:24:58,080
They love the show Gravity Falls.

411
00:24:58,080 --> 00:24:59,080
So do I.

412
00:24:59,080 --> 00:25:02,280
So while they're hooked up, they're watching Gravity Falls.

413
00:25:02,280 --> 00:25:03,880
Again, my children, I'm not doing it.

414
00:25:03,880 --> 00:25:06,440
I'm just using this as an example.

415
00:25:06,440 --> 00:25:08,000
But they're hooked up to electro-

416
00:25:08,000 --> 00:25:10,040
They're watching Gravity Falls.

417
00:25:10,040 --> 00:25:11,320
Exactly.

418
00:25:11,320 --> 00:25:15,720
When their brain is producing the brainwave that we've selected that we want more of,

419
00:25:15,720 --> 00:25:21,280
the screen that they're watching may light up, providing that positive reinforcement.

420
00:25:21,280 --> 00:25:23,760
So they were always watching Gravity Falls, but it was darker.

421
00:25:23,760 --> 00:25:24,760
It was dipped.

422
00:25:24,760 --> 00:25:25,760
Oh.

423
00:25:25,760 --> 00:25:27,800
Until the brainwave that we've selected-

424
00:25:27,800 --> 00:25:29,780
So why do we select that brainwave?

425
00:25:29,780 --> 00:25:33,560
Because that's the wave that we want to see more of, that we want to encourage, that helps

426
00:25:33,560 --> 00:25:36,200
us with other things.

427
00:25:36,200 --> 00:25:38,160
Okay.

428
00:25:38,160 --> 00:25:39,160
Is that mapped out?

429
00:25:39,160 --> 00:25:40,160
Sorry.

430
00:25:40,160 --> 00:25:41,160
Yes.

431
00:25:41,160 --> 00:25:42,160
And then it's in advance.

432
00:25:42,160 --> 00:25:45,880
So there's an initial session where they're like, wow, we're really low over here.

433
00:25:45,880 --> 00:25:46,880
Okay.

434
00:25:46,880 --> 00:25:48,080
And we're really high up here.

435
00:25:48,080 --> 00:25:50,440
And we're looking to balance it out by doing this.

436
00:25:50,440 --> 00:25:51,440
Interesting.

437
00:25:51,440 --> 00:25:52,440
Okay.

438
00:25:52,440 --> 00:25:53,440
So-

439
00:25:53,440 --> 00:25:54,440
I just had to-

440
00:25:54,440 --> 00:25:55,440
No.

441
00:25:55,440 --> 00:25:56,440
Make it make sense.

442
00:25:56,440 --> 00:25:57,440
Okay.

443
00:25:57,440 --> 00:25:58,440
Please.

444
00:25:58,440 --> 00:26:00,160
When their brain is producing the brainwave that we want more of, the screen lights up.

445
00:26:00,160 --> 00:26:06,760
And that's the positive reinforcement to create more of that brainwave.

446
00:26:06,760 --> 00:26:11,880
Could be in an alternate situation, the sound on Gravity Falls is off.

447
00:26:11,880 --> 00:26:15,200
And so when the brainwave that we want, the sound would turn on.

448
00:26:15,200 --> 00:26:16,200
Right?

449
00:26:16,200 --> 00:26:17,200
So it could be audio.

450
00:26:17,200 --> 00:26:18,200
Okay.

451
00:26:18,200 --> 00:26:19,200
It could be visual.

452
00:26:19,200 --> 00:26:25,320
And hold onto your britches because it could also be a vibrating chair.

453
00:26:25,320 --> 00:26:30,760
Now, from what I have learned, there are very few of these vibrating beds that are left.

454
00:26:30,760 --> 00:26:37,080
But what makes this super cool is with the chair concept is that reinforcement can be

455
00:26:37,080 --> 00:26:41,400
delivered even if the individual is asleep.

456
00:26:41,400 --> 00:26:43,400
Oh.

457
00:26:43,400 --> 00:26:47,760
Because if you produce that wave, they can still provide the feedback by vibrating the

458
00:26:47,760 --> 00:26:50,840
chair even if they're asleep.

459
00:26:50,840 --> 00:26:53,720
This is just what I know.

460
00:26:53,720 --> 00:26:58,520
So the brain is now recognizing the reward and the consequence and responding with the

461
00:26:58,520 --> 00:27:00,120
changes.

462
00:27:00,120 --> 00:27:02,400
I also want to make something very clear.

463
00:27:02,400 --> 00:27:04,380
Neurofeedback, not new.

464
00:27:04,380 --> 00:27:06,720
This is not something that's just happened, right?

465
00:27:06,720 --> 00:27:09,400
It's been studied for the past 40 years.

466
00:27:09,400 --> 00:27:17,600
Dr. Duffy, a professor and pediatric neurologist at Harvard Medical School, is quoted as saying

467
00:27:17,600 --> 00:27:20,240
the following.

468
00:27:20,240 --> 00:27:24,660
Neurofeedback should play a major therapeutic role in many difficult areas.

469
00:27:24,660 --> 00:27:31,040
In my opinion, if any medication had demonstrated such a wide spectrum of efficacy, it would

470
00:27:31,040 --> 00:27:34,120
be universally accepted and widely used.

471
00:27:34,120 --> 00:27:35,680
That's some high praise.

472
00:27:35,680 --> 00:27:36,680
Absolutely.

473
00:27:36,680 --> 00:27:37,680
That is some praise.

474
00:27:37,680 --> 00:27:38,680
Probably exactly right.

475
00:27:38,680 --> 00:27:41,880
If this was a pill you could pop, everybody would want it.

476
00:27:41,880 --> 00:27:42,880
Right.

477
00:27:42,880 --> 00:27:43,880
It's the ozempic of...

478
00:27:43,880 --> 00:27:44,880
Yeah.

479
00:27:44,880 --> 00:27:45,880
Okay.

480
00:27:45,880 --> 00:27:46,880
So what is neurofeedback?

481
00:27:46,880 --> 00:27:51,040
Give me some diagnoses that neurofeedback could be used for.

