1
00:00:00,000 --> 00:00:09,000
Hello and welcome to podcast number six. Number six already? We are flying through aren't

2
00:00:09,000 --> 00:00:16,440
we? Well, a few bits and pieces I want to talk about today. The most important one for

3
00:00:16,440 --> 00:00:27,760
me personally is this coming Saturday, finally the day for the MS charity walk for the MS

4
00:00:27,760 --> 00:00:32,720
charity. I've not mentioned it before, but this is something I really am looking forward

5
00:00:32,720 --> 00:00:42,560
to. Five kilometres around London. Naturally, there's no chance I'm walking five kilometres,

6
00:00:42,560 --> 00:00:51,480
but I'll have my wheelchair with me, the DeLorean. I've got brilliant assistants coming with

7
00:00:51,480 --> 00:01:00,360
me in terms of both my dad and my brother. So I'm well aware when I am struggling to

8
00:01:00,360 --> 00:01:07,440
walk, which will be most of the time, I have got the help there to be pushed as and when

9
00:01:07,440 --> 00:01:14,360
I'm needing to be. It's going to be nice to see some of the sites. We're going to be going

10
00:01:14,360 --> 00:01:21,760
all through embankment around. Genuinely, I really, really can't wait. Just do that

11
00:01:21,760 --> 00:01:26,680
little bit. As I said, I've had so much help, certainly at the start of finding out that

12
00:01:26,680 --> 00:01:34,360
MS was possible for me. They gave me a lot of help, a lot of advice, and I'll be honest

13
00:01:34,360 --> 00:01:40,400
with you, it's massively appreciated. I mean, this sort of charity stuff, charity walks

14
00:01:40,400 --> 00:01:48,000
and things, something I've never actually done before. But I think to give something

15
00:01:48,000 --> 00:01:57,160
back is absolutely what I want to do. As I say, I'm not afraid to admit it, I really

16
00:01:57,160 --> 00:02:05,960
am looking forward to it. Just be nice to do something. Do something. I know it's only

17
00:02:05,960 --> 00:02:12,640
a small amount, but we've raised a little bit of money. Not a huge amount, but not a

18
00:02:12,640 --> 00:02:23,520
tiny amount either, which again goes to the MS Society for them to put towards things

19
00:02:23,520 --> 00:02:32,240
like looking into new potential treatments and looking into why MS happens, how it happens,

20
00:02:32,240 --> 00:02:40,800
all that sort of stuff. So just that small amount that we can put in is there able to

21
00:02:40,800 --> 00:02:55,000
help everyone with this condition. Hopefully, hopefully one day they can find a way of dealing

22
00:02:55,000 --> 00:03:06,840
with it. I'm not a scientist at all. I'm just hopeful that at some point in the future,

23
00:03:06,840 --> 00:03:17,920
there can be more done to help people that have MS. I'm not going to use the term sufferers

24
00:03:17,920 --> 00:03:23,720
because me personally, I don't want to be known as a sufferer. I'm going to use the

25
00:03:23,720 --> 00:03:34,640
term fighter because yeah, we have this condition. Yeah, it's absolutely horrible and quite honestly,

26
00:03:34,640 --> 00:03:44,600
it makes life difficult. But you know what? We wake up every day, pains in places people

27
00:03:44,600 --> 00:03:52,480
wouldn't realise. And yeah, there's days where again, I wake up, I can't speak for myself

28
00:03:52,480 --> 00:04:04,240
here, but I'll wake up and I'm feeling absolutely awful. But you know what? I will put myself

29
00:04:04,240 --> 00:04:09,760
out there and I will continue to go, I will fight through all the pains, the horrible

30
00:04:09,760 --> 00:04:19,200
feelings, the aches, the tiredness and I will continue going because without continuing

31
00:04:19,200 --> 00:04:29,240
to go, it's quite scary actually where I'd be. So for me personally, I refer to myself

32
00:04:29,240 --> 00:04:41,600
as a fighter and I personally, anyone that's suffering from MS or any kind of condition

33
00:04:41,600 --> 00:04:49,320
that people don't actually realise what you're going through, you're a fighter. One way or

34
00:04:49,320 --> 00:04:56,760
another, you are a fighter. Even on your worst day, the fact that you've woken yourself up

35
00:04:56,760 --> 00:05:06,040
shows that you're fighting. Keep doing so because this condition, again, I go back to

36
00:05:06,040 --> 00:05:13,160
talking to myself, this condition will never define me. It will never define who I am.

