1
00:00:00,000 --> 00:00:08,880
Hello, welcome to another episode of Unpacking Neuroqueerness. This episode is

2
00:00:08,880 --> 00:00:16,600
honestly another episode that I really wish I didn't have to record. I really

3
00:00:16,600 --> 00:00:20,920
wish that people knew better at this point and I didn't have to record another

4
00:00:20,920 --> 00:00:27,480
episode like this calling someone else, calling someone out. In this case a major

5
00:00:27,480 --> 00:00:33,640
streaming, probably the biggest streaming network in the world, Netflix, for their

6
00:00:33,640 --> 00:00:39,120
deeply irresponsible, deeply ableist and offensive narrative around autism

7
00:00:39,120 --> 00:00:45,240
featured in their Hack Your Health the Secrets of Your Gut new documentary

8
00:00:45,240 --> 00:00:55,040
that just came out. Now a big sad thing about this is that I ended up exposed to

9
00:00:55,040 --> 00:01:04,000
this deeply offensive content as an autistic person because I was actually

10
00:01:04,000 --> 00:01:15,480
curious to watch this documentary because I myself struggle with with gut

11
00:01:15,480 --> 00:01:24,880
health on and off. I've struggled with it throughout my life and I I know a lot of

12
00:01:24,880 --> 00:01:29,920
other autistic people have struggled with it as well and there might be a link

13
00:01:29,920 --> 00:01:37,400
there and so I thought maybe they're gonna discuss this in a positive

14
00:01:37,400 --> 00:01:43,840
neurodiversity affirming way where they're gonna want to study the talk

15
00:01:43,840 --> 00:01:51,560
about the relations, the relationship in between having developmental

16
00:01:51,560 --> 00:02:04,560
disabilities and having poor gut health and what could be done to help folks to

17
00:02:04,560 --> 00:02:17,040
make the world more accommodating and to help folks understand and have

18
00:02:17,040 --> 00:02:24,120
tools to like figure out what's going on with their gut and how to help their gut

19
00:02:24,120 --> 00:02:37,840
but within the first two minutes of this documentary they managed to offend and

20
00:02:37,840 --> 00:02:47,680
insult and its entire community where they're eugenics narratives by characterizing

21
00:02:47,680 --> 00:02:54,640
autism as a disease. This old narrative again of calling autism a

22
00:02:54,640 --> 00:02:59,920
disease and trying to cure, talking about curing autism which is basically

23
00:02:59,920 --> 00:03:06,880
eliminating autistic people like myself from the planet. Classic eugenics just

24
00:03:06,880 --> 00:03:12,520
months after I had to do an episode about a eugenics article that came out that

25
00:03:12,520 --> 00:03:19,240
was done by UCSF which is considered to be a majorly progressive university in

26
00:03:19,240 --> 00:03:23,200
a progressive city which turns out they're not very progressive after all

27
00:03:23,200 --> 00:03:35,640
and a lot of progressive spaces do not do not seem to include neurodiversity

28
00:03:35,640 --> 00:03:42,680
inclusion and anti eugenics in their values clearly because they come out

29
00:03:42,680 --> 00:03:49,760
with an article about curing or curing autism months ago that I had to call out.

30
00:03:49,760 --> 00:03:54,160
Now here we are I'm calling out Netflix for this deeply problematic

31
00:03:54,160 --> 00:03:59,440
narrative in this documentary where within the first two minutes they refer

32
00:03:59,440 --> 00:04:05,600
to autism as a disease they say in this phrase quote diseases like anxiety

33
00:04:05,600 --> 00:04:11,880
depression cancer autism and Parkinson's are all related to the gut so terrible

34
00:04:11,880 --> 00:04:20,240
start right there where you characterize autism as a disease and then they go on

35
00:04:20,240 --> 00:04:27,280
to refer to it as a brain problem which is also deeply problematic and

36
00:04:27,280 --> 00:04:35,440
offensive it is not a brain problem there is nothing to be fixed or cured it

37
00:04:35,440 --> 00:04:42,560
is a disability a lifelong disability to be accommodated and it's nothing and

