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Welcome to Unlimited Parenting, where we discuss parenting children with disabilities or special

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health care needs. My name is Allison, and today I am joined by my fellow partners in

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crime, Melissa and Sarah. And today we are here for another installment of Bring Your

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Own topic. Brought it. Brought it. It's been brought. You make me wonder why I even bring

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the thunder. That's a Hamilton reference. Have you ever seen Hamilton? What? They just

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shot me to look. I attempted to watch it and it was too much. I know it's a musical. Don't.

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That was Lin-Manuel Miranda. That was David Diggs. I know. That was amazing. I know what

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we're doing later. What? It's on Disney Plus. I know. That's when I tried to watch it. But

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so is the Ares tour, you guys. I guess everyone has their priorities. You're going to edit

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all of this out? No, I'm not. This is a real podcast. This is the edit list. Okay, well

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maybe this can be part one of my topic. Okay. I-Pole has purchased a, what am I trying to

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say here? An advanced version of editing software. Oh. Right? And I love it. It makes everyone

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sound so fantastic. It's dimming the ambient noise while raising our voices. And it's so

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beautiful except for me. This makes her so mad. And I am the primary talker. And it doesn't

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do, it's the pops and the peaks from my lisp. And it makes it sound so terrible. So if you

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have been listening and you have been hearing that, I am trying to do a workaround. But

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the magic AI dust, the option that I use, it really makes, you could hear it right there

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where I said dust. Like when we edit this, I bet you anything that will pop or peak or

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and it'll be awful, but it never does it for you. And it never does it for you. That's

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because your voice and you are unchangeable. You're unique. I'm what? Unique. One more

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time. Why? Is this going to AI it out? No. I'm curious. Do we need to call an ambulance?

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Okay, this is a podcast and she's making fun of my speech. We'll call an emergency vehicle.

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We should not need it. AI does not want to mess with something that is so fantastic.

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Like an AI can't touch this. Can't touch this. And okay, let's say you want to go first.

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So we can. That wasn't your topic? No. Oh, I said that could be part one of my topic.

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It was more like a gripe that came out right when we. Now I wonder though. Now I wonder

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if it was because that mic was going out. Oh, and I'm the only one who uses that mic.

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So now when I go back and I do the AI dust, baby. So what's your topic? So well, my topic

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was adaptive clothes. Not, well, not really adaptive clothing, but the reason that I,

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it was a tip that I wanted to share because I was recently reminded of it. And I thought,

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oh my gosh, this would be great for the podcast. So I wrote it down. I'm going to bring it

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to the podcast. So a friend of mine was looking for bibs for you have other friends. Oh yeah.

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Well it was another Angelman parent. Let's just say that. So it was in one of our Angelman

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syndrome groups. It was a crisis averted. It's an acquaintance. How about that?

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So in an Angelman group, someone was looking for bibs that don't look like bibs for our

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kids when we're out and about. Right. And so this is a topic that my husband and I had

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been talking about a couple of years ago and someone, it was actually a second cousin of

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mine said, don't you use press and seal? And I went, what are you talking about? And she

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goes, well, you just use press and seal. We take a roll of that everywhere. And so when

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Reese broke his arm, they told us to put press and seal on the cast to keep it from being

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grimy and getting food on it and getting dirty. Cause you just put it like glad press and

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seal and you put it over the, and then you press it down and it's good. And so this friend

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of mine said, we use press and seal for bibs. We just get a big roll. You press it on their

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shirt. It doesn't even look like you're wearing a bib and then you throw it away. And I love

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it. And so we do that for Reese. We have a roll of press and seal in our car at all times.

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I don't know if anyone's ever seen that, but we keep it in that way. He keeps his shirt

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dirty or he keeps his shirt clean. We keep some from getting dirty. I send it every year

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to school. So school uses it and he comes home from school clean. He doesn't. So press

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and seal is my topic. And it is, if glad ever discontinues press and seal, I won't, you're

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going to riot. I'm going to riot cause it keeps our clothes clean. It, it does a lot

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for me. So anyways, press and seal is an adaptive, adaptive clothing was going to be my topic,

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but I took it down this other route that I wanted because I really struggle with clothing

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that looks age appropriate. And you know, he's 15, but he does drool and he does get

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food on his clothes. And so we struggle with, with the two. So that's my topic. And that's

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what, yeah.

