WEBVTT

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Welcome to In the Seams, a podcast by Broken

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and Mended. And now your host, David Heflin.

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Well, hello. I want to welcome you back to In

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the Seams. And I'm excited to have a guest today.

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Her name is Sarah Reed. And Sarah was connected

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to us through Shannon 
Cramer. And Shannon has

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been on this podcast before. and also was one

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of our conference speakers last fall, which we'll

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be having another virtual conference soon, this

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coming fall, and so there'll be more details

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about that. But anyway, Shannon has been connected

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to this ministry through those ways, and we're

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very glad, Sarah, that she connected you to us.

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We're excited to get to talk to you today and

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just want to welcome you to the show. Well, thank

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you so much. I'm really excited to be on here

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and for the opportunity to share my story, and

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hopefully it'll encourage others who are listening,

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whether shortly after it's recorded or way in

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the future. Yeah, yeah. And I'm sure that it

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will be an encouragement. And I've had an opportunity

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to kind of peruse some of your content on Instagram

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and on YouTube, looked at your podcast a little

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bit. And so we'll talk about all of that, these

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things that you're offering to connect with other

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people. But first of all, let's just learn, if

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we could, a little bit more about you and your

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story. Could you kind of tell us about your health

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journey, kind of when the problem started, and

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what did that eventually result in in terms of

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diagnoses? Yes, so I've actually struggled with

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my health pretty much all of my life and then

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as I've gotten older it kind of Progressed, you

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know each year get a little bit more Certain

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symptoms would show up that seemed you know,

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quote -unquote random, but we now know they weren't

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And so it took many many years of going to specialists

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and doctors for different things And unfortunately,

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they didn't know what they were. So I spent a

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long time not having any diagnosis And then when

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I was 17, I got into the Mayo Clinic in Minnesota.

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And I spent about a week there getting different

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tests done and stuff like that. And they finally

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were able to diagnose me with POTS and ME -CFS.

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And then later on, I was diagnosed with fibromyalgia.

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hypermobile arthralgia. So it's just kind of

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been a very long journey. I'm 23 now. So just

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trying to figure out how to be 23 with these

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conditions that are for me, unfortunately, can

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be disabling. Okay, thank you. And so you said

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MECFS. Is that what you said a moment ago? Could

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you tell our audience what that stands for and

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what that is? So ME -CFS stands for myologic

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encephalomyelitis. It's a very complicated way

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to say my body doesn't properly give me the energy

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I need always and it can also cause a lot of

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pain along with a lot of other random symptoms

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and stuff and it can be challenging. Some seasons

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it's worse than others, some seasons it's better,

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but I don't always feel as rested. I can feel

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very Fatigued, I can have pain deep in my bones

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because I also have fibromyalgia but that pain

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is a little bit different. Physical exertion,

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things that people wouldn't often think of like

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walking and standing can trigger extra fatigue

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more than just a cup of coffee or a nap can cure,

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although I do take my fair share of naps. Okay.

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Yeah. Thank you for explaining that. And we have

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had people on the show that have had POTS and

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also fibromyalgia. So I think people are a little

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familiar with that, but it's always good, I think,

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for people who don't know to be kind of reminded.

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And so I appreciate you doing that. And it's

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a lot. It's a lot of stuff that you're dealing

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with at a very young age. You said you were 23.

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Obviously, this happens at a really formative

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time in your life. And like you said, all your

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life and then at 17, you get these diagnoses.

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And so I want to just ask how that has really

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impacted the trajectory of your life. Like how

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have these conditions kind of changed the path

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you wanted to go on or had hoped you would be

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able to go on? Oh, my goodness. It's changed

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it in so many ways because We went so long without

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being able to find answers that I just kind of

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assumed one day They would say here's what you

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have. Here's you know, a magic pill and then

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you'll feel better So I had kind of there was

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always that thing in the back of my mind that

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was like eventually I'm going to get Completely

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better and not that that can't happen in the

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future But just as you know a teen, you know,

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I thought that I was going to just one day the

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doctor would be like this is what you have and

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and give me something and I would feel better

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and so I had all these plans of like when I do

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get better this is what I'm gonna do in college

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you know this is what I'm gonna do in my early

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20s and though now to be in my early 20s and

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it looks you know completely different than what

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I thought it would be and I had to you know change

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my life. I can't drive myself so that's very

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different for you know someone who is a young

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adult and I can't work or go to college. But

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I've tried my best to, you know, that still resting

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so much and so much symptom management, but also,

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you know, what can I do where I'm at? And for

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some seasons that's been bed bound and just breathing

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and other seasons that's been, you know, writing

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books or doing social media when I can. So it

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just has to look, you know, different every moment

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and, you know, in every season. Sure. Well, I

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appreciate that perspective. And I think that's

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one that certainly goes beyond, you know, most

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23 year olds and obviously chronic illness, chronic

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pain could be something that causes us to have

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a more mature outlook because you have to in

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order to survive and to make sense of your reality

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right now. But I certainly appreciate you kind

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of speaking about how you just have to adapt

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to whatever you can do at this particular time.

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I'm sure it was not easy to come to that realization.

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And so just wanted to ask you if you had to identify

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maybe a hardest part of your journey. And then

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also, how did God Meet you in that low point.

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Oh my goodness the hardest part. There's so many

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hard parts. I feel like there's it's kind of

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like an onion. You've got a lot of different

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layers that you have to unveil and different

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emotions that you have to experience as they

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come up with with different things. And so, you

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know, just different milestones can be hard hitting

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20 was, you know, a bit difficult because you're

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no longer a teen and then hitting 23 because

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it's a little bit more real than, you know, 22

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felt. And so each of those milestones, you have

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to kind of comprehend like this is this is my

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reality right now and it looks very different

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than the rest the world and or I guess I should

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say there's a lot of people with health issues

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a lot of different than the rest of the people

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I I'm around and stuff a lot of healthy people

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and just kind of acknowledging that like man

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my life looks so different than theirs because

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they're talking about their job interviews or

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their day at work and I'm like yeah I just had

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my third nap so you know sometimes it can look

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very different so that's something that you have

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to process and I think that can be hard because

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you want to rejoice for your friends and you

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want to be happy for them but then you also you