38
00:04:42,560 --> 00:04:48,240
it's not a disease to be cured or fixed and I can't believe that we're still

39
00:04:48,240 --> 00:04:59,040
having this conversation in 2022 but it seems we are and of course the National

40
00:04:59,040 --> 00:05:08,160
Autistic Society of the UK was also quick to call this out Tom Nichols head of

41
00:05:08,160 --> 00:05:16,560
influencing and research at the National Autistic Society highlights the not

42
00:05:16,560 --> 00:05:22,800
only the problematic use of brain problem in relation to autism but also

43
00:05:22,800 --> 00:05:32,720
this link that is casually made and not backed up by any scientific evidence

44
00:05:34,520 --> 00:05:40,720
and the National Autistic Society have urged Netflix to take down the

45
00:05:40,720 --> 00:05:50,960
documentary it is Mr. Nichols goes on to explain that it is disgraceful that

46
00:05:50,960 --> 00:05:55,760
next that Netflix has given a platform to a show which casually promotes dodgy

47
00:05:55,760 --> 00:06:02,680
and untested science about autism and autistic people watching will have heard

48
00:06:02,680 --> 00:06:08,600
themselves talked about in the most stigmatizing deeply offensive and

49
00:06:08,600 --> 00:06:14,320
unacceptable ways they will have heard autism referred to as a disease as a

50
00:06:14,320 --> 00:06:19,200
brain problem a chronic condition that we need to get a handle on whatever that

51
00:06:19,200 --> 00:06:24,520
means whatever the heck that means please explain to the autistic community

52
00:06:24,520 --> 00:06:29,080
what you mean when you're calling us diseased and you're saying that you

53
00:06:29,080 --> 00:06:38,120
need to get a handle on us please I'm very very curious to hear if Netflix has

54
00:06:38,120 --> 00:06:43,800
any or the makers of this documentary if they have any response to this and for

55
00:06:43,800 --> 00:06:50,480
Netflix the airing something like this and Mr. Nichols goes on to explain as

56
00:06:50,480 --> 00:06:59,720
I have mentioned as well autism is a lifelong disability not a disease or a

57
00:06:59,720 --> 00:07:06,280
temporary symptom linked to gut health it cannot be treated or cured to suggest

58
00:07:06,280 --> 00:07:11,640
otherwise is wrong deeply irresponsible and offensive to autistic people and

59
00:07:11,640 --> 00:07:16,960
their families the National Autistic Society as I mentioned is now urging

60
00:07:16,960 --> 00:07:20,680
Netflix to take down the documentary stating that autistic people are not

61
00:07:20,680 --> 00:07:26,400
clickbait from media companies to entice viewers we will challenge their

62
00:07:26,400 --> 00:07:32,640
stereotypes stigma and misinformation about autism wherever we see it so we

63
00:07:32,640 --> 00:07:40,600
can create a society that works for autistic people and apparently Netflix

64
00:07:40,600 --> 00:07:45,480
has thanked the National Autistic Society for their feedback adding they have

65
00:07:45,480 --> 00:07:51,120
made a note of their complaints have contacted the streaming service for

66
00:07:51,120 --> 00:07:55,480
the way now the National Autistic Society has contacted the streaming

67
00:07:55,480 --> 00:07:59,600
service for further comment but our get to receive a response now this should

68
00:07:59,600 --> 00:08:05,400
not even be a thing that flicks Netflix should know better there there is just

69
00:08:05,400 --> 00:08:11,640
too much information out there on your diversity for Netflix a major streaming

70
00:08:11,640 --> 00:08:22,840
service who has already released shows with autistic actors and advocates and

71
00:08:22,840 --> 00:08:29,000
actually trying to move the needle and do better with autistic representation

72
00:08:29,000 --> 00:08:35,080
that the idea I was getting up until this point and then they release complete

73
00:08:35,080 --> 00:08:43,000
ablest garbage like this and and this affects autistic people that are watching

74
00:08:43,000 --> 00:08:48,320
the show let's let's remember as mr. Nichols said there are autistic people

