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Hello, I hope everyone's doing okay. I hope you've had the best possible week that you

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can have. Mine's been pretty good. Mine's been pretty good. A couple of things I want

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to talk about today. I will get to it, but it's been my birthday this week. Yes, I've

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turned 40. It happened. Didn't want it to, but it did. I will talk about that because

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it's been a brilliant couple of days. I'm going to be honest with you. Absolutely fantastic.

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But there's something else I really want to talk about today. And it's something that's

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been in my head for a little while. But it's to do with when you go and see your doctors

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or you contact your doctors and things get moved from one department to another. And

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I'm just going to jump straight in. I'm just going to jump straight in on it and get talking

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about it. I don't understand why when you contact your doctors or whatever else, why

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information isn't shared the way it could be. As I've said, I've had this meeting with

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mental health charity. They've given me in writing, I'm not going to say, but they've

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given me in writing what their suspicion is that the issues are. And obviously it's been

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sent information has been sent back to the doctors and whatever else. But what I don't

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understand is when this information is sent all over the place, why is it so difficult

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for one department to pass information to another? Because although they've kind of

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been in touch with the doctors, nothing really has been said. Now I'll come to the GDPR aspect

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and whatever else shortly. But surely we're on the NHS. And if you've got one department

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talking to another, why can that department say, for instance, my doctors, why can my

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doctors not send information to a mental health charity and vice versa? And when they do,

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why does it all have to be done by letter, by email or whatever else? Why can't it all

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be done relatively instantaneous? We live in a world full of technology. There's databases

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for all kinds of stuff. I think we're all well aware of that. Why does it have to be

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so difficult? I'm not understanding why they can't sit there necessarily. I mean, from

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a doctor's point of view, they've got their reception staff and whatever else. I understand

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they're busy, but they've also got the back of house staff. And I'm aware of that. At

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my surgery, there's back of house staff that do bits and pieces. Why can they not sit there

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on a computer screen and go tap, tap, tap, tap, tap, click onto a database so that people

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like for instance, mental health charity can immediately see what is on there and vice

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versa. Now going to the GDPR aspect of it, It really isn't an issue because

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all they need to do is ask you if you are prepared for them to share your information.

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I would be and I'm confident most, not all, most would like that information to be shared

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very quickly rather than waiting for constant letters or emails to be sent backwards and

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forwards and vice versa. It's not necessary. Come on, we live in an age full of technology.

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Information sharing is what happens on a daily basis all over the place. So why can doctors,

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hospitals, mental health charities that work alongside the NHS and other bodies that work

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alongside the NHS, why can they not share information? Why has it all got to be awkward?

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Why has it all got to be time consuming? It shouldn't be. It really, really shouldn't

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be. And I totally get you. And it probably sounds like I'm having a bit of a moan and

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I am and I'm not. All I'm trying to say is I'm not understanding it because if one piece

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of information needs to be shared, if it needs to be shared quickly and we've all got our

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records and whatever else on certain databases, all they'd have to do is open up your details

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and say, oh, actually, yeah, this is what we can see has happened on X meeting at X

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date at X time. Then there would be no way in all. We can't give you this information

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because we've not received it yet. It would have come through straight away. There would

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be no waiting. And again, I am not the smartest guy on the planet. I'm really not. And maybe

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I'm not quite wording this this correctly, but I'm giving it a go because it's a thought

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that has been in my head for a little while. And again, even when you're talking internal

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departments on the NHS, if one department sees you, it should be there should be no

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letters being sent backwards and forwards. Even emails not necessary. All that needs

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is you go into the patient file or patient database, put the information in. Yes, I fully

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understand this is going to be a large database. I'm pretty sure technology can cope. But you

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put the information in and all of a sudden, the very next day say should be within minutes,

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honestly, but say the very next day, another department can pick that information up, go

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click, click, click. Oh, blah, blah, has seen blah, blah on X date. And this is what has

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been said. Not difficult in my opinion, that there's got to be ways of making this happen.

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And as I say, you know, I'm not the smartest guy on on the planet. But I am somebody that's

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got a little bit of Nelson. I've got thought processes that aren't awful, most of the time.

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But again, surely it's something in this day and age we can look at information sharing.

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All you need to do is just ask people if they are prepared to have that information shared.