37
00:05:13,160 --> 00:05:23,880
And I think as a community, and I will say I'm on lots of different social medias now,

38
00:05:23,880 --> 00:05:31,600
and the MS community is a really positive place, I'll be honest with you. It's ridiculous

39
00:05:31,600 --> 00:05:39,560
how good and how positive people are. Even on their worst day, if you post up somewhere

40
00:05:39,560 --> 00:05:46,000
about how much you're struggling, there's always, always numerous people that are prepared

41
00:05:46,000 --> 00:05:51,160
to jump in and say to you, keep going, keep your chin up, you can get through this, you

42
00:05:51,160 --> 00:06:02,600
can do this. As a community, we genuinely, I don't want to use the word lucky, but we

43
00:06:02,600 --> 00:06:09,640
are a community that supports each other, we're a community that actually cares, we're

44
00:06:09,640 --> 00:06:15,280
a community that is always there for one another. And I know I've only been in this community

45
00:06:15,280 --> 00:06:21,640
for a tiny amount of time, a really small amount of time. But actually, I can honestly

46
00:06:21,640 --> 00:06:31,520
say, each and every person that I've had communication with, you're fantastic. Simple as that, you're

47
00:06:31,520 --> 00:06:37,560
fantastic. Because no matter what any of us are going through, we always seem to be there

48
00:06:37,560 --> 00:06:44,800
to support each other. And that's incredible. That is genuinely incredible. And each and

49
00:06:44,800 --> 00:06:56,120
every one of us should be proud. Genuinely believe that. Now, what I have done, and I

50
00:06:56,120 --> 00:07:04,240
don't believe I've read this on a previous podcast, a very short time ago, literally

51
00:07:04,240 --> 00:07:12,840
a few days ago, I actually wrote a poem to my MS. And I'd like to share that poem with

52
00:07:12,840 --> 00:07:21,080
you, if I can. And trust me when I tell you, I really am not a poet. I mean, this is the

53
00:07:21,080 --> 00:07:27,520
sort of thing that I don't really do. As I say, this whole thing podcasting, social

54
00:07:27,520 --> 00:07:36,200
media, poetry now, it's all incredibly new to me. It's something I'd never really thought

55
00:07:36,200 --> 00:07:44,880
I would ever do. But you know what? It's helping massively. It really is helping. And it sort

56
00:07:44,880 --> 00:07:53,440
of clears my brain a bit. But let me share this poem with you. And again, I'm hoping

57
00:07:53,440 --> 00:08:00,680
in a way, this poem maybe can make people think for themselves a little bit, a little

58
00:08:00,680 --> 00:08:11,160
bit positively about the fight they're going through. Okay. MS. So you decided to pick

59
00:08:11,160 --> 00:08:18,920
me. Now we get this life together. First it was the numphi, then the legs. Then you try

60
00:08:18,920 --> 00:08:26,680
to make friends with a hug. I've had better hugs chucking drunks out of the pub. You make

61
00:08:26,680 --> 00:08:35,600
me stumble. You make me fall. You make me forget. You took a hobby from me. Well guess

62
00:08:35,600 --> 00:08:44,320
what? I replaced that with three. I do the garden. I'm going back to guitar. I even now

63
00:08:44,320 --> 00:08:53,600
do the pod. So understand this, MS. Throw whatever you want my way. Some days you'll

64
00:08:53,600 --> 00:09:02,080
get your way. But remember this, my friend. This warrior will never quit. The fire inside

65
00:09:02,080 --> 00:09:11,480
still burns and this life is mine. This warrior will never quit. I just thought I'd like to

66
00:09:11,480 --> 00:09:20,560
share that with you all. As I say, I'm not a poet. It's just something. I was sat there

67
00:09:20,560 --> 00:09:25,240
and all of a sudden these thoughts went through my brain and I thought, do you know what?