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know have that reality of you know, my personal

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life looks very different than theirs. So I think

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that can be hard, but what's helped me is my

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relationship with the Lord and there's a season

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for everything. You know, Ecclesiastes talks

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about that, which it's a lot easier to read that

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in Ecclesiastes than to apply it to your own

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life. But just realizing that there really is

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a season for everything. Right now, my life doesn't

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look like others, and this is the season I'm

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in, and I can acknowledge that that's frustrating,

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but I can also acknowledge that there's still

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the Lord's grace and goodness even in the season

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that I'm in now, and, you know, I process the

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hard emotions, but I also try to look for the

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positive and the joy. Yeah, I appreciate you

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pointing that out, and you mentioned the positive,

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and I know you have kind of a play on that word

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for a lot of your social media and other platforms,

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potsitive, you know, so I thought that was that's

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pretty clever. And also telling of the perspective

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you're trying to approach it at. So I'm just

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kind of curious if your relationship with God

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has been something that's been pretty steady

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throughout this, or is it something that you

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really had to wrestle with? And I'm sure it's

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different at different stages along the way,

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but kind of how has your relationship with God

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been impacted or been challenged during this

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time? I feel like it's definitely I've drawn

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closer to the Lord in this. I grew up in the

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church and I had that perspective, which I'm

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very thankful for, but I didn't really have a

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relationship or know God for myself until I was

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17. So a few months before I actually got diagnosed,

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I became a Christ follower, as I like to say,

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because I knew Christ, but I didn't necessarily

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follow Him like I do now. that was a lot to wrestle

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with because I thought becoming a Christian,

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a true Christ follower was what God wanted. And

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then when I went to the Mayo Clinic, He was going

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to heal me there or give me this magic answer.

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And so I had to kind of be like, well, I thought

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that all this was just for me to know you. And

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now that I know you, you can take all the bad

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away, but that wasn't His plan. So just kind

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of, even if I don't understand and... Just trying

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to trust him and I love the I love the Psalms

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because especially the ones that David wrote

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because he's so He's so real for all of them

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because he's always like well is me and I feel

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that and sometimes it's very harsh and it's very

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difficult Reality is but then you also see how

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David was always thanking God for things yet

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to come and Seemed impossible, but he also you

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know Worship the Lord where he was at and so

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I feel like just knowing that my emotions are

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not too much for God So I can come to him and

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be like what's going on? But then you know I

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can also worship him and say you know even if

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I don't understand Thank you, and when I am frustrated

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help me you know walk through this help me process

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this Yeah, I love that I love that you bring

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up the Psalms and particularly these Psalms of

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lament many of them attributed to David of course

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and Being able to be real with God and be real

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with God while still having hope. Both of those,

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you don't have to give up one for the other.

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I think some people feel like they've got to,

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if they're going to really tell God how they

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feel, they're somehow betraying the hope they

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have, or they think that because they have such

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great hope, that means they can't really be honest

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about maybe the depth of their struggles and

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their emotions in the Psalms. really clarify

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that for us. And we talk a lot about lament here

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on this show because we think it's important

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that we be real with God, at the same time recognizing

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that God will meet us in that moment, as He did

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David and the other examples that we have from

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Scripture of people who... have lamented. Andres

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put in our producer scripture for us to consider

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here from Psalm. So, Psalm 73 26, my flesh and

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my heart may fall, but God is the strength of

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my heart and my portion forever. That's a beautiful

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Psalm. And so, yeah, you can draw a lot of encouragement

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from those sources in scripture. What about the

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people around you? You mentioned friends. Of

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course, you do have a situation where, like you

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said, your life is very different than your friends.

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And that can be hard. It can be hard. It can

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be isolating even. But have you found some support

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around you that has been helpful in either your

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family or friends? Oh yes, I'm very thankful

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at this point in my life I have a huge support

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system. My family is amazing and my mom is, you

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know, she's my biggest cheerleader and she, I

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have to use a wheelchair when I go shopping so

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we will go shopping together and she'll get my

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wheelchair in and out of the car and then my

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dad, he's amazing too and works really hard and

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so I am thankful to have two amazing parents

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and then just beyond that siblings and sister

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-in -laws that are really supportive. And then

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I do have friends who are amazing and church

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families. So I'm just surrounded by people that

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even if they might not understand completely

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chronic illness, if they don't have it, they

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still are compassionate and loving towards me

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and, you know, careful to check on me and stuff

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like that. So I'm very grateful for that. Yeah.

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Yeah, that is something to be grateful for, because

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certainly not everyone has that. And so I'm glad

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that you can appreciate that blessing. I too,

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I feel like in my own, and I've said this before

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on this show before, but. I'm very blessed in

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terms of my support system, my family and my

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friends. Like you said, maybe some people who

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can't understand exactly what it's like, but

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they try to. They try to understand and they

00:14:36.509 --> 00:14:38.450
try to show support whether they can understand

00:14:38.450 --> 00:14:43.929
or not. We have so many people that are not in

00:14:43.929 --> 00:14:46.690
that situation that we deal with and broken and

00:14:46.690 --> 00:14:48.610
mended with people with chronic pain and chronic

00:14:48.610 --> 00:14:51.580
illness. And I think that's part of the reason

00:14:51.580 --> 00:14:54.740
why we try to provide some level of community

00:14:54.740 --> 00:14:58.960
for people that don't have that. And a lot of

00:14:58.960 --> 00:15:00.720
people involved in Broken Amendment do have that.

