1 00:00:00,000 --> 00:00:05,000 Well hello, I hope everyone is doing okay. 2 00:00:05,000 --> 00:00:10,000 I've got to say this, I've got to get it straight out in the open. 3 00:00:10,000 --> 00:00:16,000 This is the 50th show. 50th. 5-0. 4 00:00:16,000 --> 00:00:23,000 I'm going to be totally honest, I am actually really quite proud that we've got this far with it. 5 00:00:23,000 --> 00:00:30,000 50 shows, honestly. Me, C-It, chatting around just randomly. 6 00:00:30,000 --> 00:00:35,000 50 shows. Anyway. 7 00:00:35,000 --> 00:00:41,000 So on the show today, what I really would like to talk about, 8 00:00:41,000 --> 00:00:46,000 I'm going to put this out straight away, I will apologise for any background noise or whatever else. 9 00:00:46,000 --> 00:00:53,000 I am sat in the shed slash studio slash whatever you want to call it room. 10 00:00:53,000 --> 00:00:59,000 I've left the door open because the weather out here is lovely, it's nice and cool. 11 00:00:59,000 --> 00:01:02,000 It's not hot, not cold, it's just beautiful. 12 00:01:02,000 --> 00:01:06,000 So do you know what, I kind of fancied a bit of breeze coming in. 13 00:01:06,000 --> 00:01:09,000 So yeah, I'm sat here with the door open. 14 00:01:09,000 --> 00:01:14,000 So big apologies for any noise in the background, but 15 00:01:14,000 --> 00:01:18,000 do you know what, it is what it is. 16 00:01:18,000 --> 00:01:23,000 So yeah, today really what I want to talk about 17 00:01:23,000 --> 00:01:33,000 is I want to sort of do a recap of everything that's gone on over the last bit of time. 18 00:01:33,000 --> 00:01:40,000 And then I'm going to tell a little story, anyone on my social media accounts will have heard this story, 19 00:01:40,000 --> 00:01:47,000 of something that happened to me when I was out on my mobility scooter just a couple of days ago. 20 00:01:47,000 --> 00:01:52,000 And I'm also going to discuss something that's very, very new actually, 21 00:01:52,000 --> 00:01:59,000 probably started happening in the last hour that I've never felt before. 22 00:01:59,000 --> 00:02:03,000 So, bit of me and we'll get it all done. 23 00:02:03,000 --> 00:02:13,000 But firstly, I need a bit of my drink, I'm gasping. 24 00:02:13,000 --> 00:02:17,000 Cherry flavoured drink, fizzy drink. 25 00:02:17,000 --> 00:02:21,000 Yeah, just yes, all ends up yes. 26 00:02:21,000 --> 00:02:29,000 So, let's start with a bit of a recap over the last 50 shows. 27 00:02:29,000 --> 00:02:41,000 Where, let's be honest, this podcast started really with me just putting a post up on my personal Facebook page, 28 00:02:41,000 --> 00:02:46,000 explaining to people about the diagnosis that I'd had for MS. 29 00:02:46,000 --> 00:02:52,000 Just to kind of get things out and stop the annoyance of every time you see someone, 30 00:02:52,000 --> 00:03:00,000 oh yeah, I've had this diagnosis or oh you're right, you're not looking too well. 31 00:03:00,000 --> 00:03:04,000 That way I could kind of cut everything out. 32 00:03:04,000 --> 00:03:11,000 And once I'd done that post, it was suggested to me, as I've mentioned before, 33 00:03:11,000 --> 00:03:18,000 about actually doing it as a bit of a regular thing, making a podcast about it. 34 00:03:18,000 --> 00:03:23,000 Well, here I am. 35 00:03:23,000 --> 00:03:30,000 Like I say, it's probably not far short of a year now that this show's been going. 36 00:03:30,000 --> 00:03:41,000 And at the start, I'll be honest with you, I really didn't quite know what to expect from it, how to do it or anything. 37 00:03:41,000 --> 00:03:45,000 And I still don't really know too much about how to do it. 38 00:03:45,000 --> 00:03:48,000 That's cold, old fact. 39 00:03:48,000 --> 00:03:51,000 You know, I still don't know massively what I'm doing here. 40 00:03:51,000 --> 00:03:57,000 I still don't do any major editing. I do little bits and pieces, but nothing major. 