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Hello and welcome back to My MS Journey.

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Well today on the show I think there's only really one place to start which is talking

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about my treatment.

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I had my treatment, it was on Tuesday of this week.

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I'm going to be honest, that's six months and I've flown by.

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It really really has.

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But yeah, we're back again with the treatment, starting from a second year now on Ocrevus.

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In all fairness, it really has flown by.

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It's got to the point where I knew I was needing the treatment, I knew it was coming up, my

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body was getting to a point where to be honest it was telling me it's ready to go.

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I was seeing quite a big increase in issues that I've got in terms of pains coming up.

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I've had quite a bit of an increase, I'm going to be honest, quite a bit of an increase in

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terms of balance.

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My balance has not been very good.

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It's been on and off struggling to stay on my feet at times if I'm totally honest.

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So yeah, I'll be honest, I knew it was time, my body knew it was time.

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So MRI scan did get completed, that got done thankfully.

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I'm going to talk about that a little bit later in the show.

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The blood test results came back.

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Blood test results were absolutely fine except I'm apparently quite low on vitamin D. For

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me that's an excuse to just go out in the sun.

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So if winter wants to go away and bring on a decent summer, that's good.

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I'll take that because let's be totally fair, I'm a summer person, I love the summer, I

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love sunshine.

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So some natural vitamin D will do me quite nicely.

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But apart from that, everything was absolutely fine and we was good to go.

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So again, Tuesday morning, it was a very, very early get up.

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My treatment was due to start at 8.30 in the morning.

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So I had to get across.

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It's about a 45 minute drive, give or take.

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Obviously I don't drive, so my dad took me, bless him.

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We got there.

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We got there.

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And I'm going to do a bit of a conversation about how the treatment actually went, what

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happened before, what happened after, that sort of thing.

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Because in all fairness, I think it's quite important to talk about that type of thing.

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Because let's be fair, I knew nothing about what to expect when this all started with

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myself and the treatment was initially planned in.

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So I think talking about that, it could help.

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It could be quite beneficial to some.

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So when I got into the room, one of the biggest things that has to be done is listening to

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your breathing.

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So I got to sat down, my breathing got listened to.

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It became quite apparent pretty quickly that there was a bit of an issue, not with my breathing,

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nothing like that.

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That was all perfectly fine.

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Blood pressure check, come back.

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That was okay.

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But I've had a lump on my back since I was a kid, genuinely since I was a teenager, this

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lump's been there.

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And the MS nurse, obviously while she's checking the breathing, she had to have my shirt up.

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So she's seen this lump on my back.

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And she said she's noticed it previously, but never to the same extent.

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It looked bigger.

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So they called a doctor in who had to have a look because again, let's be totally honest

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on a treatment like ocrevas, you've got to be careful.

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You've got to be careful because there is potential side effects that are quite, I'm

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going to use the word frightening, but I don't mean that to come across in the terms of scaring

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anyone, because at the end of the day, there's always potential side effects, no matter what

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treatment you're on.

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And there is no guarantees that that's going to happen.

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It's all just in case.

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But the doctor came, he's checked the lump on my back.

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I've got one on my stomach, a couple on my arm and whatever else.

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It's just fatty tissue.

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Let's be totally honest.

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It's just fatty tissue.

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But the doctor had to come, he had to check it.

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It's better safe than sorry.

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He's had a look and he said, do you know what?

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He thinks it's fine.

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He doesn't think it's anything serious.

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So treatment could commence.

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Now what they have done is referred me to dermatology to get the lump checked properly.

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As I say, they do not suspect anything nefarious.

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It's probably the best word I can use.

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They don't expect anything like that.

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It is expected that it's just fatty tissue.

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The amount of time it's been on my body and it's never been an issue.

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It's just a case of because it looked a bit bigger, it's got to be checked.

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Sensible, sensible, not a problem.

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But at done, we managed to get everything started.

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You know, they put the antihistamine through me, steroid, all that sort of stuff.

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And we got going on the actual treatment itself.

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Now for me, pretty standard is six hours.

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Start to finish about six hours, which I'll be fair, it's a long day.

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It's a really, really long day.

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You know, you're sitting in one room, you've got a drip in your arm, a cannula, that sort

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of thing, and you can move your arm.

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Let's be fair.