482
00:27:51,040 --> 00:27:52,840
Pretend like you just asked me that question.

483
00:27:52,840 --> 00:27:53,840
Oh, okay.

484
00:27:53,840 --> 00:27:54,840
I wasn't trying to...

485
00:27:54,840 --> 00:27:55,840
What did I want them to...

486
00:27:55,840 --> 00:27:56,840
I know.

487
00:27:56,840 --> 00:27:57,840
I was like, I don't know.

488
00:27:57,840 --> 00:28:00,840
You're supposed to be telling me you found this.

489
00:28:00,840 --> 00:28:06,360
What are some diagnoses that could possibly use neurofeedback, Allison?

490
00:28:06,360 --> 00:28:07,720
That's such a good question.

491
00:28:07,720 --> 00:28:08,720
Thanks.

492
00:28:08,720 --> 00:28:16,560
They could be diagnoses such as ADHD, panic attacks, autism, maybe you've had a stroke,

493
00:28:16,560 --> 00:28:24,280
headaches, anxiety, insomnia, post-traumatic stress disorder, learning disorders, TBI,

494
00:28:24,280 --> 00:28:26,280
et cetera.

495
00:28:26,280 --> 00:28:32,880
Now, from what I have gathered, the extensive research has been for individuals who have

496
00:28:32,880 --> 00:28:33,880
ADHD.

497
00:28:33,880 --> 00:28:34,880
Okay.

498
00:28:34,880 --> 00:28:39,840
I did not research to see if that 40 years applies to any of the other diagnoses.

499
00:28:39,840 --> 00:28:40,840
Okay.

500
00:28:40,840 --> 00:28:41,840
Just...

501
00:28:41,840 --> 00:28:42,840
End of clarification.

502
00:28:42,840 --> 00:28:43,840
Never mind.

503
00:28:43,840 --> 00:28:46,360
You're going to say this probably, so I'll...

504
00:28:46,360 --> 00:28:48,520
Well, hold on to your...

505
00:28:48,520 --> 00:28:49,520
Hold on to your britches.

506
00:28:49,520 --> 00:28:50,520
Okay.

507
00:28:50,520 --> 00:28:52,120
Now, for the million dollar question.

508
00:28:52,120 --> 00:28:55,480
Is neurofeedback dangerous and or does it hurt?

509
00:28:55,480 --> 00:29:01,280
I'm here to tell you that it's completely painless and again, non-invasive.

510
00:29:01,280 --> 00:29:05,160
It is marked as safe by the FDA.

511
00:29:05,160 --> 00:29:11,880
In fact, the FDA recognizes that neurofeedback has never produced a serious side effect since

512
00:29:11,880 --> 00:29:14,960
it was first discovered 40 years ago.

513
00:29:14,960 --> 00:29:20,280
But having said that, I also would like to say that I, in my research, have seen reports

514
00:29:20,280 --> 00:29:25,720
from parents that say that their child appeared tired after sessions.

515
00:29:25,720 --> 00:29:28,680
And they attribute that to mean that it was a good exercise.

516
00:29:28,680 --> 00:29:31,800
And that's what their providers have said that, you know, wow, we really exercise the

517
00:29:31,800 --> 00:29:33,440
brain so yes, they're tired.

518
00:29:33,440 --> 00:29:37,080
But I want to mention that that is what happened.

519
00:29:37,080 --> 00:29:42,720
So typically, the next question, at least in my mind, the next question would be, okay,

520
00:29:42,720 --> 00:29:43,720
how long?

521
00:29:43,720 --> 00:29:44,720
How long are those sessions?

522
00:29:44,720 --> 00:29:46,200
How many do there need to be?

523
00:29:46,200 --> 00:29:47,200
Is this a forever?

524
00:29:47,200 --> 00:29:51,520
Yeah, is it a you can cure or you can?

525
00:29:51,520 --> 00:29:52,520
Exactly.

526
00:29:52,520 --> 00:29:53,520
Yeah, exactly.

527
00:29:53,520 --> 00:29:54,520
So this is what I found.

528
00:29:54,520 --> 00:29:58,080
A typical session lasts between 30 and 50 minutes.

529
00:29:58,080 --> 00:30:01,840
And a typical treatment plan is roughly 20 sessions.

530
00:30:01,840 --> 00:30:03,580
Of course, some people need more.

531
00:30:03,580 --> 00:30:05,360
Some people need less.

532
00:30:05,360 --> 00:30:06,600
Okay.

533
00:30:06,600 --> 00:30:12,080
Because the brain is neuroplastic, right, the changes appear to be permanent.

534
00:30:12,080 --> 00:30:18,920
The ultimate hope is that once the brain learns how and when to produce the certain brain

535
00:30:18,920 --> 00:30:26,080
wave, the ability to do so is natural and now inherently a part of like a permanent

536
00:30:26,080 --> 00:30:27,800
circuit in the brain.

537
00:30:27,800 --> 00:30:28,800
Okay.

538
00:30:28,800 --> 00:30:33,200
Because, as I just mentioned, the brain is plastic, it can always learn and grow and

539
00:30:33,200 --> 00:30:34,200
change.

540
00:30:34,200 --> 00:30:35,200
Wow.

541
00:30:35,200 --> 00:30:36,200
Okay.

542
00:30:36,200 --> 00:30:42,000
I have a few other studies on neurofeedback that I would be happy to share in the sake

543
00:30:42,000 --> 00:30:43,000
of time.

544
00:30:43,000 --> 00:30:45,460
I'm not going to go through all of them, but if you want to know more, please feel free

545
00:30:45,460 --> 00:30:46,460
to reach out.

546
00:30:46,460 --> 00:30:50,680
So now that we've know about neurofeedback, let's get back to the second half of that

547
00:30:50,680 --> 00:30:55,520
question, which was, does FDS cover neurofeedback?

548
00:30:55,520 --> 00:31:00,240
It was so long ago.

549
00:31:00,240 --> 00:31:03,400
So first, FDS stands for Family Directed Services.

