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Hey, friends. Welcome back to Questions You Didn't

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Ask. I'm Nyesha Frey. In this episode, Dr. Shanita

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Randolph and Dr. Reagan Johnson join me to talk

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about the Updose Protective Style Study, salon

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-based outreach, and what real -world research

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looks like in action. Let's jump into it, doing

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it for ourselves. I hope that my audience is

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picking up on some themes that keep coming up

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in our conversations with you. You all are so

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consistent in regard to, you know, being motivated

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from your core. who you are and your values.

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Also, you're very empathetic to what is happening

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in your community and that motivates you even

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more. But also you extend that further through

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collaboration by listening. and asking and being

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present and being responsive. But then the other

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thing that I'm picking up on is this bi -directional

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partnership. You know, one of the things that

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I think that really gets in the way of building

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that trust in the community is that, you know,

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people in our community are overwhelmed, right?

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A lot of people in the world, okay, are overwhelmed.

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But our community is, you know, we're overwhelmed

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with... more stressors, more challenges, more

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barriers and obstructions, right? And so coming

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to them and asking them to participate in one

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more thing can be really, really daunting. And

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so the fact that you are going and asking them,

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if you were to participate, what would that look

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like? And how can we be of service? And what

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would make it worth your while? I think is reflective

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of your heart. but also a really good research

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strategy, right? For developing effective research

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questions, interventions, things of that sort.

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Because oftentimes what you see is people coming

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in and asking of the community, wanting to examine

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the community, being curious about the community

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and then bounce, you know, I'm gone, peace, see

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ya. And that's it. But what you just explained

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with the evolution from the talk. and its success,

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and that partnership, which I think is powerful,

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and then how that led to establishing Safe Cultures,

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and that the opportunity there is to actually

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build capacity of one of your partners. That

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doesn't necessarily advantage the heat lab directly.

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I mean, right? Am I missing something? I mean,

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it does. Because, and I'm going to say we, because

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I'm going to speak for Shanita on this too. We

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are who we say we are. Yep. And when you operate

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in that, then it advantages you to be the person

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that you said you are. If we say that we are

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people who. uh prioritized bi -directional partnerships

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that we want to give to the community as much

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as we take and sometimes more than we take then

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that's who you have to be and so then it advantages

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the heat lab because it increases trust as you

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said it shows the framework for a blueprint that

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we go back the blueprint of how other teams and

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labs should operate particularly in community

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engaged research and i would say community engaged

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Amongst all communities, we specifically, or

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I specifically, engage Black communities. But

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this should be the way that you engage people

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in general. Like Lauren Hill said, reciprocity,

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okay? Yes, darling. We should take as much pleasure

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in seeing someone else's dream or goals succeed

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as we do in ensuring that our own. One time for

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tearing down that capitalistic mindset, okay?

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and worldview and coming back into, into who

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we are, what we say we are. Thank you so much

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for that reframe because that's critical. That's

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critical in what sets you apart and that's critical

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to the blueprint. So thank you. Stand toes down

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on that. Yes. Ten toes down. Like, listen, and

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I think this is why, I mean, we really care about

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our mission. And I think this is, you know, as

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Reagan said, is who we are. I am appreciative

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if the work leads me to a promotion. I really

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don't care about promotion and tenure aside from

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doing the work that I'm purposed to do. And you

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can't create that. Either you have that and that's

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who you are or not. And that relates back to

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what Reagan said about her career choice. Right.

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She said, I want to help my people. I think I

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want to do it through medicine. Oh, that didn't

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work. Well, then how else can I do it? Oh, nursing

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is a strategy to do it. Either way, I'm going

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to get it done. Right. So one thing that I got

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so many questions for y 'all and I know I can't

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ask them all, but the heat lab isn't just about

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data and research. I learned that you all are

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about so much more than that. Can you share more

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about initiatives like the Science of Soul and

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how they support holistic healing? Yes, the Science

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of Soul. This was an amazing event that we had

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in the spring of last year, integrating the arts

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with science and the community. I'll just share

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this story for the listeners who may not have

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context of it. But Science of Soul was a vision

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that I had in a concert listening to Raheem Devon

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and Lettucey at the DPAC in Durham. And at the

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end of the concert, Raheem's sex session. He

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started talking about Black women and giving

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stats and started talking about PrEP. Well, come

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to find out, he was an ambassador for Gilead

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Sciences around this, and he has his own foundation

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that focuses on HIV. I text Reagan in March of

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2023, 24, and I said, we're going to get Raheem

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Debon to Durham. That's what we're going to do.