41 00:03:57,000 --> 00:04:06,000 But yeah, I mean, all I wanted to do really is just sort of get the word out there about MS. 42 00:04:06,000 --> 00:04:14,000 Because, let's be totally honest, unless you've been around people with the condition or you've got it yourself, 43 00:04:14,000 --> 00:04:17,000 not many people know a great deal. 44 00:04:17,000 --> 00:04:22,000 And I'm going to be honest, I still see it quite a bit on social media where people that don't know go, 45 00:04:22,000 --> 00:04:28,000 oh, well, if you change your diet, then actually you'll cure it. 46 00:04:28,000 --> 00:04:34,000 Absolutely not. Biggest load of rubbish you could ever say. 47 00:04:34,000 --> 00:04:40,000 And I do keep quiet when I see it on social media, but quite a few times I do really want to post and say, 48 00:04:40,000 --> 00:04:46,000 are you for real? Because, let's be honest, there is no cure. 49 00:04:46,000 --> 00:04:52,000 That's fact. There is no cure. There are these things out there that can make it easier. 50 00:04:52,000 --> 00:04:57,000 There are these things out there that can help and maybe slow the roll a little bit. 51 00:04:57,000 --> 00:05:03,000 Other than that, that's it. There's no cure. 52 00:05:03,000 --> 00:05:21,000 But yeah, I mean, I've gone personally from being able to walk a mile, mile and a half to and from work to I don't work. 53 00:05:21,000 --> 00:05:28,000 My work is this podcast, thinking about what to do on the show, all of that sort of stuff. 54 00:05:28,000 --> 00:05:35,000 But really, all of this stuff, the website, the social media, that's kind of my job now. 55 00:05:35,000 --> 00:05:39,000 And it's something I love, absolutely love doing. 56 00:05:39,000 --> 00:05:46,000 It fills me with pride. It fills me with all sorts of warm, fuzzy feelings. 57 00:05:46,000 --> 00:05:51,000 But no, genuinely, absolutely love it. Really, really do. 58 00:05:51,000 --> 00:06:01,000 And again, I mean, I've gone from talking on this podcast about treatment and the treatment that I was expecting, 59 00:06:01,000 --> 00:06:09,000 eventually getting that treatment after really having to fight for it because it didn't come easy. 60 00:06:09,000 --> 00:06:17,000 And even now, I'm very much of the thought process that I've been told by my MS team, 61 00:06:17,000 --> 00:06:26,000 my EDSS score is between a six and a six point five. 62 00:06:26,000 --> 00:06:32,000 If I should get to seven, they will be withdrawing the treatment. 63 00:06:32,000 --> 00:06:42,000 The treatment I'm on is the ocrevas, ocreluzumab, which again, it's a bit of harsh treatment. 64 00:06:42,000 --> 00:06:47,000 It goes in and it causes all kinds of... 65 00:06:47,000 --> 00:06:59,000 It does plenty of work trying to stop certain cells attacking each other in your immune system. 66 00:06:59,000 --> 00:07:05,000 To be honest with you, I'm in an army as to whether actually it would work. 67 00:07:05,000 --> 00:07:15,000 But as I've said on a previous show in the last week or so, I've actually started to feel quite rough. 68 00:07:15,000 --> 00:07:26,000 And that's kind of getting a bit worse and worse in terms of pain and whatever else and the issues that I do have, 69 00:07:26,000 --> 00:07:33,000 which I will talk about in a moment. They all seem to be kind of getting a bit worse. 70 00:07:33,000 --> 00:07:40,000 I'm about four weeks out, roughly four weeks, three, four weeks out from my next treatment. 71 00:07:40,000 --> 00:07:47,000 The longer it goes, the more I'm thinking actually, and I'm going to use the term, the crap gap. 72 00:07:47,000 --> 00:07:54,000 I am wondering actually whether, yeah, that could be something that I may well be dealing with 73 00:07:54,000 --> 00:08:00,000 in terms of how things are, the way things are going. 74 00:08:00,000 --> 00:08:11,000 We'll talk about very quickly the main issues that I have as part of MS. 75 00:08:11,000 --> 00:08:19,000 The biggest one really is my mobility issues. 