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Do you get it at the restaurant supply store? Yeah, we have or Costco in bulk. Yeah, that's

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fabulous. Yes. Also we would be going through clothing at a faster rate. We would. So I

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think that there are some, I know it's not the best thing for an environment. I reuse

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it sometimes at home. I will say that I try. I try to be very aware of my impact on the

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environment. And so we try to do other things that would maybe lessen that. But yeah, I

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realize that this is not environmentally friendly, but, but it's less clothes. Like it works

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said, less clothes to buy. It's less laundry. It's less water that I'm using. How maybe

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there's a, maybe there's a tough, I don't know. Absolutely. So that's what I would say

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that this works for our family. It might not work for everyone, but when you're talking

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about adaptive clothing, it reminds me of how I started my oldest son choose on everything.

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And I started buying him those swim shirts. Yeah. And now that's all he wears all of the

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time are swim shirts. But does he chew on those? Yes, but it's less noticeable and it

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takes so much longer for those to degrade because of the type of fabric that they are.

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So instead of falling apart and getting all stringy and getting the holes in them. Yeah.

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After a while they start to look chewed, but they don't, they're not like disintegrating.

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And that is another, any other adaptive clothing? Not anything that I've been resourceful other

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than, you know, just we have Truman has a feeding tube and we use cloth man to be, she

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saved my life a couple of weeks ago or not my increases. Yeah. But I mean, we, I sometimes

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feel bad because you know, you talk about clothing and being age appropriate and Truman

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is uses a wheelchair and he doesn't use his feet. And so we can keep shoes and he, they

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don't grow. His feet don't grow very well and he's flat feet. And when you walk on your

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feet, your body, like your feet form, his are different. They are completely flat on

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the bottom. And so we, we don't put shoes on him all the time, like at the grocery store,

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things like that. And I always wonder if, cause I see people looking at his feet and

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I, I just wonder if I should put shoes on him more often. It is about 700 degrees out

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of. Yeah, I know right now. Right now it is. But, and, and he's got these cute little Birkenstocks

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with the strap on the back that keep him on his feet. And so he's, he's still pretty trendy.

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Yeah. But there are times when he, we've gone to school even without the shoes. Well, and

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I think it's, what is his comfort level too? Yeah. You know, is it, cause when it's 195

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degrees outside, of course you don't want high tops and socks. So. Right. Yeah. Right.

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What's that? So. Yeah, I know. We struggle too with that age appropriateness and still

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functional. You know what I wish, speaking of clothing, you know, however, all the cool

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kids shirts have like the little tiny logo on the, on the, among the heart and then the

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big cool one on the back. I know. Kids in wheelchairs. Right. They don't get cool stuff

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on their back. You can't see the cool stuff on the back. You just have to see the tiny

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little piece. So some, I, I struggle finding shirts. Finding shirts that actually look

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cool on the front that aren't just plain cause all the cool stuff's on the back. Yeah. Yeah.

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Way to check my privilege. Cause I never would have thought, no, I never would have thought

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about that. Not once have I ever thought that all of the really cool stuff on shirts is

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on the back. It's not on the front. Yeah. Right. Unless you put cool graphics on the

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back. I never. Yeah. To maintain age appropriateness, unless you buy a graphic for a 19 year old

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boy with a bunch of cartoons on the front. And that's, but yeah. That is a really good

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point. How come when you walk into Target or old Navy or wherever you shop, the kids

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section, all of the shirts, all the graphics are on the front, but I never, never have

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I thought about that. Yeah. Weird. I don't know how to segue from that. Cause my mind

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is just blown. I've never. Billy shoes? No, I've never. Oh, there's a post. There's a

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post on Facebook. I saw that. There's all these Billy shoes. Yeah. Where, where were

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they? It was at the 208. Oh gosh. 208 outlet or something like that. A bunch of pink. A

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pink certain size Billy shoes. So this, these big box stores, people are like buying up

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a leavened over product. Gotcha. And I'm sure they're brokers. I don't know. I'm not a,

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I don't, I'm not a retail expert, but yeah, I just sometimes it's like the Amazon return.

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These big warehouses are popping up and like, there's like 10 or 12 pairs of one size.

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Yeah. Just saw that on Facebook. Pink Billy shoes for five bucks. Yeah. And those things

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are expensive. Yeah. They're worth it. I will say that. Truman's, one of Truman's helpers

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at school went to the one in Nampa and picked up some shoes for him. That's the great ones.

