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Welcome to Unlimited Parenting where we discuss having children with disabilities or special

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health care needs.

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I'm Allison and with me today is a very special guest, Jake.

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Jake is the father to several children, one of which has a disability and is a member

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of our board of directors.

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So thank you for carving out some time to share your story with us.

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No problem, Allison.

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And this is Jake's first podcast experience.

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So thanks for sharing that with us too.

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Yeah, hopefully I won't cough or spit on the mic too much.

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If you do, they're easily washable.

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So no worries there at all.

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So you were just here actually for our board meeting and you reminded me that you had yet

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to be on the podcast.

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So I appreciate you remembering that.

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Yeah, I'm really glad to be here to help out and do anything I can to help out the Ipullians

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and their good work.

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Especially being a dad, we never have any dads who want to share their story.

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So having said that, can you share your story?

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Sure.

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So when my son was two or three years old, we noticed that he started exhibiting some

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stimming motion, some flapping.

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And we also had noticed that his overall muscle tone and his physical capability was a little

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bit diminished.

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He was a later child and so we had kind of seen our other kids and how they had developed.

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And so that led my wife more than anybody else to question and to say, you know, what

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could be happening here?

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I think I was a little bit more apt to just say, well, he's still developing, you know,

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other kids do this.

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Let's just see where it goes.

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But she was more adamant and thankfully because of that, we started to kind of look into what

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could possibly be some diagnoses for him.

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And so in our church community, we had another family who had had a very, very similar situation.

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And that was really helpful for us because it allowed for us to have a roadmap for where

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to go and what to do.

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And we even ended up having the same occupational therapist and going to the same diagnosis.

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We got a diagnosis from the same provider.

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And it was really helpful because at that stage, again, we didn't have a lot of experience

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with this.

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I was questioning as to whether or not it was necessary or not.

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And with talking with them, it really helped us to kind of feel out what is more normal,

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what would be more something that would be helpful in this area.

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And it also helped that the father of that child was our child's pediatrician.

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So we had a lot of things break really, really lucky in our way.

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I've talked to a lot of parents after this and we've tried to help others to understand

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this as well.

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And we understand how fortunate we were with some of the things that broke our way.

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But that allowed for us to pretty much have a recommendation almost immediately.

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We went and when we had his diagnosis, it was a really interesting procedure because

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he had the whole battery day's worth of tests.

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And it's literally a full day.

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Yeah, it's a full day.

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And so we'd gone through all these tests and we were waiting in the waiting room.

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They said, we're going to go back and talk about it and then we will come back and let

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you know what's going on.

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And we were waiting and waiting and waiting.

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And finally, one of the providers came out and said, we haven't forgot about you.

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This is just a really unique situation because typically there's three areas in which they

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test for autism.

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There's cognitive, there's physical, and there's social as I understand it.

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And they said, we don't, we usually see two of, if you have two of the three, then you're

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diagnosed with being on the autism spectrum.

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And they said that my son, he felt like he had scored lower.

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He had scored fine in the cognitive and in the social he was borderline and in the physical

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he was...

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That was...

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He needed support.

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Yeah, he needed support.

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And so the combination was something that they hadn't really seen a lot.

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And so they were kind of discussing that and talking about that in an interesting way.

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But essentially he ended up getting his diagnosis and from there we started him on occupational

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therapy and later he had some counseling, some other things.

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He's had a lot of different supports and things that he's had over the years and it's been

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really, really great for him.

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We've noticed now years and years later that he's kind of our kid that we joke that he's

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our most self-sufficient and most self-determined.

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He's a kid who if you can offer him an extra piece of cake and if he's full, he'll just

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be like, no, I'm good.

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Or like, no, do you want...

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You can have this.

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He's like, no, I'm good.

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He's the kid and when he's good, he's good.

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You have a child who says no to cake?

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I have a child who says no to cake, to other things.

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I mean, he's just...

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He knows his potty.

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He knows his place.

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He knows what he wants and he's totally cool with that.

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And it's really great because it allows him to express himself and to be himself in a

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way that sometimes our other kids struggle with because he's not worried about what other

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kids are thinking or doing or he doesn't need to go with the flow with everybody else.

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I mean, that being said, he is really a social kid.

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He really has a lot of friends.

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I mean, he does really well with that, but I've always been really envious of that superpower

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that he has of just knowing exactly...

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Of going through the world, being your authentic self without any wherewithal of how that affects

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other people or even like, oh, did I say that?

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Did that offend that person?

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He's just living his best life.

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This is fine.

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And we really credit an early intervention into a lot of that because we've seen how

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he's struggled with some of the things he's gone through in his life.

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And we've always just said, could you imagine if we didn't have the supports and the assistance

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that we've had, where would he be or how would he be doing right now?

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And with our other kids, they've had other neurodivergences which haven't led to a full

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diagnosis, but they've also had therapies and other things.

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And so we've seen kind of been able to compare and contrast how they've all worked together.

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And it's been really, really an interesting perspective to kind of compare them all.

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But yeah, with my son, he's definitely benefited from those interventions.

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Can I ask what kind of interventions he was receiving and were they in the community or

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at school?

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He received a little bit of both.

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He started with a developmental preschool.

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And so he started there.

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He also had started with just occupational therapy.