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Well, March of 2025, he was here. And it was

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an amazing two -day event. And when you talk

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about how they support holistic healing, we had

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TED Talks from community members that were paired

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with many TED Talks from clinicians and researchers

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on mental health, maternal child health, caregiving,

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HIV AIDS. We had a community partner that shared

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her personal story with living with HIV. And

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followed by her, we had a researcher that talked

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about the research aspect of HIV. For this two

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-day event, we had dancing. We had live music.

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Rahim did a mini concert for us. And it was a

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moment of healing that we did not recognize.

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how much we needed it and how much the community

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needed it. It was a chance for us to understand

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science, understand these issues, have some resources

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to address them in our community and doing that

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in such a way that brought us healing. And I

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think that as we are addressing, you know, even

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our work, how do we look at the whole self? How

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do we consider where people work, live and play

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and socialize? into our solutions. And so, you

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know, it is our goal to continue things like

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the science of soul. Yeah, I'm speechless. I'm

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sorry. Every time I think about it, like the

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impact that it had was just so great. And so

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we are. Planning now to look at sponsors to be

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able to support it in its next iteration. I'm

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so committed to it, though, if I got to sell

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donuts and fish plates. I hope Science of Soul

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happens again in 2020. Well, y 'all heard it

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here. We're looking for some sponsors for Science

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of Soul. Don't be shy. Come on, come through

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with your checks, your checkbooks. You know,

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you got to tap. We got you. So unfortunately,

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in the climate that we're in now with cuts in

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higher education and reprioritizing and organizations

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having to shift things, it's not going to be

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funded through the organization that funded it

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last year. And so we are having to rethink how

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we're going to make it happen. And that's a common

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theme for a lot of researchers and practitioners

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that do things to support health equity, addressing

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health disparities in marginalized communities

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is that pivot. We've been talking about that

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quite a bit. How do we pivot? How do we shift?

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How do we change? How do we innovate in the midst

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of so much upheaval? And Reagan, you played a

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major role in bringing the science of soul together.

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What did that mean for you? How do you think

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it helped? the community, and the heat lab? I

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keep using the word benchmark and revolutionary

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and all of these words, but I think they really

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do fit what the heat lab has done and Science

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of Soul was no different. I think the Science

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of Soul has the opportunity to change the way

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organizations, particularly academic organizations,

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partner with the community to disseminate information.

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The engaging nature of these many TED Talks invoked

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a level of emotion that you saw in the room,

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but it also sparked curiosity. So from our evaluations,

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like a lot of people express how much they learned

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and what they learned and what that led them

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to go look up for themselves. And that's the

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very nature of what we should be doing, right?

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We're conduits of education. We're conduits of

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health. Right. We're not there to just give all

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the answers to people. What we said, ain't nobody

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come to save us. We have to save ourselves. And

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this was a way that I see the community being

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able to do that and us being able to play a part

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in the community saving themselves. You said

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a whole word. Ain't nobody coming to save us.

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Nobody. And when we recognize that, we can. develop

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innovations like these that educate, entertain,

00:12:26.179 --> 00:12:29.879
bridge together community members. Because Ryan

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Devon is a celebrity, a star, but he's also a

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community member. Like he shared some personal

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stories throughout this that made him seem like

00:12:38.519 --> 00:12:41.379
everybody else in the room. I think people, you

00:12:41.379 --> 00:12:44.240
know, until he started singing, everybody has

00:12:44.240 --> 00:12:47.779
started to believe, oh, he just. you know, a

00:12:47.779 --> 00:12:50.820
regular person, he's normal like me. And he goes

00:12:50.820 --> 00:12:52.480
through the same things that I go through and

00:12:52.480 --> 00:12:55.539
he made this decision. Maybe I should consider

00:12:55.539 --> 00:12:58.320
how I can make this decision for my health as

00:12:58.320 --> 00:13:01.779
well. And that's the tie that bind, right? Maybe

00:13:01.779 --> 00:13:05.139
that's what we need to, in this day and age where

00:13:05.139 --> 00:13:09.279
everybody's on social media, everybody is pop

00:13:09.279 --> 00:13:13.360
culture critics and lovers of pop culture stands.