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I mean, I'm lucky because it was in my hand.

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I had movement of my arm, but I tend to try and stay as still as possible purely and simply

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because what I don't want to do is I don't want to start moving around and the alarm

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starts sounding because the drip's not getting through properly.

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So I do.

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I try and as much as I can to sit as still as possible and whatever else.

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So we got going.

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We got cracking and I'll be totally fair.

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I am lucky when it comes to treatment because the MS team, the infusion team are brilliant.

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I'll be honest, they're very, very friendly, very polite.

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Have a good chat.

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You know, they're just nice people.

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And again, it helps that other MSers that come in for their treatment, they sit there

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and we have a chat.

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We have a natter and just, you know, for want of a better term, just chew the fat for a

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little while, you know, just have a conversation, see how everyone's doing and try and have

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a laugh when we can have a laugh and whatever else.

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So again, that all happened.

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It was brilliant.

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I'll be totally fair.

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As much as you shouldn't enjoy a day like that, it's relatively enjoyable.

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Relatively.

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But yeah, I mean, once, once the initial drip had gone through, we then started on the Ocralusumab

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Ocrevus.

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And again, I sort of have this, this bit of an issue that seems to come up where part

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way through I'll have a little reaction to it.

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And it is only a little reaction.

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Don't get me wrong.

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It's nothing major.

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It is nothing major.

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Anyone that's seen me on my social media or on my YouTube channel or anything like that,

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will see that I don't have a lot of hair.

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Personal choice.

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I just, it's easier every morning.

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But it also makes it easier.

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I'm going to be fair.

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When this treatment's going on, I tend to get a little bit of a rash on the top and

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at the sides of my head.

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And that happened again.

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It happened again.

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So they just sort of slowed the, slowed the drip down a little bit.

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Didn't increase the speed.

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Give my body a chance to try and, try and overcome it, which it did.

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As quick as it started, it stopped.

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Nothing major.

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There's nothing to be frightened of with that at all.

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It is just a case of your body saying, hang on, that's not supposed to be going in there.

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Let's, let's try and fight back a little bit.

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But yeah, it sorted itself out and managed to, managed to right itself, which was nice.

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But again, with regards to, to that, it's one of those things whereby, from my point

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of view, at least then I can feel it's doing something.

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I'll be honest.

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I actually don't mind that reaction.

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I'll be honest.

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I don't mind it because I can feel that it's doing what it's supposed to do.

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If that makes any sense at all, it's a bit of a weird thing to say.

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I believe me, I understand that, but it just makes that a little bit of sense.

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But yeah, once that was done, you know, we got to the end of the, the ocaravus and then

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they flush through, which again, doesn't take long at all.

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Not a problem.

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Not a problem at all.

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All in all, I'm going to be totally fair.

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The treatment itself for me, it goes quite smoothly at this point.

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I've got wood in front of me.

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I've got my wooden desk.

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I'm touching wood just to make sure that that continues that manner.

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I am not trying to tempt fate.

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Wooden desk, wooden desk.

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So everyone can see it's out there for the whole world.

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Wooden desk.

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There we go.

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But anyway, yeah, I mean, it tends, tends to go quite well.

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Now, when it was all said and done, and I'm going to be totally honest, for me personally,

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I do find the day, it goes relatively quickly.

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As I say, you've got three parts to the treatment itself.

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You know, you've got part one, which is where you have your, your steroids, your antihistamine

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put through you.

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You have the ocaravus as part two, and then you have the flush as part three, which is

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fine.

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You know, perfectly fine.

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It, it all makes the treatment what it is.

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But it's also one of those where actually, you know, things are being done properly.

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And you're aware what's going on, why it's going on and how it's going on.

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And this is the whole point.

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Like I say, I'm very, very lucky being as the drip was in my hand this time.

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I had a bit of movement.

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Like I say, I do try my best to stay still.

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I want to be a good boy.

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I mean, tea, coffee, biscuits.

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There's all that stuff that's available to you when you sat there.

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When I go for my treatment, tea, coffee, biscuits, you want them, not a problem.

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Right there for you.

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Not a problem at all.

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Now one of the big things I will say, if you're due to start treatment, take some entertainment

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with you.

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Take entertainment with you that you can use to keep yourself going.

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Because as I say, I am lucky.

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I've got the art of conversation that I can have.