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I want to say he might have done some speech therapy.

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And it's kind of just been as time has gone on, those have kind of changed.

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Or fallen off.

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Fallen off.

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And he had some struggles with some pretty severe anxiety a couple years ago.

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And so he was able to go to counseling and really worked through a lot of that.

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And that was really great too.

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And he's no longer needing that as well.

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And I think that's about, he did have, he was on a 504 plan at school and he had an

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IEP.

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And so he's had the school interventions.

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That's something that I think is really interesting is that when he was at school and having those

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interventions, we were kind of always geared up to kind of go to war for, we wanted to

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advocate for him and worried about what if they do this or what if they do this.

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We've had really good experiences with his agenational providers to be able to really

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look for his needs.

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And actually that has allowed us to, at times where we thought that a certain intervention

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or a certain type of accommodation was necessary, there were times where we actually, after

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talking with the providers and talking in those meetings, we realized that we could

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probably ease out a little bit on that.

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And that actually ended up being really well.

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It's been an interesting thing for us that in my personal perspective on this, it's hard

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to know sometimes when to really fight and advocate.

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And other times when we've kind of let things, we decided to, okay, let's see how this plays

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out.

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But a lot of times it's actually played out fine.

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I think that's been something less than the I have one just kind of to pick your battles.

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And there's one time where we realized that we had asked for him to have a certain teacher

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and that teacher, that didn't happen.

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And so he was going to be in a class with a brand new teacher she had never taught before.

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None of his friends were in that class.

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And we learned this pretty much the-

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The day before.

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Yeah, the day before school.

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And that was something, and we'd had these experiences before.

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So we really, my wife and I talked about this and said, okay, so is this something we're

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going to fight on or is this something we're going to see where it plays out?

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We really felt strongly that we really needed him to have more familiarity before in this

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context.

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And so we went to the principal, we talked about it, we were able to get it worked out

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and it worked out just fine.

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Fast forward a couple more years, he was going to get a teacher and we weren't sure how that

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was going to play out because one of our other children had had that same teacher and we

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knew kind of the dynamics.

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But it actually, we thought, you know what, let's let this one ride and see how it goes.

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And he thrived in that class, he did really well.

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So-

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And it almost makes you wonder if it's because early on you gave him the extra support that

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he needed and then now he was at a point where he was able to self advocate.

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And because is it safe to say that he probably struggles with transitions and things that

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are unknown?

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Yes.

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Yes.

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That happened to my son, not to make this about me, but earlier this year, almost the

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exact same scenario happened.

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And I said, hey, I trust you guys.

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You've done really great so far with all three of my kids and I appreciate it.

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We'll see how this goes.

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And then a weekend they were like, we're thinking about moving him to another teacher.

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Is that okay?

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And I was like, yeah, absolutely.

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Let's move him.

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I have a couple of questions if that's okay.

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And then I'll let you go on.

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Where is your son in birth order?

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He's not the oldest.

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Is he the youngest?

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No, he's the second.

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Second.

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Okay.

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Do you think that that had a big effect?

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Let me ask it another way.

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When I was younger, I did not have any experience with other siblings or children.

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So when I had my first child, I didn't really notice right away that something was really

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different.

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Did that have an effect if you had more children before him?

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It was easier to compare and notice where he might have some differences?

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Yes.

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I think that was a really good way for us to compare and contrast.

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My wife also has a degree in elementary education.

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Oh, wow.

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Okay.

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So she had had some experience with teaching and had seen other kids.

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She had, I think that's why she picked up on it a little quicker.

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She was able to say, this seems a little different than these other kids that I've worked with

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or that I've understood and known about.

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And again, having that family in our church community where we knew that he had that neurodivergence

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and that diagnosis, that we were able to talk to his parents and say, we're seeing this

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in our son.

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Can you tell us what you saw in your son?

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And that was something that we were able to.

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So again, it was very fortunate to have that.

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But I do think it was really helpful for us to have a first kid and to say, okay, there's

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some things here that are different than with our first kid.

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Okay.

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That makes sense.

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I'm also curious.

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You are, again, the first person, not only our first dad, but also a first person to

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bring up an experience with the church.

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So if it's okay to ask it against Tommy, if it's not, I'm curious, was that a really warm

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and welcoming or did you get the impression that people were maybe less likely to talk

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about what makes their kids different?

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Or was it just because that that individual was also the pediatrician and also kind of

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maybe more connected to your family?

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I think that this family was a great family in a lot of different respects.

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They're really outgoing.

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They're really advocated for their son a lot.

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And so it felt like it was a very natural role for them to talk to us and to advocate,

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not just to advocate, but to educate us and to belong.

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So as a general rule, I didn't feel like in the church community, it's kind of like everywhere

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else.

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You have people who get and understand other people who say things that are off or make

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comments that are hurtful or it happens in our own families to you, right?

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Yeah, definitely.

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That's what I mean.

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It's not this is across the board.

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Sure.

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Okay.

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But I felt like this family was taking an educational role for us because they could

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see how we were going through the same thing.

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And so that was really where that and lots of support.

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Yeah.

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And I think that, you know, and that's something that I've tried to emulate and to do because

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when I have, because we've had now people come to us and say, Hey, we know that your

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son has this.

241
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Can you, we're concerned or we have this question about our kids.