76 00:08:19,000 --> 00:08:28,000 As I said a little while ago, I've gone from being able to walk to and from work to I can walk 77 00:08:28,000 --> 00:08:34,000 as little as a few yards until pain, tiredness, all sorts kicks in. 78 00:08:34,000 --> 00:08:43,000 And I will use the word fatigue. Fatigue jumps in there and it does what it's got to do and stops me carrying on. 79 00:08:43,000 --> 00:08:49,000 I do try and fight through sometimes quite stupidly, I'm going to be honest, let's be totally straight. 80 00:08:49,000 --> 00:08:57,000 But I have a go and I try my best and fail miserably quite regularly. 81 00:08:57,000 --> 00:09:01,000 But I try. So yeah, you've got that. 82 00:09:01,000 --> 00:09:07,000 The foot drop that I've got on my right side is quite severe. 83 00:09:07,000 --> 00:09:17,000 It is quite severe. And again, anyone on my social medias will have seen a video that I put up when I was given my Fez machine. 84 00:09:17,000 --> 00:09:22,000 Which, let's be totally honest with you, that thing is an absolute lifesaver. 85 00:09:22,000 --> 00:09:27,000 It really is and I've got to be straight on that incredible machine. Absolutely fantastic. 86 00:09:27,000 --> 00:09:33,000 Without it, walking safely just doesn't happen. 87 00:09:33,000 --> 00:09:40,000 So there's that. I deal with water drop type feelings on the top of my head. 88 00:09:40,000 --> 00:09:44,000 My back, I've got quite bad lower back issues. 89 00:09:44,000 --> 00:09:53,000 Numbness in my legs and my feet is honestly a big problem. 90 00:09:53,000 --> 00:09:57,000 A real big problem at times. I just genuinely can't feel a thing. 91 00:09:57,000 --> 00:10:03,000 I mean if I was to sit here now and just pinch myself on my leg, I wouldn't feel it. 92 00:10:03,000 --> 00:10:05,000 I really wouldn't feel it. 93 00:10:05,000 --> 00:10:11,000 So again, that's not exhausting all the problems I've got. That's just explaining some of the main ones. 94 00:10:11,000 --> 00:10:16,000 Which, I do try my best to try and overcome. 95 00:10:16,000 --> 00:10:19,000 Because why wouldn't I? 96 00:10:19,000 --> 00:10:23,000 I don't want this thing to win. I really don't want it to win. 97 00:10:23,000 --> 00:10:31,000 So I will keep fighting on because that's just what I want to do. That's who I am. 98 00:10:31,000 --> 00:10:35,000 But yeah, I mean that pretty much, so I don't want to go too deep. 99 00:10:35,000 --> 00:10:40,000 I don't want to sort of start coming across like I'm bleeding or feeling sorry for myself. 100 00:10:40,000 --> 00:10:44,000 Because I'm not. So all I'm trying to do is the 50th show. 101 00:10:44,000 --> 00:10:48,000 So I thought it was only fair to do a bit of a recap. 102 00:10:48,000 --> 00:10:59,000 But in terms of what I've explained about an issue that started in the last hour or so. 103 00:10:59,000 --> 00:11:03,000 Again, I had my dinner. It was beautiful. Absolutely gorgeous. 104 00:11:03,000 --> 00:11:06,000 Sausage and mash. 105 00:11:06,000 --> 00:11:09,000 Lovely bit of gravy on it. 106 00:11:09,000 --> 00:11:12,000 I got through nine sausages. 107 00:11:12,000 --> 00:11:14,000 Nine. 108 00:11:14,000 --> 00:11:17,000 And a big chunk of mashed tater. 109 00:11:17,000 --> 00:11:22,000 It was gorgeous. I've got to say it was beautiful. I thoroughly enjoyed it. 110 00:11:22,000 --> 00:11:25,000 But anyway, once I've eaten that. 111 00:11:25,000 --> 00:11:27,000 And I've had an issue all day. 112 00:11:27,000 --> 00:11:29,000 We'll start with that first. 113 00:11:29,000 --> 00:11:32,000 This issue that I've had all day. 114 00:11:32,000 --> 00:11:42,000 Give me a second. I'm just refreshing. 115 00:11:42,000 --> 00:11:44,000 Let's start. 116 00:11:44,000 --> 00:11:46,000 I'll explain the issue I've had all day. 117 00:11:46,000 --> 00:11:49,000 For some reason actually I was. 118 00:11:49,000 --> 00:11:53,000 I'm going to say fatigue was kicking in again. 