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Hello everyone, I hope you're all doing well. I've got to start today. First things have

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got to come first, massive Happy New Year. I really hope you've had a good New Year's

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Eve, good New Year's Day and yeah, let's see what this new year brings. But first things

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first, Happy New Year to every single one of you. You've all helped me back ender last

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year an awful lot and I just really hope I'm able to help at least one of you, if not all

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of you. But yeah, Happy New Year. Today on the show, I'm going to talk a little bit today

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about an update on myself. I've also got something that those that have listened to my shows

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a bit in the past. I've written a couple of poems. I've actually written another one.

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Yeah, sorry about that. It just happened. So I'm going to read out another poem to

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you today. It's New Year's based. I think it's actually quite positive. I hope you like

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it. And lastly, today I'm going to talk about some hopes that I've got for the coming year.

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Anyone that listened to my last episode of last year, as I explained on that, it was

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released deliberately early, purely and simply because it was something I had to get off

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my chest. It needed saying. And I wanted to be able to start the new year talking to you

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all a bit more positively. So here we are. This is episode 21. Yeah, 21. If only I was

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21 years old. If only. Anyway, that comes into the bit a little bit later. It doesn't,

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but I'm going to pretend it does because everyone would love to be 21 again. Just saying. Anyway,

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back to the real world. Bit of an update on myself. I've got to be totally honest with

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you. And I know I've said this a bit recently, but I'm actually starting to struggle quite

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a lot. It's nothing really new. It's all pains I've had going on for the last couple of months.

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But they're getting worse. And I do mean quite a bit worse, even to the point that I'm actually

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trying to hide it from the family. Just how much pain I'm in. It's not nice. It's really

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not nice. I'm not supposed to like pain anyway, but yeah, no, it's really not nice. I'm not

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keen. Don't like it. And I'd love for it to go away. Just saying. If anyone's listening,

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it can make that happen. I tell you, there's a high five in it for you. Anyway, going on

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with the pain. What we're talking about really is my legs and lower back, as well as my forearms.

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I know I've only got two arms. It's okay. I understand it. But these things are called

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forearms. Don't know why, but you know, it is what it is. But yeah, I mean, those sort

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of areas are actually I'm getting quite a lot of pains in them. It's not nice. And I've

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said that just to it again. Anyway, the one thing I've always shied away from is telling

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people exactly what painkillers I'm on. I'm going to change that now. Because you know

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what? Why do I need to hide that sort of thing? I don't. So the painkillers I'm taking are

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Gabapentin. As it stands at the moment, I'm currently on 600 milligrams a day, 300 in

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the morning, 300 at night. And it does help. It doesn't completely eradicate the pain.

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I have to say that it really doesn't. But it does help. It takes some away. The other

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thing I've noticed that it does kind of help with a little bit is what we I suppose would

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know as the MS hug. I've explained in the past that I suffer with that. And that's a

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daily thing. It never really fully goes away. I do have days where it's not quite so bad.

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But it's always there. I always feel like I'm being absolutely squeezed across the sort

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of top of my stomach, bottom of my rib cage. That sort of area. It's just not nice. I could

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do with that going away as well. As I said in my first poem, I've had better hugs when

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I used to chuck drunks out of a pub. Clearly that doesn't happen anymore. But there you

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go. But yeah, so that's kind of where we are with that. I mean, walking wise, I'm struggling.

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It's very difficult. I walk really just a few feet and my legs actually get really tired.

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And it is, it's a level of tired in my legs that it doesn't make sense to me. They shouldn't

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get that tired that soon. I mean, I used to be capable, I mean when I'm talking a lot

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younger, I used to be capable of playing two football matches a day. Football training.

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All sorts. Now, just a few feet, walk a few feet and now I'm done. Absolutely done. My

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legs, my thighs, calf muscles, all that sort of stuff hurt. But there you go. So again,

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it's just something I'm kind of having to try and find a way of sharing my life with.

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And I'm doing the best I can with doing that. There is no secret into the mental aspect

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I'm struggling with. The forgetfulness, all that sort of stuff is actually awful at the

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moment. It's really not nice at all. I forget things that quite honestly, I just should

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not forget. But I do. Long term memory, brilliant. Not a problem at all. Short term memory. Who

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are you? What am I doing here? That one was a tease, but it kind of makes the point. Genuinely,

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I can be doing some, I can walk out of a room, come back in, gone, forgotten. Not a clue.

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So yeah, that's where I am currently. I'm not going to bore you in too much detail with

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it. That's currently what I'm dealing with. And I'm fighting through. I'm doing the best

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I can. It's not easy, but I'm trying hard because at the end of the day, it's just something

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I've got to find a way of getting used to. And I'm trying. And I'll continue to try.