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It's not always available to everyone and it is a long day.

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It is very much a long day.

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You know, you sat down in a chair for many hours.

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Again, I can only talk ocrevus because it's the only treatment I've had and it's the only

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treatment available to me.

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But you sat.

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You need to keep your brain ticking over a little bit.

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Now I broke my laptop screen so I couldn't take my laptop with me.

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But I had my phone with me and I even took a book.

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And I did.

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I sat, read some of my book.

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It was brilliant.

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I'll be totally straight.

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I actually got through a lot more of it than I thought I would.

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And again, it just passed the time.

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It made things that little bit easier, made it a bit more simple, made me feel as though

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everything was, again, for want of a better term, as it should be.

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Because again, with the other people that are in the room with me, being on ocrevus,

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I have to have a nurse with me at all times.

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But there's other MSers in there having other treatments, not ocrevus.

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So they kind of, they're in and out, which is nice because you're not sat there a whole

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time talking to one person because I reckon they'd get bored with me more than anything

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else.

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I would.

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I'd get bored with me.

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But it is, it's the sort of thing that can make for an interesting day.

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But again, you need to take entertainment with you, you need to take something with

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you that can help pass the time.

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Or sleep.

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Highly recommend sleeping.

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I'm not guaranteeing, but I think there might have been a couple of occasions I might have

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dropped off.

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Not certain, not for long, but there may have been the odd minute or two here and now.

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Yeah, it's very, very possible.

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But anyway, so again, that was the chair.

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It is, it's the treatment day itself, if all goes well, can be, I'm going to use the word

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comfortable, but it isn't always going to be in that manner.

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Let's be totally fair.

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But again, it's one of those that's got to be done.

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Now, the other thing I do want to talk very briefly about in terms of treatment is something

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that I'll be honest with you, is quite important to me personally.

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And doing what I do on social media, whatever else.

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Something that gets talked about quite a bit is miracle cures for MS.

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There is no such thing.

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It just isn't.

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There is no such thing.

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Now, people talk about like the HSCT treatment.

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It's not a cure.

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It's a treatment and it will work for some, it won't work for others.

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One of my most, one of my biggest annoyances is when it said about parasite cleanses to

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cure MS, talking about how MS is a parasite.

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It's not.

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It just isn't.

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That's a lie.

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If anyone tells you that, they don't know what they're talking about.

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They're not this miracle doctor.

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They haven't got this doctor that has cured them all of a sudden of multiple sclerosis.

246
00:15:59,040 --> 00:16:02,640
No, no, no, no, no, no, no, no, no.

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No, they're lying.

248
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Or they know somebody with relapsing remitting MS and at the current time that person is

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in remission.

250
00:16:12,120 --> 00:16:14,960
Now, let's be totally fair.

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Just because somebody's in remission does not mean they're going to have no symptoms.

252
00:16:21,760 --> 00:16:25,560
It's very likely they will have, but there are people that won't.

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It's the joy, the condition being so different for each and every person.

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But it is very much a case of when people tell you these stories, they are lying to

255
00:16:35,520 --> 00:16:40,960
you or they are just not aware of what they're talking about.

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And it is quite dangerous.

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I'm going to be fair.

258
00:16:44,520 --> 00:16:51,800
It is quite dangerous because not enough is known about MS in the first place.

259
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It needs to be talked about more worldwide.

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Knowledge needs to be increased, which again is why I do what I do and I am not the font

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00:17:03,040 --> 00:17:04,040
of all knowledge.

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Absolutely not a chance.

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In fact, to say I've probably got less than a 2% knowledge of MS, even that's probably

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00:17:13,640 --> 00:17:16,400
overstretching it a bit.

265
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I only can talk about what I deal with in terms of the condition because I'm not a medical

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practitioner.

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I'm not a doctor.

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I'm never going to be.

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I'm just a fella that has been chosen by this condition to share a life together.

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Appreciate it.

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Honestly, I know.

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I know I really know.

273
00:17:43,360 --> 00:17:44,360
I don't appreciate it.

274
00:17:44,360 --> 00:17:47,360
In fact, MS can take a walk.

275
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It's probably about the fairest way I can say it.

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Let's be honest.

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Anyway, back to the treatment aspect.

278
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It is very much a case of for my point of view.