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Like, what can we do?

243
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You're the mentor now.

244
00:14:39,800 --> 00:14:42,200
Yeah, it's really beneficial.

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And first thing I tell them is go to iPoll, go talk to them.

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And then the next thing I tell them is, you know, whatever experience we can give.

247
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We appreciate that.

248
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But I think that that's, you know, so much of this is understanding that you're not alone

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in it because you feel alone in it and you feel like your kid is, I mean, there's a whole

250
00:15:02,400 --> 00:15:03,840
bunch of questions that come up.

251
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Like your kid is different than all the other kids, your kid, what does this mean for them

252
00:15:09,800 --> 00:15:13,440
in school and in their lives and all these other things.

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And so it's, it's just such a great opportunity to talk to somebody else, to have them say,

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Hey, you're not the only one.

255
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You know, your child is special, but they're not special.

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But I feel like, you know, there's a lot of opportunities to be able to say, you're going

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to get through this.

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And not only that, but, but like I was saying at the beginning, it really, I really appreciate

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00:15:40,040 --> 00:15:44,400
the fact that I'm able to tell other parents who are struggling with this to say like,

260
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look, our kid, my son is, is thriving in what he's doing.

261
00:15:49,420 --> 00:15:51,240
And it's, and it's great.

262
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I'm so excited for him.

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And yeah, there are still struggles and there have been struggles in a little way, but he's,

264
00:15:57,920 --> 00:16:02,920
he's doing so much that I think it helps other parents to see that and to say, Oh yeah, this

265
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is not just going to be doom and gloom for, you know, it's not an educational death sentence

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or, and I think that that's, you bring up a really good point at whether it's church,

267
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home, school, as long as you continue to see the strengths in the child or the student

268
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and you remind them and you build from them exactly like you said, anything is possible.

269
00:16:27,800 --> 00:16:28,800
Yeah.

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00:16:28,800 --> 00:16:31,800
Two, two more questions.

271
00:16:31,800 --> 00:16:32,800
Sorry.

272
00:16:32,800 --> 00:16:36,360
Is, is your son elementary or middle school age?

273
00:16:36,360 --> 00:16:37,360
Middle school.

274
00:16:37,360 --> 00:16:42,440
How has that transition been for him from elementary school to middle school?

275
00:16:42,440 --> 00:16:45,800
You know, we were really, really worried because, were you?

276
00:16:45,800 --> 00:16:46,800
Yeah.

277
00:16:46,800 --> 00:16:52,200
Because like, like I said, he is very, he's very self assured.

278
00:16:52,200 --> 00:16:57,680
He does his own thing, but that also means that sometimes he misses out on those social

279
00:16:57,680 --> 00:16:58,680
cues.

280
00:16:58,680 --> 00:16:59,680
Sure, sure.

281
00:16:59,680 --> 00:17:07,280
So we were concerned about how he would integrate in a middle school environment because we

282
00:17:07,280 --> 00:17:09,000
all know what middle school was like.

283
00:17:09,000 --> 00:17:10,000
It's terrible.

284
00:17:10,000 --> 00:17:11,000
Yeah, it's terrible.

285
00:17:11,000 --> 00:17:19,640
And so we, at that point he had gone off of his, and I can never remember what's the main

286
00:17:19,640 --> 00:17:22,080
educational and is the IEP.

287
00:17:22,080 --> 00:17:26,560
And the IEP is more, more regulated and than a 504.

288
00:17:26,560 --> 00:17:31,400
So 504 is just accommodations and IEP is the adaptations and accommodations.

289
00:17:31,400 --> 00:17:36,880
So he had actually in elementary school, he had gone off of his IEP and gone to a 504.

290
00:17:36,880 --> 00:17:37,880
Wow.

291
00:17:37,880 --> 00:17:38,880
Okay.

292
00:17:38,880 --> 00:17:40,600
Towards the end of his elementary school experience.

293
00:17:40,600 --> 00:17:49,640
So when we went to middle school, we still had some 504 meetings, but they were, but

294
00:17:49,640 --> 00:17:53,040
it was much more relaxed because he didn't have as many accommodations.

295
00:17:53,040 --> 00:17:54,040
Okay.

296
00:17:54,040 --> 00:17:55,040
Okay.

297
00:17:55,040 --> 00:18:00,040
And we went to the first 504 meeting a couple months into school and we were just, my wife

298
00:18:00,040 --> 00:18:03,440
and I went in and we're just like, okay, we're going to see what we hear here.

299
00:18:03,440 --> 00:18:05,440
Cause you know, we asked him and he's like, school's fine.

300
00:18:05,440 --> 00:18:06,440
I'm good.

301
00:18:06,440 --> 00:18:08,040
Of the standard.

302
00:18:08,040 --> 00:18:10,720
And that's a very, that's a very typical kid answer, right?

303
00:18:10,720 --> 00:18:11,820
It was great.

304
00:18:11,820 --> 00:18:13,520
We had lunch and now I'm here.

305
00:18:13,520 --> 00:18:14,520
Hi dad.

306
00:18:14,520 --> 00:18:15,520
Yeah.

307
00:18:15,520 --> 00:18:17,780
He's like, we did this and I talked to this kid and it was great.

308
00:18:17,780 --> 00:18:22,460
So we went in and we just said, okay, so how, how's he doing?