00:13:14.000 --> 00:13:18.730
And how do we use that? in order to help people

00:13:18.730 --> 00:13:22.830
increase advanced health. If you're enjoying

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you've come to expect from questions you didn't

00:13:57.940 --> 00:14:01.440
ask. Thank you for your continued support. And

00:14:01.440 --> 00:14:05.159
let's keep the conversation going. Yes. And one

00:14:05.159 --> 00:14:06.980
thing that I loved about being a part of the

00:14:06.980 --> 00:14:10.539
science of soul was how it brought people together

00:14:10.539 --> 00:14:13.639
from. Multiple sectors, right? Because you all

00:14:13.639 --> 00:14:16.399
had politicians from the federal level, from

00:14:16.399 --> 00:14:19.860
the state level that either sent remarks, sent

00:14:19.860 --> 00:14:23.720
their staff, what have you. You had community

00:14:23.720 --> 00:14:26.360
folks, just everyday community folks that were

00:14:26.360 --> 00:14:29.580
welcome, whether it was in the academic setting

00:14:29.580 --> 00:14:32.179
or in the community setting where we were ready

00:14:32.179 --> 00:14:37.179
to party. We ate. And everybody was on the same

00:14:37.179 --> 00:14:40.970
floor. Everybody was able to talk and connect

00:14:40.970 --> 00:14:45.210
and engage in conversation. And people welcome

00:14:45.210 --> 00:14:51.090
that. I definitely felt very at home with both

00:14:51.090 --> 00:14:54.629
listening to Raheem speak and then engaging with

00:14:54.629 --> 00:14:58.070
him, even just for a picture. Because again,

00:14:58.230 --> 00:15:01.529
it seemed like he was really there because this

00:15:01.529 --> 00:15:05.970
was who he is and what he wants to convey to

00:15:05.970 --> 00:15:10.080
other people. that share his you know his journey

00:15:10.080 --> 00:15:12.840
and in different ways right so i think that that's

00:15:12.840 --> 00:15:15.519
just really important that you all are facilitating

00:15:15.519 --> 00:15:19.980
these events that are very high quality very

00:15:19.980 --> 00:15:23.899
very well put together very well organized beautiful

00:15:23.899 --> 00:15:28.940
decorations celebratory and folks feel like they

00:15:28.940 --> 00:15:32.620
are a part of it, right? They're not just observing

00:15:32.620 --> 00:15:36.379
it from afar or being a fan, but you're a part

00:15:36.379 --> 00:15:39.539
of it. You are a part of the community. And so

00:15:39.539 --> 00:15:42.019
no matter where you're at, and I saw some pretty

00:15:42.019 --> 00:15:44.940
high level, you know, well -known researchers,

00:15:45.659 --> 00:15:47.919
you know, deans, what have you, and they were

00:15:47.919 --> 00:15:51.720
letting their hair down, right? They needed a

00:15:51.720 --> 00:15:55.600
space and they took full advantage of it because

00:15:55.600 --> 00:15:58.990
they felt welcome. Right. So I just want to say

00:15:58.990 --> 00:16:01.950
that, you know, not all researchers are stuffy,

00:16:01.950 --> 00:16:04.129
not all researchers are stuck up in the ivory

00:16:04.129 --> 00:16:07.250
tower. And I'm thankful that the heat lab is

00:16:07.250 --> 00:16:09.429
one is one of those places where where people

00:16:09.429 --> 00:16:12.009
can come and feel like they are a part of something.

00:16:12.309 --> 00:16:14.750
And one thing that I want people to feel a part

00:16:14.750 --> 00:16:18.370
of or to know more about is this amazing research

00:16:18.370 --> 00:16:25.399
study called Updo's Protective Styles. And so

00:16:25.399 --> 00:16:29.259
let's talk about it. Shanita, what is it and

00:16:29.259 --> 00:16:32.100
how does it address health equity for Black women?