279
00:18:07,480 --> 00:18:12,360
I am hoping I'm hoping the treatment can do what it needs to do and that's just slow the

280
00:18:12,360 --> 00:18:15,720
progression because that is all the treatment does.

281
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It slows the progression.

282
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Doesn't do anything else.

283
00:18:19,240 --> 00:18:21,600
It just does that one thing.

284
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Just saying that again, it just slows progression.

285
00:18:26,040 --> 00:18:29,640
Now again, I'm on ocrelizumab, ocrevas.

286
00:18:29,640 --> 00:18:32,320
It's the only treatment available to me.

287
00:18:32,320 --> 00:18:34,600
There is no other from what I'm told.

288
00:18:34,600 --> 00:18:35,600
Is that or nothing?

289
00:18:35,600 --> 00:18:37,960
But there is plenty of other treatments.

290
00:18:37,960 --> 00:18:39,120
I won't talk about them.

291
00:18:39,120 --> 00:18:41,280
I've got no experience of them.

292
00:18:41,280 --> 00:18:46,760
I've got friends that are on them and they are fantastic at what they talk about with

293
00:18:46,760 --> 00:18:50,080
regards to it.

294
00:18:50,080 --> 00:18:58,600
Now I think we've done enough in terms of my treatment except there's one more part

295
00:18:58,600 --> 00:19:00,520
I've got to talk about and this is quite funny.

296
00:19:00,520 --> 00:19:01,520
I'm going to be honest.

297
00:19:01,520 --> 00:19:02,520
This is quite funny.

298
00:19:02,520 --> 00:19:03,520
Tuesday evening.

299
00:19:03,520 --> 00:19:09,040
I'm at home after treatment.

300
00:19:09,040 --> 00:19:15,760
The tired aspect just kind of weaned itself away just a little tiny bit.

301
00:19:15,760 --> 00:19:16,760
Oh wow.

302
00:19:16,760 --> 00:19:19,120
I got hyper.

303
00:19:19,120 --> 00:19:28,200
We sat eating dinner and I kept beeping Lisa's nose just sort of just gently just going boop.

304
00:19:28,200 --> 00:19:29,200
She's laughing.

305
00:19:29,200 --> 00:19:30,200
The kids are laughing.

306
00:19:30,200 --> 00:19:31,640
I just couldn't help it.

307
00:19:31,640 --> 00:19:33,640
I just was so hyper.

308
00:19:33,640 --> 00:19:34,640
It was unreal.

309
00:19:34,640 --> 00:19:36,640
I can only imagine maybe it was the steroids.

310
00:19:36,640 --> 00:19:38,640
I don't know.

311
00:19:38,640 --> 00:19:42,280
But genuinely I was in the most giggly funny mood ever.

312
00:19:42,280 --> 00:19:43,280
It was brilliant.

313
00:19:43,280 --> 00:19:45,720
I really did enjoy it.

314
00:19:45,720 --> 00:19:47,000
I'm going to be fair.

315
00:19:47,000 --> 00:19:48,320
It was great.

316
00:19:48,320 --> 00:19:54,560
I couldn't stop myself giggling and I'll take that.

317
00:19:54,560 --> 00:19:58,160
I'll take that quite happily because let's be fair.

318
00:19:58,160 --> 00:20:02,200
You go through that treatment if you can come out the end of it at the end of the day with

319
00:20:02,200 --> 00:20:05,840
a smile on your face and laughing and joking.

320
00:20:05,840 --> 00:20:08,680
Yeah that's good.

321
00:20:08,680 --> 00:20:10,600
It's just the way forward.

322
00:20:10,600 --> 00:20:14,280
For me that that's what I like.

323
00:20:14,280 --> 00:20:17,040
But yeah I just wanted to put that one out there.

324
00:20:17,040 --> 00:20:20,960
You know it's rude not to.

325
00:20:20,960 --> 00:20:29,960
The next thing I want to talk about is the kind of things I've been dealing with in the

326
00:20:29,960 --> 00:20:36,440
last couple of weeks.

327
00:20:36,440 --> 00:20:39,240
And some of them have been quite difficult.

328
00:20:39,240 --> 00:20:40,400
I'm going to be fair.

329
00:20:40,400 --> 00:20:43,160
Some of them really have been quite difficult.