550
00:31:03,400 --> 00:31:07,360
And as we know, it is one of two pathways that can be taken in the Children's Developmental

551
00:31:07,360 --> 00:31:09,020
Disability Program.

552
00:31:09,020 --> 00:31:14,200
The other pathway being the traditional pathway.

553
00:31:14,200 --> 00:31:21,480
From my research, I have found that FDS will in fact cover neurofeedback, but if and only

554
00:31:21,480 --> 00:31:28,760
if your child is duly diagnosed with ADHD and is autistic.

555
00:31:28,760 --> 00:31:33,760
I do know that you can contact your case manager and they could potentially send you a list

556
00:31:33,760 --> 00:31:37,680
of individuals who have the required certification to provide neurofeedback.

557
00:31:37,680 --> 00:31:40,320
Okay, so it is a...

558
00:31:40,320 --> 00:31:45,760
It's intensive hours and of course, not just anybody can get the equipment and then provide

559
00:31:45,760 --> 00:31:47,880
neurofeedback, right?

560
00:31:47,880 --> 00:31:53,000
I also know that commonly once you've chosen your provider, they will give you an invoice

561
00:31:53,000 --> 00:31:57,200
20 to 52 sessions, right?

562
00:31:57,200 --> 00:32:01,600
That you can use for your support and spending plan, SSP, right?

563
00:32:01,600 --> 00:32:06,120
In some cases, I have heard that the goods and service form was filled out by the OT,

564
00:32:06,120 --> 00:32:11,840
occupational therapist, or by the pediatrician, whomever is making this referral.

565
00:32:11,840 --> 00:32:19,480
Again, iPoll does not endorse or sponsor or want to advertise for any specific provider

566
00:32:19,480 --> 00:32:20,960
in our state.

567
00:32:20,960 --> 00:32:26,300
However, a quick Google search does show that there are several providers in the Treasure

568
00:32:26,300 --> 00:32:32,760
Valley, in the Magic Valley, in the Idaho Falls area, and in Coeur d'Alene.

569
00:32:32,760 --> 00:32:33,760
Okay.

570
00:32:33,760 --> 00:32:39,400
If you want more information, I would be happy to share it with you on a one-off basis.

571
00:32:39,400 --> 00:32:41,360
Please feel free to reach out.

572
00:32:41,360 --> 00:32:43,840
All right.

573
00:32:43,840 --> 00:32:44,920
How are we feeling?

574
00:32:44,920 --> 00:32:46,960
That's two questions down, we're halfway done.

575
00:32:46,960 --> 00:32:47,960
Okay.

576
00:32:47,960 --> 00:32:50,360
The other ones are going to be shorter, I promise.

577
00:32:50,360 --> 00:32:51,360
Okay.

578
00:32:51,360 --> 00:32:52,880
So, question number three.

579
00:32:52,880 --> 00:32:59,920
For those of you that are using FDS, what we just mentioned, family-directed services,

580
00:32:59,920 --> 00:33:04,200
what are some of the things that you use your budget for?

581
00:33:04,200 --> 00:33:09,160
So for those of you who don't know, when you've been found eligible, you will receive a budget.

582
00:33:09,160 --> 00:33:11,480
It could be $14,900.

583
00:33:11,480 --> 00:33:12,480
It could be...

584
00:33:12,480 --> 00:33:13,860
$8,200 is another one.

585
00:33:13,860 --> 00:33:16,220
And what's the other most common one?

586
00:33:16,220 --> 00:33:18,680
It's like $4,200, I think.

587
00:33:18,680 --> 00:33:19,680
Yeah.

588
00:33:19,680 --> 00:33:22,440
There's $86,400, I think.

589
00:33:22,440 --> 00:33:27,480
$4,200, $86,400, and $14,900, I believe, are the budget levels.

590
00:33:27,480 --> 00:33:28,480
Yeah.

591
00:33:28,480 --> 00:33:31,560
They stick around those areas.

592
00:33:31,560 --> 00:33:38,240
So for starters, items and services that you would like to use require written recommendation

593
00:33:38,240 --> 00:33:41,280
from qualified professionals to be paid for.

594
00:33:41,280 --> 00:33:42,280
Correct.

595
00:33:42,280 --> 00:33:43,560
So let's give some examples.

596
00:33:43,560 --> 00:33:44,560
A pediatrician.

597
00:33:44,560 --> 00:33:46,560
Oh, of a licensed...

598
00:33:46,560 --> 00:33:47,560
Like a qualified...

599
00:33:47,560 --> 00:33:48,560
Yes.

600
00:33:48,560 --> 00:33:49,560
Okay.

601
00:33:49,560 --> 00:33:53,760
Yeah, so a pediatrician, an occupational therapist, a physical therapist.

602
00:33:53,760 --> 00:33:57,200
A speech-language pathologist or potentially a psychologist.

603
00:33:57,200 --> 00:33:58,400
Those are some examples, right?

604
00:33:58,400 --> 00:34:00,160
All of our therapy, yeah.

605
00:34:00,160 --> 00:34:08,800
The form must state that the items that you wish to purchase meet the following requirements.

606
00:34:08,800 --> 00:34:10,960
Excuse me, requirements.

607
00:34:10,960 --> 00:34:13,360
They must be safe and effective.

608
00:34:13,360 --> 00:34:15,720
They must meet standards of care.

609
00:34:15,720 --> 00:34:21,160
They must benefit the health, safety, and wellbeing of the child.

610
00:34:21,160 --> 00:34:28,440
They need to be the least costly option that reasonably meets the needs of that child,

611
00:34:28,440 --> 00:34:31,280
needed for the sole benefit of the child.

612
00:34:31,280 --> 00:34:37,040
And goods and services must also help the child to be in their community, increase community

613
00:34:37,040 --> 00:34:41,920
involvement for the child, increase independence of the child.

614
00:34:41,920 --> 00:34:44,560
All services requested must meet the child's needs.

615
00:34:44,560 --> 00:34:46,340
Again, they say it again.

616
00:34:46,340 --> 00:34:51,800
They must be related to the child's disability listed on the support and spending plan.