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Cool. Same thing. Like that's so nice. I know people out there. That's what I was just about

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to say. Like, look at the staff who are just like thinking of our kids when they're not

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even the staff that are coming on their days off to help support. I can't. They're right.

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I know it's thank you. There's good people out there. There really are in our kids lives.

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I know it's a good takeaway. That's a good topic for today. The good people on our kids

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life. Yeah. Yeah. Tell about a good person in your kid's life, Sarah. You go first. Melissa,

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you go first. No, I think he has such great people that work with him that, you know,

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we were able to hire one for the summer. And just what I just said about his other helper

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at school, like these kids make an impact on the people that they work with. Absolutely.

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And they become your friends and they care about our families. And they don't get enough

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credit. Right. I don't think they get enough credit. And it's hard work. And it's really

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the ones who are boots on the ground, really working with our kids day in and day out,

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not the ones doing the paperwork or monitoring the plans. Because please don't get me wrong.

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That's important too. So important. But these guys are making impacts on our lives and families

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so we can go to work or send our kids off to school and not be so stressed. I mean,

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they're people who care. I recently, and I told these guys about it, I had a really cool

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experience where my oldest son plays football. We brought a group of a whole bunch of the

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O-linemen together. And one of those individuals happened to be an individual that had worked

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with Reese in his special education classroom and didn't know that his brother was who his

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brother was. And he saw Reese at this event and he was so excited to see Reese, not his

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big brother, the football player. He was excited to be connected with Reese again, because

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he remembered working in his classroom. And so if your kid's working in a special ed classroom

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because they want to, I don't know, there's just good kids out there too. That's the good,

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that's the thing. There's good kids out there. There's good people out there that are in

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our kids' lives and for the right reasons. And I appreciate every single one of them.

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So that's my person. Thank you to my kids and my daughter too.

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Well, of course. If you're listening, you know who you are. I would like to share a

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story about a man who we'll just call Shmenes Kim at the camp where my middle child is at.

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And this man is just going above and beyond for my child every day. He was recently sick

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and he had to step away for a couple of days and there was an incident and Shmenes is very

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focused on making sure that my son is very included and that he has a special space where

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he can go when he needs to come down. But it's actively trying to pull him in and have

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him be with his typical peers again. But my son had barricaded himself in a room and they

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couldn't get him out and Shmenes had to come in on his day off. And he came in to still

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try and help Jack, which is so sweet. Shmenes. No, they don't. They literally don't have

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to do it and they do it because there are good people who truly are in it for the right

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reasons. Yeah. Because maybe Shmenes saw a little bit of himself in Jack. I don't know,

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but there's just... Thank you. Thank you, Shmenes. Thank you, Shmenes. Was that the

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end of your topic, Molly? I'm done. Sorry. I'm done. Don't act so scared. Sarah, have

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you thought of a topic or would you like... I have and hopefully we don't need to spend

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too much time on it. So I have a ring, camera, and I get neighborhood alerts all the time.

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And then I found this other Facebook group. I was like, what's going on in my neighborhood

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where I live? And I'm like, I'm in the search Facebook and see if our neighborhood has a

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group. Show enough. It does. Oh, that's gotta be... And so I... Joined it? I joined it.

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It's kind of one of those like train wreck things where you are so like, people actually

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say this, they write these things down, a document, what comes out of their mouth on

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the internet. On the internet. And then I'm like, can't unsubscribe because the train

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is always crashing. You have to watch. And don't get me wrong, there's some amazing things

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about it when dogs get lost or run away or turtles are found on the sidewalk. Really?

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Turtles? How often are people finding turtles? These are the questions that we need answers

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to. There was a turtle on 4th of July. So I mean, people find things. It's wild. And

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so like last night, we've got a lot of fire smoke out here in the valley. And I went on

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their Facebook to see if anyone was talking about it. And of course they are. So there

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are public service announcements all over on these groups. But then some of the horrible

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things that people think they can say about literally our neighbors in our neighborhood.

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I'm just torn. Yeah, I'm torn about how to stay informed about what's happening in my

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neighborhood. And then and you have to deal with like, I live by these people. Yeah, are

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not kind. I love how you're literally describing a microcosm of our nation at large right now.

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How do I stay informed and follow the news and not get completely drained and burn out?