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If they've signed a piece of paper to say yes, go ahead and do so. Share away. It just

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makes more sense. Because from my point of view, there was a piece of information that

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was being waited for and waited for and waited for when it could have just been there visible

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on a computer screen job done. Thank you very much. Let's move on to something a bit more

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interesting. Again, just my thoughts on it. Again, there's probably somebody smarter than

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me out there that can go actually, you're really incorrect on that. It can't happen,

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blah, blah, blah, blah, blah. Fine. Not a problem. I would fully accept that. But until

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that happens, and I've got a reasonable response as to to why it can't happen, that's the thought

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that's going to continue going through my head. Kind of rant over. Not quite a rant.

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Was it a rant? Not entirely sure. Not entirely sure. Thought process over. Right. Now on

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to the fun stuff. I want to talk about my birthday. I've done a lot of that. My birthday.

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It was absolutely superb. It really was fantastic. Before I go much further, I want to thank

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my family for it because it was just incredible. It was absolutely fantastic. We wondered whether

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to go out for a bit of lunch. But then I had the thought process instead of going out for

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lunch, why don't we go and do some a bit fun, some that we haven't done for a while, a very

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long while, we'll go bowling, 10 pin bowling. And we all agreed. And yes, we went bowling.

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I put my FPS machine on because I just had a thought that actually this might be quite

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difficult to do. A foot drop when I'm walking up with a bowling ball in my hand and trying

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to lob the bowling ball down the alley. It may not work particularly well. But with the

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FPS, I was actually able to bowl. And don't get me wrong, it was not massively comfortable.

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But I was able to do it and I was able to do it while enjoying it. So I did. We had

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one game and yeah, I didn't do particularly great in the first game. I'll be totally honest.

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I think the elements were against me. Because every time I bowl a decent one down the alley

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and take out say nine pins, there's always one pin left stood. And I just couldn't get

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that pin. Just couldn't get it. No matter what I tried, I just could not get it. And

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then it was very much a case of if maybe I got seven pins and I got a pin sat there waiting

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for the spare. I did a couple and there'd still be one pin left over. It made no sense.

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Honestly, it was like it was glued or like whatever to the ground. It just would not

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go down. No matter how hard I tried it wouldn't go down. But it was great fun. Really, really

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good fun. Everyone enjoyed themselves. There was some good bowling done by others. But

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I enjoyed it too much. We was only supposed to stay for one game, but I kept bleating

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on this would be amazing to have a second game. It'd be brilliant. Yeah, it's so much

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fun. So we stayed for a second game.

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That was very worthwhile. During the second game, I actually got over a hundred pins in

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all. Not in one go. There's only ten pins on the line at one go. Anyway, so I ended

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up on a hundred and fourteen on the second go. I think it was eighty one on the first

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round. But I managed to get two spares and two strikes. Yeah, it was fantastic. I'll

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be honest, I felt very, very lucky because it was almost like the super glue on the bottom

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of the pins had worn off for the second game. I mean, it just proves one just isn't enough.

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You've got to always do two. There's no alternatives. Got to be two. But anyway, I still didn't

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win. I got absolutely annihilated all in all, but my team won the second game and we won

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overall. Go team, go team. Woohoo! But yeah, I got carried by the rest of the team to be

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fair. I really did get carried. But it was well worth it. It was absolutely superb. Those

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of you that are viewing this on YouTube, you will see there is a canvas behind me. It's

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got all of my social media details on it and a bit of branding. Absolutely fantastic. It's

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just what the boys got me for my birthday. For those that are not on YouTube and actually

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are just listening to my voice, you're the heroes. Genuine heroes. Same branding as you're

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looking at on my site. It's just got my Mike's MS Journey podcast with the nice MS flag banner

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type thing. And then it's just got all of the links on it to my social medias. It's

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lovely. Really nice. Thoroughly, thoroughly enjoying having it sat there. I got a nice

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shirt from the girls. Lovely card from the eldest. Cards from Lisa. Nice cards from my

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dad and my brother. No, genuinely it was absolutely fantastic. Family have made it a brilliant

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day. It really was fantastic. And then came the Saturday. The Saturday we had a few more

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family come up as a bit of a celebration. It was really good to see. Really good to