617
00:34:51,800 --> 00:34:56,080
The support and spending plan cannot pay for a provider when items that would serve as

618
00:34:56,080 --> 00:34:59,800
a substitute for that provider have been approved.

619
00:34:59,800 --> 00:35:05,680
All durable medical equipment or DME, over $100, must first go through Medicaid DME.

620
00:35:05,680 --> 00:35:15,400
Okay, so now that we've said all of that, let's talk about some things that we can use.

621
00:35:15,400 --> 00:35:18,280
Our sons for.

622
00:35:18,280 --> 00:35:25,960
So I would love to hear from you, a fellow parent in the room, Ms. Melissa, if you feel

623
00:35:25,960 --> 00:35:32,600
comfortable, would you mind sharing some things that you have used your son's budget for?

624
00:35:32,600 --> 00:35:34,200
Yeah.

625
00:35:34,200 --> 00:35:40,120
Right now we use a lot of his budget for community support worker to take him in the community,

626
00:35:40,120 --> 00:35:45,520
to work on goals, to work on getting him in the community, because that's something we're

627
00:35:45,520 --> 00:35:46,520
struggling with.

628
00:35:46,520 --> 00:35:53,880
However, in the past, we have used his budget to purchase goods and equipment that allow

629
00:35:53,880 --> 00:35:57,960
him to remain in his community or stay in his community with all of us.

630
00:35:57,960 --> 00:36:02,840
Probably my most favorite is his special needs bike trailer.

631
00:36:02,840 --> 00:36:08,840
So I mentioned earlier, he's going to be a freshman, which is crazy.

632
00:36:08,840 --> 00:36:14,400
And Reese is nonverbal, Reese has some mobility problems, but Reese loves to be outside and

633
00:36:14,400 --> 00:36:19,360
we love to ride bikes and we love to do that kind of stuff as a family.

634
00:36:19,360 --> 00:36:24,600
So when we realized like a trike wasn't going to be an option or a self propelled vehicle

635
00:36:24,600 --> 00:36:27,480
for Reese was not going to be... You don't want to put him on a go-kart?

636
00:36:27,480 --> 00:36:29,280
Reese would love that.

637
00:36:29,280 --> 00:36:35,440
Well, Reese would be in the wall, but he would have fun doing it.

638
00:36:35,440 --> 00:36:39,440
He needed to be in a big old bike trailer, so that was something that we got.

639
00:36:39,440 --> 00:36:44,760
It allows him to maintain his independence as much as possible within our community,

640
00:36:44,760 --> 00:36:46,500
his independence in the family.

641
00:36:46,500 --> 00:36:48,680
He can hang out in it.

642
00:36:48,680 --> 00:36:52,760
So that's one of my most favorite purchases that we've ever made.

643
00:36:52,760 --> 00:36:59,680
And it was a big purchase and it was a purchase that we kind of really had to budget for.

644
00:36:59,680 --> 00:37:02,040
We did, we budgeted his budget for it.

645
00:37:02,040 --> 00:37:05,720
So exactly, that's exactly what we did.

646
00:37:05,720 --> 00:37:13,440
We have purchased spio suits, which are compression garment, garments, I guess, compression type

647
00:37:13,440 --> 00:37:21,240
clothing for him that really benefited him in a couple different areas in which he needed

648
00:37:21,240 --> 00:37:22,360
that sensory support.

649
00:37:22,360 --> 00:37:25,320
So we've got those.

650
00:37:25,320 --> 00:37:33,360
We purchased one of the big P-pods for him, the big inflatable for him to... Essentially

651
00:37:33,360 --> 00:37:35,280
it was more of his compression.

652
00:37:35,280 --> 00:37:37,920
You can see the... He's a seeker.

653
00:37:37,920 --> 00:37:40,280
See what he likes.

654
00:37:40,280 --> 00:37:46,260
Compression sheets we have purchased, swings, that kind of stuff.

655
00:37:46,260 --> 00:37:50,120
Another piece of equipment that we got that we did run through DME first, and then we

656
00:37:50,120 --> 00:37:56,480
did go through the budget when he was struggling with some motor and trunk control, a special

657
00:37:56,480 --> 00:38:02,640
tomato seeding system that we had that went on a kitchen chair so that he was able to

658
00:38:02,640 --> 00:38:06,120
sit at the kitchen table and eat dinner with us, or at least-

659
00:38:06,120 --> 00:38:08,160
To be in his community.

660
00:38:08,160 --> 00:38:09,160
To be in his community.

661
00:38:09,160 --> 00:38:10,160
Yeah, he wasn't eating dinner.

662
00:38:10,160 --> 00:38:15,520
He was being tube fed, but he was participating in the eating, the socialization of the eating.

663
00:38:15,520 --> 00:38:19,940
So that was really important that we were able to have a seeding option for him that

664
00:38:19,940 --> 00:38:25,160
allowed him to be fed, as well as social in that area.

665
00:38:25,160 --> 00:38:27,880
So those are some of my favorite ones.

666
00:38:27,880 --> 00:38:33,800
We've bought different apps that support... A writing wizard app that really supports some

667
00:38:33,800 --> 00:38:37,240
fine motor.

668
00:38:37,240 --> 00:38:38,240
What else?

669
00:38:38,240 --> 00:38:44,880
Puzzles are always something that we get a great deal of enjoyment out of.

670
00:38:44,880 --> 00:38:46,640
Just for his fine motor needs.

671
00:38:46,640 --> 00:38:50,000
But yeah, I guess that would be some of-

672
00:38:50,000 --> 00:38:55,080
Thank you for sharing, because some of the things that you just listed are not already

673
00:38:55,080 --> 00:38:56,080
listed.

674
00:38:56,080 --> 00:38:57,080
Okay, good.

675
00:38:57,080 --> 00:38:58,920
So I would like to read to you from a list.

676
00:38:58,920 --> 00:39:05,040
Some of these are things that I have found on the Department of Health and Welfare's

677
00:39:05,040 --> 00:39:06,040
website.