309
00:18:22,460 --> 00:18:25,400
And they were all, he's the greatest kid.

310
00:18:25,400 --> 00:18:27,020
He volunteers.

311
00:18:27,020 --> 00:18:28,020
He works.

312
00:18:28,020 --> 00:18:31,480
He's, he's always working with other students.

313
00:18:31,480 --> 00:18:38,200
You know, he's, he's, he's trying to answer questions and he's keeping up on his homework

314
00:18:38,200 --> 00:18:39,640
because that was our biggest concern.

315
00:18:39,640 --> 00:18:44,160
You know, it was the organizational component keeping up on the schoolwork.

316
00:18:44,160 --> 00:18:47,760
You know, he was, and so he was doing really, really well.

317
00:18:47,760 --> 00:18:51,360
And, and you know, we asked, how was he doing socially?

318
00:18:51,360 --> 00:18:52,360
Does he seem like he has friends?

319
00:18:52,360 --> 00:18:55,960
And like, oh yeah, he, he interacts well with the other kids.

320
00:18:55,960 --> 00:18:59,240
And so it was a really, really good transition for him.

321
00:18:59,240 --> 00:19:01,040
The only answer you wanted, right?

322
00:19:01,040 --> 00:19:02,360
He's the glowing angel.

323
00:19:02,360 --> 00:19:04,680
You're like, of course he is.

324
00:19:04,680 --> 00:19:09,440
Glowing angel who actually, you know, does have friends too, because that's always, that's

325
00:19:09,440 --> 00:19:10,440
the flip side.

326
00:19:10,440 --> 00:19:12,760
I think that's where I kind of went when I was in junior high was I was, the kid was

327
00:19:12,760 --> 00:19:14,160
always trying to answer the questions.

328
00:19:14,160 --> 00:19:16,360
And so that kind of rubs some people the wrong way.

329
00:19:16,360 --> 00:19:19,480
You were Hermione Granger.

330
00:19:19,480 --> 00:19:27,480
And so I feel like he really had the benefit of, of going through that and then, and just

331
00:19:27,480 --> 00:19:29,520
transitioning really well.

332
00:19:29,520 --> 00:19:34,320
A benefit to that also was that his sister was also, his older sister was also at the

333
00:19:34,320 --> 00:19:35,320
school.

334
00:19:35,320 --> 00:19:36,320
Oh, okay.

335
00:19:36,320 --> 00:19:37,320
So he had backup.

336
00:19:37,320 --> 00:19:40,680
He kind of back up and he would kind of see her here and there and that was good.

337
00:19:40,680 --> 00:19:44,400
But, but no, he had, he, he, he had a good transition.

338
00:19:44,400 --> 00:19:49,680
He's been doing well in the middle school experience, which has just been really great.

339
00:19:49,680 --> 00:19:50,680
Good.

340
00:19:50,680 --> 00:19:55,840
And the reason I ask is a lot of families, they are very concerned about what happens

341
00:19:55,840 --> 00:20:00,560
when they move to a bigger school where the children leave their class to go to another

342
00:20:00,560 --> 00:20:02,040
classroom and have different teachers.

343
00:20:02,040 --> 00:20:05,240
So I think that's going to be really reassuring to a lot of parents.

344
00:20:05,240 --> 00:20:09,400
And then we'll have you back when he, when he moves up into high school to see if that

345
00:20:09,400 --> 00:20:13,160
trend continues now that he's part of my longterm study, right?

346
00:20:13,160 --> 00:20:15,920
Yeah, we will see about that.

347
00:20:15,920 --> 00:20:21,560
I'm also really curious about family dynamics and I know that he's not the oldest, he's

348
00:20:21,560 --> 00:20:28,240
not the youngest and that some of your children might also have some sensory or neurodivergence.

349
00:20:28,240 --> 00:20:30,160
How, how has that been?

350
00:20:30,160 --> 00:20:35,920
Do you, and I think the reason I'm asking is because in my personal family, my youngest

351
00:20:35,920 --> 00:20:40,760
child looks out for her older siblings so much.

352
00:20:40,760 --> 00:20:46,120
And if there are things that they're not quite grasping right away, she immediately jumps

353
00:20:46,120 --> 00:20:51,640
in and mama bears them, like shepherds them to where they need to go.

354
00:20:51,640 --> 00:20:54,200
Is that, do you have a similar experience?

355
00:20:54,200 --> 00:21:01,080
You know, the dynamics are interesting because like I said, my son is very self-determined.

356
00:21:01,080 --> 00:21:02,280
So he has a morning routine.

357
00:21:02,280 --> 00:21:08,760
He goes in, he does, he packs his lunch, packs his computer, gets everything all set up and,

358
00:21:08,760 --> 00:21:09,760
and he just does that.

359
00:21:09,760 --> 00:21:11,000
And at nighttime, it's the same thing.

360
00:21:11,000 --> 00:21:15,880
He kind of gets his, when he has his routines locked, he just does his own thing.

361
00:21:15,880 --> 00:21:23,360
And so I think for that reason, his siblings don't really feel a real need to kind of jump

362
00:21:23,360 --> 00:21:29,960
in and do stuff for him because when it comes to those things, he just takes care of himself.