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Well, and that's what I was gonna say. Because on top of that, you had to you have to decipher

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what is I mean, what's accurate information and what's not and you. Yeah, that's a little

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hot. I get you. I get it. And you're right. That's exactly B. Your neighborhood is America

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right now. And that's probably not just my. No. I just was ready to make another Hamilton

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quote. Okay. What's the state of our nation? Are we a nation of states? What's the state

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of our nation? I mean, you're gonna watch it later. We're gonna. That was pretty much

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it. I'm just torn on. Yeah. I'm probably gonna stick around on the Facebook group, but I'm

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just I wish people weren't so mean. Yeah, there's really something to be said about

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the phenomenon. And I know I like to like, get really specific and quote random things

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at people. But there's something to be said about that phenomenon of I can't look away.

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Like this is so bad. I cannot look away from it. And also not to not be mean, but like

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get a hobby. That is their hobby, though. For real. That's that's how they spent. That's

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how they're actively choosing to spend their waking hours. And I'm not out here judging

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that. But don't you want to do something slightly more fulfilling? Or potentially maybe it's

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like a neighborhood watch situation. They're like, Hey, I wanted to make you aware that

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this remember those signs all over my aunt's neighborhood. Okay, well, if you're done,

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I will saunter over to my topic, which is I really wanted to make you guys cry and be

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like a relive a memory that you wish you could do for the first time again, right? Oh, yeah.

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But then I decided that's a little rough. So now I'm going to say what is some movie?

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What's a movie that you wish that you could watch for the first time again, like go into

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it completely blank slate movie or book? You while you guys are pondering, I'll, I'll do

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mine okay. When Stephen King was writing as Richard Bachman, he wrote because it was really

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like frowned upon for an author to have more than one book in like a year. I don't I don't

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really understand the reasoning behind it personally, but it was frowned upon. So Stephen King would

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write a Stephen King and he would simultaneously write as Richard Bachman until someone let

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the cat out of the bag that they were one in the same. And then he stopped writing as

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Richard Bachman, which makes you wonder like how many other Bachman books would we have

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gotten if this person hadn't abouted him. But he wrote a lot of books as Richard five,

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I think as Richard Bachman, you know, like out road rage desperation or no desperation

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of Stephen King regulators was Richard Bachman. You got the long. What? No regulator. No,

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for real. The book is called the long walk. And it's probably one of the shortest Richard

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Bachman, Stephen King books in the world. It's like less than 300 pages. This book picked

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me up, spun me around and then threw me back on the ground again. It was the single biggest

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trip I have ever taken. And I would give anything to go into like a dissociative fugue or lose

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some time and be able to read that book again for the very first time with fresh eyes. When

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did you read it for the first time? Oh, that's such a good question. Obviously very late.

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That book came out in what was it? Late 70s, early 80s. So I read it for the first time

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in 2021. Oh, just recently. Okay. Just recently. Yeah. But I read it like four times a year.

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Gosh. And I just pretend I try to even forget like the characters names so I can just I

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try any tactic I can. I mean, like, I mean, it's just very obviously it's very niche.

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It's very, you know, like what type of book do you like? Right. Like it's not an at guitar

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book or any of those things, but it's set in a very dystopian future. It's kind of like

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a Hunger Games future. Go ahead. What's your question? So every time you read it, do you

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get something different from it every time? Yes and no. Okay. Yes. I'll say yes. Well,

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because sometimes, you know, when you watch a movie for like the third time or something,

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you're like, Oh, I didn't even notice that before. Or it's similar to that. I think that

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this is just one of those books where it affected me so much. The first time that I read it

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that everything like just seeped into my bones. And I can't forget things. So anyway, it's

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set in a super dystopian future where these kids volunteer to make the long walk. Right.

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And you know, the premise is, is that you walk until there's only one person left. Oh,

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yeah, it's and it's all like very young boys. Wow. Like 15 to 20 or something like that.

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And you know, people will line up and cheer for them and they get water only once a day,

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but you only get the water if you can like actively advocate for it. And they're walking

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through rain and what happens when they forge alliances and the alliances fall apart? What

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happens when there's only a handful of people left? And at the end, you know, the character,

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this is very, what makes it very unique is that the character that you hope will win,

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but then at the end, when he wins, he's so mentally, oh, that it demolished that he just

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keeps running. Like he can't even stop walking. He just, so it's just one of those, like I

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said, it's a book that picks you up and it throws you back on the ground. And I'm like,

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gosh, I just wish I could just view this with a new set of eyes. So you guys have a movie

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or a book that ever did that to you? Yeah. The wizard of Oz. I'm so sorry. I don't mean

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to just immediately, but it's literally about of a hurricane that picks you up and throws

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you back down. So I could not just miss that opportunity to just, is there a book that's

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ever picked you up and thrown you back down? Yes. The wizard of Oz. I thought you were

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joking. No, it would come on every year when I was a kid. It still does. It comes on around

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Halloween. Is it Halloween? Okay. That's like the kickoff to the season, which it really

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should be the kick, it's spring cause that's when I really all the hurricane. Yeah. Tornado.