678
00:39:06,040 --> 00:39:07,040
Kim?

679
00:39:07,040 --> 00:39:11,600
And some of these things are things that individuals from Facebook reported as using.

680
00:39:11,600 --> 00:39:12,600
Okay.

681
00:39:12,600 --> 00:39:15,200
So by no means is this list exhaustive.

682
00:39:15,200 --> 00:39:17,000
No.

683
00:39:17,000 --> 00:39:21,920
And I just encourage you to reach out to your case manager, reach out to your support worker.

684
00:39:21,920 --> 00:39:23,400
Yes.

685
00:39:23,400 --> 00:39:27,280
Get the goods and service form from your occupational therapist, your physical therapist.

686
00:39:27,280 --> 00:39:28,760
And have them pull it out.

687
00:39:28,760 --> 00:39:29,760
Exactly.

688
00:39:29,760 --> 00:39:30,760
Yes.

689
00:39:30,760 --> 00:39:34,040
So having said all of those caveats, here is the list.

690
00:39:34,040 --> 00:39:35,520
Respite care for sleep.

691
00:39:35,520 --> 00:39:39,640
I hired someone to sleep over on nights when I needed sleep.

692
00:39:39,640 --> 00:39:40,640
Music therapy.

693
00:39:40,640 --> 00:39:42,000
Yeah, that's a colon.

694
00:39:42,000 --> 00:39:47,000
I am choosing not to share the specific company's name, but just please know that there are

695
00:39:47,000 --> 00:39:50,000
a few, because I don't want to make it seem like we're endorsing anyone.

696
00:39:50,000 --> 00:39:52,680
A sensory swing, you mentioned.

697
00:39:52,680 --> 00:39:57,400
Someone reported all of our hours go to the CSW, which is fair.

698
00:39:57,400 --> 00:40:03,400
And I think that's, I say that like that because that's something that you had already echoed.

699
00:40:03,400 --> 00:40:04,960
That's where we are kind of right now.

700
00:40:04,960 --> 00:40:07,400
And I think that happens as kids get older.

701
00:40:07,400 --> 00:40:08,400
Yeah.

702
00:40:08,400 --> 00:40:09,400
Yeah.

703
00:40:09,400 --> 00:40:13,680
I actually mentioned neurofeedback, which I found very interesting.

704
00:40:13,680 --> 00:40:14,680
Right.

705
00:40:14,680 --> 00:40:15,680
Okay.

706
00:40:15,680 --> 00:40:21,120
Social stories, up to $150 a year.

707
00:40:21,120 --> 00:40:22,120
Oh, okay.

708
00:40:22,120 --> 00:40:25,920
Kinetic sand, up to $50 a year.

709
00:40:25,920 --> 00:40:26,920
Essential oils.

710
00:40:26,920 --> 00:40:27,920
Sorry.

711
00:40:27,920 --> 00:40:28,920
Right.

712
00:40:28,920 --> 00:40:30,720
Kinetic sand could be dangerous.

713
00:40:30,720 --> 00:40:31,720
Yes.

714
00:40:31,720 --> 00:40:34,880
Essential oils, up to $250 a year.

715
00:40:34,880 --> 00:40:36,640
Chewies, 100.

716
00:40:36,640 --> 00:40:43,320
Fidgets, $100, and compression items, three shirts and three socks annually.

717
00:40:43,320 --> 00:40:44,320
Okay.

718
00:40:44,320 --> 00:40:49,480
AquaAbility at the YMCA accepts Family Direct.

719
00:40:49,480 --> 00:40:52,720
And again, this is very local to the Treasure Valley.

720
00:40:52,720 --> 00:40:56,280
If that interests you, you can reach out to Andrea Parker.

721
00:40:56,280 --> 00:40:59,200
That's a specific name for you at AquaAbility.

722
00:40:59,200 --> 00:41:00,200
Yeah.

723
00:41:00,200 --> 00:41:02,640
Other things that I found.

724
00:41:02,640 --> 00:41:06,520
A pocket ramp for wheelchair accessibility.

725
00:41:06,520 --> 00:41:10,160
Adaptive trike and wheel replacement for that.

726
00:41:10,160 --> 00:41:13,080
So don't just think about the item in specific.

727
00:41:13,080 --> 00:41:15,000
Also think about the replacement.

728
00:41:15,000 --> 00:41:19,840
And additionally, when you're thinking about sensory swings, please also think about the

729
00:41:19,840 --> 00:41:23,720
equipment that you use to mount it or the...

730
00:41:23,720 --> 00:41:24,720
Exactly.

731
00:41:24,720 --> 00:41:25,720
The stationary.

732
00:41:25,720 --> 00:41:26,720
The hardware.

733
00:41:26,720 --> 00:41:27,720
Thank you.

734
00:41:27,720 --> 00:41:28,720
Good Lord.

735
00:41:28,720 --> 00:41:29,720
Yeah.

736
00:41:29,720 --> 00:41:34,480
Sessions at the Therapy Place, which again is very local to the Treasure Valley.

737
00:41:34,480 --> 00:41:38,520
A weighted jacket, a weighted blanket, a bounce chair.

738
00:41:38,520 --> 00:41:40,800
Oh, I forgot we've done all of those.

739
00:41:40,800 --> 00:41:42,800
A goalie tablet.

740
00:41:42,800 --> 00:41:43,800
The goalie tablet.

741
00:41:43,800 --> 00:41:44,800
The goalie.

742
00:41:44,800 --> 00:41:45,800
Uh-huh.

743
00:41:45,800 --> 00:41:48,680
Again, remember this is based off of your child's individual needs.

744
00:41:48,680 --> 00:41:52,360
So just because one child got it doesn't necessarily mean...

745
00:41:52,360 --> 00:41:54,240
So please keep that in mind.

746
00:41:54,240 --> 00:41:59,960
A crash pad, a trampoline, a body sock, a cozy canoe, which I think is that same thing.

747
00:41:59,960 --> 00:42:00,960
Yeah, the same thing.

748
00:42:00,960 --> 00:42:01,960
Yep.