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see everyone. Don't get me wrong, there wasn't the entire family but we had a decent number

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come up and loved every minute. It really was so nice to see everyone laughing, joking,

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into singing, watching little bits of dancing. Not by me. I can promise you now I wasn't

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dancing. Maybe little shuffles in my chair. But yeah, no I wasn't dancing. But yeah, no

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it was absolutely superb. I'm going to be honest, it was brilliant. Thoroughly, thoroughly

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enjoyed it. Again, everyone that came, thank you. You made it fantastic. What I will say

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is there was a really nice, it was like a picture wall that my dad and Lisa did for

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me. And there were some pictures there. Genuinely, I did not even know existed. I mean I was

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really little in some of them. There's even a picture of me, there's actually two but

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there's one in particular, there's a picture of me asleep. As a youngster, I'm not going

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to put an age on it but I was quite young, cuddling a teddy with another teddy beside

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me and clearly had a walkman on. So music made me go to sleep. I'm quite sure I know

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what music it would have been. In those days I absolutely was not a rock and metal fan,

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that's for sure. But yeah, there was that picture. There's a lovely picture of me in

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our old back garden when I was growing up. And I had our cat, Bubbles, in me arms. Oh,

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she was lovely. Black and white cat she was. Absolutely fantastic. She was a little legend.

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I used to love that cat. She was a star. So yeah, that was nice seeing that picture. There's

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a picture of me in a swimming pool, holding a ball as a float. I don't quite know why.

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I'm pretty confident back then I could swim. He says now I'm not being entirely confident.

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But again, I was having a good attempt. Yeah, I mean there was a photo there of me on this

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really old tractor. That was back in the day. I was really little. Really little. There

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was an old like a little ride on train thing that I had that actually once sent me to the

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hospital because I was messing about on it and I fell off and cut my head. My fault.

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Shouldn't have been messing about. But again, it was so nice to see. Honestly, it was fantastic

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to see some of those pictures that genuinely I had no clue. Some of them I knew existed.

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Some not a clue. So yeah, it was lovely. And again, it just sort of topped things off a

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little bit. As I say, my actual birthday itself was brilliant. And then to have everyone over

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on Saturday, we had a nice big double takeaway. Again, I won't name the takeaways on here,

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but there was two types of food and they were really nice. Really edible. So again, it was

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just that sort of thing. I mean, it made it brilliant. As I say, I've always been a bit

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sort of 40 years old. Really? Me? I don't want to turn 40. I've got to turn 40, but

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I don't want to turn it. And it was just made to be absolutely superb. Can't fault it at

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all. There's nothing else really that could have happened that would have been amazing

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short of a lottery win. If I'd have won the lottery, believe me, I'd have been quite pleased.

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That might have topped it off just that last little bit. I mean, we're talking the cherry

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on the icing on the cake with the hundreds and thousands on the cake and a bit of custard.

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Anything like that really, just to kind of make it really obvious that winning the lottery

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would have just been yes. There would have been no part of no. It would have just been

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yes. Yes, yes, yes, yes, yes. So anyway, back in the real world. Yeah, I mean, it was just,

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yeah, there's not a lot more I can say apart from again, thank you to everyone involved.

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You made it a superb birthday. You really did. I'm incredibly grateful and genuinely

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it was it was what it was. And now I've got the thought process in 10 years. I turned

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it off. Yeah, OK. I'm just going to sort of lock that little thought process in a tiny,

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tiny little box like that. There we go. Locked, locked away, locked away for a problem for

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10 years time. Yeah, yeah. OK. Anyway, yeah, I mean, other than that, my week has been

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it's been OK. I'll be honest. It's been OK. It's not been too bad. I don't want to

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dwell on negatives and whatever else, because do you know what? I did that for too long.

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I've said that I did dwell on negatives for too long. Have I been having issues with MS?

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Absolutely. I really, really have that. They've been there. They've been problems, lots and

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lots of pain. I'm going to be honest with you. Lots and lots of pain. But you know what?