330
00:20:43,160 --> 00:20:48,040
I've been getting a lot of pain when I'm doing things.

331
00:20:48,040 --> 00:20:51,000
Now it doesn't matter what I'm doing.

332
00:20:51,000 --> 00:20:55,200
It could be the most minimal thing in the world.

333
00:20:55,200 --> 00:20:56,680
As a for instance yesterday.

334
00:20:56,680 --> 00:21:04,760
I came out in the garden and as I've mentioned previously in previous shows I love gardening.

335
00:21:04,760 --> 00:21:10,240
It's only really been since being diagnosed with MS that I've got into it but I love gardening.

336
00:21:10,240 --> 00:21:14,800
Now I bought some bulbs a few weeks ago for some flowers I wanted to plant but they weren't

337
00:21:14,800 --> 00:21:18,040
due to be planted until now.

338
00:21:18,040 --> 00:21:25,520
And I went I sat on the grass and just with a little trowel and nothing major not with

339
00:21:25,520 --> 00:21:31,120
a fork not with a spade nothing just with a little trowel a little hand trowel just

340
00:21:31,120 --> 00:21:34,760
dug the holes to plant the bulbs in.

341
00:21:34,760 --> 00:21:40,840
Now I've got to be honest fatigue recently has been kicking my bum something right and

342
00:21:40,840 --> 00:21:43,400
it really really has.

343
00:21:43,400 --> 00:21:48,920
And it really grabbed hold of me really grabbed hold of me and again this sort of comes back

344
00:21:48,920 --> 00:21:49,920
to last couple of weeks.

345
00:21:49,920 --> 00:21:53,800
I've been dealing with fatigue quite a lot on top of pains.

346
00:21:53,800 --> 00:22:01,080
Now it was very much a case I probably did five minutes work.

347
00:22:01,080 --> 00:22:06,120
It probably wasn't even that if I'm honest probably five minutes work and I came back

348
00:22:06,120 --> 00:22:10,000
in the house and I was out like a light.

349
00:22:10,000 --> 00:22:15,760
I'm going to be totally honest I mean I was completely spark out on the sofa sleeping.

350
00:22:15,760 --> 00:22:17,240
I slept for hours.

351
00:22:17,240 --> 00:22:20,320
I'm going to be totally fair I slept for hours.

352
00:22:20,320 --> 00:22:24,120
Our Lisa and the kids didn't I don't know write stuff all over me because I would have

353
00:22:24,120 --> 00:22:27,200
done I'm going to be fair I would have done.

354
00:22:27,200 --> 00:22:32,480
But yeah I mean I was completely out like a light.

355
00:22:32,480 --> 00:22:39,440
And again it's fatigue you know fatigue has grabbed hold of me somewhat rotten lately

356
00:22:39,440 --> 00:22:47,840
and even last night I mean I did I slept like a log it was ridiculous because tiredness

357
00:22:47,840 --> 00:22:51,200
doesn't quite marry up it's not tiredness.

358
00:22:51,200 --> 00:22:59,000
I was completely and totally fatigued and it was only till this morning that I sort

359
00:22:59,000 --> 00:23:05,200
of I still feel a bit a bit ropey now but nothing major.

360
00:23:05,200 --> 00:23:10,920
But it was very much just the tiniest tiniest amount of work being done.

361
00:23:10,920 --> 00:23:19,760
It exhausted me absolutely exhausted me which I'm kind of I need to find a way around it.

362
00:23:19,760 --> 00:23:24,360
I do need to find a way around it and I'm wondering after being told after the blood

363
00:23:24,360 --> 00:23:33,040
tests that my vit D level is low my vit D level is 23 which apparently 20 is considered

364
00:23:33,040 --> 00:23:35,000
very low.

365
00:23:35,000 --> 00:23:36,560
So I'm only just above that.

366
00:23:36,560 --> 00:23:44,200
So I'm hoping by taking some some vit D tablets which I have gone and got although I do need

367
00:23:44,200 --> 00:23:49,320
the doctors to look into that because you can only buy a certain amount over the counter

368
00:23:49,320 --> 00:23:55,080
and according to the pharmacist I'm probably going to need significantly more than I'm

369
00:23:55,080 --> 00:23:59,280
able to buy over the counter.