75
00:08:48,320 --> 00:08:52,760
including like myself that watch the show and that have to see this deeply

76
00:08:52,760 --> 00:09:04,360
offensive stigmatizing information about themselves and let's not forget that

77
00:09:04,360 --> 00:09:10,800
as that partly because of all this misinformation out there that

78
00:09:10,800 --> 00:09:16,640
autistics have to constantly see about themselves that is why suicide rates

79
00:09:16,640 --> 00:09:21,280
are so high in the autistic community that's why autistic people have an

80
00:09:21,280 --> 00:09:27,520
average life expectancy of 35 years old that's why 80% of the autistic

81
00:09:27,520 --> 00:09:33,480
community has attempted suicide so how do you think someone an autistic person

82
00:09:33,480 --> 00:09:37,200
that's struggling with their mental health that's already struggling with

83
00:09:37,200 --> 00:09:40,400
their self-worth and their self-image and what once they've been told about

84
00:09:40,400 --> 00:09:47,040
about themselves from society and this narrative of society considering them

85
00:09:47,040 --> 00:09:52,400
diseased as an autistic person that is struggling with their mental health how

86
00:09:52,400 --> 00:09:57,880
are they supposed to feel when they see something like this this person might

87
00:09:57,880 --> 00:10:04,920
already be I'm sorry this person might already be I'm just gonna be very

88
00:10:04,920 --> 00:10:10,000
straight and telling it how it is they might already be experiencing suicidal

89
00:10:10,000 --> 00:10:15,800
thoughts and ideations and they turn on Netflix and Netflix is calling them

90
00:10:15,800 --> 00:10:21,600
diseased and disordered and they have a brain problem that needs to be gotten a

91
00:10:21,600 --> 00:10:30,960
handle on do you think this is going to take them out of that suicidal state or

92
00:10:30,960 --> 00:10:38,640
do you think it is going to lead them further into it like this exacerbates a

93
00:10:38,640 --> 00:10:45,720
major problem that we already have in the community this makes people feel

94
00:10:45,720 --> 00:10:51,360
broken this makes people want to take their lives and this is unacceptable I

95
00:10:51,360 --> 00:11:02,120
am livid I am livid I'm living at this this garbage that has been released by

96
00:11:02,120 --> 00:11:06,280
Netflix let's just be honest let's not mince any words here this is garbage

97
00:11:06,280 --> 00:11:17,200
documentary and I hope I have I hope I have warned enough people to not watch

98
00:11:17,200 --> 00:11:22,920
it don't even waste your time watching this garbage this is outdated ableist

99
00:11:22,920 --> 00:11:30,160
deeply offensive piece of garbage that Netflix has just released so yeah I just

100
00:11:30,160 --> 00:11:35,320
wanted to touch on that for this episode and I really wish I weren't still

101
00:11:35,320 --> 00:11:39,680
having to do episodes like this but apparently the world does not still

102
00:11:39,680 --> 00:11:44,400
does not listen enough to neurodivergent people and our lived

103
00:11:44,400 --> 00:11:52,840
experiences so I am having to do this once again on a more positive note I

104
00:11:52,840 --> 00:11:58,960
have a brand new website shout out to my friend Christina Yarmelich for helping

105
00:11:58,960 --> 00:12:07,240
me design this this website I have a great new website it has a collection of

106
00:12:07,240 --> 00:12:15,880
my acting work my podcasting work as you all are familiar with and a little bit

107
00:12:15,880 --> 00:12:25,040
of my of the essays I have written on my blog I used to have a blog called

108
00:12:25,040 --> 00:12:30,880
different not broken and now it's all integrated into this one at this one

109
00:12:30,880 --> 00:12:40,560
website so feel free to check that out if you'd like I will be putting the link

110
00:12:40,560 --> 00:12:45,720
below in the episode description without further ado thank you for listening I

111
00:12:45,720 --> 00:12:50,480
hope you're able to get something from this episode and please spread the word

112
00:12:50,480 --> 00:12:54,480
if you can on how problematic this documentary is and I'll see you guys

113
00:12:54,480 --> 00:12:57,480
next time thanks