00:15:00.799 --> 00:15:02.419
And so it's just kind of an additional level

00:15:02.419 --> 00:15:05.220
of support. But for some people, it really becomes

00:15:05.220 --> 00:15:08.179
one of their primary ways of finding support

00:15:08.179 --> 00:15:10.759
and to be able to connect with people who are

00:15:10.759 --> 00:15:14.750
going through similar things. And I know that

00:15:14.750 --> 00:15:17.970
you really have a heart for people who are going

00:15:17.970 --> 00:15:21.850
through similar things because your story has

00:15:21.850 --> 00:15:24.769
turned into one to where you're trying to use

00:15:24.769 --> 00:15:27.090
what you've been through as a way to acknowledge

00:15:27.090 --> 00:15:28.850
what others have been through and to be able

00:15:28.850 --> 00:15:31.509
to bless them. And I know you have a lot of different

00:15:31.509 --> 00:15:34.570
ways. And I heard in one place maybe it was on

00:15:34.570 --> 00:15:36.820
your... your podcast trailer or something, but

00:15:36.820 --> 00:15:38.720
you talk about wanting to reach out especially

00:15:38.720 --> 00:15:42.799
to other teens and young adults. By the way,

00:15:43.000 --> 00:15:46.220
you don't know this about me, but I have children

00:15:46.220 --> 00:15:49.480
that are not far from your age. My oldest son

00:15:49.480 --> 00:15:52.899
is 22, and I have a 20 -year -old son who lives

00:15:52.899 --> 00:15:55.720
with one of the same diseases I have, ankylosing

00:15:55.720 --> 00:15:58.700
spondylitis, and I have a 17 -year -old daughter

00:15:58.700 --> 00:16:03.159
who is living with Crohn's. One of the things

00:16:03.159 --> 00:16:05.970
that has been hard for me as their parent was

00:16:05.970 --> 00:16:09.970
to see them having to deal with it at such a

00:16:09.970 --> 00:16:15.950
young age. It impacts just everything that they

00:16:15.950 --> 00:16:18.409
want to do. You've kind of already alluded to

00:16:18.409 --> 00:16:20.350
that, but it comes with some unique struggles,

00:16:20.350 --> 00:16:23.169
I think, at that age. Because as you get older,

00:16:23.370 --> 00:16:24.950
maybe some people expect there are going to be

00:16:24.950 --> 00:16:26.549
more health problems. And a lot of times when

00:16:26.549 --> 00:16:29.960
you're dealing with younger people, sometimes

00:16:29.960 --> 00:16:32.299
they would not even think that that could be

00:16:32.299 --> 00:16:36.440
possible or likely. What I'm getting at, it's

00:16:36.440 --> 00:16:39.340
a long way for me saying that people can feel

00:16:39.340 --> 00:16:43.120
very isolated, I think, at your age and younger.

00:16:43.639 --> 00:16:45.620
I appreciate that you're particularly wanting

00:16:45.620 --> 00:16:49.059
to reach out to that group of people. You have

00:16:49.059 --> 00:16:53.419
your Instagram, your YouTube channel, podcast,

00:16:53.559 --> 00:16:56.559
and books. We'll talk about your books here in

00:16:56.559 --> 00:17:00.399
just a moment. But you also, I've noticed in

00:17:00.399 --> 00:17:02.840
these highlight, you really emphasize the struggle

00:17:02.840 --> 00:17:06.619
of invisible illness and that seems to be especially

00:17:06.619 --> 00:17:09.480
important to you. So I wanted to ask why that

00:17:09.480 --> 00:17:11.359
is? Why do you think that's such an important

00:17:11.359 --> 00:17:13.799
thing to emphasize? And what do you want people

00:17:13.799 --> 00:17:18.299
to know about invisible illness? I think it's

00:17:18.299 --> 00:17:21.299
so important for me because my illnesses are

00:17:21.299 --> 00:17:25.000
so invisible. I actually didn't tell people about

00:17:25.000 --> 00:17:28.779
my health issues until I was 19. I was fortunate

00:17:28.779 --> 00:17:32.799
enough to be homeschooled. And so that was able

00:17:32.799 --> 00:17:36.740
to cater even more to keeping it a secret and

00:17:36.740 --> 00:17:39.359
not telling people. And then at 19, it got to

00:17:39.359 --> 00:17:42.200
the point where I became bed bound. So of course,

00:17:42.420 --> 00:17:45.099
it was no longer something I could keep a secret.

00:17:45.500 --> 00:17:50.910
And I think people don't always understand how

00:17:50.910 --> 00:17:54.210
challenging it can be and how often and how much

00:17:54.210 --> 00:17:56.730
I can have symptoms and how much they affect

00:17:56.730 --> 00:17:59.750
my daily life because it's not something visible.

00:17:59.970 --> 00:18:02.109
When someone breaks their arm, of course they're

00:18:02.109 --> 00:18:03.670
in a lot of pain, of course that's something

00:18:03.670 --> 00:18:06.230
that they have to heal from, but you see the

00:18:06.230 --> 00:18:08.369
cast and so that's something where you look at

00:18:08.369 --> 00:18:10.880
them and you go, oh... they've hurt their arm

00:18:10.880 --> 00:18:12.920
and so it's something that you can recognize

00:18:12.920 --> 00:18:15.579
whereas when you're dealing with something that's

00:18:15.579 --> 00:18:17.680
you know breaking havoc on the inside of your

00:18:17.680 --> 00:18:20.839
body it's not something that you can see and

00:18:20.839 --> 00:18:23.299
you know you can get close to people where my

00:18:23.299 --> 00:18:25.740
mom will look at me and she'll see my eyes glazing

00:18:25.740 --> 00:18:29.039
over or she'll see my cheeks flushing from temperature

00:18:29.039 --> 00:18:32.079
dysregulation or my legs turn purple from blood

00:18:32.079 --> 00:18:35.160
pooling and she can sense she can see those things

00:18:35.160 --> 00:18:37.480
because she knows me and you know different people

00:18:37.609 --> 00:18:40.710
close to me can see that but for the rest of

00:18:40.710 --> 00:18:44.430
the world I could I look completely healthy and

00:18:44.430 --> 00:18:47.490
so I think that's so important because I think

00:18:47.490 --> 00:18:50.750
because it can be so invisible it can be lonely

00:18:50.750 --> 00:18:54.190
and not something that people always understand

00:18:54.190 --> 00:18:56.809
because of the invisible side and so I just kind

00:18:56.809 --> 00:19:00.170
of want to encourage you know especially teens

00:19:00.170 --> 00:19:02.869
because that's such a vital vital, your vital

00:19:02.869 --> 00:19:05.470
years, but then also young adults or really any

00:19:05.470 --> 00:19:08.849
age, just to feel more empowered that like, it

00:19:08.849 --> 00:19:11.490
is invisible, but that doesn't diminish, you

00:19:11.490 --> 00:19:13.509
know, your struggle and the things you're going

00:19:13.509 --> 00:19:19.970
through and your symptoms or your, you know,

00:19:20.069 --> 00:19:22.369
your worth isn't based on whether someone can

00:19:22.369 --> 00:19:25.289
see your symptoms or not. And your, your, your

00:19:25.289 --> 00:19:27.490
symptoms are still valid, even if it's if it's

00:19:27.490 --> 00:19:31.839
not seen. Yeah, I think Thank you for that. And

00:19:31.839 --> 00:19:35.099
I think it's especially validating for people

00:19:35.099 --> 00:19:37.339
that are going through this and they feel very

00:19:37.339 --> 00:19:41.160
alone or that there is no one else that can understand,