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It's not really a lot more I can say on that. I'm going to move on now to the next part

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of the show. Give me a second. I'm just slurping on me cup of tea like usual. I do like a nice

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strong cup of Rosie. Yeah, okay. A bit of cotton coming out there. Let's not go any

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further without it right now. Okay, so what I'm going to do now, I'm just trying to turn

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over a page because I'm going to read my new poem to you all. And this is one that I'll

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be quite honest with you. I actually quite enjoyed when I was sitting and writing. To

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me personally, I think it's quite positive. It might not sound it to start with, but I

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think the actual the thought process behind it is actually a very positive poem. I hope

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you like it. I say it again, I've said it before when I've written poetry, I am not

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a poet. Absolutely not a poet. Why this stuff pops into my head, I will never know. But

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it does. So I'm going to share it. Here we go. So with the new year coming, we have new

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hopes, new dreams, new fight. With the coming of the chiming bells and the bangs of the

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fireworks, we smile, we laugh, we hug. When the bells stop and the beauty of the fireworks

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bend, time for sleep. Dreaming of all the good we want from the coming year. The previous

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one wasn't so good. This time round, we wake with new fight, new passion, new hopes. This

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time, we battle the bad and replace it with good. This new year, we use what we have learned

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and continue the fight with old experience to help us guide us forward into our future.

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The one we want, the one we need, the one we deserve. And let's be fair, we all deserve

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a good happy future. And that's what my hope is for each and every one of you for this

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coming year and beyond is we get a good future. You know, all the fights that we go through

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and we go through a lot, let's go through them together as a team. Because as a team,

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we're all stronger. We can do this. We really can do this. Anyway, back away from the poem

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slowly. Back away, back away. There we go. Right, it's gone. It's gone. It's okay. It's

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all right. I promise you. It's gone. It's hidden. I won't subject you to that one ever

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again unless you ask. Right, okay. So the next part, what I want to talk about here

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is my hopes for the coming year. And I do have a few, I'm going to be honest. There

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is a few hopes in my head. I think there's no secret to the fact that the biggest one

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that I have is just get me on some treatment. That's all. I'm not asking for massive amounts

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of things. I'm not asking for millions of pounds here. Just get me on some treatment.

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Just kind of slow the roll a little bit. I know I said that previously, but just get

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me into a point where I can stop getting worse just for a short period. That would be lovely.

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If I've got to stay as I am, that's fine. I'll accept that. Not a problem. Let's just

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stop me getting a little bit worse. That's all I'm asking. Nothing major. There you go.

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There's some more of my hopes. And again, I know I've mentioned it in a previous episode.

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I really hope this year as a family we get to make our move to the South Coast. I just,

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I genuinely believe if we can do that we can make our move down to the South Coast from

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the Midlands. For the kids I think in the long term I think they've got so much brighter

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futures down there. There's better work prospects, colleges, universities, all that sort of stuff.

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And again, from myself, Lisa, my dad, my brother, I just think there's a better life to be had

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than where we currently are. And where we are isn't awful. Quite the opposite. I just

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think a fresh start would be nice. And it's something that quite honestly I'm chomping

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at the bit for. I'm going to be honest, I really am quite looking forward to it. So

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fingers crossed. Again, going back to that a little bit, one of my biggest hopes is happiness

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for family, for friends. That includes all of you that are listening. I've said this previously.

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I actually do class you all as friends. I come on here and I talk away and genuinely

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I believe each and every person that is listening is a friend. So in all fairness thank you

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and believe me when I say I do hope that you have the best possible year that you can have

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as well. I've also just booked for myself, my dad and my brother to go down to London

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again for the MS Societies charity walk in September. It's something I'm really excited

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about. Massively excited about. Loved every minute of it when we did it last year. Really

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did enjoy it. So yeah, I mean that's something I can't wait for. And I'm not trying to

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keep the time away, honest. But yeah, genuinely I really am looking forward to that. Raise

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some money for an incredible charity. A charity that quite obviously is very close to my heart

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and everyone else that's suffering with this condition or has got family members that are,

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friends that are, whatever. Let's try and raise the money. Let's try and get somewhere

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where help can be given to everyone that's affected by this condition. And really finally

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the two medical studies that I'm assisting with. I'm kind of, shall we say the person

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that they're going to be performing the tests and everything on. Brilliant. Let's go ahead

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with that. Let's get it done. If that can provide even the slightest little bit of help,

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that's what I'm here for. I want to offer as much help as I possibly can. If we can

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find a way to fight this disgusting condition, this horrible condition, this evil condition,

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I'm willing to do whatever I can to help. Well, I have to say a massive thank you to

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each and every one of you listening. You are all hugely appreciated. And I'm talking

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worldwide. Everyone across the entire world that's listening to this podcast, thank you.

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Massive, massive thank you. I hope you all have a fantastic year, as best as you possibly

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can. And I will speak to you again very, very soon. Thank you for listening. Bye bye.