00:16:32.600 --> 00:16:38.580
Yeah, so HIV is still a thing. Black women make

00:16:38.580 --> 00:16:42.299
up about 12 to 14 percent of the United States

00:16:42.299 --> 00:16:45.879
population, but over 50 percent of new cases

00:16:45.879 --> 00:16:49.460
of HIV are among Black women. They get it through

00:16:49.460 --> 00:16:52.820
heterosexual contact. That doesn't necessarily

00:16:52.820 --> 00:16:56.519
have to be the story. There is PrEP, which is

00:16:56.519 --> 00:17:01.259
a medication that if taken consistently can improve

00:17:01.259 --> 00:17:04.700
or decrease one from getting HIV. And it's been

00:17:04.700 --> 00:17:07.400
proven up to 99 % effective. There are different

00:17:07.400 --> 00:17:10.000
ways now. There are injectables. There's oral

00:17:10.000 --> 00:17:13.299
medication. But what we know is that it's been

00:17:13.299 --> 00:17:17.880
out since 2012. FDA approved less than 2 % of

00:17:17.880 --> 00:17:20.779
Black women actually take PrEP. for a number

00:17:20.779 --> 00:17:24.380
of reasons so in the heat lab we have with beauty

00:17:24.380 --> 00:17:27.660
salons with stylists who have been consultants

00:17:27.660 --> 00:17:30.660
and with black women we have co -created updos

00:17:30.660 --> 00:17:32.859
using prep doing it for ourselves protective

00:17:32.859 --> 00:17:37.859
styles and our goal as we always say we're not

00:17:37.859 --> 00:17:41.220
prep pushers that's how have i like to say it

00:17:41.220 --> 00:17:45.039
right i'm not pushing it no that sounds like

00:17:45.039 --> 00:17:50.039
a song but What we do believe is that women should

00:17:50.039 --> 00:17:53.900
have the information that they need to make an

00:17:53.900 --> 00:17:56.400
informed decision about their own sexual health

00:17:56.400 --> 00:17:58.740
and sexual health should be defined for them

00:17:58.740 --> 00:18:02.599
in the way that they want it best defined. And

00:18:02.599 --> 00:18:04.940
so we want to bring awareness to this. We also

00:18:04.940 --> 00:18:08.220
recognize that some of the barriers in clinical

00:18:08.220 --> 00:18:12.259
and research is that we evaluate the effectiveness

00:18:12.259 --> 00:18:16.779
of PrEP as a yes or no. Like I started it. And,

00:18:16.779 --> 00:18:19.599
you know, I'm on it. But what we look what we're

00:18:19.599 --> 00:18:23.500
looking at is, you know, even if a woman reaches

00:18:23.500 --> 00:18:27.140
out to a telehealth provider about PrEP, even

00:18:27.140 --> 00:18:29.859
if she goes from not knowing about PrEP to now

00:18:29.859 --> 00:18:32.660
understanding about PrEP, we just want women

00:18:32.660 --> 00:18:35.240
to have that informed decision. So it's three

00:18:35.240 --> 00:18:38.700
components. One is a stylist training where we

00:18:38.700 --> 00:18:42.160
are training stylists across North Carolina to

00:18:42.160 --> 00:18:45.259
be opinion leaders. They receive continuing education

00:18:45.259 --> 00:18:49.220
units for completing the training. It's a two

00:18:49.220 --> 00:18:53.460
-hour training. And they also received Ask Me

00:18:53.460 --> 00:18:55.700
About Prep signage to go in their beauty salons.

00:18:56.000 --> 00:18:58.700
Component number two is a six -week entertainment

00:18:58.700 --> 00:19:02.339
video where we have co -created with a creative

00:19:02.339 --> 00:19:05.700
agency that really tells the story through drama,

00:19:05.759 --> 00:19:10.799
entertainment about prep and about sexual health.

00:19:11.200 --> 00:19:13.759
that the women would actually view this six week.