370
00:23:59,280 --> 00:24:05,400
But hopefully when the vit D level creeps up a little bit hopefully my energy will also

371
00:24:05,400 --> 00:24:13,160
do so because again vit D does to an extent it does determine energy levels and things.

372
00:24:13,160 --> 00:24:18,000
But again that's just one of the many things I've been going through recently pains in

373
00:24:18,000 --> 00:24:23,680
my legs pains in my legs have been absolutely awful I'm going to be honest with you at times.

374
00:24:23,680 --> 00:24:27,320
I mean for instance coming down the stairs a little while ago I went indoors to go and

375
00:24:27,320 --> 00:24:34,760
get a wire to plug my sound board into my laptop so I can record this episode and as

376
00:24:34,760 --> 00:24:40,960
I'm coming down the stairs even the smallest amount of pressure on my right foot it felt

377
00:24:40,960 --> 00:24:47,160
like I twisted my ankle very nearly made me fall down the stairs I'm going to be honest.

378
00:24:47,160 --> 00:24:54,400
Lisa actually heard me yelp because it really did hurt quite a lot there's no ifs buts and

379
00:24:54,400 --> 00:24:58,200
maybes it really was quite painful.

380
00:24:58,200 --> 00:25:04,240
But again I'm having quite a few twitches in my legs as well I'll just be sat and my

381
00:25:04,240 --> 00:25:11,920
legs are just shaking or twitching it's becoming quite quite regular and again I'm wondering

382
00:25:11,920 --> 00:25:18,440
if that was the build up to needing the next treatment might be might be not I am making

383
00:25:18,440 --> 00:25:23,280
no promises either way on that one time will tell.

384
00:25:23,280 --> 00:25:28,940
But again it's that sort of thing you know I've had that stuff going on.

385
00:25:28,940 --> 00:25:37,960
In terms of the hug the MS hug yeah my hug has been absolutely awful I'm going to be

386
00:25:37,960 --> 00:25:45,000
totally straight I mean it feels like I've got a python around me and just squeezing

387
00:25:45,000 --> 00:25:52,520
and squeezing and squeezing at the moment my MS hug is about the worst it's ever actually

388
00:25:52,520 --> 00:26:01,120
been I'm going to be fair even to the point if I try and take a deep breath it doesn't

389
00:26:01,120 --> 00:26:10,600
feel right it doesn't feel right it feels too restricted in and around my rib cage area.

390
00:26:10,600 --> 00:26:15,440
So again I'm monitoring it I'll keep an eye on it because again I've got to see what happens

391
00:26:15,440 --> 00:26:22,200
now I've had that treatment as to is it going to start sort of slowing things down a little

392
00:26:22,200 --> 00:26:28,280
bit is it that I don't know I don't know again it could well be because I've to an extent

393
00:26:28,280 --> 00:26:35,280
taken myself off painkillers I do take a painkiller I won't name that on here I believe I have

394
00:26:35,280 --> 00:26:45,800
previously but I take it just before bed which helps me sleep when it kicks in which is nice

395
00:26:45,800 --> 00:26:53,400
because again coming back round again one of the things I've been dealing with is when

396
00:26:53,400 --> 00:26:59,640
I'm laying down at night in bed my legs don't want to stay still it's like they want to

397
00:26:59,640 --> 00:27:05,160
go running in the middle of the night it's as if they don't remember I actually can't

398
00:27:05,160 --> 00:27:12,400
go running but that's my legs and my body for you but again it's the sort of thing that

399
00:27:12,400 --> 00:27:20,200
I'm dealing with currently which I'm kind of getting a little bit used to I'll be fair

400
00:27:20,200 --> 00:27:26,280
I'm getting a little bit used to it's not nice I'd be honest with you I could do with

401
00:27:26,280 --> 00:27:31,840
it taking a back seat for a while but that's not gonna happen we know that we know it's

402
00:27:31,840 --> 00:27:41,640
not gonna happen but it would be nice again the one thing I've been this way on I'm gonna

403
00:27:41,640 --> 00:27:47,240
be totally fair here the one thing I'm really waiting for is the results from my MRI scan

404
00:27:47,240 --> 00:27:58,080
because actually I'm massively interested and intrigued to know what is potentially

405
00:27:58,080 --> 00:28:05,680
going on is there anything new what's going on in terms of progression is there any progression