00:19:41.700 --> 00:19:44.720
but there are. There are people out there who

00:19:44.720 --> 00:19:46.880
are going through similar things. And I think

00:19:46.880 --> 00:19:49.319
it's much more than what people realize. I was

00:19:49.319 --> 00:19:52.960
actually looking for, we're doing something a

00:19:52.960 --> 00:19:54.579
little different with Broken Amended in their

00:19:54.579 --> 00:19:57.640
future. where we're going to be helping families

00:19:57.640 --> 00:19:59.819
who have children with chronic illness. So they

00:19:59.819 --> 00:20:01.480
could be young children, but they could be older

00:20:01.480 --> 00:20:05.220
children and teenagers as well. And so I was

00:20:05.220 --> 00:20:08.279
looking a little bit at the occurrence of chronic

00:20:08.279 --> 00:20:11.619
illness and chronic health conditions with younger

00:20:11.619 --> 00:20:16.240
people. And it was pretty high. Like I was surprised

00:20:16.240 --> 00:20:20.240
that something like 30 to 40 percent of all people

00:20:20.240 --> 00:20:22.299
that are children, which in this case was defined

00:20:22.299 --> 00:20:25.019
as under 18. have some kind of chronic condition.

00:20:25.279 --> 00:20:27.700
Now, those weren't all the same. One could be

00:20:27.700 --> 00:20:30.400
ADHD, for example, or dyslexia, it could be.

00:20:30.779 --> 00:20:32.579
And then some were struggling with mental health

00:20:32.579 --> 00:20:36.599
issues. But I think the numbers were close to

00:20:36.599 --> 00:20:40.700
around 10%, that have basically kind of a life

00:20:40.700 --> 00:20:43.960
limiting, life altering type, you know, chronic

00:20:43.960 --> 00:20:45.819
pain, chronic illness. That's still a lot of

00:20:45.819 --> 00:20:49.259
people. And a lot of, I think a lot of times,

00:20:49.259 --> 00:20:51.240
and I'm reflecting a little bit back on my own

00:20:51.240 --> 00:20:55.019
kids when I say this, because I know that when

00:20:55.019 --> 00:20:58.279
my son was first going through this that he did

00:20:58.279 --> 00:21:00.119
not realize that there were other people in the

00:21:00.119 --> 00:21:02.420
same youth group that were going through something

00:21:02.420 --> 00:21:05.140
similar until he shared what he was going through.

00:21:05.339 --> 00:21:08.420
And then that caused other people to open up.

00:21:08.619 --> 00:21:10.599
So really kudos to you for doing what you do

00:21:10.599 --> 00:21:14.039
because people do need to know that they're not

00:21:14.039 --> 00:21:15.720
alone, that there are others who are going through

00:21:15.720 --> 00:21:19.990
similar things. And, yeah, Andres is posting

00:21:19.990 --> 00:21:22.609
some things here. He's doing live research for

00:21:22.609 --> 00:21:25.109
us. I appreciate that. But, yeah, approximately

00:21:25.109 --> 00:21:27.869
one in five children and adolescents worldwide

00:21:27.869 --> 00:21:31.910
experience chronic pain, age and gender. Chronic

00:21:31.910 --> 00:21:34.609
pain prevalence increases with age peaking during

00:21:34.609 --> 00:21:39.349
adolescence, 15, 16 years old. And then girls

00:21:39.349 --> 00:21:41.470
generally report a higher prevalence of chronic

00:21:41.470 --> 00:21:44.440
pain than boys. But they're still high for both

00:21:44.440 --> 00:21:48.759
boys and girls, like 26 .4 for girls, 18 .4 %

00:21:48.759 --> 00:21:51.579
for boys. So that's a lot going on for people

00:21:51.579 --> 00:21:54.200
that are young. And a lot of times older people

00:21:54.200 --> 00:21:56.460
especially, maybe because they forgot what it

00:21:56.460 --> 00:21:58.559
was like when they were young, they assume that

00:21:58.559 --> 00:22:00.539
nothing real serious could be happening there.

00:22:01.180 --> 00:22:04.640
Even though I didn't start struggling with my

00:22:04.640 --> 00:22:09.319
issues until I was, I think, 35 or so. I still

00:22:09.319 --> 00:22:11.480
had older people at church often tell me something

00:22:11.480 --> 00:22:14.339
like, well, wait till you get to my age. And

00:22:14.339 --> 00:22:16.539
it was kind of an invalidating thing because

00:22:16.539 --> 00:22:19.160
it was saying that what I'm going through right

00:22:19.160 --> 00:22:21.539
now must not be serious because I'm not old enough.

00:22:21.839 --> 00:22:23.960
So if that was true for me at 35, I can only

00:22:23.960 --> 00:22:27.079
imagine how that attitude could be impactful

00:22:27.079 --> 00:22:32.299
for people in your age group. I do want to know

00:22:32.299 --> 00:22:34.859
a little bit more about the books you've written.

00:22:35.440 --> 00:22:38.700
I know at least one, if not two. I know one has

00:22:38.700 --> 00:22:40.319
been published. Has the second one been published

00:22:40.319 --> 00:22:43.720
as well? Yes, it has. You published two books

00:22:43.720 --> 00:22:46.359
in a pretty short period of time. Is that correct?

00:22:47.740 --> 00:22:51.880
Yes, I published them both last summer into fall.