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I've not been given into them like I've been doing. I've just been cracking on and try

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my best to make the pains think, ah, you know what? We're wasting our time here. Because

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in all fairness, I don't want to give in. I'm not going to give in. I'm absolutely not

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going to. Simple as that. I knew I'd overdone it the last couple of days. So today, I stayed

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in bed for quite a while. I don't think I got out of bed till about one o'clock. Just

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got some rest. Feel a bit better for it. Whether or not I'm going to sleep particularly well

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tonight after that amount of sleep, I don't know. But I'm going to try. And when the snoring

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occurs, I don't snore. I might snore. Maybe. I get told I snore. But actually, I've never

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heard me snore. So surely, it doesn't exist. If I've never heard it, it can't be true,

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surely. Yeah, that's my thought and I'm going to stick to it. Because why wouldn't I? I

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don't want to admit I snore. And there's nobody. I mean, I'm sat here now. I don't see anyone

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saying to me, Mike, come on. You do snore like a tractor. There's no one. You can't

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hear it. I can't hear it. I'm knocking my microphone over. Not smart. But there's nobody

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that right now that can say you snore. So truth is, it don't happen. Anyway. Yeah, I

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mean, that's how things have been, as I say. The issues have been there. But you know,

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what? Couldn't care less because it's been a brilliant week in terms of birthday, seeing

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family and whatever else. The coming week, I've got a few bits that actually I'm going

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to start really pushing towards, really pushing towards. I've sat today and I've actually

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worked out a schedule for recording things like the podcast. There is other things that

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are coming in the background. So I've set myself out schedules for those in terms of

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posting up videos and things on social media, because I tend to kind of put that off a little

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bit because I don't want to. I don't want to bore people more than anything. But I'm

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going to start posting up, even if it's just a little video, once a day. So seven days

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a week on my social media, there's going to be something. I'm on other things. For instance,

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YouTube, there's going to be daily uploads for gaming, whether that's for golf, whether

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that's for Fortnite, whatever it's for. I'm just going to post up at least one thing on

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YouTube on a short every day. It's going to be a few days a week where I'm going to jump

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on and I'm going to do a little talkie, less than a minute long, just a little talkie update

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on YouTube. That's going to be roughly three days a week. This podcast, I've made the executive

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decision and this is an executive decision because I'm the executive. Yeah, okay. This

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podcast is going to go back to right at the very start, I was releasing two podcasts a

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week and I've mentioned it previously how I was thinking about going back to it. I'm

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going to, we are going to have two podcasts every week. Now I will confirm scheduling.

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We're going to continue on with the Monday upload, but there's going to be one other

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day in the week that I'm going to upload another podcast because I might just as well. And

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yes, as I've said, it's always going to be MS based, but I'm also going to discuss other

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things like I've done today. I've had this thought process about how I think information

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should be shared amongst NHS bodies and whatever else. There's going to be other things I'm

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going to talk about as well. Just as a, for instance, I'm not going to say when this,

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this conversation is going to happen. I'm going to start talking about things like cost

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of living. I'm going to start talking about other bits and pieces and I'm going to try

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and be as honest as I can without being controversial. But as we all know, sometimes when you float

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an idea out there that is your personal idea, sometimes people get a little bit upset with

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it. Well, you can't please everybody all of the time. That unfortunately is cold hard

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fact. You can't do it, which is why I'm going to try and stay as far away from being controversial

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as I can. But you have to understand sometimes my thought processes might not align with

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your own and that's fine. I would have no issue with you saying to me, well, this is

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my thought on it. Not a problem at all. Fully respect that because actually if we all thought

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the same thing all the time, how boring would the world be genuinely? It really would be

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the most boring place. Having differences of opinion is perfectly okay. Genuinely fine.

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Well again, I'm going to confirm all of these new changes and things I'm going to do because

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again, I'm going to be streaming computer games soon enough. I'm just trying to work

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out the best way of doing it all properly. It's going to happen. So that will be confirmed.

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TBC. Yeah, TBC. See, I'm learning. I'm learning. But once that's confirmed, I have got it all

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written down on my laptop, so I am aware personally. But once I'm completely confident with it,

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that's when everyone else will know. Well, I'm going to knock that on the head for today's

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show. It won't be this week that we go to a second show. Maybe next. Maybe. TBC. Yeah,

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I did it again. Yeah. Well, I hope you all have a great week. Thank you very much for

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listening. And I look forward to talking to you all again soon. Bye bye.