406
00:28:05,680 --> 00:28:14,320
what are my current lesions looking like just something that's all I'm waiting for I just

407
00:28:14,320 --> 00:28:23,640
want something to look at and say let's try not knocking into me boom arm just something

408
00:28:23,640 --> 00:28:30,720
to look at and say okay this is what's going on I can understand why X Y or Z things are

409
00:28:30,720 --> 00:28:38,000
going and happening I do keep hitting my wires and stuff I've got to try and figure out a

410
00:28:38,000 --> 00:28:42,040
new way of sorting the wires out the boom arms great I'm gonna be honest it really does

411
00:28:42,040 --> 00:28:51,680
make things so much easier but there's other bits I've got to learn anyway again from the

412
00:28:51,680 --> 00:29:01,480
point of view of the things going on memory issues and I'm gonna say this the memory issues

413
00:29:01,480 --> 00:29:09,600
at times are actually really really upsetting at the moment I'm forgetting stuff that is

414
00:29:09,600 --> 00:29:16,840
not necessary to forget so that's another reason I want to have a look because again

415
00:29:16,840 --> 00:29:21,560
the lesions on my brain is there anything going on there is a brain in there I know

416
00:29:21,560 --> 00:29:28,400
that I've seen it I've literally seen the results of the MRI scan previous that proved

417
00:29:28,400 --> 00:29:34,160
there's a brain I'm quite amazed I'm a little bit proud to know that exists and it's not

418
00:29:34,160 --> 00:29:42,120
a little mouse running around in its in its little wheel but either way either way that's

419
00:29:42,120 --> 00:29:46,880
probably enough in terms of talking about the things I've got going on there is a few

420
00:29:46,880 --> 00:29:54,920
more but we can do that another week can't we we really can what I want to talk about

421
00:29:54,920 --> 00:30:08,720
now is I want to talk a little bit positively I want to explain what the story is in terms

422
00:30:08,720 --> 00:30:21,120
of this show and the company the the hosting site I use which is RSS.com and I'm going

423
00:30:21,120 --> 00:30:25,960
to be honest with you the the opportunity has come up for me to be an affiliate for

424
00:30:25,960 --> 00:30:34,800
them and I'm going to be totally honest I'm actually proud to do that for a simple reason

425
00:30:34,800 --> 00:30:44,960
I am somebody with no knowledge zero knowledge at all nothing technical about me in the slightest

426
00:30:44,960 --> 00:30:58,920
from moment one using RSS.com I was able to create a podcast and put it out to the world

427
00:30:58,920 --> 00:31:08,680
with zero knowledge zero knowledge and for me personally I think it's helped me in terms

428
00:31:08,680 --> 00:31:16,160
of my mental health I think it's helped others listening to me being able to talk the way

429
00:31:16,160 --> 00:31:22,360
I do and you know I've had messages on my website and whatever else that wouldn't have

430
00:31:22,360 --> 00:31:31,360
been possible if it wasn't for the fact it was so easy to use this website it has been

431
00:31:31,360 --> 00:31:41,480
easy every week it's easy I've a call to show I upload a show the transcript is always bang

432
00:31:41,480 --> 00:31:49,480
on and I don't do the transcript that's done by RSS.com they do it all and I don't have

433
00:31:49,480 --> 00:31:59,080
an issue genuinely genuinely something I really do strongly suggest if you've got time

434
00:31:59,080 --> 00:32:06,840
and you have something you want to talk about no I'm not saying it's got a BMS I'm really

435
00:32:06,840 --> 00:32:10,160
not if you've got something it don't matter what it is if you've got something you want

436
00:32:10,160 --> 00:32:18,320
to talk about you can create a podcast very easily and that podcast can go out on all

437
00:32:18,320 --> 00:32:26,480
different hosting sites networks and whatever else you know there's a simple little thing

438
00:32:26,480 --> 00:32:32,720
on this one whereby you can get it onto your your Amazons your Deezers your Spotify's your

439
00:32:32,720 --> 00:32:39,560
apples all of that sort of stuff is done at the click of a button it's easy and trust

440
00:32:39,560 --> 00:32:49,200
me if I can do it it's pretty easy to do because yeah honestly my technical skills are they

441
00:32:49,200 --> 00:32:55,640
leave a lot to be desired and that's it's an understatement I'll be totally fair and