749
00:42:01,960 --> 00:42:02,960
Cozy canoe.

750
00:42:02,960 --> 00:42:08,240
And another thing that was local to the Treasure Valley that a lot of people recommended, and

751
00:42:08,240 --> 00:42:12,800
I'm not recommending this individual, but I just am sharing because a lot of people

752
00:42:12,800 --> 00:42:14,720
said this name, right?

753
00:42:14,720 --> 00:42:15,720
Swimming with Coug.

754
00:42:15,720 --> 00:42:16,720
Oh.

755
00:42:16,720 --> 00:42:17,720
Cougar is his name.

756
00:42:17,720 --> 00:42:18,720
Okay.

757
00:42:18,720 --> 00:42:23,240
And he does adaptive swimming lessons.

758
00:42:23,240 --> 00:42:24,960
And I felt like I would...

759
00:42:24,960 --> 00:42:28,040
And that's why I'm including it just at the end, but I felt like I would be remiss if

760
00:42:28,040 --> 00:42:33,320
I didn't include it because it literally was repeated over 43 times.

761
00:42:33,320 --> 00:42:34,320
Wow.

762
00:42:34,320 --> 00:42:35,640
I stopped counting at 43.

763
00:42:35,640 --> 00:42:36,640
You're kidding.

764
00:42:36,640 --> 00:42:37,640
So I guess...

765
00:42:37,640 --> 00:42:38,640
Go Coug.

766
00:42:38,640 --> 00:42:39,640
Go Coug.

767
00:42:39,640 --> 00:42:40,640
Okay.

768
00:42:40,640 --> 00:42:43,200
Um, it seems like something that people really love.

769
00:42:43,200 --> 00:42:44,200
So...

770
00:42:44,200 --> 00:42:49,480
You know, one thing I should say, and this has been a while ago, we did use our budget

771
00:42:49,480 --> 00:42:56,960
to do some minor home remodeling to make my son's bathroom more accessible for him.

772
00:42:56,960 --> 00:43:01,440
He was in our bathroom with a glass...

773
00:43:01,440 --> 00:43:02,440
It wasn't good.

774
00:43:02,440 --> 00:43:03,440
It wasn't a good fit.

775
00:43:03,440 --> 00:43:04,440
And we were able to utilize...

776
00:43:04,440 --> 00:43:10,320
I mean, it was a process, I will say that, but it is something that is doable and you

777
00:43:10,320 --> 00:43:14,320
can utilize your budget for minor home modification.

778
00:43:14,320 --> 00:43:20,920
So I mean, we modified our shower from a three by three stall shower to a more open shower

779
00:43:20,920 --> 00:43:24,260
that he was able to get in and we were able to bathe him.

780
00:43:24,260 --> 00:43:28,320
So that is another option too that I think sometimes gets kind of...

781
00:43:28,320 --> 00:43:29,320
Forgotten.

782
00:43:29,320 --> 00:43:30,320
Forgotten.

783
00:43:30,320 --> 00:43:31,320
Yeah.

784
00:43:31,320 --> 00:43:33,240
And another thing that you just reminded me of that I know that you can speak to more

785
00:43:33,240 --> 00:43:37,080
than I can are like motion sensors or water sensors.

786
00:43:37,080 --> 00:43:38,080
Yeah.

787
00:43:38,080 --> 00:43:39,080
So you can...

788
00:43:39,080 --> 00:43:40,080
That is...

789
00:43:40,080 --> 00:43:46,120
Now, I don't know about some of the subscription services that those require.

790
00:43:46,120 --> 00:43:48,960
You would really have to talk to your support broker about those.

791
00:43:48,960 --> 00:43:54,480
It's something that we did just we pay for because it is something that we felt very

792
00:43:54,480 --> 00:43:56,240
adamant about.

793
00:43:56,240 --> 00:44:01,360
But we do have water sensors that were paid through from Family Direct, but the subscription

794
00:44:01,360 --> 00:44:02,360
fee we pay.

795
00:44:02,360 --> 00:44:03,360
Oh, man.

796
00:44:03,360 --> 00:44:05,560
And then the other thing that I saw a lot was AngelSensed.

797
00:44:05,560 --> 00:44:08,240
Is that a subscription or do you know?

798
00:44:08,240 --> 00:44:09,960
I don't know.

799
00:44:09,960 --> 00:44:12,520
I can't believe I didn't research that.

800
00:44:12,520 --> 00:44:15,720
I believe it is a subscription because it is the...

801
00:44:15,720 --> 00:44:16,720
Right?

802
00:44:16,720 --> 00:44:18,220
Yes, it's the watch.

803
00:44:18,220 --> 00:44:19,220
It's the watch.

804
00:44:19,220 --> 00:44:22,480
I am 99% sure that's a subscription.

805
00:44:22,480 --> 00:44:24,860
So someone had mentioned that that was paid for.

806
00:44:24,860 --> 00:44:26,720
So again, please talk to your support broker.

807
00:44:26,720 --> 00:44:28,440
I know that that is...

808
00:44:28,440 --> 00:44:31,320
I don't know how you do it, I guess I would say.

809
00:44:31,320 --> 00:44:33,800
I don't know how you fill out that paperwork for subscriptions.

810
00:44:33,800 --> 00:44:35,360
Your support brokers know how to do that.

811
00:44:35,360 --> 00:44:36,360
Exactly.

812
00:44:36,360 --> 00:44:38,160
So I know it's something that families have gotten covered.

813
00:44:38,160 --> 00:44:44,280
It's just not something that we pursued, but we do have...

814
00:44:44,280 --> 00:44:46,320
You mentioned the alarms on windows too.

815
00:44:46,320 --> 00:44:49,480
We do have those and yeah.

816
00:44:49,480 --> 00:44:54,040
So one more thing that I want to echo before we move on is that this is for community.

817
00:44:54,040 --> 00:44:56,200
So it can't be educational.

818
00:44:56,200 --> 00:44:58,160
So we're not talking tutoring.

819
00:44:58,160 --> 00:44:59,160
Nope.