119 00:11:53,000 --> 00:11:58,000 And it was around midday the time I woke up. 120 00:11:58,000 --> 00:12:03,000 Myself and Lisa, we had to nip up to the local shops just up the road. 121 00:12:03,000 --> 00:12:06,000 I jumped on a scooter. Lisa walked. 122 00:12:06,000 --> 00:12:08,000 And we got up there. 123 00:12:08,000 --> 00:12:13,000 From the minute I got out of bed, my legs were very wobbly today. 124 00:12:13,000 --> 00:12:16,000 To quite a bad extent, I'm going to be honest with you. 125 00:12:16,000 --> 00:12:20,000 It had been a very long time. They've been as bad as they have. 126 00:12:20,000 --> 00:12:23,000 And as we're walking around the shop. 127 00:12:23,000 --> 00:12:26,000 Normally I would go one stick. 128 00:12:26,000 --> 00:12:29,000 And then normally I would have the fez machine on. 129 00:12:29,000 --> 00:12:32,000 I didn't put it on today. 130 00:12:32,000 --> 00:12:35,000 I was trying to sort of hurry myself up to get out. 131 00:12:35,000 --> 00:12:37,000 So we could get these bits. 132 00:12:37,000 --> 00:12:39,000 So that's on me. 133 00:12:39,000 --> 00:12:43,000 But as we're walking around I can feel myself really struggling. 134 00:12:43,000 --> 00:12:45,000 Really really struggling. 135 00:12:45,000 --> 00:12:47,000 I've got both my crutches. 136 00:12:47,000 --> 00:12:50,000 And we get outside the shop. 137 00:12:50,000 --> 00:12:53,000 Now as we stood outside the shop. 138 00:12:53,000 --> 00:12:59,000 And I'm just putting my crutches back on my scooter. 139 00:12:59,000 --> 00:13:05,000 It was very very apparent that there was a problem. 140 00:13:05,000 --> 00:13:08,000 And the problem was. 141 00:13:08,000 --> 00:13:13,000 My right leg had tangled somehow. 142 00:13:13,000 --> 00:13:16,000 Around behind my left leg. 143 00:13:16,000 --> 00:13:18,000 And I very nearly went over. 144 00:13:18,000 --> 00:13:21,000 I managed to get one of my sticks left in my hand. 145 00:13:21,000 --> 00:13:24,000 I managed to jam the stick on the floor. 146 00:13:24,000 --> 00:13:26,000 And hold myself up. 147 00:13:26,000 --> 00:13:30,000 And for some reason I couldn't properly speak. 148 00:13:30,000 --> 00:13:32,000 I tried to ask Lisa for help. 149 00:13:32,000 --> 00:13:36,000 But actually no words would come out. 150 00:13:36,000 --> 00:13:40,000 And I tried to pull my right leg back round. 151 00:13:40,000 --> 00:13:43,000 And as I did that I didn't realise that. 152 00:13:43,000 --> 00:13:46,000 The crutch I jammed on the floor. 153 00:13:46,000 --> 00:13:51,000 I'd actually jammed it in between both my legs. 154 00:13:51,000 --> 00:13:55,000 And as I pulled my leg round it obviously got caught on the crutch. 155 00:13:55,000 --> 00:13:57,000 And made me fall backwards. 156 00:13:57,000 --> 00:14:04,000 Now I'm very lucky that I managed to stop myself going onto the floor. 157 00:14:04,000 --> 00:14:08,000 But I did thump my back quite hard actually. 158 00:14:08,000 --> 00:14:10,000 On the wall of the shop. 159 00:14:10,000 --> 00:14:12,000 Which hurt. 160 00:14:12,000 --> 00:14:15,000 And I think I may have also twisted my right knee a little bit. 161 00:14:15,000 --> 00:14:17,000 Again, there's nothing major. 162 00:14:17,000 --> 00:14:20,000 But it did hurt. 163 00:14:20,000 --> 00:14:23,000 So that kind of happened. 164 00:14:23,000 --> 00:14:25,000 And I must admit. 165 00:14:25,000 --> 00:14:28,000 It frightened me a bit. 166 00:14:28,000 --> 00:14:29,000 I'm going to be honest. 167 00:14:29,000 --> 00:14:30,000 I'm going to be totally straight. 168 00:14:30,000 --> 00:14:31,000 It did frighten me. 169 00:14:31,000 --> 00:14:37,000 Because it's been a while since I've had that kind of problem. 170 00:14:37,000 --> 00:14:40,000 And I'm kind of thinking to myself. 171 00:14:40,000 --> 00:14:42,000 You know it has been a while. 172 00:14:42,000 --> 00:14:50,000 Although I know it's what happens and whatever else. 173 00:14:50,000 --> 00:14:54,000 Yeah it was frightening. 174 00:14:54,000 --> 00:14:55,000 It actually was frightening. 