00:19:13.980 --> 00:19:16.779
And then we've partnered with a telehealth agency

00:19:16.779 --> 00:19:20.559
where women can actually reach out in the privacy

00:19:20.559 --> 00:19:23.259
of their own home, talk to a telehealth provider,

00:19:23.660 --> 00:19:26.880
get HIV testing delivered to their home. And

00:19:26.880 --> 00:19:29.420
if they choose to, they could even have PrEP

00:19:29.420 --> 00:19:32.039
delivered to the home. Earlier, we were talking

00:19:32.039 --> 00:19:35.680
about how things change, even in creating this,

00:19:35.720 --> 00:19:38.160
a lot of changes have happened. When we first

00:19:38.160 --> 00:19:40.779
started this project, there was only oral. Now

00:19:40.779 --> 00:19:43.579
there's injectable. When we first started, the

00:19:43.579 --> 00:19:47.599
agency, you know, had funding to be able to offer

00:19:47.599 --> 00:19:50.059
it free. Right now, some things have shifted

00:19:50.059 --> 00:19:52.779
in government with Medicaid and Medicare, but

00:19:52.779 --> 00:19:55.019
we are still moving forward and shifting things

00:19:55.019 --> 00:19:57.880
as as we need to around that. So that's updo's

00:19:57.880 --> 00:20:00.579
protective styles, using PrEP, doing it for ourselves.

00:20:02.679 --> 00:20:05.460
Awesome. Now, Reagan, I'm going to ask you, you

00:20:05.460 --> 00:20:08.059
know, one thing that you all need to know about

00:20:08.059 --> 00:20:10.279
Reagan and Shanita is that these are some not

00:20:10.279 --> 00:20:12.720
just powerful black women, but they are beautiful.

00:20:12.859 --> 00:20:16.380
When I say they be quaffed. OK, so tell us a

00:20:16.380 --> 00:20:19.839
little bit more about why beauty salons. I mean,

00:20:19.859 --> 00:20:21.720
we've talked a lot about your partnership, Heat

00:20:21.720 --> 00:20:23.900
Lab, with beauty salons and barbershops. Why

00:20:23.900 --> 00:20:27.619
them? Yeah, it's so crazy because everything

00:20:27.619 --> 00:20:30.319
goes back to my college days, right? So when

00:20:30.319 --> 00:20:33.299
I was in nursing school, I'm aging myself. So

00:20:33.299 --> 00:20:35.960
I worked at a pager shop, a beeper shop a long

00:20:35.960 --> 00:20:39.660
time ago. Very popular in the city. Like everybody

00:20:39.660 --> 00:20:41.859
came to this beeper shop and right next door,

00:20:42.039 --> 00:20:46.180
a slash beauty salon that everybody went to this

00:20:46.180 --> 00:20:48.000
barbershop beauty salon. There'd be a million

00:20:48.000 --> 00:20:51.079
people in there. So I needed to practice, you

00:20:51.079 --> 00:20:54.160
know, my blood pressures. And the barber would

00:20:54.160 --> 00:20:56.319
be like, girl, just come in here and do all your

00:20:56.319 --> 00:20:58.119
blood pressures in here. And on Saturday mornings,

00:20:58.220 --> 00:21:00.980
I would camp out in the barbershop and do a ton.

00:21:01.079 --> 00:21:05.059
Anybody who let me practice blood pressures,

00:21:05.079 --> 00:21:08.700
that kind of just really gave me some kind of

00:21:08.700 --> 00:21:12.880
meaning to this is a good space to talk to people,

00:21:12.960 --> 00:21:17.200
educate people. At that time, people would spend

00:21:17.200 --> 00:21:22.269
hours in the shop. And then when I got into my

00:21:22.269 --> 00:21:26.289
master's program, I heard another researcher

00:21:26.289 --> 00:21:30.390
in Philly was doing a barbershop program around

00:21:30.390 --> 00:21:34.589
HIV specifically. And I was like, oh, that's

00:21:34.589 --> 00:21:37.430
super interesting to pair the two things that

00:21:37.430 --> 00:21:39.390
I'm interested in, the two things that I like.