820
00:44:59,160 --> 00:45:06,880
But there is something called the Empowering Parents Grant, which offers a maximum of $1,000

821
00:45:06,880 --> 00:45:11,900
per child that can support educational needs in the community, including tutoring.

822
00:45:11,900 --> 00:45:14,180
So there may be some other options available to you.

823
00:45:14,180 --> 00:45:15,680
And that's for all students.

824
00:45:15,680 --> 00:45:16,680
Yes.

825
00:45:16,680 --> 00:45:19,360
Make sure that all students are participating in that.

826
00:45:19,360 --> 00:45:20,360
Thank you.

827
00:45:20,360 --> 00:45:21,360
Yeah.

828
00:45:21,360 --> 00:45:22,360
The final question.

829
00:45:22,360 --> 00:45:23,360
Okay.

830
00:45:23,360 --> 00:45:28,000
It says, talk to me.

831
00:45:28,000 --> 00:45:32,000
I don't want to repeat exactly word for word what this person's question is, but essentially

832
00:45:32,000 --> 00:45:37,640
what it boils down to is this individual has an autistic child and they really, really

833
00:45:37,640 --> 00:45:39,600
want to be a police officer.

834
00:45:39,600 --> 00:45:42,680
Oh, okay.

835
00:45:42,680 --> 00:45:50,360
And we know that locations can't discriminate, but is it going to be prohibitive to be, can

836
00:45:50,360 --> 00:45:51,440
they be a police officer?

837
00:45:51,440 --> 00:45:53,000
Can they be an EMT?

838
00:45:53,000 --> 00:45:54,640
Can they be a firefighter?

839
00:45:54,640 --> 00:45:55,640
Right.

840
00:45:55,640 --> 00:45:56,640
Because you do hear that.

841
00:45:56,640 --> 00:46:00,120
I think there's been that blanket statement made.

842
00:46:00,120 --> 00:46:05,640
I know that I've heard it, like autism disqualifies you from the military.

843
00:46:05,640 --> 00:46:09,480
I think you've done some research on this though, and I think it's not necessarily true.

844
00:46:09,480 --> 00:46:14,400
And I guess we should just say every individual is an individual, right?

845
00:46:14,400 --> 00:46:17,240
And their diagnosis or disability is individual.

846
00:46:17,240 --> 00:46:18,240
Exactly.

847
00:46:18,240 --> 00:46:19,240
100%.

848
00:46:19,240 --> 00:46:21,280
So, I think you're going to give us the like...

849
00:46:21,280 --> 00:46:27,120
I'm not going to read you word for word everything that was said, but I want you to know that

850
00:46:27,120 --> 00:46:33,260
I reached out to some very kind people at the Idaho State Police and I gave them the

851
00:46:33,260 --> 00:46:39,040
rundown on this question and they were very kind and they said, we do not disqualify anyone

852
00:46:39,040 --> 00:46:44,120
from employment based on any kind of diagnosis, which obviously I would hope that they would

853
00:46:44,120 --> 00:46:45,120
say, right?

854
00:46:45,120 --> 00:46:46,120
They have to say that.

855
00:46:46,120 --> 00:46:51,160
Each of our job classifications have minimum qualifications that every applicant has to

856
00:46:51,160 --> 00:46:56,760
meet for trooper specifically, which is the one that I asked about.

857
00:46:56,760 --> 00:46:59,360
They must meet the entrance requirements.

858
00:46:59,360 --> 00:47:00,360
Okay.

859
00:47:00,360 --> 00:47:01,360
Okay.

860
00:47:01,360 --> 00:47:02,680
Be a citizen of the United States.

861
00:47:02,680 --> 00:47:03,680
Okay.

862
00:47:03,680 --> 00:47:08,200
Be a graduate of a high school or have a GED equivalent.

863
00:47:08,200 --> 00:47:12,040
Be a minimum of 21.

864
00:47:12,040 --> 00:47:15,640
Have a valid driver's license.

865
00:47:15,640 --> 00:47:18,200
You know, they're going to be fingerprinted, right?

866
00:47:18,200 --> 00:47:19,200
Yeah.

867
00:47:19,200 --> 00:47:26,040
Must successfully complete a polygraph, you know, pass their drug policy requirements,

868
00:47:26,040 --> 00:47:32,840
meet the ISP's medical vision, hearing, psychological and physical fitness requirements.

869
00:47:32,840 --> 00:47:36,160
And then there's an advanced training course.

870
00:47:36,160 --> 00:47:41,080
If an applicant can successfully meet these qualifications, they would be considered for

871
00:47:41,080 --> 00:47:42,080
employment.

872
00:47:42,080 --> 00:47:48,680
Each applicant is required to pass an oral board evaluation, extensive physical and complete

873
00:47:48,680 --> 00:47:54,360
the educational and continuing 22 week advanced training class.

874
00:47:54,360 --> 00:48:01,000
So as I'm reading this, I'm just going to speak for the both of us and say, Reese is

875
00:48:01,000 --> 00:48:03,000
not going to be a police officer.

876
00:48:03,000 --> 00:48:06,000
Reese is not meeting those minimum eligibility requirements.

877
00:48:06,000 --> 00:48:11,440
Jackson and Silas are also not going to be police officers.

878
00:48:11,440 --> 00:48:13,040
I'm okay with that.

879
00:48:13,040 --> 00:48:14,040
Yes.

880
00:48:14,040 --> 00:48:15,040
Yes.

881
00:48:15,040 --> 00:48:19,560
But I also want to say there are some different aspects of this job that could potentially

882
00:48:19,560 --> 00:48:25,880
appeal to someone who is autistic in this specific case, like attention to detail for

883
00:48:25,880 --> 00:48:31,960
solving cases or just having a special interest in being a police officer.

884
00:48:31,960 --> 00:48:37,200
So if you can meet these requirements, then there's nothing your diagnosis doesn't hold

885
00:48:37,200 --> 00:48:38,200
you back.

886
00:48:38,200 --> 00:48:39,200
There's no blanket.

887
00:48:39,200 --> 00:48:42,200
No, you can't.