68
00:09:25,240 --> 00:09:31,880
I actually want to sit down and put these on paper. I'm really pleased I did. Because

69
00:09:31,880 --> 00:09:42,140
okay, it might not be the best poem in the world, but what it is, it's my thoughts. It's

70
00:09:42,140 --> 00:09:49,880
my way of saying to the MS, well again, as it says in the poem, throw what you want my

71
00:09:49,880 --> 00:10:02,800
way. Because I am going to keep going. I am going to keep fighting. And me personally,

72
00:10:02,800 --> 00:10:16,480
I am never ever going to give in. So all I can do now is put my chin in the air, pin

73
00:10:16,480 --> 00:10:26,920
my shoulders back and be proud as a person that I am. And to everyone else out there

74
00:10:26,920 --> 00:10:35,880
that is going through similar, you can do this. You really can do it. Yes, there's going

75
00:10:35,880 --> 00:10:51,480
to be bad, really, really bad days. But the bad days do not last. You absolutely can be

76
00:10:51,480 --> 00:11:02,520
positive. And me personally, that's how I intend to continue on. You know, even talking

77
00:11:02,520 --> 00:11:10,160
to you all now, I'm sat here and I've got, I've taken my medicated painkillers that I've

78
00:11:10,160 --> 00:11:20,680
been given. I'm sat here, I've got pains that are not particularly nice. Brain fog is a

79
00:11:20,680 --> 00:11:26,840
big issue. Literally, I'll put my phone down and within 20 seconds of me turning round,

80
00:11:26,840 --> 00:11:37,120
I've forgot where I put my phone. It's a little bit frustrating. But do you know what? That's

81
00:11:37,120 --> 00:11:48,440
fine. If that's what it wants to do, that's fine. Because ultimately, again, as it says

82
00:11:48,440 --> 00:11:55,200
in there, this life is mine. It doesn't belong to the MS, it belongs to me. And I'll find

83
00:11:55,200 --> 00:12:08,600
a way to carry on, to keep smiling, to keep being happy. Now, what I will say is I've

84
00:12:08,600 --> 00:12:15,880
actually joined TikTok, which I actually said I was never going to do. But I was given some

85
00:12:15,880 --> 00:12:22,880
advice from a friend. And yeah, I'm quite pleased I did. I mean, if you wanted to come

86
00:12:22,880 --> 00:12:35,040
over and see me on TikTok, my name on there is Mike's underscore MS underscore journey,

87
00:12:35,040 --> 00:12:43,200
the same as it is on Instagram, and the same as it is on YouTube. Please, by all means,

88
00:12:43,200 --> 00:12:52,000
come over, add me on there. I do try to be as easy to talk to as possible on there. If

89
00:12:52,000 --> 00:12:59,840
you comment on anything or whatever else, you will get a reply. Because again, it doesn't

90
00:12:59,840 --> 00:13:05,560
hurt. It doesn't hurt for me to say hello. And I'd like to say hello. Because everyone

91
00:13:05,560 --> 00:13:16,160
listening to me doing my podcast, actually, you're doing me a favor by giving me people

92
00:13:16,160 --> 00:13:31,680
to talk to, giving me ways of getting my story out there in the hope that my story can encourage

93
00:13:31,680 --> 00:13:37,640
anyone else to put their story out. Because again, for me personally, talking about all

94
00:13:37,640 --> 00:13:47,000
this stuff is incredibly helpful. Now I will say one of the things we did over the weekend,

95
00:13:47,000 --> 00:13:54,760
Lisa she says to me, she says, let's try one of these challenges. Okay, not really my sort

96
00:13:54,760 --> 00:14:01,040
of thing. But okay, we'll have a laugh. So she suggested this challenge called the sprite

97
00:14:01,040 --> 00:14:10,920
challenge. And what you had to do was drink a bottle of sprite without burping. Sounds

98
00:14:10,920 --> 00:14:18,120
a bit silly. But yeah, we had a go. And I'll be honest with you, it was actually quite

99
00:14:18,120 --> 00:14:26,560
good fun. And I've put the video up on my YouTube. It's also on my TikTok. So by all

100
00:14:26,560 --> 00:14:32,440
means come and have a watch. It is just for a bit of fun. And yeah, it was fun. I thoroughly

101
00:14:32,440 --> 00:14:40,320
enjoyed it. So yeah, please come and have a look and see that I'm not just this this

102
00:14:40,320 --> 00:14:47,960
fella that talks about this stuff. I'm actually quite a fun person. Because I am. I would

103
00:14:47,960 --> 00:14:55,720
always try and be fun and entertaining. So I think that's probably about it for today.

104
00:14:55,720 --> 00:15:03,160
It's been a bit of a ramble. But yeah, hopefully, hopefully you enjoy what you're listening

105
00:15:03,160 --> 00:15:12,360
to. And I'd like to think I'm going to maybe see you or talk to you all again soon on one

106
00:15:12,360 --> 00:15:19,240
of the social media accounts. Well, you have a great day. And I will speak to you again

107
00:15:19,240 --> 00:15:26,240
soon. Bye bye.