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Tornado, not a hurricane. Yeah. Oh my God. Yeah. Hurricanes are over water. Yeah. Thank

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you for correcting me. It's okay. But it has like, I fell in love with the story. The,

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and maybe it was very poetic in that, but I loved it. I love it. And I watch it still.

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I watched and read different renditions of the story. I don't know why. I just love,

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Wizard of Oz. And how'd you feel about the one with Michael Jackson? What? There was

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one? Be so for real right now. I'm being so for real. There was one with Michael Jackson.

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Wizard of Oz? And there, it's like Michael Jackson. Hold on. Let me do some research.

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Let me do some research. But yeah. So I know, right? There's so many people have remade

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it and redone it. Oh, that is, I love Wicked. Oh, of course. Yeah. Cause I like to know,

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okay, well how did she become such an evil? There's a new one. Yeah, they are. They're

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remaking it. It's coming out at Christmas time. Oh, wow. It's just going to be a newer

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version of the original. Okay. Just don't know why, but it made an impact on me and

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I can still watch it today and find things and really pick things out. And yeah, it's

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called The Wiz. The Wiz. And it's from 1978. Dorothy was played by Diana Ross. Michael

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Jackson is the Scarecrow. Nipsey Russell is the Tin Man. Richard Pryor is the Wizard of

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Oz. How we got Mabel King, Lena Horne, Johnny Brown. Just ugly show. Wow. Yep. Yep. So. Okay.

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Well, there's something to do this weekend. I had no idea. And those aren't red shoes

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either. They made it their own. Which of course, everyone who does a remake should always make

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it their own, right? I just watched The Tin Man on Amazon Prime cause I'm like flipping

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through it. I'm like, what is this? Definitely different. It's got an elf. Oh, Zoe. Thank

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you. Yeah. Okay. Deschanel or something. Yeah. Yeah. Anyway, that's mine. Ooh, Elf's a good

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one too. I would say Forrest Gump. I love Forrest. I know you're going to be like, I

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wish I was a bird. Dear Lord, make me a bird so I can fly far, far away from you. Pray

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with me, Forrest. So I like history, but I love Forrest Gump and how it's just like,

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how did Forrest just intertwine himself into all these? He's a president. Yeah. He's saved

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Watergate. No, I'm just kidding. He could run. He could run, right? Forrest run, Forrest run.

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For a long time. I don't know. There's just, it's a simple move. It's just, but it's, it's

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not simple. It's, I'm ready to stop now. I just love everything. I love Tom Hanks. I

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love Sally Field. I love just, who plays Jenny? Is that the same actress who played Princess

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Bride? Oh, I don't know. I think, I think it is. Oh, let me, let me look. Do some research.

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I get where you're coming from. It's simple. He's not simple. I get what she means. Yeah,

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but he was so, he was just him. Is it her? It's Robin Wright. Really? From House of Cards,

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Princess Bride. It is her. Jenny. Now see, I know, I know we're talking about this movie

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here, but I mean, obviously Forrest Gump has a disability. Yeah. But I was just about to

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say the way that Jenny treats him, any, anybody's man, right? Like he's just a human. Yeah.

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Treat him with respect. And maybe, I see the, maybe that's why I love this movie. Maybe.

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I don't know. Yeah. Cause I felt the same way when I watched it. I'm just like, there,

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and everyone that he interacts with, people treat him like a person. A person. And I think

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it's, we, in our, in our life's lives and what we deal with, our families, our kids

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are not treated like humans a lot. Yeah. Yeah. Or just, we, I, yeah, make excuses or we do

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things that we don't mean to, but I think that, that's what stuck out to me in that

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movie too, was that he was just, he was just Forrest. He was, yep. And I just, to watch

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that movie again, not knowing everything I know about that movie and how it relates to

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now, maybe, yeah, like you said, how it relates to my life now, but I loved everything about

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that movie. I bought, I never had a movie soundtrack. I went out and bought that movie

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soundtrack. Like just everything about that movie spoke to me. It was weird. I don't know.