00:22:52.519 --> 00:22:57.099
Wow, that's a lot. Tell me a little bit about

00:22:57.099 --> 00:22:59.380
that and tell our listeners a little bit about

00:22:59.380 --> 00:23:02.259
that, what each of the books are about. I'm always

00:23:02.259 --> 00:23:04.220
curious, by the way, when you're sharing this,

00:23:04.839 --> 00:23:07.180
kind of prompted you or inspired you to write

00:23:07.180 --> 00:23:12.220
the book that you ended up writing. So my first

00:23:12.220 --> 00:23:14.799
book is a little children's chapter book and

00:23:14.799 --> 00:23:19.180
that one was inspired by my little nephew over

00:23:19.180 --> 00:23:22.980
a couple summers ago. He spent it with us a couple

00:23:22.980 --> 00:23:27.640
weeks and he's just such a fun kind kid and he's

00:23:27.640 --> 00:23:30.200
goofy but he's got a lot of where he's like you

00:23:30.200 --> 00:23:33.279
know skeptical of things and very hesitant and

00:23:33.279 --> 00:23:36.640
you know as any you know, young kid has. He's

00:23:36.640 --> 00:23:39.339
got his own fears and stuff. And so I wanted

00:23:39.339 --> 00:23:43.920
a book where I just kind of normalized disabilities,

00:23:44.119 --> 00:23:47.259
but also had this cool story and included superheroes

00:23:47.259 --> 00:23:49.779
and stuff like that. And so I was telling my

00:23:49.779 --> 00:23:51.279
mom about it and I was like, man, I just wish

00:23:51.279 --> 00:23:53.829
there was a book. And she goes, well, why don't

00:23:53.829 --> 00:23:56.990
you write one and so I was like okay and then

00:23:56.990 --> 00:24:00.410
I started writing this book and um just kind

00:24:00.410 --> 00:24:02.750
of get my ideas down and seeing if it was possible

00:24:02.750 --> 00:24:05.049
and I ended up writing Leo and Charlotte True

00:24:05.049 --> 00:24:08.940
Heroes and it's about this little boy who's going

00:24:08.940 --> 00:24:11.859
into the fourth grade and he's a little nervous

00:24:11.859 --> 00:24:14.460
and kind of got a lot of fears, but through the

00:24:14.460 --> 00:24:17.119
stories of, you know, history stories that his

00:24:17.119 --> 00:24:19.380
teacher, his history teacher tells, and through

00:24:19.380 --> 00:24:21.980
his parents, his neighbor, and his three best

00:24:21.980 --> 00:24:25.059
friends, he kind of learns to be. brave and and

00:24:25.059 --> 00:24:27.440
what that looks like without having superpowers.

00:24:28.000 --> 00:24:30.819
And his best friend Charlotte in the book has

00:24:30.819 --> 00:24:33.619
a disability and she has to use arm crutches.

00:24:33.680 --> 00:24:37.319
So it kind of normalizes using disabilities and

00:24:37.319 --> 00:24:39.440
how they help her get around. It's not the focal

00:24:39.440 --> 00:24:42.200
point of the story, but it still normalizes it

00:24:42.200 --> 00:24:45.259
in such a fun, unique way. And so I love doing

00:24:45.259 --> 00:24:47.259
that. And then I also talk about the American

00:24:47.259 --> 00:24:51.500
Americans with Disability Act. and kind of invisible

00:24:51.500 --> 00:24:53.859
illnesses and dynamic disabilities, just kind

00:24:53.859 --> 00:24:56.079
of sprinkled in there a little bit with it where

00:24:56.079 --> 00:24:58.880
it's still part of the story but not like super

00:24:58.880 --> 00:25:02.240
overbearing, just in a fun way. And then my second

00:25:02.240 --> 00:25:09.539
book that I published is a Christian rom -com.

00:25:09.859 --> 00:25:13.059
It's a Potsy rom -com. The main character has

00:25:13.059 --> 00:25:16.200
pots. It's called Salty for You, so it's a little

00:25:16.200 --> 00:25:21.549
play on words. And it's about this 26 year old

00:25:21.549 --> 00:25:25.170
girl who has pots and she doesn't want love,

00:25:25.269 --> 00:25:27.769
she doesn't want a relationship. She's very happy

00:25:27.769 --> 00:25:32.390
in her own little world. And then this very handsome,

00:25:32.490 --> 00:25:36.690
very rugged guy comes into town and they don't

00:25:36.690 --> 00:25:38.769
like each other at first. So it's, you know,

00:25:38.970 --> 00:25:40.910
it kind of enemies to lovers, but it's this whole

00:25:40.910 --> 00:25:43.279
story of where they're having to... grow their

00:25:43.279 --> 00:25:45.380
relationship with the Lord and they fall in love

00:25:45.380 --> 00:25:48.160
with each other. And so it's just a fun, very

00:25:48.160 --> 00:25:52.059
lighthearted, very Hallmark -style romance, but

00:25:52.059 --> 00:25:55.460
it also shows her struggles, her invisible struggles

00:25:55.460 --> 00:25:57.859
with POTS, but kind of shows you the symptoms

00:25:57.859 --> 00:26:00.140
going on in her body when she's feeling excited

00:26:00.140 --> 00:26:03.079
or nervous. A lot of things that wouldn't normally

00:26:03.079 --> 00:26:05.440
be seen, I was able to write in the book, which

00:26:05.440 --> 00:26:08.500
was really cool and really fun and very healing

00:26:08.500 --> 00:26:12.200
in a way because I get to put you know, part

00:26:12.200 --> 00:26:15.359
of myself in that book. And it's a happy ending,

00:26:15.640 --> 00:26:17.579
so of course, who wouldn't love that? Right,

00:26:17.759 --> 00:26:22.180
yeah. So the first book, tell me the name again.

00:26:24.119 --> 00:26:26.460
Leo and Charlotte True Heroes. Leo and Charlotte

00:26:26.460 --> 00:26:29.099
True Heroes. What age group would you say that's

00:26:29.099 --> 00:26:30.599
targeted at? I know you said it was a children's

00:26:30.599 --> 00:26:32.480
book. Is it little kids or a little bit older?