175 00:14:55,000 --> 00:14:58,000 I think it frightened Lisa a little bit as well. 176 00:14:58,000 --> 00:15:02,000 Which kind of upset me even more. 177 00:15:02,000 --> 00:15:03,000 Which I know it shouldn't. 178 00:15:03,000 --> 00:15:04,000 And bless her heart. 179 00:15:04,000 --> 00:15:09,000 She did everything possibly that she could to get me back on my scooter. 180 00:15:09,000 --> 00:15:11,000 So I'm sat down and safe. 181 00:15:11,000 --> 00:15:12,000 She was incredible. 182 00:15:12,000 --> 00:15:13,000 I will say that. 183 00:15:13,000 --> 00:15:15,000 Absolutely incredible. 184 00:15:15,000 --> 00:15:20,000 The way she sort of helped get me right and everything else. 185 00:15:20,000 --> 00:15:23,000 And then we come home. 186 00:15:23,000 --> 00:15:25,000 And I sat down. 187 00:15:25,000 --> 00:15:26,000 I spent the day. 188 00:15:26,000 --> 00:15:29,000 I sat playing Xbox and whatever else. 189 00:15:29,000 --> 00:15:32,000 Creating a bit of content for YouTube. 190 00:15:32,000 --> 00:15:36,000 Doing some YouTube shorts for Fortnite and what have you. 191 00:15:36,000 --> 00:15:42,000 And then it came dinner. 192 00:15:42,000 --> 00:15:45,000 Enjoyed dinner. 193 00:15:45,000 --> 00:15:49,000 Again went and sat down because of how wobbly I was. 194 00:15:49,000 --> 00:15:51,000 And I fell asleep. 195 00:15:51,000 --> 00:15:55,000 Now I was probably only asleep for about 15 minutes tops. 196 00:15:55,000 --> 00:15:57,000 But when I woke up. 197 00:15:57,000 --> 00:16:01,000 And even now I've got this issue. 198 00:16:01,000 --> 00:16:06,000 Where I woke up and all over my body. 199 00:16:06,000 --> 00:16:12,000 Internally it feels like things are vibrating. 200 00:16:12,000 --> 00:16:17,000 Now I don't remember ever having this feeling before. 201 00:16:17,000 --> 00:16:20,000 And it's not. 202 00:16:20,000 --> 00:16:21,000 I can't really explain it. 203 00:16:21,000 --> 00:16:22,000 I'm going to be honest. 204 00:16:22,000 --> 00:16:23,000 I can't really explain it. 205 00:16:23,000 --> 00:16:26,000 But it's one that's concerning. 206 00:16:26,000 --> 00:16:28,000 Because it's new. 207 00:16:28,000 --> 00:16:31,000 It's not something I've done before. 208 00:16:31,000 --> 00:16:33,000 I've not had this issue. 209 00:16:33,000 --> 00:16:38,000 It's one that I'm monitoring quite closely and hoping it's going to stop. 210 00:16:38,000 --> 00:16:41,000 My fingers are crossed because you just never know dear. 211 00:16:41,000 --> 00:16:42,000 Let's be fair. 212 00:16:42,000 --> 00:16:45,000 But yeah it's a bit strange. 213 00:16:45,000 --> 00:16:46,000 I'm going to be fair. 214 00:16:46,000 --> 00:16:50,000 It really is quite strange. 215 00:16:50,000 --> 00:16:52,000 But. 216 00:16:52,000 --> 00:17:00,000 I'll try and get used to it and push through and hope it leaves me be. 217 00:17:00,000 --> 00:17:02,000 But yeah it's really strange. 218 00:17:02,000 --> 00:17:04,000 Everything vibrating. 219 00:17:04,000 --> 00:17:08,000 Honestly it's not even as if it's shaking like a tick or whatever. 220 00:17:08,000 --> 00:17:12,000 It just genuinely feels like there's something in there vibrating me. 221 00:17:12,000 --> 00:17:16,000 And it's all over the body. 222 00:17:16,000 --> 00:17:18,000 But yeah. 223 00:17:18,000 --> 00:17:19,000 Strange stuff. 224 00:17:19,000 --> 00:17:20,000 MS. 225 00:17:20,000 --> 00:17:21,000 It goes hand in hand. 226 00:17:21,000 --> 00:17:25,000 It does go hand in hand. 227 00:17:25,000 --> 00:17:30,000 But we'll come back to my story about what happened to me the other day. 228 00:17:30,000 --> 00:17:33,000 Right after I've had a lubrication break again. 229 00:17:33,000 --> 00:17:35,000 My drinks in front of me. 230 00:17:35,000 --> 00:17:45,000 It's cold and I quite fancy drinking it. 231 00:17:45,000 --> 00:17:49,000 Can't beat it. 232 00:17:49,000 --> 00:17:51,000 So. 233 00:17:51,000 --> 00:17:55,000 Back to what happened to me the other day. 234 00:17:55,000 --> 00:17:56,000 I'm just moving my leg. 235 00:17:56,000 --> 00:18:00,000 A bit painful. 