363
00:21:29,960 --> 00:21:33,160
He sounds like he's like clockwork, like you could set your time by him.

364
00:21:33,160 --> 00:21:34,720
Yeah, no, you, you kind of can.

365
00:21:34,720 --> 00:21:40,320
We'll jokingly say it'll be 8 30 and we'll be looking around because you know, our other

366
00:21:40,320 --> 00:21:43,080
kids are all, they're doing their typical kid thing where they're trying to stay up

367
00:21:43,080 --> 00:21:45,120
as late as possible.

368
00:21:45,120 --> 00:21:46,960
An hour to brush their teeth.

369
00:21:46,960 --> 00:21:50,680
And we look around and I'm like, where, where is he?

370
00:21:50,680 --> 00:21:53,440
And he's down in bed because it's, he's tired.

371
00:21:53,440 --> 00:21:55,200
Because that's what we do at 8 30.

372
00:21:55,200 --> 00:21:56,800
We are in bed.

373
00:21:56,800 --> 00:21:57,800
He's tired.

374
00:21:57,800 --> 00:21:58,800
He got ready for bed.

375
00:21:58,800 --> 00:21:59,800
He goes and gets in bed.

376
00:21:59,800 --> 00:22:03,840
So, so there's less of that dynamic.

377
00:22:03,840 --> 00:22:09,120
And interestingly, where our other kids have also had therapies and things like that, I

378
00:22:09,120 --> 00:22:13,040
think it's helped to normalize those interventions.

379
00:22:13,040 --> 00:22:19,480
And so, okay, less seen as something unknown or different.

380
00:22:19,480 --> 00:22:20,480
Yeah.

381
00:22:20,480 --> 00:22:21,480
And different.

382
00:22:21,480 --> 00:22:23,880
It's just kind of like, oh, this is what we just part of growing up.

383
00:22:23,880 --> 00:22:24,880
Yeah, we do this.

384
00:22:24,880 --> 00:22:29,520
We, we go to the occupational therapist, we go to the counselor and, and, and it's actually

385
00:22:29,520 --> 00:22:34,800
really helped because where other kids have asked, why, why am I going to this counselor?

386
00:22:34,800 --> 00:22:39,080
You know, we were able to say, oh, well, your brother did that.

387
00:22:39,080 --> 00:22:42,240
And he's, and I know, yeah, I guess he did do that.

388
00:22:42,240 --> 00:22:44,440
And then we can kind of show and point that out.

389
00:22:44,440 --> 00:22:48,120
And now look at all the things that he can do because he went and was able to talk about

390
00:22:48,120 --> 00:22:49,120
it.

391
00:22:49,120 --> 00:22:50,120
Right?

392
00:22:50,120 --> 00:22:51,120
Exactly.

393
00:22:51,120 --> 00:22:53,440
Can I ask how you found iPoll?

394
00:22:53,440 --> 00:22:56,760
Because from your story so far, it sounds like everything went along really, really

395
00:22:56,760 --> 00:22:58,680
smoothly and there weren't a lot of hiccups.

396
00:22:58,680 --> 00:23:05,760
Yeah, no, we were, again, this is a super rare blessing from heaven because there's

397
00:23:05,760 --> 00:23:10,200
no way that, I mean, I've talked to enough parents to know that our story is.

398
00:23:10,200 --> 00:23:11,200
You're the outlier.

399
00:23:11,200 --> 00:23:12,200
The outlier.

400
00:23:12,200 --> 00:23:17,640
Um, and, and I was actually trying to go back and remember how I heard about iPoll.

401
00:23:17,640 --> 00:23:25,120
I believe that I got on an email mailing list or I had heard about, um, like a lunch training,

402
00:23:25,120 --> 00:23:26,600
like a lunch webinar.

403
00:23:26,600 --> 00:23:29,680
Um, and I'm an attorney, my profession.

404
00:23:29,680 --> 00:23:34,760
And so there was something that popped up, might've been through family advocates and

405
00:23:34,760 --> 00:23:36,640
the free program like that.

406
00:23:36,640 --> 00:23:43,080
And I remembered I, I got on the email list and I signed up for a, like a lunchtime webinar

407
00:23:43,080 --> 00:23:44,720
training.

408
00:23:44,720 --> 00:23:48,620
And I was really impressed with what I had heard and seen.

409
00:23:48,620 --> 00:23:53,160
And so I just kind of kept following along with the email list and kind of, I'd sign

410
00:23:53,160 --> 00:23:55,160
up for trainings here and there.

411
00:23:55,160 --> 00:23:58,640
And I was just really, really impressed with what iPoll does.

412
00:23:58,640 --> 00:24:04,960
And in my mind, I kept thinking if we didn't have the opportunities that we had had and

413
00:24:04,960 --> 00:24:10,280
the families that were placed in our path and, and our experience, um, I would have

414
00:24:10,280 --> 00:24:14,880
really loved, like iPoll would have done all of that for us perfectly.

415
00:24:14,880 --> 00:24:20,120
Um, being able to talk with other parents, being able to understand the different interventions

416
00:24:20,120 --> 00:24:23,840
and the different accommodations and supports that are available.

417
00:24:23,840 --> 00:24:29,000
And so, um, I was looking for something personally that I could volunteer, give of myself.