00:26:33.740 --> 00:26:36.160
So really anywhere between like seven to ten

00:26:36.160 --> 00:26:38.680
but younger could it could be read to or older

00:26:38.680 --> 00:26:41.480
So I mean it's one I've had you know my friends

00:26:41.480 --> 00:26:43.940
who are in their 60s They've read it, but it

00:26:43.940 --> 00:26:46.839
also my nephews read it so really for any age

00:26:46.839 --> 00:26:49.039
But mainly you know seven seven to ten the main

00:26:49.039 --> 00:26:51.500
characters are in going into fourth grade So

00:26:51.500 --> 00:26:54.779
kind of that age rate that age range okay, and

00:26:54.779 --> 00:26:57.339
we will put it just for our listeners sake I'm

00:26:57.339 --> 00:26:59.599
saying this we will put links to both your books

00:26:59.599 --> 00:27:02.859
in our show notes so people can uh people can

00:27:02.859 --> 00:27:06.400
find it real easily and so your other rom -com

00:27:06.400 --> 00:27:09.019
is that more for young adults is that kind of

00:27:09.019 --> 00:27:11.779
your target audience there is it somewhere else

00:27:11.779 --> 00:27:15.599
yeah that's mainly for um young young adults

00:27:15.599 --> 00:27:19.200
so you know kind of teens and to like you know

00:27:19.200 --> 00:27:23.680
20s but also any age it's very appropriate um

00:27:23.680 --> 00:27:28.180
only like the married couple will kiss. But other

00:27:28.180 --> 00:27:30.900
than that, it never goes beyond that. I wanted

00:27:30.900 --> 00:27:33.880
to keep it really clean as a book that my nieces

00:27:33.880 --> 00:27:37.160
could read as they got older or you'd feel comfortable

00:27:37.160 --> 00:27:39.299
reading in front of your grandma. So nothing

00:27:39.299 --> 00:27:42.839
crazy. So just a very clean book for really any

00:27:42.839 --> 00:27:45.819
age. That's good. Well, I'm excited that those

00:27:45.819 --> 00:27:49.019
are out there. Congratulations on getting that

00:27:49.019 --> 00:27:53.099
done. Thank you. I know it's a lot of work. Yeah,

00:27:53.240 --> 00:27:54.519
that sounds like the kind of book, honestly,

00:27:54.660 --> 00:27:57.519
I would get for my daughter, my 17 -year -old

00:27:57.519 --> 00:27:59.460
daughter, that she would enjoy that kind of book.

00:27:59.940 --> 00:28:04.200
And I appreciate that it's appropriate. I wouldn't

00:28:04.200 --> 00:28:08.039
expect otherwise. But yeah, that's a good reassurance

00:28:08.039 --> 00:28:14.619
as well. And so yeah, that sounds exciting. I

00:28:14.619 --> 00:28:17.799
want to ask you about some of these other platforms

00:28:17.799 --> 00:28:20.220
that you use. And it looks like some of them

00:28:20.220 --> 00:28:22.279
you're kind of getting off the ground. Like,

00:28:22.759 --> 00:28:25.900
I don't know, how many podcast episodes did you

00:28:25.900 --> 00:28:31.279
have recorded? I think podcast. So kind of with

00:28:31.279 --> 00:28:33.779
all my social media, as I'm sure you understand,

00:28:34.019 --> 00:28:36.700
with health issues, it can ebb and flow. So if

00:28:36.700 --> 00:28:42.359
I have an idea, I just post. upload an episode

00:28:42.359 --> 00:28:45.799
and the same thing with YouTube. YouTube is mainly

00:28:45.799 --> 00:28:48.559
for streaming my conferences, but when I have

00:28:48.559 --> 00:28:51.119
the energy, I will upload YouTube shorts or video

00:28:51.119 --> 00:28:57.420
or something. With the Be Potsitive, is that

00:28:57.420 --> 00:29:01.000
the way people can most easily find you on whatever

00:29:01.000 --> 00:29:06.359
platform they're looking for? Yes. I'm Be Potsitive

00:29:06.359 --> 00:29:10.130
on Um, it's like any podcasting platform. I think

00:29:10.130 --> 00:29:13.410
it's be positive with Sarah Reed is my podcasting.

00:29:13.650 --> 00:29:17.869
And then on Instagram, Facebook, YouTube, it's

00:29:17.869 --> 00:29:21.450
be positive. And then I believe on TikTok, it's

00:29:21.450 --> 00:29:23.910
either Sarah Reed or be positive. I just started

00:29:23.910 --> 00:29:26.849
that. Um, it's my first time downloading it.

00:29:26.869 --> 00:29:30.569
So I feel like a very grandma, um, cause I don't

00:29:30.569 --> 00:29:32.289
really know how to use it yet. So I'm still figuring

00:29:32.289 --> 00:29:35.900
that out. Well, I definitely don't know how to

00:29:35.900 --> 00:29:38.900
use it, but I know some of our listeners, especially

00:29:38.900 --> 00:29:42.259
given the age group that you're connecting with,

00:29:42.559 --> 00:29:45.440
will certainly appreciate that you have a TikTok

00:29:45.440 --> 00:29:50.420
account. What I could see would be challenging

00:29:50.420 --> 00:29:53.019
is you have so many different avenues of reaching

00:29:53.019 --> 00:29:56.559
out. Like you said, you have limited energy depending

00:29:56.559 --> 00:30:01.390
on what your health is like. What's your strategy?

00:30:01.650 --> 00:30:03.230
Is it just kind of in the moment, like you said,

00:30:03.269 --> 00:30:05.210
if something kind of pops in your mind, you'll

00:30:05.210 --> 00:30:07.250
do it? Or is there one that you're going to be

00:30:07.250 --> 00:30:10.529
focusing on more in the months to come? What's

00:30:10.529 --> 00:30:14.930
your overall plan, I guess, for that? I'm normally

00:30:14.930 --> 00:30:18.029
more, lately I've been more consistent on Instagram

00:30:18.029 --> 00:30:20.349
and TikTok, but I do try to post to Facebook

00:30:20.349 --> 00:30:22.970
and stuff. I normally just think of an idea and

00:30:22.970 --> 00:30:26.710
I'll upload it and then I'll, you know, save

00:30:26.710 --> 00:30:29.049
the video and upload it to the other platforms.