236 00:18:00,000 --> 00:18:02,000 I was out on my scooter. 237 00:18:02,000 --> 00:18:04,000 And I was thinking to myself. 238 00:18:04,000 --> 00:18:08,000 I did have the thought process of maybe changing my scooter. 239 00:18:08,000 --> 00:18:14,000 To one that's a bit smaller and a bit more practical for fitting in a car. 240 00:18:14,000 --> 00:18:17,000 Now. 241 00:18:17,000 --> 00:18:24,000 I'm waiting at a crossing. 242 00:18:24,000 --> 00:18:26,000 I'm thinking. 243 00:18:26,000 --> 00:18:27,000 You know. 244 00:18:27,000 --> 00:18:28,000 Cross soon not a problem. 245 00:18:28,000 --> 00:18:31,000 Until a comment was made about me. 246 00:18:31,000 --> 00:18:38,000 Looking basically looking a bit young to be in a mobility scooter. 247 00:18:38,000 --> 00:18:41,000 From my point of view you know I can't be bothered to argue with people. 248 00:18:41,000 --> 00:18:45,000 So I sort of just made a bit of a. 249 00:18:45,000 --> 00:18:48,000 A gentle a gentle fielding of it. 250 00:18:48,000 --> 00:18:52,000 I just basically made it clear that you know. 251 00:18:52,000 --> 00:18:58,000 It is what it is basically. 252 00:18:58,000 --> 00:19:03,000 And then a comment came back at me. 253 00:19:03,000 --> 00:19:08,000 And basically saying how. 254 00:19:08,000 --> 00:19:15,000 They can't possibly be anything wrong with me. 255 00:19:15,000 --> 00:19:20,000 Because I look too well. 256 00:19:20,000 --> 00:19:23,000 Yeah. 257 00:19:23,000 --> 00:19:25,000 Again. 258 00:19:25,000 --> 00:19:26,000 Not an argument. 259 00:19:26,000 --> 00:19:28,000 I've always been in my past. 260 00:19:28,000 --> 00:19:30,000 I've been a little bit bitey and a bit argumentative. 261 00:19:30,000 --> 00:19:31,000 Not anymore. 262 00:19:31,000 --> 00:19:33,000 I don't play that game now. 263 00:19:33,000 --> 00:19:37,000 So I basically just thanked them for their opinion. 264 00:19:37,000 --> 00:19:39,000 Saying I look well. 265 00:19:39,000 --> 00:19:40,000 Saying I look young. 266 00:19:40,000 --> 00:19:43,000 You know I appreciate it. 267 00:19:43,000 --> 00:19:46,000 And carried on with my day. 268 00:19:46,000 --> 00:19:48,000 But. 269 00:19:48,000 --> 00:19:50,000 This is where I'm going to get a little bit. 270 00:19:50,000 --> 00:19:54,000 A little bit more sort of out there and whatever else. 271 00:19:54,000 --> 00:19:58,000 Why would you make a comment like that to someone. 272 00:19:58,000 --> 00:20:00,000 Genuinely. 273 00:20:00,000 --> 00:20:05,000 Why what could make somebody think that's an OK thing to say. 274 00:20:05,000 --> 00:20:07,000 Now. 275 00:20:07,000 --> 00:20:12,000 I'm not one of these that's going to sit here and go I'm so offended. 276 00:20:12,000 --> 00:20:13,000 But genuinely. 277 00:20:13,000 --> 00:20:18,000 If you said that to somebody else or if I was having a bad day. 278 00:20:18,000 --> 00:20:23,000 And you got a nasty comment in return. 279 00:20:23,000 --> 00:20:26,000 I'm pretty confident. 280 00:20:26,000 --> 00:20:32,000 That would then be all why you're being mean to me. 281 00:20:32,000 --> 00:20:35,000 Why do people feel the need to make a comment. 282 00:20:35,000 --> 00:20:41,000 That just doesn't need to be made if you want to say that in private to a friend or whatever else. 283 00:20:41,000 --> 00:20:45,000 Whatever I personally don't care what you say. 284 00:20:45,000 --> 00:20:47,000 If I can't hear it. 285 00:20:47,000 --> 00:20:50,000 If I can't hear it it's going to make no difference to me. 286 00:20:50,000 --> 00:20:52,000 But you make a comment like that. 287 00:20:52,000 --> 00:20:55,000 Genuinely come on think it out. 288 00:20:55,000 --> 00:20:57,000 Totally unnecessary. 289 00:20:57,000 --> 00:20:59,000 Let's be totally fair. 290 00:20:59,000 --> 00:21:02,000 Not every disability. 291 00:21:02,000 --> 00:21:07,000 Is immediately obvious when you look at someone. 