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I'm weird. It still does. I listen to that soundtrack all the time. It's a good one.

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It's a good one. I think that was the first soundtrack I ever bought. Cause it came in,

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there were so many songs and it came in a two, like, had two discs. It was CDs, Allison,

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back in the day. But those are the songs that I'm 35. I know what you were like. I remember

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you were like, I think I was disassociated. I don't take it personally. I get that look

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from you a lot. Yeah. Anyways, that's what I would pick. I would pick Forrest Gump. Do

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you get something different from it every time besides a really cool quote? Like Lieutenant

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Day in you ain't got no place. I guess, well, so I just recently rewashed it with our youngest

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and I, I liked watching him watch it. And then he would ask about this like, well, what

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is, what is that? Why is he playing ping pong? And so we would be like, well, this he's playing

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ping pong with the Olympics and then there's this. And then, you know, so we were, it kind

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of prompted a bunch of other conversations. So probably where we had to watch it in history

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class. Yeah. Yeah. Did you watch it? Yeah, I did. I did watch it. Yeah. So I don't know.

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I think I get different farther in the educational system by the time I got to government. So

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we didn't watch Forrest Gump. No. 10 years later. 10 years later. Yeah. It was in American

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government. Like, yeah, we had to learn about the history. But, and Forrest Gump is surprisingly

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a decent history movie, right? Like it's, yeah, Vietnam War. It's okay. So I'm about

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to ask a really asinine question, but when Forrest is sitting on that bench and he's,

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you know, giving the platitude about the chocolate, is he getting ready to get on the bus to go

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and see Jenny? Is that what it is? Yeah. And at the very like towards the very end, the

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lady is like, you don't need to even get on that bus. You can, that's two blocks from

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here. And so then he, so the whole time he had been sitting there telling the story,

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waiting for this bus to get to where he needed to go. And then it was just a, and so he took

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off at the end of the movie. He just walks over. Mm hmm. Because that movie came out

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when I was six and I saw it when I was six. And I think that's the last time I've seen

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it was that one time. And that's how much I know I had to have seen it once more as

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an adult, but I haven't seen it in a really long time. I just remember those very few

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select things. And I remember like adults around me crying, but then like not understanding

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why I were crying. I only could watch, I watched it in history and then I think we watched it

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one other time and like it evoked such an emotional like feeling in me that I have not

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watched it since. Yeah. Like I have a hard time. It, this, maybe it's because we're coming

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off the heels of the 4th of July, but it feels like in a very American movie to me. Mm hmm.

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It makes me proud to be an American when I watched that movie because how other Americans

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treated him when he was, you know, and all of the events that, and I know this is a made

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up movie. Forest character is not a real character, but I like that. I like to think that America

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maybe would be like that. Maybe one day. Maybe one day. Um, I made that look on my face because

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I just realized that my movie like that, that I could only watch once and never really watch

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again, but was so good, was also a Tom Hanks movie. And it wasn't cast away, which is also

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really hard to like when he hands that person her pack. That movie is hard to watch. Um,

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it was, um, Philadelphia. Oh, okay. Wow. Yeah. That is a hard one. I couldn't, that's a hard

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one. I'm just crying and crying and then I keep crying and then Tom Hanks is in a hospital

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bed and I'm crying. I just love Tom Hanks. I can't watch the notebook. I'm sorry. I watched

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it one time and I've never seen it. That made, I cried so hard. It's not the love story one,

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because they die in, oh, I know. And maybe it was around the time where my grandparents

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were getting older and like, there was just a lot of things. And so anyway, that's one

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I cannot, but I also cannot watch Holocaust movies. Yeah. Oh no. I watched Schindler's

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List on our honeymoon in Mexico because it was on the TV. I watched some of all fears.

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What? This is so bizarre. Why are we the same person? Cause we watched some of all fears

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on our honeymoon. Jeremy's like, we have a rain shower. I'm like, so weird.

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Thank you so much everyone out there for listening in and know that if you are in Idaho or planning

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on moving to Idaho and have any questions on systems or services for children with disabilities,

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please consider reaching out to us on our website at ipulidaho.org. That's I-P-U-L-I-D-A-H-O.org

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or by calling us at 208-342-5884. Be sure to tune in next time. Until then, this has

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been Unlimited Parenting. Thanks for listening.