00:30:29.529 --> 00:30:33.089
But I've been doing something fun. I get infusions

00:30:33.089 --> 00:30:35.089
every week to help with my chronic illnesses.

00:30:35.329 --> 00:30:39.660
So I have Funky Fusion Fridays where I And I

00:30:39.660 --> 00:30:43.519
wear thrifted outfits or just weird outfits that

00:30:43.519 --> 00:30:47.940
I just want to wear. And I record a video of

00:30:47.940 --> 00:30:51.220
my outfit that day. And so normally I'll upload

00:30:51.220 --> 00:30:54.099
that once a week. So that's something that has

00:30:54.099 --> 00:30:56.720
been consistent every Friday. That will be posted

00:30:56.720 --> 00:31:00.519
to all my social medias. OK, good deal. Well,

00:31:00.519 --> 00:31:02.480
I'm glad there's so many different ways in which

00:31:02.480 --> 00:31:06.089
people can find you and connect to you. We'll

00:31:06.089 --> 00:31:08.829
try to put all those in the show notes as well

00:31:08.829 --> 00:31:13.109
so people can find out what you have to offer.

00:31:14.569 --> 00:31:18.410
Well, I wanted to ask you one more question,

00:31:18.970 --> 00:31:23.529
really two parts to it. One is, are there other

00:31:23.529 --> 00:31:25.630
resources that have been helpful to you or you

00:31:25.630 --> 00:31:29.569
would want to point people toward? Then the second

00:31:29.569 --> 00:31:32.670
part of that, just any parting words you want

00:31:32.670 --> 00:31:35.589
to share as an encouragement to our listeners

00:31:35.589 --> 00:31:40.549
today. Yeah, so I actually wrote it down, but

00:31:40.549 --> 00:31:44.049
there's this resource that it's a Christian devotional

00:31:44.049 --> 00:31:46.690
specifically for chronic illnesses that my mom

00:31:46.690 --> 00:31:49.470
actually gave me a couple years ago, and it's

00:31:49.470 --> 00:31:54.950
called Searching for Sea Glass by K .A .R .A

00:31:54.950 --> 00:31:58.680
.J. PLATT, I'm not going to try to pronounce

00:31:58.680 --> 00:32:01.480
it because brain fog and I do struggle with dyslexia,

00:32:01.579 --> 00:32:05.019
but you can search that name up on Amazon and

00:32:05.019 --> 00:32:06.920
you can find her book. It's such an encouraging

00:32:06.920 --> 00:32:09.460
book and really just helps you process those

00:32:09.460 --> 00:32:12.299
emotions. I would say if you haven't looked it

00:32:12.299 --> 00:32:14.740
up, you should look it up. I think something

00:32:14.740 --> 00:32:17.859
I would tell people is just your emotions are

00:32:17.859 --> 00:32:22.640
not too big for the Lord. you're allowed to feel

00:32:22.640 --> 00:32:25.240
all the emotions and he doesn't get mad at those

00:32:25.240 --> 00:32:29.319
emotions and he doesn't you know get angry about

00:32:29.319 --> 00:32:31.460
those emotions so just go to him with whatever

00:32:31.460 --> 00:32:33.940
you're feeling and he'll help you process those

00:32:33.940 --> 00:32:36.799
sometimes you might need to be angry or be frustrated

00:32:36.799 --> 00:32:40.140
and that's okay just go to him with all those

00:32:40.140 --> 00:32:43.779
emotions and then What was the last question

00:32:43.779 --> 00:32:45.339
you asked me? I forgot. I'm sorry. No, that's

00:32:45.339 --> 00:32:47.579
okay. No, and you might have already answered

00:32:47.579 --> 00:32:49.839
it, but it was basically, you know, resources

00:32:49.839 --> 00:32:52.460
in the second part was just kind of parting words

00:32:52.460 --> 00:32:55.000
of encouragement or anything you would want to

00:32:55.000 --> 00:32:58.900
say. Oh, yeah. Resources. So another resource

00:32:58.900 --> 00:33:01.299
that I actually started doing two years ago,

00:33:01.339 --> 00:33:05.180
this will be my third year. I host a conference

00:33:05.180 --> 00:33:08.660
called the Be Positive Conference, and it will

00:33:08.660 --> 00:33:13.380
be hosted in Leesburg, Georgia. But if you are

00:33:13.380 --> 00:33:16.039
not able to travel or you live in other states

00:33:16.039 --> 00:33:19.160
or countries, you can watch it. It will be live

00:33:19.160 --> 00:33:21.640
streamed on my YouTube channel and that will

00:33:21.640 --> 00:33:26.079
be August 8th and ticket sales will be launched

00:33:26.079 --> 00:33:28.740
soon. So that I'm really excited about that.

00:33:28.740 --> 00:33:30.980
That it'll have guest speakers of some of my

00:33:30.980 --> 00:33:34.599
medical team and then a supporter slash caregiver

00:33:34.599 --> 00:33:37.859
perspective. It'll have you know food and photo

00:33:37.859 --> 00:33:42.150
booth and just kind of a fun way to kind of connect

00:33:42.150 --> 00:33:44.730
people and make it where you feel a little less

00:33:44.730 --> 00:33:49.089
alone, but also raise awareness and help family

00:33:49.089 --> 00:33:51.549
and friends understand what those with pots are

00:33:51.549 --> 00:33:55.490
going through. That's great. And so how many

00:33:55.490 --> 00:33:59.509
times have you done this before? This year will

00:33:59.509 --> 00:34:02.130
be my my third year. So I've done it complete

00:34:02.130 --> 00:34:03.950
times. And this will be this will be my third

00:34:03.950 --> 00:34:06.089
time. That's that's ambitious. But that's that's

00:34:06.089 --> 00:34:08.440
that's great. And yeah, we'll certainly want

00:34:08.440 --> 00:34:11.739
to point people in that direction, because I

00:34:11.739 --> 00:34:16.000
think those moments of connection, encouragement,

00:34:16.260 --> 00:34:18.519
those moments, again, of finding out you're not

00:34:18.519 --> 00:34:22.019
alone are important. And so the more I hear about

00:34:22.019 --> 00:34:24.400
that kind of stuff happening, I'm encouraged

00:34:24.400 --> 00:34:26.639
by it. And so yeah, we'll make sure people know

00:34:26.639 --> 00:34:31.460
about that. We always talk a lot here about Diamonds