292 00:21:07,000 --> 00:21:09,000 It's just not. 293 00:21:09,000 --> 00:21:11,000 It just isn't. 294 00:21:11,000 --> 00:21:13,000 So. 295 00:21:13,000 --> 00:21:18,000 All I can say is just have a bit of awareness about. 296 00:21:18,000 --> 00:21:20,000 People. 297 00:21:20,000 --> 00:21:23,000 And just have a little bit of a thought on. 298 00:21:23,000 --> 00:21:28,000 Is my comment I'm about to make is it actually worth making. 299 00:21:28,000 --> 00:21:32,000 Or shall I just keep it in my head. 300 00:21:32,000 --> 00:21:35,000 Because I think most decent people would go. 301 00:21:35,000 --> 00:21:36,000 Oh actually. 302 00:21:36,000 --> 00:21:37,000 Yeah probably. 303 00:21:37,000 --> 00:21:42,000 Probably not worth saying. 304 00:21:42,000 --> 00:21:43,000 But it was said. 305 00:21:43,000 --> 00:21:44,000 That's what it was. 306 00:21:44,000 --> 00:21:49,000 And again the more I think about it the more I think to myself. 307 00:21:49,000 --> 00:21:52,000 Just think before you speak. 308 00:21:52,000 --> 00:21:54,000 It really isn't hard. 309 00:21:54,000 --> 00:21:56,000 It's genuinely not hard. 310 00:21:56,000 --> 00:21:59,000 And from my point of view. 311 00:21:59,000 --> 00:22:04,000 At least I filled it in a manner I did and I didn't kick off and cause a problem. 312 00:22:04,000 --> 00:22:06,000 Because let's be totally honest. 313 00:22:06,000 --> 00:22:10,000 Some people would have done and they would have been right to do so. 314 00:22:10,000 --> 00:22:12,000 Be nice. 315 00:22:12,000 --> 00:22:14,000 It's not hard. 316 00:22:14,000 --> 00:22:16,000 Think about people. 317 00:22:16,000 --> 00:22:18,000 It's not hard. 318 00:22:18,000 --> 00:22:20,000 And the old chestnut. 319 00:22:20,000 --> 00:22:25,000 Treat people how you'd like to be treated. 320 00:22:25,000 --> 00:22:30,000 I mean there's not really much more I can say on that to be fair. 321 00:22:30,000 --> 00:22:37,000 But what I want to do to completely finish off this 50th episode. 322 00:22:37,000 --> 00:22:45,000 Which again I'm going to say I'm so proud to have got to this stage where 50 episodes. 323 00:22:45,000 --> 00:22:49,000 It's taken a lot of effort. 324 00:22:49,000 --> 00:22:50,000 It's taken a lot of time. 325 00:22:50,000 --> 00:22:52,000 It's taken a lot of work. 326 00:22:52,000 --> 00:22:54,000 And I've loved every minute. 327 00:22:54,000 --> 00:22:55,000 I've said that earlier on. 328 00:22:55,000 --> 00:22:57,000 I've loved every minute of it. 329 00:22:57,000 --> 00:23:00,000 And I'm going to continue to do it because of how much I enjoy it. 330 00:23:00,000 --> 00:23:02,000 Because let's be fair. 331 00:23:02,000 --> 00:23:06,000 And again I know I've made mention to mental health. 332 00:23:06,000 --> 00:23:11,000 This is one of my ways of fighting back against mental health as well. 333 00:23:11,000 --> 00:23:13,000 Because I'm actually talking about things. 334 00:23:13,000 --> 00:23:20,000 I'm getting things out there so that they're not actually stuck in my head. 335 00:23:20,000 --> 00:23:26,000 And at least these days I know there is a brain in there because an MRI has proved so. 336 00:23:26,000 --> 00:23:29,000 So at least I'm creating a bit more space in there. 337 00:23:29,000 --> 00:23:30,000 Not that it needs much more space. 338 00:23:30,000 --> 00:23:32,000 It's not particularly full up anyway. 339 00:23:32,000 --> 00:23:35,000 But anyway. 340 00:23:35,000 --> 00:23:40,000 It really is a case of 50 episodes strong. 341 00:23:40,000 --> 00:23:41,000 I'm still learning. 342 00:23:41,000 --> 00:23:42,000 I've got a lot to learn. 343 00:23:42,000 --> 00:23:49,000 I really want to get to a point where we are talking interviews and things on this show. 344 00:23:49,000 --> 00:23:51,000 Because again I think that would help people. 345 00:23:51,000 --> 00:23:52,000 It would help me. 346 00:23:52,000 --> 00:23:54,000 It would help others. 347 00:23:54,000 --> 00:23:57,000 So once I've learned that. 348 00:23:57,000 --> 00:23:58,000 It is going to happen. 