888
00:48:42,200 --> 00:48:48,360
It's just like you have an astigmatism as long as you can meet the medical and visual.

889
00:48:48,360 --> 00:48:50,360
Let me give you another example of this.

890
00:48:50,360 --> 00:48:54,840
In the before time, my husband really wanted to be a pilot in the Air Force.

891
00:48:54,840 --> 00:48:56,500
That was his dream.

892
00:48:56,500 --> 00:48:58,680
He didn't meet the vision requirements.

893
00:48:58,680 --> 00:49:07,040
So my husband, without a developmental disability, essentially, I hope that makes sense.

894
00:49:07,040 --> 00:49:10,060
Oh, it absolutely makes sense.

895
00:49:10,060 --> 00:49:15,080
When you were reading through that, I was thinking that this is really similar to, I

896
00:49:15,080 --> 00:49:22,040
mean, every student has the right to participate on any sports team.

897
00:49:22,040 --> 00:49:24,280
Every student could try out for the football team.

898
00:49:24,280 --> 00:49:27,080
Will they make the eligibility requirements?

899
00:49:27,080 --> 00:49:28,080
Maybe not.

900
00:49:28,080 --> 00:49:30,280
If they try out, is he going to make it?

901
00:49:30,280 --> 00:49:31,440
Probably not.

902
00:49:31,440 --> 00:49:37,520
But he still has the opportunity to try out just like everyone else and to meet the eligibility

903
00:49:37,520 --> 00:49:40,360
requirements just like everybody else.

904
00:49:40,360 --> 00:49:44,360
You summed up perfectly something that I'm going to explain in a little bit more detail.

905
00:49:44,360 --> 00:49:49,840
No, I really appreciate you saying that because what's protecting you is Title I of the ADA,

906
00:49:49,840 --> 00:49:53,160
which applies to employers who have 15 or more employees.

907
00:49:53,160 --> 00:49:58,940
It prohibits the discrimination in recruitment, hiring, promotions, training, pay.

908
00:49:58,940 --> 00:50:05,520
It also requires that employees provide reasonable accommodations to the known physical or mental

909
00:50:05,520 --> 00:50:10,500
limitations of otherwise qualified, so they have to first be qualified, individuals with

910
00:50:10,500 --> 00:50:15,920
disabilities unless it results in undue hardship.

911
00:50:15,920 --> 00:50:19,200
Reasonable accommodations, you might be asking what are those?

912
00:50:19,200 --> 00:50:20,200
What are those?

913
00:50:20,200 --> 00:50:21,200
Thank you.

914
00:50:21,200 --> 00:50:27,320
Any modification to a job or the work environment that will enable a qualified applicant with

915
00:50:27,320 --> 00:50:35,040
a disability to participate in the application process or to perform essential job functions.

916
00:50:35,040 --> 00:50:41,680
Examples of these include reassigning non-essential job responsibilities to someone else, changing

917
00:50:41,680 --> 00:50:46,760
the layout of a workstation, or modifying equipment.

918
00:50:46,760 --> 00:50:53,760
Although more than half of all accommodations cost nothing, tax incentives are in fact available

919
00:50:53,760 --> 00:50:57,320
to help employers implement workplace accommodations.

920
00:50:57,320 --> 00:51:00,240
The last thing I want to say is just a caveat.

921
00:51:00,240 --> 00:51:06,020
I would not be doing my due diligence if I didn't also add that it is important for youth

922
00:51:06,020 --> 00:51:11,280
and families to understand that while the ADA, Americans with Disabilities Act, protects

923
00:51:11,280 --> 00:51:16,120
employees from being discriminated against on the basis of a disability, it does not

924
00:51:16,120 --> 00:51:21,720
require employers to hire an applicant with a disability if there is another applicant

925
00:51:21,720 --> 00:51:26,920
who is more qualified or just as qualified, nor does the Americans with Disabilities Act

926
00:51:26,920 --> 00:51:32,920
protect employees with disabilities from being fired or laid off as long as the dismissal

927
00:51:32,920 --> 00:51:36,760
is not based on the disability.

928
00:51:36,760 --> 00:51:38,000
Wow.

929
00:51:38,000 --> 00:51:39,080
So.

930
00:51:39,080 --> 00:51:42,280
We found a lot of things.

931
00:51:42,280 --> 00:51:43,920
Did you learn about extended school year?

932
00:51:43,920 --> 00:51:44,920
I did.

933
00:51:44,920 --> 00:51:46,480
Did you learn about neurofeedback?

934
00:51:46,480 --> 00:51:47,480
A lot.

935
00:51:47,480 --> 00:51:51,440
Did you learn about FDS, what you can buy with your budget?

936
00:51:51,440 --> 00:51:52,520
Yep.

937
00:51:52,520 --> 00:51:58,640
Did you get confirmation on whether or not an autistic individual could potentially be

938
00:51:58,640 --> 00:51:59,640
a trooper?

939
00:51:59,640 --> 00:52:00,640
Absolutely.

940
00:52:00,640 --> 00:52:04,280
Then I did my job.

941
00:52:04,280 --> 00:52:05,280
Yeah.

942
00:52:05,280 --> 00:52:13,560
Thank you so much everyone out there for listening in.

943
00:52:13,560 --> 00:52:20,280
And know that if you are in Idaho or planning on moving to Idaho and have questions on systems

944
00:52:20,280 --> 00:52:24,640
or services for children with disabilities, please consider reaching out to us on our

945
00:52:24,640 --> 00:52:27,680
website at ipulidaho.org.

946
00:52:27,680 --> 00:52:32,600
That's I-P-U-L Idaho.org.

947
00:52:32,600 --> 00:52:39,240
Or by calling us at 208-342-5884.

948
00:52:39,240 --> 00:52:43,920
Be sure to tune in next time, until then this has been Unlimited Parenting.

949
00:52:43,920 --> 00:52:44,920
Thanks for listening.

950
00:52:44,920 --> 00:52:45,920
Be sure to tune in next time, until then this has been Unlimited Parenting.