418
00:24:29,000 --> 00:24:32,480
Like, I felt like that was something that was lacking in my life.

419
00:24:32,480 --> 00:24:36,320
Even though you were an attorney by profession and a father of four children, you were like,

420
00:24:36,320 --> 00:24:37,320
what else can I do today?

421
00:24:37,320 --> 00:24:38,320
What else can I do?

422
00:24:38,320 --> 00:24:39,320
I'm bored.

423
00:24:39,320 --> 00:24:45,240
Um, no, it was, it was more of just, as I understood more and more about what iPoll

424
00:24:45,240 --> 00:24:52,640
did, I really appreciated that mission and that they weren't necessarily going out and

425
00:24:52,640 --> 00:24:58,260
advocating for parents because as I said before, I feel like sometimes if you go in with your

426
00:24:58,260 --> 00:25:05,040
mindset on one certain outcome for your child, that can sometimes be detrimental.

427
00:25:05,040 --> 00:25:09,240
Like there's times where you have to fight and there's times where you have to listen

428
00:25:09,240 --> 00:25:11,240
to give something a shot first.

429
00:25:11,240 --> 00:25:12,240
Yeah, exactly.

430
00:25:12,240 --> 00:25:17,600
And so I really appreciated that that was iPoll's strategy and that is their methodology

431
00:25:17,600 --> 00:25:23,680
is inform, educate, provide the tools that if you need to fight, you know, kind of where

432
00:25:23,680 --> 00:25:28,880
to go and how to do it, but to not have that be just, you're going to get what you want

433
00:25:28,880 --> 00:25:31,720
for your kid no matter what, a hundred percent.

434
00:25:31,720 --> 00:25:38,720
And so that was kind of where I just kind of kept, it's kind of lurking background and

435
00:25:38,720 --> 00:25:42,400
getting a lot of the benefits of the education and those things.

436
00:25:42,400 --> 00:25:49,840
And so I decided to see if there was an opportunity for a board position.

437
00:25:49,840 --> 00:25:55,340
And so I applied for that, talked with Angela, again, really appreciated her perspective

438
00:25:55,340 --> 00:25:59,640
and her attitude and strategy for the organization.

439
00:25:59,640 --> 00:26:04,720
And I just really been really grateful to be a part of it to help out where I can.

440
00:26:04,720 --> 00:26:06,060
You're definitely very helpful.

441
00:26:06,060 --> 00:26:10,000
You're always here every, every board meeting.

442
00:26:10,000 --> 00:26:15,760
And I think as someone who has the luxury of having an office right next to the main

443
00:26:15,760 --> 00:26:21,760
meeting room, there are some really good discussions where I'm like, I don't even think I would

444
00:26:21,760 --> 00:26:27,600
have thought to have said that because not only are all of the board members active in

445
00:26:27,600 --> 00:26:33,040
their community, come from all different kinds of professions, but we're all parents of children

446
00:26:33,040 --> 00:26:35,000
with disabilities.

447
00:26:35,000 --> 00:26:40,960
And so it's just really unique to have all of us in one room and go, oh, you're so right.

448
00:26:40,960 --> 00:26:41,960
Or what a great idea.

449
00:26:41,960 --> 00:26:44,840
Maybe I could do that for a podcast or we'll make a webinar about that.

450
00:26:44,840 --> 00:26:47,960
Or I hadn't even heard that yet from our community.

451
00:26:47,960 --> 00:26:49,960
And we're from all over the state, right?

452
00:26:49,960 --> 00:26:52,240
Because I pull doesn't just serve Ada County.

453
00:26:52,240 --> 00:26:53,240
Yeah.

454
00:26:53,240 --> 00:26:55,920
And I think, I mean, I always learned so much.

455
00:26:55,920 --> 00:26:58,920
I always feel like I'm the guy at the meetings.

456
00:26:58,920 --> 00:26:59,920
He was taking notes.

457
00:26:59,920 --> 00:27:03,160
He was like, I got to realize what that acronym means.

458
00:27:03,160 --> 00:27:06,720
And there's so much knowledge that comes out of it.

459
00:27:06,720 --> 00:27:10,880
And I hopefully throw out some ideas once in a while that are helpful.

460
00:27:10,880 --> 00:27:16,880
But there's so much that I've learned from this and from, like you said, interacting

461
00:27:16,880 --> 00:27:24,080
with the other parents, interacting with the staff here, and just kind of opening my eyes

462
00:27:24,080 --> 00:27:28,840
to a lot of different families' perspectives and their experiences.

463
00:27:28,840 --> 00:27:32,120
Because it helps me give a wider appreciation.

464
00:27:32,120 --> 00:27:39,120
I came to the work of art reception, which was so incredible to see these kids and what

465
00:27:39,120 --> 00:27:40,120
they had done.

466
00:27:40,120 --> 00:27:41,120
What they make.

467
00:27:41,120 --> 00:27:42,120
It's so mind blowing.

468
00:27:42,120 --> 00:27:43,120
It is way impressive.

469
00:27:43,120 --> 00:27:44,120
The talent.

470
00:27:44,120 --> 00:27:45,120
Yeah.

471
00:27:45,120 --> 00:27:47,560
And just seeing like, it's things like that.

472
00:27:47,560 --> 00:27:52,640
And so I got onto the board because I just thought, well, this is a great organization.