00:21:39.410 --> 00:21:42.150
I like getting my head on. I like teaching people

00:21:42.150 --> 00:21:45.170
about HIV and preventing HIV. And so that's kind

00:21:45.170 --> 00:21:48.970
of where... It started with me thinking of this

00:21:48.970 --> 00:21:53.470
as a good space to kind of share information,

00:21:53.670 --> 00:21:56.950
share education and innovate, because think about

00:21:56.950 --> 00:21:59.710
all the things that you hear in a beauty salon

00:21:59.710 --> 00:22:03.130
or a barbershop, all the things that you tell

00:22:03.130 --> 00:22:06.750
your stylist or your stylist. My stylist tells

00:22:06.750 --> 00:22:10.910
me a lot, too. So you get to know so much about

00:22:10.910 --> 00:22:13.849
the people who you're in community with because

00:22:13.849 --> 00:22:18.819
that's a community. Right. Yes. So that's what

00:22:18.819 --> 00:22:20.940
started it. And I think it's been a perfect,

00:22:20.980 --> 00:22:25.799
trusted place to engage in this work. That's

00:22:25.799 --> 00:22:29.599
awesome. I mean, I love what you said, too, about,

00:22:29.599 --> 00:22:31.759
you know, this whole bidirectional thing has

00:22:31.759 --> 00:22:35.019
been planting a seed in you for a long time.

00:22:35.200 --> 00:22:39.309
Right. Because. here you are you know a young

00:22:39.309 --> 00:22:42.650
person working towards your nursing degree and

00:22:42.650 --> 00:22:45.390
you're also physically like working right you

00:22:45.390 --> 00:22:47.250
got to go to work to pay for school or whatever

00:22:47.250 --> 00:22:49.289
it is that you need right it's your business

00:22:49.289 --> 00:22:56.029
but but here is this barbershop i mean he is

00:22:56.029 --> 00:22:59.410
successful barbershop owner everybody loves his

00:22:59.410 --> 00:23:02.549
spot and he cares about you and your education

00:23:03.980 --> 00:23:06.839
And because of that, he invited you into, you

00:23:06.839 --> 00:23:08.660
don't work at his barbershop, you work at the

00:23:08.660 --> 00:23:14.799
pager shop. And he invited you in to get your

00:23:14.799 --> 00:23:20.220
clinical experience from his customers. And you

00:23:20.220 --> 00:23:22.240
want to talk about informed consent, right? So

00:23:22.240 --> 00:23:24.859
you had to ask because not everybody wanted to

00:23:24.859 --> 00:23:28.119
be bothered with you, right? Right, right. Now

00:23:28.119 --> 00:23:31.319
they can say no, but the barber and rest in peace.

00:23:32.700 --> 00:23:35.480
the barber lindsey brown he'd be like y 'all

00:23:35.480 --> 00:23:38.359
gonna let reagan do her blippers because this

00:23:38.359 --> 00:23:41.000
girl gotta get her education because we need

00:23:41.000 --> 00:23:45.640
her we need her to be great we need her and she

00:23:45.640 --> 00:23:48.140
gonna remember us when she finish and get on

00:23:48.140 --> 00:23:51.380
the other side and here you are co -director

00:23:51.380 --> 00:23:53.180
of the heat lab y 'all give it up y 'all give

00:23:53.180 --> 00:23:57.740
it up give it up all right like give it up for

00:23:57.740 --> 00:24:01.450
the him the other stylists and all the patients.

00:24:02.069 --> 00:24:04.430
Look, I'm calling them post -patients. The clients

00:24:04.430 --> 00:24:07.849
and the barbershops that allow that. I'm so,

00:24:07.950 --> 00:24:09.869
so grateful for everybody who's been a part of

00:24:09.869 --> 00:24:12.359
my journey. You've been listening to Questions

00:24:12.359 --> 00:24:15.640
You Didn't Ask, hosted by Nyesha Frey with Dr.

00:24:15.880 --> 00:24:18.940
Shanita Randolph and Dr. Reagan Johnson. If you're

00:24:18.940 --> 00:24:21.900
inspired by doing it for ourselves, subscribe,

00:24:22.380 --> 00:24:26.420
like, comment, and share this episode. Find every

00:24:26.420 --> 00:24:30.019
episode and more about the Heat Lab at nyeshafrey

00:24:30.019 --> 00:24:34.279
.com slash podcast or on your favorite platform.

00:24:34.799 --> 00:24:37.339
Together, we're doing it for ourselves.