00:34:31.460 --> 00:34:33.500
Conference as well, just because we know that

00:34:33.500 --> 00:34:37.469
they do a lot. And also not just that they uh,

00:34:37.510 --> 00:34:40.849
minister to people who are young adults, but

00:34:40.849 --> 00:34:43.650
they do happen to, you know, pick up a lot in

00:34:43.650 --> 00:34:45.989
that age group, just because I think of the age,

00:34:46.070 --> 00:34:49.090
this all started for Sarah Willoughby. Uh, and

00:34:49.090 --> 00:34:51.090
then of course we have our own, our own conference

00:34:51.090 --> 00:34:53.989
that we're going to be having, uh, in October,

00:34:53.989 --> 00:34:57.789
uh, which is a, uh, basically, you know, uh,

00:34:57.829 --> 00:34:59.889
just where we have three speakers and a Q and

00:34:59.889 --> 00:35:04.619
A and We had our first one last year and so that

00:35:04.619 --> 00:35:06.260
was a big undertaking for us. That's why I was

00:35:06.260 --> 00:35:07.719
just kind of impressed that you've already done

00:35:07.719 --> 00:35:12.000
this for your third time coming up. But congratulations

00:35:12.000 --> 00:35:15.139
on that and we'll make sure people can find.

00:35:15.199 --> 00:35:19.710
Thank you. A lot with chronic illnesses. So my

00:35:19.710 --> 00:35:23.409
mom is amazing. I have an idea and if I don't

00:35:23.409 --> 00:35:25.230
have the energy to complete it, she does it.

00:35:25.250 --> 00:35:29.170
And then one of my best friends, she is like

00:35:29.170 --> 00:35:31.889
in her 60s, but I always say that I'm the senior

00:35:31.889 --> 00:35:34.230
citizen friend and she's like the go -getter.

00:35:34.590 --> 00:35:37.670
So she helps me plan it as well. So I'll have

00:35:37.670 --> 00:35:41.619
a crazy idea. they will help me, you know, accomplish

00:35:41.619 --> 00:35:44.360
it and stuff. So I'm very thankful to have a

00:35:44.360 --> 00:35:46.099
support system because like you said, it really

00:35:46.099 --> 00:35:49.019
is so important to have these conferences and

00:35:49.019 --> 00:35:51.639
stuff because just kind of getting the word out

00:35:51.639 --> 00:35:55.139
there, normalizing health issues, having a safe

00:35:55.139 --> 00:35:57.920
place we can talk about it is so important. And

00:35:57.920 --> 00:36:00.739
I think it really, you don't know like the impact

00:36:00.739 --> 00:36:03.219
that I'll have on people in the future. Yeah,

00:36:03.219 --> 00:36:06.530
that's right. That's right. Yeah, and I love

00:36:06.530 --> 00:36:09.250
the teamwork approach that you have there and

00:36:09.250 --> 00:36:12.409
just, I can relate to that coming up with crazy

00:36:12.409 --> 00:36:16.670
ideas, but needing people around me to help accomplish

00:36:16.670 --> 00:36:19.769
it for sure. But it's good for us to lean into

00:36:19.769 --> 00:36:23.170
those crazy ideas because that allows us to really

00:36:23.170 --> 00:36:25.030
step out there and trust that God is going to

00:36:25.030 --> 00:36:27.269
do something if we are just obedient with what

00:36:27.269 --> 00:36:30.210
he puts in front of us to do. And so obviously

00:36:30.210 --> 00:36:33.190
that's happening in your life. So again, we just

00:36:33.190 --> 00:36:36.519
thank you for being with us today and sharing

00:36:36.519 --> 00:36:38.460
some of your story and some of your resources.

00:36:38.659 --> 00:36:40.139
I know it's going to be a blessing to a lot of

00:36:40.139 --> 00:36:44.519
people. Well, thank you so much for having me

00:36:44.519 --> 00:36:46.699
on here. I really appreciate it and love that

00:36:46.699 --> 00:36:49.619
I can share my story. Yeah, absolutely. Well,

00:36:49.639 --> 00:36:53.239
thank you for listening, you know, for our podcast

00:36:53.239 --> 00:36:55.960
audience, and we'll refer to you as always to

00:36:55.960 --> 00:36:59.019
our website to find out the latest of what's

00:36:59.019 --> 00:37:01.199
going on with Broken and Mended. So that's just

00:37:01.199 --> 00:37:04.219
brokenandmended .org. And from there, you can

00:37:04.219 --> 00:37:07.320
find out many different ways that you can participate

00:37:07.320 --> 00:37:09.699
with our ministry, whether it be through support

00:37:09.699 --> 00:37:12.860
groups or utilization of some of our other resources

00:37:12.860 --> 00:37:15.519
and certainly we always welcome if you're in

00:37:15.519 --> 00:37:19.300
a position to be able to do so a financial partnership

00:37:19.300 --> 00:37:23.199
because that allows us to bring this message

00:37:23.199 --> 00:37:25.579
of hope not just here in the states but across

00:37:25.579 --> 00:37:28.059
the world and if you get on brokenamenda .org

00:37:28.059 --> 00:37:30.099
you'll see that quite a bit of it is focused

00:37:30.099 --> 00:37:34.840
overseas particularly in Africa. And so we appreciate

00:37:34.840 --> 00:37:36.800
you just kind of checking out what we're doing.

00:37:37.179 --> 00:37:41.039
This podcast is just one of one branch or one

00:37:41.039 --> 00:37:44.219
outreach that we have among several. But it's

00:37:44.219 --> 00:37:48.000
always a pleasure to be able to bring. you know

00:37:48.000 --> 00:37:50.480
these interviews to life and to be able to bring

00:37:50.480 --> 00:37:54.079
these people to our listeners that can be a source

00:37:54.079 --> 00:37:57.099
of encouragement and again a source of really

00:37:57.099 --> 00:37:59.820
practical resources as well. So thank you for

00:37:59.820 --> 00:38:02.840
listening and we look forward to having you back

00:38:02.840 --> 00:38:03.539
the next time.