349 00:23:58,000 --> 00:23:59,000 It is going to happen. 350 00:23:59,000 --> 00:24:05,000 You're just going to have to bear with me because I am not that technologically advanced yet. 351 00:24:05,000 --> 00:24:07,000 But I will get there. 352 00:24:07,000 --> 00:24:09,000 I will get there. 353 00:24:09,000 --> 00:24:10,000 But yeah. 354 00:24:10,000 --> 00:24:12,000 You know 50 episodes. 355 00:24:12,000 --> 00:24:17,000 I am massively grateful to each and every one of you that tunes in and has a listen. 356 00:24:17,000 --> 00:24:24,000 Because listening to me nattering away for like over 20 minutes ago once a week. 357 00:24:24,000 --> 00:24:29,000 And again soon it's going to be twice a week. 358 00:24:29,000 --> 00:24:32,000 Yeah. 359 00:24:32,000 --> 00:24:34,000 You all deserve a medal. 360 00:24:34,000 --> 00:24:37,000 You really all deserve a medal. 361 00:24:37,000 --> 00:24:40,000 But yeah genuinely thank you. 362 00:24:40,000 --> 00:24:43,000 Thank you all so much for listening in. 363 00:24:43,000 --> 00:24:45,000 Massively appreciated. 364 00:24:45,000 --> 00:24:51,000 And I genuinely hope that this helps someone down the line. 365 00:24:51,000 --> 00:24:57,000 And I know I have had messages telling me that this show has helped. 366 00:24:57,000 --> 00:25:02,000 And again that makes me feel good. 367 00:25:02,000 --> 00:25:04,000 It really does. 368 00:25:04,000 --> 00:25:06,000 So thank you all very very much. 369 00:25:06,000 --> 00:25:07,000 Thank you for listening. 370 00:25:07,000 --> 00:25:11,000 Thank you for being part and parcel of this journey. 371 00:25:11,000 --> 00:25:19,000 I have added a new section to my website which is fundraising for MS. 372 00:25:19,000 --> 00:25:24,000 As I've said previously you know I do what I can. 373 00:25:24,000 --> 00:25:26,000 Not massive amounts. 374 00:25:26,000 --> 00:25:33,000 But whenever MS charities are doing fundraising events I try and take part as much as possible. 375 00:25:33,000 --> 00:25:38,000 And it just so happens we're a few weeks away now from the walk in London. 376 00:25:38,000 --> 00:25:40,000 Again I've mentioned that previously. 377 00:25:40,000 --> 00:25:43,000 So if you are in a position to donate. 378 00:25:43,000 --> 00:25:46,000 Myself, my dad and my brother. 379 00:25:46,000 --> 00:25:49,000 We will be in London for that walk. 380 00:25:49,000 --> 00:25:52,000 Well I'm going to say it. 381 00:25:52,000 --> 00:25:59,000 If there's anyone at the walk that recognises me from this show or social media or whatever else. 382 00:25:59,000 --> 00:26:03,000 Pop over, come and introduce yourself. 383 00:26:03,000 --> 00:26:05,000 I'll quite happily have a conversation. 384 00:26:05,000 --> 00:26:08,000 I'll quite happily properly introduce myself. 385 00:26:08,000 --> 00:26:10,000 And we can have a bit of a chat. 386 00:26:10,000 --> 00:26:11,000 Not a problem at all. 387 00:26:11,000 --> 00:26:14,000 But yeah myxmsjourney.com. 388 00:26:14,000 --> 00:26:15,000 Fundraising for MS. 389 00:26:15,000 --> 00:26:16,000 If you're able. 390 00:26:16,000 --> 00:26:20,000 Even the smallest little amount would be massively appreciated. 391 00:26:20,000 --> 00:26:22,000 And hopefully. 392 00:26:22,000 --> 00:26:28,000 Hopefully one day all this work these charities and scientists are putting in. 393 00:26:28,000 --> 00:26:36,000 Hopefully it can have some real positive effect on this condition. 394 00:26:36,000 --> 00:26:39,000 We will call it this condition. 395 00:26:39,000 --> 00:26:42,000 Well I think I've kept you long enough. 396 00:26:42,000 --> 00:26:43,000 Thank you very much. 397 00:26:43,000 --> 00:26:44,000 Again I'm going to say that. 398 00:26:44,000 --> 00:26:46,000 Thank you so much for listening in. 399 00:26:46,000 --> 00:26:49,000 It's massively appreciated. 400 00:26:49,000 --> 00:26:54,000 And I'll see you on show 51. 401 00:26:54,000 --> 00:26:56,000 Speak soon. 402 00:26:56,000 --> 00:27:06,000 Bye bye.