473
00:27:52,640 --> 00:27:55,120
I'd like to help out as much as I can.

474
00:27:55,120 --> 00:27:56,540
And let's just see where it goes.

475
00:27:56,540 --> 00:27:59,120
And then as I learned more and more about what I pulled in, I was like, oh no, this

476
00:27:59,120 --> 00:28:01,560
is a really, really, really cool organization.

477
00:28:01,560 --> 00:28:03,280
We just took it to the next level.

478
00:28:03,280 --> 00:28:04,280
Yeah.

479
00:28:04,280 --> 00:28:06,440
There's so many cool things that are happening.

480
00:28:06,440 --> 00:28:14,560
And so it's just a really great opportunity to be able to contribute however I can.

481
00:28:14,560 --> 00:28:18,120
And especially from a lens of knowledge that you already had, because you already had that

482
00:28:18,120 --> 00:28:19,520
experience as a parent.

483
00:28:19,520 --> 00:28:25,040
I'm curious to know where you think iPoll could go or should go for the future.

484
00:28:25,040 --> 00:28:27,440
Is there anything that stands out to you?

485
00:28:27,440 --> 00:28:35,800
Well, I think at our last board meeting, we did an assessment of, it was like a nonprofit

486
00:28:35,800 --> 00:28:40,600
assessment as to like, we looked at, it was like a matrix.

487
00:28:40,600 --> 00:28:45,320
And it said, is your nonprofit financially and leadership wise?

488
00:28:45,320 --> 00:28:49,960
And it was like on a spectrum of one to five, like one being deficient.

489
00:28:49,960 --> 00:28:52,080
Oh, okay.

490
00:28:52,080 --> 00:28:57,640
And what I remembered seeing was that there was two classifications and one was like,

491
00:28:57,640 --> 00:29:02,240
it was something like rising up or ascending, you know?

492
00:29:02,240 --> 00:29:09,400
And as we all kind of took this on our own and compared notes, it was really exciting

493
00:29:09,400 --> 00:29:15,700
because I pulled it to this stage where it is, I feel like it's primed and ready to really

494
00:29:15,700 --> 00:29:17,200
just take off.

495
00:29:17,200 --> 00:29:18,200
Blast off.

496
00:29:18,200 --> 00:29:22,520
Because it's, the foundation is all there, like the staff is all there.

497
00:29:22,520 --> 00:29:28,160
And as you're looking at what's organizationally happening, it's, you know, we're starting

498
00:29:28,160 --> 00:29:34,440
to build out into more funding and more, I think it's really watching Angela's role go

499
00:29:34,440 --> 00:29:40,560
from more of kind of in the trenches, working with staff to being much more administrative,

500
00:29:40,560 --> 00:29:43,860
but then facilitating a lot of those other things that can happen.

501
00:29:43,860 --> 00:29:49,760
And so I've been really excited because I feel like with some additional push and some

502
00:29:49,760 --> 00:29:55,820
additional, you know, like we're making good relationships with other organizations, we're

503
00:29:55,820 --> 00:30:03,000
being recognized throughout the state and throughout the region as really being a beneficial

504
00:30:03,000 --> 00:30:04,360
program.

505
00:30:04,360 --> 00:30:08,000
And those things just seem to be growing and building on each other.

506
00:30:08,000 --> 00:30:12,840
And you know, when I came onto the board, I think it was 2020, so you know, there's

507
00:30:12,840 --> 00:30:13,840
a lot of people in the middle of COVID.

508
00:30:13,840 --> 00:30:14,840
He's COVID.

509
00:30:14,840 --> 00:30:15,840
He's COVID.

510
00:30:15,840 --> 00:30:20,800
It wasn't until we had that train like a year, maybe a year and a half later when I actually

511
00:30:20,800 --> 00:30:23,320
met people in person.

512
00:30:23,320 --> 00:30:27,840
But it was interesting because we kind of were struggling to have board members and

513
00:30:27,840 --> 00:30:34,320
we were, and a lot of our talk was how do we recruit more board members?

514
00:30:34,320 --> 00:30:39,000
And in the past six months, we've had four or five just excellent board members come

515
00:30:39,000 --> 00:30:45,000
on who have heard about us and who have come on and are bringing a lot to the table.

516
00:30:45,000 --> 00:30:48,080
And that's really exciting from my perspective.

517
00:30:48,080 --> 00:30:51,440
I agree completely because I'll walk in the room and I'll be like, well, not only do I

518
00:30:51,440 --> 00:30:56,360
not know half the people sitting here, but then when I meet them, like the background,

519
00:30:56,360 --> 00:31:00,280
everyone is so different and brings so much.

520
00:31:00,280 --> 00:31:05,140
And some people have had the opportunity to get services in several different states.

521
00:31:05,140 --> 00:31:09,840
And so we can chat about, you know, compare and contrast what that was like.

522
00:31:09,840 --> 00:31:15,600
And then, I mean, unfortunately, if I remember correctly, you're still the only guy.

523
00:31:15,600 --> 00:31:17,800
So there's some area of opportunity there.

524
00:31:17,800 --> 00:31:19,560
Shout out to you guys.

525
00:31:19,560 --> 00:31:20,560
Tell your husbands.