442
00:32:55,640 --> 00:33:05,480
again I mean you can even do it set go straight on YouTube result or what it again the opportunity

443
00:33:05,480 --> 00:33:11,760
is there and for me personally and again I you know I'm into my second season now I've

444
00:33:11,760 --> 00:33:19,560
done 60 odd shows it just shows if you want to do this stuff there is ways of doing it

445
00:33:19,560 --> 00:33:29,720
there's it can happen it can happen coming away from that again talking positive the

446
00:33:29,720 --> 00:33:34,840
weather's changing it's getting a bit warmer I'm gonna be totally fair I'm sat out in my

447
00:33:34,840 --> 00:33:40,400
studio now and I had to turn the heating off hours ago because the heat coming in from

448
00:33:40,400 --> 00:33:49,520
the Sun outside it was warming up it was genuinely genuinely warm to stop the Sun coming in

449
00:33:49,520 --> 00:33:55,080
I've actually closed my blind which is just to the right hand side of me now because of

450
00:33:55,080 --> 00:34:02,920
how warm it is so again I'm gonna be getting on the gardening again now we're hoping to

451
00:34:02,920 --> 00:34:09,680
have a barbecue soon which would be nice because again I love a barbecue means I've been able

452
00:34:09,680 --> 00:34:14,800
to get out a bit more on my scooter which again for me is a big thing it's a positive

453
00:34:14,800 --> 00:34:23,720
thing because I love going out and about I love that opportunity to be individual if

454
00:34:23,720 --> 00:34:29,280
that makes sense you know if people are busy if family members are busy or whatever if

455
00:34:29,280 --> 00:34:34,640
I can get out on my own that's the sort of thing that puts a smile on my face I enjoy

456
00:34:34,640 --> 00:34:41,080
it you know I love doing it there's lots of things going on that I'm very very positive

457
00:34:41,080 --> 00:34:50,880
about I've mentioned it previously on TikTok got the MS roundtable chat that me and a couple

458
00:34:50,880 --> 00:34:58,760
of friends do it's fantastic you know what is so much fun we chat away we talk serious

459
00:34:58,760 --> 00:35:06,320
but we also have fun real genuine genuine fun and it's helping people you know we get

460
00:35:06,320 --> 00:35:11,400
messages afterwards where people saying to us thank you you've helped you know we've

461
00:35:11,400 --> 00:35:16,480
answered questions we've given that little bit of support it's the sort of thing it's

462
00:35:16,480 --> 00:35:24,200
the reason it's been created and it is well worth it it is genuinely well worth it the

463
00:35:24,200 --> 00:35:28,760
gaming stuff I'm doing I'm gonna be fair it's taking a while for it to get off the ground

464
00:35:28,760 --> 00:35:37,240
but I feel as though it will it will get there eventually fingers crossed so again there's

465
00:35:37,240 --> 00:35:44,560
all of this stuff all of this positive stuff MS takes a lot away from us it really does

466
00:35:44,560 --> 00:35:52,520
it takes a lot away from us we can take back we can take back and okay we might have to

467
00:35:52,520 --> 00:35:59,840
change our life a little bit in the way we do things but we can be positive we can be

468
00:35:59,840 --> 00:36:04,960
happy and we can for want of a better term stick two fingers up to the condition and

469
00:36:04,960 --> 00:36:15,000
say my life not yours I'll live it my way again that's just my thoughts on it but it's

470
00:36:15,000 --> 00:36:23,840
the way I like to think about it well I'm gonna call that a day for this show I'll be

471
00:36:23,840 --> 00:36:28,520
honest with you I've really enjoyed sitting here recording this one if you've got any

472
00:36:28,520 --> 00:36:34,880
questions in terms of the treatment aspect or whatever else again I won't talk medically

473
00:36:34,880 --> 00:36:42,040
but I will talk the practical ways of things if you've got questions go to my website Mike's

474
00:36:42,040 --> 00:36:48,760
MS journey.com yeah Mike's MS journey.com there is an email button there ping me over

475
00:36:48,760 --> 00:36:53,600
an email and I will try and get back in touch and see if I can see if I can offer any help

476
00:36:53,600 --> 00:37:03,760
or advice again we got this we can do this have a good week and I will speak to you real

477
00:37:03,760 --> 00:37:19,840
soon bye bye.