526
00:31:20,560 --> 00:31:21,560
Tell your husbands.

527
00:31:21,560 --> 00:31:27,080
No, I think, but that has been really cool to see the, just from the board's perspective,

528
00:31:27,080 --> 00:31:34,560
the board growing and seeing what the staff are doing and how they're able to develop

529
00:31:34,560 --> 00:31:38,720
with what they're doing, like with what you're doing with the podcasts and everything and

530
00:31:38,720 --> 00:31:43,720
all these other opportunities that just EIPL has to grow.

531
00:31:43,720 --> 00:31:49,640
And so, like I said, taking that survey, it was really cool to see that, you know, there

532
00:31:49,640 --> 00:31:54,080
wasn't anything, I don't think there was anything that was deficient or like needs work.

533
00:31:54,080 --> 00:31:58,840
It was all like going up and rising or doing well.

534
00:31:58,840 --> 00:32:03,000
And so it really feels like there's a really good vision and there's really good opportunity

535
00:32:03,000 --> 00:32:12,400
to kind of grow EIPL to be a really, really strong leader in parent advocacy and education.

536
00:32:12,400 --> 00:32:16,200
That's really, really, really exciting, especially to hear from a board member, because we say

537
00:32:16,200 --> 00:32:19,480
it to each other all the time, like, we're doing the best, we're going places.

538
00:32:19,480 --> 00:32:23,400
But then to hear it from someone who's on the fringes.

539
00:32:23,400 --> 00:32:24,560
Yeah.

540
00:32:24,560 --> 00:32:26,240
We really appreciate it.

541
00:32:26,240 --> 00:32:31,560
Any parting thoughts or words of wisdom or any other pieces of your son's story that

542
00:32:31,560 --> 00:32:33,840
you didn't share that you want to pop in?

543
00:32:33,840 --> 00:32:38,880
I think the main thing is just that you have to have faith in your own intuition.

544
00:32:38,880 --> 00:32:41,440
You have to have faith in the providers around you.

545
00:32:41,440 --> 00:32:44,560
You have to have faith in your child.

546
00:32:44,560 --> 00:32:54,160
And when you, like, I think it's a very easy thing to worry a lot about what your child

547
00:32:54,160 --> 00:32:59,760
should have or isn't having or, you know, where they aren't right now.

548
00:32:59,760 --> 00:33:05,200
And I've just learned that for me, the more that I do everything I can and then kind of

549
00:33:05,200 --> 00:33:11,920
balance it with what everybody else is doing as well, and just kind of trusting in those

550
00:33:11,920 --> 00:33:14,080
people around you that you know you can trust in.

551
00:33:14,080 --> 00:33:18,320
I think you made that point earlier when you were talking about your child and how, you

552
00:33:18,320 --> 00:33:23,280
know, the providers, the education, the educational providers said, hey, let's try this.

553
00:33:23,280 --> 00:33:24,280
Right.

554
00:33:24,280 --> 00:33:27,800
And you said, I've seen how you care about my kids.

555
00:33:27,800 --> 00:33:29,880
I've seen what you're trying to do.

556
00:33:29,880 --> 00:33:35,640
I can trust you to maybe do something that wasn't my game plan to come in with.

557
00:33:35,640 --> 00:33:38,160
And I think that trust has to be earned, obviously.

558
00:33:38,160 --> 00:33:41,600
Like, you can't just, you know, if you're feeling that you're...

559
00:33:41,600 --> 00:33:44,800
Because that's, again, that sometimes is an outlier.

560
00:33:44,800 --> 00:33:49,280
There's a lot of times where educational system, and we've had it in our situation too, where

561
00:33:49,280 --> 00:33:53,360
sometimes they don't get it or it's not working out.

562
00:33:53,360 --> 00:33:59,080
But where you can trust in those people, I think, you know, lightening that load by saying,

563
00:33:59,080 --> 00:34:04,040
you know what, let's do this together instead of I have to have all the answers.

564
00:34:04,040 --> 00:34:06,960
It's a psychological burden that's lifted.

565
00:34:06,960 --> 00:34:13,960
And I think it just helps your kids to understand that it's...that everybody's pulling for them.

566
00:34:13,960 --> 00:34:14,960
Exactly.

567
00:34:14,960 --> 00:34:15,960
Yeah.

568
00:34:15,960 --> 00:34:16,960
Lean on people if you have them, right?

569
00:34:16,960 --> 00:34:17,960
Mm-hmm.

570
00:34:17,960 --> 00:34:18,960
Couldn't have said it better myself.

571
00:34:18,960 --> 00:34:25,440
But I think it's cool.

572
00:34:25,440 --> 00:34:28,680
Thanks so much to you out there for listening in.

573
00:34:28,680 --> 00:34:36,640
If you are in Idaho or planning on moving to Idaho and you have any questions on systems

574
00:34:36,640 --> 00:34:41,160
or supports or services for children with disabilities, please reach out to iPoll on

575
00:34:41,160 --> 00:34:45,880
our website at ipulidaho.org.

576
00:34:45,880 --> 00:34:47,480
Be sure to come back next time.

577
00:34:47,480 --> 00:34:51,280
Until then, I'm Allison, and this has been Unlimited Parenting.

578
00:34:51,280 --> 00:35:18,280
Thanks for listening.

